Explore every episode of the podcast PediPal
| Title | Pub. Date | Duration | |
|---|---|---|---|
| Episode 38: About Suffering | 08 Aug 2024 | 00:38:20 | |
"About suffering they were never wrong, / the old Masters: how well they understood / Its human position..." wrote W.H. Auden. For all that suffering seems to be central to our practice, how do we in pediatric palliative care actually stack up against Brueghel et al when it comes to understanding it, though? Dan and Sarah dig deep with guests Erica Salter, PhD, and Lauren Draper, MD to explore what suffering really means for children, families, and the clinicians who care for them. | |||
| Episode 37: Homeward Bound | 01 Jul 2024 | 00:32:54 | |
Even before heading homeward from the Annual Assembly, Dan and Sarah decided that we needed to do an episode about one of our favorite presentations, palliative home transports. So in this interview, Ashley Autrey from Children's Hospital New Orleans and Lindsay Ragsdale from Kentucky Children's Hospital bring it on home to you, our audience, sharing their wisdom and expertise about how to get some of our most complex and fragile patients out of the hospital, and what it means to honor death location preference. | |||
| Episode 28: PawdiPal | 01 Aug 2023 | 00:46:07 | |
Interdisciplinary teams are so vital to the practice of palliative care, and in today's episode, the PediPal team explores a new kind of team member: What has four paws, has mastered the art of being present, and is guaranteed to increase the popularity of your palliative care team? A therapy dog! | |||
| Episode 27: Competent | 01 Jul 2023 | 00:27:21 | |
Get psyched because PediPal is back! In this episode, Sarah and Dan interview two psychologists, Amanda Thompson and Rachel Kentor, about creating competencies for pediatric palliative psychology and how we can bring more psychology into the world of pediatric palliative care.
| |||
| Episode 26: Permission | 03 Apr 2023 | 00:38:48 | |
If you're working in pediatric palliative care and you haven't heard of Courageous Parents Network, put down this podcast immediately and go make yourself familiar with the amazing resource that is CPN. Sarah and Dan are thrilled to have three courageous parents - Blyth Lord, Amy Graver, and Liz Morris - discuss how their children's stories intersected with palliative care. | |||
| Episode 25: Sound of Silence | 01 Apr 2023 | 00:29:38 | |
Welcome to a special "Best of" PediPal episode! The notion, concept, and implementation of silence is integral to the practice of pediatric palliative care. Perhaps even more important than what we say is what we don't say, and how we don't say it, and when it isn't said. Join Sarah and Dan for an exploration of this truly golden feature of our specialty. | |||
| Episode 24: Collective Effervescence | 01 Mar 2023 | 00:29:10 | |
A social worker, a nurse practitioner, and three physicians walk into a podcast... There's no punchline, just the latest episode of PediPal, where Dan and Sarah interview three of the interprofessional fellows from the Boston Children's interprofessional fellowship program--Jennifer Donovan, Amy Porter, and Thomas Haire--and challenge ourselves to say the word "interprofessional" as many times as possible. We also include some clips from past episodes that resonate with the themes from the interview, so listen up for some old familiar voices from PediPal history. | |||
| Episode 23: Death Ed | 31 Jan 2023 | 00:30:05 | |
How do you talk to a child about illness and death? For a field that deals with these challenging topics every day, we don't always feel comfortable helping our young patients and their families engage with them. For guidance, Dan and Sarah turn to Elena Lister (@elenalistermd1) and Michael Schwartzman (@schwartzmanma), authors of Giving Hope: Conversations with Children About Illness, Death, and Loss. | |||
| Episode 22: Overfed | 31 Dec 2022 | 00:59:05 | |
The holiday season is ending and boy are we stuffed... with educational and entertaining content about one of pediatric palliative care's more misunderstood and controversial topics: overfeeding. Sarah and Dan round out 2022 talking with skeletal dysplasia expert Ricki Carroll (@RickiCarroll), hospice guru Glen Komatsu, and the inimitable Julie Hauer about those times when our patients are getting too much nutrition and all the problems that can cause. | |||
| Episode 21: Palliative Parenthood | 30 Nov 2022 | 00:40:32 | |
Does practicing pediatric palliation promote positive parenting? Does parenthood put palliative practitioners in a preferable position? Dan and Sarah partner up to ponder these profound puzzles and palaver with Jessica Casas and Daniel Mahoney (@DanielMahoneyMD), and Claire Crawford (@PalliativClaire), all from the Pediatric Advanced Care Team at Texas Children's Hospital. | |||
| Episode 20: Buenos Aires, Argentina | 31 Oct 2022 | 00:30:27 | |
In our final international episode, Sarah and Dan speak with Doctora Rut Kiman (@KimanRut) about pediatric palliative care in Argentina and throughout Latin America. | |||
| Episode 19: Speaking Concurrently | 30 Sep 2022 | 00:46:44 | |
Curative therapy and hospice... at the same time?! Since the Affordable Care Act, pediatric patients don't have to give up one to benefit from the other. But does this model really work, and does it make sense for the realities of pediatric palliative care and hospice as in 2022? To figure it all out, Sarah and Dan have a concurrent conversation with Steven Smith (@stevenmsmith913) and Conrad Williams (@conradw4) about Cadillacs, cookies, and #PedPC's biggest Twitter rivalry. | |||
| Episode 36: Perivariability | 06 May 2024 | 00:44:10 | |
Perinatal Palliative Care! Thanks to a healthy dose of serendipity, PediPal finally wades into the ever-changing waters of palliative care before, during, and after birth. Sarah and Dan talk with Brian Carter, Kelstan Ellis, and Jenni Linebarger about their collaborative, creative work at the Children's Mercy Kansas City Fetal Health Center and beyond. So come for the birth planning, stay for the unrivaled power of narrative, everyone's favorite pediatric bioethical Zone, hot-button political issues, and 18th-century etymologies! | |||
| Episode 18: Durban, South Africa | 30 Aug 2022 | 00:34:31 | |
Where in the world is PediPal? South Africa! Sarah and Dan interview Julia Ambler (@AmblerJulia), the pediatric palliative care physician for Umduduzi Hospice Care for Children (https://umduduzi.co.za/) in Durban, KwaZulu-Natal. | |||
| Episode 17: Endogenous | 29 Jul 2022 | 00:47:11 | |
How do medical marijuana and pediatric palliative care fit together? In this episode, Sarah and Dan seek some clarity about cannabis, interviewing two experts on the topic, Dr. Bonni Goldstein and Dr. Dustin Sulak. Listen to learn more about the endocannabinoid system and the impact that this much-maligned medicine has on it and on patients, often in ways we're only beginning to understand. | |||
| Episode 16: Tokyo, Japan | 30 Jun 2022 | 00:20:39 | |
PediPal International steams onward, and we now find ourselves in Tokyo, Japan. In this episode, Sarah and Dan interview Nobuyuki Yotani 余谷 暢之, Head of the Department of Palliative Medicine at the National Center for Child Health and Development. | |||
| Episode 15: Little Adults | 31 May 2022 | 00:48:27 | |
Welcome to Pediatrics. The first rule is, "Children are not just Little Adults." The second rule is also, "Children are not just Little Adults." But how does this trope fit into Pediatric Palliative Care? And is it possible that, instead, Adults are actually just Big Children?? | |||
| Episode 14: Wellington, New Zealand | 29 Apr 2022 | 00:33:01 | |
Our world tour continues with this next stop in Wellington, New Zealand. Dan and Sarah interview paediatric palliative care specialist Amanda Evans (@amaevans), who teaches them a bit of New Zealand history, some Maori concepts of health and illness, and a lesson on just how cool Jacinda Ardern really is. | |||
| Episode 13: House Away From Home | 31 Mar 2022 | 00:37:16 | |
As Sarah and Dan continue their international tour in 2022, they find themselves surprisingly close to home in Phoenix, Arizona... by way of England, and by way of an inspiring story of community, advocacy, and ingenuity. | |||
| Episode 12: Hyderabad, India | 28 Feb 2022 | 00:27:49 | |
PediPal is going international! In this inaugural episode of our new series, Dan and Sarah interview Dr. Spandana Rayala (@SpandanaRayala), a pediatric palliative care physician in Hyderabad, India. | |||
| Episode 11: Liminality | 31 Jan 2022 | 00:39:40 | |
Webster's dictionary defines "liminality" as... Just kidding. But not really. | |||
| Episode 10: The Cocktail Party | 30 Dec 2021 | 00:38:42 | |
"So, what kind of work do you do?" When you're in pediatric palliative care, what answer do you give? And how do you respond to the inevitable follow-ups? "That's so sad," "You must be so special," "I could never do that..." We've all been there. So in this final episode of 2021, Dan and Sarah interview three peds palliative physicians—Allison Silverstein (@agsils), Jared Rubenstein (@DrJRubenstein), and Chris Adrian—about their responses to the dreaded cocktail party questions, as well as their insights on what these questions and answers teach us about very the nature palliative care and its practitioners. | |||
| Episode 9: Resonance | 30 Nov 2021 | 00:29:35 | |
Music therapy, art therapy, child life, and pediatric palliative care resonate with each other in a lot of important ways. In this episode, Dan and Sarah chat with.... Dan and Sarah?! Yep, that's music therapist Dan Stafford and art therapist and child life specialist Sarah Yazdian Rubin. The Dans and Sarahs discuss creativity and loss, the roles expressive therapies can play in pediatric palliative care, and just how similar our respective fields can be. | |||
| Episode 35: Take-Home Points | 01 Apr 2024 | 00:16:35 | |
PediPal goes on the road! Dan brings his microphone to Phoenix, AZ, for the 2024 Annual Assembly of Hospice and Palliative Medicine, ambushing unsuspecting guests with that classic PediPal question, "What are your take-home points?" Sarah, unable to attend the conference, shares her take-homes from home. | |||
| Episode 8: Dolor Finis | 28 Oct 2021 | 00:36:00 | |
If there's something long-acting that targets multiple receptors and has a variable equianalgesic dose ratio in your neighborhood, who you gonna call? | |||
| Episode 7: Academic Suicide | 31 Aug 2021 | 00:34:41 | |
Was starting this podcast academic suicide for Sarah and Dan? That remains to be seen, but interviewing Joanne Wolfe (@WolfePPC) and Chris Feudtner was definitely a good choice! In this episode, hear two of the founding figures of pediatric palliative care in the USA discuss the rocky roads they traveled, individually and together, to establish themselves in a specialty that they were creating as they went. What's changed the most since the early days? What prognostications do they have for the future? Is Dan angling for a musical gig on GeriPal? Listen to Episode 7 to find out! | |||
| Episode 6: A Tale of Two Hats | 29 Jul 2021 | 00:41:01 | |
Do you like my hat? No? How about this one? | |||
| Episode 5: Loss in Translation | 24 Jun 2021 | 00:42:39 | |
Hola, somos el equipo de cuidados paliativos! نحن مجموعة من الأطباء والممرضات والأخصائيين الاجتماعيين والقساوسة ، هنا لتقديم ... ...wait, how do you say "extra layer of support" in Arabic? And can I scan this POLST form into Google Translate? | |||
| Episode 4: A Lovely Episode | 27 May 2021 | 00:27:51 | |
How lovely it would be if everyone were as thoughtful and palliative-minded as we are! Palliative care providers are meticulous about language when talking to patients and families, but are we as thoughtful about the words we use to talk about our patients and families? | |||
| Episode 3: Pediatric Islands | 26 Apr 2021 | 00:40:12 | |
As Pediatric Palliative Care grows, new programs are started and restarted, often by recent fellowship graduates. This leaves the landscape of PPC dotted with islands of solo providers or tiny teams in various stages of growing pains. | |||
| Episode 2: Special K | 21 Mar 2021 | 00:28:29 | |
Ketamine: a no-drama drug? Hard to believe when so many clinicians seem scared to use it, but maybe we've all been thinking about this NMDA antagonist the wrong way.
| |||
| Episode 1: Water Support Team | 21 Feb 2021 | 00:32:52 | |
How do we name our pediatric palliative care teams? Is the word "palliative" just a liability? Why does Justin Baker regularly cosplay as a marsupial?
| |||
| Episode 1 Trailer | 20 Feb 2021 | 00:00:47 | |
The first episode of @PediPal is coming!
| |||
| Episode 34: Prognosticaution | 04 Mar 2024 | 00:25:34 | |
Where do the fields of Palliative Care, Neurology, and PM&R overlap? Where can we learn more about how to approach the dreaded uncertainty of neurologic prognostication? In this episode! Overcoming some technical difficulties, Dan (kinda) and Sarah discuss the field of Pediatric Neuropalliative Care with Marina Ma and Lauren Treat. | |||
| Episode 33: Art and Craft | 01 Feb 2024 | 00:34:34 | |
The episode we really wanted to call "2 Julie 2 Hauer." CPN NeuroJourney: | |||
| Episode 32: Retrospective | 01 Jan 2024 | 00:16:08 | |
It's 2024! As PediPal enters its fourth year, we want to take a moment to look back on what we've learned over the last three years. So for the first time (and hopefully the last), we have no guests, just the reflections, opinions, and bad jokes of the two pedi pals ourselves. | |||
| Episode 31: Boundaries | 01 Nov 2023 | 00:26:37 | |
How and where do we draw the boundaries between ourselves and our patients and families? What other boundaries do we draw--or not draw so well--in pediatric palliative care? Here to discuss these questions and more are Stacy Remke, MSW, and Rev. Bentley Stewart. | |||
| Episode 30: Concrete | 01 Oct 2023 | 00:44:57 | |
Death. Dying. Simple words, but often hard to say, and even harder to say to a child. In this episode, Sarah and Dan turn to some experts on saying difficult things to children, Certified Child Life Specialists Kelley Gavel and Nicole MackDiaz. Find out why Child Life is particularly adept at helping kids grapple with the toughest questions, and then stick around for a special guest who tries his best to stump Kelley and Nicole... | |||
| Episode 29: Magic? | 01 Sep 2023 | 00:41:21 | |
Turn on, tune in, and drop your preconceptions, because in this episode, Sarah and Dan are your guides on a trip into the realm of psychedelics in pediatric palliative care. We join Dingle Spence, Chris Adrian, and Elisha Waldman to learn about how they came to do this work, how psilocybin is helping some bereaved parents on their journeys of grief, and what the future might hold for psychedelic therapies in pediatrics. | |||
| Episode 40: Nonfiction | 01 Jun 2025 | 00:32:50 | |
Dan and Sarah welcome back to the podcast two previous guests, Dr. Bob Macauley and Dr. Chris Adrian, to discuss writing books about pediatric palliative care, as well as how our clinical practice, narratives, and personal trauma can all interact in sometimes unexpected ways. Content warning: This episode includes discussion of child sexual abuse. Click the link here to buy Dr. Macauley's new book: Because I Knew You Proceeds from book sales benefit the OHSU Pediatric Palliative Care Team and Darkness to Light (https://www.d2l.org/), an organization dedicated to ending child sexual abuse. | |||
| Episode 39: This Marrow Space | 01 May 2025 | 00:22:56 | |
We're back! Where did we go and why did we pause in the first place? You'll have to listen to the episode to find out all the details, but let's just say Dan conducted an extended and very personal investigation into the intersections of palliative care and bone marrow transplant. In this episode, Sarah interviews Dan about his experience as a patient and the take-home points he's bringing back to his practice. (Apologies to Elisha Waldman for the episode title. Read his book; it's excellent.) If you'd like to sign up to be a bone marrow donor in the US, you can do so at NMDP.org. | |||
| Episode 45: Two Hats, Revisited | 03 Nov 2025 | 00:47:13 | |
Dr. Tasha Faruqui is a pediatrician. Tasha Faruqui is the mother of Soraya, a child with medical complexity who is enrolled in pediatric hospice. For many years, Tasha tried to live two separate lives, worrying about how her identities would conflict with each other. In this episode, she talks with Sarah and Dan about learning to unify herself and how that ultimately made her a better physician and parent. Learn more about Tasha, Soraya, and their family on Instagram at https://www.instagram.com/thefaruqui5/. Order Dr. Faruqui's new book, Keep Your Head Up, on her website, https://www.tashafaruqui.com/book or at a bookshop near you. 100% of book proceeds will be donated to Cincinnati Children’s Hospital and the Make-A-Wish Foundation. | |||
| Episode 44: Nudging | 01 Oct 2025 | 00:31:42 | |
Guiding patients and families in complex, high-stakes medical decisions, can we clinicians ever be truly neutral, or are we doomed to always nudge toward our own preferences and biases? How does the architecture of the decisions we present shape the choices that others make? Sarah and Dan tackle these questions and more with three nudging experts: Dr. Aliza Olive (Cleveland Clinic), Dr. Laura Miller-Smith (OHSU), and Dr. Joanna Hart (UPenn). | |||
| Episode 43: Sedative Intent | 01 Sep 2025 | 00:39:18 | |
When all our best attempts fail to relieve suffering, we sometimes turn to palliative sedation to the point of unconsciousness. But how do we know if and when such a drastic intervention is the right choice? Sarah and Dan chat with Justin Baker and Tyler Tate about practical and ethical approaches to communicating about and implementing sedation for pediatric patients facing refractory symptoms at the end of life. | |||
| Episode 42: The Ethical Dilemma | 01 Aug 2025 | 00:38:42 | |
Where do ethics and palliative care overlap, and is there really no harm in doing both? Exercise your autonomy by choosing to listen to this episode, in which your beneficent hosts, Sarah and Dan, get ethical with Phoebe Winn and Bob Macauley, both palliative care physicians whose careers have also brought them to the realm of questions that sometimes just don't have answers. Thankfully, our expert guests are here to help us all understand. I mean, it would hardly be worth listening to if it were just us, right? Phoebe Winn's recommended ethics readings (click the PMID's for links):
And, in case you missed it in Episode 40, Bob Macauley's fabulous new book about his career in palliative care and ethics: Because I Knew You | |||
| Episode 41: Bookends | 01 Jul 2025 | 00:33:39 | |
There's a member of the pediatric palliative care team we all love but rarely acknowledge: The children's books we share with families that help them cope and process the terrible situations they face. In this episode, Sarah and Dan talk with Joanna Rowland, author of The Memory Box, The Memory Book, and The Memory Tree; and Brennan Wood, author of A Kid's Book About Grief and Executive Director of Portland's Dougy Center (dougy.org). Click on the links in the titles above to learn more and purchase their books! | |||