Hyperparathyroidism: A Patient's Perspective – Details, episodes & analysis

Lisa Marie shares an introduction to the upcoming episodes, what the podcast is and is not about, as well as the importance of seeking medical advice from a qualified medical professional. This is not a podcast about thyroid problems, underactive, overactive, or thyroid cancers.

RESOURCES

The information shared in this podcast has been provided by several sources. These include outcomes from personal consultations with medical professionals, my own experiences, published research by expert medical professionals, the NHS website, and curated guides from my support group. Please click on the links below for more information.

Hyperparathyroidism Support & Information Facebook Group

https://www.facebook.com/groups/406980976340533

Hyperparathyroidism

https://www.nhs.uk/conditions/hyperparathyroidism/

Normocalcemic Hyperparathyroidism

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7923978/

NICE Guidelines

https://www.nice.org.uk/guidance/ng132

DISCLAIMER: Lisa Marie is not in any way medically trained, she is not providing medical advice, and the information that is shared is in no way a substitute for qualified medical advice. If you believe you may have this disease, then you must seek the most appropriate medical advice, this podcast aims to help you navigate your way to the right medical support and diagnosis.

Lisa marie shares a basic overview of what hyperparathyroidism is.

ABBREVIATIONS:

• HPT - Hyperparathyroidism.
• nHPT - Normocalcemic Hyperparathyroidism
• PTH - Parathyroid Hormone Level.

CLARIFICATIONS:

Hyperplasia verses single adenoma.

• Hyperplasia affects all four glands and the glands become enlarged.
• A single adenoma usually a benign (non-cancerous) tumour of the gland.

RESOURCES

The information shared in this podcast has been provided by several sources. These include outcomes from personal consultations with medical professionals, my own experiences, published research by expert medical professionals, and the NHS website. Please click on the links below for more information.

Hyperparathyroidism

https://www.nhs.uk/conditions/hyperparathyroidism/

Normocalcemic Hyperparathyroidism

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7923978/

Hyperparathyroidism Support & Information - Patient to Patient Support Group

https://www.facebook.com/groups/406980976340533

NICE Guidelines

https://www.nice.org.uk/guidance/ng132

DISCLAIMER: Lisa Marie is not in any way medically trained, she is not providing medical advice, and the information that is shared is in no way a substitute for qualified medical advice. If you believe you may have this disease, then you must seek the most appropriate medical advice, this podcast aims to help you navigate your way to the right medical support and diagnosis.

In this episode, Lisa Marie discusses the importance of patient-to-patient support groups, but more importantly, choosing the right support group. Lisa Marie shares insight on how to choose the right support group and what might be helpful to consider when choosing to join a relevant support group.

RESOURCES

The information shared in this podcast has been provided by several sources. These include outcomes from personal consultations with medical professionals, my own experiences, published research by expert medical professionals, and the NHS website. Please click on the links below for more information.

Hyperparathyroidism Support & Information - Patient-to-Patient Support Group

https://www.facebook.com/groups/406980976340533

DISCLAIMER: Lisa Marie is not in any way medically trained, she is not providing medical advice, and the information that is shared is in no way a substitute for qualified medical advice. If you believe you may have this disease, then you must seek the most appropriate medical advice, this podcast aims to help you navigate your way to the right medical support and diagnosis.

In episode 2 Lisa Marie explores the different presentations of hyperparathyroidism, such as classic presentation, normocalcemic presentation, and normohormonal presentation, the latter of which, can be tricky to diagnose and need expert medical intervention.

ABBREVIATIONS:

• HPT - Hyperparathyroidism.
• nHPT - Normocalcemic Hyperparathyroidism
• PTH - Parathyroid Hormone Level.

CLARIFICATIONS:

Hyperplasia verses single adenoma.

• Hyperplasia affects all four glands and the glands become enlarged.
• A single adenoma usually a benign (non-cancerous) tumour of the gland.

RESOURCES

The information shared in this podcast has been provided by several sources. These include outcomes from personal consultations with medical professionals, my own experiences, published research by expert medical professionals, and the NHS website. Please click on the links below for more information.

Hyperparathyroidism

https://www.nhs.uk/conditions/hyperparathyroidism/

Normocalcemic Hyperparathyroidism

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7923978/

Hyperparathyroidism Support & Information - Patient to Patient Support Group

https://www.facebook.com/groups/406980976340533

NICE Guidelines

https://www.nice.org.uk/guidance/ng132

DISCLAIMER: Lisa Marie is not in any way medically trained, she is not providing medical advice, and the information that is shared is in no way a substitute for qualified medical advice. If you believe you may have this disease, then you must seek the most appropriate medical advice, this podcast aims to help you navigate your way to the right medical support and diagnosis.

In episode 3 Lisa Marie discusses the very basic must have tests for diagnositic puposes, along with a variety of scans which may be organised by your healthcare professional.

Lisa Marie also mentions a Sestambi scan, which she finds very problematic to pronouce correctly, so she shares her apologies if this is not correct.

ABBREVIATIONS:

• HPT - Hyperparathyroidism.
• nHPT - Normocalcemic Hyperparathyroidism
• PTH - Parathyroid Hormone Level.

CLARIFICATIONS:

Hyperplasia verses single adenoma.

• Hyperplasia affects all four glands and the glands become enlarged.
• A single adenoma usually a benign (non-cancerous) tumour of the gland.

RESOURCES

The information shared in this podcast has been provided by several sources. These include outcomes from personal consultations with medical professionals, my own experiences, published research by expert medical professionals, and the NHS website. Please click on the links below for more information.

Hyperparathyroidism

https://www.nhs.uk/conditions/hyperparathyroidism/

Normocalcemic Hyperparathyroidism

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7923978/

Hyperparathyroidism Support & Information - Patient to Patient Support Group

https://www.facebook.com/groups/406980976340533

NICE Guidelines

https://www.nice.org.uk/guidance/ng132

DISCLAIMER: Lisa Marie is not in any way medically trained, she is not providing medical advice, and the information that is shared is in no way a substitute for qualified medical advice. If you believe you may have this disease, then you must seek the most appropriate medical advice, this podcast aims to help you navigate your way to the right medical support and diagnosis.

Lisa Marie discusses her own journey with hyperparathyroidism, which highlights the challenges of getting diagnosed or being dismissed and gaslighted.

This episode also covers the additional challenges women in particular might face, simply by being women or being women of a certain age, not to mention some of the inappropriate statements made by healthcare professionals during many of the consultations she needed.

ABBREVIATIONS:

• HPT - Hyperparathyroidism.
• nHPT - Normocalcemic Hyperparathyroidism
• PTH - Parathyroid Hormone Level.
• ng/L - The blood chemistry measurement.

CLARIFICATIONS:

Hyperplasia verses single adenoma.

• Hyperplasia affects all four glands and the glands become enlarged.
• A single adenoma usually a benign (non-cancerous) tumour of the gland.

RESOURCES

The information shared in this podcast has been provided by several sources. These include outcomes from personal consultations with medical professionals, my own experiences, published research by expert medical professionals, and the NHS website. Please click on the links below for more information.

Hyperparathyroidism

https://www.nhs.uk/conditions/hyperparathyroidism/

Normocalcemic Hyperparathyroidism

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7923978/

Hyperparathyroidism Support & Information - Patient to Patient Support Group

https://www.facebook.com/groups/406980976340533

NICE Guidelines

https://www.nice.org.uk/guidance/ng132

DISCLAIMER: Lisa Marie is not in any way medically trained, she is not providing medical advice, and the information that is shared is in no way a substitute for qualified medical advice. If you believe you may have this disease, then you must seek the most appropriate medical advice, this podcast aims to help you navigate your way to the right medical support and diagnosis.

In this short episode, Lisa Marie shares the impact Hyperparathyroidism has had on her own hair, the inappropriate comment from an endocrinologist, and her tips for maintaining and protecting the hair during your parathyroid journey.

RESOURCES

The information shared in this podcast has been provided by several sources. These include outcomes from personal consultations with medical professionals, my own experiences, published research by expert medical professionals, and the NHS website. Please click on the links below for more information.

Hyperparathyroidism

https://www.nhs.uk/conditions/hyperparathyroidism/

Normocalcemic Hyperparathyroidism

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7923978/

Hyperparathyroidism Support & Information - Patient to Patient Support Group

https://www.facebook.com/groups/406980976340533

NICE Guidelines

https://www.nice.org.uk/guidance/ng132

DISCLAIMER: Lisa Marie is not in any way medically trained, she is not providing medical advice, and the information that is shared is in no way a substitute for qualified medical advice. If you believe you may have this disease, then you must seek the most appropriate medical advice, this podcast aims to help you navigate your way to the right medical support and diagnosis.

In episode 5 Lisa Marie Shares her humiliating and traumatic visits to the dentist and specialist dental hospital, highlighting once again dismissive attitudes and making Lisa Marie feel entirely responsible for her dental issues.

Importantly Lisa Marie highlights the need to be aware of the relationship between hyperparathyroidism and how early intervention may be the key to preserving long-term dental health.

RESOURCES

The information shared in this podcast has been provided by several sources. These include outcomes from personal consultations with medical professionals, my own experiences, published research by expert medical professionals, and the NHS website. Please click on the links below for more information.

THE JOURNAL OF THE BRITISH ASSOCIATION OF DENTAL NURSES

https://bdnj.co.uk/2021/05/06/hyperparathyroidism-what-to-know/

DISCLAIMER: Lisa Marie is not in any way medically trained, she is not providing medical advice, and the information that is shared is in no way a substitute for qualified medical advice. If you believe you may have this disease, then you must seek the most appropriate medical advice, this podcast aims to help you navigate your way to the right medical support and diagnosis.

Lisa Marie shares a few health conditions that can be very similar, if not the same to those of hyperparathyroidism. Most importantly she discusses the need to be aware of the symptoms that can cross over and those that are different so that you can identify which symptom pool relates to which health concern or condition.

RESOURCES

The information shared in this podcast has been provided by several sources. These include outcomes from personal consultations with medical professionals, my own experiences, published research by expert medical professionals, and the NHS website. Please click on the links below for more information.

Hyperparathyroidism

https://www.nhs.uk/conditions/hyperparathyroidism/

Normocalcemic Hyperparathyroidism

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7923978/

Hyperparathyroidism Support & Information - Patient to Patient Support Group

https://www.facebook.com/groups/406980976340533

NICE Guidelines

https://www.nice.org.uk/guidance/ng132

Fibromyalgia

https://www.nhs.uk/conditions/fibromyalgia/symptoms/

https://www.fmauk.org/

Menopause

https://www.nhs.uk/conditions/menopause/

https://www.newsonhealth.co.uk/

Thyroid Function

https://www.nhs.uk/conditions/underactive-thyroid-hypothyroidism/

https://www.btf-thyroid.org/what-is-thyroid-disorder

DISCLAIMER: Lisa Marie is not in any way medically trained, she is not providing medical advice, and the information that is shared is in no way a substitute for qualified medical advice. If you believe you may have this disease, then you must seek the most appropriate medical advice, this podcast aims to help you navigate your way to the right medical support and diagnosis.

In this episode, Lisa Marie shares valuable insights and tips for navigating your way to a diagnosis of hyperparathyroidism. The importance of being prepared ahead of any appointments you may need, is also advantageous. Asking informed questions and even getting a second opinion where possible.

ABBREVIATIONS:

HPT - Hyperparathyroidism.

nHPT - Normocalcemic Hyperparathyroidism.

PTH - Parathyroid Hormone Level.

ng/L - Blood chemistry measurement.

MP - Member of Parliament - UK

CLARIFICATIONS:

Hyperplasia verses single adenoma.

Hyperplasia affects all four glands and the glands become enlarged.

A single adenoma usually a benign (non-cancerous) tumour of the gland.

RESOURCES

The information shared in this podcast has been provided by several sources. These include outcomes from personal consultations with medical professionals, my own experiences, published research by expert medical professionals, and the NHS website. Please click on the links below for more information.

Hyperparathyroidism

https://www.nhs.uk/conditions/hyperparathyroidism/

Normocalcemic Hyperparathyroidism

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7923978/

Hyperparathyroidism Support & Information - Patient to Patient Support Group

https://www.facebook.com/groups/406980976340533

NICE Guidelines

https://www.nice.org.uk/guidance/ng132

Fibromyalgia

https://www.nhs.uk/conditions/fibromyalgia/symptoms/

https://www.fmauk.org/

Menopause

https://www.nhs.uk/conditions/menopause/

https://www.newsonhealth.co.uk/

Thyroid Function

https://www.nhs.uk/conditions/underactive-thyroid-hypothyroidism/

https://www.btf-thyroid.org/what-is-thyroid-disorder

DISCLAIMER: Lisa Marie is not in any way medically trained, she is not providing medical advice, and the information that is shared is in no way a substitute for qualified medical advice. If you believe you may have this disease, then you must seek the most appropriate medical advice, this podcast aims to help you navigate your way to the right medical support and diagnosis.