The Cure CERT1 Podcast – Details, episodes & analysis

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The Cure CERT1 Podcast

Lottie's Light Foundation

Business

Health & Fitness

Frequency: 1 episode/61d. Total Eps: 4

Wesley and Samantha Rogers will be hosting regular podcasts in hopes to keep all those in the CERT1 community up to date regarding happenings at Lotties Light Foundation. We hope that together, we will illuminate a cure for all those affected by CERT1 or CerTra Syndrome. This is our newsletter to you. Please feel free to reach out to us if you have questions regarding this information or want to add your input. Thank you!

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Data updated on 14/07/2026

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https://lottieslight.org/register/
2 shares
https://lottieslight.org/volunteer/
2 shares
https://lottieslight.org/newly-diagnosed/
2 shares

https://www.facebook.com/lottieslight
1 share
https://www.facebook.com/share/16rqWCntjt/?mibextid=wwXIfr
1 share

https://www.instagram.com/lottieslightfoundation
1 share

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Score global : 38%

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The Cure CERT1 Podcast: Episode 4

Season 1 · Episode 4

Sunday, September 21, 2025 • Duration 15:05

September 21, 2025 We are back with a new episode, and lots of updates! Episode 4 covers volunteer and fundraiser highlights, a recap of our CERT1 Splash success, spotlight of our 1st annual CERT1 consortium, and information/resources on research and registration efforts. Featured links below! >> To register: https://lottieslight.org/register >> To get in touch with the researchers and enroll in their study, we will connect you! Email us at hello@lottieslight.org >> To volunteer: https://lottieslight.org/volunteer >> Read Brantley's story: https://www.facebook.com/share/16rqWCntjt/?mibextid=wwXIfr >> CERT1 SPLASH 2025 (give to our existing fundraiser, or create your own page to host your own event!) : https://givebutter.com/CERT1Splash2025

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The Cure CERT1 Podcast: Episode 3

Tuesday, April 29, 2025 • Duration 13:04

April 23, 2025 – Podcast 3 REGISTER WITH OUR FOUNDATION (CERT1 FAMILY, FRIENDS, & SUPPORTERS): https://lottieslight.org/register/ VOLUNTEER YOUR TIME AND TALENTS: https://lottieslight.org/volunteer/ CONSORTIUM Hear from the lead CerTra Syndrome (CERT1) researchers SUMMER FUNDRAISER Cert1 Splash Dates and Details coming soon NEWLY DIAGNOSED? Resources for families here: https://lottieslight.org/newly-diagnosed/ Episode 3 of #TheCureCert1Podcast #CureCERT1 #CERT1 #CerTraSyndrome #CureCerTra #LottiesLight #IlluminateACure #RareTogether #epilepsy #autism # intellectualdisability #id #anxiety #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #LottiesLightFoundation #CareAboutRare #PatientAdvocacy #GCchat #Neurology #GeneChat #COL4A3BP

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The CureCERT1 Podcast: Episode 2

Season 1 · Episode 2

Wednesday, March 26, 2025 • Duration 09:49

Wednesday, March 6, 2025 – Podcast 2 RARE DISEASE MONTH CERT1 STORIES – Thank you Javier, Willy T, Harris, Andrew, Emily Norah, Emily, Gideon. See their stories on Facebook: https://www.facebook.com/lottieslight See their stories on Instagram: https://www.instagram.com/lottieslightfoundation/ SHARE YOUR STORY: https://lottieslight.org/share/ REGISTER WITH OUR FOUNDATION (CERT1 FAMILY, FRIENDS, & SUPPORTERS): https://lottieslight.org/register/ VOLUNTEER YOUR TIME AND TALENTS: https://lottieslight.org/volunteer/ PODCAST PRODUCTION: Thank you Keylon Almond and Dana Wander CONDOLENCES to the loved ones of Mary Lou Bobey, a great grandmother of one of our CERT1 kids. Thank you to those who donated to Lottie’s Light Foundation in her honor. CONSORTIUM coming soon either My 2 or 3- Hear from the lead CerTra Syndrome (CERT1) researchers SUMMER FUNDRAISER Cert1 Splash Dates and Details coming soon NEWLY DIAGNOSED? Resources for families here: https://lottieslight.org/newly-diagnosed/ Episode 2 of #TheCureCert1Podcast #CureCERT1 #CERT1 #CerTraSyndrome #CureCerTra #LottiesLight #IlluminateACure #RareTogether #epilepsy #autism # intellectualdisability #id #anxiety #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #LottiesLightFoundation #CareAboutRare #PatientAdvocacy #GCchat #Neurology #GeneChat #COL4A3BP

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The CureCERT1 Podcast: Episode 1

Season 1 · Episode 1

Monday, March 24, 2025 • Duration 15:06

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The Cure CERT1 Podcast – Details, episodes & analysis

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The Cure CERT1 Podcast – Details, episodes & analysis

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