The Encephalitis Podcast – Details, episodes & analysis

One of our Team Encephalitis volunteers, Nicole, talks to Senior Medical Writer, Praveen, about her lived experience of encephalitis. Nicole was diagnosed with Anti-DPPX receptor encephalitis when she was 20 years old while she was at University. This lead to her needing to abandon her studies to recover. Luckily, Nicole is recovering well and is about to start the final semester of her course just two years later.

Follow Encephalitis International:

Facebook: https://www.facebook.com/encephalitisinternational

LinkedIn: https://www.linkedin.com/company/encephalitisinternational

Instagram: https://www.instagram.com/encephalitisinternational

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In this episode, Dr Ava Easton (CEO of Encephalitis International) is joined by Professor Jonathan Evans - a distinguished expert in clinical neuropsychology at the university of Glasgow. Professor Jon Evans discusses the world of memory and its intersection with encephalitis including the difference between long term, short term memory and false memory, how it's referred to in the medical world and any available support aids.

If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/contact-our-helpline/

Our support groups are listed here https://www.encephalitis.info/online-support-meetings

If you would like to donate to help fund research, information and support for those affected by encephalitis, please follow this link: https://app.donorfy.com/form/L9J9FR7NZ5/00YAZ

Follow Encephalitis International:

Facebook: https://www.facebook.com/encephalitisinternational/

LinkedIn: https://www.linkedin.com/company/encephalitisinternational

Instagram: https://www.instagram.com/encephalitisinternational/

TikTok: https://www.tiktok.com/@encephalitisint 

In this edition of The Encephalitis Podcast, Dr Ava Easton is joined by Dr Greta Wood for a discussion around seizures and encephalitis.

In this wide-ranging conversation, they discuss an important new research paper before answering some questions around seizures and encephalitis.

Greta is an Academic Clinical Fellow in Infectious Diseases at the University of Liverpool and has a wide range of research interests, including the socio-economic impact of infectious diseases and multi-morbidity.

She is also a member of the COVID-19 Clinical Neuroscience Study which is investigating the neurological and neuropsychiatric complications of COVID-19.

The Encephalitis Podcast is also available on podcast channels, such as Apple, Google Play, Podbean and Spotify.

Find out more about seizures and encephalitis by viewing our factsheet: https://www.encephalitis.info/seizures-and-encephalitis

For more information about Greta, visit https://www.liverpool.ac.uk/infection-veterinary-and-ecological-sciences/staff/greta-wood/

The research paper, Acute seizure risk in patients with encephalitis, can be found here: https://neurologyopen.bmj.com/content/4/2/e000323 

If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support

If you have been affected by encephalitis and would like to become a member of the society, you can sign up here (membership is free and global): https://www.encephalitis.info/Pages/Category/membership

If you would like to donate to help fund research, information and support for those affected by encephalitis, please follow this link: https://www.encephalitis.info/donate/donate/10

Follow the Encephalitis Society: Facebook: https://www.facebook.com/EncephalitisSociety/

Twitter: https://twitter.com/encephalitis

Instagram: https://www.instagram.com/the_encephalitis_society_/

LinkedIn: https://www.linkedin.com/company/the-encephalitis-society

We are delighted to welcome back Professor Benedict Michael to The Encephalitis Podcast.

Ben talks to host Dr Ava Easton about the COVID-19 Clinical Neuroscience Study – a £2.3 million research study looking in the acute neurological and neuropsychiatric complications of COVID-19.

He also shares his thoughts on being a front-line medic during the pandemic, the NHS in general and the upcoming Encephalitis Conference.

Ben is a Professor of Neuroscience at the University of Liverpool, a Medical Research Council Clinician Scientist and Honorary Consultant Neurologist at the Walton Centre, also in Liverpool. Ben is also Vice President of our Scientific Advisory Panel and helps to drive forward our research agenda and organise the Encephalitis Conference, among many other important areas of our work.

For more about the COVID-CNS study or to take part, visit https://www.liverpool.ac.uk/covid-clinical-neuroscience-study/

Follow the COVID-CNS study on Twitter: https://twitter.com/covidcns

Follow Ben on Twitter: https://twitter.com/BenedictNeuro

If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support

If you have been affected by encephalitis and would like to become a member of the society, you can sign up here (membership is free and global): https://www.encephalitis.info/Pages/Category/membership

If you would like to donate to help fund research, information and support for those affected by encephalitis, please follow this link: https://www.encephalitis.info/donate/donate/10

Follow the Encephalitis Society: Facebook: https://www.facebook.com/EncephalitisSociety/

Twitter: https://twitter.com/encephalitis

Instagram: https://www.instagram.com/the_encephalitis_society_/

LinkedIn: https://www.linkedin.com/company/the-encephalitis-society

Suzie Miller - the author of Prima Facie - joins The Encephalitis Podcast to talk about her career, personal experiences of encephalitis which she contracted in her early 30s, becoming an Ambassador with the Encephalitis Podcast and much more.

Born in Melbourne, Suzie is an award-winning playwright and screenwriter who has a background in law and science, working as a human rights lawyer and children's rights lawyer before leaving the law to pursue a theatre writing career full-time.

Prima Facie debuted in Australia in 2019, winning several awards, before moving to London's West End starring Jodie Comer. It will be heading to Broadway in 2023.

We hope you enjoy Suzie's conversation with Dr Ava Easton, the host of The Encephalitis Podcast.

For more about Suzie and her work, visit her website http://www.suziemillerwriter.com/

If you would like to find out more about Prima Facie, visit their official website https://primafacieplay.com/

If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support

If you have been affected by encephalitis and would like to become a member of the society, you can sign up here (membership is free and global): https://www.encephalitis.info/Pages/Category/membership

If you would like to donate to help fund research, information and support for those affected by encephalitis, please follow this link: https://www.encephalitis.info/donate/donate/10

Follow the Encephalitis Society: Facebook: https://www.facebook.com/EncephalitisSociety/

Twitter: https://twitter.com/encephalitis

Instagram: https://www.instagram.com/the_encephalitis_society_/

LinkedIn: https://www.linkedin.com/company/the-encephalitis-society

Award-winning playwright and screenwriter Abi Morgan joins Dr Ava Easton in this edition of the Encephalitis Podcast.

Abi, who is perhaps best known for the films Suffragette, The Iron Lady and Shame, is now an author, having recently published, This is Not a Pity Memoir.

The book tells the story of her husband when he develops Anti-NMDAR encephalitis, the impact his illness had on their family, and also Abi’s own illness.

Ava said: “I devoured this book. It’s incredibly written, profoundly insightful and, at times, brutally authentic. But also, as Abi says, not a pity memoir, but a love story.”

We hope you enjoy this wonderful conversation!

This is Not a Pity Memoir is available from all online good bookshops.

If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support

If you have been affected by encephalitis and would like to become a member of the society, you can sign up here (membership is free and global): https://www.encephalitis.info/Pages/Category/membership

If you would like to donate to help fund research, information and support for those affected by encephalitis, please follow this link: https://www.encephalitis.info/donate/donate/10

Follow the Encephalitis Society: Facebook: https://www.facebook.com/EncephalitisSociety/

Twitter: https://twitter.com/encephalitis Instagram: https://www.instagram.com/the_encephalitis_society_/

LinkedIn: https://www.linkedin.com/company/the-encephalitis-society

In this episode of The Encephalitis Podcast, Dr Ava Easton talks to Dr Gavin Francis, a GP and author, about his book, Recovery: The Lost Art of Convalescence.

This is a fascinating interview about how - and why - we get better, revealing the many shapes recovery takes, its shifting history and the frequent failure of our modern lives to make adequate space for it.

For more about Gavin, his work and books, visit http://www.gavinfrancis.com/

To order a copy of Recovery: The Lost Art of Convalescence, visit https://www.amazon.co.uk/gp/product/B099BVT2VH/ref=dbs_a_def_rwt_hsch_vapi_tkin_p1_i0

If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support

If you have been affected by encephalitis and would like to become a member of the society, you can sign up here (membership is free and global): https://www.encephalitis.info/Pages/Category/membership

If you would like to donate to help fund research, information and support for those affected by encephalitis, please follow this link: https://www.encephalitis.info/donate/donate/10

Follow the Encephalitis Society: Facebook: https://www.facebook.com/EncephalitisSociety/

Twitter: https://twitter.com/encephalitis

Instagram: https://www.instagram.com/the_encephalitis_society_/

LinkedIn: https://www.linkedin.com/company/the-encephalitis-society

We decided to keep things in-house for this episode of The Encephalitis Podcast.

Dr Ava Easton interviews Phillippa Chapman, Deputy CEO of the Encephalitis Society, for a cosy chat which covers her ten years with the Encephalitis Society, becoming a new mum during the COVID-19 pandemic, and what the future holds for us a charity.

Sit back, pour yourself a cup of tea, and enjoy this cosy chat between Ava and Phillippa.

If you have been affected by encephalitis and would like to become a member of the society, you can sign up here (membership is free and global): https://www.encephalitis.info/join-us

If you would like to donate to help fund research, information and support for those affected by encephalitis, please follow this link: https://www.encephalitis.info/donate/donate/10

Follow the Encephalitis Society:

Facebook: https://www.facebook.com/EncephalitisSociety/

Twitter: https://twitter.com/encephalitis

Instagram: https://www.instagram.com/the_encephalitis_society_/

LinkedIn: https://www.linkedin.com/company/the-encephalitis-society

In this special World Encephalitis Day edition of The Encephalitis Podcast, Dr Ava Easton talks to Dr Julia Granerod about our ground-breaking new report which looks at the global impact of encephalitis and could change millions of lives for the better.

The report - Encephalitis: an in-depth review and gap analysis of key variables affecting global disease burden - has identified a range of difficulties surrounding encephalitis around the world. Crucially, however, it proposes a range of solutions which could save lives and improve the treatment and after-care of millions of people today and into the future.

The report has been launched by six eminent scientists in the field of encephalitis, including Dr Julia Granerod, Alina Ellerington, Dr Nicholas Davies, Dr Benedict Michael, Professor Tom Solomon, and Dr Ava Easton.

For more information about the Global Impact Report, visit https://www.encephalitis.info/global-impact-report

If you would like to know more about World Encephalitis Day, visit www.worldencephalitisday.org

If you have been affected by encephalitis and would like to become a member of the society, you can sign up here (membership is free and global): https://www.encephalitis.info/join-us

If you would like to donate to help fund research, information and support for those affected by encephalitis, please follow this link: https://www.encephalitis.info/donate/donate/10

Follow the Encephalitis Society: Facebook: https://www.facebook.com/EncephalitisSociety/

Twitter: https://twitter.com/encephalitis

Instagram: https://www.instagram.com/the_encephalitis_society_/

LinkedIn: https://www.linkedin.com/company/the-encephalitis-society

In this episode of the Encephalitis Podcast, Dr Ava Easton is joined by author Sam Goodwin

Sam is a self-published crime writer from Leeds whose debut novel, Murder at Macbeth, was published just over two years ago. She has also collaborated on a new non-fiction book with some of her fellow writers called Indie Writing Wisdom which offers advice and insights on writing and self-publishing.

Indie Writing Wisdom is dedicated to her dad who sadly passed away as a result of encephalitis in 2017 with proceeds going to the Encephalitis Society.

In this episode, Sam discusses her dad, her writing experiences and shares her advice for aspiring authors - a topic which will really resonate with many of our listeners who are interested in sharing their experiences of encephalitis.

Indie Writing Wisdom is available from Amazon at https://amzn.to/3ytkeIp

Murder at Macbeth by Samatha Goodwin is available from Amazon at https://amzn.to/3DU9GmI

The Encephalitis Podcast is available on You Tube, Google Play, Spotify, Apply and Podbean.

For previous episodes, visit https://www.encephalitis.info/Listing/Category/our-podcasts

If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support

If you have been affected by encephalitis and would like to become a member of the society, you can sign up here (membership is free and global): https://www.encephalitis.info/Pages/Category/membership

If you would like to donate to help fund research, information and support for those affected by encephalitis, please follow this link: https://www.encephalitis.info/donate/donate/10

Follow the Encephalitis Society: Facebook: https://www.facebook.com/EncephalitisSociety/

Twitter: https://twitter.com/encephalitis

Instagram: https://www.instagram.com/the_encephalitis_society_/

LinkedIn: https://www.linkedin.com/company/the-encephalitis-society