The MSing Link – Details, episodes & analysis

 Today, we're going to be talking about a specific drug that has been shown in research thus far to help with remyelination. Do you remember back in the day, there was research in the MS world that was looking at the possible effects of clemastine on multiple sclerosis. The hope here was that it would help with remyelination, AKA building myelin. That same research has been integral in helping researchers develop an even more effective drug that is currently in phase two trials, and it's showing really promising results for remyelination in humans! And it's about time you know about it!

Resources mentioned in this episode:

• The MSing Link Podcast, Episode Number 186: Spotify / Apple / Podcast Website
• Clinical Trials Website: ClinicalTrials.gov
• Study to Evaluate the Safety and Efficacy of PIPE-307 in Subjects With Relapsing-Remitting Multiple Sclerosis (VISTA)

Additional Resources: https://www.doctorgretchenhawley.com/insider

Reach out to Me: hello@doctorgretchenhawley.com 

Website: www.MSingLink.com

Social: 

★ Facebook: https://www.facebook.com/groups/mswellness

★ Instagram: https://www.instagram.com/doctor.gretchen

★ YouTube: https://www.youtube.com/c/doctorgretchenhawley?sub_confirmation=1

→ Game Changers Course: https://www.doctorgretchenhawley.com/GameChangersCourse

→ Total Core Program: https://www.doctorgretchenhawley.com/TotalCoreProgram

→ The MSing Link: https://www.doctorgretchenhawley.com/TheMSingLink

Thank you so much for tuning in today! I have the Executive Vice President of Advocacy and Healthcare Access with me today. Her name is Bari Talenti. On today's episode, we talk about changes to healthcare policies for MS and what to keep an eye out for that could increase access and equity to healthcare. 

As the Executive Vice President of Advocacy and Healthcare Access, Bari leads teams who leverage public policies to find solutions for people with MS, engage healthcare providers and others in the healthcare space and work towards people affected by MS having access to the high quality healthcare they need.  Bari also leads the Society’s work to increase affordability and access to MS medications.

In 2018, Bari was elected as president of the MS Coalition and explores opportunities to leverage the collaborative efforts of the nine Coalition organizations to improve the lives of people affected by MS.

Bari received a law degree from the University at Buffalo School of Law and is a member of the New York and District of Columbia bars. She has been with the National MS Society since 2004.

Resources mentioned in this episode:

MS Activist Network: https://www.nationalmssociety.org/how-you-can-help/get-involved/advocate/become-an-ms-activist/join-ms-activist-network

MS activist X account: https://x.com/MSactivist

MS Navigator: https://www.nationalmssociety.org/resources/get-support/ms-navigator 

Additional Resources: https://www.doctorgretchenhawley.com/insider

Reach out to Me: hello@doctorgretchenhawley.com 

Website: www.MSingLink.com

Social: 

★ Facebook: https://www.facebook.com/groups/mswellness

★ Instagram: https://www.instagram.com/doctor.gretchen

★ YouTube: https://www.youtube.com/c/doctorgretchenhawley?sub_confirmation=1

→ Game Changers Course: https://www.doctorgretchenhawley.com/GameChangersCourse

→ Total Core Program: https://www.doctorgretchenhawley.com/TotalCoreProgram

→ The MSing Link: https://www.doctorgretchenhawley.com/TheMSingLink

We are going to get a little science nerdy today because we're going to be talking about a topic that is is still in clinical trial. There is not yet anything that has been released or launched specifically to help with this condition that we're about to talk about, but it's a really exciting area of research! So, we are going to dive into what remyelination is and why that's important in the first place. And then we're also going to dive into what is required for remyelination!

Additional Resources: https://www.doctorgretchenhawley.com/insider

Reach out to Me: hello@doctorgretchenhawley.com 

Website: www.MSingLink.com

Social: 

★ Facebook: https://www.facebook.com/groups/mswellness

★ Instagram: https://www.instagram.com/doctor.gretchen

★ YouTube: https://www.youtube.com/c/doctorgretchenhawley?sub_confirmation=1

→ Game Changers Course: https://www.doctorgretchenhawley.com/GameChangersCourse

→ Total Core Program: https://www.doctorgretchenhawley.com/TotalCoreProgram

→ The MSing Link: https://www.doctorgretchenhawley.com/TheMSingLink

Join me today as I answer 2 questions about neuroplasticity that have been popular lately. 1. How long does it take neuroplasticity to kick in? And 2. How long will the results last? These questions have been a frequent topic in my email inbox lately, and what better way to answer them in detail than by creating this episode! I hope you enjoy it, and are able to takeaway valuable information.

Additional Resources: https://www.doctorgretchenhawley.com/insider

Reach out to Me: hello@doctorgretchenhawley.com 

Website: www.MSingLink.com

Social: 

★ Facebook: https://www.facebook.com/groups/mswellness

★ Instagram: https://www.instagram.com/doctor.gretchen

★ YouTube: https://www.youtube.com/c/doctorgretchenhawley?sub_confirmation=1

→ Game Changers Course: https://www.doctorgretchenhawley.com/GameChangersCourse

→ Total Core Program: https://www.doctorgretchenhawley.com/TotalCoreProgram

→ The MSing Link: https://www.doctorgretchenhawley.com/TheMSingLink

Join me today as I sit down with Siobhan! Siobhan is a member of The MSing Link who actually does NOT have multiple sclerosis, but rather a rare condition that is often misdiagnosed as MS! Today, she shares with us how she came about her diagnosis, and how the program has helped her go from using AFO's to help with her foot drop to now no longer needing an AFO, or stimulation device to aid her! 

Connect with Chronic Con: https://www.thechroniconcommunity.com 

Additional Resources: https://www.doctorgretchenhawley.com/insider

Reach out to Me: hello@doctorgretchenhawley.com 

Website: www.MSingLink.com

Social: 

★ Facebook: https://www.facebook.com/groups/mswellness

★ Instagram: https://www.instagram.com/doctor.gretchen

★ YouTube: https://www.youtube.com/c/doctorgretchenhawley?sub_confirmation=1

→ Game Changers Course: https://www.doctorgretchenhawley.com/GameChangersCourse

→ Total Core Program: https://www.doctorgretchenhawley.com/TotalCoreProgram

→ The MSing Link: https://www.doctorgretchenhawley.com/TheMSingLink

Dr. Terry Wahls is conducting a study and she wants you guys to know about it so you can participate or, at the very least, stay up to date with what’s happening! The study is comparing the Modified Paleolithic Diet  ((elimination of gluten, dairy, and eggs)), the Ketogenic diet, and usual diet with information about the USDA Dietary Guidelines for Americans. She’s looking to determine whether these diets improve quality of life and reduce fatigue.

She talks to us about the study, what to expect, and how to participate! She also shares some of her best tips for starting a new diet and how long you should stay consistent for before trying something new!

Dr. Terry Wahls is an Institute for Functional Medicine Certified Practitioner and a clinical professor of medicine at the University of Iowa where she conducts clinical trials in the setting of Multiple Sclerosis.  In 2018 she was awarded the Institute for Functional Medicine’s Linus Pauling Award for her contributions in research, clinical care and patient advocacy. She is the author of The Wahls Protocol: A Radical New Way to Treat All Chronic Autoimmune Conditions Using Paleo Principles, and the cookbook, The Wahls Protocol Cooking for Life. Pick up a one-page handout for the Wahls™ Diet at https://terrywahls.com/diet/

Wahls Research 

https://terrywahls.com/research/

Wahls Research Lab  - to learn about current clinical research studies that Dr.  Wahls is conducting 

https://wahls.lab.uiowa.edu/

Social Media Links 

https://www.facebook.com/TerryWahls/

https://www.instagram.com/drterrywahls/

https://twitter.com/terrywahls

https://youtube.com/c/terrywahlsmd

Defying All Odds Movie  - a documentary about Dr. Wahls' healing journey and research 

http://defyingalloddsmovie.com/

Virtual Seminar 

https://terrywahls.com/seminar/

Autoimmune Intervention Mastery Program (online course for consumer) 

https://terrywahls.com/aim/

Radical Health Upgrade 

https://terrywahls.com/radicalhealthupgrade/

Wahls Research Papers

https://terrywahls.com/researchpapers/

Learn more about the study here

https://wahls.lab.uiowa.edu/join-study

Screen to see if you are eligible for Efficacy of Diet on Quality of Life in Multiple Sclerosis Study

https://redcap.icts.uiowa.edu/redcap/surveys/?s=JX73EYRJNPF9MHRR

A screening survey for eligibility to participate in this study is available here: https://redcap.icts.uiowa.edu/redcap/surveys/?s=JX73EYRJNPF9MHRR 

Additional Resources: https://www.doctorgretchenhawley.com/insider

Reach out to Me: hello@doctorgretchenhawley.com 

Website: www.MSingLink.com

Social: 

★ Facebook: https://www.facebook.com/groups/mswellness

★ Instagram: https://www.instagram.com/doctor.gretchen

★ YouTube: https://www.youtube.com/c/doctorgretchenhawley?sub_confirmation=1

→ Game Changers Course: https://www.doctorgretchenhawley.com/GameChangersCourse

→ Total Core Program: https://www.doctorgretchenhawley.com/TotalCoreProgram

→ The MSing Link: https://www.doctorgretchenhawley.com/TheMSingLink

 Two question I hear a lot from my social media followers are, "What are some locations that I can exercise in my home?" as well as, "What are some positions I can do exercises in on high fatigue days?" So, today I am going to answer these questions for you! Tune in as I review 7 different positions in which you can exercise, and several positions around your own home where you can get exercise in!

 Additional Resources: https://www.doctorgretchenhawley.com/insider

Reach out to Me: hello@doctorgretchenhawley.com 

Website: www.MSingLink.com

Social: 

★ Facebook: https://www.facebook.com/groups/mswellness

★ Instagram: https://www.instagram.com/doctor.gretchen

★ YouTube: https://www.youtube.com/c/doctorgretchenhawley?sub_confirmation=1

→ Game Changers Course: https://www.doctorgretchenhawley.com/GameChangersCourse

→ Total Core Program: https://www.doctorgretchenhawley.com/TotalCoreProgram

→ The MSing Link: https://www.doctorgretchenhawley.com/TheMSingLink

Dr. Duane Scotti, DPT, PhD, OCS is a running physical therapist, run coach, host of the Healthy Runner podcast, and founding owner of SPARK Physical Therapy. Dr. Duane has been a leader in the rehab and running community for over 18 years.  He is passionate about helping runners feel strong and confident so they can stay healthy and become a lifelong injury free runner! 

With that said… we all know that MS symptoms can often prevent or reduce running (and exercise in general). On today’s episode, we talk about specific exercises runners should do, steps to improving your running distance, and what shoewear might be best for you!

You’re going to learn a TON and there’s lots of resources in the show notes, too!

How To Start Running: A Guide to Running for Beginners: https://sparkyourtraining.com/running-for-beginners/ 

 SPARK Blueprint:  5 Tips To Run Stronger & Healthier

https://learn.sparkhealthyrunner.com/blueprint

 Connect with Dr. Duane:

• Instagram - @sparkhealthyrunner

• Healthy Runner Podcast

• Healthy Runner Facebook Community

• Spark Healthy Runner YouTube Channel

• duane@sparkyourtraining.com

• www.sparkhealthyrunner.com

Additional Resources: https://www.doctorgretchenhawley.com/insider

Reach out to Me: hello@doctorgretchenhawley.com 

Website: www.MSingLink.com

Social: 

★ Facebook: https://www.facebook.com/groups/mswellness

★ Instagram: https://www.instagram.com/doctor.gretchen

★ YouTube: https://www.youtube.com/c/doctorgretchenhawley?sub_confirmation=1

→ Game Changers Course: https://www.doctorgretchenhawley.com/GameChangersCourse

→ Total Core Program: https://www.doctorgretchenhawley.com/TotalCoreProgram

→ The MSing Link: https://www.doctorgretchenhawley.com/TheMSingLink

Natalie Allen is a mental health counselor at the masters level. Natalie feels her purpose is to help people feel good and accept who they are – the good and not so good. 

On today’s episode, we talk about cognitive behavioral therapy as an approach to help our mind, body, and soul feel more rejuvenated and give us more control back. We also talk about setting boundaries and different approaches to counseling and therapy.

Get in touch with Natalie:

Email: natalie.allen.mhc@gmail.com

Phone number: Text - (857) 362-8070

Additional Resources: https://www.doctorgretchenhawley.com/insider

Reach out to Me: hello@doctorgretchenhawley.com 

Website: www.MSingLink.com

Social: 

★ Facebook: https://www.facebook.com/groups/mswellness

★ Instagram: https://www.instagram.com/doctor.gretchen

★ YouTube: https://www.youtube.com/c/doctorgretchenhawley?sub_confirmation=1

→ Game Changers Course: https://www.doctorgretchenhawley.com/GameChangersCourse

→ Total Core Program: https://www.doctorgretchenhawley.com/TotalCoreProgram

→ The MSing Link: https://www.doctorgretchenhawley.com/TheMSingLink 

 Join me today as we welcome back Caitlin Hebb! Today, we chat about how music therapy can actually be an excellent tool to improve your goals with walking, strength, balance, and more!

 Caitlin Hebb is the Clinical Operations Manager for MedRhythms Inc. She graduated from Berklee College of Music with a degree in Music Therapy, and received her fellowship in Neurologic Music Therapy from The Academy for Neurologic Music Therapy. Caitlin is also the Internship Director for MedRhythms, Inc. at Spaulding Rehabilitation Hospital where she primarily works with patients on the traumatic brain injury, stroke, and spinal cord units. She is passionate about education and advocacy, and has spoken at several regional and national conferences. Caitlin also serves on the board of The New England Region of The American Music Therapy Association as the Interprofessional Collaborative Resources Representative.

Website: https://www.medrhythmstherapy.com 

Email:  caitlin@medrhythmstherapy.com 

Additional Resources: https://www.doctorgretchenhawley.com/insider

Reach out to Me: hello@doctorgretchenhawley.com 

Website: www.MSingLink.com

Social: 

★ Facebook: https://www.facebook.com/groups/mswellness

★ Instagram: https://www.instagram.com/doctor.gretchen

★ YouTube: https://www.youtube.com/c/doctorgretchenhawley?sub_confirmation=1

→ Game Changers Course: https://www.doctorgretchenhawley.com/GameChangersCourse

→ Total Core Program: https://www.doctorgretchenhawley.com/TotalCoreProgram

→ The MSing Link: https://www.doctorgretchenhawley.com/TheMSingLink