What is the HLH Network and how is it improving patient care? 

In this inaugural episode of our Innovators mini-series, Dr Alexis Jones, Dr Matt Szeto and Dr Denise De Lord join Dr Lizzy MacPhie to talk about the Haemophagocytic Lymphohistiocytosis (HLH) Network, which won a 2024 BSR Best Practice Award. The network brings together specialists from rheumatology, haematology, infectious diseases and more to provide rapid collaborative care for patients with this challenging diagnosis.  

Our guests discuss the challenges of diagnosing and caring for patients with HLH, how they set up their own MDT networks to address these challenges locally, their Trusts’ improving survival rates, and the new GIRFT HLH pathway.  

Want to find out more? There are lots of HLH resources to explore:  

• Find out more about the team’s award-winning project 
• Listen to our HLH spotlight podcast for essential practical tips from Dr Jessica Manson
• Download a copy of the new GIRFT pathway and guidance document
• Visit the HiHASC website for more resources

Thanks for listening to Talking Rheumatology! Join the conversation on X using #TalkingRheum or tweet us @RheumatologyUK.

BSR is the UK's leading specialist medical society for rheumatology and MSK health professionals. To discover how we can support you in delivering the best care for your patients, visit our website.

BSR has published an update to the systemic sclerosis guideline, expanded to include paediatric and adolescent patients for the first time.
 
Join guideline working group Chair, Prof Chris Denton, members John Pauling, Bridget Griffiths and Clare Pain, and expert by experience member, Sue Farrington, in a roundtable discussion hosted by Prof Ernest Choy.

Read the full guideline and download the summary pdf here. 

Thanks for listening to Talking Rheumatology! Join the conversation on X using #TalkingRheum or tweet us @RheumatologyUK.

BSR is the UK's leading specialist medical society for rheumatology and MSK health professionals. To discover how we can support you in delivering the best care for your patients, visit our website.

Join Edward Roddy and Kelsey Jordan discussing the latest guidelines for treatment of gout, including the 2022 NICE guideline, which provides clear, evidence-based but expert opinion-informed guidance across all aspects of gout management that will hopefully improve the care of people with gout in the future. This episode is hosted by Marwan Bukhari, Editor-in-Chief of Rheumatology.

Find all clinical guidelines from the BSR here. 

Thanks for listening to Talking Rheumatology! Join the conversation on X using #TalkingRheum or tweet us @RheumatologyUK.

BSR is the UK's leading specialist medical society for rheumatology and MSK health professionals. To discover how we can support you in delivering the best care for your patients, visit our website.

BSR has published two updated guidelines with recommendations for using rheumatological drugs during conception, all stages of pregnancy, breastfeeding and in men who wish to conceive. 

The guidelines have been split into two parts covering:  

• prescribing medications to treat co-morbidities in rheumatic diseases during pregnancy and breastfeeding  
• prescribing immunomodulatory drugs during pregnancy and breastfeeding, including biologics and small molecule drugs  

Join guideline working group chair, Professor Ian Giles, lead authors Dr Mark Russell and Dr Karen Shreiber, and lay member Clare Reid in a roundtable discussion hosted by Dr Marwan Bukhari.

Read the full guidelines here.

Thanks for listening to Talking Rheumatology! Join the conversation on X using #TalkingRheum or tweet us @RheumatologyUK.

BSR is the UK's leading specialist medical society for rheumatology and MSK health professionals. To discover how we can support you in delivering the best care for your patients, visit our website.

The team from Chapel Allerton Hospital (Leeds, UK) join us to discuss their new giant cell arteritis referral pathway, which recently won a BSR Best Practice Award. Listen to Dr Thurkka Rajeswaran, Dr Sarah Mackie, Kate Smith and Borsha Sarker as they present their GCA pathway and results, reflect on MDT collaboration and advice for other units, and consider next steps.  

You can read the team’s BSR Annual Conference abstract here: https://doi.org/10.1093/rheumatology/keac132.042 

Thanks for listening to Talking Rheumatology! Join the conversation on X using #TalkingRheum or tweet us @RheumatologyUK.

BSR is the UK's leading specialist medical society for rheumatology and MSK health professionals. To discover how we can support you in delivering the best care for your patients, visit our website.

We’re joined by Dr Anushka Soni, Sarah Manderson and Prof. Raashid Luqmani (Nuffield Orthopaedic Centre, Oxford) to discuss their remote clinical management pathway, which recently won a BSR Best Practice Award. The team talk us through their pathway, cost-savings, and the essential role of their admin team, before revealing their PIFU plans.  

You can read the team’s BSR Annual Conference abstract here: https://doi.org/10.1093/rheumatology/keac133.114 

The case study on NHX is here: https://www.nhsx.nhs.uk/key-tools-and-info/digital-playbooks/rheumatology-digital-playbook/Remote-clinical-management-as-part-of-standard-care-for-rheumatology-patients/ 

Thanks for listening to Talking Rheumatology! Join the conversation on X using #TalkingRheum or tweet us @RheumatologyUK.

BSR is the UK's leading specialist medical society for rheumatology and MSK health professionals. To discover how we can support you in delivering the best care for your patients, visit our website.

Dr Toby Garrood (Guy’s & St Thomas’, UK) joins us to discuss a three-part project to implement digital health in rheumatology, which recently won a BSR Best Practice Award. Toby talks us through the project, the process of developing patient personas to help test interventions, the benefits of a minimum viable product approach, and much more.

Thanks for listening to Talking Rheumatology! Join the conversation on X using #TalkingRheum or tweet us @RheumatologyUK.

BSR is the UK's leading specialist medical society for rheumatology and MSK health professionals. To discover how we can support you in delivering the best care for your patients, visit our website.

Co-leads Dr Laura Coates (Oxford, UK) and Dr William Tillett (Bath, UK) join us live from our Annual Conference to discuss the new 2022 BSR guideline for the treatment of psoriatic arthritis with biologic and targeted synthetic DMARDs. This episode is hosted by Dr Marwan Bukhari. 

Thanks for listening to Talking Rheumatology! Join the conversation on X using #TalkingRheum or tweet us @RheumatologyUK.

BSR is the UK's leading specialist medical society for rheumatology and MSK health professionals. To discover how we can support you in delivering the best care for your patients, visit our website.

How will patients be affected by the 2022 BSR guideline on the management of paediatric, adolescent and adult patients with idiopathic inflammatory myopathy? Join junior doctor and IIM patient Dr Phoebe Rushe, Prof Hector Chinoy, Dr Alex Oldroyd, Dr James Lilleker and Dr Liza McCann in a roundtable discussion hosted by Dr Marwan Bukhari.

Read the full guideline here: https://doi.org/10.1093/rheumatology/keac115

Thanks for listening to Talking Rheumatology! Join the conversation on X using #TalkingRheum or tweet us @RheumatologyUK.

BSR is the UK's leading specialist medical society for rheumatology and MSK health professionals. To discover how we can support you in delivering the best care for your patients, visit our website.

The 2022 BSR guideline on the management of paediatric, adolescent and adult patients with idiopathic inflammatory myopathy has been published, but what do you need to know? Join Prof Hector Chinoy, Dr Alex Oldroyd, Dr James Lilleker, Dr Liza McCann and Dr Phoebe Rushe in a roundtable discussion hosted by Dr Marwan Bukhari.

Read the full guideline here: https://doi.org/10.1093/rheumatology/keac115

Thanks for listening to Talking Rheumatology! Join the conversation on X using #TalkingRheum or tweet us @RheumatologyUK.

BSR is the UK's leading specialist medical society for rheumatology and MSK health professionals. To discover how we can support you in delivering the best care for your patients, visit our website.

Clare Jacklin (NRAS, UK) and Dr James Galloway (KCL, UK) reflect on findings from the BSR National Early Inflammatory Arthritis Audit. They discuss the recent ethnicity report, the impact of the pandemic on data collection and rheumatology services, and the importance of patient participation and PROMs.

Read the full ethnicity report here

Thanks for listening to Talking Rheumatology! Join the conversation on X using #TalkingRheum or tweet us @RheumatologyUK.

BSR is the UK's leading specialist medical society for rheumatology and MSK health professionals. To discover how we can support you in delivering the best care for your patients, visit our website.

In this episode, Dr Anastasia Madenidou and Rebecca Heaton talk about the important and exciting role of a pharmacist working in a rheumatology team.  

Please note this careers episode has been previously released through another BSR podcast series. 

Thanks for listening to Talking Rheumatology! Join the conversation on X using #TalkingRheum or tweet us @RheumatologyUK.

BSR is the UK's leading specialist medical society for rheumatology and MSK health professionals. To discover how we can support you in delivering the best care for your patients, visit our website.

Do you know your First Contact Practitioner from you physiotherapist or osteopath? In this pod Will Gregory (Consultant Physio and BSR Vice President) talks to Sarah Golding (Physio and FCP) about all things FCP including requirements for the role, how it works and links with secondary care Rheumatology.

This is essential listening for those working in FCP roles as much as it is for all working in secondary care Rheumatology to better understand the current primary care MSK landscape.

If you'd like more info check out
https://academic.oup.com/rheumap/article/8/1/rkad109/7467071

Thanks for listening to Talking Rheumatology! Join the conversation on X using #TalkingRheum or tweet us @RheumatologyUK.

BSR is the UK's leading specialist medical society for rheumatology and MSK health professionals. To discover how we can support you in delivering the best care for your patients, visit our website.

BSR has published an update to the Sjögren disease guideline, expanded to include paediatric and adolescent patients for the first time.
 
Join guideline working group Chair, Liz Price, members Coziana Ciurtin and Benjamin Fisher, and expert by experience member, Bridget Crampton, in a roundtable discussion hosted by Dr Marwan Bukhari.

Please note Dr Bukhari was Editor in Chief of Rheumatology at the time of recording.

Read the full guideline and download the summary pdf here. 

Attendees of BSR Annual Conference 2024 can also attend the Guidelines session on Wednesday 24 April at 11:10 to hear from Liz Price presenting the new guideline.

Thanks for listening to Talking Rheumatology! Join the conversation on X using #TalkingRheum or tweet us @RheumatologyUK.

BSR is the UK's leading specialist medical society for rheumatology and MSK health professionals. To discover how we can support you in delivering the best care for your patients, visit our website.

This podcast gives an opportunity to hear from Dr Caroline Cotton, Lara Chapman and Dr Mark Russell about their experience of authoring guidelines. It covers everything you need to know about BSR guidelines- what they are, insights into the process, how to get involved (including tips for applications) and why you might like to!

Thanks for listening to Talking Rheumatology! Join the conversation on X using #TalkingRheum or tweet us @RheumatologyUK.

BSR is the UK's leading specialist medical society for rheumatology and MSK health professionals. To discover how we can support you in delivering the best care for your patients, visit our website.

In this careers pod Dr Diarmuid McLaughlin talks to Dr Sharmila Jandial about training pathways for paediatric rheumatology including tips on finding out more about a career in Rheumatology, training pathways, subspecialty training and where it all can lead. Recommended for anyone thinking of getting involved.

Thanks for listening to Talking Rheumatology! Join the conversation on X using #TalkingRheum or tweet us @RheumatologyUK.

BSR is the UK's leading specialist medical society for rheumatology and MSK health professionals. To discover how we can support you in delivering the best care for your patients, visit our website.

In this pod aimed at medical students medical student Edward Mbanasor talks to Associate Professor Ai Lyn Tan about a career in Rheumatology covering all things from; what Rheumatology is, reasons for choosing Rheumatology, career paths and how to find out more about the specialty. A must listen for anyone considering Rheumatology as a career. 

Thanks for listening to Talking Rheumatology! Join the conversation on X using #TalkingRheum or tweet us @RheumatologyUK.

BSR is the UK's leading specialist medical society for rheumatology and MSK health professionals. To discover how we can support you in delivering the best care for your patients, visit our website.

In this episode our guests discuss the National Early Inflammatory Arthritis Audit (NEIAA) year five state of the nation report. Our host, Sarah Gallagher (Project Manager, NEIAA) poses questions to both Dr Liz Price (Clinical Lead, NEIAA) and Professor James Galloway (Lead Methodologist, NEIAA) to explore the report's key findings and the importance of audit data. 

Thanks for listening to Talking Rheumatology! Join the conversation on X using #TalkingRheum or tweet us @RheumatologyUK.

BSR is the UK's leading specialist medical society for rheumatology and MSK health professionals. To discover how we can support you in delivering the best care for your patients, visit our website.

In this talking Rheumatology careers pod Dr Anastasia Madenidou talks to Dr Ben Mulhearn about all things research from how to get started in research, to doing a PhD and different ways to incorporate research in consultant jobs.

Thanks for listening to Talking Rheumatology! Join the conversation on X using #TalkingRheum or tweet us @RheumatologyUK.

BSR is the UK's leading specialist medical society for rheumatology and MSK health professionals. To discover how we can support you in delivering the best care for your patients, visit our website.

How can patient initiated follow-up (PIFU) be successfully used in rheumatology services?

Prof Laura Coates, Dr Mark Perry and Prof Raj Sengupta join Prof Ernest Choy to discuss their experiences of implementing PIFU. They offer some top tips for those starting their PIFU journey and highlight fantastic new resources available via BSR.

Want to find out more? Here are some great resources for you to explore:

• BSR PIFU resources
• PIFU consensus document from Raj, Mark and colleagues
• University Hospitals Plymouth NHS Trust website, which includes further PIFU videos and resources 

Thanks for listening to Talking Rheumatology! Join the conversation on X using #TalkingRheum or tweet us @RheumatologyUK.

BSR is the UK's leading specialist medical society for rheumatology and MSK health professionals. To discover how we can support you in delivering the best care for your patients, visit our website.

BSR has co-published a living guideline with the British Association of Dermatologists for managing people of all ages with Behçets.
 
Join guideline working group Co-Chairs, Ruth Murphy and Robert Moots, and members Clare Pain, Harry Petrushkin and Steve Higgins in a roundtable discussion hosted by Prof Ernest Choy.

The living guideline is presented as a detailed review with highlighted recommendations for practical use in all appropriate community and hospital settings. The guideline development group (GDG) set out to provide an up-to-date, holistic and evidence-based approach to optimise the management of people with Behçets, factoring in patient values and preferences. 

Read the full guideline and view all the accompanying resources here. 

Thanks for listening to Talking Rheumatology! Join the conversation on X using #TalkingRheum or tweet us @RheumatologyUK.

BSR is the UK's leading specialist medical society for rheumatology and MSK health professionals. To discover how we can support you in delivering the best care for your patients, visit our website.

This is the first episode of a mini-series hosted by Dr Judith Jade where she explores the importance of our response to failure with prominent leaders in rheumatology. 

In this episode Dr Judith Jade talks to Prof David Isenberg, one of our leading academic Rheumatologists, about things that didn't go to plan. He candidly shares his experience including both clinical and employment challenges and how they helped make him the person he is today. 

Please note this careers episode has been previously released through another BSR podcast series. 

Thanks for listening to Talking Rheumatology! Join the conversation on X using #TalkingRheum or tweet us @RheumatologyUK.

BSR is the UK's leading specialist medical society for rheumatology and MSK health professionals. To discover how we can support you in delivering the best care for your patients, visit our website.

Meet the NASS Changemakers

In the second of the INNOVATOR series, host Dr Lizzy MacPhie talks to guests as they discuss three award-winning projects, working between primary and secondary care to improve diagnosis and management for people with inflammatory back pain. With varying size projects, led by different members of the MDT,  there’s something for everyone in this pod. Prepare to be inspired!

Today also marks NASS launching the second round of the Change Maker awards to further recognise healthcare professionals improving diagnostic delay in axial SpA. You can read more about round two including eligibility criteria and the application process by visiting: https://www.actonaxialspa.com/act-on-axial-spa-change-maker-awards/

Our guests include:

Dr Antoni Chan, from Royal Berkshire, a consultant rheumatologist who won a Gold NASS Changemaker Award for his work on the Rheumatology Acadamy and Collaborative Network (RheumACaN) and delivering a gold standard time to diagnosis. PLUS, Dr Chan was also part of the Royal Berkshire NHS Trust team recognised for their outstanding achievement in winning the BSR Best Practice Award 2024. 

James Holland, first contact practitioner (FCP) at Viaduct Care in Stockport, a NASS Champion in Primary Care who won a silver award for his work on local pathways, education and implementation of electronic triage tools.

Niamh Kennedy an advanced practice practitioner (APP) from Belfast Health & Social Care Trust, who won a bronze award for setting up a new early back pain clinic, leading education and implementing a new inflammatory back pain pathway.

Thanks for listening to Talking Rheumatology! Join the conversation on X using #TalkingRheum or tweet us @RheumatologyUK.

BSR is the UK's leading specialist medical society for rheumatology and MSK health professionals. To discover how we can support you in delivering the best care for your patients, visit our website.

Can a new web tool drive shared decision making and cost effective biologics prescribing across NHS trusts?

In this episode of our Innovators mini-series, Emily Rose-Parfitt and Philip Hamann join Lizzy MacPhie to showcase the truly pioneering RxInvolve web tool, which aids shared and clinical decision making for biologics prescribing. With patient feedback indicating high satisfaction, plus cost savings of over £200K for North Bristol NHS Trust in its first year of use, development of the tool won the team a 2024 BSR Best Practice Award. 

Our guests discuss how the RxInvolve tool can be used effectively in different clinical settings, lessons learnt from their funding and development journey, and their exciting plans for expansion across Trusts and specialties.   

Want to find out more? Explore these further resources:  

• Find out more about the team’s award-winning project 

Thanks for listening to Talking Rheumatology! Join the conversation on X using #TalkingRheum or tweet us @RheumatologyUK.

BSR is the UK's leading specialist medical society for rheumatology and MSK health professionals. To discover how we can support you in delivering the best care for your patients, visit our website.

This is the second episode of a mini-series hosted by Dr Judith Jade where she explores the importance of our response to failure with prominent leaders in rheumatology.  

In this episode Dr Judith Jade talks to Will Gregory, a Rheumatology Consultant Physiotherapist at Salford Royal Hospital and our new BSR Vice President, about things that didn't go to plan. He candidly shares his experience including that of being a middle child, his first attempt at publication, his experience of transitioning to his current Consultant role and vomiting at a bad time.

Please note this careers episode has been previously released through another BSR podcast series. 

Thanks for listening to Talking Rheumatology! Join the conversation on X using #TalkingRheum or tweet us @RheumatologyUK.

BSR is the UK's leading specialist medical society for rheumatology and MSK health professionals. To discover how we can support you in delivering the best care for your patients, visit our website.

In this episode of our Innovators mini-series, Amanda Mootoo, Mariam Malik and Nick Sands join Lizzy MacPhie to explore the role of a Chief Registrar.

Whether you're a trainee interested in the Chief Registrar role and how it gives unique access to leadership and management training and experience, or if you are a member of a senior management team wondering how your Trust could benefit from having a Chief Registrar in post, this episode will provide you with a whole collection of ideas and insights.

Want to find out more? Explore these further resources:  

RCP Chief Registrar programme
Chief Registrar yearbook 2022-23

BSR members may also like to check out the Quality Improvement Spotlight on the e-learning platform. 

If you have an example of innovative practice in rheumatology, contact us at bsr@rheumatology.org.uk with the subject line "Innovators podcast". 

Thanks for listening to Talking Rheumatology! Join the conversation on X using #TalkingRheum or tweet us @RheumatologyUK.

BSR is the UK's leading specialist medical society for rheumatology and MSK health professionals. To discover how we can support you in delivering the best care for your patients, visit our website.

BSR has published an update to the axial spondyloarthritis guideline.

It's almost 10 years since the last iteration of the guideline. Our understanding and awareness of the disease has increased enormously. We now have 10 different therapies licensed for advanced management of axial spondyloarthritis, which are broadly divided into three different classes: TNF inhibitors, IL17 and JAK inhibitors. 

Join guideline working group Co-Chairs, Karl Gaffney, and Steven Zhao, members William Gregory and Stephanie Harrison, and expert by experience member and CEO of NASS, Dale Webb, in a roundtable discussion hosted by Prof Ernest Choy.

Read the full guideline and download the summary pdf here. 

Thanks for listening to Talking Rheumatology! Join the conversation on X using #TalkingRheum or tweet us @RheumatologyUK.

BSR is the UK's leading specialist medical society for rheumatology and MSK health professionals. To discover how we can support you in delivering the best care for your patients, visit our website.

BSR has published a new guideline for the assessment and management of foot problems in adults, children and young people with inflammatory arthritis.

Foot problems are almost universal in people with inflammatory arthritis, and virtually all people with inflammatory arthritis will experience foot problems at some point in the course of their disease. Despite this, we know that there is considerable unmet need. The guideline will cover foot problems in a number of different rheumatic conditions, including rheumatoid arthritis, psoriatic arthritis, axial spondyloarthritis and juvenile idiopathic arthritis.

 
Join guideline working group Chair, Edward Roddy, members Lara Chapman, Gavin Cleary, and expert by experience member, Alan Rawlings, in a roundtable discussion hosted by Prof Ernest Choy.

Read the full guideline and download the summary pdf here. 

Thanks for listening to Talking Rheumatology! Join the conversation on X using #TalkingRheum or tweet us @RheumatologyUK.

BSR is the UK's leading specialist medical society for rheumatology and MSK health professionals. To discover how we can support you in delivering the best care for your patients, visit our website.

Roz Benson (digital learning editor) talks to consultant rheumatologist Dr Lizzy MacPhie and Resident doctor Nouran Abdou about a recent project digging deep into the reasons prisoners face difficulty in accessing care in the rheumatology clinic. 

This excellent project showcases how quality improvement can be a tool in helping to approach and reduce health inequalities.

Thanks for listening to Talking Rheumatology! Join the conversation on X using #TalkingRheum or tweet us @RheumatologyUK.

BSR is the UK's leading specialist medical society for rheumatology and MSK health professionals. To discover how we can support you in delivering the best care for your patients, visit our website.

BSR has published a new set of management recommendations for ANCA-associated vasculitis (AAV), serving as an update to our AAV guideline last published in 2017.

Find out more via our blog. 

Join guideline working group Chair, Lorraine Harper, and group members Rosemary Hollick, Harold Wilson-Morkeh, Georgina Ducker and expert by experience member, Zoi Anastasa, in a roundtable discussion hosted by Prof Ernest Choy, Editor in Chief of Rheumatology to find out what is included in the publication and what has changed since the 2017 guideline was published. 

Sign up for the BSR educational webinars to accompany the recommendations here: https://www.rheumatology.org.uk/events-learning/webinars/updated-recommendations-for-managing-anca-associated-vasculitis 

Read the full guideline and download the summary pdf here. 

Thanks for listening to Talking Rheumatology! Join the conversation on X using #TalkingRheum or tweet us @RheumatologyUK.

BSR is the UK's leading specialist medical society for rheumatology and MSK health professionals. To discover how we can support you in delivering the best care for your patients, visit our website.