Bendy Bodies with Dr. Linda Bluestein – Details, episodes & analysis

Each week, join Dr. Linda Bluestein (AKA The Hypermobility MD) on her quest to demystify the wide world of symptomatic joint hypermobility. Get ready to better understand your own bendy body in our newest season – available now! Learn more about your ad choices. Visit megaphone.fm/adchoices

In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, chats with Katie and Andrew Dettelbach, founders of Whealth, a program dedicated to helping people with hypermobility and chronic pain. Both Katie and Andrew have hypermobile Ehlers-Danlos Syndrome (hEDS) and have turned their personal struggles into a platform that empowers others to manage their pain and regain strength. Katie, a critical care nurse, and Andrew, a kinesiologist, discuss their journeys, challenges with hypermobility, and the innovative methods they’ve developed to help thousands worldwide overcome chronic pain. Learn how movement, strength, and understanding your body can transform your life. Takeaways: Movement and Hypermobility: Finding the right type of movement is crucial for managing hypermobility and chronic pain, though it may take trial and error. Strength Training and Pain Relief: Tailored strength training can significantly reduce pain and improve function in hypermobile bodies. Listening to the Body: It’s essential to distinguish between good and bad pain, adjusting your activities accordingly. Holistic Approach: Programs like Whealth emphasize not just movement but also nutrition, stress management, and environment for better overall health. Self-Compassion: Managing chronic conditions requires patience and self-compassion, recognizing that healing and strength-building is a journey. Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.  Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.   Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority!  Learn about Whealth Founders Katie & Andrew Dettelbach: X / Twitter: @spreadwhealth Instagram: @whealth Facebook: @spreadwhealth Youtube: @whealth Tiktok: @whealth_ Andrew IG: @the.shirtlessdude Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices

Dr. Linda Bluestein celebrates 100 episodes of Bendy Bodies discussing the most rewarding part of hosting the podcast and the challenges of podcasting. She emphasizes the importance of balancing the complexity of EDS and the need for healthcare professionals to understand and empathize with the struggles of patients with hypermobility conditions. Dr. Bluestein discusses the symptom burden experienced by individuals with EDS and the challenges they face in getting their symptoms understood and validated by healthcare professionals. She shares her approach to treatment as well as the top three concerns among EDS patients. Dr. Linda Bluestein and guest host Kate Colbert discuss the importance of effective communication between doctors and patients, and the need for healthcare professionals to understand the patient's perspective. Dr. Bluestein shares her goals for the Bendy Bodies podcast and they end with a hypermobility hack for traveling with EDS. Takeaways Healthcare professionals should strive to understand and empathize with the struggles of patients with hypermobility conditions and recognize their heroic efforts in managing their symptoms.  Offering the correct dose of hope is difficult, as it is important to be responsible and not oversimplify the complexities of hypermobility conditions. Individuals with EDS often experience a high symptom burden, including pain, fatigue, and gastrointestinal symptoms. Getting symptoms understood and validated by healthcare professionals can be challenging for EDS patients. Empathy and understanding from both patients and doctors are crucial in managing EDS symptoms. Treatment approaches for EDS are discussed.  Effective communication between doctors and patients is essential for better care. Patients can learn how to communicate better and doctors can understand how patients think. The Bendy Bodies podcast aims to improve care for people with symptomatic joint hypermobility, educate healthcare professionals, and support nonprofit organizations. Patients, caregivers, advocates, and medical professionals can contribute to the EDS community by representing it well, sharing their stories, and spreading awareness about the podcast. Chapters ➡ 00:00 Introduction and Celebration of 100 Episodes 25:52 Understanding and Empathizing with Patients' Struggles 36:40 The Top Three Concerns Among EDS Patients 41:20 The Most Effective Treatment Approaches for EDS 44:23 The Role of Mast Cell Activation Syndrome (MCAS) 52:12 How an EDS Doctor can Facilitate a Patient's Healthcare Team 01:03:16 The Future and Goals of the Bendy Bodies Podcast: Improving Care and Spreading Awareness 1:05:21 Improving Quality of Care for Everyone 01:14:05 Hypermobility Hack: Packing Heavy and Lightening the Burden on Your Body Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them..🎧 Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.     YOUR bendy body is our highest priority! 🧬🔬🦓 Resources:  https://journals.lww.com/topicsinpainmanagement/citation/2023/04000/hope_for_hypermobility__part_2_an_integrative.1.aspx https://www.sciencedirect.com/science/article/abs/pii/S0161589014000546 https://www.edsguardians.org/ #MedicalPodcast #PatientAdvocacy #EDSAwarenessMonth #EDSAwareness #DoctorPatientCommunication #HSD #MCAS #ChronicIllness #EmpathyInMedicine #HealthcareInsights #Hypermobility #ZebraStrong #ZebraWarriors #hEDS #HypermobileEhlersDanlosSyndrome #Podcast #BendyBodiesPodcast #BendyBodies #BendyBuddy #HypermobilityMD #100thEpisode Learn more about your ad choices. Visit megaphone.fm/adchoices

Living with stress and anxiety has become the rule rather than the exception in today’s world. Everyone develops coping strategies of some kind, but without encouragement and guidance these strategies can be dysfunctional and even harmful.  Dr. Bonnie Robson talks through the risks inherent in social and physical isolation and how to develop strategies that can support and encourage long-term mental and physical health. She explores how and why sleep is affected by stress offering ways to better regulate this crucial component of the circadian cycle.  Dr. Robson walks through developing a safe place, the importance of paying attention to the present moment, and how and when you should take your emotional temperature. She outlines ways to build several tools for your emotional toolbox, and reminds us that in these times, good enough is a great goal to have.  Links: Befrienders Worldwide - https://www.befrienders.org BBC Action Line UK - https://www.bbc.co.uk/actionline/ The Actor's Fund USA - https://actorsfund.org The AFC Canada - https://afchelps.ca IADMS's Response to COVID-19 - https://www.iadms.org/page/coronavirus  Learn more about Dr. Linda Bluestein, the Hypermobility MD at our website and be sure to follow us on social media: Websites: https://www.hypermobilitymd.com and www.BendyBodiesPodcast.comInstagram: @hypermobilitymd Twitter: @hypermobilityMD Facebook: https://www.facebook.com/hypermobilityMD/ Pinterest: https://www.pinterest.com/hypermobilityMD/ LinkedIn: https://www.linkedin.com/in/hypermobilitymd/  And follow guest co-host Jennifer at the links below: Website: www.jennifer-milner.com Instagram: @jennifer.milner Facebook: https://www.facebook.com/jennifermilnerbodiesinmotion/  Learn more about your ad choices. Visit megaphone.fm/adchoices

Dancing with a hypermobile body brings its own set of challenges, from a general lack of stability to a slower recovery time. As a young pre-professional, a dancer might not understand why she must find conscious strength before subconscious strength; why daily activities must be examined through the same placement lens as a dance class; and why “boring” and “tedious” can equal “good for you”.  As a parent, helping a hypermobile dancer through the pre-professional years can be bewildering and frustrating for people who don’t understand why their daughter must wait another six months to go on pointe, or why they sometimes need to be “the bad guy” and advocate for their dancer at the studio.  Listen in as physiotherapist Lisa Howell explains what every dance teacher needs to know about hypermobile dancers. She discusses the complexity and subtleties of working with an injured hypermobile dancer, how to optimally develop readiness to go on pointe, and how abdominal pain can affect turns and extensions.  Lisa looks at why the key to greater flexibility is building stability, why the ability to self-assess is one of the most important things we can give dancers as human beings, and how this generation of pre-professional dancers will change the dance industry for the better.  Learn more about Dr. Linda Bluestein, the Hypermobility MD at our websites and be sure to follow us on social media: Websites: https://www.hypermobilitymd.com and www.BendyBodiesPodcast.comInstagram: @hypermobilitymd Twitter: @hypermobilityMD Facebook: https://www.facebook.com/hypermobilityMD/ Pinterest: https://www.pinterest.com/hypermobilityMD/ LinkedIn: https://www.linkedin.com/in/hypermobilitymd/  And follow guest co-host Jennifer at the links below: Website: www.jennifer-milner.com Instagram: @jennifer.milner Facebook: https://www.facebook.com/jennifermilnerbodiesinmotion/  Learn more about your ad choices. Visit megaphone.fm/adchoices

Your DNA holds many secrets.  Why do drugs work on some people and not on others?  Why are conditions expressed so differently in different family members?  How might hypermobility disorders, dysautonomia (like POTS) and Mast Cell Activation Syndrome (MCAS) be related and how does coronavirus fit into all of this?   Listen in as top geneticist, Dr. Paldeep Atwal, shared his expertise on the following:  Hypermobility disorders - Why are Bendy people so different from each other yet can also share many common traits?  Ehlers-Danlos Syndromes - Why is it taking so long to find “the hEDS gene”  Epigenetics - How much of a difference do our day to day choices make?  Genetic and pharmacogenetic testing - Why do the testing if you cannot change the outcome? Important note: The discussion about nutrition and intermittent fasting refers to the body of research with subjects from the general population. Therefore, this information is most applicable to those who are overweight or obese. You need quality nutrients for your body to perform properly! PLEASE do not make any changes to your diet (meaning foods you eat), without consulting with your own primary care physician or nutritionist.  Learn more about Dr. Linda Bluestein, the Hypermobility MD at our website and be sure to follow us on social media: Websites: https://www.hypermobilitymd.com and www.BendyBodiesPodcast.comInstagram: @hypermobilitymd Twitter: @hypermobilityMD Facebook: https://www.facebook.com/hypermobilityMD/ Pinterest: https://www.pinterest.com/hypermobilityMD/ LinkedIn: https://www.linkedin.com/in/hypermobilitymd/  And follow guest co-host Jennifer at the links below: Website: www.jennifer-milner.com Instagram: @jennifer.milner Facebook: https://www.facebook.com/jennifermilnerbodiesinmotion/  Learn more about your ad choices. Visit megaphone.fm/adchoices

PLEASE NOTE***:  The following episode was recorded in mid-April 2020, just four weeks after the World Health Organization declared the spread of SARS-CoV-2 (the virus that causes the disease known as COVID-19) as a global pandemic. At that time, schools and all non-essential businesses had been closed and people around the world were being asked to stay home. Scientists were learning a lot at this point, but it was unclear how many people would become ill and what the excess mortality would be. Although there had been some understanding of post viral syndromes prior to the COVID pandemic (like dysautonomia following influenza), we would quickly learn that there would be serious long-term effects of COVID-19 that had never before been witnessed with any other virus. Ready for some cutting edge COVID-19 science? In this episode, learn new tips and gain insight into the coronavirus situation! SARS-CoV-2, a novel coronavirus, has forever changed the world as we know it.  Why is this virus unique?  Why does the response to infection vary so dramatically?  What can we do to minimize the risk of infection and decrease the impact if we get sick?  Dwight McKee, M.D., Ph.D., board certified in immunology, medical oncology, hematology, nutrition, and integrative medicine, shares his unique perspective on the Bendy Bodies Podcast. Dr. McKee discusses with Dr. Bluestein useful foods and supplements, psychosocial strategies and special considerations for people with pre-existing conditions.  Learn more about Dr. Linda Bluestein, the Hypermobility MD at our websites and be sure to follow us on social media: Websites: https://www.hypermobilitymd.com and www.BendyBodiesPodcast.comInstagram: @hypermobilitymd Twitter: @hypermobilityMD Facebook: https://www.facebook.com/hypermobilityMD/ Pinterest: https://www.pinterest.com/hypermobilityMD/ LinkedIn: https://www.linkedin.com/in/hypermobilitymd/  And follow guest co-host Jennifer at the links below: Website: www.jennifer-milner.com Instagram: @jennifer.milner Facebook: https://www.facebook.com/jennifermilnerbodiesinmotion/  Learn more about your ad choices. Visit megaphone.fm/adchoices

Traits that can make a dancer so valuable in the dance world - drive, perfectionism, obsessing over details - also put them at higher risk for mental health disorders. And while physical health resources become ever more commonplace in the dance world, mental health resources remain woefully lacking, oftentimes uncomfortably left in a hidden half-shadow. A few years ago, Kathleen McGuire Gaines wrote an article, “Why are we still so bad at addressing dancers’ mental health?” for Dance Magazine. The article went viral, becoming one of the most-read articles in the history of the publication, and the response ignited a passion in Kathleen to bring mental health issues to the forefront of conversations, while bringing resources to the doorstep of every dancer.  In this Bendy Bodies episode, Kathleen shares her own journey through the mental health minefield of the dance world, and how it spurred her to bring help to the current generation of dancers by founding Minding the Gap, a social good start up for dancers’ mental health. Kathleen talks about how depression isn’t simply weakness, that shame is a terrible motivator, and how encouraging and informing correct coping strategies can make all the difference.  She shares her desire to reduce eating disorders by addressing the underlying mental health issues, and reveals why it’s so important to have one specific phone number ready in your phone for sharing.  Join us for this important conversation we all should be having.  Learn more about Dr. Linda Bluestein, the Hypermobility MD, at our websites and be sure to follow us on social media: Websites: https://www.hypermobilitymd.com and www.BendyBodiesPodcast.comInstagram: @hypermobilitymd Twitter: @hypermobilityMD Facebook: https://www.facebook.com/hypermobilityMD/ Pinterest: https://www.pinterest.com/hypermobilityMD/ LinkedIn: https://www.linkedin.com/in/hypermobilitymd/  And follow guest co-host Jennifer at the links below: Website: www.jennifer-milner.com Instagram: @jennifer.milner Facebook: https://www.facebook.com/jennifermilnerbodiesinmotion/  Learn more about your ad choices. Visit megaphone.fm/adchoices

While many dancers strive to fuel healthily, making the most out of your meals can be overwhelming. In today’s world especially, dancers need strong immune systems and healthy bodies ready for whatever challenge may come next. Registered dietician nutritionist Kristin Koskinen discusses nutritional needs for dancers and how to shape lifelong healthy eating habits. Kristin examines common mistakes dancers make in fueling choices, and how you can shape a flexible diet built to shift around external factors. She’ll explore creating flexible strategies like a Ballet Bento Box and discuss the base requirements of any foundationally strong diet. Additionally, Kristin lists immune-boosting nutrients and how to find them in foods; explores why stress causes nutritional deficiencies; and explains why removing common inflammatory foods from your diet might help your overall health. Join us for this important discussion! As Kristin points out, “What you do now defines how long and how strong you dance.” Learn more about Dr. Linda Bluestein, the Hypermobility MD, at our websites and be sure to follow us on social media: Websites: https://www.hypermobilitymd.com and www.BendyBodiesPodcast.comInstagram: @hypermobilitymd Twitter: @hypermobilityMD Facebook: https://www.facebook.com/hypermobilityMD/ Pinterest: https://www.pinterest.com/hypermobilityMD/ LinkedIn: https://www.linkedin.com/in/hypermobilitymd/  And follow guest co-host Jennifer Milner at the links below: Website: www.jennifer-milner.com Instagram: @jennifer.milner Facebook: https://www.facebook.com/jennifermilnerbodiesinmotion/  Learn more about your ad choices. Visit megaphone.fm/adchoices

Dancers train constantly to attain peak performance, working long hours to achieve physical and artistic perfection. Unfortunately, mental health is often sacrificed for that perfection.  Terry Hyde, former dancer with the Royal Ballet and psychotherapist with patients all over the world, joins Linda and Jennifer to explore this often-neglected aspect of dancer health, and discusses how hypermobility can bring unique mental health problems of its own. Terry discusses the high incidence of anxiety, depression, and OCD (obsessive compulsive disorder) in hypermobile dancers and explores how a dancer’s perfectionism can be both a blessing and a curse. He describes the intrinsic link between the mind and the body, and how anxiety can be reframed into excitement.  Terry reveals why it’s important to practice talking to your body, and discusses how friends and loved ones can support a dancer needing emotional help - as well as what not to do.  Learn more about Terry Hyde: https://www.counsellingfordancers.com/about/ https://www.instagram.com/counsellingfordancers/ https://www.facebook.com/counsellingfordancers https://www.linkedin.com/in/terry-hyde-ma-mbacp-b68617176/ https://twitter.com/counselingdance  Learn more about Dr. Linda Bluestein, the Hypermobility MD, at our websites and be sure to follow us on social media: Websites: https://www.hypermobilitymd.com and www.BendyBodiesPodcast.comInstagram: @hypermobilitymd Twitter: @hypermobilityMD Facebook: https://www.facebook.com/hypermobilityMD/ Pinterest: https://www.pinterest.com/hypermobilityMD/ LinkedIn: https://www.linkedin.com/in/hypermobilitymd/  And follow guest co-host Jennifer Milner at the links below: Website: www.jennifer-milner.com Instagram: @jennifer.milner Facebook: https://www.facebook.com/jennifermilnerbodiesinmotion/  Learn more about your ad choices. Visit megaphone.fm/adchoices