Living and Breathing It – Details, episodes & analysis

Join Dan Beever, Research Fellow at the University of Nottingham, as he navigates the way through his PhD exploring MRI scanning of the lungs in cystic fibrosis, as someone living with the condition.

Along the way, Dan will be speaking to others with their own lived experience stories and together, they will explore what it’s like to work on something that you have such a close personal connection with.

Do you have a lived experience journey to share?

Get in touch at danbeever.co.uk

Music by Ivan Luzan, www.ivanluzan.com

In the first of two episodes, Dan talks to Vicky Lang about her experience working as a Survivor Engagement Officer for Welsh Women’s Aid, as a survivor of abuse herself.

You can follow Vicky on LinkedIn and access the Welsh Women’s Aid’s Survivor Engagement Toolkit here.

Trigger warning: Please note that there are references to abuse throughout the episode.

Do you have a lived experience journey to share?

Get in touch at ⁠danbeever.co.uk⁠

Music by Ivan Luzan, ⁠www.ivanluzan.com

In this episode, Dan talks to Sarah Harris, journalist and PhD student in the School of Medicine at the University of Nottingham, about her experience of living with and researching endometriosis.

You can find Sarah’s journalism work here and follow her on LinkedIn, X and Instagram.

Do you have a lived experience journey to share?

Get in touch at danbeever.co.uk

Music by Ivan Luzan, www.ivanluzan.com

In this first episode, Dan talks to Dr Lucy Prodgers, Lecturer in Psychological and Social Medicine at the University of Leeds, about her experience of living with and researching Crohn’s disease. 

You can read more about Lucy’s work here & follow her on LinkedIn, X & Bluesky.

Do you have a lived experience journey to share?

Get in touch at danbeever.co.uk

Music by Ivan Luzan, www.ivanluzan.com 

In the second of two episodes, Dan talks to Vicky Lang about her experience working as a Survivor Engagement Officer for Welsh Women’s Aid, as a survivor of abuse herself.

You can follow Vicky on ⁠LinkedIn⁠ and access the Welsh Women’s Aid’s Survivor Engagement Toolkit ⁠here⁠.

Trigger warning: Please note that there are references to abuse throughout the episode.

Do you have a lived experience journey to share?

Get in touch at ⁠⁠danbeever.co.uk⁠⁠

Music by Ivan Luzan, ⁠⁠www.ivanluzan.com

In this special episode, Dan reflects on the recent European Cystic Fibrosis Society conference (ECFS) with Bethinn Evans, PhD student at Queen’s University Belfast, who also has cystic fibrosis and is doing research in cystic fibrosis.

You can find out more about Bethinn’s research here & follow the study on Instagram.

For reference, the study reporting on behavioural issues in children on modulator therapy that Bethinn refers to is available here.

You can join the Cystic Fibrosis Qualitative Research Network here.

Do you have a lived experience journey to share?

Get in touch at danbeever.co.uk

Music by Ivan Luzan, www.ivanluzan.com  

In this episode, Dan talks to Julian Harrison, a community engagement consultant, about how his lived experience of mental illness and autism has influenced his work. 

You can find out more about Julian on his website and follow him on BlueSky, LinkedIn and X.

Trigger warning: Please note that there are references to mental illness throughout the episode.

Do you have a lived experience journey to share?

Get in touch at danbeever.co.uk

Music by Ivan Luzan, www.ivanluzan.com

In the second of two episodes, Dan talks to Karen Packwood, creative writing PhD student at the University of Nottingham. Karen’s work is focused on the production of a memoir, ‘Into the Silence’, which is set in post-genocide Sarajevo and explores her coming to terms with the death of her husband, Amir.

You can follow Karen on ⁠YouTube⁠, ⁠LinkedIn⁠, ⁠Instagram⁠ and ⁠X⁠.

Trigger warning: Please note that there are references to war and its impact throughout the episode.

Do you have a lived experience journey to share?

Get in touch at ⁠danbeever.co.uk⁠

Music by Ivan Luzan, ⁠www.ivanluzan.com⁠ 

In the first of two episodes, Dan talks to Karen Packwood, creative writing PhD student at the University of Nottingham. Karen’s work is focused on the production of a memoir, ‘Into the Silence’, which is set in post-genocide Sarajevo and explores her coming to terms with the death of her husband, Amir.

You can follow Karen on YouTube, LinkedIn, Instagram and X.

Trigger warning: Please note that there are references to war and its impact throughout the episode.

Do you have a lived experience journey to share?

Get in touch at danbeever.co.uk

Music by Ivan Luzan, www.ivanluzan.com