Explore every episode of the podcast Inside the Children's Hospital
| Title | Pub. Date | Duration | |
|---|---|---|---|
| From Peds Nurse to Cancer Mom: What Helped her Child Cope | 30 sept. 2026 | 00:47:01 | |
Pediatric nurse and mom Brigid shares how her family navigated her son's neuroblastoma diagnosis—with practical guidance on preparing kids for care, accepting support, and finding hope. Key Topics:
00:00 - Finding support through childhood cancer stories To listen to more episodes, head to insidethechildrenshospital.com This podcast is for educational and informational purposes only and is not a substitute for medical advice, diagnosis, or treatment. Every child and family is different. Always talk with your child's healthcare team about questions or decisions related to their care. The experiences and opinions shared by guests are their own and do not necessarily represent the views of their employers, healthcare organizations, or Inside the Children's Hospital.
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| My Daughter Had a Brain AVM: Advocacy, Medical Trauma, and Hope | 23 sept. 2026 | 00:59:46 | |
As we begin to close out NICU Awareness Month, Katie sits down with Matilda "Tilly" Aldridge, a content marketer and mom. During a normal morning, Adelaide, her oldest child, was rushed to the hospital after Tilly and her husband heard Adelaide screaming from her room. She was given a CT scan, and a large tumor was found in her brain. Tilly recounts her experience not only dealing with the sudden occurrence of Adelaide's medical emergency, but also how Adelaide herself was able to overcome the trauma she suffered. Together, Tilly and Katie dig into what advocating for answers can entail, and finding joy in the aftermath. Timestamps1:40 - Introduction to Tilly's Journey 4:28 - Navigating Parenthood During COVID 7:21 - Impact of Postpartum Depression 10:41 - Life-Altering Medical Emergency 13:18 - Understanding AVIM 16:10 - The Road to Recovery 22:13 - Managing Anxiety in Children 25:17 - Empowering Children Through Choices 32:04 - The Impact of Medical Trauma 37:00 - The Search for Answers 43:57 - The Fight for Medical Attention 49:07 - The Joys of Motherhood Post-Trauma ResourcesMedical information shared in this episode is not a substitute for professional medical advice. Please consult your healthcare team for guidance specific to your child and family.
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| The Long-term Effects of Short-term Medical Decisions: A parent's story of NEC, the NICU and Short Bowel Syndrome | 16 sept. 2026 | 01:04:31 | |
Welcome back to NICU Awareness Month. In this episode, Katie is sitting down with Kim Holland, mom of Tripp who was born at 27 weeks and also developed NEC. NEC, or Necrotizing Enterocolitis, is the inflammation of the intestine that often leads to the death of intestinal tissue/lining, which caused Tripp to undergo multiple surgeries and spend months in the NICU. Kim delves into the raw emotions she went through during her pregnancy with Tripp and his stay in the NICU as she had to make tough medical decisions. She also gives us some insight into how she coped and was ultimately able to create a new normal after the NICU. Katie and Kim speak on how to build community and support during a time of healing for all parents. Timestamps00:00 - Introduction 1:30 - Kim's Family and Background 4:18 - Emergency C-Section and Preeclampsia Experience 7:39 - Tripp's Birth and NICU Journey 10:20 - Navigating the NICU 13:28 - Understanding NEC and its Impact 16:33 - Surgery and the Role of Faith 19:25 - Post-Surgery and Ongoing Challenges 34:57 - The Grim Reality of Medical Decisions 46:28 - Coping Mechanisms in the NICU 54:26 - Life After the NICU 58:34 - Building Community and Support
Medical information shared in this episode is not a substitute for professional medical advice. Please consult your healthcare team for guidance specific to your child and family. | |||
| Best Children's Hospitals (US News): What Parents Need to Know | 15 sept. 2026 | 00:31:50 | |
How U.S. News Ranks Children's Hospitals—and What Parents Should Know Every year, U.S. News & World Report releases its Best Children's Hospitals rankings—but what do those rankings actually tell families? In this episode, Katie Taylor, CCLS, speaks with Jennifer Winston, senior health data scientist at U.S. News & World Report, about how the rankings are built, what the scores measure and how parents can use them without over-reading small differences between hospitals. Jennifer explains the role of clinical outcomes, hospital resources and care practices in the rankings, along with how parent feedback is incorporated into the methodology. Katie brings in the child life perspective, asking where psychosocial support, interpreter services, family involvement and emotional safety fit into the definition of excellent pediatric care. They also explore an important question for families: Is traveling to a nationally ranked hospital always better, or can receiving care closer to home sometimes matter more? What you'll learn
View the official U.S. News Best Children's Hospitals rankings. Parents can also search for pediatric hospitals and care by location or specialty. Rather than relying only on a hospital's overall rank, families can explore individual specialty rankings and hospital scorecards to learn more about outcomes, staffing, available services and other factors that may matter for their child. Episode timestamps
"We really do rely on the experts who are on these working groups to help us make those decisions." "These are all hospitals that are providing great-quality care." "It's important for families who need information." About Inside the Children's HospitalInside the Children's Hospital shares what families lived, what they learned and what they want you to know. Hosted by Katie Taylor, a certified child life specialist, the podcast helps families better understand pediatric healthcare and feel more prepared to participate in their child's care. Medical disclaimer: This podcast is for educational and informational purposes only and is not a substitute for individualized medical advice, diagnosis or treatment. Always speak with your child's healthcare team about questions or decisions related to their care. | |||
| The NICU Waiting Game: NICU Awareness Month | 09 sept. 2026 | 00:32:40 | |
Continuing NICU Awareness Month, in this week's episode, Katie is talking to Emily Rosen, the author of Waiting for Max: A NICU Story. Emily is a mom to 2 children, Max and Eva. Emily's book is about her experience being a parent in the NICU, with the hopes that the book can help communicate with other NICU families that they aren't alone in this journey. Throughout the episode, Emily details the emotions she went though as a parent, along with giving advice as to how to navigate new and possibly frightening feelings that came be brought on. Together, Emily and Katie walk through the different treks of healing that parents/families go through after being in the NICU, and how not all journeys follow the same path. Timestamps00:00 - Introduction to Emily 1:39 - Meet Emily Rosen 4:09 - Emily's Journey to Motherhood 7:48 - The NICU Experience 13:42 - The Emotional Toll of the NICU 19:51 - Creating a Children's Book for NICU Families 23:27 - The Decision to Expand the Family 28:05 - Healing through Storytelling Resources Mentioned
Medical information shared in this episode is not a substitute for professional medical advice. Please consult your healthcare team for guidance specific to your child and family.
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| GalTheBabyDoc: Humor + Humanity in the NICU | 02 sept. 2026 | 00:38:27 | |
September is NICU Awareness Month, and in this week's episode, Katie sits down with Dr. Gal, @galthebabydoc, a Neonatologist and Pediatrician, and a dad with experience as a parent in the NICU. He shares his knowledge and experience on social media in digestible ways to help parents and others feel comfortable during difficult times. Throughout the episode, they delve into the experiences and emotions of what parents might be facing when their baby is in the NICU, and how parents can get the most out of communicating with the hospital's healthcare providers. Dr.Gal, having experience on both ends of the spectrum, brings a unique perspective on how to properly handle sensitive topics between both parties. Timestamps00:00 - Meet Dr.Gal 1:52 - Introduction and connection to Dr.Gal 3:59 - The Journey to Neonatology 6:39 - The Role of Humor in Medicine 9:43 - Navigating Rounds: Best Practices for Parents 12:49 - Understanding the Attending's Responsibilities 15:56 - The Importance of Family Presence in the NICU 20:04 - A Day in the Life of a Neonatologist 21:22 - Personal Experiences Shaping Professional Perspectives 24:38 - The Emotional Impact of the NICU Admissions 26:45 - Building Trust Through Transparency 29:47 - Humor in Medicine 33:42 - Understanding the Father's Experience in the NICU Resources Mentioned
Medical information shared in this episode is not a substitute for professional medical advice. Please consult your healthcare team for guidance specific to your child and family. | |||
| How to Talk to Kids About the Things We Wish They Didn't Have to Face [Palliative Care] | 26 août 2026 | 00:30:05 | |
How do families navigate a serious childhood diagnosis while still focusing on hope, quality of life, and the everyday moments that matter most? In this episode of Inside the Children's Hospital Podcast, Katie Taylor sits down with Dr. Korie Leigh, PhD, CCLS, a child life specialist, psychologist, thanatologist, author, educator, and pediatric palliative care advocate. Drawing on more than two decades of supporting children and families, Dr. Leigh shares what pediatric palliative care really is—and why it is so much more than many families believe. Together, they explore how pediatric palliative care supports children living with serious or complex medical conditions from the time of diagnosis, helping families manage not only medical needs, but also emotional, psychosocial, and spiritual well-being. Dr. Leigh discusses how parents can advocate for palliative care services, even if they are not offered at their local hospital, and explains why caregiver support and respite care are essential parts of caring for the whole family. The conversation also dives into resilience, grief, and the power of creativity. Dr. Leigh shares how writing can become a meaningful tool for processing difficult experiences, why preparing children for life's hardest moments matters, and how her books were created to help families navigate conversations surrounding illness, hospitalization, and loss with confidence and compassion. Whether you're navigating a new diagnosis, caring for a child with a complex medical condition, supporting a family through hospitalization, or you're a healthcare professional looking to better understand pediatric palliative care, this episode offers practical insights, encouragement, and hope. In This Episode, We Discuss:
Episode Timestamps 00:00 Meet Dr. Korie Leigh 02:33 A career in child life and palliative care 05:25 What is pediatric palliative care? 08:00 How parents can advocate for support 10:59 Insurance and access to care 12:05 Why respite care matters 14:18 Supporting families beyond the hospital 15:07 Building resilience through crisis 19:13 Writing through grief and healing 22:26 Creativity as a coping tool 27:29 Books, music, and final reflections Resources MentionedMedical information shared in this episode is not a substitute for professional medical advice. Please consult your healthcare team for guidance specific to your child and family.
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| Helping Kids Cope With Needles: The Science Behind Buzzy | 19 août 2026 | 00:52:12 | |
In this episode of Inside the Children's Hospital Podcast, Katie Taylor sits down with Dr. Amy Baxter, pediatric emergency physician, researcher, inventor of Buzzy®, and founder of Pain Care Labs, to explore how childhood experiences with needles can shape a lifetime of healthcare interactions—and what parents and healthcare professionals can do to help. After watching her own son develop a fear of needles despite her expertise in pediatric pain management, Dr. Baxter began researching why children experience pain differently and how simple, evidence-based strategies can reduce pain during vaccines, blood draws, IV placements, port access, and other medical procedures. Her work ultimately led to the invention of Buzzy®, a device now used by families and healthcare professionals around the world. Katie and Dr. Baxter discuss the science behind pain, why multiple painful procedures can have a lasting impact on children, and how connection, preparation, and developmentally appropriate support can help children build confidence instead of fear. They also share practical strategies parents can use during medical procedures, the role of child life specialists, and why helping children feel safe matters just as much as reducing physical pain. Whether you're preparing your child for routine vaccines, navigating frequent hospital visits, supporting a child with a chronic medical condition, or caring for pediatric patients, this episode offers compassionate, research-informed insights that can help make medical experiences less overwhelming for children and families. In This Episode, We Discuss:
Episode Timestamps 00:00 Meet Dr. Amy Baxter Connect with Us Instagram: @childlifeoncall + @insidethechildrenshospital Watch Today's Episode on YouTube Subscribe: Never miss an episode on Apple Podcasts or Spotify. Visit: insidethechildrenshospital.com to search stories and episodes. Leave a Review: It helps other families discover the podcast and access these free resources. Medical information shared in this episode is not a substitute for professional medical advice. Please consult your healthcare team for guidance specific to your child and family.
How can parents make shots, blood draws, IVs, and other medical procedures less painful for their children? In this episode of Inside the Children's Hospital Podcast, Katie Taylor, CCLS, sits down with Dr. Amy Baxter, MD—pediatric emergency physician, researcher, founder of Pain Care Labs, and inventor of Buzzy®—to discuss the science behind pediatric pain management and how small changes can make a big difference during medical procedures. After realizing she couldn't prevent her own son's fear of needles, Dr. Baxter dedicated her career to understanding why children experience pain the way they do and developing evidence-based solutions to help. Her work has transformed how families and healthcare professionals approach vaccines, blood draws, IV placements, port access, and other procedures that children with medical complexity often experience. Together, Katie and Dr. Baxter explore why children's early medical experiences matter, how child life principles help children build resilience, and practical ways parents can help their child feel safer and more supported during healthcare visits. They also discuss the research behind vibration and cold therapy, the importance of preparation and caregiver connection, and the future of non-medication pain management. Whether you're preparing for routine vaccines, navigating frequent lab work, supporting a child with a chronic medical condition, or you're a child life specialist or pediatric healthcare professional, this conversation is filled with compassionate, practical insights to help children experience less pain and more confidence. In This Episode
00:00 Meet Dr. Amy Baxter
Dr. Amy Baxter, MD, is a pediatric emergency physician, inventor, researcher, and founder of Pain Care Labs. Internationally recognized for her work in pediatric pain management, Dr. Baxter invented Buzzy® after watching her own son develop a fear of needles despite her expertise as a physician. For more than 20 years, she has researched how vibration, cold therapy, and developmentally appropriate support can reduce pain during vaccines, blood draws, IV placements, and other medical procedures. Her mission is to help children experience less pain, less trauma, and more confidence during healthcare experiences.
❤️ If this episode helped you, please like, subscribe, and share it with another family or healthcare professional who could benefit from these resources. 📱 Connect with us 🎧 Listen on Apple Podcasts, Spotify, or wherever you get your podcasts.
#childlife #pediatrics #medicalparent #hospitalparent #vaccines #blooddraw #IVtherapy #painmanagement #needlepain #childrenshospital #buzzy #medicaltrauma #caregiver #pediatrichealthcare #childlifespecialist #medicalcomplexity #parenting #podcast #amybaxter #paincare | |||
| When You Become Your Child's Advocate Overnight | 12 août 2026 | 00:32:08 | |
What happens when the child you've dreamed of suddenly receives a diagnosis you've never even heard of? For Deborah, it was Angelman syndrome. In this episode of Inside the Children's Hospital Podcast, Katie Taylor sits down with Deborah Trejo, Art Therapist, to share the powerful story of her daughter Maya's journey to an Angelman syndrome diagnosis. After months of feeding difficulties, developmental delays, seizures, and countless unanswered questions, Deborah and her family finally received a diagnosis just one day after Maya's first birthday. Deborah opens up about the emotional realities of medical motherhood—from surviving the uncertainty of the diagnostic process to learning how grief and joy can exist together. She shares how finding community through the Angelman Syndrome Foundation, connecting with other parents, and embracing art as a tool for healing helped her navigate one of the most difficult seasons of her life. As both a mother and an art therapist, Deborah also reflects on maintaining her identity beyond caregiving, advocating fiercely for her daughter's needs, and celebrating every milestone along the way. Her story is an honest reminder that while a rare diagnosis may change the path a family expected, it can also reveal extraordinary resilience, purpose, and hope. Whether you're a parent navigating a rare diagnosis, caring for a child with complex medical needs, or a healthcare professional supporting families through uncertainty, this episode offers compassionate encouragement and a reminder that you are never alone. In This Episode, We Discuss:
00:00 Meet Deborah Trejo 01:30 Maya's first year and the journey to diagnosis 05:30 Birth during COVID and early medical concerns 08:00 Developmental delays, seizures, and meeting neurology 11:25 Receiving the Angelman syndrome diagnosis 13:00 Processing grief and surviving the unknown 19:15 Becoming an art therapist through lived experience 21:15 Holding onto identity beyond medical motherhood 24:00 The Angelman Syndrome Foundation and family support 26:50 Learning to ask for help 28:45 Advocacy, milestones, and celebrating progress 31:55 Maya's joy and final reflections Resources Mentioned
Connect with Us
Medical information shared in this episode is not a substitute for professional medical advice. Please consult your healthcare team for guidance specific to your child and family. Keywords: Angelman syndrome, Angelman syndrome diagnosis, rare disease, rare genetic disorder, developmental delays, seizures in children, medical motherhood, caregiver support, parenting a child with disabilities, pediatric neurology, rare diagnosis, art therapy, family centered care, child life specialist, medically complex children, disability advocacy, parent support, pediatric healthcare, Inside the Children's Hospital Podcast | |||
| Doctor Visits, Diagnoses, and Difficult Conversations: A Parent's Guide to Knowing What to Say | 05 août 2026 | 00:58:04 | |
What do you do when your child receives a diagnosis and your mind suddenly goes blank? Whether you're hearing difficult news for the first time or preparing your child for a medical procedure, knowing what to ask—and how to support your child—can feel overwhelming. In this episode of Inside the Children's Hospital, Katie Taylor, Certified Child Life Specialist, is joined by Dr. Mona Amin, board-certified pediatrician, founder of PedsDocTalk, and Chief Medical Officer at Poppins, for an honest conversation about helping families navigate some of the hardest moments in healthcare. Together, they share practical strategies for asking the right questions after a diagnosis, preparing children for medical procedures in developmentally appropriate ways, and supporting both parents and children through fear, uncertainty, and overwhelming emotions. Dr. Mona also shares her own experience as both a pediatrician and the mother of a child who experienced a neonatal stroke, offering a unique perspective from both sides of the hospital bed. Whether your child is facing a new diagnosis, an upcoming surgery, blood work, vaccinations, or ongoing medical care, this episode will leave you feeling more prepared, informed, and empowered. In This Episode:00:00 – Why difficult medical conversations can leave parents feeling overwhelmed
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Medical information shared in this episode is not a substitute for professional medical advice. Please consult your care team for guidance specific to your child and family. Keywords: child medical diagnosis, pediatric diagnosis, child life specialist, Dr. Mona Amin, PedsDocTalk, preparing kids for medical procedures, talking to kids about illness, helping children cope with illness, questions to ask after a diagnosis, child receives a diagnosis, pediatrician advice, preparing kids for blood draws, preparing kids for vaccines, hospital anxiety in children, pediatric healthcare, family-centered care, medical parenting, supporting children through healthcare, pediatric patient education, parenting a medically complex child | |||
| Prader-Willi Syndrome: Why Caregiving Moms Need Community and Support | 29 juil. 2026 | 00:33:53 | |
When your child receives a diagnosis, everything changes. In this heartfelt episode, Katie Taylor welcomes back Jessica Patay, founder of We Are Brave Together, to discuss the emotional realities of caregiving, raising a son with Prader-Willi syndrome and autism, and why supporting the mental health of caregiving moms is essential. Jessica shares how a mentor mom transformed her own journey after her son's diagnosis and how that experience inspired her to create We Are Brave Together, a thriving community supporting thousands of caregiving mothers worldwide. She also introduces her newest book, Suddenly Brave Together, a collection of letters written by experienced caregiving moms to families navigating a new diagnosis. Together, Katie and Jessica explore the importance of community, finding hope through shared experiences, navigating the transition into adult healthcare, and why caregivers deserve just as much support as the children they care for. Whether you're parenting a child with a rare disease, disability, medical complexity, neurodivergence, or chronic illness, this conversation is a reminder that you never have to walk this journey alone. In This Episode:1:58 – Meet Jessica Patay and her family's journey with Prader-Willi syndrome • We Are Brave Together: https://www.wearebravetogether.org Connect with Us
Medical information shared in this episode is not a substitute for professional medical advice. Please consult your care team for guidance specific to your child and family. Prader-Willi syndrome, We Are Brave Together, caregiver mental health, caregiving moms, special needs parenting, medically complex children, rare disease parenting, autism parenting, caregiver support, parent support community, new diagnosis support, disability parenting, family caregiving, pediatric to adult healthcare transition, Connection Circles, caregiver burnout, parenting after diagnosis, medically complex parenting, Jessica Patay, caregiving community
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| How Child Life Specialists Help Children Thrive During Hospital Stays | 22 juil. 2026 | 00:29:21 | |
What does it take to help children thrive during a hospital stay? In this episode of Inside the Children's Hospital Podcast, Katie Taylor sits down with Alyssa Sachs, CCLS, an inpatient Child Life Specialist at Boston Children's Hospital, to explore how Child Life Specialists help children and families experience joy, connection, and normalcy—even during long and complex hospital stays. Alyssa shares what it's like supporting children on the inpatient neuroscience floor, where patients range from newborns to young adults with epilepsy, neuro-oncology diagnoses, neurosurgical needs, and more. She offers an inside look at the innovative programs that make Boston Children's unique, including gaming and technology specialists, hospital clowns, music therapy, artists-in-residence, facility dogs, and therapeutic events that transform the hospital experience. Throughout the conversation, Alyssa reminds us that it's often the smallest moments, like a surprise snow cone, a movie night on the rooftop, or decorating a hospital room, that leave the biggest impact on children and caregivers alike. Whether you're a parent navigating a hospitalization, a healthcare professional, or simply curious about how Child Life Specialists support patients in pediatric hospitals, this episode is a heartfelt reminder that childhood doesn't have to stop because of illness. In This Episode, We Discuss:
00:00 Meet Alyssa Sachs, CCLS at Boston Children's Hospital Resources Mentioned
Connect with Us
Medical information shared in this episode is not a substitute for professional medical advice. Please consult your care team for guidance specific to your child and family. Keywords: child life specialist, pediatric neurology, neuro child life, pediatric epilepsy, seizures in children, MRI preparation, EEG preparation, pediatric neurosurgery, medical play, hospital coping skills, pediatric healthcare, family centered care, neurological conditions, brain disorders, hospital anxiety, medical anxiety, coping skills for kids, medically complex children, parent support, children's hospital, child life, epilepsy support, pediatric podcast, Inside the Children's Hospital Podcast, Alyssa Sachs | |||
| ADNP Syndrome: A Child Life Specialist's Journey to Diagnosis, Advocacy & Hope | 15 juil. 2026 | 00:39:30 | |
When Caitlin noticed that her daughter, Kennedy, wasn't meeting developmental milestones, she trusted her instincts—even when others reassured her that everything was fine. As both a former Child Life Specialist and mom of a child with ADNP syndrome, Caitlin shares her family's journey from early concerns and endless appointments to receiving a diagnosis for a condition so rare that only about 500 cases have been identified worldwide. In this conversation, Caitlin opens up about navigating uncertainty, advocating for her daughter in healthcare settings, finding support through rare disease communities, and balancing the joy and grief that often coexist when parenting a child with complex medical needs. Whether you're a parent searching for answers, raising a child with a diagnosis, or supporting families through difficult seasons, Caitlin's story is filled with practical wisdom, encouragement, and hope. In this episode, you'll learn: Timestamps: 00:00 – Introduction
Resources Mentioned: Connect with Us
Medical information shared in this episode is not a substitute for professional medical advice. Please consult your care team for guidance specific to your child and family.
Keywords: ADNP syndrome, ADNP Syndrome diagnosis, rare disease, rare genetic disorder, rare disease awareness, developmental delays, child development, developmental milestones, autism, autism spectrum disorder, hypotonia, genetic testing, pediatric neurology, medical parenting, parenting a medically complex child, special needs parenting, child life specialist, child life, patient advocacy, parent advocacy, healthcare advocacy, medical procedures, hospital coping, pediatric healthcare, VCUG, medical trauma, parenting after diagnosis, genetic counseling, early intervention, physical therapy, rare disease community, disability inclusion, family support, caregiver support, chronic illness parenting, special needs family, navigating a rare diagnosis, trusting your instincts, medical journey, pediatric diagnosis | |||
| Growing Up with Chronic Intestinal Pseudo-Obstruction | 08 juil. 2026 | 01:03:27 | |
For many families navigating chronic illness, it's hard to imagine what the future might look like for their child. This week on Inside the Children's Hospital, Katie Taylor sits down with Vincent Rosche, a patient advocate, fitness enthusiast, and survivor who has spent most of his life navigating complex medical challenges. Diagnosed with chronic intestinal pseudo-obstruction (CIPO) at just 9 months old, Vincent grew up with feeding tubes, central lines, frequent hospitalizations, and even battled thyroid cancer as a teenager. Today, Vincent works as the Community Engagement Coordinator for the Oley Foundation, connecting patients and families receiving home nutrition support with resources, education, and peer support. In this inspiring conversation, Vincent shares: • His earliest memories of growing up in the hospital ⏰ Timestamps 00:00 Introduction Vincent offers a powerful message to parents who are in the thick of it right now: you're doing better than you think, and your child remembers your love more than your mistakes. Whether you're a parent, caregiver, healthcare professional, or someone living with a chronic condition, this conversation is filled with hope, perspective, and practical wisdom. Learn more about the Oley Foundation at https://oley.org Connect with Vincent: Connect with us!
Medical information shared in this episode is not a substitute for professional medical advice. Please consult your care team for guidance specific to your child and family.
Chronic Illness, Rare Disease, Patient Advocacy, Medical Parenting, Pediatric Healthcare, Feeding Tube, TPN, Chronic Intestinal Pseudo-Obstruction, Child Life Specialist, Resilience
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| Supporting Children Through Burn Injuries | 01 juil. 2026 | 00:34:20 | |
Has your child been burned? Whether it was hot water, ramen noodles, a stove, fireworks, or another accident, this episode guides parents through what to do next. In this episode, Katie sits down with Christella Almonacy, Certified Child Life Specialist at Wellstar's Burn Program, to discuss what families can expect after a child experiences a burn injury. Together, they explore the physical and emotional recovery process, how Child Life Specialists help children cope with painful procedures, and why giving kids choices can make all the difference. Christella also shares common causes of pediatric burns, practical prevention tips, and resources that help children and siblings navigate life after a burn injury. Whether you're a parent, caregiver, or pediatric healthcare professional, this episode offers reassurance, education, and hope. Key Takeaways
Timestamps 2:59 Christella's path to Child Life 3:30 Supporting families after a burn injury 5:58 What children experience after a serious burn 7:28 Preparing kids for procedures and surgery 9:15 Giving children choices during treatment 12:30 What to expect in a burn clinic 17:10 Meet the burn care team 18:50 Burn prevention tips every family should know 22:08 The burn recovery journey 25:50 Returning to school after a burn 27:15 Supporting siblings through trauma 29:20 A powerful patient story Resources Mentioned Connect with Us
Pediatric burns, burn prevention, child life specialist, burn recovery, pediatric burn care, burn clinic, childhood injuries, coping with hospitalization, emotional recovery after burns, parenting after a burn injury.
Medical information shared in this episode is not a substitute for professional medical advice. Please consult your care team for guidance specific to your child and family.
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| What a NICU Nurse Wants Parents to Know | 24 juin 2026 | 00:32:54 | |
What is it really like to have a baby in the NICU? Katie Taylor sits down with NICU nurse, educator, and content creator Alyssa Saldivar (@alyssathenurse) to discuss how families can find confidence, connection, and support during one of the most challenging experiences of parenthood. Alyssa shares her journey of becoming a nurse during the COVID-19 pandemic, her passion for supporting both families and fellow nurses, and the practical ways parents can become active participants in their baby's care. Together, Katie and Alyssa explore everything from skin-to-skin care and developmental support to advocacy, bonding, and life after NICU discharge. Whether you're currently navigating a NICU stay, preparing for a high-risk delivery, or reflecting on a NICU experience from years ago, this conversation offers encouragement, validation, and actionable guidance. In This Episode, We Discuss:
00:00 Meet Alyssa Saldivar and her journey into NICU nursing 02:15 Starting a nursing career during the COVID-19 pandemic 03:40 Building confidence as a NICU nurse and educator 05:30 How becoming a parent changed Alyssa's approach to family-centered care 06:20 Caring for extremely premature babies and empowering parents 06:50 The importance of skin-to-skin care in the NICU 07:45 Why first diaper changes matter for parent confidence 08:30 Supporting parents who can't be at the bedside every day 09:20 Scent cloths, breast milk, and maintaining connection 10:10 Creating a family-centered environment in the NICU 11:20 How parents can advocate for their baby's needs 13:15 Parent involvement during painful procedures and treatments 15:15 Helping babies recover and regulate after procedures 16:00 Developmentally appropriate ways to comfort premature babies 18:00 Alyssa's mission to support NICU families beyond the bedside 20:00 Processing NICU experiences years after discharge 21:00 Supporting NICU dads during moments of uncertainty 22:10 When bonding doesn't happen immediately 24:15 Child life specialists, social workers, chaplains, and other support resources 25:15 Filling the gap between NICU discharge and follow-up care 26:30 What Alyssa hopes families take away from her content 27:45 Final encouragement for NICU families Connect with AlyssaConnect with Us
Medical information shared in this episode is not a substitute for professional medical advice. Please consult your care team for guidance specific to your child and family. Keywords: NICU Nurse, Neonatology, Family Centered Care, NICU Support | |||
| Recognizing Infantile Spasms: Navigating a Diagnosis as a Nurse Practitioner | 17 juin 2026 | 00:40:01 | |
What happens when a pediatric nurse practitioner suddenly finds herself on the other side of diagnosis? On this week's episode of Inside the Children's Hospital, Katie Taylor sits down with Laura Forcella, a developmental pediatric nurse practitioner and mom to a son with Dup15q syndrome and epilepsy. Laura shares the deeply personal journey of recognizing her son's infantile spasms, navigating a rare disease diagnosis, and balancing life as both a medical professional and a caregiver. Laura opens up about the unique challenges of being a "med mom," the emotional shift from provider to parent, and how her experiences have transformed the way she supports families in her own clinical practice. Together, Katie and Laura discuss the power of parental intuition, the importance of early intervention, building a village of support, and finding moments of joy amidst the complexities of caregiving. Whether you're a parent navigating a diagnosis, a healthcare professional supporting families, or someone looking for encouragement on a difficult journey, this conversation is filled with compassion, wisdom, and hope. In This Episode, You'll Learn:
Connect with Laura: Connect with us!
Medical information shared in this episode is not a substitute for professional medical advice. Please consult your care team for guidance specific to your child and family.
Keywords: Infantile Spasms, Dupq15, Nurse Practitioner, Developmental Pediatrics, Seizures, Child Life Specialist, Support | |||
| What Happens When Your Child Needs an Ambulance, Helicopter, or Medical Transport? | 10 juin 2026 | 00:32:53 | |
When a child needs emergency transport to a children's hospital, families are often facing one of the hardest moments of their lives. Behind every ambulance ride, helicopter flight, or plane transfer is a highly trained team working together to keep children safe, while also supporting parents through the unknown. In this episode of Inside the Children's Hospital, Katie Taylor sits down with Kami Stone, Assistant Clinical Director at Texas Children's Hospital Austin, and Jacob, a transport EMT with the Texas Children's Kangaroo Crew, to talk about what pediatric transport really looks like behind the scenes. Together, they share:
Jacob also shares his personal story of being treated at Texas Children's as a child after being diagnosed with Type 1 diabetes — and how that experience inspired him to dedicate his career to pediatric transport care. This conversation offers a rare look into the people and systems families depend on during medical emergencies, while reminding parents that they are never alone during the journey. About Our Guests Kami Stone, MSN, RN, NE-BCKami Stone is the Assistant Clinical Director overseeing the Emergency Center, trauma program, and transport team at Texas Children's Hospital in Austin, Texas. With a background in emergency nursing and healthcare leadership, Kami is passionate about building systems that improve both patient outcomes and family experiences during transport care. Jacob Willets Martinez, EMTJacob is a pediatric transport EMT with the Texas Children's Kangaroo Crew. After receiving care at Texas Children's as a teenager following his Type 1 diabetes diagnosis, he knew he wanted to one day work for the organization that supported his family during such a difficult time. Resources & Links
If this episode encouraged you, please subscribe, leave a review, and share it with another parent or healthcare professional who may benefit from hearing these stories.
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| When the Hospital Stay Ends: Understanding Pediatric Medical Traumatic Stress | 03 juin 2026 | 00:39:53 | |
For many families, going home from the hospital feels like the finish line. But what happens when the emotional impact of a medical experience lingers long after discharge? On this episode of Inside the Children's Hospital, Katie Taylor sits down with Jen Aspengren, founder of Alongside Network, to discuss pediatric medical traumatic stress (PMTS), a common yet often overlooked experience that affects children, parents, siblings, and caregivers following serious medical events. Jen shares her family's journey after her infant son underwent life-saving airway surgery at just seven months old. While his physical recovery went well, the emotional effects lasted for years, leading Jen to discover a significant gap in support for families navigating life after hospitalization. Together, Katie and Jen explore:
Jen also shares practical insights for healthcare professionals, highlighting how simple actions—such as a follow-up phone call or a few moments of acknowledgment—can make a lasting difference for families facing difficult diagnoses and hospitalizations. This conversation is a powerful reminder that healing doesn't end when a child leaves the hospital. Supporting the emotional well-being of children, parents, and caregivers is an essential part of recovery. About Our Guest Jen AspengrenJen Aspengren is the founder of Alongside Network, a nonprofit organization dedicated to helping families and healthcare providers address pediatric medical traumatic stress. Prior to founding Alongside, Jen spent over 20 years working in systems-change initiatives and supporting social entrepreneurs around the world. Today, she combines her professional expertise with her lived experience as a healthcare parent to improve support systems for families navigating medical challenges. About Alongside NetworkAlongside Network works to ensure that families affected by pediatric illness, injury, and hospitalization have access to the emotional support they need during and after medical experiences. One of their core offerings is a free six-week virtual well-being program for parents and caregivers based on the evidence-based Take a Breath curriculum developed at the Royal Children's Hospital in Melbourne, Australia. The program focuses on:
Medical information shared in this episode is not a substitute for professional medical advice. Please consult your care team for guidance specific to your child and family. Pediatric Medical Traumatic Stress, Medical Trauma, Medical Parenting, Child Life Specialist, Family-Centered Care, Pediatric Mental Health, Caregiver Support, Pediatric Hospitalization, Trauma-Informed Care, Family Resilience | |||
| From Pharmacist to Mom: Navigating Type 1 Diabetes and Celiac Disease | 27 mai 2026 | 00:40:48 | |
What happens when the healthcare professional becomes the parent sitting on the other side of the diagnosis? In this episode, Katie Taylor sits down with Melissa Apa—a clinical pharmacist, diabetes educator, and mom—to share her family's journey navigating both celiac disease and type 1 diabetes with her young son. Melissa opens up about the emotional overwhelm of receiving life-changing diagnoses, even with years of medical expertise behind her, and how her family learned to adapt, advocate, and find stability in the chaos. From replacing every pot and pan in her kitchen overnight to teaching her six-year-old how to manage his insulin pump, Melissa shares the realities of parenting a child with chronic illness while balancing work, marriage, caregiving, and the emotional toll of always being "on." Together, Katie and Melissa explore the invisible mental load medical parents carry, the importance of empowering kids to advocate for themselves, and why support systems matter just as much as medical education. This conversation is honest, practical, and deeply hopeful for any parent navigating a chronic diagnosis with their child. What You'll Hear in This Episode:
Key Takeaways:
About Our Guest: Resources & Links:
Medical information shared in this episode is not a substitute for professional medical advice. Please consult your care team for guidance specific to your child and family. Keywords:
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| A NICU Dad Story: Life After a 25 Week Premature Birth | 20 mai 2026 | 00:49:52 | |
"I kept telling her, 'We've got this.' And inside, I had no clue what was coming next." What does it look like to be "the strong one" when your world is falling apart? In this episode, Katie Taylor sits down with Jared Muscat—dad, surfer, and self-proclaimed "dad-vocate"—to share his family's unexpected journey into the NICU after a high-risk pregnancy. From a routine 20-week appointment to welcoming his son Ollie at just 25 weeks, Jared opens up about fear, resilience, and what it means to show up as a partner and father in crisis. He shares the emotional weight of protecting his family while processing his own grief, the importance of finding support, and how small rituals—like late-night NICU visits and lullabies—helped him bond with his son. This is an honest, heartfelt conversation about fatherhood, vulnerability, and the strength it takes to keep going when nothing feels certain. What You'll Hear in This Episode:
Key Takeaways:
Jared Muscat is a father of two, a marketing agency owner, and a passionate advocate for NICU dads. Through his own experience, he now supports other families navigating complex medical journeys. Resources to Support NICU Families
Medical information provided is not a substitute for professional advice—please consult your care team. Keywords: NICU dad, NICU father support, NICU dad mental health, premature baby dad, NICU parenting for dads, NICU dad podcast, NICU journey dad, father of preemie, NICU support for fathers, dad in the NICU
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| Tay-Sachs Disease: A Father's Story of Diagnosis, Parenting, and Purpose | 13 mai 2026 | 00:51:54 | |
In this episode of Inside the Children's Hospital, Katie Taylor sits down with Dr. Matt Goldstein—physician, biotech leader, and father—who shares the story of his daughter, Havi, and her diagnosis with Tay-Sachs disease. Despite both parents undergoing genetic screening before starting their family, a testing error led to a missed diagnosis. Javi appeared to develop typically at first, but over time, subtle changes led to a life-altering realization: she had a rare, fatal neurodegenerative condition. As a physician, Matt was trained to solve problems. As a parent, he was driven to protect his child. But in the face of a disease with no cure, he and his wife had to redefine what "doing everything" truly meant. From navigating complex medical decisions to choosing presence over intervention, Matt shares how their family embraced a different path—one centered on love, connection, and living fully in the time they had. This conversation is a powerful reflection on grief, meaning, and the transformative impact of parenthood. You'll hear:
What You'll Learn in This Episode:
Resources Mentioned
Connect with Us
Medical information provided is not a substitute for professional advice—please consult your care team.
Keywords: Tay-Sachs disease, Tay-Sachs awareness, rare disease podcast, pediatric rare disease, genetic disorder, infant Tay-Sachs, neurodegenerative disease, parenting a medically complex child, caregiver support, special needs parenting, navigating rare disease, pediatric neurology, genetic testing, childhood illness, family medical journey, emotional support for families, healthcare podcast, Child Life On Call Podcast, family resilience, living with Tay-Sachs | |||
| Why Hospital Continuity and Staff Support Are Critical: Parents Speak Out | 07 mai 2026 | 00:56:12 | |
Supporting Families in Pediatric Healthcare: Insights from Parent Caregivers In this episode, we explore the experiences of parent caregivers navigating their child's complex health journeys, emphasizing the importance of advocacy, sharing stories, and hospital-family collaboration. Join us as these incredible parents discuss how they advocate for their children, the role of social media in building community, and what hospital leadership can do to improve family-centered care.Key topics covered:
Timestamps: 00:46 - Introduction to the episode and guest caregivers' perspectives 01:47 - The role of social media in sharing real-time hospital experiences 05:56 - Reasons behind sharing stories online and the community that forms 09:15 - How sharing supports advocacy and awareness efforts 13:08 - Balancing transparency and privacy when sharing health updates 15:15 - Evolving sharing practices as children grow older 18:57 - Privacy considerations for children with medical needs 21:42 - What hospital staff and leadership can do to improve family experiences 24:22 - The importance of continuity of care and staff retention 28:43 - Overcoming barriers to speaking up at the bedside 33:08 - Building trust and advocacy in healthcare teams 38:32 - Supporting parental mental health and caregiver well-being 44:03 - Strategies for effective parent-physician communication 49:38 - Parent-led initiatives and resources to empower families 51:45 - Current projects and ways to connect with the speakers 55:12 - Closing remarks and gratitudeResources & Links: Connect with the Guests: This episode highlights how sharing personal journeys fosters community, advocacy, and system improvements—empowering families to be active participants in healthcare.
The Inside the Children's Hospital podcast is for informational and educational purposes only. The content shared in each episode, including stories, discussions, and interviews, is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay seeking it because of something you heard on this podcast. The views and opinions expressed by guests on the Child Life On Call Podcast are their own and do not necessarily reflect those of Child Life On Call. Child Life On Call does not endorse any specific medical treatments, procedures, or opinions shared in the podcast. If you or your child are experiencing a medical emergency, call 911 or seek immediate medical attention. By listening to this podcast, you acknowledge that Child Life On Call and its affiliates are not responsible for any decisions made based on the information provided.
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| Trisomy 13: Challenging the Narrative and Choosing Hope | 06 mai 2026 | 00:59:45 | |
What happens when a diagnosis labeled "lethal" doesn't tell the full story? In this episode of Inside the Children's Hospital, Katie Taylor sits down with Nicole, a mom of five, who shares her daughter Charlotte's journey with Trisomy 13—a diagnosis often associated with limited survival and quality of life. After receiving devastating news over the phone while at work, Nicole and her husband were told their daughter likely wouldn't survive. But instead of accepting that narrative, they sought out information, second opinions, and a care team willing to partner with them. From navigating medical bias and a complicated NICU stay to bringing Charlotte home without nursing support, Nicole shares what it really looks like to parent a medically complex child—and the joy that exists alongside the challenges. This conversation highlights the importance of advocacy, informed decision-making, and viewing each child as an individual—not just a diagnosis. You'll hear:
This is a story of advocacy, resilience, and redefining what's possible What You'll Learn in This Episode
A diagnosis does not define a child's life—and when families are given the space, support, and information to make informed decisions, they can create a path filled with joy, connection, and meaning. Resources Mentioned SOFT (Support Organization for Trisomy 13, 18, and Related Disorders)Emersynn Isla Shining Star Foundation Trisomy 13 & 18 Parent Support Groups (Facebook communities) Understanding Trisomy 13 AAP Article: Guidance for Caring for Infants and Children with Trisomy 13 This episode is a powerful reminder that behind every diagnosis is a child, a family, and a story that deserves to be fully seen and understood.
Connect with Us
The medical information provided is not a substitute for professional advice; please consult your healthcare team. Trisomy 13, Patau syndrome, Trisomy 13 prognosis, Trisomy 13 life expectancy, Trisomy 13 baby thriving, Trisomy 13 and 18 support, SOFT organization Trisomy, NIPT high risk results, amniocentesis Trisomy 13, medical advocacy NICU, DNR without consent NICU, hospital transfer NICU, medically complex child at home, trach and ventilator at home baby, pediatric rare diagnosis, child life specialist NICU siblings, NICU sibling visits, postpartum depression NICU, Trisomy 13 quality of life, rare chromosome disorder support, AAP Trisomy 13 standards of care | |||
| NICU, Trach and Home Care: One Family's Journey to Stability | 29 avr. 2026 | 00:50:41 | |
What does it look like when life changes in an instant—and a family learns to navigate the unimaginable? In this episode of Inside the Children's Hospital, Katie Taylor sits down with Marah, a mom of four, who shares her daughter Abigail's journey after a cardiac arrest at just nine days old. What began as a healthy twin pregnancy quickly shifted into a complex medical path involving a NICU stay, life support, and long-term care needs. As Marah and her husband entered the world of medical parenting, they faced fear, uncertainty, and overwhelming decisions. Through it all, they leaned on their care team, family support, and each other—learning how to advocate, adapt, and ultimately find moments of joy within the journey. This conversation highlights the realities of raising a medically complex child, the power of community, and how resilience is built over time. You'll hear:
This is a story of advocacy, growth, and finding strength in the most unexpected places. What You'll Learn in This Episode
This episode is sponsored by Gebauer PainEase®. We extend our sincere gratitude to Gebauer PainEase® for supporting this episode. To learn more about this product, visit their website. Key TakeawaysEven in the most overwhelming moments, support, advocacy, and connection can carry families forward—and help transform crisis into a new kind of strength.
Connect with Marah Instagram: In Good Complexity Resources MentionedEmergency Preparedness for Families Trach & G-Tube Care Resources Building Community & Support Trach Support Mom's of Trach Babies https://www.facebook.com/groups/momsoftrachbabies/ Connect with Us
Medical information provided is not a substitute for professional advice—please consult your care team. Pediatric Health, Medical Parenting, NICU Journey, Infant Cardiac Arrest, Medically Complex Child, Children's Hospital, Pediatric Critical Care, Family-Centered Care, Patient Advocacy, Tracheostomy, G-Tube Feeding, Epilepsy in Children, Special Needs Parenting, Caregiver Support, Resilience | |||
| Meningitis in Children: When a Mother's Instinct Led to Life-Saving Answers | 22 avr. 2026 | 00:51:25 | |
What happens when your child seems sick, but everything keeps coming back normal? For a lot of parents, the scariest part isn't the diagnosis. It's the not knowing. It's being told everything looks fine when your gut is telling you something is off. This week, Katie sits down with Kayleigh, a medical assistant and mom of three, to share the story of her daughter Kanessa. Almost a year after a freak eye injury that seemed to heal, Kanessa suddenly got sick. At first, it looked like a simple virus. But within days, things escalated fast. Kaylee shares what it was like trying to make sense of symptoms that didn't quite add up. Normal test results. A child who seemed okay one minute and not the next. And that moment when everything changed with one scan. From there, their world shifted quickly. A brain bleed. A diagnosis of bacterial meningitis. Emergency surgery. A 40-day hospital stay. Kaylee talks about what it took to keep going through all of it, while also caring for a newborn and being away from her other child. She also shares how she supported Kanessa through it all. Being honest about what was happening. Preparing her for procedures. Letting her ask questions. And leaning on Child Life in a way that made a huge difference for both of them. If you've ever wondered if you're overreacting or if you should push for more answers, this episode will stay with you. Kaylee's story is a reminder to trust yourself and keep advocating. This episode is sponsored by Gebauer PainEase®. We're so grateful for their support. To learn more about this product, visit their website. This is our 300th episode, which feels pretty surreal. We're so grateful you're here. This episode is sponsored by Gebauer PainEase®. We extend our sincere gratitude to Gebauer PainEase® for supporting this episode. To learn more about this product, visit their website. Special Giveaway ☕️ Resources & Ways to Connect Connect with Kaleigh on Instagram Facebook Meningitis Support Group Connect with Us
Medical information provided is not a substitute for professional advice—please consult your care team. Keywords: | |||
| When a Parent Has Cancer: What Kids Understand Before We Say It | 15 avr. 2026 | 00:47:03 | |
What happens when your child already senses something life-changing—before anyone has found the words to say it out loud? When serious illness enters a family, children often understand more than we realize. And for caregivers, the challenge becomes not only navigating medical decisions, but also finding the right way to support their children through it all. This week, Katie sits down with Anna Lonon, founder of the Lonon Foundation, to share her family's story of navigating cancer when her husband Michael was diagnosed with stage three head and neck cancer at just 29 years old. While raising a young son and later welcoming a newborn daughter, Anna faced the unimaginable reality of caregiving, loss, and parenting through profound uncertainty. Anna opens up about what it looked like to balance hospital visits, therapies, and daily life, and the emotional toll of making impossible decisions while trying to hold her family together. She shares powerful moments, including the realization that her young son understood far more about his father's illness than anyone had explained, and how that shaped the way she approached communication in the years that followed. After later facing her own cancer diagnosis, Anna made a different choice—seeking out child life support early to guide honest, developmentally appropriate conversations with her children. Through her experiences, she highlights the importance of listening to children's cues, trusting your instincts as a parent, and creating space for both grief and resilience. If you've ever struggled with how to talk to your child about illness, felt overwhelmed as a caregiver, or wondered how to support your family through uncertainty, this conversation offers validation, insight, and hope. This episode is sponsored by Gebauer PainEase®. We extend our sincere gratitude to Gebauer PainEase® for supporting this episode. To learn more about this product, visit their website. Resources from today's episode:
Medical information provided is not a substitute for professional advice—please consult your care team.
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| Spinal Muscular Atrophy (SMA): A Parent's Journey from First Signs to Diagnosis | 08 avr. 2026 | 00:39:39 | |
What happens when your instincts tell you something is wrong—but you're dismissed again and again? For many parents, the journey to a diagnosis begins with a gut feeling—and the courage to persist in seeking answers. This week, Katie sits down with Nikki McIntosh, author and advocate, to share the story of her son Miles, who was diagnosed with spinal muscular atrophy (SMA) at just 18 months old. After noticing delays in his ability to stand and bear weight, Nikki followed her instincts despite initial dismissal—ultimately leading to a life-changing diagnosis. Nikki shares what those early days looked like—from navigating testing and procedures to receiving the diagnosis that changed everything. She opens up about the grief, fear, and urgency that followed, and how she quickly stepped into the role of advocate, building a care team and learning how to navigate complex medical systems in real time.. If you've ever questioned your instincts or felt lost navigating a diagnosis, this conversation offers validation, practical guidance, and hope. This episode is sponsored by Gebauer PainEase®. We extend our sincere gratitude to Gebauer PainEase® for supporting this episode. To learn more about this product, visit their website. Resources & Ways to Connect
Helpful Resources Mentioned Connect with Us
Medical information provided is not a substitute for professional advice—please consult your care team. Keywords:
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| HIE at Birth: A Dad's Story of Brain Injury, NICU Trauma, and Finding Purpose | 01 avr. 2026 | 00:41:18 | |
Within minutes of arriving at the hospital, Brady and his wife were told their newborn daughter had suffered a severe brain injury. In this episode of Inside the Children's Hospital, Katie sits down with Brady Crandall, founder of Youth Crews, to share his family's journey following a diagnosis of hypoxic ischemic encephalopathy (HIE). What began as a routine pregnancy quickly turned into an emergency delivery, NICU stay, and a new reality as parents of a medically complex child. Brady opens up about:
Through this experience, Brady recognized a gap many families face: a lack of dignified, age-appropriate products for children with disabilities. That realization led to the creation of Youth Crews—a brand focused on comfort, dignity, and rethinking what medical products can look like for kids. If you've ever found yourself wishing something existed to better support your child—or felt the pull to create change—this episode will leave you feeling seen, understood, and inspired. This episode is sponsored by Gebauer PainEase®We extend our sincere gratitude to Gebauer PainEase® for supporting this episode. To learn more about this product, visit their website. Resources & Ways to Connect
Mentioned in This Episode Connect with us!
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| Preparing Your Child for Surgery: A Pediatric ENT Surgeon's Honest Advice | 25 mars 2026 | 00:44:53 | |
How do you prepare a child for surgery and build trust with their medical team? This episode explores how families and healthcare providers can work together to support children through procedures like tonsillectomy and other medical challenges. This week's guest, Dr. Tali Lando, shares her perspective as a pediatric ENT surgeon, author, and mom of three teenage daughters. She and Katie discuss what it's really like for families navigating medical care with complex kids and how parents can advocate effectively while still building strong partnerships with their child's care team. If you've ever wondered how to build trust with your child's doctor, prepare your child for surgery, or understand the perspective of the people caring for your child, this episode offers meaningful insight and reassurance. Dr. Lando's message is clear: the best outcomes happen when families and providers work together as partners. We extend our sincere gratitude to our sponsor for this episode, Gebauer PainEase®. We are pleased to provide more information about this product, and we invite you to learn more by visiting their website. Resources & Ways to Connect: Book: Breathless: Surgical Tales from the Brink and Back By Dr. Tali Lando Connect with us!
Medical information provided is not a substitute for professional advice—please consult your care team. Keywords: pediatric ENT surgeon, tonsillectomy preparation for kids, preparing children for surgery, pediatric airway specialist, parenting medically complex children, doctor-patient partnership, advocating for your child in healthcare, pediatric surgery preparation, airway disorders in children, Breathless Dr. Tali Lando, medical memoir pediatric surgeon, supporting families in pediatric healthcare
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| Life After Pediatric Kidney Transplant: A Mom's Journey Through Dialysis, Surgery, and Recovery | 18 mars 2026 | 00:41:25 | |
What does life really look like after a child receives a kidney transplant? Many people think transplant is the end of the journey—but for families, it's often just the beginning. This week's guest, Lyndsey Fedorko, returns to the podcast to share the next chapter of her son James's medical journey—life after a kidney transplant. After years of dialysis, hospitalizations, and uncertainty, James received a life-saving kidney transplant from his aunt, marking the beginning of a new season for their family. Lyndsey and Katie reflect on the intense months surrounding transplant surgery, including relocating their family to Houston, navigating the transplant workup process, and the emotional weight of waiting while two surgeries—donor and recipient—happened at the same time. Lyndsey shares what recovery really looked like, from the long hospital stay caused by a rare complication to the daily routines required to protect James's new kidney. Lyndsey shares openly about the ongoing care James still needs, including medications, monitoring for rejection, therapies, and the unexpected challenges that came after transplant—including a rejection episode that required intensive treatments. If you've ever wondered what life after pediatric transplant truly looks like, this conversation offers an honest and hopeful look at resilience, advocacy, and the power of family support. We extend our sincere gratitude to our sponsor for this episode, Gebauer PainEase®. We are pleased to provide more information about this product, and we invite you to learn more by visiting their website. Resources & Ways to Connect: Children's Transplant Initiative IROC (Improving Renal Outcomes Collaborative)- Support and Educational Resources for families navigating pediatirc Kidney Transplants Connect with us!
Medical information provided is not a substitute for professional advice—please consult your care team. Keywords: pediatric kidney transplant, life after transplant child, dialysis in children, kidney disease in kids, transplant rejection treatment, pediatric transplant recovery, living donor kidney transplant, children's transplant initiative housing, transplant parent story, caring for medically complex child, pediatric kidney failure journey, transplant family support, child life coping tools, parenting through pediatric illness. | |||
| Healing After the NICU: Processing Trauma, Loss, and Your Family's Story | 11 mars 2026 | 00:39:02 | |
This week's guests, perinatal mental health therapists Emily Souder and Mahaley Patel, share the story behind their book Your NICU Story: Reflecting on Your Family's Experience—a guided journal created to help families process the emotional impact of a NICU stay. Mahaley also opens up about her daughter, Sachi, who died after a NICU stay, and how storytelling and narrative healing became a lifeline in her grief. She and Emily talk with Katie about why so many NICU parents carry trauma long after discharge and how writing your story can help families reconnect with what they experienced. They also discuss the emotional weight of making medical decisions during a NICU stay, the importance of compassionate healthcare providers, and why healing sometimes begins months or even years later. If you've ever struggled to process a NICU experience—or wondered how to revisit it in a way that feels safe and meaningful—this conversation offers powerful insight and hope. Emily and Mahaley's biggest message? Your story deserves space, compassion, and time—and reflecting on it can be an important step toward healing. We extend our sincere gratitude to our sponsor for this episode, Gebauer PainEase®. We are pleased to provide more information about this product, and we invite you to learn more by visiting their website. Resources & Ways to Connect: Book: Your NICU Story: Reflecting on Your Family's Experience Emily Souder, LMFT, PMH-C Mahaley Patel, LMFT, PMH-C Connect & Support from Child Life On Call:
Medical information provided is not a substitute for professional advice—please consult your care team.
Keywords: NICU trauma, healing after NICU, NICU parent mental health, NICU journaling prompts, birth trauma support, NICU loss support, perinatal mental health therapist, processing NICU experience, life after NICU discharge, NICU storytelling, guided journal for NICU parents, neonatal intensive care support, grief after NICU, NICU parent resources
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| Trust, Grief, and Loving Your Child Through Big Identity Changes | 04 mars 2026 | 00:34:08 | |
What happens when your child shares something that shifts the future you thought you understood?
In this episode of Inside the Children's Hospital, Katie sits down with Kelly Kemp — certified child life specialist of more than 30 years and mom of three — to talk about navigating trust, grief, advocacy, and love after her child was diagnosed with gender dysphoria and came out as transgender.
Kelly shares:
This conversation is not about politics. It is about parenting inside a medical diagnosis. It is about trust. It is about grief that doesn't mean rejection. And it is about the steady, protective love that children need — especially when the world feels loud. Whether your child is navigating a medical diagnosis, identity development, or a season you didn't anticipate, this episode will remind you: Grief and love can coexist. Trust is foundational. And your child still needs you. Resources & Crisis Support:
Connect & Support from Child Life On Call:
Medical information provided is not a substitute for professional advice—please consult your care team.
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| Helping Kids Navigate Physical Differences: Child Life Strategies for Confidence, Curiosity & Resilience | 25 févr. 2026 | 00:31:58 | |
How do you help a child respond when someone asks about a scar, burn, or limb difference? This week's guest, Abby Horton, opens up about her journey as a Child Life Specialist working across ICU, burn, surgical, rehab, and inpatient settings—and how those experiences shaped the way she supports families navigating physical differences. From sudden trauma and accidents to limb differences, burn injuries, surgical scars, and hair loss from chemotherapy, Abby shares how parents can gently empower their children to own their story with confidence. She and Katie discuss simple, age-appropriate scripts that help children respond to questions about their bodies. Abby explains why modeling these conversations early matters, how to give kids space to answer for themselves, and why curiosity from peers is often just that—curiosity, not cruelty. If you've ever wondered how to help your child respond to stares, questions, or comments about a physical difference, this conversation offers practical tools and deep reassurance. Abby's biggest message? You're probably doing better than you think—and it's not about having perfect words, but about helping your child feel loved and supported. Today's Episode is sponsored by Moog Medical. Moog Medical is a trusted leader in infusion and enteral feeding technology, designing reliable, easy-to-use pumps that support safe, precise care for patients with complex medical needs—at home and in healthcare settings. Resources & Ways to Connect: Website: Little Lighthouses Child Life Services Abby offers virtual support for families navigating physical differences, medical transitions, and post-hospital adjustment. Connect & Support from Child Life On Call:
Medical information provided is not a substitute for professional advice—please consult your care team.
Keywords: physical differences in children, limb difference support, burn survivor child, surgical scars in kids, hair loss from chemotherapy, child life specialist, five cent story, five dollar story, resilience in children, bullying vs curiosity, parenting medically complex child, body confidence in kids, hospital to home transition, psychosocial support for families, sibling advocacy, Little Lighthouses Child Life | |||
| Micro Preemie at 25 Weeks: A NICU Mom's Journey | 18 févr. 2026 | 00:43:09 | |
This week's guest opens up about the shock of an emergency C-section at 25 weeks and 3 days, the fear of entering the NICU for the first time, and the powerful role Child Life Specialists played in supporting not only Vincent, but their entire family, including his older brother. She reflects on what helped her cope during long NICU days, how she advocated for herself using her healthcare background, and what she wishes she had known about the "medically complex" label sooner. This episode explores sibling bonding in the NICU, the impact of a truly integrated care team, the importance of addressing social determinants of health, and how resilience can grow in the smallest of patients. Anna's story is a beautiful reminder that families may not remember every name—but they will always remember how they were made to feel. Today's Episode is sponsored by Moog Medical. Moog Medical is a trusted leader in infusion and enteral feeding technology, designing reliable, easy-to-use pumps that support safe, precise care for patients with complex medical needs—at home and in healthcare settings. Resources Mentioned Today's Episode: Connect with Anna: Connect & Support from Child Life On Call:
Medical information provided is not a substitute for professional advice—please consult your care team. Keywords: micro preemie, NICU journey, 25 week preemie, medically complex child, chronic lung disease in children, antepartum hospitalization, emergency C-section, sibling support in NICU, child life specialist, Ronald McDonald House, Hand to Hold, March of Dimes, NICU discharge, parenting after the NICU, medical motherhood, resilience in children, premature birth support, Midwest NICU mom | |||
| Tube Feeding Awareness: Lived Experience, Real Talk, and Hope for the Future | 11 févr. 2026 | 00:45:37 | |
When tube feeding enters your life—whether at birth, in childhood, or adulthood—it can feel overwhelming, isolating, and misunderstood. In this special live episode of Inside the Children's Hospital, we center the voices of those with lived experience to explore what tube feeding really looks like beyond the diagnosis and discharge instructions. Host Katie Taylor is joined by parent advocates, a young adult patient, and a pediatric dietitian to share honest, unfiltered perspectives on NG tubes, G-tubes, GJ tubes, and blended feeds. Together, they discuss early fears and misconceptions, navigating medical systems and insurance, advocating for better options, and how tube feeding can ultimately bring relief, stability, and freedom. This conversation highlights the power of community, the importance of being believed, and what compassionate, family-centered support truly looks like—for patients, parents, and professionals alike. Today's Episode is sponsored by Moog Medical. Moog Medical is a trusted leader in infusion and enteral feeding technology, designing reliable, easy-to-use pumps that support safe, precise care for patients with complex medical needs—at home and in healthcare settings.
Resources from today's episode:
Connect with Guests from Today's Episode:
Connect & Support from Child Life On Call:
Keywords: Medical information provided is not a substitute for professional advice—please consult your care team. | |||
| How Camp Supports Healing, Play, and Belonging for Medically Complex Kids | 04 févr. 2026 | 00:41:18 | |
When your child's life is shaped by medical complexity, childhood can quickly become defined by hospital stays, procedures, and limitations. In today's episode, we explore how medically supported camps transform that narrative—creating space for joy, belonging, and healing for children, families, and even healthcare providers themselves. Katie Taylor is joined by Dr. Laura Blaisdell, Chief Medical Officer of SeriousFun Children's Network, and Jamie Gentille, Child Life Specialist Leader and former camper, to share the life-changing impact of camp for children with serious illnesses. From zip-lining with oxygen tubing to late-night cabin chats that build confidence and identity, this conversation highlights how thoughtfully designed camp experiences allow kids to be kids—without compromising medical safety. This episode explores the power of positive childhood experiences, how camps seamlessly integrate complex medical care behind the scenes, the role of child life specialists and medical volunteers in creating safe spaces for play, and why camp is just as healing for providers as it is for children. You'll also hear Jamie's personal journey from camper to child life specialist and why camp will always feel like home. Explore Child Life On Call's directory of medical and disability-friendly summer camps for kids! This resource helps families find inclusive summer camp options that support children with medical needs and disabilities, making it easier to plan fun, safe, and engaging summer experiences. Today's Episode is sponsored by Moog Medical. Moog Medical is a trusted leader in infusion and enteral feeding technology, designing reliable, easy-to-use pumps that support safe, precise care for patients with complex medical needs—at home and in healthcare settings. Resources from today's episode: Medical & Camp Support: Connect & Support from Child Life On Call
Medical information provided is not a substitute for professional advice—please consult your care team
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| Rare Lung Disease, Epilepsy and the Diagnostic Journey | 28 janv. 2026 | 00:49:28 | |
When your child survives one medical emergency only to face another, parenting becomes a constant act of advocacy and courage. Today's guest joins us to share her daughter's journey with rare and complex medical conditions, from early respiratory failure and unexplained hospitalizations to epilepsy, lung disease, and life with medical uncertainty. As a military spouse navigating deployments, Brittany shares what it means to walk this path largely alone, trust her instincts as a mother, and fight to be believed by medical professionals. This episode explores navigating rare disease without clear answers, the life-changing impact of compassionate child life support, supporting siblings through medical trauma, and how rituals, play, and community help families find hope and meaning in the midst of chaos. Download our free Children's Hospital Passport to help empower your child and family during hospital stays. Sponsored in part by HealthWell Foundation—learn how you can help families afford life-saving medications at healthwellfoundation.org.
Resources from today's episode: Medical Support: Nonprofit & Community Support:
Connect with Brittany Follow Brittany's journey as she shares life as a medical mom, military spouse, and advocate. Connect & Support from Child Life On Call
Keywords: Medical information provided is not a substitute for professional advice—please consult your care team
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| Severe Hemophilia: A Newborn, A Brain Bleed, and PICU Experience | 21 janv. 2026 | 00:33:42 | |
When your newborn is healthy one moment and rushed to the PICU the next, life can change in an instant. Today's guest joins us to share her son's journey with severe hemophilia—from unexpected bleeding after a routine circumcision to a spontaneous brain bleed, emergency surgery, and a months-long PICU stay. This episode explores being thrust into medical motherhood, learning to advocate under unimaginable stress, and how community, child life, and modern medicine help families navigate life with a complex diagnosis. Download our free Children's Hospital Passport to help empower your child and family during hospital stays. Sponsored in part by HealthWell Foundation—learn how you can help families afford life-saving medications at healthwellfoundation.org. Resources
Connect with Sami Connect & Support from Child Life On Call
Keywords: Severe hemophilia, Hemophilia in infants, Newborn hemophilia diagnosis, Infant brain bleed, Pediatric hemophilia, Medical motherhood, PICU parent experience, Emergency brain surgery infant, Rare disease parenting, Bleeding disorders in babies, Hemophilia treatment center, Parent advocate in healthcare, Life after a NICU or PICU stay, Medically complex child, Child life specialist support, Coping with a chronic diagnosis, Parenting after medical trauma, Hemophilia A awareness, Infant seizures medical emergency, Hospital parent support Medical information provided is not a substitute for professional advice—please consult your care team. | |||
| When Insurance Isn't Enough: A Parent's Type 1 Diabetes Story | 14 janv. 2026 | 00:56:46 | |
When your child receives a new medical diagnosis, it can feel like the world shifts beneath your feet. Today's guest joins Katie Taylor to share her daughter's Type 1 Diabetes journey—from dismissing "textbook" symptoms to navigating the financial challenges of families when it comes to chronic illness. This episode explores how one Mom moved from denial to "work mode" and how the HealthWell Foundation helps families afford life-saving medications. Sponsored in part by HealthWell Foundation—learn how you can help families afford life-saving medications at healthwellfoundation.org. Download our free Children's Hospital passport to empower your child to feel comfortable in the children's hospital. Resources
Medical information provided is not a substitute for professional advice—please consult your care team. Keywords: Type 1 Diabetes, T1D diagnosis, HealthWell Foundation, pediatric healthcare, medical financial assistance, insulin costs, child life specialist, diabetes symptoms in kids, middle class healthcare help, medical debt, Dexcom, Omnipod, childhood chronic illness, parenting a diabetic child, Sanford Childrens Hospital, co-pay assistance, pediatric grants, medical parenting, T1D symptoms, diabetes advocate.
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| New Diagnosis: What to Do When Your Child Gets Diagnosed | 07 janv. 2026 | 00:21:10 | |
When your child receives a new medical diagnosis, it can feel like the world shifts beneath your feet. Here's how to move forward with clarity, support and connection, hosted by Katie Taylor and the Inside the Children's Hospital podcast. Listen to more stories at insidethechildrenshospital.com. Medical information provided is not a substitute for professional advice—please consult your care team. Sponsored in part by HealthWell Foundation—learn how you can help families afford life-saving medications at healthwellfoundation.org. Keywords: children's hospital, NICU, child life specialist, pediatric healthcare, medical diagnosis, parental support, finding the right doctor, healthcare journey, patient-provider relationship, medical trauma, chronic illness, sibling dynamics, hospital stay tips, advocacy organizations, financial assistance, HealthWell Foundation, new diagnosis, community support, emotional coping, grief and hope, navigating insurance, parent self-care, psychosocial support, family-centered care, pediatric medication costs, medical play, patient education, online support groups, rare disease, healthcare communication, palliative care
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| Welcome to Inside the Children's Hospital: What Listeners Can Expect | 01 janv. 2026 | 00:01:31 | |
If your child is facing a diagnosis, procedure, or hospitalization — you're not alone. Inside the Children's Hospital brings you real stories from parents who've walked this path. Not medical advice, but the kind of honest conversation you need when you're scared, exhausted, and looking for someone who gets it. I'm Katie Taylor, a Certified Child Life Specialist with 15 years supporting families through hard moments in pediatric healthcare. On this podcast, I interview caregivers who share what it's really like — the sleepless nights, the uncertainty, the small victories, the moments that break you and the ones that keep you going. You'll find yourself nodding along, regardless of your child's specific diagnosis. These are true lived experiences that remind you: other parents have felt this too, and there are ways through. Subscribe to find: → Stories from parents who understand → Practical coping strategies that have actually worked for families → Reassurance that what you're feeling is normal → Community when you need it most This isn't a clinical lecture — it's parents talking to parents, with a child life specialist helping translate the experience. You're here because something hard brought you here. I'm glad you found us. 🎙️ New episodes every Wednesday 🌐 More resources: childlifeoncall.com and insidethechildrenshospital.com Medical Legal Disclaimer: This podcast is for informational purposes only and does not constitute medical advice. Always consult your healthcare provider for guidance about your child's health. | |||
| 3 Proven Strategies for Parents Navigating Pediatric Healthcare in 2025 | 18 déc. 2025 | 00:13:52 | |
Feeling alone after your child's diagnosis? Discover three powerful lessons that have changed how families find hope, support, and confidence while navigating pediatric healthcare. In this solo episode, child life specialist Katie Taylor distills eight years of conversations with hundreds of families into three essential takeaways every parent needs when thrust into the pediatric healthcare world. If you're overwhelmed by medical decisions, uncertain about switching providers, or searching for ways to support your child—and yourself—during hospital life, this episode offers tangible steps and comforting wisdom. WHAT YOU'LL LEARN: TIMESTAMPS: RESOURCES: HOST: Katie Keating is a Certified Child Life Specialist who has spent over 15 years supporting families navigating pediatric medical experiences. CONNECT: ⭐ Leave a review on Apple Podcasts or Spotify—your feedback helps us reach more families! | |||
| A Father's Journey Through Loss, Healing, and the Birth of a Rainbow Baby: Jeff's Story | 10 déc. 2025 | 00:54:16 | |
In this profoundly moving and honest conversation, we sit down with Jeff Loving, a NICU dad, husband, and now an author, who shares the intimate and often unspoken grief experienced by fathers after pregnancy loss. Jeff walks us through the heartbreaking loss of his two sons, Davian and Jadon, the struggle to find empathy and appropriate medical care, and how these experiences ultimately led him and his wife, Cassie, to become fierce advocates for their future family. This episode is a raw look at marriage under immense stress, the importance of empathetic medical staff, and the redemptive joy of welcoming their "double rainbow" daughter, Isla Grace. Jeff also discusses his mission to help other men through their grief by writing his book, Holding Onto the Light. Key Discussion Points & TimestampsTime Topic Key Takeaway 00:06 Meet Jeff Loving: Husband, NICU Dad, and Author Jeff introduces his family, including his dog, Sage, his wife, Cassie, and their NICU "double rainbow" baby girl, Isla Grace, reflecting on five years of marriage and three pregnancies. 01:08 The Loss of Davian (First Pregnancy) Jeff describes the initial shock and excitement of their first pregnancy, the sudden onset of symptoms at 19 weeks, and the devastating choice they faced in the hospital due to an infection: lose the baby, or risk losing both the baby and his wife. 04:55 The Cruel Disconnect of Grief Jeff recounts the soul-crushing moment of holding his son, Davian, as his heartbeat stopped. He shares the struggle of navigating intense grief while the world—and Thanksgiving—kept moving around them. 07:58 Finding Support: The Power of Presence The discussion turns to how his family supported them by simply being present, rather than offering platitudes like "it's God's plan." The importance of showing up for grieving parents is highlighted. 11:21 Empathetic vs. Detached Care Jeff praises the nurses who were a "calming presence in the chaos" and later attended Davian's service. Conversely, he shares a painful anecdote about a male doctor's detached and jovial demeanor, asking if he wanted to cut the cord after the loss. 15:51 What Compassion Looks Like in Care Jeff shares what he wished the doctor had said: "I know this is very hard... just know that my heart breaks for you, and I'm so sorry that you guys are going through this." This is a vital lesson for medical professionals. 16:55 Marriage Under Stress After moving to North Carolina for a fresh start, Jeff discusses how the loss put their marriage under extreme stress—it would either break them or bond them deeper. They emerged stronger. 23:13 The Loss of Jadon (The Second Pregnancy) The traumatic situation repeats almost day-for-day with their second son, Jadon. Jeff details the medical system's failure to provide a cerclage procedure, despite repeated requests, and the resulting emergency. 26:45 The Audacity of Poor Communication Jeff recounts being livid when the doctor who denied them the preventive cerclage entered the room without him present to tell his wife they were losing their baby, and then left without speaking to Jeff. 34:20 The Blessing of Angel the Bereavement Coordinator Jeff shares the incredible support they received from their bereavement coordinator, Angel, who handled every detail from handprints to selecting clothes, even providing a moment of much-needed humor when she accidentally gave Jadon a hilarious nickname. 36:02 Remembrance Toys: Dino Dave and Jucletus The significance of tangible remembrance items, like a weighted dinosaur (Dino Dave) and a heartbeat bear (Jucletus), that allow Isla to connect with her "big brothers." 39:18 "This is Our Double Rainbow Child" Jeff discusses the difficulty of answering "Is this your first?" as a parent of loss, and how he now confidently speaks of Isla as their "double rainbow child." 42:03 A Resource for Fathers of Loss Jeff explains his motivation for writing his book, Holding Onto the Light: A Father's Journey Through Loss and Healing. He notes the lack of resources for grieving men and how he encapsulated real stories into a fictional narrative to help them feel seen and heard. 46:05 The Defining Moment The most powerful feedback: a man who hadn't read a book in a decade finally read Jeff's book after losing his son. 48:52 Where to Find the Book and Connect Jeff shares his book title, where to buy it, and the dedicated email address to build a community of grieving fathers. Action Items & Connect with Jeff
Connect & Share Your Story:
Instagram: @L-O-V-I-J-E-F (L-O-V-I-J-E-F)
When parents feel empowered, everyone wins – kids thrive and the care team excels! Links and Resources:
Learn more here. Meet the host: Katie Taylor is the co-founder and CEO of Child Life On Call, a digital platform designed to provide parents, kids, and the care team with access to child life services tools and resources. She is a certified child life specialist with over 13 years of experience working in various pediatric healthcare settings. Katie is the author of the children's book, and has presented on the topics of child life and entrepreneurship, psychosocial care in the hospital, and supporting caregivers in the NICU setting both nationally and internationally. She is also the host of the Child Life On Call Podcast which features interviews with parents discussing their experiences throughout their child's medical journey. The podcast emphasizes the crucial role of child life services in enabling caregivers both at and beyond the bedside.
The Child Life On Call Podcast is for informational and educational purposes only. The content shared in each episode, including stories, discussions, and interviews, is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay seeking it because of something you heard on this podcast. The views and opinions expressed by guests on the Child Life On Call Podcast are their own and do not necessarily reflect those of Child Life On Call. Child Life On Call does not endorse any specific medical treatments, procedures, or opinions shared in the podcast. If you or your child are experiencing a medical emergency, call 911 or seek immediate medical attention. By listening to this podcast, you acknowledge that Child Life On Call and its affiliates are not responsible for any decisions made based on the information provided.
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| Understanding Homocystinuria (HCU): How one Mother Uncovered her Son's Diagnosis | 03 déc. 2025 | 00:40:30 | |
Melanie, mom to 12-year-old Masen, shares the unexpected path to her son's diagnosis with Homocystinuria (HCU) after a routine eye exam revealed something "off." What followed was months of uncertainty, a rare diagnosis few providers had even heard of, a crash course in low-protein diets and metabolic formulas, and two back-to-back eye surgeries to prevent further damage. With gentleness, honesty, and deep advocacy, Melanie describes how they adjusted as a family, how Masen built resilience, and how finding community changed everything. A story of early detection, parent intuition, and the power of connection. Why this episode mattersRare disease reality: What it feels like to navigate a diagnosis most clinicians have never seen Caregiver intuition: How a parent's sense that "something isn't right" can spark life-saving action Practical communication: Age-appropriate ways to explain health changes, procedures & dietary needs Health equity & systems gaps: When newborn screening misses what should have been caught Hope forward: The resilience of kids—and the strength families build together What You'll Learn
00:00 Meet Melanie & Masen: family intro, life in Vancouver
Procedure guides, coping plans, journals, and parent resources to help families feel prepared and advocate with confidence. Learn more here. Meet the host: Katie Taylor is the co-founder and CEO of Child Life On Call, a digital platform designed to provide parents, kids, and the care team with access to child life services tools and resources. She is a certified child life specialist with over 13 years of experience working in various pediatric healthcare settings. Katie is the author of the children's book, and has presented on the topics of child life and entrepreneurship, psychosocial care in the hospital, and supporting caregivers in the NICU setting both nationally and internationally. She is also the host of the Child Life On Call Podcast which features interviews with parents discussing their experiences throughout their child's medical journey. The podcast emphasizes the crucial role of child life services in enabling caregivers both at and beyond the bedside.
The Child Life On Call Podcast is for informational and educational purposes only. The content shared in each episode, including stories, discussions, and interviews, is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay seeking it because of something you heard on this podcast. The views and opinions expressed by guests on the Child Life On Call Podcast are their own and do not necessarily reflect those of Child Life On Call. Child Life On Call does not endorse any specific medical treatments, procedures, or opinions shared in the podcast. If you or your child are experiencing a medical emergency, call 911 or seek immediate medical attention. By listening to this podcast, you acknowledge that Child Life On Call and its affiliates are not responsible for any decisions made based on the information provided.
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| Autism, Advocacy and the Power of a Medical ID Bracelet | 19 nov. 2025 | 00:58:14 | |
Tara Cohen opens up about her son Will's autism diagnosis and how it transformed her family and career. From navigating meltdowns to discovering AAC as a communication lifeline, Tara shares her honest reflections on parenting, resilience, and hope. What began as a search for a medical ID bracelet led to a career at Lauren's Hope—where she now helps other families feel safe and supported. This heartfelt episode reminds caregivers that advocacy grows from love and that even small acts of compassion can make a life-changing difference. Timestamps
Level up your parent toolkit with child life–expert guidance: Want to hear insights from our host, Katie Taylor, Certified Child Life Specialist? 👉Subscribe to Katie's Substack Interested in being a guest or learning more about the podcast? Email us at podcast@childlifeoncall.com When parents feel empowered, everyone wins – kids thrive and the care team excels! Links and Resources:
Learn more here. Meet the host: Katie Taylor is the co-founder and CEO of Child Life On Call, a digital platform designed to provide parents, kids, and the care team with access to child life services tools and resources. She is a certified child life specialist with over 13 years of experience working in various pediatric healthcare settings. Katie is the author of the children's book, and has presented on the topics of child life and entrepreneurship, psychosocial care in the hospital, and supporting caregivers in the NICU setting both nationally and internationally. She is also the host of the Child Life On Call Podcast which features interviews with parents discussing their experiences throughout their child's medical journey. The podcast emphasizes the crucial role of child life services in enabling caregivers both at and beyond the bedside.
The Child Life On Call Podcast is for informational and educational purposes only. The content shared in each episode, including stories, discussions, and interviews, is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay seeking it because of something you heard on this podcast. The views and opinions expressed by guests on the Child Life On Call Podcast are their own and do not necessarily reflect those of Child Life On Call. Child Life On Call does not endorse any specific medical treatments, procedures, or opinions shared in the podcast. If you or your child are experiencing a medical emergency, call 911 or seek immediate medical attention. By listening to this podcast, you acknowledge that Child Life On Call and its affiliates are not responsible for any decisions made based on the information provided.
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| When Your Baby is Diagnosed with Type 1 Diabetes: Marlee's Story | 12 nov. 2025 | 00:33:54 | |
"My baby went from fussy to lifeless in hours—by the time we reached the PICU, they said he might have had six hours to live."
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| Brain Surgery for Drug-Resistant Epilepsy: Managing Infantile Spasms | 05 nov. 2025 | 00:46:14 | |
Join us for an incredibly candid and informative conversation with Audrey Vernick, a passionate advocate and the Director of Patient and Family Advocacy for the Pediatric Epilepsy Surgery Alliance. Audrey shares the powerful 21-year journey of her son, Bennett, who suffered a stroke in utero and was later diagnosed with the catastrophic epilepsy known as Infantile Spasms. Audrey recounts the emotional process from the difficult labor and early concerns dismissed as normal reflexes, to the terrifying moment she saw his MRI and realized half of his brain was black due to a massive stroke. This episode is an essential listen for any parent navigating a serious pediatric diagnosis, especially those dealing with seizures. Audrey shares her family's ultimate decision to pursue a hemispherectomy after two years of failed medications, and the immediate, miraculous developmental explosion in her son's language and physical abilities post-surgery. Key Takeaways and Actionable Advice
Time Stamp Description Key Information 00:00:43 Critical Advice: Surgery Consult vs. Surgery Audrey shares the core message that a surgery consult is different than a surgery, and there is no harm in seeking a consultation for any diagnosis. 00:01:54 Bennett's Diagnosis and Surgery Audrey introduces her son, Bennett (21), who had a stroke in utero, infantile spasms, and ultimately a hemispherectomy. 00:04:50 The Early Months: Colic vs. Seizures Audrey describes the first five months, where unusual movements and fussiness were initially dismissed as normal reflexes and colic by her pediatrician. 00:12:08 Emergency EEG & Stroke Discovery The night she called a new neurologist, they were admitted for a 48-hour video EEG monitoring. The next day, an MRI revealed a massive stroke in the right hemisphere. 00:14:50 Infantile Spasms: Recognize the Signs Audrey, as a leader of the PESA, stresses that Infantile Spasms is a medical emergency. She describes the signs: head drop/nod, flexing, and subtle movements that happen in clusters. 00:17:10 Advocacy: How to Get Help Advice for parents: Take videos, take logs, and at the ER, demand to see a neurologist or epileptologist. 00:22:15 The Surgical Seed is Planted Bennett's first neurologist mentioned a hemispherectomy when he was only five months old, which her husband immediately dismissed, but planted a "seed" for future research. 00:24:09 Choosing Surgery and the "Elmo Song" Miracle The family begged for surgery and two days later Bennett had his hemispherectomy. Two weeks later on the plane home, Bennett, whose speech was suppressed, sang the entire Elmo song, signaling the impact the seizures had been having. 00:30:52 Defining Drug-Resistant Epilepsy (DRE) DRE is when a child has seizures after failing two appropriately dosed medications. DRE is harmful to development and carries the highest risk of SUDEP (Sudden Unexplained Death due to Epilepsy). 00:42:55 Final Message: Trust Yourself Audrey's final, powerful advice to parents: You are the expert in your own child; trust yourself and use that expertise as a tool on your journey. Support the Host & Show If you found value in this conversation, please check out host Katie Taylor's work and community resources:
The Child Life On Call Podcast is for informational and educational purposes only. The content shared in each episode, including stories, discussions, and interviews, is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay seeking it because of something you heard on this podcast. The views and opinions expressed by guests on the Child Life On Call Podcast are their own and do not necessarily reflect those of Child Life On Call. Child Life On Call does not endorse any specific medical treatments, procedures, or opinions shared in the podcast. If you or your child is experiencing a medical emergency, call 911 or seek immediate medical attention. By listening to this podcast, you acknowledge that Child Life On Call and its affiliates are not responsible for any decisions made based on the information provided.
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| Speech Therapy at Home: Expert Tips to Help Your Child Communicate | 29 oct. 2025 | 00:29:20 | |
"The excitement that the kids feel when they are seeing you... and they know today's session with Ms. Luba and they can't wait to see you." - Luba Kaplan When a child enters the medical system, parents often meet many specialists beyond doctors and nurses, including Speech-Language Pathologists (SLP). These professionals are vital members of the healthcare team, doing more than just helping with speech. SLPs, as Luba Kaplan explains, also explains how they look at every area of the child's development to ensure children are being fully supported. In this episode, we introduce Luba Kaplan, a passionate SLP, Oral Myofunction Therapist, and mother of three who is the visionary behind Kidology. Celebrating 10 years in private practice, Luba has made it her mission to bridge gaps in access to therapy. She even created the Therapy Bus—a half-size school bus that travels to families who can't leave home or have transportation issues. About Our Guest: Luba Kaplan, SLPLuba Kaplan is a Speech-Language Pathologist and Oral Myofunction Therapist. As the founder and owner of Kidology, she has built a practice that offers a multidisciplinary, team approach to therapy, including Speech, Occupational, Physical, and Behavioral services. Luba is driven by a deep passion for helping families achieve change and is dedicated to cancer research in honor of her mother, Angela, who worked in oncology research for 25 years. Luba on Social Media:
Luba shares crucial advice for working effectively with a Speech-Language Pathologist:
Episode Timeline Highlights
Child life specialists are experts who help families navigate the overwhelming and confusing world of healthcare. Now, you can access these valuable tools and resources outside of the hospital setting through the SupportSpot App. Parents, get empowered! The SupportSpot App provides tools to:
Join Katie Taylor's Substack for in-depth insights and articles: Join here Child Life Specialists- join the circle. There is a seat here for you to recieve support, professional development, and access to clinical supervision.
🌟 Special Thank You for Our Listeners! 🎉 We're giving you free access to our most popular pediatric masterclasses — How to Prepare, Support, and Respond to Your Child During Shots, Blood Draws, and Vaccines and How to Use Comfort Positioning in Pediatrics — a $250 value, completely free! All you have to do is leave a written review of the Child Life On Call podcast on Apple Podcasts or Spotify, then email a screenshot of your review to podcast@childlifeoncall.com. Once we receive it, you'll get instant access to both courses — no strings attached. It's our way of saying thank you for listening and helping more parents discover our show. 💛 The Child Life On Call Podcast is for informational and educational purposes only. The content shared in each episode, including stories, discussions, and interviews, is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay seeking it because of something you heard on this podcast. The views and opinions expressed by guests on the Child Life On Call Podcast are their own and do not necessarily reflect those of Child Life On Call. Child Life On Call does not endorse any specific medical treatments, procedures, or opinions shared in the podcast. If you or your child is experiencing a medical emergency, call 911 or seek immediate medical attention. By listening to this podcast, you acknowledge that Child Life On Call and its affiliates are not responsible for any decisions made based on the information provide | |||
| Type 1 Diabetes: Finding Community and Humor After Diagnosis | 22 oct. 2025 | 00:35:44 | |
When Stacey's toddler was diagnosed with Type 1 diabetes, her family's world turned upside down. In this episode, she shares the early warning signs, the struggle of those first two weeks of injections, and how humor and community turned fear into resilience. Parents will gain hope, advocacy tips, and coping strategies for managing a chronic illness diagnosis. What You'll Hear
Stacey Simms is an award-winning broadcaster, speaker, and author of The World's Worst Diabetes Mom. Since 2015, she has hosted Diabetes Connections, offering real stories and resources for the Type 1 community. 🔗 Diabetes Connections
00:00 – Introduction & Stacey's background Support the Host & Show If you found value in this conversation, please check out host Katie Taylor's work and community resources:
🌟 Special Thank You for Our Listeners! 🎉 We're giving you free access to our most popular pediatric masterclasses — How to Prepare, Support, and Respond to Your Child During Shots, Blood Draws, and Vaccines and How to Use Comfort Positioning in Pediatrics — a $250 value, completely free! All you have to do is leave a written review of the Child Life On Call podcast on Apple Podcasts or Spotify, then email a screenshot of your review to podcast@childlifeoncall.com. Once we receive it, you'll get instant access to both courses — no strings attached. It's our way of saying thank you for listening and helping more parents discover our show. 💛 The Child Life On Call Podcast is for informational and educational purposes only. The content shared in each episode, including stories, discussions, and interviews, is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay seeking it because of something you heard on this podcast. The views and opinions expressed by guests on the Child Life On Call Podcast are their own and do not necessarily reflect those of Child Life On Call. Child Life On Call does not endorse any specific medical treatments, procedures, or opinions shared in the podcast. If you or your child is experiencing a medical emergency, call 911 or seek immediate medical attention. By listening to this podcast, you acknowledge that Child Life On Call and its affiliates are not responsible for any decisions made based on the information provided. | |||