Explore every episode of the podcast SCI Care: What Really Matters
| Title | Pub. Date | Duration | |
|---|---|---|---|
| Do ambulant people with spinal cord injury benefit from a specific support group? | 09 Oct 2025 | 00:38:57 | |
SCI is a rare condition, not well-understood outside specialist centres. Those who walk again are seen as "lucky" and not "disabled". In fact they have invisible disabilities, which take a heavy toll. Spending time with others with similar experiences, can help with their frustration and isolation. The literature has tended to focus on physical and surgical considerations, not lived experience. A group was created in 2010 at our SCI Centre, providing Peer Support and information (invited speakers). It has been evaluated with positive results, and not required significant resources. Members derive benfit from contributing as well as receiving. It was presented at SCI conferences, but so far has not been replicated, except for two recent versions in the voluntary sector. Not all ambuplegic people suit a group approach, but members report feeling better-informed to manage their unique challenges, better in mood, and supported by others who understand. If you have any questions regarding this podcast, please contact Helen Smith at helen.smith35@nhs.net The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedIn | |||
| Stem cell therapies for spinal cord injury - Where are we now and where are we going? | 09 Sep 2025 | 00:19:58 | |
Dr. Michael G. Fehlings Key points: 1) Stem cells are a promising therapeutic approach to repair the damaged spinal cord following injury. 2) Preclinical studies have shown exciting improvements in spinal cord structure and motor function. 3) A number of issues still need to be resolved before stem cell therapy can be successfully utilized in the clinical setting. The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedIn | |||
| Implementation of WHO:s Rehab 2030, Package of Interventions | 31 May 2025 | 00:05:54 | |
ISCoS OT and PT SIGs SCI Pre Workshop Day “Implementation of WHO:s Rehab 2030, Package of Interventions” How do we implement available research into interventions in our daily work? Speaker details: Guillermo Gomez, Physiotherapist from Buenos Aires, Argentina and Johanna Wangdell OT, PhD. Department of Occupational therapy and Physiotherapy at Sahlgrenska University hospital Gothenburg Sweden Current Chairperson of the International Network of Spinal Cord Injury Physiotherapists (SCIPT) and the ISCoS Physiotherapists Special Interest Group. Current ALME – SLAP Vice chair (Latin American and Caribbean SCI Association). What the workshop is: Educational day with focus on implementation of research and to share clinical practice. OT and PT have separate programs before lunch and a joint program in the afternoon. Objectives: To update and train participating colleagues on different topics and aspects dedicated to the management of people with SCI, oriented towards the rehabilitation work of OT and PT, and how do we implement available research into interventions in our daily work? Our aim is not to be scientific, but to focus on implementing science. We will use WHO:s Package of Interventions as our framework to highlight that material as well. Why you are doing it: The main idea was born from a need of the OT and PT executive committees to hold a pre-day workshop for all colleagues attending the ISCOS annual congress to improve their knowledge in the field of SCI. We hope that this can attract more OT/PTs to the scientific conference as well as making ISCOS more relevant for OT/PT. We would like to see this workshop as a complement to the scientific congress. Why people should join: Take advantage of this pre-workshop day to increase your experience and knowledge of the work of OT and PT within the rehabilitation team for people with SCI. We have speakers from different regions of the world who will cover the most interesting topics, assistive technology, tenodesis grip, functional arm-hand training, electrical stimulation, community based therapy, trunk muscle function, guidelines, wheelchair, among other… The participants who do research will still present their research at the congress and we create a forum for discussions on how to implement new knowledge in the pre workshop. When: Gothenburg, October 8th, 2025. 9.00-17.30 The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedIn | |||
| What Influences Quality of Life During Inpatient Rehabilitation Early After Spinal Cord Injury? | 14 Apr 2025 | 00:58:32 | |
The SCI Care: What Really Matters podcast aims to provide valuable insights and the most up-to-date information for those providing care to people with spinal cord injury (SCI) worldwide. The vision of the International Spinal Cord Society (ISCoS) is to "facilitate healthy and inclusive lives for people with spinal cord injury or dysfunction globally". The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedIn | |||
| How to Transfer from being a SCI patient to an Individual with SCI | 27 Jan 2025 | 00:30:42 | |
The International Spinal Cord Society and Wellspect present a transformative discussion on changing care perspectives for individuals with spinal cord injuries, featuring leading medical experts Dr Charalampos Konstantinidis from the National Rehabilitation Centre and Dr Christina-Anastasia Rapidi from the General Hospital of Athens. Host Kristijan Kesinovic guides the conversation through critical aspects of rehabilitation and long-term wellbeing, with particular emphasis on bladder management during both acute and chronic phases. These experts share valuable insights on transitioning from initial care to long-term independence, including crucial discussions on sexual health and fertility options. Dr Konstantinidis addresses fertility possibilities for both men and women, whilst Dr Rapidi emphasises the importance of comprehensive rehabilitation approaches. Their discussion underscores the vital shift from viewing people as perpetual patients to recognising them as individuals with full life possibilities, highlighting the importance of specialised healthcare support throughout their journey. The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedIn | |||
| Optimal care of spina bifida during different stages of life | 26 Nov 2024 | 00:38:55 | |
In this episode, host Rima Kamal (Wellspect) explores the complexities of caring for children with spina bifida with Dr Fahad Alyami, Head of the Saudi Paediatric Urology Group and Associate Professor at King Faisal Specialty Hospital and Research Centre in Riyadh. The discussion delves into the critical aspects of paediatric care for those with spina bifida, from early intervention to adolescent transition. Dr Alyami explains the importance of bladder management from birth, the challenges families face in daily care routines, and the crucial role of multidisciplinary healthcare teams. The conversation addresses key aspects of paediatric care, particularly the transition from childhood to adult healthcare services. Dr Alyami emphasises the significance of specialised spina bifida clinics where multiple specialists can coordinate care under one roof, highlighting the development of transitional urology as a subspecialty to bridge the gap between paediatric and adult care. The discussion concludes with inspiring success stories of individuals with spina bifida who have gone on to lead fulfilling lives, including having families of their own, demonstrating how proper medical care and support can positively impact life outcomes. The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedIn | |||
| Knowledge Sharing is Caring: Improving quality of life for people with spina bifida | 25 Oct 2024 | 00:37:55 | |
In this episode, released to coincide with World Spina Bifida Day, host Anders Tennby (Wellspect) explores the challenges and opportunities in improving life quality for those with spina bifida. Joined by experts Hanna Gabrielsson from Sweden and Pierre Mertens from Belgium, the discussion delves into the complexities of this congenital disorder. Gabrielsson, a registered nurse with a thesis on adults with spina bifida, explains the condition's medical aspects and the challenges individuals face, including the need for consistent self-care and the impact of cognitive impairments. Mertens, president of Child-Help International and father to a daughter with spina bifida, brings a personal perspective, highlighting global disparities in care and support. Resources Mentioned
Note on Prevalence Rates: During the podcast, there was a discussion about the prevalence of spina bifida. It's important to clarify that prevalence rates can vary significantly between regions and depending on whether prenatal diagnoses are included. In Sweden, for example, the estimated prevalence before prenatal screening is approximately 5 per 10,000, but the actual number of children born with spina bifida is considerably lower, at about 5-10 children per year (or 1 per 100,000 newborns). Globally, reliable incidence studies are lacking, especially in the Global South where many cases may not reach hospitals. Reported figures vary widely, from as high as 14 neural tube defects per 1,000 births in some areas to as low as 1 in 10,000 in others. This wide range highlights the need for more comprehensive and standardised global data collection on spina bifida prevalence. The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedIn | |||
| The ISCoS 2024 Antwerp Annual Scientific Meeting | 08 Jul 2024 | 00:04:13 | |
As anticipation builds for the 63rd Annual Meeting of the International Spinal Cord Society, Professor Micheal Fehlings shares his excitement with Dr Stolwijk-Swuste, a Rehabilitation specialist and Associate Professor at De Hoogstraat Revalidatie. Our hosts invite the spinal cord community to this unique event, located in a charming and inspiring venue: A Room with a Zoo at Flanders Meeting & Convention Center, Antwerp. This 3 day event unites leading experts in spinal cord injury care and research to share groundbreaking advancements and innovative solutions in the pursuit of bettering the lives of individuals living with, or caring for those with a spinal cord injury. To learn more about our interactive programme and to register your place, please visit: https://iscosmeetings2024.org The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedIn | |||
| 2nd ISCoS International Regional Symposium : Sharing world knowledge for practical advancements | 27 Jun 2024 | 00:29:27 | |
The Vison of ISCoS is to "facilitate healthy and inclusive lives for people with spinal cord injury or dysfunction globally". Partnership and collaboration is key in helping us to realise this vision. We are delighted that we have been able to partner with Wellspect to deliver, in addition to a number of webinars and podcasts, educational support for the ISCoS International Regional Symposia. In this webinar, the 2nd ISCoS International Regional Symposium - Sharing world knowledge for practical advancements will be discussed by the panel: Dr. Ronald Reeves, MD , Chair of the ISCoS Education Committee, Dr. Francois Theron, MBChB, MMed, Chair of the ISCoS Affiliated Societies and Networks Committee Professor Moon Suk Bang, MD, Phd, Seoul National University College of Medicine and Chair of the Local Organising Committee. The panel highlight the work of the Korean Spinal Cord Society and spinal cord Injury care in Korea and discuss the work of the ISCoS Regional Symposia Initiative to promote multi-disciplinary, integrated care and training, the comprehensive care for which ISCoS is well known, within affiliated societies and regional networks. The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedIn | |||
| The Future of the Journal: Spinal Cord | 17 Jun 2024 | 00:09:39 | |
Welcome to the future of Spinal Cord. In this episode, our hosts Dr. Fehlings and Professor Anthony S. Burns welcome us to a new era of ISCoS’s flagship journal, Spinal Cord. Conceptualised in 1963, Spinal Cord is a specialised, international journal that publishes peer-reviewed manuscripts, to showcase powerful medicinal insights and support those within the SCI community. Appearing monthly, both online and in print, Spinal Cord invites contributions on spinal cord anatomy, physiology, injury and associated disease management, and importantly, improving the quality of life for those living with a spinal cord injury. As this unique, interdisciplinary journal progresses into its next chapter, Dr. Fehlings and Professor Anthony S. Burns have initiated an open call for Associate Editors to join their team of esteemed doctors, researchers and practitioners in bringing this journal to life. To apply for this role, please visit: Call for Application: Associate Editors of Spinal Cord | Spinal Cord (nature.com) Or to learn more about Spinal Cord, please visit: Journal Information | Spinal Cord (nature.com) SCI Care Guidelines The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedIn | |||
| What role does the nurse have for successful bladder and bowel management? | 30 May 2024 | 00:30:00 | |
Managing bladder and bowel health is a critical, yet often overlooked aspect of patient care, especially for those with spinal cord injuries (SCI). The initial phase of rehabilitation for newly injured SCI patients can be overwhelming. The sudden influx of information, coupled with the intimate nature of bladder and bowel care, often leaves patients feeling vulnerable. Josefin emphasises the need for educational materials that are not only concise but personalised to the individual's needs. A key factor in successful management is establishing a routine that is as close to the patient's pre-injury habits as possible, adapting techniques to their unique situations. The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedIn | |||
| SCI Patient Perspectives: Life Before, During, and After Participation in SCI Clinical Research | 25 Apr 2024 | 00:53:20 | |
In this episode, guest host Dr Kimberley Monden explores the world of SCI clinical research and rehabilitation medicine, exploring patient perspectives and life before, during, and after participation in SCI clinical research with Dr Trumbower, an associate professor in the Department of Physical Medicine and Rehabilitation at Harvard Medical School and Director of the spinal cord injury division at Spalding Rehab Hospital, and the director of the Inspire Lab at Spaulding Rehab Hospital. Listen as Arthur shares his first-hand account of his journey at Spaulding Rehab Hospital, where he reclaimed vital hand functions, as well as the importance of having the right mindset when it comes to rehabilitation. Dr. Trumbower concludes their conversation by sharing how much potential this study, and others like it, have for the spinal cord injury community whilst also emphasising how much more work there is to be done. The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedIn | |||
| World SCI Day 2025 Podcast | 04 Sep 2025 | 00:24:33 | |
The podcast for World SCI Day 2025, themed “Fall Prevention, Spinal Cord Protection,” focuses on raising awareness about the critical issue of fall-related spinal cord injuries and how they can be prevented. Falls are one of the leading causes of SCI worldwide, especially among vulnerable populations such as the elderly and individuals in high-risk environments. Discussion was based around the key risk factors contributing to falls, including environmental hazards, physical health issues, and lack of safety measures. Practical solutions, such as home and workplace safety tips, the importance of protective gear, and lifestyle adjustments, were shared to help listeners reduce their risk. Additionally, the podcast explored the role of early intervention after a fall, advancements in SCI treatment, and the importance of rehabilitation. By raising awareness and sharing actionable advice, we aim to promote safer practices and protect spinal health globally. On behalf of the ISCoS Prevention Committee, I am happy to invite you all to listen to this special SCI Day 2025 podcast and be a part of the movement to raise awareness. Speakers (photos saved in Files) 1) Prof Belgin Erhan, MD Chair, ISCoS Prevention Committee Board Member, ISCoS Professor and Faculty at Istanbul Medeniyet University, School of Medici Head of the PMR Department at Istanbul Medeniyet University, School of Medicine President, National Neurotoxin Society 2) Yannis Dionyssiotis, MD, MSc., PhD Head of 2nd Medicine & Rehabilitation Department, National Rehabilitation Center (Ethniko Kentro Apokatastasis, EKA), Athens, Greece A/Prof. of PMR, Medical School, University of Patras, Greece The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedIn | |||
| How Women Can Support Their Bladder and Bowel Health from Youth to Later Years | 28 Mar 2024 | 00:35:43 | |
This webinar, in partnership with Wellspect, aims to raise awareness of these issues. Originally recorded as a webinar, we decided to release it as a podcast as well. We hope you enjoy listening. To do this, host Ami Kivi, Global Product Manager Urology, Wellspect invites Dr Maria Gyhagen, Associate Professor in Obstetrics and Gynecology at Sahlgrenska University at Gothenburg University and Inge Eriks-Hoogland, head of the outpatient department of the Swiss Paraplegic Centre, to shed light on this pressing women's health issue. Their groundbreaking research and advocacy work reveal the widespread impact of these disorders and pioneer new paths in care and empowerment for affected individuals. The prevalence of pelvic floor disorders, such as incontinence and genital prolapse, severely impacts quality of life. Dr Gyhagen's research focuses on the functional dynamics of the pelvic floor, especially post-childbirth, emphasising its multifaceted effects, including compromised self-esteem and sexual dysfunction. She stresses the importance of early diagnosis and targeted support, which are often overlooked in healthcare. Obstetric Anal Sphincter Injury Calculator https://www.sphinctercalc.com/ UR-CHOICE Pelvic Floor Disorders Risk Calculator: https://riskcalc.org/UR_CHOICE/
We hope you will enjoy this episode.
The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedIn | |||
| Exploring Sexuality and Fertility After Spinal Cord Injury with Dr. Marcalee Alexander and Dr. Gianluca Sampogna | 14 Feb 2024 | 00:33:21 | |
This episode follows on from our previous webinar "Exploring Sexual Dysfunction," hosted by Francescapaola Polli, Enterology Product Manager for Wellspect in Italy. Returning guests Dr Marcalee Alexander and Dr Gianluca Sampogna provide invaluable guidance on overcoming sexual challenges and achieving fulfilling sexual lives after spinal cord injury. From discussing the role of sex toys in enhancing pleasure to emphasising the importance of bladder and bowel management for sexual activity, Drs Alexander and Sampogna offer practical advice and explore misconceptions surrounding sexual function post-injury. Listeners will gain insights into various aspects, including the impact of accidents during sexual activity, strategies for adolescents navigating sexuality, and fertility considerations for both men and women with spinal cord injuries. https://www.amazon.co.uk/Sexual-Sustainability-having-spinal-disorder/dp/B08L4969TV The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedIn | |||
| Little Leaks to Big Wins: Paediatric Bladder and Bowel Management | 19 Dec 2023 | 00:26:46 | |
In this episode of the podcast, in partnership with Wellspect, host Lisa Beauchemin talks to her colleagues Katherine Fernandez and Dr Lawrence (Larry) Vogel about bladder and bowel management in paediatric spinal cord dysfunction. The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedIn | |||
| Interview with SCI Grant recipient about the new work-care rehabilitation pathway for spinal cord patients in Bangladesh | 13 Dec 2023 | 00:03:41 | |
In this bonus episode, we talk to an SCI grant recipient, Kamrunnaher Koly, from Bangladesh, about her work as a researcher, the new work-care rehabilitation pathway for spinal cord patients in Bangladesh, and how she found her first experience at the ISCoS conference. The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedIn | |||
| In conversation with Julian Taylor and Kathy Zebracki on setting up the first-ever Paediatrics SIG | 12 Dec 2023 | 00:09:30 | |
In this bonus episode, we sit down for a conversation with Kathy Zebracki, a clinical psychologist from Shriners Children's, Chicago, and Julian Taylor from Toledo's National Paraplegic Hospital in Spain to learn all about the first-ever paediatric spinal cord injury Special Interest Group (SIG) for ISCoS. The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedIn | |||
| In conversation with the Praxis team at ISCoS 2023 | 27 Oct 2023 | 00:08:11 | |
In this bonus episode, we spoke with Bill Barrable, Vanessa Noonan, John Chernesky and Barry Monroe of Praxis as they discuss the 62nd ISCoS scientific meeting and the role of their organisation in setting best practices for managing spinal cord injury and rehabilitation. The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedIn | |||
| In conversation with SRI grantees Jacob Schoffl and Kiera Tranter | 17 Oct 2023 | 00:03:40 | |
In this episode, Christine Hendry, CEO of the Spinal Research Institute, chats with two standout grant recipients for ISCoS 2023, Jacob Schoffl and Kiera Tranter to discuss their research. Jacob discusses research on the effects of spinal cord injury on autonomic and psychosocial health. Meanwhile, Kiera, a physiotherapist shares her invaluable insights on clinical practice guidelines. The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedIn | |||
| Navigating SCI Care in Conflict with ISCoS Disaster committee members, Eric Weertz and Geraldine Jacquemin | 17 Oct 2023 | 00:08:20 | |
In this bonus episode, Eric Weertz and Geraldine Jacquemin discuss the work of the ISCOS Disaster Committee and the unique difficulties faced in conflict settings that they support, including developing the ISCoS SCI toolkit. The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedIn | |||
| In conversation with Dr. Haleluya Moshi: Revolutionary Research in SCI Care | 16 Oct 2023 | 00:03:46 | |
In this episode, Spinal Research Institute CEO, Kristine Hendry interviews grant awardee Dr. Haleluya Moshi from Tanzania. Dr Moshi discusses his research on traumatic spinal cord injury in rural areas. Listen as he shares his experience at ISCoS 2023. The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedIn | |||
| Interview with Nutrition SIG committee | 16 Oct 2023 | 00:08:02 | |
In this episode, Dr Samford Wong, Chair of the newly formed nutrition special interest group, is joined by fellow group members Sharon Lee, Firas Sarhan and Hanne Bjorg Slettahjell as they discuss the plans and developments for this SIG. There will also be a Nutrition SIG workshop to be held in ISCoS 2024, more details to come. The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedIn | |||
| Trends in the Supply of Spinal Cord Injury Medicine Physicians in the United States: An Evolving Human Resource Shortfall | 27 Aug 2025 | 00:18:00 | |
Key points: 1) The incidence and prevalence of spinal cord injury are rising due to an aging population, increased falls with incomplete cervical injuries and the impact of nontraumatic spinal cord injury. Host: Dr Michael Fehlings, Editor in Chief of Spinal Cord, Professor of Neurosurgery, Robert Campeau Family Foundation-Dr. CH Tator Chair in Brain and Spinal Cord Research, Vice Chairman Research), Co-Director Spine Program, Department of Surgery, University of Toronto Speakers Dr Jason Silvestre is a resident Physician at the Medical University of South Carolina Dr Robert Ravinsky is a dual-fellowship trained, dual board-certified (Canada & USA) orthopaedic spine surgeon, Department of Orthopaedics and Physical Medicine at the Medical University of South Carolina The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedIn | |||
| Robert Buren on Cognitive Behavioural Therapy on the management of Neuropathic Pain | 16 Oct 2023 | 00:06:23 | |
In this bonus episode, Kristine Hendry, CEO of The Spinal Research Institute, interviews Robert Buren, a researcher studying at the University of British Columbia, Canada and SRI grant awardee, on his research highlighting the effectiveness of cognitive behavioural therapy in managing neuropathic pain and attending benefits of ISCoS 2023. The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedIn | |||
| Candice Care-Unger on attending the pre-conference Psychosocial day | 16 Oct 2023 | 00:02:52 | |
In this episode, Candice Care-Unger is a renowned psychosexual therapist and specialist social worker from Sydney. Candice shares her insights on attending the pre-conference psychosocial day. The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedIn | |||
| Bev Collins and Sallyanne Haigh discuss non-spinal settings and SCI Care | 16 Oct 2023 | 00:07:18 | |
In this bonus episode, Beth Collins, a clinical lead at Wellspect Healthcare, interviews colleague and friend Sallyanne Haigh on her recent surgery experience in a non-spinal setting. They discuss the significant gaps in SCI care and the lack of training and knowledge within these settings. The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedIn | |||
| A conversation with Allen Heinemann, Jane Duff, Marcel Post, and Ashley Craig about a new research project on the length of stay for rehabilitation | 14 Oct 2023 | 00:13:33 | |
In this bonus episode, we talk about a new federally funded research project that involves ISCoS members Professors Allen Heinemann, Jane Duff, Marcel Post, and Ashley Craig. The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedIn | |||
| Challenges and Triumphs: Robert Buren in conversation with ISCoS 2023 Keynote speaker Claire Lomas MBE | 13 Oct 2023 | 00:11:33 | |
Claire Lomas MBE welcomed over 900 participants to the recent 62nd ISCoS meeting in Edinburgh. She shared her moving story from her life before a spinal cord injury to the difficulties she faced immediately after to the triumphs she enjoys since she grieved the life she lost and accepted the life she now has, ultimately changing her future. In this episode. Rober Buren shares his own challenges and triumphs as Canada's first paraplegic Iron Man and continues the conversation with Claire. We hope you enjoy listening. The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedIn | |||
| Behind the Scenes at the 62nd ISCoS Scientific Meeting with Mohit Arora and Jacob Shuffl | 10 Oct 2023 | 00:10:12 | |
In this bonus episode, we caught up with Mohit Arora, Senior Research Fellow and Senior Lecturer at the University of Sydney talking with student and colleague PhD student Jacob Shoffl at the Psychosocial pre-conference day on the 8th Oct during ISCoS 2023. They discuss their biggest takeaways of the day and why they are ISCoS members. The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedIn | |||
| Empowering SCI Care: A Global Nursing Initiative with Debbie Green, Tracey Tattam, Veronika Geng and Letitia Graves | 10 Oct 2023 | 00:15:21 | |
Welcome to SCI Care: What really Matters, Edinburgh conversations. This is a series of discussions recorded live during the #ISCoS2023 meeting. The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedIn | |||
| Conquering Adversity: Claire Lomas’ MBE Story of Resilience | 09 Oct 2023 | 00:29:45 | |
In this episode, Dr Ali Jamous talks to Claire Lomas MBE taking us through Claire's remarkable journey from a devastating accident to finding a new purpose in life. The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedIn | |||
| VR and Rehabilitation: Dr Ram Hariharan and Dr Abayomi Salawu explore the future of patient care | 25 Jul 2023 | 00:10:37 | |
Dr Abayomi Salawu is a neuro-rehabilitation consultant at Hull University Teaching Hospital NHS Trust who is pioneering the use of virtual reality (VR) in rehabilitation. Dr Ram Hariharan is a consultant in spinal injuries at the Princess Royal Spinal Injuries and Rehabilitation Centre in Sheffield and the chair of the UK SCI Research Network. Dr Hariharan and Dr Salawu got together at the recent BSPRM BASCIS Joint Annual Scientific Conference in Sheffield to discuss the remarkable ways in which VR is transforming patient care, particularly for those recovering from traumatic brain injuries and stroke. Dr Salawu's innovative approach creates a virtual environment where patients can safely practice rehabilitation exercises, aiding their recovery and fostering self-reliance. And VR is impacting the rehabilitation landscape beyond physical recovery. We hear how this technology can train patients in other important aspects of self-care, such as bladder and bowel management. Dr Salawu also explains the emerging use of VR in delivering specialised psychological therapies, such as eye movement desensitisation and reprocessing (EMDR) for managing post-traumatic stress disorder (PTSD) symptoms. The insights from this conversation illuminate the transformative power of VR in rehabilitation and its potential to revolutionise patient care. The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedIn | |||
| Advancements in Spinal Cord Injury Research with Nigel Henderson | 22 Jul 2023 | 00:39:15 | |
In this enlightening discussion, host Dr Ram Hariharan, a consultant at the Princess Royal Spinal Cord Surgery Centre in Sheffield and Chair of the UK Spinal Cord Surgery Research Network, speaks with Mr Nigel Henderson, a former consultant at Stoke Mandeville Hospital and later the clinical director of the National Spinal Injury Centre. He was appointed Clinical Director of the NSIC for 5 years before his retirement from the NHS in 2018. This gave him the opportunity for closer involvement in developing spinal cord injury services locally and nationally. He served as a member, then chair, of the Spinal Cord Injury Committee of the NHS England Spinal Services Group concerned with service organisation, specification and commissioning. He maintains his involvement with spinal cord injury as a Stoke Mandeville Spinal Research (SMSR) Trustee, and the SMSR's work is discussed in this episode. Mr Henderson explains the grant application process, providing valuable insights and guidance on securing funding for impactful research projects and that The SMSR prioritises funding research projects with the potential to improve the lives of those with spinal cord injuries. There is also great importance placed on reaching out to international researchers whilst investing in UK research. The Stoke Mandeville Spinal Research charity has evolved to focus on fundamental research topics impacting SCI patients’ quality of life: neuropathic pain management, UTI prevention, assistive technology and pressure ulcers. We hope you enjoy listening. The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedIn | |||
| Why sleep deserves more attention in SCI care | 29 Jul 2025 | 00:42:40 | |
The International Spinal Cord Injury Survey (InSCI) found that sleep problems rank among the top six most common and debilitating health issues for people with SCI — and are the second most likely to go untreated. While rehabilitation centres routinely manage issues like pain, spasticity, and bladder, bowel, and sexual dysfunction, sleep is often overlooked. Risk screening for sleep disorders is inconsistent and typically ad-hoc, and most centres refer suspected cases to sleep specialists for assessment and ongoing management. However, recent research shows it is feasible for rehabilitation centres to manage common, uncomplicated sleep disorders "in-house". In this podcast, we explore why sleep deserves more attention in SCI care— and how rehabilitation centres can take a more active approach. Speakers Marnie Graco, PhD email: Marnie.GRACO@austin.org.au Implementation Scientist | Institute for Breathing and Sleep, Austin Health, Melbourne, Australia Nancy Gray MND Research Post-Doctoral Fellow (MNDRA) Senior Fellow | Melbourne School of Health Sciences, The University of Melbourne, Australia Hardeep Singh Kainth, MD, FAAPMR, Dip. SCI Medicine Associate Clinical Professor, Division of Physical Medicine & Rehabilitation, Department of Medicine, University of Alberta, Edmonton, Canada Medical Lead, Spinal Cord Injury Rehabilitation, Edmonton, Canada The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedIn | |||
| The SRI and ISCoS Grant collaboration | 05 Jun 2023 | 00:11:46 | |
In this episode, Dr Jennifer Coker has a wonderful discussion with the Spinal Research Institute CEO Kristine Hendry and Emma Peleg, the International Spinal Cord Research Collaborations Manager and the importance of their partnership with ISCoS and offering grants to early career researchers to attend ISCoS meetings throughout the years including ISCoS 2022. Enjoy listening. The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedIn | |||
| Experiencing ISCoS as a first-time attendee and The SRI grantee | 05 Jun 2023 | 00:07:16 | |
In this bonus episode, Dr Jennifer Coker speaks with Merna Seliman and Nattha Boonthanakorn about their experience as first-time attendees as SRI grantees and the importance of such grants. The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedIn | |||
| In conversation with Richard Peter - Praxis Indigenous People's Liaison | 05 Jun 2023 | 00:17:27 | |
In this bonus conversation, Prof Ruth Marshall talks with Praxis Indigenous People’s Liaison Richard Peter. The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedIn | |||
| From Vancouver to Nepal - ISCoS learnings | 05 Jun 2023 | 00:06:42 | |
In this episode, our ISCoS education chair Stephen Muldoon talks with Nepalese students Surjana Bootun and Bina Gywali to discuss attending ISCoS 2022 and what learnings they can take back to Nepal. Here is what they have to say The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedIn | |||
| In conversation with Sue Cross | 05 Jun 2023 | 00:05:16 | |
In this bonus episode, our team caught up with Sue Cross, a physiotherapist from Stoke Mandeville Hospital. Sue has now joined the ISCOS Education Committee, and in this conversation she discusses the importance of resources such as the ISCOS eLearn and textbook and how beneficial it is to attend an ISCOS meeting in person and immerse yourself with your peers and like-minded people. The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedIn | |||
| In conversation with SCI peer mentor Walt Lawrence | 05 Jun 2023 | 00:18:54 | |
In this bonus episode, ISCOS President, Professor. Ruth Marshall and Walt Lawrence, an SCI peer mentor, who has worked tirelessly to help other people with SCI regain Hope and independence have a lovely discussion as Walt shares his story and their chance meeting in 1986. The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedIn | |||
| ISCoS Meetings and Light Bulb moments | 05 Jun 2023 | 00:03:30 | |
In this episode, Jennifer Coker chats with Dr Andrew Park, a colleague and friend from Craig Hospital. They talk about first-time attendees, light bulb moments, and coming out of isolation. The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedIn | |||
| The multidisciplinary attendance of the ISCoS Psychosocial Pre-Conference | 05 Jun 2023 | 00:04:41 | |
In this episode, Dr. Jane Duff speaks with Ty Van Demon and Kimberly Monan to discuss the multidisciplinary attendance of the psychosocial pre-conference and how psychology and psychosocial care are so important in SCI. The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedIn | |||
| In conversation with Yi Kai Low | 05 Jun 2023 | 00:06:43 | |
In this episode, we do things a little bit differently as we find out more about the company Aneuvo and who better than to interview founder Yi Kai than the company's VP of Global Marketing and Strategy, Katie Valez. The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedIn | |||
| In conversation with ISCoS Disaster committee members, Eric Wetz and Geraldine Jman | 05 Jun 2023 | 00:14:25 | |
In this bonus episode, Eric Wetz and Geraldine Jman discuss the work the ISCOS Disaster Committee have been doing, covering how to help SCI patients in an area of crisis such as Afghanistan, as well as including distance learning and the work on the SCI toolkit ISCOS has been working on with the WHO. The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedIn | |||
| The importance of sensory afferent pathways in the assessment and management of the neurogenic bladder after spinal cord injury: A conversation with Professor JJ Wyndaele | 14 Jul 2025 | 00:12:11 | |
Key points:
b) The urinary bladder wall urothelial cells, sensory nerves, interstitial cells, smooth muscle cells and the chemo/mechanosensors in the urethral paraneurons or “brush cells” play a key role in bladder neurophysiology. c) Knowledge regarding the sensory afferent pathways from the bladder could guide future neuromodulation therapeutic options for the neurogenic bladder after SCI. The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedIn | |||
| Interview with ISCoS Education chair Stephen Muldoon at ISCoS 2022 | 05 Jun 2023 | 00:07:08 | |
In this conversation, Heather Pownall interviews Stephen Muldoon, the ISCOS Education Chair, during the ISCoS 2022 meeting in Vancouver. They discuss the value of both face-to-face conferences and virtual platforms, discussing their respective benefits and how they can complement each other to promote accessibility, education, and idea sharing in the field of spinal cord injury care. We hope you enjoy it. The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedIn | |||
| What I learned from my spinal cord injury – notes from a surgeon | 20 Apr 2023 | 00:44:48 | |
In this inspirational episode, we have the privilege of hearing the unique patient perspective of a surgeon who operated on SCI patients prior to his own spinal injury. Mr Mohammed Belal is a consultant urologist who has treated many SCI patients during his medical career. In 2021 he had a cycling accident and sustained a spinal cord injury which saw him undergo many months of rehabilitation and treatment. He has recently returned to work as a surgeon. Here, he speaks with Dr Jane Duff, a consultant clinical psychologist at the National Spinal Injuries Centre, Stoke Mandeville Hospital, and ISCoS President-Elect, Dr Ali Jamous about his journey. The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedIn | |||
| Transformative Therapies for Chronic Spinal Cord Injury: The Role of Transcutaneous Spinal Stimulation in SCI Care | 23 Mar 2023 | 00:29:36 | |
In this episode of ‘SCI Care: What Really Matters’ we focus on sharing information on the technological innovations in our field with a discussion about transcutaneous spinal stimulation (TSS). Our guest host for this episode is Dr Daniel Graves, Professor and Associate Dean of Research at the College of Rehabilitation Sciences and Vice-chairman of Rehabilitation Medicine at Thomas Jefferson University's Sidney Kimmel Medical College in Philadelphia. He is joined by Yi-Kai Lo, PhD, CEO and Co-Founder of ANEUVO, the developers of ExaStim TSS. After working for many years in the electrical stimulation research field, Yi-Kai Lo realised there was a gap when it came to better technologies and tools for SCI patients, and he has made it his mission to bridge this gap by targeting the technology at this specific group of patients. Our second guest is Dr Rebecca Martin, OTR/L, OTD Manager of Clinical Education and Training at the Kennedy Krieger Institute in Baltimore. Dr Martin previously worked as an occupational therapist before moving into research, motivated by the desire to find better treatment solutions for her patients. There is still much to learn about the possible outcomes of TSS, but the early signs are promising, particularly in terms of those areas which are a high priority for patients, such as bowel and bladder function. Any improvement in these areas makes a real difference to patients’ quality of life. Listen to the full episode to learn more about developments in this research area.
The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedIn | |||
| What makes Intermittent Catheterisation Safe? Reducing the Risk of Complications for Long-Term Use. | 09 Mar 2023 | 00:37:36 | |
In this episode of ‘SCI Care: What really Matters’ we talk about how to reduce the risks associated with long-term intermittent catheterisation. Our host is John Thomson, clinical education manager for Wellspect, UK. John has worked in the medical device industry for over 20 years, having formerly been a nurse, and has worked in the field of intermittent catheterisation for approximately seven to eight years. He is joined by Diane Newman, a urology nurse practitioner from the US whose current practice involves the evaluation, treatment and management of bladder disorders, including the avoidance of dysfunction and related problems involved with the use of catheters and other devices. Our second guest is Veronika Geng, the head of an advisory centre for nutrition and digestion for spinal cord injured people in Lobbach, Germany. What are the practical tools and techniques for catheterisation and the design properties of different catheters which can reduce complications for long-term users? Our guests share their expert insight in this area. We also consider the pros and cons of sharing this information with patients and the importance of giving them informed choice when it comes to this very personal area of care. We discuss best practice for healthcare practitioners in ensuring that long-term users of intermittent catheters are performing the procedure safely, including the importance of the teaching, learning and dissemination of best practice guidelines for clinicians at all levels who might be involved in this kind of patient care. A vital part of this is remembering that each patient is unique and will be at a different stage of both their mental and physical recovery. Practitioners must keep this in mind when explaining the benefits of intermittent catheterisation over indwelling catheter use and work together with patients to make the process work for them. Our patients are at the heart of everything we do, and SCI patients are part of a unique cohort who are dealing with a life-changing, but not necessarily a life-limiting, prognosis. Helping them come to terms with all aspects of their ongoing care and the practicalities of day-to-day life is one of the most challenging but rewarding parts of our work in SCI care. By supporting our patients in having the best possible health and care outcomes we can play our part in giving them long-lasting quality of life. The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedIn | |||