Explore every episode of the podcast Life in the Void
| Title | Pub. Date | Duration | |
|---|---|---|---|
| Chocolate Fix! | 17 avr. 2025 | 00:04:46 | |
Chocolate, no joke, makes me feel better than all of my huge box of supplements combined. That is, in the short term. In other words, the meds and supplements I’m taking are I’m *sure* helping me more than chocolate in a more long term sense, but chocolate… | |||
| Cutting 99.7% Out Of Your Life | 27 mars 2025 | 00:01:54 | |
I often say this to healthy muggles: Close your eyes and picture all of the things you do in your life…Now imagine removing 99.7% of those things… | |||
| My New Print Store! | 10 mars 2025 | 00:02:47 | |
I want to announce my new Print Store! I have been working on putting this store together for 2 years now…The images were all taken before I became severe with ME/CFS in 2013…So it is a sort of parallel dimension time capsule of what could have been with my life. I want to share these images and possibly prints of these images with all of you! ❤️ | |||
| The Forever Night Of ME/CFS | 04 mars 2025 | 00:02:10 | |
Memories tearing like tissue paper, | |||
| I Started Eating Food Again in 2024...What Will 2025 Bring? | 17 févr. 2025 | 00:10:04 | |
I started eating real food again in 2024!...I have now stopped the Peptamen food formula completely, and get all my calories from real food!...It has come time that I feel stable enough with this new change that I feel comfortable telling you all. And I want to tell you because I want you to hear this story! | |||
| The 2025 ME/CFS Valentine's Day Challenge! | 14 févr. 2025 | 00:02:31 | |
Will you take the 2025 ME/CFS Valentine’s Day Challenge and reach out to 2 people you love and tell them you love them and why? …You will make their day. And if we all do this, it will have a ripple effect and reach through the ME/CFS community and none of us will feel alone or unloved today. | |||
| Letter to my Fingernails from my Nervous System | 10 févr. 2025 | 00:01:38 | |
Psssst! Hey fingernails! | |||
| The Blackhole of ME/CFS Medical Care | 20 janv. 2025 | 00:03:25 | |
My bloodwork never matches how I feel. Treatments don't work or make me worse. I am constantly dumping energy into seeking new treatments that likely won't work. This system has failed us... | |||
| Ron Davis's message of hope for 2025 and plea for help | 15 janv. 2025 | 00:03:13 | |
I think of you all every day as I work to untangle the complex molecular basis of this horrific disease…I am very optimistic that soon the major mechanisms that initiate the disease will be found. This will allow a concerted effort to reverse the process and find a cure… | |||
| Chronically Sick Holidays | 24 déc. 2024 | 00:03:16 | |
Whatever you’re celebrating this holiday season, so many of us will be lonely…It’s important when we have lost something to not just focus on what we have lost, but also remember what we still have. This is the way we can survive anything. | |||
| Make a Holiday Plan and Check it Twice! | 20 déc. 2024 | 00:04:08 | |
If we head into the Holidays with no plan and expect to "feel our way" through it safely, we will likely be in for a deathly surprise crash that could be devastating…So we need to make a plan ahead of time for how we will use our energy during the holidays…and stick to it… | |||
| Health Care Failings | 15 déc. 2024 | 00:02:12 | |
A great example of how our health care system fails chronically sick people: My Jtube clogged... A Jtube breaking or clogging is an emergency - it means a person cannot eat or take meds. You would not even leave a dog stuck in a house with no food or water. | |||
| Thanksgiving 2024 | 27 nov. 2024 | 00:02:09 | |
There are a million things I will never do again. They just keep adding up as the years go by. And as the people around me age, the opportunities for life experiences I have lost add up too…Someday I will be a part of it again. For now, I hibernate with the rest of you… | |||
| Feeling Embarrassed About Ourselves | 29 oct. 2024 | 00:04:21 | |
I need to speak to a disgusting and ignorant post by someone on X/Twitter...No one with ME/CFS or Long Covid should EVER feel embarrassed by how they look or how they have to live their life, and no one with ME/CFS or Long Covid should EVER feel like they need to hide what they look like or what their life is like from the public. | |||
| My 41st Birthday Fundraiser for Ronald W. Davis PhD's ME/CFS Research! | 24 oct. 2024 | 00:02:34 | |
Hi everyone, I’m doing another fundraiser for Ronald W. Davis PhD.’s ME/CFS research for my 41st birthday! | |||
| ME/CFS Olympics | 08 oct. 2024 | 00:07:43 | |
It says a lot about the unique and widely misunderstood challenges that ME/CFS and Long Covid patients face that there could not be an ME/CFS Olympics. Because if we tried to compete and push the physical limits of our bodies like that, all the winners would simply be dead… | |||
| The Two Worlds Of Chronic Illness | 19 sept. 2024 | 00:03:10 | |
No one ever sees the world of color that lives inside of me because the black void doesn’t let it out. I feel it, smell it, taste it. I exist there in every moment of my life. But the only thing anyone ever sees are the bits of dust of a broken down machine…When the world of color and light shines, this second world coughs and flounders and lays down a blanket of death… | |||
| Riding on Hope | 10 sept. 2024 | 00:00:23 | |
Getting through bad days with ME/CFS, Long Covid, chronic illness, or disability. | |||
| Dear NHS, Don't Kill Karen Gordon | 17 août 2024 | 00:12:08 | |
A Severe ME/CFS Patient in the UK named Karen Gordon went to the Conquest Hospital Hastings when her Jtube broke in hopes of getting a new one installed. Instead, the hospital has refused to give her a new Jtube or let her go home with Total Parenteral Nutrition (TPN), holding her hostage at the hospital for months. They have now given her an ultimatum that she must decide within 48 hours between being sent 100 miles to the St Mark’s Hospital in London to be re assessed for GI issues by Doctors who know nothing about ME/CFS and do not follow the NICE guidelines and therefore will not give her a Jtube. Or they will discharge her with no TPN to starve to death at home. Either option will kill her. This letter is an urgent attempt to make the hospital aware that they will kill her so they will change course and send Karen home with a PEG/Jtube or TPN so she can live. | |||
| Drops From The Well of Suffering: Honoring Maeve Boothby O’Neill | 08 août 2024 | 00:16:37 | |
It is a travesty that Maeve did not receive nutrition like I received. I was just as sick as Maeve with very similar symptoms, including sensitivity to stimuli like light, sounds, voices and the company of other people in my room and like Maeve, I could not eat enough food to survive. If I was treated the way Maeve was treated, I would be dead just like Maeve. Luckily, I had doctors who viewed ME/CFS as the serious physiological disease that it is, and who understood that the risk of needing to take antibiotics occasionally or add a few extra steps to my daily routine was better than the certainty of death from starvation, dehydration or malnutrition, which is what killed Maeve. Maeve just needed a way to get nutrition into her body. I got TPN and lived. Maeve was denied TPN and died. | |||
| Homelessness Is Not a Crime! | 08 juil. 2024 | 00:10:52 | |
Not having a home is not a crime! Yet after the Supreme court ruled that it was constitutional to make it illegal to sleep in public spaces, countless towns and cities are sure to follow suit in the United States and make it illegal to sleep in public spaces. (Illegal to sleep!). Sleep is a basic necessity and if you don’t have a home, you have no choice but to sleep in a public space. Beyond the morals or ethics of this it has far reaching consequences for #MECFS and #LongCovid patients. How many ME/CFS/Long Covid patients have dipped into homelessness at some point for days, months, years or have been stuck that way? | |||
| I Still Feel Free | 12 mai 2024 | 00:03:04 | |
I haven’t felt the wind on my back in 11 years. But I still feel free…We are not our circumstances. This physical world does not define us nor can it confine us. We are infinite beings…This year on ME/CFS awareness day, let’s acknowledge what ME/CFS has taken from us, But let’s also look around at the life we still have… | |||
| ME/CFS Anthem | 09 mai 2024 | 00:00:47 | |
An anthem for ME/CFS and Long Covid patients leading up to ME/CFS Awareness Day. YOU ARE NOT ALONE. This song is a beautiful testament to our connectedness no matter our physical isolation. | |||
| When Does Self Care Become Harmful? | 23 avr. 2024 | 00:07:25 | |
I’m desperate to feel better. I would do anything to feel better and I spend an enormous amount of energy following routines and taking medications and supplements to try to get better. | |||
| We Are Not Defined by their Prejudice | 04 avr. 2024 | 00:07:06 | |
Laziness is not the opposite of being sick. How have we come to this place where if we show any lack of productivity we are terrified of being labelled "lazy" and therefore not legitimately sick? …how do we start to re-frame the prejudice against us? | |||
| ME/CFS / Long Covid is an Ever Changing Journey | 04 avr. 2024 | 00:02:53 | |
ME/CFS / Long Covid is an ever changing journey and we never know where it will take us. We can do the best we can and no more; After that, we must try to find as much life along the way as possible, knowing that it is fleeting like all else; It slips through our fingers the moment we try to hold onto it. But as it slips through our fingers we don’t need to despair because we know we will find new life around the next bend. There is always new life, nothing ever stays the same. Not our weakest, most horrific living nightmares or our life affirming reprieves from the void. | |||