Tom's Hirschsprung's Podcast – Details, episodes & analysis

Actor, Director and RADA Alumni, Fred Gray discusses his experiences with Total Colonic Hirschsprung's as well as his talking about his son and father who also have HD.

6 weeks ago I interviewed Fred's wife, Jamie Birkett, who shared her side of the story and now Fred talks about what it was like to go through as a first time father.

As revealed in Jamie's episode, me and Fred both shared the same phenomenal consultant whilst at Great Ormond Street, as he and I share our experiences and thoughts of the wonderful Mr Ed Kiely.

Please enjoy the episode.

Instagram links:-

Fred - @fred_gray13

Me - @toms_hirschsprungs_podcast

Hirschsprung's nurse specialist Karen, talks about her decade plus experience as a nurse, specialising in Hirschsprung's disease.

Coming from a family of teachers Karen always knew that she wanted to be in a career helping people, thus leading to the seamless transition into nursing.

Later on Karen explains the 3 different types of pull-through surgery that all HD patients will have in order to remove the diseased part of the bowel.

Enjoy the episode!

Follow Karen - @auntynurse7819

Follow the podcast - @toms_hirschsprungs_podcast

In this weeks episode I am joined by new mum, Georgina, as we discuss her son Ffredi and his diagnosis of Hirschsprung's Disease.

Georgina talks through her first 5 months of juggling motherhood and being a business owner, with the triumphs and challenges that have followed. We also chat about the importance of taking time for yourself and how keeping up hobbies has been an important way of managing stress.

Please enjoy the episode!

Follow Georgina on Instagram - @livewithgeorgina

Follow the podcast on Instagram - @toms_hirschsprungs_podcast

Rachel joins me to celebrate 40 episodes of the podcast, as she discusses her unique journey through Hirschsprung's disease and motherhood.

Rachel has been a fantastic advocate for Hirschsprung's as well as ostomates and uses her platform to promote handy guides and tips for parents with children who have a similar condition to her.

We also talk about Rachel's various charity work and how she became involved in all 3 of incredible endeavours.

Follow Rachel on instagram - @gutsy.mum

3 time Ironman finisher Jodi Longdo joins me to talk about her near 50 year journey through sport and healthcare with Hirschsprung's Disease.

As well as an Ironman, Jodi is also a fully qualified Paediatric Nurse Practitioner, who specialises in GI disorders, as we talk about how she has used her own health experiences to help others.

A fascinating and humble woman to talk to, Jodi's journey of perseverance and determination is one of great strength and inspiration.

In the second part of my interview with Steffy, we are joined by her daughter Samantha as we discuss sporting life with Hirschsprung's Disease.

Samantha reveals her swimming aspirations and the hope to make it to the 2026 Olympics in Los Angeles, whereas Stef talks about her fitness journey and how finding the right support was crucial to her success.

Finally we talk about Hirschsprung's Awareness Month, a month that Steffy created, and how it's adopted all over the world.

Follow Steffy on Instagram - @Steffy_Little

Follow Kicking Hirschsprung's Disease In The Ass on Facebook

This week I chat with Ostique COO, (Chief Operating Officer) Toni Schneider about how the business was formed through 3 school friends with a shared passion for helping others.

Around the mid-point of the episode we discuss our love of dogs, including one particular member of the Ostique team, the morale officer, Ralph.

Toni explains about the different products that Ostique offers and why they are unique in the stoma world!

In what should have probably been episode 1!! Me and my two co-founders, Louisa Shapton and Carla Scaramella, explain Hirschsprung's Disease to you.

I will start by talking about what HD is and the various types, Louisa will explain the symptoms and diagnosis and Carla will go through the treatments that you may come to expect if your child is diagnosed with Hirschsprung's Disease.

I hope you find this episode useful.

Follow Tom's Hirschprung's Podcast on Instagram - @Toms_Hirschsprungs_Podcast

In this weeks edition of the podcast Charlotte joins me to talk about a variety of conditions including:- EDS, POTS, MCAS, suspected endo, cPTSD and brain damage related balance issues.

Charlottes upbeat a positive attitude towards her conditions makes for a fun and engaging chat, as we talk through her biomedical science degree and her plans for the future.

Follow Charlotte - @dazzling_zebra_reborn

A special AMA episode, where I answer your questions that have been sent in over the last couple of weeks. 12 questions will be answered from a variety of people on all manner of different topics.

Please feel free to send more questions on Instagram or Facebook by finding me @toms_hirschsprungs_podcast or email me on tomshirschsprungspodcast@gmail.com