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Explore every episode of the podcast This is PNH

Dive into the complete episode list for This is PNH. Each episode is cataloged with detailed descriptions, making it easy to find and explore specific topics. Keep track of all episodes from your favorite podcast and never miss a moment of insightful content.

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TitlePub. DateDuration
The Road to Diagnosis13 mai 202600:24:56

In this debut episode of This is PNH, hosts Amy and Keith are joined by patient Jessi Hackney and Dr. Daniel Winokur to break down Paroxysmal Nocturnal Hemoglobinuria (PNH), a rare blood disease where the immune system mistakenly attacks its own red blood cells. Using a hotel analogy, they explore the science behind hemolysis, the frustrating road to diagnosis, and why rare diseases are so often missed. Jessi shares her personal journey from unexplained symptoms to a life-changing diagnosis, while Dr. Winokur explains the science behind the diagnosis and the outlook for patients diagnosed today.

For more information, visit thisispnh.com

Transparency Statement: The This is PNH Podcast is produced by Believe Limited and made possible by Apellis Pharmaceuticals.Ā 

The following Apellis Pharmaceuticals-supported program is intended for informational and educational purposes only and is not intended as medical advice. Please speak with your healthcare professional before making any medical decisions.

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Ā© My Podcast Data Ā· Independent project Ā· Data from Apple & Spotify