Explore every episode of the podcast Surviving out of Spite

What happens when gastroparesis or chronic GI symptoms become an emergency, but the ER doesn’t understand what you’re experiencing?In this episode of Surviving Out of Spite, Sam talks with ER physician Dr. Rick Pescatore about gastroparesis, chronic abdominal pain, nausea, vomiting, dehydration, and emergency room care. They discuss why chronic GI patients may feel dismissed or misunderstood in the ER, even when symptoms are severe.They also get practical: How do you advocate for yourself in the ER? What should you bring to the hospital? How do you explain your baseline and symptom changes? What do you do when a doctor isn’t listening?This conversation covers ER advocacy, chronic illness, patient-provider communication, shared decision-making, and how patients and emergency physicians can work together.If you live with gastroparesis, IBS, chronic abdominal pain, nausea, vomiting, cyclic vomiting, or another gut-brain disorder, this episode is for you.And if you've ever sat in an ER thinking, “They don't believe me,” you're not alone.Here’s a link: https://belly-md.com/pages/menome-code for a code that gets our G-PACT community 6 months of MeNome Premium, free. Tap “That’s me” next to the G-PACT line, drop in an email, and the code appears right on the page. Copy it and it takes you straight into signup.

What does it really mean to build strength in a hypermobile body? In this episode, Sam sits down with Heidi Pasch, a hypermobility-informed personal trainer and contortionist, for an honest and empowering conversation about hypermobility, EDS, strength training, rehabilitation, chronic pain, and safe movement.

For people living with Ehlers-Danlos syndrome (EDS), hypermobility, or chronic illness, exercise and movement can come with unique challenges. Heidi shares her experience and expertise on how to approach training in a way that prioritizes muscle health, injury prevention, stability, body awareness, and long-term strength rather than simply pushing for more flexibility.

They also challenge some of the common misconceptions surrounding hypermobility and flexibility. Being flexible doesn't necessarily mean your body is stronger or healthier, and for some hypermobile people, excessive flexibility can create additional challenges with stability and injury risk. The conversation looks at why slow, deliberate, personalized movement can be so important when training a hypermobile body.

Beyond physical training, Heidi discusses the mental shift that can come with chronic illness and disability, including body acceptance, body positivity, and moving away from society's constant focus on weight and appearance. They talk about how changing the way we think about our bodies can help people feel more empowered in their movement and rehabilitation journeys.

https://www.heidipasch.com/shop

https://www.heidipasch.com/training-for-hypermobility-and-joint-stability

Ulcerative colitis, chronic illness, mental health, and self-advocacy — this episode of Surviving Out of Spite gets real about what it’s actually like living with an unpredictable chronic illness.

Sam talks with Jesse about his ulcerative colitis (UC) diagnosis, severe symptoms and flares, bowel accidents, travel, mental health, stress, and the challenges of navigating life with IBD (inflammatory bowel disease). They also discuss chronic illness self-advocacy, toxic positivity, support from friends and family, finding community, and celebrating small wins.

Jesse shares how his experience with ulcerative colitis ultimately led him into chronic illness advocacy and why having a support system can make such a difference when you're living with an invisible illness.

If you live with ulcerative colitis, Crohn’s disease, IBD, gastroparesis, or another chronic illness, this conversation is a reminder that you are not alone, and you don't have to navigate it alone.

Living with gastroparesis can affect far more than digestion. It can change your relationship with food, your body, clothing, relationships, work, and even your sense of identity.In this episode of Surviving Out of Spite, Sam sits down with Dr. Erica Agudo to talk openly about the realities of living with gastroparesis and chronic illness, both personally and professionally. Erica shares her experiences navigating unpredictable symptoms, dietary challenges, relationships, and the emotional impact of living with a condition that is often misunderstood.The conversation also explores the complicated relationship between gastroparesis, body image, food, and disordered eating. For people living with chronic digestive illnesses, eating and nutrition can become complicated by nausea, vomiting, food intolerance, dietary restrictions, weight changes, and the need to constantly adapt to symptoms. Erica and Sam discuss how these experiences can affect self-perception, clothing choices, confidence, and mental and emotional well-being.Erica also discusses her research into women's experiences with gastroparesis and why patient voices are essential to improving understanding, healthcare, and advocacy. They talk about the stigma surrounding gastroparesis, the importance of finding community, self-advocacy, and why sharing lived experiences can help patients feel less isolated.If you live with gastroparesis, chronic illness, digestive disease, or disordered eating, or you support someone who does, this conversation offers an honest look at some of the experiences that can be difficult to explain to people who don't live them.Your story matters. Your experience matters. And you are not alone.Subscribe to Surviving Out of Spite for honest conversations about gastroparesis, chronic illness, patient advocacy, medical experiences, relationships, mental health, and finding ways to keep going when your body doesn't cooperate.Interested in the journal? Click here: https://a.co/d/09nzOEhL

What happens when gastroparesis makes eating and drinking enough nearly impossible? When do feeding tubes or TPN become part of treatment?In this episode of Surviving Out of Spite, Sam sits down with Dr. Kent Sasse, a surgeon with decades of experience treating gastroparesis, to talk about nutritional support, feeding tubes, TPN, and the realities of living with severe gastroparesis.Most importantly, this conversation challenges the idea that nutritional support is a “last resort.” For some patients, it can provide the nutrition, strength, and stability needed to get back to living life.Disclaimer: This podcast is for educational and informational purposes only and is not a substitute for medical advice.

Are we treating gastroparesis all wrong?In this conversation, Sam and Dr. Zachary Spiritos explore the complexities of gastroparesis, chronic illness, autoimmune disease, dysautonomia, and the gut-brain connection, and why treating gastroparesis may require looking beyond a gastric emptying test.They chat about the limitations of gastric emptying studies, the wide range of gastroparesis symptoms, and the importance of understanding potential underlying causes. They also explore how autoimmunity, dysautonomia, stress, and the nervous system can interact with gastrointestinal health.The conversation goes beyond diagnosis and treatment to address patient advocacy, compassionate care, medical research, gender bias, and the importance of listening to patient experiences. They discuss why better communication between patients and healthcare providers and a more curious, holistic approach to chronic illness is so important.

If you live with gastroparesis or chronic illness, this conversation offers an important look at why the whole patient matters.

Living with chronic illness can affect far more than your physical health; it can change your identity, relationships, mental health, and sense of connection.In this episode of Surviving Out of Spite, Sam sits down with psychotherapist and fellow patient Jodi Taub to discuss the emotional realities of chronic illness, medical trauma, mental health, and relationships.They explore isolation, feeling like a burden, the “shame-burden cycle,” asking for help, communicating your needs, and supporting loved ones through chronic illness. They also discuss medical trauma, changes in identity, peer support, coping strategies, therapy, and the possibility of post-traumatic growth.Most importantly, this conversation looks at how relationships, connection, meaning, and purpose can help us navigate life when illness makes everything unpredictable.If you live with gastroparesis or another chronic illness, or support someone who does, this conversation offers validation, perspective, and practical insight into the emotional side of chronic illness.Would you like to learn more about Jodi and her practice? Click below!https://www.joditaubtherapy.com/Interested in Jodi's book? Click the link below!https://a.co/d/0hKrCKAJ

Living with chronic illness can change everything; including how you see yourself, your future, and your place in the world.

In this conversation, Sam and Deanna dive into the realities of living with chronic illness and rare disease, exploring how diagnosis can reshape identity, mental health, relationships, and everyday life. They talk about the ongoing process of understanding an illness, adapting to a life you didn't necessarily choose, and finding strength in the uncertainty.

They also discuss the importance of community, patient advocacy, resilience, and sharing your story; and how connecting with others who truly understand can make chronic illness feel a little less isolating.

If you're living with chronic illness or rare disease, we hope this conversation reminds you that your experience matters, and that there is power in finding people who understand.

Don't forget to like, subscribe, and share this video to help connect more patients, caregivers, and advocates with the chronic illness community.

Want to connect with Deanna?

Instagram

Deanna Steinle | LinkedIn

Resilience is Beautiful Facebook Page

Finding a protein source that works with a sensitive digestive system can be challenging. In this episode, Jack, founder of Drink Wholesome, shares the story behind creating a protein powder designed for people who struggle with digestive issues, food sensitivities, and dietary restrictions.Sam and Jack discuss why many traditional protein powders can be difficult to tolerate, the importance of simple ingredients and minimal processing, and how listening to customer experiences helped shape the evolution of Drink Wholesome’s products. From early product development challenges to creating new flavors designed with specific needs in mind, this conversation explores the future of more personalized nutrition.For many people living with chronic digestive conditions, nutrition is about more than just choosing healthy foods; it’s about finding options that their bodies can tolerate.

What’s new with Zenowell taVNS? In this episode of Surviving Out of Spite, Sam sits down with Jane to explore the latest Zenowell device and app updates, including the brand-new Digest Mode and Focus Mode; and what these features could mean for people living with gastroparesis, digestive symptoms, stress, and gut-brain health.Jane shares a behind-the-scenes look at how these new features were developed, how patient and user feedback influences Zenowell’s ongoing innovation, and how breathing techniques have been incorporated into the app to support relaxation, concentration, and nervous system regulation.They also chat about the new Mobi Band, how wearable health technology can help collect more comprehensive data, and how integrating information from multiple health devices could eventually provide users with a more complete picture of their health.

Cyclic Vomiting Syndrome (CVS) is more than just “vomiting.” It is a debilitating GI disorder that can cause intense, recurring episodes of violent vomiting, emergency room visits, hospitalizations, dehydration, malnutrition, and a devastating impact on daily life. Yet many patients and families face years of searching for answers, misdiagnosis, stigma, and the painful experience of not being believed.

In this episode of Surviving Out of Spite, Sam sits down with Blynda, President of the Cyclic Vomiting Syndrome Association, to discuss the reality of living with CVS and the challenges families face when navigating the healthcare system. Blynda shares her son’s journey with cyclic vomiting syndrome and abdominal migraines, including the struggles of getting a proper diagnosis, finding knowledgeable providers, and advocating for compassionate medical care.

Together, they talk about the connection between CVS and migraines, the trauma many GI patients experience in emergency rooms, the harm caused when patients are dismissed or accused of exaggerating symptoms, and why advocacy and awareness are critical for rare and misunderstood conditions.

Could Parkinson's disease begin in the gut? Emerging research suggests the connection between the gut and brain may be much stronger than we once believed.In this episode, Sam talks with Dr. Trisha Pasricha to explore the relationship between Parkinson's disease, gastroparesis, constipation, and other gastrointestinal disorders. Together, they discuss how digestive symptoms often appear years before neurological symptoms, why dopamine plays an important role in both the brain and the digestive tract, and what researchers are learning about the gut-brain axis.Dr. Pasricha explains why many people living with Parkinson's struggle with delayed gastric emptying, constipation, nausea, and other GI symptoms that can significantly impact quality of life. She also shares why treating digestive symptoms can be especially challenging, how specialists approach care, and what promising research may mean for future treatments.The conversation also dives into the importance of multidisciplinary care, the benefits of pelvic floor therapy, patient advocacy, and why understanding the whole body is essential when managing chronic illness.

What does it really take to create a documentary about chronic illness?

In this episode, Sam sits down with Lauren Keenan, Director of the film, to take you behind the scenes of this powerful chronic illness documentary. Together, they discuss the creative process, the emotional realities of filmmaking, and the deeply personal journey of telling authentic patient stories that capture life beyond a diagnosis.

From half-marathon training while living with chronic illness to navigating setbacks, vulnerability, and resilience, Sam and Lauren share what it takes to create a documentary that is both honest and impactful. Their conversation explores how storytelling can change perceptions of gastroparesis, invisible illness, or chronic pain, while highlighting the strength and humanity of the chronic illness community.

Creating a documentary about chronic illness is about far more than capturing footage; it's about building trust, embracing uncertainty, and giving patients the opportunity to tell their stories on their own terms. Sam and Lauren discuss the challenges of balancing filmmaking with chronic illness, why understanding your "why" is essential during difficult moments, and how authentic storytelling can educate, inspire, and create meaningful change.

If you're passionate about chronic illness awareness, patient advocacy, or documentary filmmaking, this episode offers a unique behind-the-scenes look at how these powerful stories are brought to life.

What does it really take to tell an authentic story about chronic illness?

In this behind-the-scenes conversation, Sam sits down with Joe Keenan to discuss the creation of Chronic Life Media and the documentary that captures the realities, resilience, and humanity of people living with chronic illness. From the first concept to filming, editing, and planning for film festivals, they share what audiences don't see, and why authentic storytelling matters.

Living with a chronic illness is about so much more than symptoms. This episode explores how powerful stories can help break stereotypes, build empathy, and remind the world that patients are complex individuals with dreams, goals, relationships, and lives beyond their diagnoses.

Whether you're living with gastroparesis, a different chronic illness, or supporting someone who is, this conversation offers an honest look at the power of sharing our stories and the impact authentic representation can have.

If you've ever wondered what goes into creating a documentary about chronic illness, or why these stories matter, this episode is for you.

Why is gastroparesis so difficult to diagnose and treat? In this episode, Sam chats with gastroenterologist Dr. Aditi Stanton to discuss the realities of living with and treating gastroparesis, one of the most challenging digestive disorders.

Dr. Stanton shares why gastric emptying studies don't tell the whole story, the biggest gaps in gastroparesis care, and why nutrition, patient advocacy, and strong communication between patients and providers are essential for better outcomes. They also talk about treatment approaches, the role of GI psychologists, stress and the gut-brain connection, and why managing chronic digestive diseases requires a personalized, multidisciplinary approach.

Whether you're living with gastroparesis, chronic nausea, vomiting, early satiety, or other GI motility disorders, this conversation offers practical insights from both the physician and patient perspectives.

Can patients trust AI with their healthcare decisions? And who should be responsible when technology becomes part of the diagnostic process?

In Part 2 of this conversation, Sam and Erika from IncitefulMed dive deeper into the complex relationship between artificial intelligence, healthcare, trust, and patient advocacy. As AI becomes increasingly integrated into medicine, patients are faced with important questions about privacy, transparency, accuracy, and who ultimately controls their health information.

Erika shares some insights on the role AI can play in helping patients understand symptoms, medical research, and treatment options while emphasizing the importance of context, critical thinking, and human oversight. Together, they explore why there is often a gap between medical research and real-world clinical practice, and how technology can help bridge that divide.

This discussion also tackles healthcare incentives, pharmaceutical influence, monetization within health technology, and the challenges patients face when trying to determine which tools and sources of information are truly trustworthy. For those living with chronic illness or rare diseases, access to accurate information can be empowering, but understanding where that information comes from is just as important.

Together, they have an honest conversation about the future of AI in medicine, the importance of transparency in healthcare technology, and how patients can become stronger advocates for themselves in an increasingly digital healthcare landscape.

What happens when culture, bias, trauma, and chronic illness intersect?

In this episode of Surviving Out of Spite, Sam sits down with patient advocate and non profit leader Tina Aswani-Omprakash to chat about her journey living with Crohn’s disease, gastroparesis, and other GI conditions. Tina shares how cultural expectations, healthcare biases, and how unfortunate medical trauma shaped her experiences as a South Asian woman navigating the healthcare system.

Together, they talk about the importance of shared decision-making, culturally sensitive care, and the need to create safe spaces where patients feel seen, heard, and supported. They also talk about the stigma surrounding GI conditions, the role of intergenerational trauma, and why trust between patients and providers is essential for healing.

The conversation dives into food and cultural identity, the challenges of restrictive diets, and the importance of finding dietitians and healthcare professionals who understand diverse backgrounds. Sam and Tina highlight the power of community, vulnerability, and advocacy in breaking down stigma and empowering patients living with chronic digestive diseases.

Whether you're living with Crohn’s disease, gastroparesis, IBD, or another chronic illness, this episode offers hope, validation, and practical insights on navigating healthcare while honoring your identity and lived experience.

Links mentioned in the podcast episode:

https://ownyourcrohns.com/

https://saia-gi.org/

How can patients use artificial intelligence to better understand their health, and should they trust it?

In Part 1 of this conversation, Sam chats with Erika Warren, founder of InsightfulMed, to discuss AI literacy in healthcare and how technology can help patients become more informed advocates for their own care.

Many patients struggle to understand medical records, test results, research studies, and complex healthcare information. Erika shares how InsightfulMed was designed to help bridge that gap by making health information more accessible, understandable, and actionable for patients navigating chronic illness, rare disease, and complex medical conditions.

Together, Sam and Erika talk about the growing role of AI in healthcare, how patients can use technology to ask better questions, and why health literacy is one of the most important tools for improving healthcare outcomes. They also discuss healthcare data privacy, user control, and the importance of transparency when using digital health tools.

Whether you're living with a chronic illness, caring for a loved one, or simply interested in the future of healthcare technology, this episode offers practical insights into how AI can empower patients while protecting trust and privacy.

More info on Inciteful Med: https://incitefulmed.com/

In this episode of Surviving Out of Spite, Sam chats with Amber Tresca of AboutIBD to discuss the realities of living with inflammatory bowel disease (IBD), gastroparesis, and other chronic health challenges. Amber shares her personal journey with J-pouch surgery, navigating life after major medical interventions, and learning how to balance work, health, and personal growth.Sam and Amber talk about the emotional and practical aspects of chronic illness, including managing unpredictability, building supportive communities, protecting mental health, and finding resilience during difficult seasons. They discuss the importance of flexibility, radical acceptance, and creating a life that works with your condition rather than constantly fighting against it.Whether you're living with IBD, gastroparesis, a chronic illness, or supporting someone who is, this conversation offers honest insights, encouragement, and practical wisdom for navigating the ups and downs of long-term health challenges.Where to find more from Amber? IG: @aboutIBDYT: @aboutIBDWeb: www.aboutIBD.comEmail: amber@aboutibd.com

In this episode of Surviving Out of Spite, Sam sits down with Dr. Sarah Cohen Solomon for a deeply honest conversation about chronic illness, Ehlers-Danlos Syndrome (EDS), and what it really takes to build a more humane healthcare system.

Dr. Solomon brings a unique dual perspective as both a physician and a patient, offering insight into the lived reality of navigating chronic illness while practicing medicine. They talk about the complexities of individualized care, the importance of listening to patient concerns, and why curiosity, not assumptions, should guide clinical decision-making.

This episode is about shifting healthcare toward collaboration, where patients are not dismissed, but believed, supported, and involved in their own care decisions. It’s a call for a more compassionate, responsive, and patient-centered medical system.

If you’re living with chronic illness, supporting someone who is, or working in healthcare, this conversation offers grounded insight into how care can be improved through empathy, advocacy, and listening.

In this episode of Surviving Out of Spite, Sam sits down with Maddie, the voice behind Eosinophilic Chick, to talk about what it’s really like living with Eosinophilic Esophagitis (EOE).

Maddie shares her personal journey; from early symptoms and diagnosis to navigating strict dietary restrictions and the reality of starting medication injections. This conversation dives into the physical challenges of managing EOE, as well as the emotional and mental toll that comes with chronic illness.

Together, Sam and Maddie also open up about the fear and frustration surrounding food, and what it looks like to slowly reintroduce foods after periods of restriction. They discuss how these moments can be both physically and emotionally overwhelming, and incredibly meaningful.

Beyond EOE, this episode highlights the importance of advocacy, community, and connection when living with chronic conditions like EOE and gastroparesis. Because no one should have to navigate this alone.

Want to connect with Maddie? Follow her on IG @eosinophilic.chick 

In this episode, Sam sat down with Ruth O’Driscoll to have the kind of conversation most people avoid, but absolutely shouldn’t.They dive into the reality of living with digestive issues, why we need to normalize talking about gut health (yes, even the awkward parts), and how self-tracking can be a powerful tool for understanding your body.Ruthie shares her personal journey with digestive health challenges and how it led her to develop an innovative app, Tuut, designed to make symptom and bowel movement tracking easier, more intuitive, and far less overwhelming than traditional methods. Together, they explore how removing shame and simplifying tracking can help people feel more in control of their health.This conversation also goes deeper, touching on the importance of sleep, self-care, and building a supportive community when navigating chronic digestive conditions. Because managing your health isn’t just about data, it’s about feeling seen, supported, and understood.Meet tuut: the first digestive health app that fits lifestyle tracking into your busy life while providing actionable insights. Log data in seconds and let clinically-informed AI algorithms uncover patterns so you can finally identify triggers and feel better. https://www.tuutapp.net/

In this episode, Casey shares her personal journey living with celiac disease, from diagnosis to the ongoing realities of managing a strict gluten-free diet. She opens up about the challenges of navigating hidden gluten in unexpected foods, the learning curve that comes with dietary restrictions, and the emotional impact that can follow a life-changing diagnosis.

Together, Sam and Casey explore what it really means to live with celiac disease in everyday life; highlighting coping strategies, symptom management, and the importance of self-compassion along the way. They also discuss the emotional weight of food-related guilt, the evolving landscape of gluten-free options, and how access to better products has helped improve quality of life for many in the gluten-free community.

This conversation also emphasizes the power of community support, strong relationships, and self-advocacy when navigating chronic dietary restrictions. Whether you’re newly diagnosed, supporting someone with celiac disease, or simply wanting to better understand gluten-free living, this episode offers validation, education, and hope.

Instagram & TikTok: @collegeceliackc https://www.glutenfreewithcasey.com 

In this powerful and deeply personal episode, Sam and Sarah dive deeper into Sarah’s story and how she refused to let gastroparesis define her life.

From the challenges of diagnosis to the daily realities of living with a chronic digestive condition, she opens up about what it truly means to navigate life with gastroparesis. This is not just a story about illness, it’s about resilience, identity, and choosing to keep going even when your body makes it incredibly hard.

We talk about the physical and emotional toll of chronic illness, the isolation that can come with invisible diseases, and how she found strength in the midst of it all. Her journey is a reminder that you are more than your diagnosis.

If you or someone you love is living with gastroparesis, chronic illness, or an invisible disease, this conversation will resonate deeply.

Living with Ehlers-Danlos Syndrome (EDS) is more than just managing symptoms, it’s navigating a healthcare system that often doesn’t understand you.

In this episode of Surviving Out of Spite, Sam sits down with Lara Bloom of the EDS Society to talk about what it really takes to live with and advocate for EDS.

From the long road to diagnosis to the validation that comes with finally being heard, Lara shares her personal journey and the realities so many patients face.

This conversation is honest, unfiltered, and a reminder that patient voices are not just important, they’re necessary.

If you or someone you love is living with Ehlers-Danlos Syndrome, a rare disease, or navigating chronic illness, this episode will make you feel seen, and remind you that you’re not alone.

https://www.ehlers-danlos.com

Ty Gipson has been through more than most; juvenile diabetes, multiple organ transplants, and years of fighting just to stay alive. In this episode, Sam and Ty talk about what it actually looks like to keep going when your body keeps throwing the worst at you.

This isn’t a sugarcoated story. It’s about resilience on the hard days, the mental battles no one sees, and the moments where giving up feels easier, but you don’t. Ty shares how he’s learned to hold onto hope, lean on the people around him, and turn everything he’s been through into something that helps others.

They get into the real stuff: choosing growth when life falls apart, letting yourself feel everything, and why being honest about your story matters, especially in the chronic illness community.

If you’re dealing with chronic illness, transplant recovery, or just trying to survive something really heavy, this one is for you.

Living with a chronic GI condition like gastroparesis isn’t just physical; it’s mental, emotional, and deeply personal. In this episode of Surviving Out of Spite, Sam chats with Dr. Ali Navidi to break down the powerful (and often overlooked) role of GI psychology in chronic illness care.

Together, they dive into the gut-brain connection and why treating digestive conditions requires more than just medication. From the challenges of accessing specialized care to the gaps in research around gastroparesis, this conversation highlights what’s missing, and what patients truly need.

Dr Navidi shares insights into how GI psychologists work alongside medical teams, why interdisciplinary care matters, and how therapy can be a critical tool in managing symptoms, stress, and quality of life. Sam and Dr. Navidi also explore the emotional weight of chronic illness, the importance of self-advocacy, and how patients can take back a sense of control in their healthcare journey.

This episode is for anyone navigating chronic illness, feeling dismissed in the healthcare system, or looking for a more holistic approach to healing.

Navigating the healthcare system with a chronic illness can feel overwhelming, frustrating, and, at times, isolating. In this episode of Surviving Out of Spite, Sam sits down with Meredith Mangold for a real and honest conversation about what it truly means to advocate for yourself as a patient.

Meredith shares her journey living with ulcerative colitis and the many challenges she’s faced along the way. Together, Sam and Meredith dive into the realities of chronic illness care; from difficult medical appointments and medical gaslighting to the emotional toll of constantly explaining your symptoms and fighting to be heard.

They explore the importance of self-advocacy in healthcare, how to build stronger patient-provider relationships, and why open conversations about chronic illness, digestive health, and invisible illness matter. This episode also highlights the power of community support and storytelling in helping patients feel less alone, and more empowered in their healthcare journey.

Whether you’re living with a chronic illness like gastroparesis or ulcerative colitis, navigating misdiagnosis, or struggling to feel heard by doctors, this conversation is a reminder that your voice matters.

One year ago, Surviving Out of Spite launched to share stories, insights, and real-life experiences living with gastroparesis. In this special episode, Sam reflects on the journey of building the podcast, the lessons learned, and the incredible community that has grown along the way. Join us as we celebrate one year of connection, resilience, and storytelling.

Gut health is complicated, especially when you’re living with gastroparesis. In this episode, Sam sits down with Liz Roman to unpack the complex systems involved in digestive health and how they impact people with chronic gastrointestinal conditions.

Together they explore the differences between conventional medicine and functional medicine, and how each approach looks at gut health, digestion, and chronic illness. The conversation dives into the gut-brain connection, the role of the liver and bile flow in digestion, and how thyroid health can influence the way the digestive system functions.

They also discuss why self-advocacy in healthcare is so important, especially for patients navigating chronic digestive diseases like gastroparesis. From asking better questions in medical appointments to understanding how different body systems work together, this episode is all about helping patients feel more informed and empowered in their health journeys.

Whether you’re living with gastroparesis, another digestive disorder, or simply trying to better understand gut health, this conversation offers insight into how interconnected the body truly is.

Want to connect with Liz? Check out the info below!

The www.fitmomsociety.com community also has the labs decoded series for learning more about your bloodwork from an optimal lens. It is a 7 day free trial.

Website: fitmom.co

IG: @thepoopqueen

Podcast: The Health Revival Show - https://open.spotify.com/show/5HUm3k84HHsDNM9FgnBB8J?si=H9zlJYeKQe2NSQwxz3W6EQ

Research links: https://docs.google.com/document/d/1nwHHX0kW4yqj3aAAvcVXpEcSmR5Jb6zgrt54M_AScC4/edit?usp=sharing

What does a panic attack actually feel like, especially when you're already living with gastroparesis and chronic illness?

In this raw and unplanned episode of Surviving Out of Spite, Sam shares a deeply vulnerable moment after experiencing an intense anxiety and panic attack at home. From suddenly struggling to breathe to using grounding techniques to calm her nervous system, Sam walks through what the experience was like in real time.Living with chronic illness often means navigating more than just physical symptoms.

Anxiety, medical trauma, and nervous system dysregulation can become part of the journey too.

This episode is a reminder that you’re not alone if anxiety or panic attacks are part of your life with chronic illness.If you've ever experienced anxiety, panic attacks, or the emotional toll of chronic illness, this conversation is for you.

Join our gastroparesis support group: https://g-pact.org/programs/virtual-support/

Living with a chronic illness is often framed as a limitation—but what if it could also be a strength?In this episode, Lilly Stairs joins us to share the concept of your “secret sauce”: the powerful combination of your natural skills, lived experiences, and the unique strengths developed through navigating chronic health conditions.

Lilly explains how the resilience, problem-solving, adaptability, and empathy that come with chronic illness can become real professional advantages.We talk about how to reframe chronic illness and disability in the workplace, identify the strengths your experiences have built, and start seeing your health journey as part of your value, not something that holds you back.

If you live with a chronic condition and are navigating your career, advocacy work, or creative projects, this conversation offers a powerful mindset shift about turning lived experience into leadership and impact.

https://chronicboss.com/

What does it look like to grow up managing central lines and still build a life full of strength, independence, and purpose?

In this inspiring episode, Vincent shares his journey of growing up with complex chronic illnesses, central lines, and learning line care and medical independence at a young age. He reflects on how his parents supported him in navigating healthcare while still encouraging him to live fully, take risks, and believe in what was possible.

Vincent opens up about discovering the gym as more than just physical training; it became a source of confidence, empowerment, and healing. Through fitness, advocacy, and self-determination, he found ways to travel, pursue his passions, and ultimately train for and compete in a bodybuilding competition, all while managing his chronic conditions.

This conversation is a powerful reminder that chronic illness doesn’t define limits; it demands creativity, resilience, and support. Vincent’s story is both motivation and a roadmap, showing others that thriving with chronic illness is possible.

Whether you’re living with chronic illness, supporting someone who is, or looking for hope that a full life can coexist with medical complexity, this episode delivers exactly that.

Chronic pain isn’t just physical; it affects your mental health, emotions, and daily life. In this powerful conversation, Sam and Alec break down what chronic pain management really looks like when empathy, trust, and communication are at the center of care.

Alec, a primary care provider, shares the personal experience that led him into medicine and shaped his approach to patient-centered care. Sam brings the lived patient perspective, opening up about the frustration and harm that can happen when pain is dismissed or misunderstood by healthcare providers.

Together, they explore why communication breakdowns are so common in healthcare, how validation impacts patient outcomes, and what both patients and providers can do to build stronger, more compassionate relationships, especially when navigating chronic illness and chronic pain.

Whether you’re living with chronic pain, supporting someone who is, or working in healthcare, this conversation offers insight, validation, and practical takeaways.

In this powerful conversation, Donna and Sam explore what it really means to live with chronic illness while navigating a complex and often broken medical system. Through personal stories and lived experience, they discuss patient advocacy, the emotional toll of being dismissed or misunderstood, and why awareness and systemic change in healthcare are so urgently needed.

The episode also reflects on the emotional impact of the film Complicated, using it as a starting point to unpack how chronic illness affects not just the body, but mental health, identity, and everyday life. They highlight the critical role of patient voices, the intersection of physical and mental health, and the collective responsibility; patients, providers, and communities alike to push for better care.

This conversation is for patients, caregivers, advocates, and healthcare professionals who want to better understand the realities of chronic illness, the importance of listening to patient experiences, and how advocacy can drive meaningful change in the healthcare system.

The virtual screening is Sun, Feb 15, 2026 at 2:00 PM EST

Info on where to watch at the link below:https://gathr.com/events/60654f28/complicated-worldwide-screening-panel-discussion

What does it mean to be diagnosed with a serious heart condition at a young age, and then have to fight to be believed?

In this powerful conversation, Hannah shares her journey as a heart patient diagnosed with HCM and the realities of navigating a healthcare system that often overlooks young patients. She opens up about misdiagnosis, self-advocacy, and the emotional toll of living with a heart condition that doesn’t “look” sick.

Hannah also dives into the mission behind the nonprofit, HeartCharged, which is working to raise awareness about heart conditions in young people and push for better education within the medical community. Together, the conversation explores how social media has become a lifeline for patient connection, why advocacy matters, and what it will take for patient organizations to collaborate more effectively.

This conversation is for patients, advocates, caregivers, healthcare professionals, and anyone passionate about improving care for young people with chronic illnesses. 

https://www.getheartcharged.org/

IG: @heartcharged

#ChronicIllness #GutHealth #DigestiveHealth #gastroparesis In this week’s episode, Sam sits down with Dahlia and James Marin, co-founders of Married to Health, where they unpack the gut-immune connection and why food is so much more than fuel when you live with chronic digestive illness.Together, they explore the concept of “gut debt,” the emotional and psychological weight we carry around eating, and why traditional nutrition advice often falls flat for people whose bodies don’t follow the rules. From pre-digestion techniques and mindful eating to building the right care team and repairing your relationship with food, this conversation offers real-world strategies that meet you where you actually are — not where wellness culture thinks you should be.Because healing your gut isn’t about perfection. It’s about listening, adjusting, and choosing yourself — even on the days your stomach is louder than your dreams.

Dating is hard. Dating with chronic illness or disability? That’s a whole different battlefield.

In this episode, Sam sits down with the founders of Dateability, the first dating app built specifically for people with chronic illnesses and disabilities. Together, they unpack the emotional reality of navigating dating in bodies that don’t always cooperate, the isolation so many experience on mainstream apps, and the power of creating spaces where disability is normalized — not hidden.

The founders share their personal journeys, the inspiration behind Dateability, and how community, inclusivity, and empowerment are at the heart of everything they’re creating. They also reveal what’s next for the app and why fostering real, supportive connections isn’t just a feature, it’s the mission.

https://info.dateabilityapp.com/

Gastroparesis isn’t just about digestion — it’s about identity, grief, resilience, and learning how to fight for yourself.

In this episode, Sam and Dr. Eva Alsheik unpack the science behind gastroparesis, the mental health piece that’s often ignored, and what real treatment looks like beyond a prescription pad. They explore options like G-POEM, gastric stimulators from Enterra therapy, and emerging research; while reminding patients that knowledge is power, and reminding us how community can be everything.

See here for more information on the medical device from Enterra Medical: http://www.enterramedical.com/important-safety-information/

In this final episode of the year, Sam pulls back the curtain on what it really takes to grow a chronic illness community. From the early days of G-PACT to the powerful network it’s become today, she reflects on the wins, the setbacks, and the moments that nearly broke her, and the people who helped her keep going.

This episode is a love letter to every person who has ever felt isolated by illness, unheard by the system, or invisible in their own body. Sam shares why authenticity in advocacy isn’t optional, how real connection changes everything, and why sharing our stories is one of the most radical acts of healing we have.

As we head into 2026, she also gives a glimpse into what’s next for G-PACT and the continued mission to make sure no one has to navigate chronic illness alone.

Because this journey is hard — but it’s a hell of a lot lighter when we carry it together.

In this week's episode, Megan Riehl joins the show to break down the brain–gut connection and why it’s a physiological process, not a dismissal. We explore how stress and nervous system dysregulation directly affect GI function, shaping symptoms that too often get misunderstood or minimized.

Megan explains how psychological therapies, including gut-directed hypnotherapy, can be powerful, evidence-based tools for managing GI disorders, and why truly effective care has to be holistic and patient-centered. We also talk about the complicated relationship many patients develop with food, and how chronic digestive illness changes the way people relate to their bodies.

Along the way, Megan shares practical insights and trusted resources for navigating GI care, advocating for yourself, and finding support that treats you as a whole person—not just a set of symptoms.

This episode is for anyone who’s felt dismissed, stuck, or gaslit by the system and wants to understand what’s really been missing in GI treatment.

Resources mentioned in the episode:

Megan's Website: https://www.drriehl.com/

Mind Your Gut Book: https://www.drriehl.com/general-8

telehealth clinic: www.gipsychology.com

The Gut Health Podcast: https://www.drriehl.com/podcast

Additional Resources: https://www.drriehl.com/shop

In this episode, Sam sits down with Kate Bochnewetch, a physical therapist and running/strength coach, for a conversation about living, moving and thriving with chronic illness. Drawing from her own journey with hEDS syndrome, POTS and chronic migraines, Kate breaks down the realities of chronic pain, the emotional toll of navigating the healthcare system and the power of finding people who truly get it.

They explore how to approach exercise when the "rules" of traditional fitness don't apply, what good advocacy from providers actually looks like, and why flexibility, curiosity, and self-kindness are essential tools for managing unpredictable symptoms.

This episode celebrates resilience and reminds listeners that healing isn't linear, and you're allowed to rewrite the plan as many times as you need.

kate's website: www.therunningdpt.com

Kate's Instagram: @the_running_dpt

In this episode, we’re joined by Jennifer Akimoto. She’s a registered dietitian with 20 years of clinical nutrition experience, and today, we are talking about the world of blended tube feeding. Inspired by a patient’s daughter, Jennifer shares how blended foods can offer more options than traditional formulas and play a vital role in overall health, especially for those with chronic illnesses. In this episode, she breaks down common myths, discusses food safety, and emphasizes patient empowerment and social inclusion at mealtimes. Whether you’re curious about blended tube feeding or looking for practical resources, Jen provides guidance to help patients and caregivers make informed, confident choices about their nutrition.

Jennifer's website: https://theblendingdietitian.com

Article mentioned about tube feeding during the holidays: https://theblendingdietitian.com/tube-feeding-during-holidays/

link for Jennifer's Blended Tube Feeding Essentials course that she developed in order to help more people get started with blended tube feeds confidently: https://jennifer-s-site-56ba.thinkific.com/courses/blended-tube-feeding-essentials

In this episode, Sam sits down with Maisy to unpack what it means to build a life around chronic illness without losing yourself in it. Maisy shares her personal journey through shifting identity, relationships, and the search for community when you exist between able-bodied and chronically ill spaces.

Together, they dive into the emotional and practical realities of asking for accommodations, navigating social media as both connection and comparison, and holding onto self-worth when your body changes the rules. This conversation is an honest look at belonging, resilience, and the power of supportive relationships in the chronic illness world.

In this solo episode, Sam opens up about what it’s like to navigate food-centered holidays while living with gastroparesis. From gatherings built around meals she couldn’t eat to the years when not a single dish felt safe, she shares the emotional weight, the isolation, and the small wins that helped her get through it.

Sam talks candidly about the pressure to “just try a bite,” the guilt of saying no, and the exhaustion of constantly explaining your body to others. She offers real strategies for advocating for yourself with family and friends, setting boundaries without shame, and redefining what participation in the holidays can look like, even when food is off the table.

Whether you’re in a flare, newly diagnosed, or years into your journey, this episode is a reminder that you’re not alone and you don’t owe anyone a bite to belong.

Support Group Link: https://us06web.zoom.us/meeting/register/1WJRQIbkRImHKC-p5sEibA

Cookbooks: https://g-pact.org/resources/cookbooks/

In this episode, Sam sits down with Izzy; a chronic illness warrior, marathon runner, and fierce self-advocate. Izzy opens up about navigating multiple chronic illnesses while training for endurance events, and what it took to reframe her mindset from limitation to possibility.

She shares the real challenges behind long-distance running with a complex health journey, how she built a supportive network, and why self-advocacy became non-negotiable. Together, Sam and Izzy explore the power of focusing on what is possible, rather than what isn’t, and how determination and mindset can redefine what strength looks like in a chronically ill body.

Izzy’s story is equal parts honest and hopeful; offering inspiration for anyone living with health limitations and reminding us that goals don’t disappear just because the path looks different.

In this episode, Sam sits down with CarmenRose Fiallo to explore the complexities of living with invisible disabilities, with a focus on chronic migraines. They discuss the pressure to appear “normal,” the stigma that often accompanies hidden conditions, and the emotional toll of being misunderstood or dismissed.

The conversation emphasizes the importance of finding a supportive community, leveraging social media for advocacy and connection, and validating both the good and bad days of life with chronic illness. From communication strategies with friends and partners to the mental health impact of invisible disabilities, this episode highlights the need for understanding, connection, and real conversations about the challenges often hidden from view.

Disclaimer: This episode includes open and honest conversations about sex and intimacy. Listener discretion is advised, and we encourage you to tune in when you feel comfortable engaging with this topic.

Intimacy is about so much more than sex; but living with a chronic illness can make every part of it complicated. In this episode, Samantha chats with Ali DiGiacomo, where they dive into the unspoken realities of intimacy and chronic illness; from navigating medical challenges that affect sexual health to building confidence, self-love, and connection.

They explore why open communication with partners matters, how self-care practices can help reignite desire, and the importance of normalizing conversations about intimacy in the chronic illness community. Whether it’s emotional closeness, physical intimacy, or self-pleasure, this conversation encourages listeners to see sexual well-being as a vital part of overall health.

Because intimacy isn’t just about what happens in the bedroom; it’s about reclaiming confidence, connection, and joy in every form.

Ali's IG: @anotherdaywithra

In this episode, Samantha Cook opens up about her 15-year journey with gastroparesis and the lessons she’s learned along the way. As both a patient and a psychologist, Samantha offers a unique perspective on the importance of mindset, emotional processing, and self-care in navigating chronic illness. She reflects on the role of community support, evolving medical care, and the impact of illness on identity.

Her story is one of resilience, growth, and finding fulfillment despite the challenges of gastroparesis—reminding us that life with chronic illness is not just about survival, but about creating space for joy, connection, and meaning.

website: www.transformative-psych.com

email: transformativepsychservices@gmail.com

Facebook/Instagram: Living Well Pod

Substack: livingwellpod@substack.com

In this episode, Sam and Kristen share an honest conversation about what it means to run with chronic illness and disability. For Kristen, running became a lifeline during a particularly tough health season. Together, they explore the emotional and physical realities of adaptive athletics, from the trial-and-error process of figuring out what works, to the deep mental health benefits that running can offer. Kristen introduces her unique “flag system” for assessing daily readiness, emphasizing how listening to your body is essential in protecting both health and joy.

They also dive into the nuances of language around disability, how the running community can uplift or isolate, and what true inclusion looks like on the course. With insights on nutrition, hydration, gear prep, and pacing, this episode offers practical tips and powerful reminders that healing doesn’t mean returning to your old life—it means building something new, one step at a time.