Explore every episode of the podcast Uniquely Human: The Podcast

Two of the major priorities that are now being addressed in the autism and neurodivergent communities are the development of friendships and social relationships, and how to address bullying. Dr. Elizabeth Laugeson, Clinical Professor at UCLA, has focused on both of these issues over the past two decades, from a research as well as a programming perspective. She describes the PEERS program, now being implemented in over 150 countries, as well as bullying prevention with Barry and Dave.

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Neurodivergent children and their caregivers face unique challenges when a child needs to be brought into hospitals or similar medical settings. Unfortunately, many physicians working in emergency medicine and in hospital settings have little training in supporting children and families under the circumstances. Barry and Dave discuss these issues with Dr. Felix Kreier, an autistic physician working in Amsterdam, Netherlands, who has expertise and experience in working with neurodivergent children and supporting their caregivers, and who understands how critical the provision of compassionate and comprehensive care is, being neurodivergent himself.

One of the most exciting areas of innovation over the past few decades for children and adults with communication challenges and their families is augmentative and alternative communication options. Barry and Dave discuss a wide range of issues related to AAC with Rachel Madel, a speech-language pathologist who focuses on AAC in her LA – based practice serving children and adult clients, and their families.

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Polyvagal theory has emerged over the past few decades as an important construct in psychology and neurophysiology to help explain human reactions, especially when a person is under stress. It addresses a deeper, neurological basis to for understanding fight, flight and freeze responses, that have been misunderstood for years when observed in neurodivergent individuals. Polyvagal theory also provides guidance for approaches to support individuals of all ages. Barry and Dave discuss polyvagal theory with Sean Inderbitzen, an autistic mental heah therapist who recently published a book on this topic, “Autism in Polyvagal Terms: New Possibilities and Interventions“.

Emotional regulation is being embraced by parents, neurodivergent individuals educators and therapists as an important concept underlying respectful and developmentally informed practices for supporting autistic and neurodivergent individuals. As founder and Director of Children's Autism Services of Edmonton (Alberta, Canada), Terri Duncan, CCC-SLP has prioritized emotional regulation as foundational to services provided to children and families. From these experiences, she has recently published a book focused on implementing services with emotional regulation as a priority. Terri discusses with Barry and Dave how emotional regulation has become so central to her practice, and to her center.

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Neurodivergent children and their caregivers face a unique set of challenges in ensuring that they have access to appropriate services supporting dental and oral health. Unfortunately, due to some of these challenges, many children grow up without appropriate supports, and experience long-term negative physical and mental health repercussions. Barry and Dave do a deep dive into these issues with Dr. Rose-Marie Daly, who has a high level of expertise and experience in working with neurodivergent children and supporting their caregivers, and who understands how critical dental and oral health is for each child and the family.

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As a deeply reflective, and insightful individual, Becca Lory Hector has constructed a life and career of sharing what she has learned about growing up autistic, without a diagnosis until adulthood. With her engaging new autobiographical work, she once again demonstrates that lived experience is the best teacher, especially when shared generously with others who benefit from her wisdom. Becca, Dave and Barry have an engaging discussion that amplifies important issues of great interest for parents, professionals and autistic and neurodivergent individuals.

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One of the most important cutting-edge discoveries for autistic and neurodivergent individuals is that non-speakers, many of them previously thought to be intellectually disabled and non-communicative, are now able to demonstrate their knowledge and share their experiences through supported communication. With their guest, psychology professor Dr. Vikram Jaswal, Barry and Dave discuss recent research and our evolving understanding of non-speakers who were and still are so misunderstood. 

Learn more about Vikram's work and find valuable resources on our website. 

Gestalt language Processing and Natural Language Acquisition: A Discussion with Marge Blanc, CCC-SLP, and Alex Zachos, CCC-SLP

Gestalt language processing and natural language acquisition are topics that have received a great deal of attention in recent years, grounded in research that goes back to the 1970s. These concepts have helped to explain and describe a process, often observed in autistic children and those with other neurodevelopmental conditions, in children move from the early use of echolalia to self-generated conversational use of language. Marge and Alex join Barry in a discussion of the history and current status in understanding children who demonstrate these patterns of language acquisition, in order to assist professionals and parents in supporting such children.

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Strategies for Successful Transitions Back to School for Parents and Professionals a conversation with Dave and Barry

Supporting successful transitions back to school is critical for maximizing success for the whole school year. Join us as we throw back to episode 31st, where Dave and Barry shared a lively discussion about challenges and creative strategies to help children of all ages to get off to a good start in this coming school year.

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A great deal of attention is given to different treatment approaches for supporting communication and relationships with children with social learning differences. However, how we actually speak to children in therapeutic and every day interactions, is given relatively less attention. Through her publications and presentations, Linda Murphy has devoted much of her recent work to supporting therapists, educators, and parents in providing more facilitative styles of language that have been shown to support language development and trusting relationships. In discussing the concept of “declarative language” with Barry and Dave, Linda provides specific guidelines and examples that will be helpful to both professionals and parents.

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Neuro-affirming care and the clinical profile of PDA (Pathological Demand Avoidance) are two critical issues that have risen to forefront of autism services and supports for individuals and families. In this lively and deeply informative discussion, Dr. Taylor Day speaks with Barry and Dave about how she understands and addresses these important areas in her clinical practice.

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A recognized significant challenge for autistic and neurodivergent families and individuals and families is maintaining a lifestyle that supports physical health and well-being. Belden Long and Kara Wilkinson, as professionals and with expertise in addressing physical health, report on findings of their research as well as their personal experience in supporting autistic individuals and families. From their work, they provide practical suggestions.

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Ellen Galinsky is a respected and renowned expert in child development, and in this episode, she discusses crucial issues she has researched and worked on directly in supporting healthy cognitive, social and emotional development in children and teens. Barry and Dave discuss a range of developmental issues with Ellen and their relevance in understanding and supporting autistic and neurodivergent individuals and their families.

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Creating Connection in Drumming and Rhythm-based Activities: A Discussion with "Master Teaching Artist" Bob Bloom.

As a “Master Teaching Artist”, Bob Bloom uses drumming, rhythm and singing to create fun and engaging experiences for children and their families, and adults. Specifically, he provides programs to help all children, neurotypical and neurodivergent, become connected to others and their own internal rhythms in activities in schools, community settings and in a variety of venues. In this episode, Bob, Barry and David, all of whom are drummers and musicians discuss the various uses of percussion and rhythm in supporting engagement and learning, with particular consideration for children and individuals who may need extra support.

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Siblings of children and family members with autism and other conditions live and grow up in a unique space in their relationships within the family. Their lived experience may present challenges, as well as unique opportunities for growth in supporting their autistic or neurodivergent sibling. Barry and Dave engage in a wide-ranging discussion with Emily Holl, who is both a sibling and a professional who has focused on sibling issues for much of her life.

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Ezra is a major motion picture that tells the story of a family, across generations, that has a deep love for a young autistic boy. The film authentically conveys the challenges that a family faces when confronted with societal expectations and insensitive professionals who has little understanding or respect for a child that sees the world through a different lens. It also beautifully portrays those rarefied times when other people, even strangers, see the beauty, the honesty, and the inspirational qualities of a young child who has a strong sense of self, and approaches life with eyes wide open. Barry and Dave explore themes of Ezra with Tony Goldwyn, its director, Tony Spiridakis, writer of the screenplay, and Elaine Hall who is a casting consultant for the film.

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The history of autism is replete with diametrically opposed representations of the autistic experience as either a blessing, or a tragedy. These varying beliefs may be held by professionals, family members, and even autistic individuals themselves. Of course, such extreme views do not accurately portray the complexities involved, which often fall somewhere between these two extreme representations. Barry and Dave discuss such complexities with a goal of honoring the experience of each individual, as well as family members.

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Shannon Rosa and Carol Ann Greenburg are parent-professionals and partners in developing and sharing their on-line resource, A Thinking Person’s Guide to Autism, one of the very first resources to provide valuable information to the autistic and neurodivergent communities. In their own words, the mission of TPGA is to be a a one-stop source for carefully curated, evidence-based, neurodiversity-steeped information from autistic people, parents, and autism professionals. They emphasize that autism acceptance is not merely noble but necessary—and are separate matters from the autistic and other autism communities’ never-ending fights for medical, legal, social, and educational accommodation. The goal of TPGA is “to help  fast-forward past society’s rampant autism fabrications and negativity, by providing clear, thoughtfully presented, balanced, and referenced information”.  Barry and Dave discuss TPGA in the context of Shannon and Carol’s experiences as parents, and as advocates for the autistic community.

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Episode 103 • Understanding Autism: A Discussion with Autistic Film Producer and Director, Scott Steindorff

Scott Steindorff, an accomplished autistic film producer and director travelled the world to make his new film, “Understanding Autism“. Barry and Dave discuss Scott’s personal experiences leading to his motivation and goals in creating this feature length documentary.

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Episode 102 - Insights into Neurodivergence Following Brain Surgery: A Discussion with Jacki Edry, Autism Advocate, Parent and Cancer Survivor.

Jacki Edry’s personal journey as a brain surgery survivor and parent of autistic and neurodivergent children provides unique insight into the neurodivergent experience. Additionally, her courage and persistence during her ongoing process of recovery, and her desire to help others based on her experience is an incredible story from which we all can learn. Jacki shares her journey with Barry and Dave, and all she has learned that may be of benefit to neurodivergent individuals and their families.

One of the least understood, and most marginalized groups of autistic people are those who are non-speaking, or who have minimal or unreliable speech due to neurologically-based motor speech disorders. Nonspeakers’ “voices” are now being heard, and what they have to say is shattering erroneous stereotypes about those for whom speech is not their primary mode of communication. Harmful beliefs about how speech and behavior are accurate reflections of a person’s intelligence and social awareness are being discarded. We initially spoke three years ago with Ian Nordling, a young autistic man who has benefitted from Spelling to Communicate (S2C), and Elizabeth Vosseller, who developed (S2C). In this episode, we get an update on progress for non-speakers.

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We are celebrating our 100th Episode! We couldn't have done this without you, our Uniquely Human Community. Thank you! 

Love on the Spectrum is an Emmy award-winning Netflix reality TV show that follows young adults on the autism spectrum as they explore dating, love, and relationships. The show is based on an Australian version of the same name. Dave and Barry join Elaine Hall, who consults to the show and helped with casting, and with Steve and David, two autistic cast members, in a discussion of their experiences on the show, and the importance of relationships in their lives.

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A great and harmful myth perpetuated for decades is that autistic people are incapable of deep connection, empathy, and loving relationships with others. Over the years, diagnostic criteria have included wording to this effect. We now know that this generalization is inaccurate, largely due to an understanding that autistic children and adults may “show up” in different ways in relationships. As with all people, however, the desire to connect and develop trusting and loving relationships is clearly a part of the autistic experience. Dave and Barry discuss these issues from a historical, clinical, and first person perspective.

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Temple Grandin on Understanding Different Minds: Its importance in Education, Life Skills and Eventual Employment for Younger Autistic Individuals

One of the many groundbreaking contributions that Dr. Temple Grandin has made in her career is increasing awareness of different learning styles demonstrated by autistic and neurodivergent individuals. Her work has been applied in enhancing employment opportunities and education for older autistic individuals, but less so for younger children. In her new book, Different Kinds of Minds, she reaches out to younger children, their families and educators on this essential topic. In this far-reaching discussion, Barry, Dave and Temple discuss the longer term implications of her work for autistic individuals, and society in general.

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In recent years, there has been increasing interest in a range of medical conditions experienced by individuals diagnosed with autism and other neurodivergent conditions. Autistic and neurodivergent individuals, diagnosed and undiagnosed, may present with complex conditions that cause considerable discomfort and pain, and that have a significant detrimental impact on quality of life. In some cases, concerns about medical conditions may be the “gateway” issues that lead to a diagnosis of autism, in previously undiagnosed individuals. However, many physicians are not trained to explore the complex and at times, puzzling interactions between medical conditions and neurodivergence. Dr. Lenz, with a career of “in the trenches” expertise, discusses these issues with Barry and Dave with a focus on compassionate medical care and life-style changes that best support autistic and neurodivergent people.

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Jaya Ramesh and Priya Saaral, both neurodivergent professionals and parents of neurodivergent children bring a unique perspective to the challenges and gifts of raising children of color. Based on their new book, Parenting at the Intersections, we discuss the barriers that families of color face over and above those encountered by all families who have children with neurodevelopmental differences, as well as all that can be learned in each family’s journey.

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How to Dance in Ohio is a heart-filled new musical that explores what it means to belong, the courage it takes to put yourself out in the world, and the universal need to connect. The musical follows the challenges and triumphs faced by a group of seven autistic young adults at a counseling center in Columbus, Ohio. The center arranges a spring formal dance, and encourages them as they encounter love, fear, stress, excitement, and hope along the path to human connection. We speak with Linda J. Walder, Founder and Executive Director of The Daniel Jordan Fiddle Foundation that honored the cast and crew with the DJF Foundation Adult Autism award, and with Rebekah Greer Melocik, book author and lyricist, and Nicole D’Angelo, Assistant Music Director and member of the show’s access team.

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In his first description of autism, Leo Kanner noted that “insistence on preservation of sameness” was a distinguishing characteristic of autistic individuals. This may be manifest in a number of characteristics including “resistance to change”  and the need to maintain routines that have been established in daily activities. Often such patterns may be manifest throughout the lifespan and too often, are described primarily as problematic and as a “symptom” of autism. But what if rather than viewing “control” through the lens of pathology, we consider the “deep why”. That is, from the perspective of the person who is viewed as controlling, what functions might be served by such patterns? Barry and Dave discuss the issue of control from their own personal experiences. 

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Autistic and other neurodivergent people of all ages are vulnerable to many factors, both internal and external, that may lead to anxiety and phobias. Dr. Karen Levine’s publications and clinical innovations have directly addressed these challenges in respectful and insightful ways. We discuss ways to understand such challenges and provide support based on a deeper understanding of the experiences shared by autistic individuals and neurodivergent individuals. Karen discusses her approach focusing on relationships, affective support, and the use of humor in co-regulation .

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One of the most challenging behavioral patterns observed in neurodivergent individuals with developmental challenges (and, in fact, all children!), is when they verbally or nonverbally communicate “NO”. In fact, the term “Non-compliance” has been the most frequently used phrase when characterizing refusal or protest behavior, and such behavior most often raises the “ire” of an adult partner. In approaches that focusing only on the surface behavior, and do not explore the “deep why”, reducing “non-compliant” behavior is often targeted in behavior plans for children.  However, when a child communicates “NO”, the picture may be much more complex than it first appears. In this first episode or our de-pathologizing series, Barry and Dave explore these complexities.

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Dr. Mary Doherty founded Autistic Doctors international to unify autistic voices who work in medical and health care to “have a seat at the table” in establishing policies and practices sensitive to the needs of neurodivergent individuals. She believes that the lived experience of autistic professionals is essential to shift medical and healthcare practices to be more effective and neuroaffirming. Barry and Dave discuss these issues with Mary.

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Amanda Diekman discusses and provides examples of the approach she refers to as “Low Demand Parenting” and presents this approach in contrast to advice often given to parents of autistic and other neurodivergent children. With her lived experience as a mother of three neurodivergent children, and as an autistic person, she challenges many mainstream beliefs about raising children, especially those who are defined as having behavioral patterns perceived as problematic by others. Her work prioritizes building trusting relationships focused on supporting the emotional growth and well-being of children.

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It is widely recognized, but unfortunately, that most attention is paid to understanding and supporting autistic individuals in their childhood years, but much less so in middle-aged and older individuals. The result is a critical need for understanding of the experience of autism in older and late-diagnosed individuals, both from a research and support need perspective. These issues are discussed with Christine Jenkins, an autistic advocate and professional with expertise and personal experience in this much needed area of focus.

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Dr. Peter Vermeulen, a Belgian Psychologist, is an important international voice in his constructive criticism of popular views on understanding the autistic experience. He is one of the rare professionals who dedicates much of his time and effort to applying the most recent research on human cognition to thinking deeply about the inner experiences of autistic people. And he does so in the service of making direct links to implications and strategies for support. In this episode, Barry and Dave discuss some of Peter’s thought-provoking perspectives.

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The experience of autism creates complex relationships for many in a shared community, that can result in misunderstandings and even anger directed to others. People in these relationships include autistic individuals, parents, family members, educators, therapists, and many significant others. That said, there is also great potential for loving, mutually supportive and trusting relationships, but that takes work. Elaine Hall wears many hats, as a neurodivergent parent-professional, author, speaker, and consultant in film and TV. Despite significant barriers for her and her son, she has navigated and has thrived on her journey with grace and deep gratitude that is a gift to so many. Dave and Barry join Elaine in a discussion of the experience of feeling gratitude, and the importance of sharing those feelings with others.

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An understanding of the experiences of non-speakers, or those with minimal speech, is an essential part of the neurodiversity movement. With the appropriate supports, including AAC technology, non-speakers who were silent for years, are now capable of sharing their experiences and their feelings about being misunderstood and too often mistreated. Elizabeth Bonker, a non-speaking autistic woman, discusses her journey and her commitment to educating society and supporting the millions of neurodivergent non-speaking individuals, so many of whom have so much potential to contribute to an inclusive, humane society when provided with effective means to communicate.

Note from the hosts: Questions were submitted to Elizabeth ahead of time due to the length of time it takes to formulate and type responses. This is a common procedure when non-speakers are asked to respond to interview questions or are on panels and giving presentations at conferences.

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Chris Antao is the lead Surf Therapist, Trainer and EMT at his non-profit, Gnome Surf Therapy.  He has grown Gnome Surf into the fastest growing Surf Therapy Organization globally. As founder and Executive Director, Chris has completed over 3,000 hours surfing with athletes of various ages and abilities, making him one of the most experienced Surf Therapists globally. He was an early contributor to the International Surf Therapy Organization, where he helped mold best practices in surf therapy. He majored in Psychology at Sacred Heart University with a focus on Child Development.  Since then, Chris has established Gnome Surf as a strong value-based organization for children and adults of all abilities focusing on inclusion, acceptance, diversity and equality.

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Jory Fleming is an accomplished academic, a Rhodes Scholar and a delightful person who has many interests and passions. He also has a unique ability to reflect on his own thought processes and discuss the complexities of the autistic mind in a manner that is both engaging and enlightening. Barry and Dave have a fascinating discussion with Jory about his personal journey, and his deep interests and special talents in a manner that provides helpful insights into understanding the autistic experience and supporting autistic and neurodivergent individuals. 

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EPISODE 83 -  A Discussion with Terra Vance: Autistic Social Activist and Founder of NeuroClastic 

Terra Vance discusses her work in developing NeuroClastic, the social justice on-line community that brings awareness and action to many social justice issues faced by neurodivergent and marginalized individuals. In this episode, she shares her background leading to her focus on social justice issues, and her current efforts to support individuals who too often have few resources to experience and obtain equitable support and justice.

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John Summers is an historian, and the father of a 12-year-old autistic son. He holds strong feelings about Applied Behavior Analysis after many years of stressful experiences for his son, and for him as a father. He also has major concerns about the institutionalization of ABA in autism treatment, and bureaucracies that hold significant power over how disabled individuals are educated and treated. John discusses these issues from the perspective of an historian interested in the development and domination of systems for disabled people, that are too often dehumanizing , as well as the from his experience as an engaged and loving father working to do the best for his son.

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Autistic individuals often experience, a complex array of co-occurring conditions that impact academic achievement, including language-based learning disabilities, dyslexia and ADHD. Dr. Daniel Franklin, a specialist in language-based learning disabilities and other neurodivergent conditions shares his expertise clinical and research expertise, and provides practical suggestions to support students and older individuals. 

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We all know that relationships with non-human animals play an important role in quality of life for all people, and especially so for autistic and neurodivergent people. With a lifetime of experience in such relationships, Becca Lory Hector shares her professional expertise and discusses her personal experiences as an Autistic Professional, with special attention to the obligation we all have in forming and nurturing mutually satisfying relationships and connections with non-human animals.

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A parent’s perspective and reaction to receiving an autism diagnosis is often shaped by how autism is presented to them, their previous experiences and preconceptions about autism, or a combination of the two. The same may be true for an autistic person receiving a diagnosis for the first time. Too often, a major source of stress and misunderstanding is when autism is presented as a verdict. That is, the diagnosis in and of itself will determine the quality of life for a child, person, or family, too often in terms of a struggle, or a dire prognosis that may include a listing of the stressors that would be experienced. However, an alternative perspective is viewing the experience of autism as a journey, which opens up the possibility of potential for growth for the child, older person, and family. In this episode of Uniquely Human: The Podcast, Barry and Dave discuss these radically different approaches to understanding the experience of autism.

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Nutrition and feeding are common issues of concern for parents of autistic family members, and for autistic people themselves. With appropriate nutrition, quality of life is improved due to enhanced physical and mental health and improved relationships with those who play a role in supporting good nutrition and successful feeding interactions. Yaffi Lvova, a neurodivergent Dietitian Nutritionist provides crucial information and advice for family members and autistic people.

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Kim Clairy is an autistic occupational therapist who brings a variety of perspectives in educating others about autism, eating disorders, and sensory processing conditions. Initially diagnosed with a severe eating disorder, she faced a healthcare system that was ill-prepared to understand the complexities of her conditions, and that prescribed treatments that were not only not helpful, but in some ways, damaging. With the support of her husband, and a passion to be self-educated, she has emerged as a powerful voice and advocate for supporting others with complex conditions co-occurring with their autism. Kim shares details of her journey and provides helpful guidance for families and their autistic family members.

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Tiffany Hammond wears many hats. First, she is the loving mother of two autistic children, a developmental psychologist who provides professional consultation and she has a huge network with her Instagram  following on “Fidgets and Fries”. Based on her experiences as both a professional and a mother, as well as the way she has been treated herself as an autistic person, she has become a fierce, social justice activist. She also is a talented writer. We discuss issues she feels passionately about, as well as her forthcoming book, inspired by her son, “A Day with No Words”.

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One of the most important life decisions for all young people, is whether to consider going to college, and if so, how to deal with the challenges in applying and selecting the best match. For many reasons, this process has additional layers of added complexity for neurodivergent teens and older individuals. Eric Endlich, Ph.D. shares advice from his decades of experience in supporting families and college-bound young adults in helping them to ask the most important questions, and ultimately, making the best decisions for the student and the family.

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The issue of loss and grief reactions of autistic people has only received serious consideration in recent years. Decades of behavioral perspectives about autism, which prohibited serious consideration of feelings and internalized relationships prevented crucial issues such as loss and grief from getting the attention needed to better understand and support people on the autism spectrum. Dr. Ken Doka, a recognized expert and authority on loss and grief, and Lisa Morgan, an autistic professional, take a deep dive into these issues, and how important it is for all of us to have deeper understandings to better support autistic children and adults and their families.

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Accessing support for healthcare and navigating medical and health related services is one of the greatest stressors reported by parents, family members, and autistic people themselves, Future physicians and nurses receive very little, if any training about the best ways to support autistic individuals and their families in healthcare settings. In many cases, the information they receive it is out of date, or based on misunderstandings of the behavior of autistic people, especially under stressful circumstances, and the reactions of parents and family members, trying to do the best in helping their autistic family member. Maura Sullivan, as both a parent and professional, understands such challenges firsthand. In response, she has developed innovative programs for future physicians and healthcare professionals to provide accurate information about autism and neurodivergent conditions in some of the leading medical and nursing schools in the US, with the goal of supporting medical and nursing students to be effective and compassionate providers of care.

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