Jon Strum cuts through all the jargon and breaks down the latest multiple sclerosis news. You’ll meet the scientists who are creating tomorrow’s MS treatments today. You’ll hear from the experts discussing how the latest tweaks and changes to our healthcare laws will impact your MS treatment. And we’ll be talking to the courageous MS warriors who are out there advocating on behalf of the MS community every day, as well as the men and women who are committed to living their best lives with MS and living their best lives as MS caregivers. If you're dealing with multiple sclerosis in your life -- as a patient, caregiver, family member, or friend -- join us each week for RealTalk MS.
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Episode 366: Medicare and MS -- Getting Your Ducks In a Row with Laquel Thomas
Season 7 · Episode 366
Monday, September 2, 2024 • Duration 35:13
Most of us know Medicare as health insurance for Americans who are 65 or older, but when they qualify for Social Security disability benefits, people younger than 65 automatically qualify for Medicare. Today, between 25 and 30% of the people living with MS are Medicare beneficiaries.
Whether you already have Medicare or you'll be signing up for Medicare in the future, getting the right coverage requires making some important choices.
Licensed Medicare Advisor Laquel Thomas joins me with tips, strategies, and explanations for successfully navigating Medicare and getting the coverage you need.
We’re explaining the good news in the results from a Phase 3 clinical trial for Tolebrutinib, Sanofi’s experimental oral BTK inhibitor. The trial showed that, compared to placebo, Tolebrutinib met the primary endpoint, delaying the onset of confirmed disability progression in people with non-relapsing secondary progressive MS.
Take My Hand is an Australian film based on the true story of Claire Jensz, a mother of three living in London who is diagnosed with MS at the peak of her high-powered career. Be sure to catch my conversation with Claire, Radha Mitchell, the film's star, and John Raftopoulos, the film's director.
We're sharing the details of a study that may have uncovered an underlying cause of MS and, perhaps, all autoimmune diseases.
We'll tell you about the results of a stem cell study that show MS may involve more than just immune cells.
And we'll give you what may be surprising details of a study that focused on how MS impacts the quality of life of fully ambulatory people living with mild MS symptoms.
We have a lot to talk about! Are you ready for RealTalk MS??!
This Week: Making the right Medicare choices :22
There's good news about the results of the Phase 3 clinical trial for Tolebrutinib 1:41
My conversation with the director, star, and woman whose story about living with MS is the real-life basis for the new film, Take My Hand 4:28
Have researchers at Yale discovered an underlying cause of MS? 14:11
Newly published results of a stem cell study show that MS may also be driven by brain cells 17:19
Study results show how MS impacts the quality of life among fully ambulatory people with mild MS symptoms 19:15
Licensed Medicare Advisor, Laquel Thomas, explains all the variables you want to consider in making choices about your Medicare coverage 22:12
Share this episode 33:40
Have you downloaded the free RealTalk MS app? 34:01
I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!
STUDY: Determinants of Self-Perceived Quality of Life in Mildly Disabled Multiple Sclerosis Patients: A Cross-Sectional Study https://pubmed.ncbi.nlm.nih.gov/38526763
Episode 365: It's the Episode Where I Get Interviewed with Jon Strum
Season 7 · Episode 365
Monday, August 26, 2024 • Duration 41:35
If you're a regular listener, you know that I rely on the RealTalk MS listener community to let me know which topics you'd like to hear about on this podcast. A few years ago, in episode 264, listener Dawnia Baynes did a podcast takeover, and interviewed me. Since then, I've heard from a bunch of you who, for some reason, want to hear more about me. So, when listener Kyra Millich asked if she could interview me, it felt like it was time.
In today's episode, you'll find out what I like to do when I'm not doing this podcast, I'll share some of the most memorable moments in my life, you'll hear how and why I started RealTalk MS, and I hope you'll get to know me a little better.
You'll also hear about results from a study that show people with MS are far less likely to be diagnosed with Alzheimer's disease compared to people who don't have MS.
We'll tell you about a Phase 1 clinical trial for a CAR-T cell therapy for MS.
And you'll learn the details of a different Phase 1 clinical trial for a different CAR-T cell therapy for MS.
We have a lot to talk about! Are you ready for RealTalk MS??!
This Week: Jon gets interviewed :22
Study results show people with MS are less likely to get Alzheimer's disease than people who don't have MS 1:23
TG Therapeutics announces Phase 1 clinical trial of CAR-T cell therapy for MS 3:44
FDA clears Immpact Bio for Phase 1 clinical trial of CAR-T cell therapy for hard-to-treat MS 7:13
Listener Kyra Millich interviews Jon 8:48
Share this episode 40:03
Have you downloaded the free RealTalk MS app? 40:23
Episode 356: A Final Conversation with National MS Society President and CEO, Cyndi Zagieboylo
Season 7 · Episode 356
Monday, June 24, 2024 • Duration 33:04
Over the course of her 39-year career with the National MS Society, including the past 13 years as its President and CEO, Cyndi Zagieboylo has been a driving force behind major initiatives that have fundamentally changed the MS treatment and research landscape. Creating a world where cures for MS are now within reach, Cyndi has led the work to make living with MS better today than it's ever been.
On July 1, Cyndi is retiring from her remarkable career at the National MS Society. I had an opportunity to talk with Cyndi about the progress she's witnessed and the progress she has driven in leading the MS Society. It's been a career filled with so many moments that are worthy of celebration, I am devoting this entire episode of RealTalk MS to one last conversation with Cyndi Zagieboylo.
We have a lot to talk about! Are you ready for RealTalk MS??!
This Week: A final conversation with the National MS Society's President and CEO, Cyndi Zagieboylo :22
A look back at some of the most impactful initiatives that were led by Cyndi 1:43
Share this episode 30:39
Next Week: Lifestyle medicine physician Dr. Linda Doggett shares tips and strategies for making healthy lifestyle choices that will improve your quality of life 31:00
Have you downloaded the free RealTalk MS app? 31:50
I've always thought about the RealTalk MS podcast as a conversation. And this is opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the and share your thoughts!
Bonus Episode: MS in the 21st Century -- Are We Nearly There Yet? Achieving Freedom from Disease
Season 6
Thursday, December 15, 2022 • Duration 38:04
This special episode of RealTalk MS is sponsored by EMD Serono and MS in the 21st Century.
In this special episode of RealTalk MS, I'm joined by Professor Peter Rieckmann, Stanca Potra, and Maria Paz Giambastiani. We're taking a look back at the advances that have been made in treating MS and focusing our eyes ahead to determine the work that still needs to be done.
Professor Rieckmann is the Chief Physician of Neurology and Clinical Neuroplasticity at the Medical Park Loipl, Germany. Professor Rieckmann has also served as the Chair of the MS in the 21st Century initiative since its inception in 2011.
Maria Paz Giambastiani has been living with MS for the past 17 years. She's a columnist, writing about disability and inclusion for More Than Words magazine. Maria has also authored several books and publications focused on MS.
Stanca Potra is the founder of the Smile Center, a support and counseling center for people living with MS in Romania. Stanca has been living with MS for the past 9 years.
Professor Rieckmann, Stanca, and Maria are active members of the MS in the 21st Century initiative. To learn more about MS in the 21st Century, please visit www.msinthe21stcentury.com.
Episode 276: ECTRIMS Research Update Part 2 with Dr. Bruce Bebo
Season 6 · Episode 276
Monday, December 12, 2022 • Duration 36:56
Some of you might remember that at the end of October, I was in Amsterdam, attending the 2022 ECTRIMS Congress. ECTRIMS is an acronym for the European Committee for Treatment and Research in Multiple Sclerosis, and their annual scientific congress is the largest MS research conference in the world. As the conference ended, I sat on some steps outside the conference center alongside the National MS Society's Executive Vice-President of Research, Dr. Bruce Bebo. And Dr. Bebo shared his initial impressions of some of the research that had been presented over the 3-day conference. If you missed that episode of the podcast, you may want to listen to episode number 270 of RealTalk MS
After having had a few weeks to consider all of the research that was presented at the ECTRIMS Congress, Dr. Bebo is back to share his final ECTRIMS research update, and talk about the rest of the research that caught his attention at the 2022 ECTRIMS Congress.
You'll also meet the Co-Chair of the MS Society Southern California chapter's Emerging Leaders Board and this year's recipient of the Dorothy Corwin Spirit of Life Award, Kristen Karasek. Kristen was diagnosed with MS at the age of 24, but, as will become clear to you, she hasn't let MS get in her way. I think you'll find Kristen's positivity to be infectious.
We have a lot to talk about! Are you ready for RealTalk MS??!
This Week: Part Two of our 2022 ECTRIMS research roundup with Dr. Bruce Bebo:22
My conversation with the Co-Chair of the MS Society Southern California Chapter's Emerging Leaders Board and Dorothy Corwin Spirit of Life recipient, Kristen Karasek 1:37
The National MS Society's Executive Vice-President of Research, Dr. Bruce Bebo, discusses the research that caught his attention at the largest MS research conference in the world 16:20
Share this episode 35:21
Episode 275: Choosing the Right Disease-Modifying Therapy with Ross Tingen, PharmD, BCPS, MSCS
Season 6
Monday, December 5, 2022 • Duration 28:20
The first step in living well with MS is establishing a treatment plan with your neurologist or MS specialist. And a disease-modifying therapy, or DMT, should be the foundation of that plan. Joining me to talk about what disease-modifying therapies can and can't do, and how to work with your doctor to find the best MS medication for you is the Clinical Pharmacy Specialist in Multiple Sclerosis and Neuroimmunology at VCU Health in Richmond Virginia, Ross Tingen.
Why are we talking about global warming on a podcast about MS? Because we're talking about the results of a study that show how climate change has a negative impact on people living with multiple sclerosis and other neurological conditions.
We're also sharing the results of a study that demonstrate the sobering reality of the association between socioeconomic status and death among people living with MS.
If you're on Tecfidera, you'll want to hear about a study that focused on how alcohol may change the efficacy of your DMT.
And we'll tell you about a study that revealed significant differences in how the prodromal phase of MS affects men and women at different ages. (And we'll also tell you why understanding the MS prodrome is important!)
We have a lot to talk about! Are you ready for RealTalk MS??!
This Week: How to find the best MS medication for you :22
Study shows climate change impacts people living with MS 1:08
Study examines the impact of socioeconomic status on death among people with MS 3:28
Study shows alcohol dulls the metabolism of Tecfidera 7:01
Study analyzes differences due to sex and age in the MS prodrome 8:35
Ross Tingen discusses how to work with your doctor to find the best disease-modifying therapy for
Bonus Episode: MS in the 21st Century -- The Impact of Cognitive Symptoms on Employment
Season 6
Wednesday, November 30, 2022 • Duration 25:22
This special episode of RealTalk MS is sponsored by EMD Serono and MS in the 21st Century.
In this special episode of RealTalk MS, we're talking with Professor Dawn Langdon and David Yeandle about the impact of MS-related cognitive issues on employment.
Professor Langdon is a Professor of Neuropsychology with a special interest in cognition at the Royal Holloway University of London, in the United Kingdom. Professor Langdon is also a Trustee of the MS Trust in the U.K.
David Yeandle was diagnosed with MS in 2010. David was a Head of Employment for a major organization in the U.K., and he's a passionate advocate for helping people living with MS stay employed.
Both Professor Langdon and David are active members of the MS in the 21st Century initiative. To learn more about MS in the 21st Century, please visit www.msinthe21stcentury.com.
Episode 274: Disaster Preparedness for People Living with MS with Mary Casey-Lockyer
Season 6 · Episode 274
Monday, November 28, 2022 • Duration 32:25
A quick scan of the news on any given day should remind all of us that natural disasters can strike anywhere at any time. Whether it's massive snowstorms, earthquakes, wildfires, hurricanes or floods, no one is immune when Mother Nature chooses to act up. That's why being prepared for a natural disaster is important for everyone. And if you're living with MS, it's especially important for you to have your family's emergency preparedness plan in place.
Senior Medical Advisor to National Disaster Operations at the American Red Cross, Mary Casey-Lockyer, joins me to talk about the things that people living with MS should include in their emergency preparedness plan.
We're also talking with Dr. Aaron Kesselheim, a researcher at Harvard's Brigham and Women's Hospital. And if you're on Lemtrada, Dr. Kesselheim could use your help.
We have a lot to talk about! Are you ready for RealTalk MS??!
This Week: Disaster Preparedness :22
If you're on Lemtrada, Dr. Aaron Kesselheim could use your help 1:43
Mary Casey-Lockery discusses disaster preparedness for people living with MS 10:49
I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the and share your thoughts!
Episode 273: Spasticity and MS with Dr. Michelle Cameron
Season 6 · Episode 273
Monday, November 21, 2022 • Duration 35:00
Spasticity is one of the most common symptoms of MS, impacting up to 80% of the people living with MS. It can feel like mild muscle tightness that you wish would just go away or it can be so painful and debilitating that it keeps you from moving. Dr. Michelle Cameron joins me in this episode to discuss what spasticity is and how to best manage it.
Dr. Cameron is a neurologist and physical therapist, a professor in the Department of Neurology at Oregon Health & Science University, Interim Chief of Neurology at the VA Portland Healthcare System, and Co-Director of the VA MS Center of Excellence West.
We're also talking about a new framework for thinking and talking about MS that's been proposed by an international panel of MS experts.
We'll tell you about a study that looked at polypharmacy and MS (Of course, we'll also tell you what polypharmacy is and why you should be aware of it!)
We'll share the details around the discovery of human antibodies that have been shown to prevent Epstein-Barr infection (And we'll explain why this could be incredibly important)
If you're an MS caregiver, or you know one, I'm asking for just 5 minutes of your time.
We're celebrating National Caregivers Month by breaking down the details of the National Family Caregiving Strategy that was recently submitted to Congress.
And we're celebrating the indomitable quality of the human spirit by sharing the story of Eric Domingo Roldan and his mom, Sylvia.
We have a lot to talk about! Are you ready for RealTalk MS??!
Thanksgiving is two days away! :22
This Week: Managing Spasticity 1:02
Experts propose a new framework for thinking about and talking about MS 2:07
Polypharmacy and MS
Episode 272: Live from the National MS Society Leadership Conference with Lori Turley and Dr. Brad Zuchero
Season 6 · Episode 272
Monday, November 14, 2022 • Duration 34:51
This week's episode of RealTalk MS was recorded in front of a LIVE audience at the National MS Society's 2022 Leadership Conference.
Joining me in this special episode are Lori Turley, who was diagnosed with MS in 2021, and whose commitment to fundraising and advocacy is already producing dividends, and Dr. Bradley Zuchero, an MS Society-funded research fellow whose lab has discovered the biological mechanism that produces myelin in our central nervous system.
In addition to my questions, our audience has questions for my guests, as well!
We have a lot to talk about! Are you ready for RealTalk MS??!
We're LIVE from the National MS Society's 2022 Leadership Conference in Dallas, Texas :23
MS Society volunteer Lori Turley talks about her fundraising and advocacy efforts, and why they're important 1:38
MS Society-funded research fellow, Dr. Bradley Zuchero, talks about his lab's discovery of the mechanism that brain cells use to produce myelin 13:20
Our live audience has questions for Dr. Zuchero and Lori 22:11
I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the and share your thoughts!
I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!
I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!
I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!
I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!
RealTalk MS Episode 229: Evidence Shows MS Is Triggered by the Epstein-Barr Virus with Dr. Kassandra Munger and Dr. AJ Joshi https://realtalkms.com/229
RealTalk MS Episode 231: Evidence Shows EBV Triggers MS: Understanding the Impact of this Breakthrough Research with Dr. Bruce Bebo https://realtalkms.com/231
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