VICTA Parent Voice – Details, episodes & analysis

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VICTA Parent Voice

VICTA

Kids & Family

Frequency: 1 episode/63d. Total Eps: 3

Raising vision impaired children in the real world. Finding strength, community, and clarity beyond the diagnosis.

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Data updated on 14/07/2026

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https://www.youtube.com/@AlbinismFellowshipUK
1 share

https://www.victaparents.org.uk/finding-our-way-vi-autism-and-everything-in-between/
1 share

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Score global : 33%

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VICTA Parent Voice - The moment everything changed

Wednesday, June 3, 2026 • Duration 01:21:33

VICTA Parent Voice podcast: The Moment Everything Changed

In this powerful episode, we explore the emotional impact of hearing your child's diagnosis and how life changes in an instant. It's a moment many parents never forget- one that shapes the journey ahead in ways they could never have imagined.

Join us as we speak with Paula Thomas from Great Ormond Street Hospital, parent Karen Howkins, Mark Chapman, RNIB ECLO, and Dr Jay Self, Consultant Ophthalmologist. Together, they share perspectives from both sides of the diagnosis conversation, whether families receive news at the very beginning of their journey or during the transition from SI to SSI.

We'll discuss how parents respond to life-changing news, the vital role ECLOs play in providing holistic support, and why those first conversations matter so much. Most importantly, we reflect on how that first day marks the beginning of a new chapter for families, a moment that stays with us forever.

Finding Our Way: VI, Autism and Everything In Between - victa AlbinismFellowshipUK - YouTube

Paula.Thomas@gosh.nhs.uk

Mark.Chapman@rnib.org.uk

VICTA Parent Voice – Details, episodes & analysis

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VICTA Parent Voice – Details, episodes & analysis

Podcast details

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