Actor, Director and RADA Alumni, Fred Gray discusses his experiences with Total Colonic Hirschsprung's as well as his talking about his son and father who also have HD.

6 weeks ago I interviewed Fred's wife, Jamie Birkett, who shared her side of the story and now Fred talks about what it was like to go through as a first time father.

As revealed in Jamie's episode, me and Fred both shared the same phenomenal consultant whilst at Great Ormond Street, as he and I share our experiences and thoughts of the wonderful Mr Ed Kiely.

Please enjoy the episode.

Instagram links:-

Fred - @fred_gray13

Me - @toms_hirschsprungs_podcast

Hirschsprung's nurse specialist Karen, talks about her decade plus experience as a nurse, specialising in Hirschsprung's disease.

Coming from a family of teachers Karen always knew that she wanted to be in a career helping people, thus leading to the seamless transition into nursing.

Later on Karen explains the 3 different types of pull-through surgery that all HD patients will have in order to remove the diseased part of the bowel.

Enjoy the episode!

Follow Karen - @auntynurse7819

Follow the podcast - @toms_hirschsprungs_podcast

In this weeks episode I am joined by new mum, Georgina, as we discuss her son Ffredi and his diagnosis of Hirschsprung's Disease.

Georgina talks through her first 5 months of juggling motherhood and being a business owner, with the triumphs and challenges that have followed. We also chat about the importance of taking time for yourself and how keeping up hobbies has been an important way of managing stress.

Please enjoy the episode!

Follow Georgina on Instagram - @livewithgeorgina

Follow the podcast on Instagram - @toms_hirschsprungs_podcast

Rachel joins me to celebrate 40 episodes of the podcast, as she discusses her unique journey through Hirschsprung's disease and motherhood.

Rachel has been a fantastic advocate for Hirschsprung's as well as ostomates and uses her platform to promote handy guides and tips for parents with children who have a similar condition to her.

We also talk about Rachel's various charity work and how she became involved in all 3 of incredible endeavours.

Follow Rachel on instagram - @gutsy.mum

3 time Ironman finisher Jodi Longdo joins me to talk about her near 50 year journey through sport and healthcare with Hirschsprung's Disease.

As well as an Ironman, Jodi is also a fully qualified Paediatric Nurse Practitioner, who specialises in GI disorders, as we talk about how she has used her own health experiences to help others.

A fascinating and humble woman to talk to, Jodi's journey of perseverance and determination is one of great strength and inspiration.

In the second part of my interview with Steffy, we are joined by her daughter Samantha as we discuss sporting life with Hirschsprung's Disease.

Samantha reveals her swimming aspirations and the hope to make it to the 2026 Olympics in Los Angeles, whereas Stef talks about her fitness journey and how finding the right support was crucial to her success.

Finally we talk about Hirschsprung's Awareness Month, a month that Steffy created, and how it's adopted all over the world.

Follow Steffy on Instagram - @Steffy_Little

Follow Kicking Hirschsprung's Disease In The Ass on Facebook

This week I chat with Ostique COO, (Chief Operating Officer) Toni Schneider about how the business was formed through 3 school friends with a shared passion for helping others.

Around the mid-point of the episode we discuss our love of dogs, including one particular member of the Ostique team, the morale officer, Ralph.

Toni explains about the different products that Ostique offers and why they are unique in the stoma world!

In what should have probably been episode 1!! Me and my two co-founders, Louisa Shapton and Carla Scaramella, explain Hirschsprung's Disease to you.

I will start by talking about what HD is and the various types, Louisa will explain the symptoms and diagnosis and Carla will go through the treatments that you may come to expect if your child is diagnosed with Hirschsprung's Disease.

I hope you find this episode useful.

Follow Tom's Hirschprung's Podcast on Instagram - @Toms_Hirschsprungs_Podcast

In this weeks edition of the podcast Charlotte joins me to talk about a variety of conditions including:- EDS, POTS, MCAS, suspected endo, cPTSD and brain damage related balance issues.

Charlottes upbeat a positive attitude towards her conditions makes for a fun and engaging chat, as we talk through her biomedical science degree and her plans for the future.

Follow Charlotte - @dazzling_zebra_reborn

A special AMA episode, where I answer your questions that have been sent in over the last couple of weeks. 12 questions will be answered from a variety of people on all manner of different topics.

Please feel free to send more questions on Instagram or Facebook by finding me @toms_hirschsprungs_podcast or email me on tomshirschsprungspodcast@gmail.com

In the first Mother/Son podcast episode, I am joined by Nicole and Benjamin Perry, Nicole talks about the ups and downs of hospital life as well as the 22 months wait for Benjamin's HD diagnosis.

Benjamin and I discuss the differences between life as an HD child, 20 years apart, and how his experiences differ from mine, he will also talk about his own advocacy journey and how he's determined to help other in his position.

Nicole is also part of the REACH HD board, and has been since 2018, we will chat about her role as the main fundraiser, as well as how helpful the board were to her through her sons initial diagnosis and treatment.

Please enjoy the episode

Follow Nicole - @nicole.perry.18

In this weeks episode I am joined by Lauren Wood as she shares her story about life with Hirschsprung's disease as well as how her stoma saved her life.

We talk extensively about Lauren's raising awareness for invisible illnesses and disabilities, as well as Lauren's many conditions as well as Hirschsprung's including; Mega Colon, Colonic Inertia, Dysmotility and Whole Gut Slow Transit.

Lauren talks about her love of animals, dogs in particular, and how having hobbies can really help take your mind off pain after surgery.

Follow Lauren on Instagram - @stomachick.x_x

Follow Tom's Hirschsprung's Podcast on Instagram - @toms_hirschsprungs_podcast

**** Trigger warning - contains abuse ****

Lynn describes her remarkable life as a Hirschsprung's survivor and life-long ostomate, through a very challenging start to becoming one of the leading lights for advocacy across the entire world.

The start of the story does contain abuse stories starting from the beginning - skip ahead to 12:35 if you do not want to hear this.

Lynn will talk in detail about her advocacy, as well as being recognised nationally by mayors and senators for her dedication to making life more comfortable for those with HD and Ostomys.

Follow the podcast - @toms_hirschsprungs_podcast

Endometriosis will be the main topic of discussion for this episode as Rebecca talks to me about her condition and the 10 year wait for a diagnosis!

Rebecca tells her brave story of having to advocate for herself over and over until being eventually diagnosed with Endo in July 2023.

We also discuss our mutual love of dogs as well as Rebecca's media work, having her story shared across multiple news outlets, including Endo UK and The Mirror.

Follow Rebecca on Instagram @rebeccas.journey_

Follow this podcast @toms_hirschsprungs_podcast

A very special episode of the podcast sees actor and TV star, Zoe Colletti, joins me to talk about her life with Hirschsprung's disease as well as her phenomenal acting career.

We start Zoe's story talking about her HD diagnosis, and how a medical error left her with far more complications than necessary. The conversation also moves on to how important her mother Cheryl has been in supporting her acting career as well as hospital visits.

Zoe talks about her already glistening acting and YouTube career as we discuss the star studded casts that she's worked with including Selena Gomez, Mark Wahlberg and Cameron Diaz.

Please enjoy the episode.

Follow Zoe on IG - @zoecolletti

on YouTube - ZoeTube

For this weeks episode I talk to the 'Hirschsprung's Aware Bears' founder Lori, who chats to me about her experiences with her daughter Alexis, who has Hirschsprung's disease.

We discuss Alexis's diagnosis and how far medical advancements have evolved since 1986, we talk through her journey from the difficult early days to her life as a happy, successful mother of 3.

In the second half of the episode we discuss the formation of Hirschsprung's Aware Bears, how and why it was formed and how Lori helps people from all over the world

Follow Lori on Facebook - Hirschsprung's Aware Bears

Follow us on Instagram and Facebook - Tom's Hirschsprung's Podcast

As Tom's Hirschsprung's Podcast reaches the big 3 0, I have my first ever returning guest as Laura O'Reilly joins me once again with her coach Dan from AAO.

In this episode we will discuss the recent Tough Mudder that both Laura and Dan completed, as well as Dan's journey from diagnosis of Crohn's disease in the army, to how he developed his thriving online fitness business.

Laura talks about what fitness means to her and how it has shaped her life in the last 18 months, as well as what she would like to achieve in the future.

A lovely chat with two wonderful people who have become an inspiration for many!

Please enjoy the episode!

Follow Laura on Instagram @laura.ibd.fitness

Follow Dan on Instagram @aao.crohns

This week I chat with Hirschsprung's awareness month founder Stef Little, Stef also created 'Kicking Hirschsprung's Disease In The Ass' Facebook page that now has around 3000 followers.

As well as being an entrepreneur, Stef and her daughter Sam also have Hirschsprung's disease and we talk about how all of this came to be.

Stef's has not let her 146 surgeries hold her back as we talk about her and Sam's sporting careers, including Sam's hopes of making the 2028 Olympics as a swimmer.

Follow Stef @steffy_little on Instagram

Follow @toms_hirschsprungs_podcast on Instagram

A very special episode of Tom's Hirschsprung's podcast as Emmerdale and Hotel Portofino star Louis Healy joins us to talk about being diagnosed with Hirschsprung's disease as well as his incredible acting career.

Louis talks about the fantastic care that he received at Alder Hey hospital, where his mum, Denise Welch, is now a patron.

We also delve into his phenomenal stage and screen career to date, and Louis gives us a fascinating insight into his preparation and execution of his various acting roles.

Thank you so much to Louis and his team for helping to organise this amazing episode.

Please enjoy the podcast.

Follow Louis on Instagram @healytymd

Follow Tom's Hirschsprung's Podcast @Toms_hirschsprungs_podcast

Episode 27 - With Nicky Kilpatrick @nickykilpatrickcoach 
This Thursday sees the interview of wellness coach and host of the Bowel Chronicles podcast - Nicky Kilpatrick.
We start Nicky's story around 2015, when she was preparing for a holiday - 24 hours later Nicky was in hospital, being diagnosed with an extra large bowel!- otherwise known as Megacolon.
Nicky talks candidly about her condition, as well as her life helping others with bowel conditions, via her job as a Wellness Coach and Mentor.
Follow Nicky on Instagram - @nickykilpatrickcoach
Facebook - Nicky Kilpatrick-Coach
Follow The Bowel Chronicles - on Spotify, Apple Podcasts and Youtube
#thebowelchronicles #hirschprungsdisease #hirschsprung #hirschprungsdiseaseawareness #wellness #wellnesscoach #wellnesscoaching #bowel #stomapositivity #healthjourney #bowelhealth #ostomy #ostomyawareness #healthstories

My guest this week, Loren, comes from Germany as I continue to scour the world looking for incredible Hirschsprung's related journey's - and this one was a real surprise!!

We talk about Loren's story with the unusual twist that she was diagnosed with Hirschsprung's disease twice!!

Loren is incredibly open about her diagnosis and shares her unique insight into her life with HD, whilst also wanting to help as many people as possible who are going through something similar.

To mark a quarter century of episodes I interview the host of the Chronic Convos podcast, Ashley Yodkovik, about her life as a chronic health advocate with 10 autoimmune conditions.

Ashley was diagnosed with Crohn's disease fairly recently, but is determined to become an incredible advocate for chronic conditions, through her experiences with her own conditions as well as job as a healthcare worker.

Join us for plenty of upbeat conversation about our conditions as well as some funny stories - including how Ashley came up with the Instagram handle @chronicallygimperella

Follow Ashley @chronicallygimperella

Listen to Chronic Convos @chronic.convos

Vicky joins me to talk about her extraordinary fitness journey and how being diagnosed with Ulcerative Colitis in 2021 did not stop her from achieving her goals!

We start the story with Vicky trying to find out everything she can about UC after her diagnosis, as well as taking inspiration from a previous THP guest @Laura.ibd.fitness .

With the help of Dan @aao.crohns Vicky has been documenting her own exercise story, in the hopes of bringing positivity and supporting each other.

Follow Vicky - @meandthebigbadibd

Listen to each episode on @Spotify

A place very close to me and many others, Great Ormond Street Hospital, is one of the world's leading children's hospitals.

I'm joined this week by Head of Membership and Corporate Governance, Paul Balson who I met in person at the GOSH 5K in October, to talk about the key points about the hospital and how the foundation plays a vital role in the community.

Please enjoy the episode!

Instagram links -

Follow Paul - @balsonp

Follow Great Ormond Street Hospital - @greatormondst

In this weeks episode I talk to Dennis about how he overcame his personal demons to help motivate other people with IBD and UC.

We also talk tattoos and the fascinating story behind each one of Dennis's 5 works of ink, as well as why he decided to post motivational content.

Dennis is taking part in a 42km obstacle course in September, we chat about how his training is going and what he's looking forward to at the event.

Follow Dennis @ibd_i_became_dennis

To kick off the month of June I talk to the fascinating Amy Green, as she bravely talks about her medical journey from all aspects, not just physically, but mentally and emotionally too.

We start the story at the night of Amy's senior prom, when she first discovered her illness, but like many, thought her symptoms would clear up after a couple of days - unfortunately this was not the case.

Join us as we talk through life's ups and downs through Amy's eyes, as we discuss the often unspoken mental and emotional toll that surgery can take on a person, as well as how Amy learned to find herself again and find light at the end of a very dark tunnel, to become the inspirationally uplifting person she is today.

Follow Amy @godsbestjpouch on Instagram

Follow @tomshirschsprungspodcast on Instagram

Episode 21 sees me interview Kyle Willmington, who is a healthy lifestyle and disability advocate.

Kyle was born with a very rare condition called Charcot Marie Tooth disease and epitomises the spirit of the podcast by refusing to let his condition define him.

We discuss Kyle's determination to succeed as an entrepreneur, through his various self-made businesses as well as his fitness journey.

His message is a simple one 'Regardless of physical abilities, everyone deserves to live a fulfilling and healthy life. I am committed to helping others achieve their health and fitness goals'.

Follow Kyle @Kylewill.tv on Instagram

In this weeks episode I chat with Chris about his coaching business, Chris is a certified health coach, where he specialises in helping people with IBD to get their lives back on track.
We talk about his coaching philosophies, and why he believes that helping people via a full 360 degree approach is the best way to long term success.
As a person with IBD himself, his mission is to inspire those navigating IBD, helping them to achieve a life of freedom from the constraints of their condition.
Follow Chris
@thegutcoachibd
www.thegutcoach.co.uk
www.youtube.com/TheGutCoach

In part 2 we will discuss the formation, and continued success of @reach_hd Canada, including the highly acclaimed and much celebrated @thevanityparty
In 2019 @swishproductionswpg and @jaguar hosted #TheVanityParty , they raised over $30000 for @reach_hd Canada to improve the lives of children and families affected by #hirschsprungsdisease , and one day to hopefully find a cure.
Please enjoy the episode!!!
Download every episode on @spotify , @applepodcasts and @spreaker
Follow Liz - @swishmodels @swishproductionswpg @swishstudios.ca
Follow REACH HD for information on #hirschsprungsdisease as well as personal stories - @reach_hd
Follow Tom's Hirschsprung's Podcast @toms_hirschsprungs_podcast
#swishmodels #swishmodelmanagement #reachhd #hirschpsprungdisease #hirschsprungsawareness #hirschsprungspodcast #thp #raredisease #rarediseaseawareness #thevanityparty #reachhdcanada #busiestpersonever #reachhdUS

In the first of a 2 part episode I have a fascinating chat with Liz about how she became involved in the charity, through her sons #hirschsprungsdisease diagnosis.
Liz has been raising awareness of #hirschsprungsdisease for well over 15 years as well as organising charity events, with the help of her modelling company @swishmodels.
Along with Liz, the @reach_hd charity has 5 other board members, who work tirelessly to maintain the fellowship program, as well as providing over $300000 towards research grants!!!
In part 2 we will discuss the formation, and continued success of @reach_hd Canada, including the highly acclaimed and much celebrated @thevanityparty
In 2019 @swishproductionswpg and @jaguar hosted #TheVanityParty , they raised over $30000 for @reach_hd Canada to improve the lives of children and families affected by #hirschsprungsdisease , and one day to hopefully find a cure.
Please enjoy the episode!!!
Part 2 will be available on Thursday 16th May
Download every episode on @spotify , @applepodcasts and @spreaker
Follow Liz - @swishmodels @swishproductionswpg @swishstudios.ca
Follow REACH HD for information on #hirschsprungsdisease as well as personal stories - @reach_hd
Follow Tom's Hirschsprung's Podcast @toms_hirschsprungs_podcast
#swishmodels #swishmodelmanagement #reachhd #hirschpsprungdisease #hirschsprungsawareness #hirschsprungspodcast #thp #raredisease #rarediseaseawareness #thevanityparty #reachhdcanada #busiestpersonever #reachhdUS

In this weeks episode I talk to the brilliant Laura O'Reilly @Laura.ibd.fitness, about all things IBD and fitness. Laura talks openly about her fears at stepping into a gym for the first time as well as the amazing progress she's made so far.

Listen through Laura's journey from someone who would have run a mile from the gym (her own words!) to a fitness inspiration for people with IBD.

Follow Laura on Instagram - @Laura.ibd.fitness

Follow Tom's Hirschsprungs Podcast on Instagram -@toms_hirschsprungs_podcast

EPISODE 16 - WITH PATRICK BELTON @theostomyathlete
This week I chat with Patrick about his incredible journey of overcoming challenges and achieving incredible mountaineering endeavours.
Patrick shares his inspirational story from his diagnosis in his teens all the way through to forming his mountaineering team, with 3 more exceptional ostomy athletes from the UK, US and Canada.
Along the way we discuss how Patrick got into extreme sports, the moments that inspired him, and also how he help others in the ostomy community, through maintaining a high degree of positivity.
We end on a couple of stand out moments that are personal to Patrick during his climbs - be sure to stick around to the end to find out!
Follow Patrick, the "Ostomy Athlete," on Instagram @theostomyathlete. Visit Patrick's website theostomyathlete.com for more information and resources.
Follow @toms_hirschsprungs_podcast on @spotify

EPISODE 15 - WITH MELISSA JONES - OUT NOW!!!
My guest this week is Melissa Jones, Melissa runs the very popular @facebook page 'Hirschsprung's Disease family support UK'
Melissa is also the mum of Mia, who has Hirschsprung's disease, and we go through Mia's exceptional story, as well as being the inspiration behind the @facebook group.
We also chat about the @facebook page, how and why it was set up, as well as hopes for the group in the future.
To join the group search 'Hirschsprung's Disease family support UK' on @facebook
Follow @toms_hirschsprungs_podcast on @spotify and @spreaker
#hirschsprungsdisease #hirschsprungsdiseaseawareness #hirschsprungs #hdwarrior #hdwarriors #raredisease #rarediseaseawareness #tomshirschsprungspodcast #hirschsprungsjourney #hirschsprungsdiseaseuk #familysupport #familysupportuk

In this weeks episode I speak with professional golfer Andy Browne, where he talks about his incredible journey through being a professional sportsman with Ulcerative Colitis and Crohns.
Andy's story of resilience and perseverance is one great inspiration, and I really hope you enjoy the show when it releases later this week.
We chat about his medical and sporting life up until now, as well his hopes for the future. We also go slightly off topic at the end, as we share our mutual love of football with his @realmadrid and my beloved @nufc !!!
follow Andy @andyb.96
follow @toms_hirschsprungs_podcast on @spotify and @spreaker
#hirschsprungsdisease #hirschsprungs #crohnsdisease #crohnswarrior #crohns #ulceratedcolitis #colitiswarrior #colitis #golf #golfpro #hdwarrior #raredisease #rarediseases #ulcerativecollitis

Jazz joins me to talk about the history and importance of Ronald McDonald House Charities, as well as celebrating 35 years here in the UK and 50 years worldwide!

Ronald McDonald House Charities have helped hundreds of thousands of families all over the world, in being 'the home away from home' when their children are being looked after in hospital.

QUICK FACTS!

- It costs RMHCUK £35 to accommodate one family for one night.

- RMHCUK saved families travelling more than 10,000,000 miles to and from hospital in 2023

- Families stay in Ronald McDonald House for an average of 16 nights

- Ronald McDonald House Alder Hey is the largest in the UK - with 83 en-suite bedrooms

My thanks to Jazz and all the team at @RMHCUK for helping to organise this episode. Please enjoy!

Follow RMHCUK on Instagram - @RMHCUK

In this special episode I take a look back on the short life of Tom's Hirschsprung's Podcast as well as giving an idea of the schedule and guests in the coming weeks/months.

It may be a bit early to start reviewing something that is only a matter of months old, but I didn't want anyone to be episode 13, so I've called this one 12A and the next episode, with Andy Browne, releasing on Thursday 11th April will be no. 14.

Thanks for listening!!

Follow Tom's Hirschsprung's Podcast on Instagram and Spotify

In this Thursdays episode with Aliz, we chat about her life as a personal trainer, specialising in helping people with chronic illness.
Aliz talks about her own health conditions, and how she was inspired to become a PT, through a holistic approach and embracing wellness.
Follow Aliz @thechronicallyfitcoach
Follow @toms_hirschsprungs_podcast on @spotify and 

@spreaker
#hirschsprungsdiseaseawareness #chronicpainwarrior 

#hirschsprungsdisease #tomshirschsprungspodcast 

#thechronicallyfitcoach #hdwarrior 

#hirschsprungsjourney #spotify #raredisease 

#rarediseasewarrior

My guest this week is Army veteran, Attorney and children's Author Jonathan O'Konek, who explains his fascinating life story, as well as how he became an advocate for rare diseases, through his son Sheamus.

To date Jonathan has written 3 children's books with an exclusive update on the 4th in this episode!!

Follow Jonathan on:
Instagram - @jonathanokonek
facebook.com/jonathanokonek
amazon.com/Jonathan-OKonek
twitter.com/JonathanOkonek
Linkedin.com/in/jonathanokonek
Purchase Jonathan's books at
www.okonekbooks.com
Listen to each and every episode on @spotify and @spreaker by searching for 'Toms Hirschsprungs Podcast'

In our landmark 10th Episode, I interview Laquita Williamson @hairbylaquita_ who is the owner of She's Von Salon and mother to her son, Marcus jnr, who has #hirschsprungsdisease.
Laquita shares Marcus jnr's story, from the beginning right through to present day, as well as hopes for the future.
Follow Laquita @hairbylaquita_
Follow and listen to @toms_hirschsprungs_podcast on @spotify and @spreaker
#hairbylaquita #hirschsprungsdisease #hdwarrior #tomshirschsprungspodcast #hirschsprungsdiseaseawareness #hirschsprung #hirschsprungs #hirschsprungsjourney #spotify #raredisease #rarediseasewarrior

In part 2 of Shellie's interview, Shellie talks about her amazing charity work as well as how she has become involved in working for Footprints Foundation in Nottingham.

Stay tuned until the end to find out the incredible activity Shellie will be doing for Footprints on 17th March!!!

Check out part 1 to hear all about Adonis's incredible medical story

follow Shellie at @discoveringadonis and @_shellend
follow @toms_hirschsprungs_podcast on @spotify and @spreaker
#hirschsprungsdiseaseawareness #hirschprungsdisease #hdwarrior #downsyndromeawareness #postiveaboutdownssyndrome #hirschsprungsjourney #nothingdownaboutit #tomshirschsprungspodcast

NEW EPISODE WITH SHELLIE WARNER 
In part 1 of a 2 part special, I interview Shellie about her amazing and uplifting journey through her first year and half of motherhood.
We talk about her son, Donny, and his early diagnosis of #downsyndrome and #hirschsprungsdisease as well as the incredible support from her family and nurses.
Stay tuned for a special exclusive in part 2!!!
follow Shellie at @discoveringadonis and @_shellend
follow @toms_hirschsprungs_podcast on @spotify and @spreaker
#hirschsprungsdiseaseawareness #hirschprungsdisease #hdwarrior #downsyndromeawareness #postiveaboutdownssyndrome #hirschsprungsjourney #nothingdownaboutit #tomshirschsprungspodcast

My guest this week is Aimee Morrisby, who is a fellow HD warrior and is currently starting a business called Fern and Flo.

Aimee is a Bachelor of health science and nutrition, a Pilates instructor and is now starting a new business focusing on holistic health and well-being.

Aimee shares her story with Hirschsprung's disease, as well as her quest to get others to become more active and look after their own health.

Episode 6 tells an interesting story with Harvey Haworth, Harvey talks to me about his battle with Colitis, as well as his ambitions for the future - including running the upcoming Manchester Marathon!!

We begin the story in 2016 with Harvey's first symptoms and follow his journey through his diagnosis and up to the present day

A short introduction into Toms Hirschsprung's Podcast covering who I am, why I'm recording this, the aims of the podcast, when and where to find us, as well as details on upcoming special guests.

Follow us on Instagram at @toms_hirschsprungs_podcast

Contact us at tomshirschsprungspodcast@gmail.com

This week I chat with Carla Scaramella, our third @toms_hirschsprungs_podcast co-founder, about her fantastic work helping parents and families with #hirschsprungsdisease across Argentina.
We will share stories about how and why Carla started the patient advocacy group, as well as the invention of the Spanish HD alert card!
Listen and follow @toms_hirschsprungs_podcast on @spotify and @spreaker
#hirschsprungsdisease #hirschsprungs #hirschsprungsdiseaseawareness #hdwarrior #hirschsprungawareness

This week we delve into 'Parkers Journey' with Leanne, the wonderful person behind the Instagram account 'parkersjourney08'.

We talk candidly about Leanne's feelings around Parker's initial diagnosis of Down's Syndrome before being told that Parker also has Hirschsprung's Disease.

Leanne also shares her hopes and potential concerns around schooling, whilst telling some amazing stories of Parker's thriving personality and tenacious spirit.

Follow Leanne on Instagram - @parkersjourney08

Follow Tom's Hirschsprung's Podcast on Facebook and Instagram

In this weeks episode, I chat with one of the co-founders of Tom's Hirschsprung's Podcast, and her father about her experiences with having Hirschsprung's disease, as well as her achievements as a business owner.

Listen and follow Tom's Hirschsprung's Podcast on Spotify

Part 2 of my interview with Kyla Thomson, in which we will continue the discussion about her daughter Bella's captivating medical adventure, as well as their phenomenal charity work.

We also talk about Bella's rise to fame and their mission to inspire others to be #BELLABRAVE

Follow @kylact to see Bella's story on IG and @tiktok

Please consider supporting Bella and her family by checking out her website - www.bella-brave.com and purchasing some great BELLA BRAVE merch

Follow Tom's Hirshcsprungs Podcast on spotify

The first half of my interview with the inspirational Kyla Thomson, where we discuss her daughter Bella's fascinating medical journey from the very beginning, right up until the incredible events that unfolded in August 2023!

Subscribe to @toms_hirschsprungs_podcast on instagram

Follow Kyla Thomson @kylact

#hirschsprungsdisease #hirschsprungsdiseaseawareness #hirschsprungs #bellabrave #hdwarrior #hdwarriors #hirschsprungspodcast

A short introduction into Toms Hirschsprungs Podcast covering who I am, why I'm recording this, the aims of the podcast, when and where to find us as well as details on upcoming special guests.

For a far better and more up to date introduction please listen to Episode 1.

Follow us on Instagram @toms_hirschsprungs_podcast

Contact us via email tomshirschsprungspodcast@gmail.com