NDF Talks

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https://www.CureGNEM.org
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NDF Talks: "Getting To Know Your Genes" with genetic counselor Estie Rose

Episode 12

Tuesday, September 20, 2022 • Duration 45:21

NDF Talks is happy to have Estie Rose educate us on the importance of pre-conception genetic screening and options available to help you have a child.

Estie is a certified genetic counselor and outreach coordinator forJScreen, a national non-profit Jewish genetic disease screening program based out ofEmory University School of Medicine. Estie graduated from Yeshiva University’s SternCollege for Women and then went on to complete her Masters in Genetic Counselingfrom the Ichan School of Medicine at Mount Sinai. She has a special interest incommunity education and outreach, and is proud to be a resource for individuals of herown community who are facing genetic health issues.

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NDF Talks: Planning The Future With Dr. Shahin Ghadir & NDF Emotional Wellness Director Carol Gelbard, LSCW

Episode 11

Monday, September 19, 2022 • Duration 23:51

NDF Talks is happy to share a podcast from "The Fertile Life" with Dr. Shahin Ghadir that our Director of Emotional Wellness, Carol Gelbard, LCSW participated in

In this episode of "The Fertile Life" podcast, Dr. Shahin Ghadir, Fertility Specialist, and former NDF Board Member sits down with NDF’s Emotional Wellness Director Carol Gelbard, LCSW, to discuss genetic testing and informed family planning.

Dr. Shahin Ghadir and Carol Gelbard, LCSW, also talk about PGD preimplantation genetic diagnosis, a tool used to reduce the risk of passing on inherited conditions. This informative discussion is here to empower prospective parents by helping them make informed reproductive choices.

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NDF Talks: Breaking the Taboo of Disability

Episode 10

Monday, July 26, 2021 • Duration 34:42

A personal and informative interview/podcast with Kam Redlawsk, GNEM patient and advocate who sheds light on the ableism in our society, ways to break down barriers, and reduce feelings of shame and isolation for people who are disabled.

About NDF: Our mission is to enhance the quality of the lives of people living with GNE Myopathy through advocacy, education, outreach, and funding critical research focused on treatments and a cure.

To learn more about GNE Myopathy visit: https://www.CureGNEM.org

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NDF Talks: The Problems With Ableism In Our Culture

Episode 9

Thursday, May 27, 2021 • Duration 17:50

The problems with ableism in our culture; A Conversation with Dr. Farid Holakouee, NDF's Emotional Wellness Director, Carol Gelbard, LCSW and NDF CEO, Lale Welsh

About NDF: Our mission is to enhance the quality of the lives of people living with GNE Myopathy through advocacy, education, outreach, and funding critical research focused on treatments and a cure.

To learn more about GNE Myopathy visit: https://www.CureGNEM.org

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NDF Talks with: Carol Gelbard, LCSW about Promoting and Supporting Wellness in 2021

Episode 8

Friday, April 16, 2021 • Duration 13:33

Enjoy this podcast recapping themes covered in our recent patient HUDDLE detailing ways to “hit reset” in support of emotional wellness in 2021!

About NDF: Our mission is to enhance the quality of the lives of people living with GNE Myopathy through advocacy, education, outreach, and funding critical research focused on treatments and a cure.

To learn more about GNE Myopathy visit: https://www.CureGNEM.org

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NDF Talks with: Mother/Caregiver of GNE Myopathy patients, Antionette

Episode 7

Friday, April 16, 2021 • Duration 05:11

"GNE Myopathy doesn't mean you can't follow your dreams or that your dreams can't change."

-Antionette

About NDF: Our mission is to enhance the quality of the lives of people living with GNE Myopathy through advocacy, education, outreach, and funding critical research focused on treatments and a cure.

To learn more about GNE Myopathy visit: https://www.CureGNEM.org

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NDF Talks with: CEO Lale Welsh Discusses the journey to gene therapy for GNE Myopathy with NDF Board Co-Chair Ralph Loren

Episode 6

Friday, April 16, 2021 • Duration 30:40

For those of you who have been following our journey towards gene therapy for GNE myopathy, here’s a detailed conversation with our board chair Ralph Loren talking shop with our CEO Lalé Welsh.

About NDF: Our mission is to enhance the quality of the lives of people living with GNE Myopathy through advocacy, education, outreach, and funding critical research focused on treatments and a cure.

To learn more about GNE Myopathy visit: https://www.CureGNEM.org

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NDF Talks with: GNE Myopathy Patient, Sabeen

Episode 5

Friday, April 16, 2021 • Duration 14:50

“I someone tells me that I can’t go somewhere then I make sure that I go”

-Sabeen

About NDF: Our mission is to enhance the quality of the lives of people living with GNE Myopathy through advocacy, education, outreach, and funding critical research focused on treatments and a cure.

To learn more about GNE Myopathy visit: https://www.CureGNEM.org

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NDF Talks with Carol Gelbard, LCSW about stress management

Episode 4

Friday, April 16, 2021 • Duration 19:12

“So many of us are feeling extreme amounts of anxiety right now...”

-Carol Gelbard, LCSW

About NDF: Our mission is to enhance the quality of the lives of people living with GNE Myopathy through advocacy, education, outreach, and funding critical research focused on treatments and a cure.

To learn more about GNE Myopathy visit: https://www.CureGNEM.org

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NDF Talks with: GNE Myopathy Patient, Maya

Episode 3

Friday, April 16, 2021 • Duration 04:56

"NDF is our big community & strength & force to do all these things. If NDF were not there we would not make it. With NDF I'm sure the cure will be found."

-Maya

About NDF: Our mission is to enhance the quality of the lives of people living with GNE Myopathy through advocacy, education, outreach, and funding critical research focused on treatments and a cure.

To learn more about GNE Myopathy visit: https://www.CureGNEM.org

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NDF Talks – Details, episodes & analysis

Podcast details

Recent rankings

Apple Podcasts

Spotify

Shared links between episodes and podcasts

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Apple Podcasts

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NDF Talks – Details, episodes & analysis

Podcast details

Recent rankings

Apple Podcasts

Spotify

Shared links between episodes and podcasts

Other2

RSS feed quality and score

Publication history

Latest published episodes

Similar podcasts and content

Related Shows Based on Content Similarities

Apple Podcasts

Spotify

Related Shows Based on Content Similarities

Other2