The HDSA Podcast – Details, episodes & analysis

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The HDSA Podcast

Huntington's Disease Society of America

Business

Frequency: 1 episode/93d. Total Eps: 15

The HDSA Podcast gives listeners an opportunity to meet members of the Huntington's disease community and get a behind-the-scenes look at the Huntington's Disease Society of America. A new episode will be released every month and please visit www.HDSA.org to learn more about HD and how to get involved.

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Score global : 47%

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S4:E1 - Let's Talk About HD with Tam, Allison & MaryAnn

Season 4 · Episode 1

Thursday, April 23, 2026 • Duration 27:32

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Meet the new hosts of the HDSA Podcast: Tamara Maiuri, PhD, Associate Director of Research and Patient Engagement; Allison Bartlett, Esq., Senior Manager of Disability Programs; and MaryAnn Emerick, LMSW, Senior Manager of Youth & Community Services. Together, they bring expertise, insight, and a deep commitment to the Huntington’s disease community.

Don't forget to follow us on social media!

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S3:E1- Let's Talk About Volunteering with HDSA

Season 3 · Episode 1

Wednesday, February 12, 2025 • Duration 22:07

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In this insightful episode, Neekia Davis, Teresa Srajer, Beth Hoffman, and Dom Thomas dive into the importance of volunteering and how you can get involved in supporting the Huntington’s Disease Society of America (HDSA). They share personal experiences, tips for making an impact, and why volunteers are the heart of the organization. Whether you're looking for ways to give back or just curious about HDSA’s mission, this conversation is packed with inspiration and practical advice.

Don't forget to follow us on social media!

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S2:E5 Let's Talk about the HD ELPFDD Meeting

Season 2 · Episode 5

Monday, December 2, 2024 • Duration 24:15

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In this insightful episode, Neekia Davis and Phyllis Foxworth dive deep into the highlights and critical discussions from the ELPFDD Meeting on November 13th. They break down the key takeaways, and provide an inside look at the collaborative efforts shaping the next steps.

Join us as they outline action plans, share community feedback, and discuss strategies for addressing the pressing challenges and opportunities identified during the meeting. Whether you attended the ELPFDD or are catching up on what you missed, this episode is packed with valuable insights to keep you informed and engaged in the journey ahead.

Tune in to stay in the know and discover how you can contribute to the path forward!

Don't forget to follow us on social media!

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S2:E4 - Let's Talk About POWERHD

Season 2 · Episode 4

Friday, October 18, 2024 • Duration 22:30

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In today's episode, we're thrilled to take a deep dive into POWERHD with special guests Erika Boulavsky, MSW, LCSW, Community Outreach Specialist at HDReach, and MaryAnn Emerick, LMSW, Manager of Youth & Community Services at HDSA. Tune in for an insightful conversation!

Don't forget to follow us on social media!

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S2E3: Phyllis Foxworth & Dr. Victor Sung

Season 2 · Episode 3

Tuesday, June 11, 2024 • Duration 37:52

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In this episode, HDSA's President & CEO Louise Vetter is joined by Phyllis Foxworth and Dr. Victor Sung to chat about the changing landscape of research.

Phyllis is the Senior Manager, Advocacy at HDSA

Dr. Sung is the Director of the HDSA Center of Excellence at The University of Birmingham, Alabama, and the former chair of the HDSA Board of Directors.

To learn more about Huntington's disease, please visit HDSA.org.

Don't forget to follow us on social media!

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S2E2: Leora Fox, PhD & Kelly Andrew Part 2

Season 2 · Episode 2

Wednesday, May 8, 2024 • Duration 39:11

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In this episode, HDSA's President & CEO Louise Vetter is joined by Leora Fox, PhD and Kelly Andrew to chat about Somatic Instability and how to get involved in research opportunities.

Leora is the Assistant Director of Research and Patient Engagement at HDSA.

Kelly is the Coordinator of Research and Mission Programs at HDSA.

To learn more about Huntington's disease, please visit HDSA.org.

Don't forget to follow us on social media!

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S2E1: Leora Fox, PhD & Kelly Andrew

Season 2 · Episode 1

Thursday, April 18, 2024 • Duration 42:18

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In this episode HDSA's President & CEO Louise Vetter is joined by Leora Fox, PhD and Kelly Andrew.

Leora is the Assistant Director of Research and Patient Engagement at HDSA.

Kelly is the Coordinator of Research and Mission Programs at HDSA.

To learn more about Huntington's disease, please visit HDSA.org.

Don't forget to follow us on social media!

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Episode #3: Maryann Emerick, Dr. Jim Gusella and Dr. Marcy MacDonald

Season 1 · Episode 3

Thursday, March 30, 2023 • Duration 49:23

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In this episode HDSA's President & CEO Louise Vetter is joined by MaryAnn Emerick; Dr. Jim Gusella and Dr. Marcy MacDonald.

Maryann is HDSA's Manager, Youth & Community Services and an HD family member.

Dr. Gusella is a Professor of Neurogenetics at the Department of Genetics at Harvard Medical School.

Dr. MacDonald is a Professor of Neurology at Mass General Hospital.

To learn more about Huntington's disease, please visit HDSA.org.

Don't forget to follow us on social media!

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Episode #2: Chris Cosentino & Robi Blumenstein

Season 1 · Episode 2

Tuesday, February 28, 2023 • Duration 53:31

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In Episode #2, Louise Vetter is joined by Chris Cosentino & Robi Blumenstein.

Chris Cosentino is HDSA's Director of Marketing & Communications and has been with the Society since 2014.

Robi Blumenstein is President of CHDI and in 2002 organized CHDI Management to provide management services to non-profit organizations engaged in Huntington’s disease research.

Don't forget to follow us on social media!

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Episode #1: Arik Johnson & Teresa Srajer

Season 1 · Episode 1

Thursday, January 26, 2023 • Duration 38:06

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In this episode HDSA's President & CEO Louise Vetter is joined by Arik Johnson, PsyD and Teresa Srajer. They discuss the launch of the new HDSA Podcast, the 38th Annual HDSA Convention and a behind-the-scenes look at the Huntington's Disease Society of America.

Dr. Johnson is HDSA's Chief Mission Officer and former Chair of HDSA's Board of Trustees.

Teresa is an HD family member, long-time volunteer and HDSA's newly appointed Chair of HDSA's Board of Trustees.

To learn more about Huntington's disease, please visit HDSA.org.

Don't forget to follow us on social media!

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The HDSA Podcast – Details, episodes & analysis

Podcast details

Recent rankings

Apple Podcasts

Spotify

Shared links between episodes and podcasts

RSS feed quality and score

Publication history

Latest published episodes

Related Shows Based on Content Similarities

Apple Podcasts

Spotify

Related Shows Based on Content Similarities

The HDSA Podcast – Details, episodes & analysis

Podcast details

Recent rankings

Apple Podcasts

Spotify

Shared links between episodes and podcasts

Buzzsprout1

RSS feed quality and score

Publication history

Latest published episodes

Similar podcasts and content

Related Shows Based on Content Similarities

Apple Podcasts

Spotify

Related Shows Based on Content Similarities

Buzzsprout1