Let’s talk about epilepsy – Details, episodes & analysis

Podcast details

Technical and general information from the podcast's RSS feed.

Let’s talk about epilepsy

Young Epilepsy

Health & Fitness

Kids & Family

Frequency: 1 episode/16d. Total Eps: 18

Welcome to —Let’s Talk about Epilepsy - your podcast to hear real stories, expert insights, and honest conversations about life with epilepsy. Whether you’re living with epilepsy, supporting a young person who is, or just want to understand more, we’re here to help you feel informed, empowered, and connected. We bring together the voices that matter—young people, families, and experts—to share experiences, tackle challenges, and celebrate wins. Tune in and be part of something bigger!

Recent rankings

Latest chart positions across Apple Podcasts and Spotify rankings.

Apple Podcasts

🇬🇧 Great Britain - medicine
05/07/2026
#98
🇬🇧 Great Britain - medicine
08/05/2026
#64
🇬🇧 Great Britain - medicine
27/04/2026
#93
🇬🇧 Great Britain - medicine
11/02/2026
#96
🇬🇧 Great Britain - medicine
30/10/2025
#98
🇬🇧 Great Britain - medicine
19/10/2025
#82
🇬🇧 Great Britain - medicine
18/10/2025
#51
🇬🇧 Great Britain - medicine
17/10/2025
#59
🇬🇧 Great Britain - medicine
16/10/2025
#37
🇬🇧 Great Britain - medicine
10/10/2025
#90

Spotify

No recent rankings available

Shared links between episodes and podcasts

Links found in episode descriptions and other podcasts that share them.

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https://www.youngepilepsy.org.uk/shout
13 shares
https://www.youngepilepsy.org.uk/
9 shares
https://www.youngepilepsy.org.uk/about-epilepsy
6 shares

https://www.youtube.com/user/youngepilepsy

RSS feed quality and score

Technical evaluation of the podcast's RSS feed quality and structure.

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RSS feed quality

To improve

Score global : 52%

Publication history

Monthly episode publishing history over the past years.

Year

Latest published episodes

Recent episodes with titles, durations, and descriptions.

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Mental Health and Wellbeing (Audio only)

Season 1 · Episode 3

Wednesday, July 16, 2025 • Duration 01:27:59

This episode focuses on how epilepsy can affect mental health and wellbeing. We explain why this happens and how young people, parents, and carers can get support. There are also tips for healthcare professionals on how to include mental health care in epilepsy treatment.

NOTICE:

It is important to understand that epilepsy is a highly individualised condition, and each person’s experience with epilepsy can vary significantly.

The information, experience and views shared on this podcast may not reflect those of Young Epilepsy and are not intended to replace professional medical advice, diagnosis, or treatment. Always consult with a qualified healthcare provider for personalised medical advice and support tailored to your specific needs. If you’re sad, worried or lonely, text the word ‘PURPLE’ to 85258 to start a conversation with Shout. More info: https://www.youngepilepsy.org.uk/shout

A special thank you to the sponsors of this episode, Nutricia Ketogenics. Find out more: https://www.nutricia.com/

Useful links:

For professionals:

X: https://x.com/youngepilepsy/

Facebook: http://facebook.com/YoungEpilepsy

Instagram: https://www.instagram.com/youngepilepsy/

YouTube: https://www.youtube.com/user/youngepilepsy

LinkedIn: https://www.linkedin.com/company/young-epilepsy/

TikTok: https://www.tiktok.com/@youngepilepsy/

Contact : communications@youngepilepsy.org.uk

Read moreCollapse

Transitions into Adult Healthcare (Audio only)

Episode 4

Wednesday, July 30, 2025 • Duration 01:23:15

Moving from children’s to adult healthcare can feel like a big step – but you’re not alone. In this episode, we chat about what this transition really means for young people with epilepsy, share real stories, and give you practical tips to help you feel confident and in control.

A special thank you to the sponsors of this episode, Nutricia Ketogenics. Find out more: https://www.nutricia.com/

Please remember:

It is important to understand that epilepsy is a highly individualised condition, and each person’s experience with epilepsy can vary significantly.

If you’re feeling sad, worried or lonely, text ‘PURPLE’ to 85258 to chat with Shout. More info: https://www.youngepilepsy.org.uk/shout

Useful links:

X: https://x.com/youngepilepsy/

Facebook:

Joe's seizures (Audio only)

Episode 9

Wednesday, October 8, 2025 • Duration 44:21

In this episode, we break down what seizures are and what they can look like. With help from healthcare professionals and real-life stories, we explain the different types of seizures in a way that’s easy to understand. Whether you’re a young person with epilepsy or a parent or carer, this episode gives you clear, helpful info and expert advice to support you on your journey.

PLEASE NOTE: Managing Risks Linked to Epilepsy It's crucial to understand and manage the risks associated with epilepsy. One useful tool to help with this is the EpsMon app, developed by SUDEP Action. This app can assist you in monitoring your condition and taking proactive steps to reduce risks. Remember, managing your epilepsy effectively can significantly improve your quality of life. You can find this here: https://sudep.org/about-research/epsm... It is important to understand that epilepsy is a highly individualised condition, and each person’s experience with epilepsy can vary significantly. The information, experience and views shared on this podcast may not reflect those of Young Epilepsy and are not intended to replace professional medical advice, diagnosis, or treatment. Always consult with a qualified healthcare provider for personalised medical advice and support tailored to your specific needs.

If you’re sad, worried or lonely, text the word ‘PURPLE’ to 85258 to start a conversation with Shout. More info: https://www.youngepilepsy.org.uk/shout

Useful links: • https://www.youngepilepsy.org.uk/ • Information about epilepsy: • Epileptic seizures: • Young Epilepsy Youth Support Services: • You can help - seizure types:

You’re Not Alone: Finding Support with Epilepsy (Audio only)

Episode 8

Wednesday, September 24, 2025 • Duration 54:13

We talk about what it’s really like to be a young person with epilepsy. We look at why some people feel alone, how to find support, and how building a community can help. We also talk about bullying, mental health, and how to get help when you need it.

In this episode:

Feeling Alone: Why so many young people with epilepsy feel isolated, and what can help.
Building Community: How making friends and joining groups can make life better.
Online Support: How you can get help and join in, wherever you live.
Real Stories: Young people share how meeting others changed their lives.
Bullying and Ignorance: Why it happens, and what we can do about it.
Mental Health: Why it matters, and where to find support.
Hope: You’re not alone—there’s always someone who understands.

NOTICE:

Epilepsy is different for everyone. What works for one person might not work for another. The stories and advice in this podcast are not medical advice. Always talk to a doctor or nurse for help that’s right for you.

If you’re feeling sad, worried or lonely, text the word ‘PURPLE’ to 85258 to start a conversation with Shout. More info: https://www.youngepilepsy.org.uk/shout

Useful Links:

Young Epilepsy: https://www.youngepilepsy.org.uk/
Youth Support Services: https://www.youngepilepsy.org.uk/what-we-do/support-inclusion/youth-support
Info about epilepsy: https://www.youngepilepsy.org.uk/about-epilepsy

Social Media:

X: https://x.com/youngepilepsy/
Facebook: http://facebook.com/YoungEpilepsy
Instagram: https://www.instagram.com/youngepilepsy/
YouTube: https://www.youtube.com/user/youngepilepsy
LinkedIn: https://www.linkedin.com/company/young-epilepsy/

MICE (Mental Health Intervention in Childhood Epilepsy) (Audio only)

Episode 6

Wednesday, August 27, 2025 • Duration 17:18

We chat with Sophie Bennett about the MICE project, which focuses on mental health support for children and young people with epilepsy. Sophie, a clinical psychologist and researcher, shares how mental health support can make a big difference. We know that getting an epilepsy diagnosis can be tough, and this episode offers expert info and connection through shared experiences.

NOTICE:

It is important to understand that epilepsy is a highly individualised condition, and each person’s experience with epilepsy can vary significantly. The information, experience and views shared on this podcast may not reflect those of Young Epilepsy and are not intended to replace professional medical advice, diagnosis, or treatment.

Always consult with a qualified healthcare provider for personalised medical advice and support tailored to your specific needs.

If you’re sad, worried or lonely, text the word ‘PURPLE’ to 85258 to start a conversation with Shout. More info: https://www.youngepilepsy.org.uk/shout

Resources:

• https://www.youngepilepsy.org.uk/

• https://www.youngepilepsy.org.uk/yout...

What it means to be in the Youth Voice Network (Audio only)

Episode 5

Wednesday, August 13, 2025 • Duration 48:26

We hear what it’s really like to be part of the Youth Voice Network at Young Epilepsy. Jasmine chats with Milla, who shares their personal story and how being involved has helped them feel more confident and connected.

We also explain what the Youth Voice Network is, how it works, and how young people can get involved to make sure their voices are heard and their experiences shape the future of epilepsy support.

PLEASE NOTE: It is important to understand that epilepsy is a highly individualised condition, and each person’s experience with epilepsy can vary significantly. The information, experience and views shared on this podcast may not reflect those of Young Epilepsy and are not intended to replace professional medical advice, diagnosis, or treatment.

Always consult with a qualified healthcare provider for personalised medical advice and support tailored to your specific needs. If you’re sad, worried or lonely, text the word ‘PURPLE’ to 85258 to start a conversation with Shout. More info: https://www.youngepilepsy.org.uk/shout

Useful links:

Hear Her Voice – Exploring the impact of epilepsy on women and girls (Audio only)

Episode 10

Tuesday, October 14, 2025 • Duration 01:31:37

In our first LIVE episode, renowned broadcaster, Edith Bowman hosts a powerful panel discussion with Netflix and Hollyoaks actor Ellie Henry, Fashion PR Hum Fleming, and student Mariam Hussain who share their personal stories of diagnosis, school, work, memory loss, and the importance of support networks.

We also explore the impact of epilepsy on mothers as BBC F1 host Jenny Gow, Dr Laura Cunnane and Kelly Norford open up about the challenges and resilience of families navigating epilepsy with their child. Dr. Tejal Mitchell, consultant neurologist, joins to answer questions and discuss the unique challenges facing women and girls, including hormonal changes, medication, and the transition from paediatric to adult care.

Hear Her Voice centres the voices of women and girls living with epilepsy and is an example of how powerful a conversation can be.

PLEASE NOTE: Epilepsy is a highly individualised condition, and each person’s experience can vary significantly. The information, experiences, and views shared in this podcast may not reflect those of Young Epilepsy and are not intended to replace professional medical advice, diagnosis, or treatment. Always consult a qualified healthcare provider for personalised medical advice and support tailored to your specific needs.

⚠️ Please proceed with care: This film discusses SUDEP (Sudden Unexpected Death in Epilepsy) and may be triggering for some viewers.

For more information search 'SUDEP' on our website.

If you’re sad, worried, or lonely, text the word ‘PURPLE’ to 85258 to start a conversation with Shout. More info: https://www.youngepilepsy.org.uk/shout

Chapters: 0:00 Introduction and Overview 2:00 Living with Epilepsy: Ellie’s Story 7:30 School, Exams, and Advocacy: Maryam’s Experience 15:00 Memory, Support, and Openness: Hum’s Journey 29:00 Mothers’ Panel: Family Life and Resilience 50:00 Coping with Loss and Finding Community: Laura’s Story 61:00 Expert Q&A with Dr. Tejal Mitchell 79:00 Audience Questions and Reflections 89:30 Closing Thoughts and Support

What I wish I knew when I was diagnosed (Audio only)

Episode 13

Wednesday, December 3, 2025 • Duration 23:06

We explore what young people wish they’d known when they were first diagnosed with epilepsy. Host Olivia sits down with Jasmine and Renell from the Youth Voice Network to share honest stories about the moment of diagnosis, the fears and misconceptions they faced, and the journey to independence.

They discuss coping strategies, the importance of community, and how to break down stigma. This episode is packed with real-life experiences, practical tips, and hope for anyone navigating their own epilepsy journey.

IMPORTANT: It is important to understand that epilepsy is a highly individualised condition, and each person’s experience with epilepsy can vary significantly.

If you’re sad, worried or lonely, text the word ‘PURPLE’ to 85258 to start a conversation with Shout. More info: https://www.youngepilepsy.org.uk/shout

Useful links:

Diagnosis and Emerging Technologies (Audio only)

Episode 12

Wednesday, November 19, 2025 • Duration 01:17:10

We dive into the emotional journey of getting an epilepsy diagnosis. Host Kirsten McHale chats with Professor Mark Richardson, Dr Colin Dunkley, and Spencer from the Youth Voice Network. They talk about the diagnosis process, the challenges families face, and the cool new tech that's changing epilepsy care. This episode is packed with expert advice and real-life stories to help and empower young people with epilepsy and their families.

IMPORTANT: It is important to understand that epilepsy is a highly individualised condition, and each person’s experience with epilepsy can vary significantly.

The information, experience and views shared on this podcast may not reflect those of Young Epilepsy and are not intended to replace professional medical advice, diagnosis, or treatment.

Always consult with a qualified healthcare provider for personalised medical advice and support tailored to your specific needs.

If you’re sad, worried or lonely, text the word ‘PURPLE’ to 85258 to start a conversation with Shout. More info: https://www.youngepilepsy.org.uk/shout

Useful links:

A parent's journey with childhood epilepsy - Sarah and Lexi (Audio only)

Episode 11

Wednesday, November 5, 2025 • Duration 32:59

This episode explores the emotional journey of getting an epilepsy diagnosis for children and young people. Host Kirsten McHale speaks with Sarah, who shares her personal experience as a parent navigating her daughter Lexi’s diagnosis. It’s all about sharing stories and support to help others feel less alone.

IMPORTANT: It is important to understand that epilepsy is a highly individualised condition, and each person’s experience with epilepsy can vary significantly.

If you’re sad, worried or lonely, text the word ‘PURPLE’ to 85258 to start a conversation with Shout. More info: https://www.youngepilepsy.org.uk/shout

Resources

Young Epilepsy website https://www.youngepilepsy.org.uk/
E-Cure network: https://www.youngepilepsy.org.uk/get-...

Let’s talk about epilepsy – Details, episodes & analysis

Podcast details

Recent rankings

Apple Podcasts

Spotify

Shared links between episodes and podcasts

RSS feed quality and score

Publication history

Latest published episodes

Related Shows Based on Content Similarities

Apple Podcasts

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Let’s talk about epilepsy – Details, episodes & analysis

Podcast details

Recent rankings

Apple Podcasts

Spotify

Shared links between episodes and podcasts

Other28

Youtube1

RSS feed quality and score

Publication history

Latest published episodes

Similar podcasts and content

Related Shows Based on Content Similarities

Apple Podcasts

Spotify

Related Shows Based on Content Similarities

Other28

Youtube1

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