GOALS: An ALS United Podcast – Details, episodes & analysis

Jayne Etskovitz joins the ALS United Mid-Atlantic GOALS Podcast to discuss her work supporting ALS patients and caregivers. Jayne shares examples of how resource groups benefit all aspects of ALS care and she talks about her favorite ALS United events, helping people solve problems, and building a stronger community for ALS families.

Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS.

ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware. To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

#ALS #ALSUnited #ALSAwareness #SocialWork #Caregiving

Doug Yocum joins the ALS United Mid-Atlantic GOALS Podcast to discuss living with ALS, his initial ALS symptoms, and a review of his experience with the Philadelphia Phillies for ALS Awareness Night and Lou Gehrig Day. In this episode, Doug talks about home care, research, care from the team at the Jefferson Weinberg ALS Center, expanded access for clinical trials, and support for ACT for ALS.

Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

Diane Reibel, PhD, joins the ALS United Mid-Atlantic GOALS Podcast to discuss her work on ALS and Mindfulness. Topics include the sciences behind mindfulness, reducing stress, and programs to benefit people with ALS and their caregivers. To learn more about ALS and our programs, visit www.alsmidatlantic.org

Diane Reibel, PhD, is the director of the Myrna Brind Center for Mindfulness. Learn more about her work at https://www.jeffersonhealth.org/conditions-and-treatments/mindfulness-based-stress-reduction/mindfulness

#ALS #ALSUnited #Mindfulness #stress #caregiving #Podcast

Dana Little joins the ALS United Mid-Atlantic GOALS Podcast to discuss her experience as a caregiver for her husband during his battle with ALS, how friends and family provide comfort and support, the importance of advocacy, and working to increase funding for research. Learn more about ALS and our services by joining our ALS mission at www.alsmidatlantic.org

#ALS #caregiving #podcast #alsunited #advocacy #alsadvocacy

Carol Hamilton joins the ALS United Mid-Atlantic GOALS Podcast to discuss the ALS research efforts from The ALS Therapy Development Institute (ALS TDI). In this episode, Carol talks about increased scientific collaboration, the challenges of complex trials, and empowering people with ALS through participating in ALS research.

Learn more about ALS and the work of ALS United Mid-Atlantic at www.alsmidatlantic.org

Learn more from ALS TDI at www.als.net

#ALS #Research #Science

ALS United Mid-Atlantic social workers Melissa Coll and Anne Cooney join the GOALS Podcast to discuss their work assisting ALS patients and families, the value of a multidisciplinary treatment center, navigating insurance, and advocating for the ALS cause.

Join Melissa and Anne at the 2025 Help and Hope Symposium by registering at https://www.helpandhopealsmidatlantic.org/

Learn more about ALS, our services and research, and how to support the ALS mission at www.alsmidatlantic.org

#ALS #alsunited #socialwork #socialworker #socialworkers #advocacy

Jackie Cox discusses her mother's battle with ALS and the event at Haverford College to raise money for the ALS cause that takes place on April 4th, 2025. To learn more about ALS, upcoming events, and how to support ALS United Mid-Atlantic, visit www.alsmidatlantic.org

#ALS #ALSUnited #Haverford #podcast #Pennsylvania

https://secure.alsmidatlantic.org/site/TR/DIY/General?team_id=7001&pg=team&fr_id=1271

Alisa Brownlee, ATP, CLIPP, CAPS, WSP, CEAC/Mastery, joins the ALS United Mid-Atlantic GOALS Podcast to discuss accessibility options for people with ALS, home modifications, and the personal connection between care staff and those living with ALS.

On Thursday, April 10th, Alisa will be one of the presenters at the ALS United Mid-Atlantic Help and Hope Symposium in King of Prussia, PA.

Register now at: https://www.helpandhopealsmidatlantic.org/ Join our ALS mission at www.alsmidatlantic.org

#ALS #alsunited #assistivetechnology #accessibility #podcast

Tim Abeska, Cristy Hardin, and Deb Winters join the ALS United Mid-Atlantic GOALS Podcast to discuss the Tim Lowery Series and building community for those living with ALS. We talk about empathy dinners, building connections, and hope through advocacy. Learn more about Tim Lowery at: https://www.iamals.org/stories/tim-lowrey/

Join the ALS United Mid-Atlantic mission at www.alsmidatlantic.org

#ALS #ALSUnited #IAMALS #ALSAdvocacy #Advocacy #Empathy

Sarah Brendle has been living with ALS for over 15 years. In this GOALS Podcast, Sarah discusses the support she has received through ALS United Mid-Atlantic, the power of advocacy, gathering with people for the ALS United Walk, and how to best care for the ALS community.

Listen, share, and learn more about how to support the ALS mission at www.alsmidatlantic.org

#ALS #ALSUnited #ALSAwareness #Advocacy