Explore every episode of the podcast Young Tongues
| Title | Pub. Date | Duration | |
|---|---|---|---|
| Going the Extra Mile: Danielle's Story | 16 oct. 2026 | 01:12:28 | |
What does it take to run an ultramarathon just months after cancer treatment? In this episode, Barbara is joined by Danielle Welsh from Melbourne, Australia, who shares her experience of being diagnosed with tongue cancer at 43, undergoing surgery and radiotherapy, and navigating the challenges of recovery while raising two young children. A lifelong endurance athlete, Danielle was determined to keep moving throughout treatment, adapting her exercise routine even as the side effects became increasingly difficult. But her story goes far beyond physical fitness. Together, Barbara and Danielle explore the importance of self-advocacy, the difficult decisions patients face around treatment, and the gaps in care that often emerge once treatment ends. They discuss why survivorship needs a more holistic approach, the value of finding the right healthcare professionals, and the emotional challenges of explaining cancer to young children. An insightful and thought-provoking conversation about resilience, patient-centred care, and finding ways to regain control when cancer turns your world upside down. Hosted on Acast. See acast.com/privacy for more information. | |||
| Kylie Young on Life and Leadership After Tongue Cancer | 11 oct. 2026 | 00:54:50 | |
What happens when tongue cancer threatens not just your health, but your ability to communicate, work and live life on your own terms? In this episode, Barbara is joined by Kylie Young from New Zealand, who shares her remarkable journey from a persistent tongue ulcer and delayed diagnosis to major surgery, radiotherapy and life beyond treatment. Kylie speaks candidly about the challenges she faced, including complications with feeding, feeling unheard by healthcare professionals, and navigating the emotional and physical impact of losing her tongue. But this is also a story of resilience, humour and rediscovering what's possible. Despite initially being told her teaching career might be over, Kylie has gone on to become a General Manager, demonstrating that a speech impairment doesn't have to stand in the way of leadership. Together, Barbara and Kylie explore the importance of individualised care, supportive employers, finding your voice after cancer, and learning to embrace life with its new challenges. An honest, uplifting and thought-provoking conversation about being heard, challenging expectations and refusing to let cancer define your future. If you’ve been diagnosed with tongue cancer (or are supporting someone who has), you can find help here: 🌍 Website 🤝 Join support groups & mailing list: via the website 💌 Contact us: podcast@youngtonguesglobal.com We’re building this with our community — and you can be part of it: ✨ Volunteer & share your experience 🎙️ Apply to appear on the podcast 🧠 Take part in research opportunities We’re a small charity with a big mission — and we rely on community support to keep going. 👉 Find out more how to make a donation or fundraise for us here Instagram | Facebook | TikTok | Mailing List Hosted on Acast. See acast.com/privacy for more information. | |||
| When the Nurse Becomes the Patient | 01 oct. 2026 | 01:06:16 | |
Tara Hanley was used to being the nurse — not the patient. In this episode, Tara joins Barbara to share her journey from a persistent tongue ulcer and repeated biopsies to eventually hearing the words: “It’s cancer.” As a public health nurse and mum of two young children, Tara talks candidly about trying to stay positive for everyone around her while privately confronting her own fears. She shares how she prepared her children for surgery, why she recorded herself reading their favourite stories before treatment, and what it was like returning to work and everyday life afterwards. They also explore the parts of recovery that others don’t always see: scanxiety, lymphoedema, changes to eating and speech, survivor guilt, and the strange experience of everyone else moving on while you’re only beginning to process what happened. Warm, funny and deeply relatable, this is a conversation about becoming the patient, finding your new normal and recognising that you don’t have to have had the “worst” cancer experience for it to have changed your life. If you’ve been diagnosed with tongue cancer (or are supporting someone who has), you can find help here: 🌍 Website 🤝 Join support groups & mailing list: via the website 💌 Contact us: podcast@youngtonguesglobal.com We’re building this with our community — and you can be part of it: ✨ Volunteer & share your experience 🎙️ Apply to appear on the podcast 🧠 Take part in research opportunities We’re a small charity with a big mission — and we rely on community support to keep going. 👉 Find out more how to make a donation or fundraise for us here Instagram | Facebook | TikTok | Mailing List Hosted on Acast. See acast.com/privacy for more information. | |||
| When a Cold Isn’t Just a Cold | 27 sept. 2026 | 00:44:10 | |
What happens when an everyday cold meets a body that’s been through tongue cancer treatment? With Barbara away, Stef and Jamie have been left in charge of the podcast — which may or may not have been a terrible decision. After Stef is struck down by a particularly nasty cold, they get talking about something that probably feels very familiar to many people in the Young Tongues community: being ill after treatment just isn’t the same as it was before. Dry mouth gets drier. Swallowing becomes harder. Coughing, sneezing and clearing phlegm can suddenly become a logistical operation. Medication isn’t always easy to take. And when familiar pains return — particularly around the ear, jaw or neck — an innocent virus can also bring some very unwelcome thoughts about recurrence. Stef and Jamie talk candidly about the long-term realities of treatment, invisible side effects, fatigue, learning to give yourself permission to rest, and why friends and family may not always understand just how much effort goes into appearing “normal.” There are also saline sprays, emotional-support water bottles, disastrous food choices, humidifier experiments, “mouth lube” and considerably more discussion of bodily functions than Barbara would probably have authorised. It’s honest, occasionally gross, surprisingly funny and ultimately a reminder of why we talk about this stuff in the first place. Because however weird the side effect, however ridiculous the situation, and however many years it’s been since treatment — chances are, another Young Tongue gets it. If you’ve been diagnosed with tongue cancer (or are supporting someone who has), you can find help here: 🌍 Website 🤝 Join support groups & mailing list: via the website 💌 Contact us: podcast@youngtonguesglobal.com We’re building this with our community — and you can be part of it: ✨ Volunteer & share your experience 🎙️ Apply to appear on the podcast 🧠 Take part in research opportunities We’re a small charity with a big mission — and we rely on community support to keep going. 👉 Find out more how to make a donation or fundraise for us here Instagram | Facebook | TikTok | Mailing List Hosted on Acast. See acast.com/privacy for more information. | |||
| ACC: Finding Your Voice After Tongue Cancer | 17 sept. 2026 | 00:38:16 | |
Last week on The Young Tongues Podcast, Dr Patrick Ha helped us understand the science behind adenoid cystic carcinoma (ACC) – an incredibly rare form of cancer that can affect the tongue. This week, we hear what it can actually mean to live through it. Barbara is joined by Young Tongues member Sonya, who was diagnosed with ACC at the base of her tongue four years ago after experiencing jaw pain for several years and initially being treated for TMJ. Her eventual diagnosis came in terrifying circumstances, following a medical emergency that nearly cost Sonya her life. She went on to undergo a 100% glossectomy and laryngectomy, followed by radiotherapy, and today continues to live with and receive treatment for metastatic disease in her lungs. But this episode is about so much more than cancer treatment. Sonya speaks with remarkable openness – and plenty of her trademark humour – about losing her tongue and natural voice, learning to communicate differently, adjusting to a completely changed relationship with food, stepping away from a career that had been central to her identity, and figuring out who she was when productivity could no longer define her worth. A central part of Sonya's story is voice banking and virtual voicing. Before surgery, she had just a few weeks to discover that voice banking even existed and record as much of her voice as she could. Today, advances in AI allow Sonya to communicate using a cloned version of her own voice – technology she says has given her not only a voice, but confidence, independence and a sense of identity. If you’ve been diagnosed with tongue cancer (or are supporting someone who has), you can find help here: 🌍 Website 🤝 Join support groups & mailing list: via the website 💌 Contact us: podcast@youngtonguesglobal.com We’re building this with our community — and you can be part of it: ✨ Volunteer & share your experience 🎙️ Apply to appear on the podcast 🧠 Take part in research opportunities We’re a small charity with a big mission — and we rely on community support to keep going. 👉 Find out more how to make a donation or fundraise for us here Instagram | Facebook | TikTok | Mailing List Hosted on Acast. See acast.com/privacy for more information. | |||
| ACC: When Tongue Cancer Is Even Rarer | 10 sept. 2026 | 01:07:53 | |
Most conversations about tongue cancer – including many on The Young Tongues Podcast – focus on squamous cell carcinoma (SCC). But SCC isn't the only cancer that can affect the tongue. In this episode, we're turning our attention to an even rarer diagnosis: adenoid cystic carcinoma (ACC). As the number of people affected by ACC within the Young Tongues community grows, we wanted to better understand this very different disease and give our community reliable, accessible information from someone who knows it well. Barbara is joined by Dr Patrick Ha, Chief of the Division of Head and Neck Surgical Oncology at the University of California, San Francisco, whose research includes the molecular changes that occur in adenoid cystic carcinoma. Together, they take ACC right back to basics. What exactly is it? How can a cancer of the salivary glands affect the tongue? How does it differ from the much more common SCC – and why can diagnosis sometimes be so difficult? They explore how ACC behaves, including its tendency in some people to grow slowly while still carrying the possibility of recurrence or metastasis many years later. Patrick explains perineural invasion, staging, surgery, radiotherapy and why long-term surveillance can look very different for someone with ACC. They also tackle one of the hardest concepts for patients to come to terms with: why doctors may sometimes choose to monitor metastatic ACC rather than treat it immediately – and how balancing treatment against quality of life can make “watch and wait” the right clinical decision, even when psychologically it can be incredibly difficult. The conversation also covers prognosis and why population statistics don't necessarily tell an individual patient what their future will look like, before turning to research and some of the emerging science offering hope for more targeted ACC treatments in the future. 🎙️ This is the first of two Young Tongues episodes dedicated to ACC. In our next episode, we'll move from the clinical perspective to lived experience, as Young Tongues member Sonia shares her own story of living with ACC. 💬 Need Support? If you’ve been diagnosed with tongue cancer (or are supporting someone who has), you can find help here: 🌍 Website 🤝 Join support groups & mailing list: via the website 💌 Contact us: podcast@youngtonguesglobal.com We’re building this with our community — and you can be part of it: ✨ Volunteer & share your experience 🎙️ Apply to appear on the podcast 🧠 Take part in research opportunities We’re a small charity with a big mission — and we rely on community support to keep going. 👉 Find out more how to make a donation or fundraise for us here 📲 Follow & Connect Instagram | Facebook | TikTok | Mailing List Hosted on Acast. See acast.com/privacy for more information. | |||
| Scanxiety: Waiting for the Other Shoe to Drop | 03 sept. 2026 | 01:07:36 | |
Scanxiety. If you’ve been through cancer, chances are you know the feeling all too well. In this panel episode of The Young Tongues Podcast, Barbara is joined by Young Tongues members Kelly and Noah for an open conversation about the anxiety that can surround scans, check-ups and the possibility of recurrence. Together, they explore what scanxiety actually feels like – from the physical tension and hypervigilance to analysing every new ache, pain or change in your body. They talk about the strange limbo of living from one appointment to the next, the agonising wait for results, and how a previous recurrence or difficult diagnosis experience can fundamentally change the way you respond to reassurance and statistics. Kelly shares the additional complexity of scanxiety after experiencing a recurrence that was discovered on a scan, while Noah reflects on being just a few years out from treatment and learning how to balance vigilance with not allowing fear to take over his life. Barbara brings the perspective of being seven years post-treatment and how her relationship with follow-up appointments – and her own body – has gradually changed over time. The panel also discusses access to scan results, patient portals, communication from healthcare teams, advocating for what you need from your clinicians, and the mixed emotions that come when appointments finally become less frequent. Most importantly, this is a conversation about learning to live in the space between check-ups: recognising when something genuinely needs investigating while finding ways to stop cancer from occupying every corner of your life. 💬 Need Support? If you’ve been diagnosed with tongue cancer (or are supporting someone who has), you can find help here: 🌍 Website 🤝 Join support groups & mailing list: via the website 💌 Contact us: podcast@youngtonguesglobal.com We’re building this with our community — and you can be part of it: ✨ Volunteer & share your experience 🎙️ Apply to appear on the podcast 🧠 Take part in research opportunities We’re a small charity with a big mission — and we rely on community support to keep going. 👉 Find out more how to make a donation or fundraise for us here 📲 Follow & Connect Instagram | Facebook | TikTok | Mailing List Hosted on Acast. See acast.com/privacy for more information. | |||
| The Hidden Cost of Cancer: Understanding Financial Toxicity | 13 août 2026 | 01:08:16 | |
In this episode of the Young Tongues Podcast, Barbara sits down with Ashleigh Sharman, a mixed methods researcher at the University of Sydney and Fellow in Survivorship and Financial Toxicity with the Clinical Oncology Society of Australia, to explore one of the most overlooked consequences of cancer: financial toxicity. While treatment side effects are often discussed, the financial impact of cancer rarely receives the same attention. Together, Barbara and Ashleigh unpack what financial toxicity really means, from the immediate costs of treatment to the hidden, long-term effects on employment, careers, pensions, relationships and mental health. Drawing on her research in head and neck cancer survivorship, Ashleigh explains why people affected by head and neck cancers can face unique financial challenges, including the ongoing costs of dental care, speech therapy, rehabilitation, travel, and returning to work after life-changing treatment. The conversation also explores how financial stress influences recovery, why many people delay asking for help, and how current healthcare and welfare systems often fail to support survivors once treatment has ended. Find out more about Dr Ashleigh Sharman's work: • ResearchGate: https://www.researchgate.net/profile/Ashleigh_Sharman2 • ORCID: https://orcid.org/0000-0002-9342-5061 • Google Scholar: https://scholar.google.com.au/citations?user=VfdRWAgAAAAJ&hl=en 💬 Need Support? If you’ve been diagnosed with tongue cancer (or are supporting someone who has), you can find help here: 🌍 Website 🤝 Join support groups & mailing list: via the website 💌 Contact us: podcast@youngtonguesglobal.com We’re building this with our community — and you can be part of it: ✨ Volunteer & share your experience 🎙️ Apply to appear on the podcast 🧠 Take part in research opportunities We’re a small charity with a big mission — and we rely on community support to keep going. 👉 Find out more how to make a donation or fundraise for us here 📲 Follow & Connect Instagram | Facebook | TikTok | Mailing List Hosted on Acast. See acast.com/privacy for more information. | |||
| "Just Be Grateful You're Alive" | 06 août 2026 | 01:10:22 | |
In this candid catch-up episode, Barbara, Stef and Jamie begin with plenty of laughter—sharing stories about theatre, summer adventures, travel plans, social media algorithms and the realities of trying to stay cool during record-breaking heatwaves. But as always, the conversation soon turns to life after tongue cancer. Jamie opens up about the heartbreaking struggle of trying to access restorative dental treatment following radiation therapy, exposing the frustrating realities of the US healthcare and insurance system. Together, the trio discuss the long-term impact cancer treatment can have on oral health, why restorative care is about far more than appearance, and the emotional toll of having to continually fight for care. Barbara reflects on speaking to healthcare communication professionals about what meaningful patient involvement should look like, sharing why patient organisations deserve to be treated as valued partners rather than an afterthought. The conversation explores research quality, safeguarding, tokenism and the importance of involving patients from the very beginning of research projects. Stef marks the anniversary of her diagnosis by reflecting on finally being believed after months of being dismissed because she was "too young" for tongue cancer. 💬 Need Support? If you’ve been diagnosed with tongue cancer (or are supporting someone who has), you can find help here: 🌍 Website 🤝 Join support groups & mailing list: via the website 💌 Contact us: podcast@youngtonguesglobal.com We’re building this with our community — and you can be part of it: ✨ Volunteer & share your experience 🎙️ Apply to appear on the podcast 🧠 Take part in research opportunities We’re a small charity with a big mission — and we rely on community support to keep going. 👉 Find out more how to make a donation or fundraise for us here 📲 Follow & Connect Instagram | Facebook | TikTok | Mailing List Hosted on Acast. See acast.com/privacy for more information. | |||
| Pregnancy After Tongue Cancer | 03 août 2026 | 01:11:00 | |
Can you have a healthy pregnancy after treatment for tongue cancer? What questions should you ask your medical team? And how do you cope with the fear of recurrence while preparing to become a parent? In this special panel discussion, Barbara is joined by Young Tongues community members Nat, Chloe and Sarah-Jane ("SJ") to share their honest experiences of pregnancy after tongue cancer. Together, they explore the conversations they wish had happened at diagnosis, the uncertainty surrounding fertility and pregnancy after treatment, the emotional impact of becoming pregnant after cancer, and the anxieties that can accompany every stage of the journey. The discussion also highlights the importance of self-advocacy, the value of peer support, and the urgent need for more research and better clinical guidance for younger adults affected by tongue cancer. Whether you're thinking about starting a family now, in the future, or simply want to better understand this often-overlooked topic, this episode offers reassurance, practical insights and the comfort of hearing from others who have walked the same path. 💬 Need Support? If you’ve been diagnosed with tongue cancer (or are supporting someone who has), you can find help here: 🌍 Website 🤝 Join support groups & mailing list: via the website 💌 Contact us: podcast@youngtonguesglobal.com We’re building this with our community — and you can be part of it: ✨ Volunteer & share your experience 🎙️ Apply to appear on the podcast 🧠 Take part in research opportunities We’re a small charity with a big mission — and we rely on community support to keep going. 👉 Find out more how to make a donation or fundraise for us here 📲 Follow & Connect Instagram | Facebook | TikTok | Mailing List Hosted on Acast. See acast.com/privacy for more information. | |||
| When Cancer Changes Everything | 24 juil. 2026 | 00:58:39 | |
When Dobie was diagnosed with tongue cancer at just 29 years old, Chaya's life changed overnight. In this deeply personal conversation, she shares the realities of supporting her husband through surgery, recurrence, clinical trials and, ultimately, the heartbreaking loss of the love of her life. Together, Barbara and Chaya explore the often-overlooked experiences of partners and caregivers, discussing advocacy, hope, grief, and the importance of simply showing up for those facing cancer. A powerful and compassionate episode that reminds us cancer affects the whole family. Please note: This episode includes discussions about advanced cancer, end-of-life care, bereavement and grief. If you’ve been diagnosed with tongue cancer (or are supporting someone who has), you can find help here: 🌍 Website 🤝 Join support groups & mailing list: via the website 💌 Contact us: podcast@youngtonguesglobal.com We’re building this with our community — and you can be part of it: ✨ Volunteer & share your experience 🎙️ Apply to appear on the podcast 🧠 Take part in research opportunities We’re a small charity with a big mission — and we rely on community support to keep going. 👉 Find out more how to make a donation or fundraise for us here 📲 Follow & Connect Instagram | Facebook | TikTok | Mailing List Hosted on Acast. See acast.com/privacy for more information. | |||
| The Scars That Made Me | 09 juil. 2026 | 00:56:02 | |
Ten years after being diagnosed with stage IV tongue cancer, Roz Salaguit reflects on the journey that changed every part of her life. What began as a tongue ulcer dismissed as "nothing serious" quickly became an aggressive cancer requiring extensive surgery, chemotherapy and radiotherapy. Roz shares the terrifying reality of waking up after an unexpected mandible split surgery, learning to speak and eat again, coping with visible changes to her appearance, and enduring the long-term effects that continue a decade later. In this deeply honest conversation, Roz also discusses the emotional impact of losing teeth, dating after cancer, her experience managing pain with medical cannabis, and the importance of finding a community that truly understands. Through it all, her unwavering determination and belief that "my purpose is bigger than my pain" shines through. This is a powerful episode about resilience, identity, and proving that life after tongue cancer can still be full of hope. If you’ve been diagnosed with tongue cancer (or are supporting someone who has), you can find help here: 🌍 Website 🤝 Join support groups & mailing list: via the website 💌 Contact us: podcast@youngtonguesglobal.com We’re building this with our community — and you can be part of it: ✨ Volunteer & share your experience 🎙️ Apply to appear on the podcast 🧠 Take part in research opportunities We’re a small charity with a big mission — and we rely on community support to keep going. 👉 Find out more how to make a donation or fundraise for us here 📲 Follow & Connect Instagram | Facebook | TikTok | Mailing List Hosted on Acast. See acast.com/privacy for more information. | |||
| The Things We Don't Talk About After Cancer | 02 juil. 2026 | 01:00:26 | |
Life after tongue cancer doesn't end when treatment finishes and neither do the challenges. In this honest and wide-ranging conversation, Barbara and Stef reflect on the realities of long-term survivorship that often go unspoken. From heat sensitivity, lymphedema and swallowing difficulties to chronic fatigue, brain fog and the daily balancing act of self-care, they explore what it really means to live beyond a cancer diagnosis. The episode also takes a deeper look at the emotional side of survivorship, discussing delayed grief, burnout within patient advocacy, and how supporting others while living with your own diagnosis can take an invisible toll. Barbara and Stef share their own experiences of navigating identity, finding balance, and learning that healing is rarely a straight line. They also pay tribute to beloved Young Tongues community member Mus, reflecting on his extraordinary resilience, the impact of clinical trials, and the legacy he leaves behind. Along the way, Barbara shares exciting updates on the future of Young Tongues, the Patient Hub, and her new role as Interim Chair of the Head and Neck Cancer Coalition UK. This episode is a reminder that survivorship is about far more than being cancer-free—it's about learning to live, grieve, grow and keep moving forward together. If you’ve been diagnosed with tongue cancer (or are supporting someone who has), you can find help here: 🌍 Website 🤝 Join support groups & mailing list: via the website 💌 Contact us: podcast@youngtonguesglobal.com We’re building this with our community — and you can be part of it: ✨ Volunteer & share your experience 🎙️ Apply to appear on the podcast 🧠 Take part in research opportunities We’re a small charity with a big mission — and we rely on community support to keep going. 👉 Find out more how to make a donation or fundraise for us here 📲 Follow & Connect Instagram | Facebook | TikTok | Mailing List Hosted on Acast. See acast.com/privacy for more information. | |||
| Life After Tongue Cancer: Finding a New Normal | 25 juin 2026 | 00:59:08 | |
Nine years after her tongue cancer diagnosis, Sinead Keane joins Barbara for an honest conversation about what happens after treatment ends. From months of being told she was "too young and too healthy" to have cancer, through major surgery and radiation, Sinéad shares the realities of diagnosis, recovery, and learning to live in a body that has changed forever. Together, they explore the long-term impact of tongue cancer on speech, eating, friendships, work, relationships, fitness, and mental health. They discuss the loneliness that can follow treatment, navigating the workplace with a speech difference, adapting to fatigue, and why healing is measured in years - bnot months. Despite the challenges, this is ultimately a conversation filled with hope. Sinead reflects on rediscovering joy, rebuilding confidence, returning to the gym, and embracing a new version of herself. If you’ve been diagnosed with tongue cancer (or are supporting someone who has), you can find help here: 🌍 Website 🤝 Join support groups & mailing list: via the website 💌 Contact us: podcast@youngtonguesglobal.com We’re building this with our community — and you can be part of it: ✨ Volunteer & share your experience 🎙️ Apply to appear on the podcast 🧠 Take part in research opportunities We’re a small charity with a big mission — and we rely on community support to keep going. 👉 Find out more how to make a donation or fundraise for us here 📲 Follow & Connect Instagram | Facebook | TikTok | Mailing List Hosted on Acast. See acast.com/privacy for more information. | |||
| From Patient Voice to Research Impact | 04 juin 2026 | 01:06:23 | |
After a brief podcast hiatus, Barbara, Steph and Jamie reunite to catch up on a busy month filled with advocacy, conferences, research collaborations and growing awareness of tongue cancer around the world. The episode begins with updates from all three hosts, including Steph’s attendance at ASCO, one of the world’s largest oncology conferences, where she represented the patient voice alongside researchers, clinicians and industry partners. The hosts also reflect on recent developments in head and neck cancer research, discussing the excitement surrounding emerging treatment approaches while exploring the challenges of interpreting scientific breakthroughs through media headlines. They highlight the importance of balancing hope with realism and explain why even incremental improvements in treatment can have a meaningful impact on future patient outcomes. If you’ve been diagnosed with tongue cancer (or are supporting someone who has), you can find help here: 🌍 Website 🤝 Join support groups & mailing list: via the website 💌 Contact us: podcast@youngtonguesglobal.com We’re building this with our community — and you can be part of it: ✨ Volunteer & share your experience 🎙️ Apply to appear on the podcast 🧠 Take part in research opportunities We’re a small charity with a big mission — and we rely on community support to keep going. 👉 Find out more how to make a donation or fundraise for us here 📲 Follow & Connect Instagram | Facebook | TikTok | Mailing List Hosted on Acast. See acast.com/privacy for more information. | |||
| Living with Uncertainty | 14 mai 2026 | 00:46:23 | |
In this deeply reflective and emotional episode of the Young Tongues podcast, Barbara and Steph come together for an honest conversation about grief, recurrence anxiety, survivorship and what it means to keep living fully after a tongue cancer diagnosis. The discussion begins with the recent loss of Naomi — a much-loved long-standing member of the Young Tongues community whose recurrence happened more than five years after treatment. Barbara shares the personal impact of losing someone who had been part of the community since the very beginning, while both hosts openly acknowledge the fear and emotional spirals that news like this can trigger for survivors navigating their own recovery journeys. If you’ve been diagnosed with tongue cancer (or are supporting someone who has), you can find help here: 🌍 Website 🤝 Join support groups & mailing list: via the website 💌 Contact us: podcast@youngtonguesglobal.com We’re building this with our community — and you can be part of it: ✨ Volunteer & share your experience 🎙️ Apply to appear on the podcast 🧠 Take part in research opportunities We’re a small charity with a big mission — and we rely on community support to keep going. 👉 Find out more how to make a donation or fundraise for us here 📲 Follow & Connect Instagram | Facebook | TikTok | Mailing List Hosted on Acast. See acast.com/privacy for more information. | |||
| Living Between Scans - Amelia's Story | 07 mai 2026 | 00:47:56 | |
In this deeply honest and emotional follow-up conversation, Amelia returns to the Young Tongues podcast to update listeners on what has happened since her first appearance in Season 2. Following her initial tongue cancer diagnosis, surgery and radiotherapy, Amelia shares how she has since faced multiple recurrences in rapid succession. If you’ve been diagnosed with tongue cancer (or are supporting someone who has), you can find help here: 🌍 Website 🤝 Join support groups & mailing list: via the website 💌 Contact us: podcast@youngtonguesglobal.com We’re building this with our community — and you can be part of it: ✨ Volunteer & share your experience 🎙️ Apply to appear on the podcast 🧠 Take part in research opportunities We’re a small charity with a big mission — and we rely on community support to keep going. 👉 Find out more how to make a donation or fundraise for us here 📲 Follow & Connect Instagram | Facebook | TikTok | Mailing List Hosted on Acast. See acast.com/privacy for more information. | |||
| Diagnosis: coping with uncertainty and breaking bad news | 30 avr. 2026 | 01:24:03 | |
In this first panel episode of the Young Tongues Podcast, Barbara is joined by Rachael and Kaitlyn to explore the emotional reality of diagnosis. From the long wait between biopsy and results to the moment cancer becomes real, their stories reveal how uncertainty, fear, and shock take hold in different ways. Whether delivered in a five-minute phone call or a face-to-face consultation, the way bad news is given shapes how it’s understood and remembered. As the conversation unfolds, the panel reflects on the overwhelming nature of treatment information, the gap between clinical explanations and lived experience, and the importance of support during this time. If you’ve been diagnosed with tongue cancer (or are supporting someone who has), you can find help here: 🌍 Website 🤝 Join support groups & mailing list: via the website 💌 Contact us: podcast@youngtonguesglobal.com We’re building this with our community — and you can be part of it: ✨ Volunteer & share your experience 🎙️ Apply to appear on the podcast 🧠 Take part in research opportunities We’re a small charity with a big mission — and we rely on community support to keep going. 👉 Find out more how to make a donation or fundraise for us here 📲 Follow & Connect Instagram | Facebook | TikTok | Mailing List Hosted on Acast. See acast.com/privacy for more information. | |||
| You’re All Good Now… Right? | 23 avr. 2026 | 00:46:54 | |
In this episode, Barbara, Jamie and Stef dive into something that doesn’t get talked about enough: what actually happens after treatment ends. You reach that milestone and everyone around you breathes a sigh of relief. You’re told to get back to normal. Move on. Be grateful. But it’s not that simple. We talk about the reality of life after tongue cancer: the anxiety that lingers between scans, the physical aftermath your body is still dealing with, and the strange identity shift that comes when the “big scary thing” is no longer front and centre — but never fully gone. From navigating follow-ups and healthcare systems, to learning how to trust your body again (or not), this is an honest conversation about survivorship that goes beyond the word “remission.” Because being “all clear” doesn’t mean everything is. If you’ve been diagnosed with tongue cancer (or are supporting someone who has), you can find help here: 🌍 Website 🤝 Join support groups & mailing list: via the website 💌 Contact us: podcast@youngtonguesglobal.com We’re building this with our community — and you can be part of it: ✨ Volunteer & share your experience 🎙️ Apply to appear on the podcast 🧠 Take part in research opportunities We’re a small charity with a big mission — and we rely on community support to keep going. 👉 Find out more how to make a donation or fundraise for us here 📲 Follow & Connect Instagram | Facebook | TikTok | Mailing List Hosted on Acast. See acast.com/privacy for more information. | |||
| A Second Opinion Changed Everything — Laura’s Story | 16 avr. 2026 | 01:13:37 | |
In this episode, we’re joined by Laura (aka Dizz), one of the original members of Young Tongues, a trustee, and someone who has been part of this journey from the very beginning. Laura shares her full story — from the first symptoms that didn’t seem like anything serious, to a devastating diagnosis and being told she may never speak or swallow again. What follows is a journey shaped by second opinions, a groundbreaking clinical trial, and an extraordinary amount of resilience. If you’ve been diagnosed with tongue cancer (or are supporting someone who has), you can find help here: 🌍 Website 🤝 Join support groups & mailing list: via the website 💌 Contact us: podcast@youngtonguesglobal.com We’re building this with our community — and you can be part of it: ✨ Volunteer & share your experience 🎙️ Apply to appear on the podcast 🧠 Take part in research opportunities We’re a small charity with a big mission — and we rely on community support to keep going. 👉 Find out more how to make a donation or fundraise for us here 📲 Follow & Connect Instagram | Facebook | TikTok | Mailing List Hosted on Acast. See acast.com/privacy for more information. | |||
| Immunotherapy, Uncertainty & Hope: A Conversation with Professor Kevin Harrington | 09 avr. 2026 | 00:51:43 | |
In this episode, we’re joined by Professor Kevin Harrington, one of the world’s leading experts in head and neck cancer, to break down what’s really changing in tongue cancer treatment, and what it means for patients today. We talk about the rise in younger patients without clear risk factors, why we still don’t fully understand why this is happening, and what that uncertainty means for the future. We also dive into immunotherapy: what it actually is, how it works, and why it’s starting to change outcomes in ways that simply weren’t possible before. 💬 Need Support? If you’ve been diagnosed with tongue cancer (or are supporting someone who has), you can find help here: 🌍 Website 🤝 Join support groups & mailing list: via the website 💌 Contact us: podcast@youngtonguesglobal.com We’re building this with our community — and you can be part of it: ✨ Volunteer & share your experience 🎙️ Apply to appear on the podcast 🧠 Take part in research opportunities We’re a small charity with a big mission — and we rely on community support to keep going. 👉 Find out more how to make a donation or fundraise for us here 📲 Follow & Connect Instagram | Facebook | TikTok | Mailing List Hosted on Acast. See acast.com/privacy for more information. | |||
| New Season, New Co-Host, Same Chaos | 02 avr. 2026 | 00:26:08 | |
Season 3 is officially here and we’re coming back bigger, louder, and with a brand new co-host. In this episode, we welcome Stef as our third co-host, reflect on how Young Tongues began, and share what’s coming this season — from honest conversations and expert guests to your stories. We also cover the growth of our global community, why fundraising matters, and exciting updates across research, policy and future plans, including building a Patient Hub to make information clearer and more accessible. We also explore what it means to live beyond diagnosis — the reality, the humour, and everything in between. If you’ve been diagnosed with tongue cancer (or are supporting someone who has), you can find help here: 🌍 Website 🤝 Join support groups & mailing list: via the website 💌 Contact us: podcast@youngtonguesglobal.com We’re building this with our community — and you can be part of it: ✨ Volunteer & share your experience 🎙️ Apply to appear on the podcast 🧠 Take part in research opportunities We’re a small charity with a big mission — and we rely on community support to keep going. 👉 Find out more how to make a donation or fundraise for us here 📲 Follow & Connect Instagram | Facebook | TikTok | Mailing List Hosted on Acast. See acast.com/privacy for more information. | |||
| That’s a Wrap! | 14 août 2025 | 00:53:44 | |
In the final episode of Season 2 of the Young Tongues Podcast, hosts Barbara and Jamie revisit the highlights of the past year. They reflect on the podcast’s accomplishments, sharing their favorite moments, standout guests and the most impactful interviews. The conversation turns personal as they explore childhood memories and cultural roots—Barbara’s in Switzerland and Jamie’s in San Diego. They also take a moment to thank their audience and acknowledge key contributors, including a special segment recognising individuals with honorary awards. The season wraps up with an open invitation for listener suggestions as they look ahead to Season 3. Hosted on Acast. See acast.com/privacy for more information. | |||
| Amelia's Story | 01 août 2025 | 00:59:26 | |
In this episode of the Young Tongues Podcast, host Barbara sits down with Amelia, a fellow tongue cancer patient and mother of three, to share her powerful and deeply personal journey. Amelia's story begins in May 2024 with what seemed like a minor ulcer on her tongue—an issue initially dismissed by her dentist. Trusting her instincts, she sought a second opinion from her GP, leading to a biopsy and a life-changing diagnosis of tongue cancer. Amelia walks us through the whirlwind that followed: a partial glossectomy, neck dissection, and a radial forearm free flap reconstruction. She opens up about the difficult road to recovery, including the unexpected challenge of vocal cord palsy and the emotional weight of radiotherapy. Despite ongoing complications and the need for additional surgery, Amelia remains resilient. She speaks candidly about the strength she draws from her support system and her unwavering determination to live life to the fullest. The episode closes as she looks ahead to an upcoming procedure, facing the future with courage and hope. Hosted on Acast. See acast.com/privacy for more information. | |||
| Expert Guest: Professor Camilla Dawson | 11 juil. 2025 | 01:05:32 | |
In this episode of the Young Tongues Podcast, host Barbara is joined by Professor Camilla Dawson, a speech and language consultant. They explore Camilla’s professional background, her journey into speech therapy, and her deep commitment to supporting cancer patients. The discussion covers best practices for speech and language support before and after treatments such as surgery and radiotherapy. Key topics include the importance of meeting the care team prior to surgery, managing speech and swallowing difficulties and the effects of radiation on the muscles of the tongue and throat. Barbara and Camilla also address the emotional and psychological aspects of recovery, touching on issues such as intimacy after treatment and the concept of liminality. They highlight the value of personalised care plans and the ongoing need for innovation and research in the field. The episode concludes with an insightful look at tracheostomies, including how patients can prepare for them both mentally and physically. Hosted on Acast. See acast.com/privacy for more information. | |||
| Amy's Story | 04 juil. 2025 | 01:00:16 | |
In this powerful episode of the Young Tongues Podcast, Barbara sits down with Amy, a fellow tongue cancer survivor, as she recounts her deeply personal journey from diagnosis to recovery. Amy opens up about life before cancer: her career, family, and passions - and the moment an unexpected ulcer turned into a stage three diagnosis. She walks us through the physical and emotional trials of surgery and radiation and the essential role of community and workplace support in her healing. Amy also shares how she’s navigating her return to work and adapting to new health realities. This episode is a candid, hopeful, and inspiring look at resilience in the face of life-altering illness. Hosted on Acast. See acast.com/privacy for more information. | |||
| Elfie's Story | 27 juin 2025 | 00:48:45 | |
In this episode of the Young Tongues Podcast, Barbara speaks with Elfie, a fellow tongue cancer survivor whose remarkable story is one of resilience and reinvention. Elfie opens up about her life-changing journey—from surviving a traumatic accident in her twenties that led to the amputation of her left leg, to facing a tongue cancer diagnosis years later. She shares the emotional and physical toll of treatment, including the loss of taste and speech difficulties, and how she found strength through it all. Despite multiple surgeries and setbacks, Elfie’s defiant spirit shines through. Post-recovery, she embraced challenges like rock climbing and axe throwing, redefining what’s possible after cancer. She also discusses her recent contribution to the book Unleashing the Courageous Feminine, a therapeutic milestone and a celebration of her voice. The episode concludes with a heartfelt conversation about the power of support groups, raising awareness, and holding onto hope for life after cancer. Hosted on Acast. See acast.com/privacy for more information. | |||
| Expert Guest: Krishna Suchak | 20 juin 2025 | 00:35:30 | |
In this episode of the Young Tongues Podcast, Barbara interviews Krishna Suchak, a consultant pathologist. Krishna explains her work, describing what a pathologist does, including analyzing tissue and fluid samples to diagnose cancer. She details the workflow from biopsy to diagnosis, the interpretation process, and how pathologists work with multidisciplinary teams. Krishna also discusses the significance of clear margins in pathology reports. Listener questions are addressed on topics such as genetic testing, the risk of biopsies spreading cancer, and the method of interpreting unusual looking cells in lymph nodes. The episode concludes with a focus on the future of cancer diagnosis and the role of primary care education in improving early detection. Hosted on Acast. See acast.com/privacy for more information. | |||
| Lynsi's Story | 13 juin 2025 | 01:11:19 | |
In this episode of the Young Tongues Podcast, Barbara talks with Lynsi from Bedford, UK, about her journey with head and neck cancer. Diagnosed at 31, Lynsi shares her experience through multiple surgeries—including flap failures—and chemo-radiation after a recurrence. She discusses the challenges of moving between NHS trusts, the importance of self-advocacy, and how treatment affected her relationship with food and body image. Lynsi also opens up about the emotional impact of potential fertility loss and her hopes for the future. Hosted on Acast. See acast.com/privacy for more information. | |||
| Susan's Story | 06 juin 2025 | 00:59:48 | |
In this episode of the Young Tongues Podcast, Barbara speaks with Susan, one of the founding members of the support group for young people with tongue cancer. Susan recounts her journey, which began with a small, painless sore on her tongue and led to a series of misdiagnoses over nine months. Eventually diagnosed with stage four tongue cancer, she underwent intensive treatment—including a hemiglossectomy, neck dissection, chemotherapy, and radiation—all during the height of the Covid-19 pandemic. Susan opens up about the profound emotional and physical challenges she faced, from severe weight loss and "cancer anorexia" to the psychological toll of the illness. She highlights the critical role of therapy, self-advocacy, and the support she found within the Young Tongues community. Now nearly four years cancer-free, Susan reflects on how the experience reshaped her outlook on life and emotional well-being, and shares her ongoing dedication to supporting others in her role as a trustee of Young Tongues. Hosted on Acast. See acast.com/privacy for more information. | |||
| Resilience and Reflection: Barbara & Jamie Reconnect | 30 mai 2025 | 00:49:26 | |
In this heartfelt episode of the Young Tongues Podcast, co-hosts Barbara and Jamie reunite to reflect on both personal and professional milestones. Jamie marks five years since her cancer diagnosis, while Barbara candidly shares her ongoing journey with chronic fatigue syndrome and mental health challenges. The conversation also celebrates key achievements, including Barbara’s recent appearances at major medical conferences and the launch of Unmuted, Young Tongues’ inaugural Annual Impact event. Together, they spotlight persistent issues facing tongue cancer patients - particularly the need for better biopsy pain management - and outline upcoming efforts to gather patient data to drive systemic change. The episode closes with a health update on former guest and friend, Molly, as she navigates increasingly limited treatment options. Barbara and Jamie also announce a short summer break and extend an invitation to potential sponsors looking to support the podcast’s mission. Hosted on Acast. See acast.com/privacy for more information. | |||
| Molly's Story | 23 mai 2025 | 01:00:24 | |
In this episode of the Young Tongues Podcast, host Barbara sits down with her friend and fellow Young Tongues original, Molly—an adventurous veterinarian from Kansas. Molly shares her deeply personal journey with tongue cancer, from her initial diagnosis in 2020 to her current experience living with chronic cancer. She opens up about her treatment regimen, emotional challenges, and the crucial role of self-advocacy and social support. Molly highlights the importance of empathy and understanding from loved ones and healthcare providers alike. She also reflects on the power of living in the moment and embracing the time she has. Through her candid and courageous story, Molly offers insight, strength, and encouragement to others navigating life with chronic cancer. Hosted on Acast. See acast.com/privacy for more information. | |||
| Rachael's Story | 16 mai 2025 | 00:54:20 | |
In this episode of the Young Tongues Podcast, Barbara sits down with Rachel Corby, a fellow tongue cancer survivor, to share her powerful story of diagnosis, treatment, and healing. Rachel opens up about receiving her diagnosis shortly after giving birth. She highlights the challenges of undergoing surgery and radiation while caring for two young children. She candidly discusses the physical and emotional toll of treatment, including the impact on her ability to eat and speak, and how she adapted to those changes. Rachel also reflects on the vital support she received from her family and the sense of connection and strength she found through the Young Tongues community. Throughout the conversation, she emphasizes the importance of self-advocacy, shares the lessons cancer has taught her, and describes how her outlook on life has evolved. Hosted on Acast. See acast.com/privacy for more information. | |||
| Ben's Story | 09 mai 2025 | 00:57:13 | |
In this episode of the Young Tongues Podcast, host Barbara interviews Ben, one of the original members of the peer support group. Ben shares his journey from initial diagnosis of tongue cancer to his extensive treatment and the long-term side effects he has endured. He discusses the moment he realized something was wrong, the process of his diagnosis, and the multitude of treatments he underwent, including the removal of 80% of his tongue and subsequent reconstruction. Ben elaborates on the challenges of radiation, describing the physical and emotional toll it took. He also explores the lasting impact on his speech and how he manages social interactions when people struggle to understand him. Beyond speech, the podcast delves into Ben's challenges with eating and maintaining oral health, especially dealing with painful high-fluoride toothpaste post-radiation. The discussion also covers managing radiation-induced fibrosis in his neck, the importance of ongoing physiotherapy, and pain management strategies. Finally, the episode highlights Ben's active involvement in creative arts and community support, exemplifying his resilience and generous spirit in helping fellow cancer survivors. Hosted on Acast. See acast.com/privacy for more information. | |||
| Jarrod's Story | 02 mai 2025 | 00:49:12 | |
In this episode of the Young Tongues Podcast, Barbara speaks with Jarrod from Melbourne, Australia. Jarrod shares his personal story of being diagnosed with tongue cancer at age 35, the challenges he faced during diagnosis, treatment, and recovery, and how a strong medical background and support from family helped him persevere. He underwent extensive surgery, radiation, and chemotherapy, experiencing severe side effects but ultimately emerged stronger, focusing on family and health. Jared now aims to support others by sharing his journey and working with organizations like Head and Neck Cancer Australia. His remarkable recovery and resilience serve as an inspiration for others. Hosted on Acast. See acast.com/privacy for more information. | |||
| Janice's Story | 25 avr. 2025 | 00:45:50 | |
In this episode of the Young Tongues Podcast, host Barbara interviews Janice Koh, a well-known actress and tongue cancer survivor. Janice shares her personal journey, from her diagnosis in July 2022 and the impact it had on her life and career, to her treatment and recovery process. She highlights the emotional and physical challenges she faced, including multiple surgeries and chemo-radiation, and speaks about the importance of a robust support system and maintaining a sense of agency. Janice also discusses her return to the stage, the need for new skills, and the psychological adjustments required. She reflects on her identity post-diagnosis and shares her hopes for the future, emphasizing the importance of living in the present and embracing life's uncertainties. Hosted on Acast. See acast.com/privacy for more information. | |||
| Joe's Story | 18 avr. 2025 | 00:59:41 | |
In this episode of the Young Tongues Podcast, Barbara sits down with Joe Butler, who shares his inspiring journey 13 years after being diagnosed with tongue cancer. Diagnosed at the age of 27 during a routine dental checkup, Joe discusses the shock of his diagnosis, the rigorous treatments of surgery, radiotherapy, and chemotherapy, and the emotional and physical challenges he faced. Now a father of four and an ambassador for the Mouth Cancer Foundation, Joe reflects on his recovery, the importance of healthcare professional awareness, and his hopes for increased cancer detection and support for future patients. He also touches on the long-term side effects he manages and the vital role his personal support system played in his recovery. Hosted on Acast. See acast.com/privacy for more information. | |||
| Kelly & Tom's Story | 10 avr. 2025 | 01:05:51 | |
In this episode Barbara interviews Kelly and her fiancé Tom about their experience with Kelly's tongue cancer diagnosis and treatment. Kelly, who is based in Pittsburgh and works as an administrative professional, shares her journey through two bouts of tongue cancer, highlighting the surgeries, treatments, and their impact on her life. Tom provides a caretaker's perspective, detailing the challenges and his role in supporting Kelly. The conversation explores the emotional and logistical hurdles faced by both as they navigate through medical treatments, including chemo and radiation, and the importance of having a strong support system. The couple discusses overcoming obstacles, such as dietary changes and communication difficulties, emphasizing their strengthened relationship and resilience. The episode offers valuable insights into the realities of battling tongue cancer and the intricate dynamics between patients and their loved ones. Hosted on Acast. See acast.com/privacy for more information. | |||
| Mus's Story Part 2 | 04 avr. 2025 | 01:18:19 | |
In this episode of the Young Tongues Podcast, Barbara welcomes back fellow Young Tongue Mus. Mus shares an update on his cancer journey, detailing the progression of his symptoms, diagnosis, and the treatments he's undergoing, including immunotherapy and participation in a clinical trial. Despite setbacks and complications, Mus remains determined to maintain a normal life, including celebrating his big birthday with a grand party. Barbara and Mus also discuss the importance of community support, self-advocacy in medical settings, and the shifting dynamics with friends and family in light of a chronic cancer diagnosis. The episode highlights the significance of advancements in cancer treatment and the collective power of patient communities. Hosted on Acast. See acast.com/privacy for more information. | |||
| Lauren's story | 21 févr. 2025 | 01:13:45 | |
In this episode of the Young Tongues podcast, host Barbara interviews Lauren, a member of their community. Lauren, a 39-year-old mother of three from Virginia, shares her journey with tongue cancer. Diagnosed in late 2021 after initially thinking she had an ear infection, Lauren details her painful experiences, multiple surgeries, and the severe challenges posed by radiation and chemotherapy. Despite these hardships, she talks about finding moments of joy and support through community and family. Lauren also highlights the emotional and ongoing physical impacts of her treatment, including dry mouth and loss of taste. The conversation delves deep into the personal and emotional toll of cancer, while offering insights and hope to others facing similar struggles. Hosted on Acast. See acast.com/privacy for more information. | |||
| Pete's Story | 14 févr. 2025 | 00:57:07 | |
In this episode of the Young Tongues podcast, Barbara sits down with Pete Jackson as he shares his journey with tongue cancer. Pete provides an intimate account of his life before and after diagnosis, detailing the early symptoms, the diagnostic process, and the challenges of treatment. Despite the fears and uncertainties, his resilience, positive mindset, and strong support network played a vital role in his recovery. He emphasises the power of peer support, highlighting how the Young Tongues community and other social connections were instrumental in navigating both the emotional and logistical aspects of treatment. Pete concludes with a heartfelt message of gratitude for the unwavering support of his community and the NHS. Hosted on Acast. See acast.com/privacy for more information. | |||
| The Radiotherapy Decision | 07 févr. 2025 | 00:58:53 | |
In this episode of the Young Tongues podcast, Barbara and Jamie catch up on life events and reflect on recent activities, including World Cancer Day. A significant portion of the episode is dedicated to discussing the difficult decisions around choosing to undergo radiation therapy for tongue cancer, drawing from both Barbara's and Jamie's personal experiences. The conversation highlights the importance of understanding individual risk factors, trusting medical professionals, and the long-term impacts of treatment. They stress the significance of patient empowerment, informed decision-making, and the importance of a supportive community. Hosted on Acast. See acast.com/privacy for more information. | |||
| Expert Guest: Dr. Alexandra Kejner | 31 janv. 2025 | 01:16:36 | |
In this episode of the Young Tongues podcast, host Barbara welcomes Dr. Alexandra Kejner, a head and neck surgeon from South Carolina. Dr. Kejner shares her personal journey and professional background, highlighting her family's origins and her path to becoming a surgeon. The discussion dives into the intricacies of head and neck surgeries, the collaborative nature of surgical teams, and advancements in reconstructive techniques. The conversation also covers scar management, cosmetic concerns post-surgery, and the importance of holistic post-operative care. Dr. Kejnershares insights on maintaining a balance between professional demands and personal life, emphasizing the significance of peer support among female surgeons. The episode ends with a vision for future collaborations between healthcare professionals and patient organizations to improve outcomes for young tongue cancer patients. Hosted on Acast. See acast.com/privacy for more information. | |||
| Kelly's Story | 24 janv. 2025 | 00:59:24 | |
In this episode of The Young Tongues Podcast, Barbara interviews Kelly, about her experience with tongue cancer. Kelly details her initial symptoms, misdiagnoses, and the prolonged delays before receiving an accurate diagnosis and treatment. Throughout the conversation, Kelly highlights the lack of communication and inconsistent standards of care she faced. Despite these challenges, she shares how her eventual treatment team provided the support she needed. Kelly also discusses her mission to raise awareness about these issues by sharing her story through various media platforms. The episode concludes with a call for uniform standards in cancer treatment and support across the UK. Hosted on Acast. See acast.com/privacy for more information. | |||
| Expert Guest: Dr Elizabeth Marsh | 17 janv. 2025 | 01:05:06 | |
In this episode of the Young Tongues Podcast, Barbara Fountain speaks with Dr Elizabeth Marsh, an Associate Professor of Molecular and Cellular Biology. Dr Marsh specialises in researching human papillomavirus (HPV) and its role in causing head and neck cancers. The conversation covers a range of topics, including Dr Marsh's professional background, the nature of HPV, its transmission, and the differences between HPV-related cancers of the cervix and those of the head and neck. The discussion also explores the effects of the HPV vaccine. Questions from the audience address subjects such as the specifics of HPV strains, the accuracy of testing, vaccine effectiveness, and the potential influence of hormones on tumour growth. The episode highlights the significance of continued research and the encouraging prospects for advancements in HPV-related cancer treatments. Hosted on Acast. See acast.com/privacy for more information. | |||
| Expert Guest: Dr Roganie Govender | 10 janv. 2025 | 00:57:19 | |
In this episode of the Young Tongues podcast, Barbara welcomes speech pathologist and audiologist Dr Roganie Govender. The conversation delves into Dr Roganie Govender professional journey and contributions to speech and language therapy, especially for head and neck cancer patients. The discussion covers the importance of person-centered care, the role of speech and language therapy in recovery, and the ongoing research aimed at improving patient outcomes. They address listener questions about rehabilitation timelines, the benefits of prehabilitation, and practical exercises to improve speech post-treatment, emphasizing patience and the personalized nature of therapy. Hosted on Acast. See acast.com/privacy for more information. | |||
| Happy New Year | 03 janv. 2025 | 00:53:47 | |
In this episode of the Young Tongues podcast, hosts Barbara and Jamie mark the show's one-year anniversary. They share their experiences navigating the Christmas season and strategies for coping with post-holiday fatigue. Reflecting on the challenges of living with and recovering from tongue cancer, Barbara also reveals the Young Tongues' plans for the year ahead, including new virtual and in-person meetups, volunteer recruitment, and the launch of a patient resource website. Hosted on Acast. See acast.com/privacy for more information. | |||
| Maria's Story | 20 déc. 2024 | 00:26:18 | |
In this episode of the Young Tongues podcast, Barbara talks to Maria Scott, a 47-year-old tongue cancer survivor. Maria shares her journey from being diagnosed with pre-cancerous cells in 2014 to going through stage 4 squamous cell carcinoma of the tongue. She discusses the rigorous treatments she underwent, including a hemiglossectomy, neck dissection, radiation, and chemotherapy. Maria also details the long-term effects of her treatment, such as radiation fibrosis, which severely limits her mobility and quality of life. Despite the challenges, Maria highlights the importance of advocating for oneself and finding joy in life through the support of her family, partner, and dogs. She expresses hope for new treatments and trials that may alleviate the symptoms of radiation fibrosis and improve the lives of cancer survivors. Hosted on Acast. See acast.com/privacy for more information. | |||
| Getting Ready for Christmas | 13 déc. 2024 | 00:58:20 | |
In this episode of the Young Tongues podcast, Barbara and Jamie open up about recent challenges and personal milestones. Jamie shares the anxiety of discovering a new bump on her tongue and the immense relief when it turned out not to be cancer. Barbara reflects on her ambitious November plans that didn’t unfold as she hoped and bravely discusses her recent diagnosis of lipoedema. Together, they emphasize how important it is to care for every aspect of our health—not just the parts tied to a cancer diagnosis. As the holidays approach, their conversation shifts to the joys and complexities of the season. They share honest reflections on navigating food challenges, social interactions, and finding balance amidst the festivities, offering thoughtful tips and coping strategies to help others facing similar struggles. Throughout, Barbara and Jamie remind listeners of the incredible support and understanding within the Young Tongues community. Before signing off, they take a moment to express their deep gratitude to their listeners and community for the strength and connection they bring, wishing everyone a warm and joyful Christmas filled with love and self-care. Hosted on Acast. See acast.com/privacy for more information. | |||
| Expert Guest: Dr. Melina Windon | 06 déc. 2024 | 00:53:24 | |
In this episode of the Young Tongues podcast, host Barbara interviews Dr. Melina Windon, MD from the University of Kentucky, a specialist in head and neck and microvascular reconstructive surgery. Dr. Windon discusses her medical journey, the complexities of tongue cancer surgeries, and her research on HPV-related cancers. She explains the surgical process, including the selection of donor sites for reconstructive flaps, and addresses listener questions. Dr. Windon highlights the importance of early diagnosis and the challenges in healthcare delivery while expressing hope for advancements through clinical trials and immunotherapy. Hosted on Acast. See acast.com/privacy for more information. | |||