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We face the change in the story since moving back to Illinois: the first sign of aggression that changed everything between us. We also share GeneSite results, ask about Leucovorin, weigh group homes vs “never,” and find a quiet win by the river.

• impact of the Illinois move on behavior and family strain
• the car attack as a turning point in safety and trust
• losing verbal leverage and rebuilding boundaries
• GeneSite insights, med tweaks, and timelines
• curiosity about Leucovorin and real-world outcomes
• cannabis dosing as a flexible regulation tool
• group homes vs institutions and future-proof care
• building respite networks and care continuity
• a small victory: silent connection and calm outdoors

Please remember, if you would like to support this podcast, you can click the support the podcast link and buy me a coffee and buy me as many coffees as you like
You can reach out to me at contact.parentingsevereautism at gmail.com
You can also drop me a fan mail message at psa.buzzsprout.com

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Moving to Illinois with our severely autistic son brought unexpected challenges, including his increasingly violent behavior and our struggle to find appropriate medical and community support. Rejection has become an abnormally normal occurrence, but this is where it started.
• Our son developed concerning rage behaviors in public
• Housing search
• Parent support group silence
• Theatre program
• Despite rejections, our son continues to show creativity and new skills
• We're exploring disc golf as a new family activity
• Looking for positive recreational activities remains an ongoing challenge

If you'd like to share your own experiences or what activities your child enjoys, email me at contactparentingsevereautism@gmail.com. Support the podcast through the "buy me a coffee" link on your player or check out merchandise at psabuzzsprout.com.

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Shannon shares the challenging journey of relocating from Wisconsin to Illinois with her severely autistic son, highlighting the unexpected difficulties they faced and the small victories that kept them going through the transition.

• Preparing requires extensive preparation, ideally with videos of new locations
• Transitioning to living with grandparents created significant challenges, including disrupted sleep patterns
• Learning the ropes of medical cannabis in Illinois for Autism
• Seeking special needs theatre opportunities
• A stranger's understanding in a grocery store 
• Her son's attachment to his "Snowflake" obsidian rock shows his ability to connect and remember important details

Please support the show by sharing episodes with others who might benefit, as Shannon cannot advertise in parenting groups due to strict rules. You can also click the "support the show" link to help keep the podcast free for those who need it.

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Shannon continues sharing emails between herself and her son Jacob's teachers in Wisconsin, revealing the challenges of advocating for a child with severe autism in the school system.

• Ongoing battles with teachers about using food as a motivator despite Shannon's opposition due to potential eating disorders and specific dietary restrictions
• Frustration with teachers repeatedly asking for guidance already provided in Shannon's comprehensive instruction letter
• Teachers demonstrating defensiveness when Shannon suggests someone might be "unwittingly" triggering Jacob's behaviors
• Failed experiment with CBD oil 
• Safety concerns with school van driver 
• Hilarious and endearing story about Jacob shaving
• Recent breakthrough moment 
• Importance of scheduling IEPs as often as needed and bringing advocates to meetings

Please share this podcast with anyone who might benefit, email your experiences to contact.parentingsevereautism@gmail.com, or support the show through the "buy me a coffee" link to help keep this resource free for those who need it.

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I share our experience with the public school system when Jacob returned after a previous traumatic incident, revealing the challenges, frustrations, and occasional victories during this difficult period.

• The school promised an "adulting program" for independent living skills but Jacob never got to participate
• Jacob needed three-to-one support instead of one-to-one, which the school couldn't provide
• We struggled with getting consistent communication about Jacob's daily activities and behaviors
• School staff disregarded Jacob's dietary restrictions
• Jacob's therapists worked on skills at home that the school claimed he couldn't perform
• The special education director's accusations
• We eventually had to move and shut down our business because Jacob required more support than we could balance with work
• Regular public schools often lack the capacity to properly support children with severe autism

If you find these episodes helpful, please consider sharing this podcast and supporting it by clicking the "buy me a coffee" link to help keep it free for those who need it. You can reach me at contact.parentingsevereautism@gmail.com.

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Shannon shares the experience of returning her son to school after he was abused, revealing the challenges of finding appropriate accommodations and fighting the system at every turn.

• School couldn't handle her son's needs, requiring a reduced schedule to prevent overwhelm
• Battle over using a communication notebook that had always worked as a behavior management tool
• School failed to provide mandated therapy services due to transitions being too difficult
• Discovery of intensive therapy through Innovative Counseling that provided 40+ hours of effective support
• Advocating for IEP rights and finding alternative solutions when schools fail to meet obligations
• Recognizing that behaviors are communication and require understanding rather than judgment
• Setting age-appropriate expectations even with developmental disabilities
• Working toward creating Safer Lifestyles Respite Communities based on these experiences

Please follow us on social media and help spread awareness about our GoFundMe for Safer Lifestyles Respite Communities. You can find the link in my bio on all platforms or email me at contact.parentingsevereautism@gmail.com with your stories and input.

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Severe autism presents unique challenges during summer months, particularly increased elopement risk and the need for constant vigilance. 

• Summer heat and reduced structure may trigger more elopement behaviors in autistic children
• AngelSense GPS tracking device provides location tracking and two-way communication during elopement incidents
• Children with severe autism sometimes function better when parents are not present
• Schools often lack understanding of severe autism needs and may blame parents rather than providing appropriate support
• Medication effectiveness can fluctuate dramatically, requiring specialized testing to understand metabolism issues
• Vision for creating specialized respite communities designed specifically for severe autism families
• These communities would include trusted respite, parent-trained staff, and wellness opportunities
• Parents of severely autistic children must be "everything" to their child - advocate, therapist, and protector

Check out the AngelSense GPS device link at the bottom of this episode to help protect your eloping child.

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Shannon shares a pivotal moment when she realized her son's autism was considered "severe" after he was excluded from a Disney on Ice event that his autism therapy group organized without inviting him.

• Communication strategies using Disney movie references help her son understand complex concepts like family members leaving
• Learning that her son requires multiple staff members for support at his therapy program
• The heartbreak of discovering her son wasn't invited to a Disney event because his "needs were too great"
• Fighting for inclusion and eventually attending the Disney on Ice show as a family
• Funny shopping adventures with her son, including his perfect comedic timing saying "I want to be happy because people are stupid"
• The hilarious struggle with a broken shopping cart and learning about boundaries
• Importance of proper nutrition before outings to help manage behaviors

If you'd like to support the podcast, click the support button on your audio player or visit psabuzzsprout.com to access merch and donation options. Small donations make a huge difference in keeping this podcast free for everyone.

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EDIT: I NO LONGER SUPPORT, ENDORSE, OR RECOMMEND THIS PROGRAM DUE TO FRAUDULENT ACTIVITY INVOLVING MY MEMBERSHIP.

This one's about us. The caregivers. Not the children.

After watching my health deteriorate despite years of consistent workouts and healthy eating attempts, I found myself drawn to a program focused on nervous system recalibration. What happened next shocked me. Through specialized therapy techniques and somatic healing, I experienced physical transformations as my body released stored trauma. Mysterious swelling disappeared, facial tension loosened, and for the first time in years, I felt my nervous system reset from its perpetual fight-or-flight state.

The revelation came when I connected this personal healing journey to my observations of my son with severe autism. Like a baby bird who trembles at the sight of its mother, my son's behaviors seemed directly influenced by my internal state. This mirror effect isn't limited to autism – it appears throughout nature, from wild animals to domestic pets. As the Dog Whisperer taught us, animals respond to our internal energy more than our external commands.

By shifting my focus from controlling my son's behaviors to regulating my own nervous system, unexpected changes began occurring in our household. When I stopped emotionally

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Shannon shares her experience stepping back from caregiving duties to focus on her mental health after 18 years of continuous care for her son with severe autism.

• Taking a temporary break in a camper near home to restore mental health after reaching burnout
• Applying for fiscal sponsorship to pursue the dream of creating supportive communities for families affected by severe autism
• Jacob demonstrating remembered turn-taking skills despite lack of formal therapy
• Discovering disturbing nighttime behaviors through a video monitor that explained Jacob's severe insomnia
• Using the monitor's intercom as an intervention until Jacob ultimately destroyed the equipment
• Planning to share personal breakthroughs that have helped with mental health struggles

Please feel free to contact me through email at contactparentingsevereautism@gmail.com, text fan mail at psabuzzsprout.com, or through the Parenting Severe Autism podcast Facebook page.

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I'm developing a social equity project called S.A.F.E.R. Lifestyles, designed to create communities for families dealing with severe autism. My vision addresses how most of us lack support, with villages abandoning us when we need them most.



Contact us at contact.parentingsevereautism@gmail.com if you'd like to learn more or support the S.A.F.E.R. Lifestyles movement.

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Imagine waking up one morning to discover your child has lost every skill they've ever learned. This devastating experience is the reality for many parents of teens with severe autism, yet it's rarely discussed in autism resources or by medical professionals.

In this deeply personal episode, I share the heartbreaking story of my son losing all his functional abilities and speech within days of turning 15. What began with concerning behaviors—strange vocalizations, withdrawing to his room, repetitive actions—culminated in a complete regression that left him unable to perform even the simplest tasks he once mastered. His 100-word vocabulary vanished almost overnight, replaced only with the phrase "I love you," which he began saying indiscriminately to strangers.

The most shocking part? After frantic research, I discovered this regression at age 15 is apparently a documented phenomenon in some children with severe autism—yet in all our years working with specialists and researching autism, not one professional had ever warned us this might happen. How could something so significant not be part of standard information given to parents of children with severe autism?

Throughout the episode, I detail our attempts to help our son: cross-body exercises recommended by specialists, creating sensory-rich environments, increased therapy sessions, and constant engagement. I share both the frustrations and the rare moments of breakthrough, including a recent heartwarming moment when he perfectly mimicked a Tony the Tiger commercial from the depths of his memory.

For parents with children under 15 with severe autism, this episode serves as both a warning and a call to maximize interventions while your child's brain remains receptive. For those who've already experienced this regression, you'll find validation and the comfort of knowing you're not alone on this journey. Sometimes being a parent to a child with severe autism means celebrating the smallest victories while navigating the most challenging losses.

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Parenting a child with severe autism often means facing challenges that remain hidden from the outside world. In this deeply personal episode, I take listeners into the harrowing reality of what happened when my nonverbal teenage son began directing aggressive behaviors specifically toward me.

The painful irony of being verbally abused by someone who professionals deemed "nonverbal" created a surreal existence where I developed physical pain responses to his targeting. My body would react with sharp pains in my side the moment I heard his aggressive vocalizations approaching—a visceral reminder of how deeply these interactions affected me. What made this situation uniquely isolating was his remarkable ability to transform into a sweet, compliant child whenever someone who could validate my experience was present.

I share the heartbreaking moment when I found myself telling my husband "he's lying" after our son denied his behavior—a childish outburst that revealed my desperation to be believed. When my father-in-law finally offered help during a particularly brutal episode, I accepted without fully considering what form that help would take. The resulting verbal tirade he unleashed on our son temporarily changed his behavior but left me questioning everything about appropriate boundaries.

Through mysterious new behaviors like stuffing deodorant down drains, flooding bathrooms, and eventually self-harm, we discovered a shocking truth—our son hadn't been sleeping for months. Family members living in our home had witnessed his nighttime activities but never thought to mention this crucial information as we searched desperately for answers.

For parents facing similar hidden battles, this episode offers no easy solutions but something perhaps more valuable—the knowledge that you aren't alone in these complex, rarely-discussed aspects of raising a child with severe autism. Your experiences are valid, even when others can't see or understand them.

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Shannon Chamberlin shares a devastating family betrayal that threatened her son's financial future and pushed her to physical and emotional breaking points, while also celebrating rare moments of communication breakthrough from her severely autistic son.

• The purpose of the podcast is to warn parents about unexpected challenges in severe autism parenting
• Shannon discusses her 19-year struggle with Hashimoto's autoimmune condition while caregiving
• The family is taking legal precautions to protect their current living situation
• Shannon's perspective on residential care evolved from heartbreak to desperately seeking options
• Rare communication breakthroughs provide precious moments of connection with her son
• Caregivers need time for personal development and thinking as adults, not just emergency parents

If you have questions, comments, or stories to share, email contact.parentingsevereautism@gmail.com.

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We never expect our lives to require staying in high alert mode indefinitely, but parenting a severely autistic child often demands exactly that level of vigilance and adaptability.

• Experiencing the heartbreak when your child begins hating everything they once loved
• Dealing with family members who don't understand your child's needs or your parenting approach
• Navigating the additional challenges of puberty with a nonverbal teenager
• Learning to recognize when your child is being mistreated, even when they can't tell you directly
• Finding creative solutions when traditional therapy approaches don't work
• Discovering grants and financial assistance programs for autism services

Remember to ask organizations about available grants if you need services for your child. Many places offer application assistance to help you qualify for these resources.

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Understanding the daily battles of parenting a child with severe autism takes center stage, emphasizing emotional toll, struggles, and small triumphs. Shannon shares her journey, revealing insights and experiences that resonate deeply with listeners.

• Importance of online therapy solutions for caregivers 
• The critical impact of mismanaged medications 
• Strategies for finding joy amid daily struggles 

If you're interested in learning more about online therapy options and discounts, reach out to Shannon at contactparentingsevereautism@gmail.com or visit her Buzzsprout page for more information. 

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This week's episode dives into the humorous and heartfelt moments of parenting severe autism while highlighting communication challenges within the family. We discuss the impact of outside influences, share lively anecdotes, and celebrate the small victories and breakthroughs that define our experiences. 
• Contemplating media influence on son’s behavior 
• Reflecting on alarming moments with "The Tweedles"
• Gaining valuable insights from an autism therapy group 
• Observing the impact of stimming on the body
• Celebrating communication breakthroughs through mealtime interactions 
• Highlighting humorous, everyday moments that shape understanding 

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This episode explores the complexities of parenting a child with severe autism, focusing on behavioral observations, shifts in household control, and the impact of communication. Throughout the conversation, the host reflects on personal experiences, shares strategies, and offers insights that encourage connection and understanding among listeners. 
• Observing and interpreting muscle twitching behaviors 
• Discussing the role and effectiveness of pharmaceuticals 
• The positive impacts of structured control in household dynamics 
• Celebrating Jacob's new communicative expressions 
• Addressing the obsession with dad and respect for boundaries 
• Misunderstandings surrounding non-sexual behaviors in therapy 
• Reflecting on identity loss and caregiver challenges

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Our latest podcast episode takes a raw look at the joys and challenges of parenting a child with severe autism, examining the delicate balance of striving for independence while facing recurrent setbacks. We delve into personal stories that highlight toileting challenges, dietary decisions, and the impact of family dynamics as we navigate the complexities of autism parenting.

• The emotional toll of societal misjudgment 
• Toileting challenges and steps to fostering independence 
• Dietary implications on behavior and well-being
• The clash of family expectations and respect for dietary needs 
• The necessity of collaboration and understanding within family dynamics

++Please note++ Transcript unavailable for this episode due to the failure of AI to properly produce it.

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Heads Up! This one gets a little emotional!

What if you could transform your understanding of autism and turn challenging moments into opportunities of growth? Join me, Shannon Chamberlin, as I share our family's journey navigating early puberty with our son, who has severe autism. From managing the long transition periods between activities that disrupt his school therapies to ingeniously fostering his independence with themed alarm clocks, we uncover the unique patterns and preferences that shaped this complex phase of his life.

Discover the power of communication in autism through our heartfelt experiences with my son’s profound communication challenges. After a well-intentioned attempt to guide him through articulating his emotions, we turned to a nonprofit autism group for expert guidance. This crucial step uncovered subtle behavioral cues and innovative communication strategies, like using keyboards, that helped us better understand his ev

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This episode recounts our personal experience navigating Jacob's autism evaluation at 16 years old, detailing the process, insights, and outcomes that emerged from it. We explore key findings, discuss challenges within family dynamics, and share humorous anecdotes that highlight the unique aspects of parenting in the context of severe autism. 

• Discussion of the journey to find an appropriate evaluation center 
• Personal reflections on Jacob's evaluations and challenges faced 
• Overview of the Vineland and CARS assessment results 
• Insight into therapy recommendations and family dynamics 
• Touching stories about Jacob's understanding of family roles

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The episode highlights the complexities of parenting a child with severe autism, touching on legislation like the Autism Cares Act, personal experiences, and behavioral challenges faced at home. We share humorous anecdotes alongside heartrending truths about navigating daily life, emphasizing the importance of understanding and compassion in our journey.

• Discussion about the Autism Cares Act and its implications 
• Reflection on pulling Jacob from school and observed behaviors 
• Memories from a family trip to Animal Kingdom 
• Managing Jacob's challenging behaviors at home 
• Conversations surrounding animalistic behaviors and coping strategies 
• Using humor to navigate tough situations 
• Moments showcasing Jacob's empathy and growth

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Our latest episode explores the transformative journey of non-schooling for kids with severe autism, emphasizing the value of nature, creativity, and family engagement in a child's learning experience. We reflect on the challenges posed by traditional education methods and share insights on how we've adapted our parenting approach to better support Jacob's unique needs and interests. 

• Exploring the concept of non-schooling as an alternative education path
• Emphasizing the importance of outdoor experiences and nature in learning
• Reflecting on Jacob's interests in movies and theater as educational opportunities
• Establishing structured family time and navigating Jacob's resistance
• Communicating effectively with Jacob about his feelings and behaviors
• Acknowledging resilient moments of growth and understanding in communication skills
• Identifying external stressors affecting Jacob's emotional well-being
• Planning future episodes focused on experiential learning and caregiver relationships.

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Exploring the complexities of autism and family dynamics, this episode delves into vaccine concerns, genetic traits, communication challenges, and the necessity of parental advocacy. Listeners gain insight into the ongoing journey of understanding and supporting their children with autism. 
• Discussion on the potential link between vaccines and autism 
• Recognition of family traits and hereditary behaviors 
• Communication barriers and the detective role of parents 
• Importance of steadfast advocacy in supporting children 
• Loneliness and isolation felt by parents of children with autism 
• The power of music and shared activities in bonding 
• The practice of gratitude amidst challenges

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This episode features a heartfelt conversation with my spouse Jason as he describes being a single father of a child newly diagnosed with autism, sharing insights about the journey through diagnosis, therapy, and the advocacy needed within education. The emotional rollercoaster of birthday reflections and the importance of understanding energy dynamics in their relationship forms a compelling narrative.

• Jason's experience and journey through Jacob's diagnosis 
• The critical role of play-based therapy in early communication 
• Insights on advocating for quality education tailored to individual needs 
• Importance of emotional energy in interactions with children on the spectrum 
• Reflections on milestones and gratitude in the context of family experiences

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Imagine navigating a world where words are scarce, but choices abound. Join me on a profound journey with my son Jacob, who has severe autism, as I unravel the intricacies of parenting beyond the conventional. Discover how we respect Jacob's autonomy through simple yet powerful acts like letting him choose whether to attend school, and explore the enchanting world of outdoor adventures that help him connect with the environment and conquer his fears, including his initial aversion to bugs. Delight in the whimsical world of Jacob's imagination as he bestows flowers with unexpected names, reminding us all of the small joys that punctuate our unique path.

The adventure doesn’t stop there. Building a support network has been crucial, and I share how a pivotal relationship with a state-level caseworker opened doors to invaluable programs like the Katie Beckett program, all while offering emotional and logistical support. Experience a touching moment when Jacob uses words to express his desires, showing the power of persistence and open communication. Finally, revel in the joy of our family’s cherished "beat downs" with socks—a quirky tradition that never fails to light up Jacob's world. Through gratitude and laughter, we navigate this complex journey of parenting with severe autism, inviting you to connect and find inspiration in our story.

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Misunderstandings with family, self-harming incidents, and heartbreaking decisions mark the emotional terrain of parenting a child with severe autism. Picture a moment where miscommunication with my son’s grandmother unravels, highlighting the delicate dance of maintaining family ties amidst the unique challenges of special needs parenting. I share a poignant story of a self-harming episode that led to the wrenching choice of withholding favorite treats—a testament to the ongoing struggle of balancing discipline with compassion.

Traditional schooling was a battlefield that left our child unhappy and unsupported, pushing us toward the road less traveled: homeschooling. With emotional and logistical hurdles at every turn, we navigated through a frustrating lack of support from the school system to create a nurturing learning environment at home. From setting up structured schedules to integrating therapeutic support, we focused on tailoring educational experiences to honor our child's individuality and fostering a positive atmosphere where he could thrive.

Through a non-schooling approach, we embraced the healing potential of nature and autonomy, allowing our son to explore life beyond structured education. Activities like riding a four-wheeler became symbols of freedom and joy, respecting his choices and supporting his journey toward comfort and healing. Amidst all this, we tackled the challenging task of adjusting medica

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Navigating the world of parenting a child with severe autism can be both a heartwarming and harrowing journey. Join us as we recount the triumphs and trials of teaching our son, Jacob, to communicate and expand his vocabulary. While there are moments of joy, we also confront the struggles that come with Individualized Education Program (IEP) meetings and the frustration when communication with educators falls short. Discover how we balance the lack of clear guidance with the urgent need to advocate for our child's needs.

As we brave the biting cold of winter, we face the unique challenges of ensuring Jacob is dressed appropriately, considering his sensory sensitivities. From the comic chaos of morning routines to the serious subject of empowering Jacob against bullying, we share how humor and patience are essential in tackling these everyday parenting challenges. We also confront the unsettling reality of potential mistreatment at school, underscoring the importance of vigilance and advocacy in ensuring a safe and supportive environment for our son.

Reflecting on the emotional landscape of caregiving, we explore the delicate balance between managing screen time and fostering a nurturing community for our son. Our journey includes the unanticipated lessons learned about the psychological impacts of screen time, along with efforts to teach Jacob basic life skills like handwashing. Through stories of struggle and resilience, we aim to inspire fellow parents facing similar journeys, reminding them of the power of community support and the superhero strength needed to navigate the complexities of raising a child with severe autism.

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Is the holiday season a joyful experience for families navigating severe autism? Join me, Shannon Chamberlin, in this heartfelt episode of the Parenting Severe Autism Podcast as I share our journey through seasonal traditions with our son. Through these stories, I look at how we’ve managed to create a harmonious environment that supports Jacob's development and our family’s unity.

Caring for a child with severe autism comes with its own set of challenges and celebrations. Learn about the routines we've embraced, from soothing spa days with sugar scrubs to creative solutions for bath time that empower Jacob’s independence. I’ll share how yoga and breathing exercises have become indispensable tools in easing his headaches and promoting emotional regulation, especially during transitions. These practices are not just about care; they’re about fostering joy and effectiveness while building resilience and independence. Our journey is filled with small victories that highlight the deep connection and mutual understanding I share with Jacob.

Finally, we address the stress and complexities of managing behavioral challenges and maintaining emotional balance in the face of holiday disruptions. Whether dealing with meltdowns, medication adjustments, or the constant echolalia, we emphasize the importance of teaching choices and celebrating moments of responsibility. I discuss the impact of environmental factors and share personal reflections on resilience and self-care for parents. As the holiday season approaches, I encourage listeners to find moments of respite and support, preparing for a return to normalcy with renewed strength and understanding.

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Navigating the intricate world of parenting a child with severe autism can be both challenging and rewarding. As a parent, I've experienced firsthand the profound impact external factors like supermoons can have on his behavior, and the importance of understanding these triggers. Through personal anecdotes, I unveil the struggle of handling well-meaning yet sometimes insensitive comments from family, and how I've empowered Jacob to assert himself in such situations. It's all about finding effective strategies to manage everyday challenges, such as thunderstorms, and teaching our children to navigate through life's unexpected events with strength and confidence.

Engaging with a child who has a deep affinity for media can be a complex endeavor. My journey with Jacob showed me that traditional methods, like cartoon-based social stories, often missed the mark. I share the insights gained from understanding Jacob's unique individuality and the broader implications for educational systems that struggle to accommodate neurodiverse children. We explore the necessity of shifting perspectives to better support these unique minds, while highlighting the humor and lessons learned from Jacob's adventurous spirit, from his innocent "I need sock" incident to his fearless exploration of potentially dangerous situations.

The podcast also touches on the emotional sacrifices and personal dreams often altered when raising a child with severe autism. I invite listeners to reflect on their own narratives, fostering a supportive community where shared stories become a source of solace and mutual strength. As the holiday season approaches, I e

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After years of navigating the unique challenges of raising a child with severe autism, I've amassed a treasure trove of stories and insights that I’m excited to share with you. This episode takes you on a deeply personal journey through my life as Jacob’s mom, highlighting the power of community and family in shaping his world. You'll hear about the creative ways we've fostered understanding and acceptance in his school, thanks in part to my husband’s proactive outreach in Wisconsin.

Parenting Jacob is a delicate dance of nurturing his individuality while ensuring our family dynamics remain supportive. I recount poignant moments, like the choice to prioritize Jacob's self-esteem over a less-than-flattering school picture, and the emotional aftermath of his transitions to new schools. These stories underscore the importance of routine and personal expression for Jacob, and reveal the profound impact of small adjustments and family support on his well-being.

My father plays a starring role in this narrative, serving as a pillar of advocacy and support for Jacob. His involvement ranges from medical oversight to educational advocacy, demonstrating the critical role of a family in navigating autism. As we explore these experiences, I also touch on the intriguing effect of supermoons on Jacob's behavior, offering a unique perspective for fellow parents. Stay tuned for an upcoming interview with my spouse, where we’ll dive deeper into our family's journey and strategies.

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Imagine finding a hidden gem—a 50-acre sanctuary that promises tranquility and safety for a child with severe autism. That's exactly the unexpected joy we stumbled upon as we embarked on a journey to create a sensory-friendly haven for my son, Jacob. From thrilling riding trails to a peaceful pier by the river, this new chapter is not just about a change in scenery, but a much-needed shift towards hope and comfort for our family. Join us as we navigate the emotions of this monumental move and the relief of providing Jacob with the freedom to explore safely, away from the hazards of noise and traffic.

The journey of caring for a child with special needs is undeniably demanding, and sometimes, stepping back is essential. We open up about the mixed emotions of taking a month-long respite while Jacob stayed with his grandparents. This break was a double-edged sword, providing time to set up a superhero-themed room in our new home, but also fueling worries about Jacob's safety due to some unsettling social media posts. Discover how we managed the logistics of reuniting with Jacob and the challenges that come with balancing caregiver stress with ensuring his well-being.

Parenting a child with severe autism is a rollercoaster of emotions and learning experiences. We delve into the complexities of communication and emotional expression, sharing humorous anecdotes like teaching Jacob how to eat soup. The episode touches on family dynamics, including Jacob's interactions with his father, and offers insights into how "earthing" practices help both Jacob and us as caregivers. Plus, we're inviting you to join the conversation—submit your questions for an upcoming interview with Jacob's father, who brings nearly two decades of experience to share. It's a candid exploration of resilience, understanding, and the unique beauty of parenting a child with severe autism.

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Ever wondered how a simple water balloon fight could turn into an unforgettable lesson on resilience and understanding? Join me in this heartwarming episode of the Parenting Severe Autism podcast where I share some of our family's most cherished memories, like Jacob's adventurous spirit during our quirky door-knocking sales days, his creative costume designs, and the pride we all felt when he caught his first fish. These stories not only entertain but also shed light on the unique joys and trials of raising a child with severe autism, emphasizing the importance of connection with those who share similar experiences.

Transitioning to a new environment brings its own set of challenges, and our move to Jefferson, Wisconsin was no exception. I open up about the importance of maintaining communication with educators through tools like a daily feedback notebook and how it played a crucial role in understanding Jacob's school days. This episode also touches on the significance of involving children in 'adult' discussions about changes, such as moving homes, to better prepare them for life's transitions. By sharing these experiences, I aim to foster a sense of community and offer insights into creating a supportive and understanding environment for families navigating severe autism.

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What happens when a phone conversation turns into an emotional storm? Join us as we navigate the unpredictable waters of raising a child with severe autism, sharing stories of heartache and hope, laughter and lessons. You'll hear about the time our son overheard a phone call that led to an explosive meltdown, revealing the depths of his feelings of exclusion. We also unravel the curious case where a sudden scare surprisingly soothes him, and explore the evolving role of cannabis in managing his behavior. Educator Claire joins us in spirit, as we express our gratitude for her dedication to understanding and supporting children with severe autism, underscoring the vital role of education in shaping compassionate communities.

Our family's journey takes a turn as we recount the transition to rural life, where joys of open spaces met the challenges of unmet needs in local schools. Delight in the memories of outdoor adventures and a cherished pet, while also feeling the sting of loss and adaptation. Whether it's the bittersweet task of explaining the concept of death to a young mind or finding humor in unexpected weightlifting interactions, this episode is a tapestry of emotions. As we promise more engaging stories in future episodes, we invite you to walk alongside us on this heartfelt journey, embracing both the trials and triumphs of parenting a child with severe autism.

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After an unplanned hiatus, I'm back with the Parenting Severe Autism Podcast to share insights and gratitude with you all. I've got exciting news to kick things off: our podcast has caught the attention of some key players who could really make a difference for families like ours. But life's never straightforward, is it? I also dive into a rather unexpected proposal from a podcast platform manager that stirred up some mixed emotions, opening up conversation about navigating the often-complicated support systems available—or not so available—to families dealing with severe autism.

Balancing a family when one child has severe autism is no easy feat, especially when parenting styles clash. I candidly share the ups and downs of this dynamic, touching on how it affects my relationship with my spouse, who has turned to alcohol as a means of coping. In this episode, I emphasize how important it is to maintain structure and boundaries, both for the wellbeing of my child and the sanity of our home. My return to managing the household is aimed at restoring peace and stability, offering hope and advice to those in similar situations.

When it comes to healthcare, the struggle is real, and managing my son's medication has been a test of patience and advocacy. This episode sheds light on the inefficiencies of the healthcare system that many of us face, from delays in crucial appointments to educators inadvertently fostering unhealthy habits. Despite these challenges, we hold onto cherished moments—like watching my son’s unique imagination come alive in a backyard wiffle ball game. As we look to the future, planning for our child's well-being remains a priority, even as we dream of a more fulfilling life. Join me as I share experiences both heartwarming and challenging, offering solidarity and encouragement to families just like ours.

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As the sun sets on another April, we welcome a time of acceptance that extends far beyond a single month. Imagine shifting this conversation to the heart of summer, when the world is in full bloom, or perhaps as we turn the page to a new school year—moments ripe for the seeds of awareness to take root. Today, I'm going to share a lunar eclipse story, one that unveils the unexpected beauty and chaos of parenting a child with severe autism. It's a tale that might sound familiar to those who walk this path, a narrative that intertwines the challenges of the unexpected with the triumphs of communication breakthroughs.

Parenting a child with severe autism means embracing complexity in every facet of family life. From the mystery of an unusual dark spot to the heartwarming surprise of my son's first full sentences, this episode peels back the curtain on our intricate family dynamic. Hear how the need to collect belongings and a misadventure in the night turn into a moment of pure joy and connection. As I recount how autism has reshaped our routine, including a reduced work schedule to meet home needs, you'll be reminded that sometimes, the messiest moments lead to the greatest leaps forward.

The trek through autism parenting is an uncharted one, filled with day-to-day hurdles and the pivotal moments that test our resolve. Join me as I grapple with the home safety vigilance needed to protect my wandering son, and the delicate dance of balancing his routines with our own self-care, particularly in public spaces like the gym. We're preparing to dive deep into the heartache and hope, acknowledging the solidarity that holds us together. So, I invite you to lean in, share your stories, and find comfort in the shared journey of raising a child with severe autism.

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Every year as I prepare for the daunting task of legal guardianship reporting, I'm reminded of the unique and enduring challenges that come with raising my son, Jacob, who lives with severe autism. This episode peels back the layers of our daily life, from bureaucratic headaches like insurance verifications and PUNS list updates to the heartache of realizing the unchanging nature of Jacob's condition. I offer a raw look into the emotional landscape of a family navigating the complex world of autism adulthood, sharing my personal struggles with a system that often feels impersonal and indifferent to the realities we face.

Celebrations in our household are different, and Jacob's 23rd birthday was no exception. Lacking the usual fanfare, we find solace in the small traditions that bring joy, despite the trials of limited family contact and the impact of health issues on our routine. The episode also ventures into the realm of social media, where our YouTube channel "Burnt From Birth" reveals snippets of our life with autism to the world, often leading to misconceptions. I open up about my husband's solo fight through the early stages of diagnosis and advocacy, inviting listeners to connect with us as we traverse the seasons of parenting a child with autism. Join us for a conversation that promises honesty, solidarity, and a window into a world that many never see.

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Welcome, friends, to another episode where we unmask severe autism, one layer at a time. What do you do when your child develops a new tick - like trying to talk with his mouth closed? Well, that's the recent challenge we've been facing with our son. Aside from the obvious communication difficulties this poses, it's also just one of many OCD tendencies he exhibits - tendencies that the medical field often dismisses as mere byproducts of autism. But we're not letting that deter us. It's our hope that, by sharing our experiences and challenges, we can offer a beacon of support and help to others on this journey. 

As we navigate our way through this maze of parenting a child with severe autism, we've come to realize how important it is to question behaviors. Is it medical? Is it a side effect of medication? Or is it just a coping mechanism? This episode delves into these questions, as we explore the highs and lows, the fears and hopes, and the sheer complexities of understanding and managing our son's behaviors. We also explore the healthcare system's role in this journey, and the challenges it poses. 

But it's not all doom and gloom. Amid these challenges, we've also found moments of joy and laughter.  From his obliviousness to his demands for a Halloween costume, each day brings new experiences and learnings. And despite the tough decisions, like potentially moving for better care or managing our financial situation, we're here, taking it one day, one laugh, one challenge at a time. So, join us as we share our stories, our fears, our hopes, and our laughter, and remember, we're in this journey together.

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Are you ready to be part of a journey that is filled with family turmoil, vacation disaster, and the harsh reality of parenting a child with severe autism? This is a candid recount of our recent family vacation that transformed from a much-needed break into an exhausting ordeal that tested our patience and resilience. We grappled with the disappointing behavior of a family member whose unpreparedness and lack of support turned our exciting getaway into a nightmare. We had to deal with a non-functioning camper and the surprise of missing pre-prepared food, all while trying to keep our spirits up for our son. 

In this episode, not only do we share the emotional toll this trip took on us, but also the subsequent family conflicts that unfolded. The rude behavior and lack of respect from the family member invited unnecessary tension, and it's something we refuse to tolerate.  Finally, we share some advice for parents navigating the school system for their autistic child. This episode is a stark reminder that amidst the tough challenges of parenting and family life, the importance of self-care and independence should never be overlooked.

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Navigating the healthcare system for a child with severe autism and learning disabilities is no easy task. Join me, Shannon Chamberlin, as I relay my journey of finding appropriate care for my son, battling with insurance and medical coding, and dealing with the lack of attention given to his condition. This episode is filled with real stories, frustrations, and revelations from my own experience.

Ever grappled with a dental visit gone awry? Or discovered a new behavioral disorder while seeking help for a loved one? Today, I'll share these narratives, and more. I discuss the discovery of Oppositional Defiant Disorder, and ponder whether autism should be categorized as an autoimmune disease. The trials of acquiring medical care for my son, despite his condition being a qualifying one for medical cannabis, has been a challenge, but it's one I'm willing to fight.

However, amidst all the hurdles, there are lighter moments that uplift us. I take you through the unique relationships my son shares with family members, as well as a surprising encounter with a heroin junkie. Even during the most arduous times, we've found humor and love. So, tune in, connect with our story, and find inspiration in our journey.

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Parenting Severe Autism podcast host and mom Shannon Chamberlin celebrates 1 year of podcasting with a full list of all the things her son is good at, along with short stories or descriptions illustrating these abilities. Shannon and her husband encourage all special needs parents to recognize the talents their children have, and to recognize that as special needs parents, everyone does their best but they're not going to be perfect or know everything. They are also encouraging parents to figure out a way to break up the monotony of this caregiving lifestyle.
Included in this episode is a brief description of some of the podcast merchandise available for listeners, and a call to action to SHARE THIS PODCAST wherever possible in order to help other struggling parents and caregivers find it and enjoy listening to stories from another parent going through it.

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Parenting Severe Autism mom and podcast host Shannon Chamberlin shares how she and her spouse struggle to strike a balance between taking care of their own adult needs while also taking care of their adult son's needs. Shannon feels that there has been some sort of shift in her mindset that may be making it more difficult to fulfill the caregiving role as of late. 

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Parenting Severe Autism mom & podcast host Shannon Chamberlin shares her most recent attempt at keeping her son happy while home alone with him. Shannon describes what it takes, how much she can take, and what happens if it doesn't work out correctly. Near the end of this episode, Shannon is asking for some feedback about a possible upcoming episode, relying on listeners to make the decision.

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Parenting Severe Autism podcast mom & host Shannon Chamberlin shares how one timeless boundary had to be broken for safety over sanity, as well as a new communication behavior developed by her son.

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Parenting Severe Autism mom and podcast host Shannon Chamberlin shares some personal feelings and family stories about the need for boundaries and rules in their household, along with examples of how these things only work with consistency in enforcing them.  

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Parenting Severe Autism mom and podcast host Shannon Chamberlin shares several examples of how her son lacks comprehension of most things, the daily struggles they face as a family, and some of the exercises they do as a family in hopes of increasing her son's level of comprehension.

We've been having some technical issues with transcripts, and as soon as these issues are resolved, all missing transcripts will be posted.

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Parenting Severe Autism mom & podcast host Shannon Chamberlin shares stories from last week's in-your-face experiences and subsequent exhaustion, along with another breakthrough for her son.

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Parenting Severe Autism mom & podcast host Shannon Chamberlin shares stories illustrating how her son doesn't seem to fit any mold or profile familiar to professionals in autism.  
Subjects include autonomy, speech, technology, sign language, comprehension, memory, pharmaceuticals, sertraline/Zoloft, Risperidone, elopement, and routines.
Shannon's son bursts into the conversation briefly.

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Parenting Severe Autism mom & podcast host Shannon Chamberlin discusses several occasions where she believes her son was treated as "less than," along with how she tries to help her son recognize a bad situation. In this episode, Shannon expresses concerns about others behaving selfishly and the possible adverse effects these behaviors can have on her son, suffering from severe autism.

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Parenting Severe Autism mom & podcast host Shannon Chamberlin shares her family's most recent stressful events, including her son's surgery, recovery, holidays & family.

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