Love Doesn't Pay The Bills – Details, episodes & analysis

Lynn Abaté-Johnson  joins Lisa to discuss the breadth and complexity of our human feelings as caregivers, particularly at the holidays.  We reflect on the paradox that embracing difficult emotions can bring more ability to adjust to them, live with them, and notice the more pleasant ones which can exist right alongside them.

After being a primary caregiver for her mom for over six years, International Best-Selling Author & Speaker, Lynn Abaté-Johnson, understands the typhoon of emotions and responsibilities that come with caring for a loved one. Like most family caregivers, Lynn juggled caregiving duties with a full-time career. In her daily life, she’s a global community builder and business consultant. Lynn wrote the book, “Out Of Love: A Daughter’s Journey With Her Mom To The End” to normalize and de-stigmatize what many families may take for granted or miss in their roles as caregivers. She offers practical tools & resources, along with encouragement for other family caregivers, with the goal of bringing light to the dark and peace to the soul.

Get a free chapter of the book here!

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Jessica Patay is the founder and executive director of We Are Brave Together which brings together and uplifts over three thousand parents of children with disabilities.  When her son was diagnosed with Prader-Willi syndrome, she met a warm community of famlies whose child also experienced the condition.  We Are Brave Together creates a similar experience for many more moms whose children experience a wide variety of disabilities.  You can join a free online or in person facilitated support group, receive newsletters and check out the Brave Together podcast!

We talk about loving our caree, all the myriad feelings that can come up during the holidays including cyclical grief, and how to gift a family caregiver.  



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We're joined by Kim Evon to discuss California caregivers and the large gap in staffing that leads to reliability issues in caregiving. We discuss why family caregivers may have difficulties working full-time and what happens when there's not enough care to go around to those who need it.

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Elise's letter on healthcare workforce shortages

ANCOR's report "The State of America’s Direct Support Workforce Crisis 2022"

Elise Augilar, Director of Federal Relations at ANCOR discusses the shortage of (non family) direct support providers. We discuss the need for DSP jobs to be properly recognized and paid.

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Maressa Brown joins us to discuss possible ways that some family caregivers may be able to get paid for work.

read the full article on care.com

https://maressabrown.com/

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Calli Ross is back to discuss the current state of the movement in OR to allow parent paid caregivers through Medicaid Home and Community Based Services. Just in time for mother's day, hundreds of mothers in Oregon lost their income for meeting the extraordinary needs of their children as the state of emergency which temporarily allowed parent paid caregivers expires without a permanent replacement yet in place.

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Nicole Jorwic, chief of advocacy and campaigns at Caring Across Generations, discusses the personal cost borne within families for providing care when there aren't enough care workers for hire, as well as what it would mean to make more of that cost public.

https://thehill.com/opinion/congress-blog/3980173-the-care-tax-the-cost-of-the-lack-of-care-for-caregivers/

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#family #caregivers #support #DSP #careworkers #carecrisis

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This episode is about the Oklahoma Caring for Caregivers Act which will, if it passes the state sentate, provide a tax credit to reimburse family caregivers who have spent money on the care of their loved one. It's one piece of asstance, dwarfed by the estimated labor value of 6.6 billion dollars annually provided by Oklahoman family caregivers. Still, the bipartisan support of such measures around the country, could lead one to believe that we as a nation are moving in the direction that future family caregivers will be well cared for themselves. We discuss the relation between policy on the state and Federal level, with state programs often being incubators for Federal policy.

AARP's Valuing the Invaluable Report 2023
AARP's caregiver resources

https://www.oklahoman.com/story/opinion/2023/04/14/guest-caring-for-caregivers-act-would-offset-costs-for-oklahoma-families/70101049007/

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Guest Manjari Raman helps define the relationship between caregivers and employers and how to have conversations about accomodations and flexibility in the workplace.

Transcript

Read the full report

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Danielle Miura is a family caregiver and certified financial advisor with a focus on helping other family caregivers stay financial stable. We discuss savings, insurance policies, and how caregivers can feel more secure in their budget.

https://spark-fin.com/

Transcript: https://docs.google.com/document/d/1uA9LgaiR3kn-ehXWaiO77iooUveb4HdY/edit?usp=sharing&ouid=106863056658610480232&rtpof=true&sd=true

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