Jayne Etskovitz joins the ALS United Mid-Atlantic GOALS Podcast to discuss her work supporting ALS patients and caregivers. Jayne shares examples of how resource groups benefit all aspects of ALS care and she talks about her favorite ALS United events, helping people solve problems, and building a stronger community for ALS families.

Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS.

ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware. To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

#ALS #ALSUnited #ALSAwareness #SocialWork #Caregiving

Doug Yocum joins the ALS United Mid-Atlantic GOALS Podcast to discuss living with ALS, his initial ALS symptoms, and a review of his experience with the Philadelphia Phillies for ALS Awareness Night and Lou Gehrig Day. In this episode, Doug talks about home care, research, care from the team at the Jefferson Weinberg ALS Center, expanded access for clinical trials, and support for ACT for ALS.

Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

Diane Reibel, PhD, joins the ALS United Mid-Atlantic GOALS Podcast to discuss her work on ALS and Mindfulness. Topics include the sciences behind mindfulness, reducing stress, and programs to benefit people with ALS and their caregivers. To learn more about ALS and our programs, visit www.alsmidatlantic.org

Diane Reibel, PhD, is the director of the Myrna Brind Center for Mindfulness. Learn more about her work at https://www.jeffersonhealth.org/conditions-and-treatments/mindfulness-based-stress-reduction/mindfulness

#ALS #ALSUnited #Mindfulness #stress #caregiving #Podcast

Dana Little joins the ALS United Mid-Atlantic GOALS Podcast to discuss her experience as a caregiver for her husband during his battle with ALS, how friends and family provide comfort and support, the importance of advocacy, and working to increase funding for research. Learn more about ALS and our services by joining our ALS mission at www.alsmidatlantic.org

#ALS #caregiving #podcast #alsunited #advocacy #alsadvocacy

Carol Hamilton joins the ALS United Mid-Atlantic GOALS Podcast to discuss the ALS research efforts from The ALS Therapy Development Institute (ALS TDI). In this episode, Carol talks about increased scientific collaboration, the challenges of complex trials, and empowering people with ALS through participating in ALS research.

Learn more about ALS and the work of ALS United Mid-Atlantic at www.alsmidatlantic.org

Learn more from ALS TDI at www.als.net

#ALS #Research #Science

ALS United Mid-Atlantic social workers Melissa Coll and Anne Cooney join the GOALS Podcast to discuss their work assisting ALS patients and families, the value of a multidisciplinary treatment center, navigating insurance, and advocating for the ALS cause.

Join Melissa and Anne at the 2025 Help and Hope Symposium by registering at https://www.helpandhopealsmidatlantic.org/

Learn more about ALS, our services and research, and how to support the ALS mission at www.alsmidatlantic.org

#ALS #alsunited #socialwork #socialworker #socialworkers #advocacy

Jackie Cox discusses her mother's battle with ALS and the event at Haverford College to raise money for the ALS cause that takes place on April 4th, 2025. To learn more about ALS, upcoming events, and how to support ALS United Mid-Atlantic, visit www.alsmidatlantic.org

#ALS #ALSUnited #Haverford #podcast #Pennsylvania

https://secure.alsmidatlantic.org/site/TR/DIY/General?team_id=7001&pg=team&fr_id=1271

Alisa Brownlee, ATP, CLIPP, CAPS, WSP, CEAC/Mastery, joins the ALS United Mid-Atlantic GOALS Podcast to discuss accessibility options for people with ALS, home modifications, and the personal connection between care staff and those living with ALS.

On Thursday, April 10th, Alisa will be one of the presenters at the ALS United Mid-Atlantic Help and Hope Symposium in King of Prussia, PA.

Register now at: https://www.helpandhopealsmidatlantic.org/ Join our ALS mission at www.alsmidatlantic.org

#ALS #alsunited #assistivetechnology #accessibility #podcast

Tim Abeska, Cristy Hardin, and Deb Winters join the ALS United Mid-Atlantic GOALS Podcast to discuss the Tim Lowery Series and building community for those living with ALS. We talk about empathy dinners, building connections, and hope through advocacy. Learn more about Tim Lowery at: https://www.iamals.org/stories/tim-lowrey/

Join the ALS United Mid-Atlantic mission at www.alsmidatlantic.org

#ALS #ALSUnited #IAMALS #ALSAdvocacy #Advocacy #Empathy

Sarah Brendle has been living with ALS for over 15 years. In this GOALS Podcast, Sarah discusses the support she has received through ALS United Mid-Atlantic, the power of advocacy, gathering with people for the ALS United Walk, and how to best care for the ALS community.

Listen, share, and learn more about how to support the ALS mission at www.alsmidatlantic.org

#ALS #ALSUnited #ALSAwareness #Advocacy

ALS United Mid-Atlantic nurse Gail Houseman, RN, MSN-APRN, joins the GOALS Podcast to discuss the valuable Visiting Volunteer program. Gail runs this program to connect people with ALS with a caring volunteer who will come to their home to provide companionship and help around the house. The program is unique to ALS United Mid-Atlantic and is an example of treating each person as an individual and not just like a number on a spreadsheet.

Learn more about ALS, our programs and research, and how to support the ALS United Mid-Atlantic mission at www.alsmidatlantic.org

#ALS #ALSUnited #Volunteer #Healthcare

ALS United Mid-Atlantic board member Crystal Goodwyn joins the GOALS Podcast to discuss her personal connection to ALS. Topics include learning about ALS through Crystal's brother Kevin Glenn, the support from the Philadelphia Phillies, and how the ALS United Mid-Atlantic board is focused on research and patient care.

Learn more about ALS, our programs and services, and how to get involved, at www.alsmidatlantic.org

In this latest ALS United Mid-Atlantic GOALS Podcast, Sheri Strahl, MPH, MBA and David Buseck share their experience and insight into ALS research through their work at ALS Network.

Topics include filling the gaps of private industry and empowering ALS patients through research. Lean more about ALS Network  ⁨@youralsnetwork⁩  at https://alsnetwork.org

Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

Drs. James Grogan and Andrew Geronimo of  @PennStateHealth  join the ALS United Mid-Atlantic GOALS Podcast to discuss advances in Brain Computer Interface and other communication tools and how they benefit people with ALS. In this podcast, they discuss the nature of communication, how BCI works, measuring BCI success, and lessons from technology such as video games.

Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

Paul Melmeyer from  ⁨@MDA⁩  joins the ALS United Mid-Atlantic GOALS Podcast to discuss collaborating on ALS Advocacy, recent advocacy successes like the ALS Disability Insurance Access Act, reauthorization of ACT for ALS, and protecting Medicaid.

Learn more about MDA's work on Medicaid at: https://www.mda.org/press-releases/proposed-medicaid-and-health-coverage-cuts-raise-substantial-concern-for-the-neuromuscular-community

The mission of ALS United Mid-Atlantic is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS.

ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware. To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org 

Laura Ness with Hearts for Home Care is the featured guest on the latest ALS United Mid-Atlantic GOALS Podcast. Topics include advocating for home care access, how people with ALS benefit from home care, and how home care is a smart choice for state budgets.

Learn more about Hearts for Home Care at www.heartsforhomecare.com

Learn more about ALS, our programs and services, and how to support the mission of ALS United Mid-Atlantic at www.alsmidatlantic.org

Daniela Zarnescu, PhD, is the Associate Dean for Graduate Education and Postdoctoral Training at Penn State College of Medicine. She joins the ALS United Mid-Atlantic GOALS Podcast to discuss her work in ALS research, how people can enroll in ongoing studies, the advances in science during her career, and what gives her hope for the ALS cause.

Learn more about Dr. Zarnescu and her team at: https://sites.psu.edu/zarnesculab/meet-the-team/

Learn more about ALS, our programs and services, and how to take action to support ALS United Mid-Atlantic at www.alsmidatlantic.org

ALS United Mid-Atlantic nurse Maureen Reid, RN, BSN, joins the GOALS Podcast to discuss her personal history with ALS, connecting with ALS patients and families, ALS advocacy, and the strong reputation and research work at Penn State Health Hershey Medical Center.

Learn more about ALS, our programs and services, and how to support our mission at www.alsmidatlantic.org

Janie Dalrymple joins The ALS United Mid-Atlantic GOALS Podcast for an important topic on ALS and Mechanical Ventilation. In this episode, Janie highlights the questions to ask before making a decision on mechanical ventilation, costs considerations, additional care needs, and long-term planning.

To learn more about ALS United Mid-Atlantic and how to support our mission, visit www.alsmidatlantic.org

To learn more about Janie and the work of ALS Arizona, visit www.alsaz.org

#ALS #mechanicalventilation #alsunited #longtermcare #trending #healthcare

Josh Hunter has a form of ALS called Juvenile ALS. Over the past year, Josh has been active in ALS awareness, advocacy, and research. In this ALS United Mid-Atlantic GOALS Podcast, Josh talks about a special week in review and shares his experience with his daughter Phoenix at the AEW Dynasty show and the Help and Hope Symposium. Other topics include mental health, caregiving, and an upcoming event on June 14th with Ric Flair at Harrah's Philadelphia Casino in Chester, PA. Join our ALS mission a www.alsmidatlantic.org

#ALS #alsunited #alsadvocacy #ALSresearch #AEW #pennsylvania

Chris Albright joins the ALS United Mid-Atlantic GOALS Podcast to discuss the ALS United Walk program and upcoming ALS United Walk events. The ALS United Walk is the signature event for ALS United Mid-Atlantic. Register now at www.alsunitedwalk.org

Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

Ashley Lee joins the ALS United Mid-Atlantic GOALS Podcast to discuss her family's ALS story and what has inspired her to be an ALS advocate. In this episode, Ashley talks about advances in advocacy and research and the connection between ALS and military veterans.

Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

ALS United Mid-Atlantic speaks with Emma Allen and Myah Stone about the ALL ALS Consortium and the benefits of ALS research and observational studies. To learn more about their work, visit: https://www.all-als.org/

Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS.

ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware. To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

ALS United Mid-Atlantic collaborate with a growing list of partners to address the needs of the ALS community and to support wider issues that include research funding and accessibility. In this GOALS Podcast, Lauren Holder of Help 4 HD speaks about her experience living with Huntington's Disease and how we can accomplish more by partnering for our shared goals. View her podcast at  @help4hdtv 

Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

#ALS #ALSUnited #Trending #HuntingtonsDisease #ALSresearch 

Raziel Green is living with a genetic form of ALS due to the SOD1 mutation. In this ALS United Mid-Atlantic GOALS Podcast, Raziel talks about her diagnosis, participation in a clinical trial, and her life since starting use of Toferson, otherwise known as Qalsody.

Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

#ALS #ALSResearch #Research #Trending #LivingwithALS 

Placing Stones joins the ALS United Mid-Atlantic GOALS Podcast to discuss a special offer to preserve the legacies of loved ones, including those with ALS. 

To the ALS United Mid-Atlantic Community, We’re honored to support your journey in preserving meaningful memories. As a special offer, we’d like to provide your first year free on Placing Stones—our digital legacy platform. https://placingstonesstudio.com/ 

Simply enter the code STRENGTH25 in the coupon field at checkout. To help you get started, we’re also offering complimentary individual and group training sessions. Just click the Contact Us button on our website to schedule a time that works best for you.

Thank you again for the opportunity to be part of your story. We look forward to building something meaningful together.

Warm regards, The Placing Stones Team

The mission of ALS United Mid-Atlantic is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

#ALS #ALSUnited #Legacy #Family

Zachary Simmons, MD and Kathleen Twomey, MD join the ALS United Mid-Atlantic GOALS Podcast to share their work at Penn State Health Hershey Medical Center and their new innovations around respiratory care and ALS. Dr. Simmons has led the ALS Treatment Center at Penn State Health Hershey Medical Center for 30 years and Dr. Twomey is adding her expertise as a pulmonologist for ALS patients. O

ur mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

Mark VandeBraak, PhD, FT, MT-BC joins the ALS United Mid-Atlantic GOALS Podcast to discuss issues about processing grief for those impacted by ALS. Dr. Mark talks about the various forms of grief, expressing compassion and empathy, opening up about our concerns, and what help is available for everyone.

Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

Courtney Fitch, MS, CGC, is a Certified/Licensed Genetic Counselor at the ALS Treatment Center at Lehigh Valley Health Network. In this ALS United Mid-Atlantic GOALS Podcast, Courtney explains the role of a Genetic Counselor, how she works with the clinic team, advances in genetic understanding and science, and offering support to ALS patients and families.

The mission of ALS United Mid-Atlantic is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

Chloe LaBella, SLP-CCC and Arianna Jarosinski, M.S. SLP-CCC join the ALS United Mid-Atlantic GOALS Podcast to discuss their work Hackensack Meridian Health Jersey Shore University Medical Center on Augmentative and Alternative Communication for people with ALS.

In this podcast discussion, Chloe and Arianna share their expertise on AAC, how they introduce the concept of communication devices to a person diagnosed with ALS, advances in technology, and their collaboration with Dr. Mary Sedarous and with the resources at ALS United Mid-Atlantic.

Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org Learn more about ALS care at Hackensack Meridian Health at: https://www.hackensackmeridianhealth.org/en/services/neurosciences/amyotrophic-lateral-sclerosis-als

Mary Grams is the new Executive Director at ALS United North Carolina. In this GOALS Podcast, Mary discusses her family's ALS story, progress in ALS care, the extensive research programs in North Carolina, and how the ALS United network collaborates to advance the ALS cause. To learn more about her work, visit www.alsnc.org

Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

Stephanie Dobak, MS, RD, LDN, CNSC, is a clinical dietitian at the Jefferson Weinberg ALS Center in Philadelphia, Pennsylvania. In this podcast episode, Stephanie talks with Alisa Brownlee about important questions for people with ALS and their caregivers regarding nutrition and diet.

Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

Gary Goldstein joins our ALS United Mid-Atlantic GOALS Podcast to discuss his role in ALS advocacy. In this episode, Gary talks about his wife Paula's battle with ALS, successes through advocacy, his Named Fund for Paula, and being a Visiting Volunteer.

Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

ALS United Mid-Atlantic nurse Annette Miller, RN, joins the GOALS Podcast to discuss her work and experience caring for people with ALS. In this episode, Annette talks about how her role as a nurse has evolved, how she guides people through the challenges of ALS, the services offered through ALS United Mid-Atlantic, and the growing reputation of the ALS Treatment Center at Penn State Health Hershey Medical Center.

Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

Vincent Cella is a 22-year retired Gulf War veteran from Sewell, N.J., with 18 years spent in the Navy and four with the Army. After years of health issues, Cella was diagnosed with ALS in August of 2024. He joins the ALS United Mid-Atlantic GOALS Podcast to share his story to bring more attention to the issue of veterans and ALS.

Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

Director of Development Donna Cleary talks about her work at ALS United Mid-Atlantic, how to leave a lasting legacy, and her personal connections to the ALS cause.

Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

Michele Yelland was diagnosed with ALS in 2024. When she saw that many people did not understand her symptoms and experience with ALS, she decided to write and publish her own book about it. In this podcast, Michele talks about what inspired her to write her book, her travels with ALS, and what gives her hope.

Order her book now at: https://www.amazon.com/ART-LIVING-JOY-FIGHTING-ALS/dp/B0FJFJRZDN/

Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

Jessie Meier, MSW, LSW, joins the ALS United Mid-Atlantic GOALS Podcast to discuss her role as a social worker with ALS United Mid-Atlantic, her connection with ALS patients and families, what it means to be a caregiver and to live with purpose, and the upcoming Lehigh Valley ALS United Walk. To join the Walk, register or donate at www.alsunitedwalk.org

Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

Tim Kurkjian and his son Jeff Kurkjian are hosts of the baseball podcast "Is This a Great Game or What?" They also share a strong support for the ALS cause after their family's loss of Tim's brother Matt to ALS.

Tim is the proud recipient of the 2022 BBWAA Career Excellence Award for his work as a baseball writer and journalist. In this episode of the ALS United Mid-Atlantic GOALS Podcast, Tim and Jeff talk about their family's history with ALS, their love of baseball, the support from the Philadelphia Phillies, and their experience at ALS United events.

Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

Larry Gifford is living with Parkinson's Disease. He formed PD Avengers to raise awareness of Parkinson's Disease and advocate for more research to find new treatments. In this ALS United Mid-Atlantic GOALS Podcast, Larry talks about his efforts and collaboration and education with groups like ALS United. Learn more about his work at: https://www.pdavengers.com/

The mission of ALS United Mid-Atlantic is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS.

ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware. To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

In this podcast episode, Alisa Brownlee and Amanda Cuth discuss the challenges and strategies related to speech therapy for individuals with ALS. They explore the impact of ALS on communication, the importance of voice preservation techniques such as voice banking and cloning, and the role of technology in enhancing communication. The conversation also covers compensatory strategies for speech therapy, emergency communication needs, and the emotional aspects of dealing with communication changes. Amanda emphasizes the need for professional guidance in navigating these challenges and highlights the advancements in communication devices and techniques.

Alisa Brownlee and Amanda Cuth each have many years of experience addressing communication needs for people with ALS.

Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

Gale Ferranto and Buona Foods are uniting to match your donations for #GivingTuesday to ALS United Mid-Atlantic. In this GOALS Podcast, Gale discusses her mother's battle with ALS and her support for ALS care and research.

Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

Charles Poeppelman joins the ALS United Mid-Atlantic GOALS Podcast to discuss how Synchron is developing Brain Computer Interface technology to improve the lives of people with ALS. In this podcast, we discuss how AI can enhance the power of BCI, how BCI can improve safety, and how this technology can address accessibility and communication.

Learn more about the January 21st educational webinar at learnaboutbci.com Additional information at www.synchronbci.com

Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

Alisa Brownlee hosts this special ALS United Mid-Atlantic GOALS Podcast with guest Jamie Pace from  ⁨@amRAMP⁩  about the benefits of stair glides for people with ALS. In this episode, Alisa and Jamie talk about the process of installing a stair glide and how it can be used to improve access in the home.

Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

Bill O'Sullivan is a veteran living with ALS. He joins the ALS United Mid-Atlantic GOALS Podcast to talk about his family's history with ALS, his family's proud history of military service, his participation in ALS research, and his years of support for the ALS United Walk. Listen to his story and join our efforts today.

Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS.

ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware. To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

https://youtu.be/e6ZGF4NMgf8

Dr. Irene Rombel is the CEO, President, & Co-Founder of BioCurie. In this ALS United Mid-Atlantic GOALS Podcast, she talks about how AI can be a tool to advance research into diseases like ALS. Dr. Rombel also talks about how AI can reduce costs of research so more companies can invest in rare diseases, what therapies are working now, and what gives her hope in the future of medicine. Learn more about her work at www.biocurie.ai

Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS.

ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware. To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

Jamie from AMRAMP joins Alisa Brownlee on the ALS United Mid-Atlantic GOALS Podcast to discuss our ramping program and how it benefits people with ALS.

Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS.

ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware. To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

Jeff Oppenheimer understands the needs and challenges of ALS. His wife Shelbie was diagnosed with ALS in 1996 and together Jeff and Shelbie raised awareness and successfully advocated for millions of dollars for ALS research.

Since then, Jeff has served on the board of ALS United Mid-Atlantic and he has worked to improve the lives of people with ALS and their caregivers. Recently, Jeff helped launch ALS.Community. This new resource provides information and social connection for people with ALS from across the country and the world. Jeff joins the ALS United Mid-Atlantic GOALS Podcast to explain the benefits of ALS.Community and to encourage others to join and be part of this growing platform.

Learn more at https://als.community/

Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware. To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

Nadia Sethi joins the ALS United Mid-Atlantic GOALS Podcast to discuss her experience caring for a loved one with ALS and how everyone can be empowered through ALS awareness, education, and research. In this episode, Nadia discusses some of the challenges of navigating hope and caution, as well as how everyone can participate in scientific advancement. Nadia has been involved with ALS TDI and I AM ALS and she is now working with North Star ALS at https://www.northstarals.org/

Our ALS mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

Piera Pasinelli, PhD, Director, Weinberg ALS Center, and Gemma Krautzel, B.S., Clinical Research Coordinator, join the ALS United Mid-Atlantic GOALS Podcast to discuss the BioBank at the Jefferson Weinberg ALS Center in Philadelphia. In this podcast, they also talk about the process of post-mortem tissue donation, developing trust with ALS patients and families, multidisciplinary care, and collaboration with the ALS United Mid-Atlantic care team.

To learn more about their research, visit: https://www.jeffersonhealth.org/clinical-specialties/amyotrophic-lateral-sclerosis-care.html

Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org