Let's Talk About Brain Tumours – Details, episodes & analysis

Anna talks to Anna Solth and Victoria Wyes about their experiences of being neurosurgeons and women in the field of neuroscience.  They share their passion for neuroscience, discuss the work they are doing now and their plans for the future.

Better Safe Than Tumour

If you or someone you know needs a listening ear, you can contact our Support Team by calling 0808 800 0004 or by emailing support@thebraintumourcharity.org

If you have any questions about this episode of the podcast, email podcast@thebraintumourcharity.org

We meet Gavin Burden and Louise Worthington who have both been diagnosed with brain tumours. Gavin has been living with his brain tumour since he was 21 - for 28 years. Gavin and Louise have been friends for a long time so when Louise was diagnosed with a brain tumour in 2018 Gavin contacted her to offer support.
In the episode, they share the difficulties of living with hidden disabilities as Gavin has since lost 75% of his vision.

Despite these challenges, they have decided to celebrate Gavin turning 50 by taking on a 25km challenge! You can find out more about Gavin and Louise here
If you want to get involved in their challenge you can email them at: Loungav25kwalk@gmail.com

Better Safe Than Tumour

If you or someone you know needs a listening ear, you can contact our Support Team by calling 0808 800 0004 or by emailing support@thebraintumourcharity.org

If you have any questions about this episode of the podcast, email podcast@thebraintumourcharity.org

In this episode Chandos talk with two of our Children and Families and Young Adults Workers Amy Watts and Jessie Poole  about the support that is available to families who have children under 18.  Some of the things mentioned in this episode include:

• Family Days
• Brainy Bags
• Online support group for parents
• Talking to children about brain tumours
• Taling to children about their brain tumour
• Teens Instagram
• Teen Meet ups
• Sibling Support

If you would like to know more about our Childrens and Familes Service you can find out more here 

You can also contact the team by calling 0808 800 004 or emailing childrenandfamilies@thebraintumourcharity.org

Better Safe Than Tumour

If you or someone you know needs a listening ear, you can contact our Support Team by calling 0808 800 0004 or by emailing support@thebraintumourcharity.org

If you have any questions about this episode of the podcast, email podcast@thebraintumourcharity.org

(Trigger Warning)  In this episode - Benj talks about the impact of his daughter Ivy's diagnosis and coming to terms with the changes this has brought to both Ivy and their lives as a family.  He talks about the impact on mental health and the impact of trauma that parents and loved ones experiene as a result of a brain tumour diagnosis.

This episode contains conversations that some people may find distressing such as the effects of the tumour and treatment.

It's important to remember that everyone's experience is different, your experience and opinions may differ from what is discussed in this episode.

If you are affected by any of the subjects raised in the episode please do contact our support team on 0808 800 004 or email the team at support@thebraintumourcharity.org.

If you would like to know more about our counselling service you can find information here

We also offer Relationship counselling which you can find out more about here

You can email our Children and Families Team - childrenandfamilies@thebraintumourcharity.org

You can find out more information about Craniopharyngioma here.

You can find out more about our Children and Families Service here.

If you or someone you know needs a listening ear, you can contact our Support Team by calling 0808 800 0004 or by emailing support@thebraintumourcharity.org

If you have any questions about this episode of the podcast, email podcast@thebraintumourcharity.org

In May this year, we hosted not only our first in-person Young Adult event since Covid but our first ever Masquerade Ball.  Anna and Chandos, explain why events like this are so crucial to young people whose lives have been affected by a brain tumour diagnosis.  We also hear from other young adults about the impact these events have on people like themselves who may not have the same opportunities to experience events like this as other young people.

You can find out more about our Young Adults Service here

You can also find out more about our events for young adults here

We also hold Family Days for families with children under 18 which you can find out more about here

You can also contact the support team by calling 0808 800 004 or emailing support@thebraintumourcharity.org

Better Safe Than Tumour

If you or someone you know needs a listening ear, you can contact our Support Team by calling 0808 800 0004 or by emailing support@thebraintumourcharity.org

If you have any questions about this episode of the podcast, email podcast@thebraintumourcharity.org

(Trigger Warning)  In this episode - Benj talks us through every parent's worst nightmare, from the moment he and his wife Sarah were told their 4 year old daughter Ivy had a mass in her brain to where they are now as a family 18 months later. 

This episode contains conversations that some people may find distressing such as the effects of the tumour and treatment.

It's important to remember that everyone's experience is different, this is Benj's experience, your experience may differ from what is discussed in this episode.

If you are affected by any of the subjects raised in the episode please do contact our support team on 0808 800 004 or email the team at support@thebraintumourcharity.org.

You can email our Children and Families Team - childrenandfamilies@thebraintumourcharity.org

You can find out more information about Craniopharyngioma here.

You can find out more about our Children and Families Service here.

If you or someone you know needs a listening ear, you can contact our Support Team by calling 0808 800 0004 or by emailing support@thebraintumourcharity.org

If you have any questions about this episode of the podcast, email podcast@thebraintumourcharity.org

 If you are a parent who has recieved a brain tumour diagnosis, telling your children can be one of the hardest things to do.  In this episidode we talk to Simone Baldwin, the author of the book 'Mummy has a lump' which she wrote after recieving her own brain tumour diagnosis and struggled to find any resources for parents to help her explain to her young son.  Simone also went on to write 'Daddy has a lump'

You can find out more about Simone here 

You can find 'Mummy has a lump'  here and 'Daddy has a lump' here

You can also find more information about talking to children on our website here

You can find out more about our Children and Families Service here
You can email our Children and Families Team by emailing childrenandfamilies@thebraintumourcharity.org or calling our support line on 0808 800 0004

Better Safe Than Tumour

If you or someone you know needs a listening ear, you can contact our Support Team by calling 0808 800 0004 or by emailing support@thebraintumourcharity.org

If you have any questions about this episode of the podcast, email podcast@thebraintumourcharity.org

In this episode Anna talks to Dave Bolton, founder of Ahead of the Game Foundation which aims to provide much needed rehabilitation services to cancer patients.
Dave talks about what led him to creating Ahead of the Game and what services they provide.

You can find out more about Ahead of the Game  here

You can read more about Dave Bolton here

You can vist our website here 

If you'd like to talk to a member of our support team you can call 0808 800 0004 or email support@thebraintumourcharity.org

Better Safe Than Tumour

If you or someone you know needs a listening ear, you can contact our Support Team by calling 0808 800 0004 or by emailing support@thebraintumourcharity.org

If you have any questions about this episode of the podcast, email podcast@thebraintumourcharity.org

Imelda and Rebecca both experienced headaches caused by their brain tumours. They share how these symptoms were often dismissed by GPs and not taken seriously - despite also having other indications that something wasn't right and needed investigating. 

They explain what the headaches were like and what made them think there was something more going on than just having bad headaches or migraines.

There's more information about the signs and symptoms of brain tumours here and information on headaches on our website here Headaches in children and Headaches in adults

Better Safe Than Tumour

If you or someone you know needs a listening ear, you can contact our Support Team by calling 0808 800 0004 or by emailing support@thebraintumourcharity.org

If you have any questions about this episode of the podcast, email podcast@thebraintumourcharity.org

In this episode we talk to Phoebe Day our Gifts and Partnerships Manager at the charity.  She explains what family led partnerships are, the different types and why they are so important to the charity.  Family led partnerships are so much more than just rasing money for the charity as Phoebe explains in this episode.

If you have any questions you can email Phoebe directly byt emailing her at phoebe.day@thebraintumourcharity.org.  You can also find out more about Family Led Partnerships here

You can also find out more about the Oli Hilsdon Foundation here and OSCAR’s Paediatric Brain Tumour Charity here

Better Safe Than Tumour

If you or someone you know needs a listening ear, you can contact our Support Team by calling 0808 800 0004 or by emailing support@thebraintumourcharity.org

If you have any questions about this episode of the podcast, email podcast@thebraintumourcharity.org