Unstoppable Strides: Navigating Runner's Dystonia – Details, episodes & analysis
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Unstoppable Strides: Navigating Runner's Dystonia
Julie Bergfeld
Frequency: 1 episode/31d. Total Eps: 16
Join Julie and JoJo for information, exploration, stories of hope and real talk related to running with dystonia.
Runner’s dystonia is a type of repetitive exercise dystonia that is brought on by running. Some are affected by walking and cycling as well.
Dystonias are a class of movement disorders marked by involuntary muscle contractions in one or more parts of the body, depending on the type of dystonia.
Runner’s dystonia is considered task-specific, which means that it only occurs when doing a repetitive motion—in this case, the repetitive nature of the running gait cycle.
Give us a listen if you'd like to learn more.
One small favor... if you like these podcasts and want to support the show, could you buy us a cup of coffee through a donation to support our hosting and producing fees?
You can email us here if you're interested in collaborating or contributing - runnersdystonia@gmail.com
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Apple Podcasts
🇨🇦 Canada - medicine
27/10/2025#88
Spotify
No recent rankings available
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See all- https://levermovement.com/
121 shares
- https://juliebergfeld.com
16 shares
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See allScore global : 73%
Publication history
Monthly episode publishing history over the past years.
Kara Goucher shares her Dystonia Story
Season 2 · Episode 4
jeudi 23 octobre 2025 • Duration 47:09
Julie, JoJo and special guest host Karrie Hamstra-Wright chat with wife, mother, NBC Track and Field Broadcaster, author, World T&F Silver medalist and 2-Time Olympian Kara Goucher.
Kara shares her dystonia history, diagnosis, celebrations, tendencies to compartmentalize and other struggles in this real, heart-felt cast.
You can find more about Kara here and order her book, The Longest Race, here. If you really want to geek out, listen to her podcast with Des Linden, Nobody Asked Us, on your favorite platform. Here is a link to the cast on YouTube.
Some products we mentioned:
The information shared in this podcast is not intended to diagnose. recommend nor treat medical conditions. We are not licensed medical professionals and do not take the place of your team of medical professionals.
You can find us here: Julie Bergfeld - julie@juliebergfeld.com and juliebergfeld.com (@juliebergfeldcoaching) and JoJo Fraser - joellef510@gmail.com
Megan Cohea Physical Therapist Tells Her Dystonia Story
Season 2 · Episode 3
samedi 27 septembre 2025 • Duration 30:51
Julie sits down with Megan Cohea, a physical therapist living on the East Coast. Megan has Runner's Dystonia and shares her journey, symptoms and recommendations in this conversation. Apologies for the audio issues at the beginning of the recording.
Here is a link to the TENS unit Megan uses.
The information shared in this podcast is not intended to diagnose. recommend nor treat medical conditions. We are not licensed medical professionals and do not take the place of your team of medical professionals.
You can find us here: Julie Bergfeld - julie@juliebergfeld.com and juliebergfeld.com (@juliebergfeldcoaching) and JoJo Fraser - joellef510@gmail.com
Episode 6 - PRI Chat with Maria Winters
Season 1 · Episode 6
mercredi 18 décembre 2024 • Duration 39:22
Ih this episode, Julie and JoJo chat with fellow Dystonic runner Maria Winters. Maria has successfully used the principles from the Postural Restoration Institute (PRI) to enhance her healing progress. She shares how symptoms first exhibited, what she had tried and how she is doing now after several years' worth of this type of therapy. Just to note, that we are not promoting PRI as a "cure," but rather one other tool that MIGHT be useful for some people. If there were one way, we'd all be doing that. Different things work for different people.
PRI website
Neal Hallinan (PRItrainer) mentioned in the cast
The information shared in this podcast is not intended to diagnose. recommend nor treat medical conditions. We are not licensed medical professionals and do not take the place of your team of medical professionals.
You can find us here: Julie Bergfeld - julie@juliebergfeld.com and juliebergfeld.com (@juliebergfeldcoaching) and JoJo Fraser - joellef510@gmail.com
Episode 5 - Dealing with Comments and Questions
Season 1 · Episode 5
mercredi 27 novembre 2024 • Duration 34:57
Julie and JoJo discuss how they have managed comments, questions and reactions from other people. If you have comments or questions, we would love to hear.
The information shared in this podcast is not intended to diagnose. recommend nor treat medical conditions. We are not licensed medical professionals and do not take the place of your team of medical professionals.
You can find us here: Julie Bergfeld - julie@juliebergfeld.com and juliebergfeld.com (@juliebergfeldcoaching) and JoJo Fraser - joellef510@gmail.com
The Farias - Dystonia Recovery Program
Season 1 · Episode 4
jeudi 24 octobre 2024 • Duration 31:33
In this episode, we do a deep dive into the Farias Dystonia Recovery Program. Benefits, Drawbacks, Cost, etc.
The Dystonia Recovery Program (DRP) is an online platform tailored for individuals with various forms of Dystonia, including Cervical Dystonia, Hand Dystonia, Leg Dystonia, Blepharospasm, Oromandibular Dystonia, Facial Dystonia, Spasmodic Dysphonia, and Musicians’ Focal Dystonia. Developed by Dr. Joaquin Farias, this program integrates a multifaceted approach to recovery.
Note to listeners - we do not endorse, nor are affiliated with this program. We are merely aiming to educate, share and give hope to those with this affliction. Recovery is possible.
The information shared in this podcast is not intended to diagnose. recommend nor treat medical conditions. We are not licensed medical professionals and do not take the place of your team of medical professionals.
You can find us here: Julie Bergfeld - julie@juliebergfeld.com and juliebergfeld.com (@juliebergfeldcoaching) and JoJo Fraser - joellef510@gmail.com
Focal Dystonia in Cyclists
Season 1 · Episode 3
mercredi 18 septembre 2024 • Duration 39:58
In this episode we talk with cyclist Chris Melia about her presentation of Focal Dystonia. Chris is a former runner and now a cyclist who recognized the signs of dystonia in 2021. She relates to us how it presented and how she detected it. Since that time, she has made much progress and this episode details what she has done to move forward. Much of what Chris shares is less about the physical and more about the mental and emotional. As always thanks for listening.
The information shared in this podcast is not intended to diagnose. recommend nor treat medical conditions. We are not licensed medical professionals and do not take the place of your team of medical professionals.
You can find us here: Julie Bergfeld - julie@juliebergfeld.com and juliebergfeld.com (@juliebergfeldcoaching) and JoJo Fraser - joellef510@gmail.com
Episode 2: What we've tried, what is working, what didn't
Season 1 · Episode 2
mercredi 7 août 2024 • Duration 48:06
In this episode, JoJo and Julie review all of the treatments tired for dystonia, explaining what seems to be working and what didn't work. It's a long list and NOT comprehensive by any means. Keep in mind that this is based on our own needs, tolerances and preferences - and may not work for you. In addition, some things that did not work for us may be working for you. We are all unique in our journeys through this. By all means stay hopeful that change is possible with persistence and a curious outlook.
The information shared in this podcast is not intended to diagnose. recommend nor treat medical conditions. We are not licensed medical professionals and do not take the place of your team of medical professionals.
You can find us here: Julie Bergfeld - julie@juliebergfeld.com and juliebergfeld.com (@juliebergfeldcoaching) and JoJo Fraser - joellef510@gmail.com
Episode 1 - Intentions, Introductions and Why We are Here
Season 1 · Episode 1
mardi 9 juillet 2024 • Duration 44:56
In this episode, JoJo and Julie describe our intentions for this show and give background information on what is know as Runner's Dystonia, how it presents and why it is so hard to diagnose, much less understand. We briefly share our own personal stories and journeys from initial days of knowing something was "wrong" and how we are leveraging our newly discovered resilience.
Our intention is to spread the word, educate and share what we understand about Runner's Dystonia.
The information shared in this podcast is not intended to diagnose. recommend nor treat medical conditions. We are not licensed medical professionals and do not take the place of your team of medical professionals.
You can find us here: Julie Bergfeld - julie@juliebergfeld.com and juliebergfeld.com (@juliebergfeldcoaching) and JoJo Fraser - joellef510@gmail.com
Lessons in Hope, Healing and Health with Karrie Hamstra-Wright
Season 2 · Episode 2
mercredi 13 août 2025 • Duration 42:48
JoJo and Julie sit down with Karrie Hamstra-Wright, Clinical Professor and Co-Director of the Applied Sports Psychology and Injury Research and Education (ASPIRE) Lab in the Department of Kinesiology and Nutrition at the University of Illinois Chicago. Like many of us interested in these podcasts on the topic of dystonia, Karrie also has this condition. For those interested in the lab's work, you can participate in the community service program - Resilient Athlete Program (RAP) - which provides sports psychology sessions with members of the lab.
The information shared in this podcast is not intended to diagnose. recommend nor treat medical conditions. We are not licensed medical professionals and do not take the place of your team of medical professionals.
You can find us here: Julie Bergfeld - julie@juliebergfeld.com and juliebergfeld.com (@juliebergfeldcoaching) and JoJo Fraser - joellef510@gmail.com
Randy Morton - A Vision of Hope
Season 2 · Episode 1
mardi 29 juillet 2025 • Duration 50:31
In this episode, JoJo and Julie talk with Runner, turned cyclist, Randy Morton about his dystonia journey through medical in-attention, gaslighting and athletic career. Randy is resilience personified. Give it a listen and we welcome your comments and feedback. Please continue to share with colleagues, friends AND your medical team!
The information shared in this podcast is not intended to diagnose. recommend nor treat medical conditions. We are not licensed medical professionals and do not take the place of your team of medical professionals.
You can find us here: Julie Bergfeld - julie@juliebergfeld.com and juliebergfeld.com (@juliebergfeldcoaching) and JoJo Fraser - joellef510@gmail.com
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