Explore every episode of the podcast The Threads of Life
| Title | Pub. Date | Duration | |
|---|---|---|---|
| Neurodiversity, the Basics including Abelism & Inclusion | 25 Jul 2024 | 00:24:53 | |
#1 These days we are all largely aware of neurodiversity and roughly what it entails but, how would you describe or define it to someone? What exactly is it in average person speak and what's important about it? Who does it include? Going on to talk about abelism and inclusion and what an inclusive classroom should look like starting with presuming competence in all students. #2 Guest N/A #3 Time Stamps 0:00 Intro 2:05 Advocacy; Identity First Language and Disability. 5:20 The Neurodiversity model of Disability. 6:42 What neurodiversity is not. 8:18 Abelism, what is it? 10:53 We are ALL as human beings co-dependent. 13:49 Myths about non speaking autistic individuals. 17:35 Inclusion. #4
#5 Calls to Action pre-roll: webpage mid-roll: thank you re podcast listens and please share end-roll: newsletter sign-up #6 References. Quotes: Neurodiversity - Judi Singer; Steve Silberman (author of Neurotribes book); Thomas Armstrong. Inclusion - Miller & Katz 2002; Newton 2017; Cheryl Jorgensen. #7 Social media N/A #8 Next Episode What does Progress Look Like? | |||
| My Journey with Spelling to Communicate S2C - Part A | 21 Jun 2024 | 00:25:54 | |
#1 Part A of my journey with my non speaking son Henry age 13 and S2C - Spelling to Communicate. Where it began and how I find out about it; understanding presuming competence and that it his body he cannot control well (including the eyes) in purposeful motor movement. Our first sessions and being introduced to a practitioner and the stencil alphabet boards. #2 N/A #3 Time Stamps: 0:00 Intro 1:50 Where it all began/how I found out about 2:56 Tit bit - put yourself out there, take the plunge, it's a journey 4:14 Meeting Emma Bond (and her son George) 5:00 Act for Autism - Tessa and Jane, Warwickshire (+ their book) 6:17 S2C - A personal story in a book called "Underestimated". So, what is it? 10:26 Elizabeth Vossellor (EV), Founder of S2C and evidence based methodology 12:13 Meeting EV and Anna Lechleiter of Palz Ireland, in London 13:30 Session 1 - not good 15:45 Hope and skepticism + Session 2 19:30 Disappointment 21:53 Re-start: Take 2 23:08 Parent Cohort #4
#5 See links below #6 Calls to Action: End-roll: website, social media, newsletter, podcasts #7 N/A #8 Next episode - tbc #4 | |||
| The siblings of autistic children - introducing Ben and Abi | 10 Nov 2023 | 00:37:41 | |
#1 My guests today are autistic, nonspeaking and adhd Henry's older siblings. An informal chat about their own experiences with their brother, understanding what autism is and coming to terms with how it impacts their brother and the whole family. As usual with the siblings they become mentors for the parents, just the most unconditionally accepting and loving humans who have none of the deep concerns of the parents and do not see the autism at all. #2 Ben (20) and Abi (18) - Henry's siblings. Henry is 12. #3 0:00 Intro 1:41 Introducing guests...Ben and Abi, the siblings! 2:17 Discovering autism in their sibling and how they felt 3:30 The play date with Jess and her younger children 4:45 How do they feel about autism now and would they change it? 8:25 has your sibling ever embarrassed you? 13:17 The wonderful, divergent, aware, understanding younger generations 15:10 Worry for their sibling 19:30 The uniqueness of their sibling and what they love about him 23:56 Noticing the parent strain 28:05 Hopes for their siblings future #4
#5 N/A #6 Calls to Action Pre=roll: changes afoot and new name coming soon. #7 N/A #8 Next Episode: School options for your autistic child | |||
| Easing the 'just getting through day to day stuff' | 27 Oct 2023 | 00:25:00 | |
#1 Me, parent of autistic nonspeaking adhd Henry age 12 about the enormous amount of admin, energy and frustration it takes to ensure your childs' education, health and care are in order, their needs being met and all the form filling, waiting, appointments, research, therapy this takes, that all goes son in the background. It feels though no-one is there for ht parent to acknowledge, believe and support just how it is to get through each day, beginning to end, and the next and the next, especially when a child is dysregulated and/or unhappy. Empathy for the autistic children and what they have to deal with and parting with some tips to cope that have been learned over the years, simply by being a parent. #2 N/A #3 0:00 Intro. 1:20 What goes in the background as a parent of an autistic child. 4:35 What parents/caregivers want to help us get through the day to us, for us and our child. 8:16 Empathy for how incredible autistic people actually are. 9:18 Paying attention to their environment and the sensory. 10:15 Tiny tips purely from parenting: transitions, language, information processing, voice control, sleeping, eating etc. #4
#5 N/A #6 Calls to Action Pre-roll: website price drop plus accessories offer Mid-roll: where to find the podcast; changes coming soon, new business name End roll: blogs #7 N/A #8 Next Episode: Do you sometimes feel manipulated and/or controlled by your child(ren)? | |||
| My first guests: chatting about Home Education. | 13 Oct 2023 | 00:25:04 | |
#1 A relaxed and fairly brief chat to my first guests Kay and her son Isaac who is autistic. We talk about Home Education, what led to Kay's decision to home educate her son, how Isaac feels about it, busting the many myths and how to go about it, finding help and support. #2 Guest names: Kay and her 12 year old autistic son Isaac. #3 0:00 Intro 1:05 How I met my guests and what we are going to discuss 03:40 Apology for the volume issues! 4:11 Kay experience vs Isaac's experience 6:40 Home education not homeschooling 7:22 How to start: de-registration & letter templates; help and support. 11:26 Busting those myths 17:54 Chatting to Isaac who is autistic and 12yrs old 21:40 Quality of Life #4
#5 The general SEN Facebook group is: Supporting SEN Parents/Carers Kent https://www.facebook.com/groups/623533877705416 The home ed Facebook group is: Hearts and Minds https://www.facebook.com/groups/121747604569314 #6 Calls to Action: Where and when to find podcast epodes + website and email reference. #7 N/A #8 Next Episode: transitions and helping get through the day to day | |||
| The Plight of the Parent | 29 Sep 2023 | 00:23:47 | |
#1 Parenthood, for all of us, from the moment you fall pregnant and finish classes on how to actually have a baby, has no manual, you have to just figure it out, from teething all the way through school, puberty young adults the works. Having a neurodiverse/autistic/sen/disabled child adds a whole other layer of intensity and concern. As a SEN parent it is isolating, confidence sapping and so draining just simply trying to sift through, process and follow advice and systems you are forced into versus staying focused on the child, plus then having to prove their needs in order to get the help they deserve. Parents should not underestimate what they are going through nor assume they should indeed be coping and/or their child does not warrant the support they seek simply because it is not forthcoming or they are being told no. #2 N/A #3 Intro 0:00 #4 #5 Peter Vermeulen as guest on 'Uniquely Human' Podcast. 6 Calls to Action: 7# N/A #8 Next Episode: My first guests! Kay & Isaac talk on Home Education. | |||
| My Autistic Child is Nonverbal but, he can talk, huh? | 16 Sep 2023 | 00:30:13 | |
#1 A roughly 30 minute episode discussing being nonverbal or nonspeaking and what Apraxia is. What it means to be nonverbal, why a child still might be ale to use actual words and say speech whilst still being termed nonverbal. What being nonverbal does not mean, motor control and the literal mind. Frustrations and how we help at home day to day on our journey with our fully competent, fascinating and wonderful autistic son. #2 N/A #3 0:00 Intro The nonverbal caption T-shirt. Why? Language is changing. Nonverbal autism does not mean 1-4. Motor control and Apraxia. Talk as in has use of words, vocabulary and no speech impediment although still very literal. Frustrations and how we have learned together, what helps. The autistic mind is a wonderful, fascinating and superior thing to be embraced and respected. #4
#5 N/A #6 Calls to Action pre-roll: price drop on website (T-shirts) mid-roll: blogs end roll: available to give talks #7 N/A #8 Next Episode is no.12 and titled "The Plight of The Parent" | |||
| Communication Funnies - the Joy of the Autistic Mind | 01 Sep 2023 | 00:32:24 | |
#1 A lighthearted episode to lift parents in particular's spirits after a long and no doubt tiring school summer holiday. Choosing humour over distress or anxiety or embarrassment and laughing not at our child but celebrating the joy of who he is and how genuinely unique, hilarious, sometimes downright weird some of the things he does and says are. They make us love him even more so here are some personal funnies. A reminder that there absolutely is so much joy in raising an autistic child, in the purest most astonishing form and to hold onto it in times of exhaustion and concern. #2 N/A #3 0:00 Intro 00:55 pre-roll: reminder what this podcast is about. 01:32 be a voice, not a whisper. 03:33 celebrating autism not laughing at a child. 05:19 parents do not want pity, second to not wanting their child or them judged. 06:33 mid roll: price drop and changes coming soon. 11:00 the funnies: echolalia; how was school today?; "stop your mouth"; the cactus and scissors; food & clothes tactics; welcome and now "say goodbye"; passport control echolalia; stealing chips. 27:15 our joys: looking into my soul; touching others; blanket; intuition; cuddles; giggles; riding his bike. #4 summary:
#5 N/A #6 Calls to action: pre roll - who I am and why podcast mid roll - website and changes afoot mid roll - price drop on tees #7 N/A # 8 not mentioned | |||
| If your autistic child struggles, does that make you a bad parent? | 13 Jul 2023 | 00:35:46 | |
#1 An honest and real episode talking as a parent about the broad areas in which autistic individuals struggle in varying and often very stressing ways ie anxiety, medication, self injurious behaviours. Looking at the advice on cognition, behaviour parents have been given/told to do from the top down to the more current learning from the bottom up, that is from autistic people themselves and the knowledge the their struggles are often moor based and not having full control of their bodies. #2 N/A #3 0:00 Intro 1:00 looking for and understanding the why to unwanted behaviours 1:17 classroom example 9:03 parent persecution 11:14 cognition, behaviour & motor control 14:02 anxiety 18:25 medications 25:00 SIB - self injurious behaviour 35:00 comfort and support #4
#5 Calls to Action pre-roll: none mid-roll: email me anytime, blog, newsletter and website reference end-roll: tag line #6 N/A #7 N/A #8 Communication Funnies - the joy of the autistic mind | |||
| Holidays and Feeling the Strain | 07 Jul 2023 | 00:33:52 | |
#1 An episode at times emotional, at times funny, on what it takes to plan and go on holiday with autistic children. Feeling the strain as parents of the too long school summer holidays especially for autistic children. Why it is so hard, routines and regulation, not feeling guilty & remembering our own childhood memories of the family unit on holiday no matter where or what type. What exactly goes into preparing for, planning and actually going on holiday example re flying. Why queues can be a problem and learning to adjust an do what works for you, the main caregiver and your autistic child(ren). How others can help ease the strain. #2 N/A #3 0:00 Intro 3:55 childhood memories 8:35 and children deserve to be on holiday with their family 11:48 wider family holidays and getting help/respite 17:04 The family Unit 18:49 A feeling off to all parents 19:17 Do what works for you 21:52 routines and regulation 24:45 Queues and the literal mind 25:30 what actually got sinot planning and going on holiday with autistic children 32:18 How you/public can help #4
#5 Calls to Action pre-roll: please share this podcast far and wide mid-roll: none (hint of podcast guests and siblings topic); blog reference & website end-roll: what to expect re Aug #6 N/A #7 N/A #8 Are you a bad parent if your autistic child is anxious, harms, doesn't sleep...? | |||
| Saying 'NO' to an autistic child | 23 Jun 2023 | 00:30:30 | |
#1 Personal stories, anecdotes and experiences as a parent of an autistic, nonverbal, adhd boy called Henry. Talking about whether or not it is true that one cannot say 'no' to an autistic child, why that might be and what we and you and others can do about it & how we can help autistic individuals with overwhelm, disappointment and getting used to boundaries. #2 N/A #3 0:00 Intro 1:05(long version) & 3:30 (short version) personal story 7:15 why might it be difficult to say 'no' to an autistic child 9:48 Instagram account reference/story 13:15 what can you/we do to help - personal experiences & examples 17:34 experiencing overwhelm and meltdowns 21:19 boundaries #4 saying 'NO' to an autistic child
#5 calls to action:
#6 references IG @raising_emma_bear @autismthreads #7 N/A #8 Holidays & what we live through | |||
| Telling your child they are autistic & school visits | 09 Jun 2023 | 00:29:51 | |
#1 This podcast is not about telling anyone what they should or shouldn't do, what is or isn't right & bombarding you who information leaving you feeling deflated, tired, not good enough. This podcast does not provide any answers it's a just a conversation with a friend on the sofa with a coffee in hand, someone who knows what you are living & does not judge. Something to resonate with and feel less isolated about. Needless to say, there are no straight answers about when or how or even if re telling your child they are autistic. Accepting autism in a child goes hand in hand with finding the right school so there is advice on how to approach school visits and why they are so important. #2 N/A #3 0:00 Intro 2:52 Future guests to share how/if they told their child they were autistic 4:08 No right time & no right way. No judgement. 4:42 T-shirt call to action: crowded noisy places can make me anxious, thanks for understanding. 7:23 Knowing you are autistic is illuminating 10:37 Siblings story 13:41 The Kent Autistic Trust (family liaison officer) 14:25 Books 16:22 School visits (must have an echo and booking a visit can take months) 21:41 Hearing your child is not the right fit (Autism specialist schools) 25:51 Wrap up and tips #4
#5
#6 Books: A Different kind of Brilliant by Louise Cummins The Brain Forest by Sandhya Menon We're not Broken - changing the autism conversation by Eric Garcia Changing Our Minds - how children can take control of their own learning by Naomi Fisher Lost at School by Ross W Greene Queerly Autistic by Erin Ekins (LGBTQIA & teens on the spectrum) Different Not less by Chloe Hayden (for girls on the spectrum) #7 N/A #8 Episode 7: saying 'no' to an autistic child | |||
| Our Children Can be Happy and They are Lovely Humans | 24 May 2024 | 00:26:34 | |
#1 A look into how often others/society makes assumptions about neurodivergent and/or disabled people's intelligence just by what they see. having heard about the children/adults and their parents struggles the assumption is that they are always miserable and struggling and a real challenge for their parents, as if there is no joy. What is presuming competence and the true meaning of inclusion, all in Mum/S2C Practitioner-speak! #2 Guest N/A #3 0:00 Intro/Welcome, I'm back 2:51 Today's episode 2:51 The assumption by others/people/friends you know that our autistic and/or neurodivergent children are always struggling and unhappy and that it is an exhausting all day every day challenge for parents. 10:15 There is always a unique personality with interesting thoughts and ideas in every neurodivergent or disabled person you meet. 11:06 What is presuming competence? 12:57 Definition - Cheryl Jorgensen 2005 15:57 Speaking age appropriately to my autistic non speaking son Henry 20:53 Podcast - follow - review - share. Thank you. 23:58 The true meaning of inclusion 25:15 Interested in S2C? Have a look at www.i-asc.org #4
#5 Calls to Action Pre-roll: web page Mid-roll: podcast follow/review/share End-roll: look up I-ASC #6 Next Episode - tbc | |||
| Language matters, or does it? | 26 May 2023 | 00:27:35 | |
#1 A light hearted episode on understanding non verbal versus verbal autism & what it's like to have a child who does not use words to communicate. The language, as in words we all choose to use & why they are so important. Tips for those who do not know how to ask a parent of an autistic child about their child's autism & always assuming full competence. The challenges parents of non speaking autistic children are no harder or easier than those of more functioning children. The ever changing terminology around autism & learning from the autistic community on how they like to be addressed. #2 N/A #3 0:00 Intro A conversation killer What not to ask or say to the parent of an autistic child: tips 1-5 Autism Journeys Communication & assuming competence Terminology and choosing your words #4
#5 Calls to Action See website for blogs of podcast episodes Share this podcast with friends, family, colleagues Fashion for a cause tops & T-shirts on website #6 Uniquely Human, the Podcast: Episode Title - Autism is a journey NOT a verdict https://podcasts.apple.com/us/podcast/uniquely-human-the-podcast/id1532460901 #7 N/A #8 Telling your child they are autistic & planning school visits | |||
| Finding the Right School & EHCP Basics | 12 May 2023 | 00:34:06 | |
#1 A parent's take & advice on finding the right school for your autistic child. Helping to set expectations ie your child is probably going to change schools more than the usual once; timings and lengthy delays/waitlists; the fight to both prove your child's special educational needs and then getting those needs met. Types of autism Specialist schools, a description of the EHCP and beginning of that process through the Local Authority (LA), the laws on which the SEN system is based & why it is so difficult to even get to stage 1 in todays world. #2 N/A #3 0:00 Intro 00:41 personal/parent advice on what to expect 8:55 the lingo - abbreviations explained 11:26 EHCP Tip 19:00 private reports 21:40 types of schools 33:38 sign up to newsletter #4
#5 Calls to Action: signing up to website newsletter at www.autismthreads.co.uk + show notes. #6 Links: https://autismthreads.co.uk https://ehcpjourneys.com https://www.goodschoolsguide.co.uk/special-educational-needs https://www.legislation.gov.uk/ukpga/2001/10/contents https://www.gov.uk/children-with-special-educational-needs TA = teaching or classroom assistant SEN = Special Education Need SEND = Special Education Needs Department SENCO = Special Education Needs Co-ordinator (in schools) LA = Local Authority or Council EHCP = Education (school), Health (medical) & Care (social services) Plan Ed Psych = Educational Psychologist SlT or SALT = Speech & Language Therapist OT = Occupational Therapist #7 N/A #8 Next Episode: Visiting an Autism Specialist School & EHCP tips. | |||
| Judgement & what it feels like | 28 Apr 2023 | 00:25:51 | |
#1 Acknowledging that we all judge. The type of judgement autistic individuals & their parents receive being largely socially related ie for having different, odd, unusual mannerisms, language, movement, social interaction skills. What we as parents to autistic children want others to do about it. Actual examples so that others can know what it feels like, empathise properly and want to then tell their own families and friends or people they meet about. It all comes down to information, understanding, acceptance. #2 N/A #3 0:00 Intro 2:08 something to be in awe of re autistic people 3:58 website reference re visual cues/prodcuts 5:28 social norms "Hi, how are you?'" "I'm fine thanks" 6:48 what parents of autistic children want you to do 19:59 NO APOLOGY slogan T-shirt: fashion for a cause 25:15 How to leave a review #4
#5 Calls to Action:
#6 https://autismthreads.co.uk https://autismthreads.co.uk/collections/adult-t-shirts-autism/products/ladies-long-fit-no-apology-slogan-tee https://www.podchaser.com/podcasts/threads-of-autism-5245925 #7 N/A #8 Next Episode...4: Finding the Right School & EHCP basics | |||
| Autism diagnosis & beginnings | 14 Apr 2023 | 00:27:38 | |
#1 From a parents perspective, what the symptoms & criteria for an autism diagnosis are & how one goes about that. Reactions & comfort knowing how hard it is not to panic. Your child is going to be ok, they are exactly who they are meant to be. #2 n/a #3 0:00 Intro 1:33 Nothing is wrong with your child. 9:20 The backpack! 12:01 Criteria 22:42 Tips for parents struggling at home #4
#5 Subscribe to the podcast to receive access tot eh show notes & more. Leave a review on www.podchaser.com "Threads of Autism" Follow social media accounts @autismthreads #6
https://www.autism.org.uk/advice-and-guidance/topics/diagnosis/diagnostic-criteria
https://www.gov.uk/government/publications/send-guide-for-parents-and-carers BOOKS: The Reason I Jump by Naoki Higashida; Neurotribes by Steve Silberman; Connecting & communications with your autistic child by Act for Autism (Tessa Morton & Jane Gurnett. Imagine If Bespoke Education Experience - Singapore (Pika Sen) #7 n/a #8 Next Episode "Judgement & what it feels like" | |||
| Why this podcast and what to expect | 31 Mar 2023 | 00:25:21 | |
Trish O'Dwyer largely solo hosts 20-30 min fortnightly on Fridays episodes about life as a parent to an autistic nonverbal or non-speaking adhd boy called Henry. It will be story telling in a very real, honest, sometimes funny and sometimes quite raw way. Topics will be things like autism diagnosis and beginnings; judgement & how that feels; EHCP's; relationships; transitions; sleep deprivation and so much more. Trish who was born in South Africa to an Australian Mum and then married an Englishman, has three children and who now lives with in Kent describes who she is and why she set up her own small business helping to support autism families & charities plus raise positive awareness of autism. Why a podcast? A bit about her journey discovering her son's autism and the isolation that came with it wanting others to feel validated, less isolated and connected to someone who knows exactly what they are going through because she lives it too. Telling it like it is basically in a very informal way from a parents perspective & celebrating who our children are and who they were always meant to be. | |||
| Why you should listen & who I am | 15 Mar 2023 | 00:01:32 | |
Being a parent is a journey. Parenting an autistic child, of any age, makes that journey one of discovery, fascination & wonder. The highs & lows, challenges & joys can be unique & intense. We parents tend to have very little free time & can feel both exhausted & isolated. Bringing you Friday fortnightly 20 minute episodes to resonate with, feel validated by, find useful & maybe even have you sharing a good laugh or cry. I hope you feel supported & know that you are not alone. jLtxqZkz5TcaVzY6mkon | |||
| My Guest Tracy on NVR, PDA and a new venture | 23 Mar 2024 | 01:05:44 | |
#1 A good hour long episode chatting to Tracy; how we met; Tracy's background as an OT; her PDA (pathological demand avoidance) and autistic son Jack; their family; discovering NVR (Non Violent Resistance) and a new family venture called 'Aspects Together'! #2 Tracy Weiner #3 Time Stamps: 0:00 Intro to this episode and Tracy, how we met and Tracy's journey 6:35 Why is my child not coping? What is wrong with my parenting? Discovering PDA and getting no support. 15:08 "It's can't not won't" and "meet their storm with your calm" 16:40 NVR - non violent resistance, a theraputic parenting program through CAMHS 32:08 PDA Tops Tips 45:35 'Aspects Together' - new venture with husband Mark - see fb page 52:13 A story about my Dad and being a carpenter...link to men's mental health and the woodworking workshop at 'Aspects Together' 57:27 a long and positive and uplifting round-up #4 Summary
#6 N/A #7 PDA Society; NVR and Aspects Together + Blinkvist - see research links #8 Next Episode : Neurodiverse people can be happy and are wonderful human beings. | |||
| In the home with neurodiverse children 24 hours at a time | 23 Feb 2024 | 00:26:19 | |
#1 This is not an episode on bad parenting or bad children, its an episode why we feel like bad parents and why our autistic and/or adhd and/or neurodiverse children are often made to feel this way. How us parents wish someone could come into our homes and simply observe and offer helpful advice on how to make getting through each 24 hr cycle easier + have someone who actually can witness and believe us and our children. Why its a challenge every single day and what a quick run through of 24 hours in the home is like. #2 Guest N/A #3 Time Stamps: 0:45 Intro to this episode 1:00 feeling like a bad parent 2:37 who is there for the parent for those 12-16 hours every day? 2:57 what we wish we had...someone actually come into our home to observe 3:30 someone to believe us and believe our children 6:00 my experience with this actually happening for me and the difference it made 8:30 rant about social service 11:39 Friends or relatives or 1:1's or ta's etc wanting to know what its actually like and how to help 14:57 can't NOT won't 17:00 The 24 hours! #4 Summary
#6 Calls to Action: Pre - roll: I am 20 episodes in...thank you for your listens and shares and follows Mid-roll: newsletter sign up via website and how to find it quickly End roll: The free online SpellX event #7 SpellX - see research links #8 next Episode- tbc | |||
| Food Wars - autism, adhd, spd, the neurodiverse | 16 Feb 2024 | 00:24:08 | |
#1 Food wars vs food relationships and the battle with their sensory systems that are constantly changing. There is so much more going on than just the food. It's different to the neuro-typical journey of fussy or picky eaters. My own experiences and advice from having raising a now 20 yr old son who is adhd plus my youngest Henry who is on speaking, autistic and adhd, age 12. They do grow and develop and their eating habits, relationships with food and mealtimes do get better. Look to professionals (nutritionists, dietitians etc)who are autistic themselves and/or actually live the autism journey as parents for the right advice e.g Yaffi Lvova. #2 GUEST: N/A #3 0:00 Intro 0:48 'food wars' should really be 'food relationships' 1:37 It's not war against the child, its against their sensory systems 2:00 Its not just about the food 4:04 what's especially tough for parents 5:31 my own experiences and examples with two of my 3 children 9:37 under/over weight 11:25 Nutritionist and other 'experts' advice 14:00 mix it up, experiment, try not to get riled, forget the traditional rules/norms/manners 17:25 The younger years and thinking things would never get any better, and the now 22:00 Our childrens brains work differently, it is not the same 22:30 Yaffi Lvova, nutritionist and dietitian who lives it and knows the autism journey. #4
# 5 Calls to Action pre-roll: new name, website, newsletter mid-roll: thank you for the listens + follow + review/comment #6 see under 'research links' #7 N/A #8 n+Next Episode...tbc | |||
| Stop apologising for your child's autism | 27 Jan 2024 | 00:22:04 | |
#1 The message as per an original unisex 'Autism Threads' slogan T-shirt is "NO APOLOGY". Autism is part of who our children at any age, are. It is part of their make-up, it is responsible for the incredible minds they do have and we should make no apology for their actions, noises, lack, of eye contact, different ways of communication. An introduction to Elizabeth Vossellor, Founder of S2C that is 'Spelling to Communicate', a film recommendation called "The reason I Jump" and what 'no apology' translates to for all of us on any given day. #2 Guest: N/A #3 Timeline: 0:00 Intro - welcome and intro to my either and/or autistic, adhd, neurodiverse children. 2:52 The NO APOLOGY unisex slogan T-shirt. 4:35 Why NO APOLOGY? 6:23 Meeting Elizabeth Vossellor, Founder of 'Spelling to Communicate/S2C' and her analogy for NO APOLOGY. 14:00 The Reason I Jump film and Bradstow School. 16:53 Never apologise for who you are. What's your NO APOLOGY for today? 19:05 School refusal/avoidance crisis in the UK. #4
#5 Calls to Action: New website + newsletter and podcast sing-up The NO APOLOGY T-shirt #6 Links/References: https://youtu.be/W2GJO_rtzrs?si=Mjkv4pf3GsjpXMON https://i-asc.org/ #7 Social media: N/A #8 Next Episode: When you meet an autistic person...how to engage | |||
| A non-speaking child, who has words! | 16 Jan 2024 | 00:23:11 | |
#1 New Year vibes, already knackered, down with colds again and no resolutions made! Not an episode inviting a pity party but one encouraging awareness as I share what it's like for my non speaking son and I and how I describe just how fully competent he and all non speaking autistic people are and how we need to start to presume competence and treat them both with respect and age appropriately. tit bits on what I am learning as a Spell to Communicate Practitioner. #2 N/A #3
#4
#5 Calls to Action: Intro only - new name and webpage + newsletter sign-up #6 Books: The Reason I Jump by Naoki Hiagshida Ido in Autismland by Ido Kedar (available in audible too) Carly's Voice by Arthur Fleischmann & Carly *Underestimated by JB Handley & son *= reference to S2C Spelling to Communicate program and EV, my course leader! #7 N/A #8 TBA | |||
| Sleep Sagas | 08 Dec 2023 | 00:26:08 | |
SHOW NOTES: #1 News on the new podcast name and website coming soon. Announcement about a new training course I am on and an informal, lighthearted look at sleep issues for both autistic children and adults plus their parents. The why and what helps in terms of sleep onset problems and paying attention to ourselves as parents and the physical and mental impacts of years of sleep deprivation. #2 NO GUEST #3 0:00 - 4:45 Intro - new podcast name and why 1:32 Spell to Communicate (S2C) practitioner in training, ooh err. 7:08 Sleep onset issues and why 9:46 Sleep aids 11:04 Melatonin medication 16:07 Parents and sleep deprivation 21:18 Remaining calm 24:34 Christmas! #4 Summary
#5 Calls to Action: pre-roll: new name and website + how to follow mid-roll: share with friends and family, review an episode end-roll: thank you for your continued support #6 References: https://i-asc.org/ trishandpaul@sky.com for any non or minimally or unreliably speaking autistic children or adults interested in free 45 min - 1hr weekly spell to communicate sessions in Tonbridge, Kent. #7 Instagram: @_thethreadsoflife_ #8 Merry Christmas! I'll be back 12 Jan 2024. | |||
| Do you sometimes feel manipulated and/or controlled by your child? | 24 Nov 2023 | 00:25:54 | |
#1 An informal, light hearted, parent speak, type of chat about the current parent generation and their unique struggles plus the parent child shift in terms of respect and what our children and especially autistic children are doing when they need to control and manipulate us parents. An example of setting boundaries and mentioning motor loops. #2 N/A #3 0:00 Intro and new podcast name, website, blogs, newsletter + maybe one iconic awareness tee, all coming soon. Also a little teaser about my new job ie S2C practitioner training! 4:00 Being in the pity pit as a parent and all parents of my particular generation aka the current 50 somethings... 12:03 Being aware that both you and the environment are being controlled and in the case of an autistic child allowing it and why. 16:09 Setting boundaries and motor loops - the dining chairs example. 22:27 Can't not won't 24:13 A "Uniquely Human" podcast episode recommendation on the many meanings of the word NO and why our children might and also may need to use it. #4
#5 Calls to Action Pre-roll: new podcast and website name plus newsletter sign-up Mid-roll: none End Roll: 'Uniquely Human' podcast recommendation #6 Uniquely Human: The Podcast - Uniquely Human: The Podcast #7 N/A #8 A guest: Tracey Weiner on her autistic son Jack, PDA, NVR and her new venture. | |||
| Getting to Grips with Praxis | 01 Apr 2026 | 00:22:36 | |
#1 Summary An episode using my knowledge and experience of Spelling to Communicate as both a practitioner and parent. Helping families to understand the term Praxis and why nonspeaking, minimally and unreliably speaking autistic individuals are Apraxic. #2 Guest n/a #3 Time Stamps 0:00 Intro - Get S2C mentioned on those EHCP's in the UK 2:36 Praxis and what we know from Spellers themselves 3:52 Types of Motor 6:16 Praxis is... 7:32 Apraxia is... 11:42 Purposeful motor is regulating 12:58 Talk to the body and breaks down the steps of movement required 14:37 What has made such a big difference to us in the home 17:17 Why CRP's need to start on the 3 boards/stencils, always 19:32 Don't give up and wrap up #4 Bullet Points
#5 Calls to Action pre-roll = I-ASC mid roll = n/a end roll = thanks and share #6 References and Links n/a #7 Social Media n/a #8 Next Episode tbc | |||
| Let's Get a Pet for Our Autistic Child! | 23 Feb 2026 | 00:19:42 | |
#1 Summary A short and lighthearted New Year's episode on the popular decision so many parents of neurodivergent children come to at a certain stage on their journey to get a pet to help their autistic and/or neurodivergent child. Much like becoming aware of possible adhd traits we seem to get sucked into stories and advice about how good a pet can be, especially when our children are struggling with socialisation and accessing the community - calming, sensory, connection, confidence boosting, anxiety reducing, speech improving, the lot. And of course, as parents, we put aside all our current coping and sleep deprivation woes and decide we absolutely should and must try this, it could be a game changer. My own disastrous personal experience shared. #2 Guest: n/a #3 Time Stamps: 00: Intro 0:33 Personal advice - don't do this! Ha ha ha 1:26 Part of the journey along with adhd when it comes to autism 6:40 Our family story 9:32 Child toys vs dog toys...competition 13:50 The vet said "NO" re-home this dog 17:15 Hindsight 18:11 What Henry has now said in his own words through Spelling to Communicate #4 Bullet Points:
#5 Calls to Action: pre-roll - n/a mid roll - website newsletter sign-up end-roll - upcoming Boot Camp #6 References and Links - see below #7 Social Media: n/a #8 Next Episode: Getting to Grips with Praxis | |||
| My Journey with Spelling to Communicate S2C - Part B | 29 Oct 2024 | 00:33:28 | |
#1 Continuing the S2C journey with my son Henry who is 13, non-speaking autistic and adhd. He is learning to point to letters of the alphabet on stencils to answer questions from age appropriate lessons and I am learning to become his co-regulation partner (CRP) on the stencils/boards. It is a long journey that takes an enormous amount of commitment. It is fraught with inconsistencies and frustrations, takes many people to be invested in it, heaps of belief and the determination to never give up. But what could be more important right? It will eventually lead to Henry being able to spell out his own thoughts and ideas giving him not only access to communication at last but agency and autonomy too. How incredible and how exciting. #2 Guest N/A #3 Time Stamps 0:00 Intro to episode and Part A recap. 1:00 What S2C sessions look like and involve. 3:13 Becoming a co-regulation partner (CRP). 9:30 What your practitioner will teach you the parent about: speech vs language; types of motor; presuming competence; the boards/stencils and how to use. 14:35 Paradigm shifts to make as a parent. 19:35 What is least dangerous assumption you could make? 20:57 Where I am at with Henry so far and how it has gone during the past 9 months or so. #4 Summary
#5 References/Links/Books: see links below #6 Calls to Action mid-roll: my monthly newsletter on www.thethreadsoflife.co.uk #7 Social Media see @_thethreadsoflife_ #8 Next Episode November and tbc | |||
| What Does Progress Look Like? | 20 Sep 2024 | 00:27:26 | |
#1 Taking a look at what progress actually looks like for parents of neurodivergent children and adults. How their progress is typically measured. They are growing and developing all the time regardless. A brief look into Apraxia for nonspeaking individuals. Recognising that it's can't not won't; believing it gets better by just being there for them and learning every day. Learning to recognise, acknowledge and celebrate the wins, even what to others may seem tiny or insignificant. #2 Guest: N/A #3 Time Stamps: 0:00 Intro 0:13 Neurodivergent children are measured against what neurotypical children their same age can do. Not fair or appropriate. 1:14 No-one in education is harnessing the potential of the ND mind or even being curious. 3:25 The environment you place them and their amazing brains in is key. 5:00 Nonspeaking, minimally or unreliably speaking individuals and Apraxia 6:35 There is no look to listening or to intelligence 10:07 Using my son as reference for and naming examples of - me reaching out to parents and their children/adults who are really struggling right now. 16:12 There is model or previous generation experience or anything even from most of our parents on how to support and raise an ND child. 18:30 It gets better! It does. Example - sleep. 21:38 The water trick and recognise, acknowledge and celebrate the tiny wins. They are actually BIG wins. #4 Summary
#5 Calls to Action Pre-roll: My Journey with S2C episode mention. Mid-roll: Uniquely Human Podcast. End-roll: none #6 References/Links None #7 Social media N/A #8 Next Episode tbc | |||
| Autism AND adhd = Complicated | 22 Dec 2025 | 00:28:19 | |
#1 Taking a look at and sharing my experiences as a parent of adhd and autism in a non-speaking child + adhd in a young adult in mainstream. Trying to figure which is the autism and which the adhd; deciding to medicate and what happens; understanding apraxia and hoping parents and families resonate, feel less alone and more informed of how it actually can go. #2 Guest: n/a #3 0:00 - 4:46 Intro - it's been a while. 4:47 Adhd becoming apparent in your child in their early primary years in non-speaking, minimally or unreliably speaking autistic children. 7:10 What us parents are trying to do. 8:03 Not having motor control, heightened sensory systems and briefly explaining praxis. 12:55 What to expect 16:40 Side effects - loss of appetite, sleep difficulties 20:02 Mainstream/speaking children and a diagnosis in a young adult 22:57 When they decide to stop taking their meds 24:56 Wrapping up and all that. #4 Summary:
#5 References: see below #6 Calls to Action: Pre Roll - newsletter sign up and finding webpage Mid Roll - n/a End Roll - follow the podcast, leave a review, email in #7 Social Media: n/a #8 Next Episode: Let's Get a Pet to Help Our Autistic Child | |||
| Guest Harriet Carter and her new SEN School | 05 Aug 2025 | 00:38:22 | |
#1 Summary: Introducing Harriet Carter and telling the story of how we met. Harriet is opening her own new SEN primary school near Maidstone in Kent, UK in September 2025 and will be introducing Spelling to Communicate (S2C). Harriet has been in education for over 20 years, has a non speaking nephew Lenny and has spent the best of five years acquiring a site, finding investors and planning her new school called Earley Springs. We talk about her journey, some of the hardships and triumphs, why the name, S2C and looking ahead. #2 Guest: Harriet Carter - Owner, Founder and Head Teacher of Earley Springs. #3 Time Stamps: 0:00 Intro - Starting Conversations, how Harriet and |I met and introducing her. 4:26 Harriet tells us her personal and professional story about why she is opening this new school. 7:05 Every day is a school day! 8:27 Inspired by her Auntie and nephew hence the school name. 10:15 SEN Schools where set up by parents, families, relatives with a connection who actually know what to provide. 11:08 School name and logo + vision for the school. 12:10 Top Tips. 3 Highs. 3 Challenges. 14:13 The London Marathon! 17:45 Harriet's absolute dream and the curriculum. 23:36 A blueprint for other parents/individuals do the same. 25:00 Spelling to Communicate / S2C. 34:43 Why I'm excited - the whole communication approach. 36:17 True inclusion starts with presuming competence and knowing that children and adults want to and can learn. 37:11 Open Day 9 August 1-3pm. All welcome. #4 Bullet Points:
#5 External References and Links: see below #6 Calls to Action: N/A #7 Social Media: fb - Earley Springs #8 Next Episode: tbc | |||
| Common Themes on the Parent Plight | 23 Jul 2025 | 00:35:57 | |
#1 Summary Trying to tactfully (and probably not successfully) put it out there that non speaking, minimally and unreliably speaking autism is not quite the same journey as other autism or neurodivergent journeys and the therapies, schools and health care do therefore not always work as well, at all, or in the same way. There are so many commoin themes of wha tparents do to try and get their chiuldren and adults the help they need so this episode is dedicated ot sharing those, having alaugh over things tried and trying help others get honest, real advice on what pwrks, what doesn't, how and why. When all th ewhile each individual is unique and different. #2 Guest n/a #3 Time Stamps: 0:00 Intro - see summary above and starting with diagnosis 4:10 Do what works for you, your child and your family 6:27 Speech and Language + Occupational Therapy 11:42 There is nothing you should be doing, don't panic. 12:09 Diet and nutrition 16:37 What our children are 17:24 Why do S2C - the importance of and basic right to communication 19:35 Sleep onset issues 23:45 adhd meds 25:20 anti anxiety meds 25:56 Back to S2C. It works. New School coming soon and using S2C! 28:15 Finding the right school #4 Bullet Points: Common Themes
#5 Calls to Action: Early/mid roll - newsletter Mid+ roll - Guest episode coming soon re new S2C using school! End roll - thank you re podcast #6 Links and References: n/a 7# Social media: n/a #8 Next Episode: Harriet Carter of Earley Springs - new SEN primary opening in Kent Sept 2025 | |||
| My Journey with Spelling to Communicate S2C - PART C | 29 May 2025 | 00:33:03 | |
#1 Summary My non-speaking son Henry, now 14 and I are up on the 26 letter-board now that is hugely exciting and also challenging - a bit like starting all over again. And episode sharing our tirals and tribulations with being a parent CRP (co-regulation partner) and some tips and wisdom that have been passed on to me as a Practitioner now from the one and only Elizabeth Vosseller (EV) and her equally amazing counterpart Anna Lechleiter of Palz Ireland. #2 Guest: N/A #3 Time Stamps: 0:00 Intro to Episode. 1:43 How practice is going at home and being up on the 26. 4:57 Toggling. 8:00 Mispokes and 3 board foundations. 9:22 The excitement and experience of semi-opens, prior knowledge and even open questions. 10:45 Encouragement, emotions and expectations. 13:30 The Motor vs Cognitive balance i.e. seesaw. 16:36 Reassurances and being cool! 20:29 Windows into their personalities. 22:07 Not assuming we know what they are thinking and feeling by looking at their bodies. 24:15 Working through dysregulation and being the mailmen/women. #4 Main Points
#5 References: see below for details on I=ASC (International Association for Spelling as Communication or S2C) and Anna at Palz Ireland. #6 Calls to Action: pre-roll: welcome and thank you mid-roll: i-asc end-roll: inviting guests and how to become a practitioner #7 Social media n/a #8 Next Episode tbc | |||
| Lets Talk Travelling | 06 Apr 2025 | 00:39:46 | |
#1 Summary An episode for those of you who live the same life as we do i.e. with neurodivergent and SEN children, to resonate with, feel validated by, laugh at and know you are not alone when it comes to travelling. And for others listening to know our struggles, become aware and help us change attitudes. Encompassing all things travel related from walking to the local shops, to cars; buses; trains, and planes. Even pushchairs! No boats though. #2 Guest: N/A #3 Time Stamps: 0:00 Intro to Episode. 2:14 The baby and the pushchair. 5:45 These are some of the hardest moments. 6:52 The post toddler and the pushchair! 8:59 Public transport and hyper vigilance - walking, buses, trains. 15:14 Disabled Parking Badges. 19:08 Public toilets. 23:26 Flying. 34:24 If you never want to brave flying, that's fine. 37:50 The balance. #4 Main Points
#5 References: see below for details on I=ASC (International Association for Spelling as Communication or S2C) #6 Calls to Action: pre-roll: free 30 min episodes to please share mid-roll: my webpage + newsletter + blogs #7 Social media n/a #8 Next Episode tbc | |||
| S2C Lesson Writing with Guest Helen Adderley | 27 Feb 2025 | 01:01:57 | |
#1 Summary An hour long episode with guest Helen Adderley who is so charming and intelligent and joy to chat with. Helen talks us through her own personal journey with her son Phil, becoming a Spell2Communicate Practitioner and most importantly about her book of lessons for non speaking, minimally and unreliably speaking individuals learning to spell to communicate plus how to write a good lesson. it is relevant to all Practitioners, Practitioners in Training (PITs) and parents and CRP's (co-regulation partners). #2 Guest: Helen Adderley #3 Time Stamps: 0:00 Intro to Episode. 2:30 Introducing Helen Adderley and how her and I met. 4:28 Helen and her son Phil's journey/story- PECS, Signing. 9:43 Finding S2C and training to become a Practitioner. 18:53 Why the lesson is so important: boredom. flow. momentum. 24:23 Categorisation = Age Appropriate. Follow the flow with your questions (multicoloured). 25:23 Spellers want to learn. keep it interesting, conversational. Take note of day to day things that interest or fascinate you + any of your own experiences, memories, passions. 27:04 There must be a mutual respect. A lesson as Elizabeth Vosseller says is.."an invitation to have a conversation". 28:15 Helen's 7 Top Tips for Lesson Writing. 46:12 Helen's Book: "British -Themed S2C Lessons" is available on Amazon and is for older/adult spellers. All proceeds are being donated to the non-profit organisation I-ASC (International Association for Spelling as Communication). #4 Main Points
#5 References If you live in the North Wales area and are looking for a certified S2C Practitioner for your non-speaking, minimally or unreliably speaking child/adult please contact either Helen Adderley helenadderley@stocuk.com or Iwona Koza Iwonakoza25@gmail.com #6 Calls to Action n/a #7 Social media n/a #8 Next Episode tbc | |||
| adhd Parenting - the day to day woes | 24 Jan 2025 | 00:26:51 | |
#1 Summary As much as we love and embrace our neurodivergent children, raising them is challenging and often leaves us feeling as though we are going round in circles. An honest look at parenting my own two sons and their adhd, one being 13 and non-speaking autistic, the other 21 and at home having dropped out of uni. Sharing the woes experienced with diagnosis; impulsivity in the brain; medication; executive function; disassociation, demand avoidance. #2 Guest n/a #3 Time Stamps 0:00 Intro 1:25 personal family history on 3 x adhd diagnoses in my two sons and daughter. 2:16 Diagnosis and meds for a non-speaking autistic 8yr old 7:20 Separating the autism from the adhd 8:39 The 21 year old's story of adhd 10:54 The day to day woes 13:56 Executive function 17:06 Disassociation 18:31 Demand avoidance 21:04 we are both learning, I am learning to not expect a neurotypical journey and to work with who my child is and what he can actually do. 22:44 Extra time in exams whine! #4 Main Points
#5 References n/a #6 Calls to Action pre-roll: thanks and share #7 Social media n/a #8 Next Episode tbc
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| Going Residential | 29 Nov 2024 | 00:27:37 | |
#1 Even thinking about your child potentially needing a residential placement is traumatic and gut wrenching so actually sending them is the hardest decision families can make. A personal episode to raise awareness, to help the decision making process for parents/carers and to rid the stigma of what people assume it is. #2 Guest N/A #3 Time Stamps 00:00 Intro and 3 reasons why I am recording this episode. 2:00 Learning form our own neurodivergent children and adults. 4:30 Being done with the guilt and shame of having my child in a part residential school. 5:05 What others assume. 6:25 What the truth is and how incredible these schools and their staff are. 8:33 Our experience and the benefit to our son and family. 9:32 The impact (on me) and where our son is at now 2.5 yrs on. 18:21 Support for parents/carers making a decision on a residential school. #4 Summary
#5 Calls to Action Pre-roll: thanks to listeners and recent stats Mid-roll: n/a End-roll: n/a #6 References/Links N/A #7 Social media N/A #8 Next Episode - tbc | |||