Fiona Rawlinson discusses further and future aspects of Dr Joshi's work on financial Toxicity

Fiona Rawlinson talks with Dr Saurabh Joshi about his work developing a strategy to manage the financial burdens of cancer treatment in India . The information is relevant across the world in different settings. This is part 1 of a 2 part discussion, recorded in February 2025

the website Mark mentions during the conversation is talkcpr - http://talkcpr.wales/

discussion with Dr Ricky Fraser from Velindre Hospital , Cardiff about the changes and impact of covid19 on oncology services 

we talk with Mrs Becci Roberts about the experiences of covid19 in a nursing home 

Here is some information that was discussed during the podcast

 http://TalkCPR.wales ..

Shared Understanding (versus Shared Decisions) , this essay by Zoe Fritz  is quite useful:  https://medium.com/death-dying-and-digital/dnacpr-and-shared-understanding-46a5a8a82d4f

Our Wales DNACPR policy:

http://www.wales.nhs.uk/researchandresources/publications/sharingandinvolvingaclinicalpolicyfordonotattemptcardiopulmonaryresuscitationdnacprforadultsinwales

The ‘treatment ladder’ concept:  https://www.youtube.com/watch?v=Y52YwLcVQQs

For better preparation, there are new NHS Wales resources for Advance and Future Care Planning, can be found here:

http://www.wales.nhs.uk/researchandresources/publications/nhswalesadvancefuturecareplans

Discussion with Dr Mark Smithies - a critical care anaesthetist from Cardiff about perspectives from intensive care units during the covid 19 pandemic . 

Some links were discussed during the podcast for support for patients and relatives: 

http://cardiffcriticalcare.co.uk/patients-and-relatives/information-booklets/

https://icusteps.org/

https://www.yourcovidrecovery.nhs.uk/

Support for NHS staff was discussed - here is a link to an additional resource

https://ics.ac.uk/ICS/Wellbeing/ICS/Wellbeing_resources/Wellbeing_Hub.aspx?hkey=4f549260-379b-4b0e-9600-49d8a8d58d9a&_zs=dr4UD1&_zl=r23t5

Dr Elise Lang and Dr Rachel Lee are GP's working in Cardiff. They are joined by Dr Fiona Rawlinson to discuss palliative care issues in the community in Cardiff in spring 2020 

Dr Elise Lang and Dr Rachel Lee discuss some of the preparations that GP's have been involved with in terms of accessing medication in Wales for community deaths during the coronavirus pandemic . They are joined by Dr Fiona Rawlinson 

Dr Elise Lang and Dr Rachel Lee discuss aspects of grief and bereavement in the community during covid19 with Dr Fiona Rawlinson - Consultant in Palliative Medicine 

a follow up discussion between Professors Mark Taubert and Fiona Rawlinson about the progress and current situation of the Terminally Ill Adults [End of Life Bill]

Liz Booyse, CEO of City Hospice Cardiff and current Chair of Hospices Cymru discusses the role with Fiona Rawlinson. Recorded 24 Feb 2025

Fiona Rawlinson and Catriona Seed [CNS] share experiences about some of the usual questions about end of life from patients, families and carers.

this was a wide ranging discussion about terminology and language and its meaning for palliative care patients.

Profs Fiona Rawlinson and Mark Taubert discuss a whistle stop tour of nausea and vomiting . Recorded Feb 2025

as the discussions about the Terminally Ill Adults ( End of Life) Bill for England and Wales are underway and evidence is being presented which will shape the final Bill, Professors Fiona Rawlinson and Mark Taubert discuss some of the current issues

Dr Sian Gallard and Dr Fiona Rawlinson discuss the practical impact of changes in communication style that have been needed as a result of the COVID-19 pandemic .

Useful links: 

Dr Clea Atkinson - you tube video on Communication skills in PPE - https://youtu.be/tZ8DGZx7x20

Communication skills - Cardiff 6 point toolkit and adaptations - DOCUMENT in Media https://wordpress.com/media/sharingpalliativecare.org

Professor Mark Taubert - delivering bad news by phone or video link - https://www.bevancommission.org/post/dr-mark-taubert-bevan-exemplar-delivering-bad-news-by-phone-or-video-link

some of the research work and evaluation that has been done around the Cardiff 6 point toolkit ( Nikki Pease) - https://www.researchgate.net/publication/337301287_Paramedics_and_serious_illness_communication_training

Dr Sian Gallard discusses the changes that were necessary for face to face education to move to online during 2020 with Dr Fiona Rawlinson 

This is a conversation recorded in February 2021 - when the pandemic was still challenging the way we thought about communication and dying. Kathryn's book , " With the end in mind" was published and her second book "Listen" was about to be published. We have listened again in 2025 and ,as a prelude to a new recording, we felt that this had so many points still universally relevant that it was worth re-releasing. We hope you agree!

Prof Fiona Rawlinson talks with Ben Simms - CEO of Global Health Partnerships [ formerly THET] about the challenges and opportunities for developing partnerships in palliative care and the potential for collaborative learning.

Mark and Fiona catch up with the progress of the Terminally Ill Adults (End of Life) Bill as it stands at the end of December 2025.