Explore every episode of the podcast Inside FLARE: the Art of Endošļø
| Title | Pub. Date | Duration | |
|---|---|---|---|
| Endometriosis, Art & Big Announcements: Behind the Scenes of FLARE's Inaugural NYC Art Exhibition | 10 Jun 2026 | 00:06:41 | |
Things are getting REAL over here and I have so much to catch you up on. āØ In this episode, Iām bringing you behind the scenes of FLARE and sharing updates on the art exhibition that's slowly (and very excitingly) coming together. We talk about why I refuse to settle for "good enough," the unexpected magic that happens when you put yourself out there, and some of the amazing artists who are helping shape this project. Iām spotlighting the work of participating artists Racheli and KYRIANNA, sharing more about their incredible projects and why Iām so excited to have them involved in the show. Their work is beautiful, powerful, and exactly the kind of art that makes me want to create spaces where these stories can be experienced in person. Plus, I'm announcing something brand new: FLAME (Female Leaders Advancing Metal Education), a creative community and initiative for women welders. Yep, we're talking sparks, sculpture, metalwork, and building community through art in a whole new way. If you've been following along with FLARE, consider this your official backstage pass. If you're new here, welcome. We're talking endometriosis, art, creative dreams, and all the fun, messy, unexpected ways ideas turn into reality. Grab a cup of tea/coffee/drink-of-choice, come hang out, and get excited with me because there's a lot happening and I'm excited to share it with you! Artists mentioned: New Women-in-Welding Community | |||
| Sometimes the Hardest Part Isn't Endometriosis | Motherhood, Marriage & Mental Health | 03 Jun 2026 | 00:09:28 | |
This episode is part reflection, part journal entry, part late-night conversation between friends.In this solo episode of Inside FLARE, Iām reflecting on one of the most emotionally intense months Iāve experienced in a long time. As Mental Health Awareness Month comes to a close, I wanted to have an honest conversation about what happens when life keeps piling things onto your plate while youāre still trying to recover, heal, create, parent, and simply keep going. Over the past month, my family experienced a mental health crisis that nearly changed our lives forever. At the same time, I found myself unexpectedly stepping into full-time parenting responsibilities while continuing to navigate recovery from major surgery, chronic illness, and the everyday realities of adulthood that donāt pause just because youāre overwhelmed. I talk about witnessing the ripple effects that mental health struggles have on entire families, the invisible toll stress takes on a body already living with chronic illness, and the strange balance between heartbreak and gratitude that can exist at the same time. I also share thoughts on marriage, creativity, the Maker Community that helped me through difficult seasons of life, and why sometimes simply making it through the month is an accomplishment worth celebrating. Despite some heavy topics, this isnāt a sad episode. Itās ultimately about resilience, perspective, and finding small moments of joy even when life feels chaotic. If youāve ever felt like you were carrying too much, trying to support everyone around you, or wondering how to keep creating while navigating real life, this conversation is for you. Thank you for being here. Keep creating. Keep healingš Priscilla | |||
| Art & Endometriosis: How FLARE Is Changing the Way We Share Chronic Illness Stories | 15 Apr 2026 | 00:10:05 | |
In this episode, Iām diving into noone of the most important parts of FLARE: Art. I share how my background as an artist and art educator shaped the vision behind FLARE, and why I knew from the very beginning that this needed to be more than just a platform. It had to be a space. A space where people living with endometriosis and chronic illness can create, express, and feel seen without pressure, without judgment, and without the barriers that often exist in the traditional art world. I talk about the different ways art exists within FLARE, from our upcoming virtual gallery and rotating exhibitions to artist features, workshops, and opportunities to share your work and story in a way that feels right for you. Whether youāre someone who already creates or someone who has never considered themselves an artist before, this episode is about showing you that there is a place for you here. We also get into the heart behind projects like BLAZE and the larger vision of making art more accessible, more inclusive, and more reflective of real lived experiences. Because for so many people, especially those navigating chronic illness, art becomes a way to process, to communicate, and to heal in ways that words sometimes canāt. This episode is an invitation. To create. To explore. To share. And to be part of something that is built on the idea that your story matters and deserves to be seen. If youāve ever felt intimidated by the art world, unsure where you fit, or like your experience is hard to put into words, this conversation is for you. FLARE exists to make the invisible visible and to remind you that art isnāt reserved for a select few. Itās something we all have access to. And it might just be one of the most powerful tools we have to heal. Keep creating. Keep healing.
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| How to Get Involved in the FLARE Community & Turn Your Endometriosis Story Into Something Powerful | 06 Apr 2026 | 00:10:25 | |
In this episode, Iām breaking down all the different ways you can be part of FLARE and what this community is really about. FLARE isnāt just a platform, itās a space where storytelling, art, education, and advocacy come together to create something meaningful. Whether you want to share your story, create something from your experience, learn more about endometriosis, or help spread awareness, there is a place for you here. In this episode, I walk through a visual flow of how you can get involved, from sharing your journey through Instagram, the podcast, or written pieces, to participating in workshops, journaling, and creative expression, to helping advocate and bring more visibility to the reality of living with endometriosis. There are so many ways to be part of this, and none of them require you to have it all figured out. You just have to start where you are. This conversation is really about opening the door and showing you that your voice, your experience, and your creativity matter more than you might think. If youāve been looking for a way to connect, to express what youāve been through, or to be part of something bigger than yourself, this episode is for you. I truly believe FLARE can become a space where people feel seen, supported, and inspired and this is just the beginning. š Find Us On:
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| My Endometriosis Story: From a 13-Year-Old Emergency Surgery to Surgical Menopause at 34 | 31 Mar 2026 | 00:22:57 | |
In this episode, Iām sharing my story for the first time. Here is the full story of my journey with endometriosis. From my first emergency surgery at 13 years old to multiple surgeries over the years, and now living in surgical menopause at 34, this episode is the most personal one Iāve recorded so far.
This episode is longer than the previous ones because it felt important to finally share everything, not just the medical side, but the emotional side too. I couldnāt include everything so if you have any questions please feel free to leave them in the comments or shoot me an email: flare.artproject@gmail.com
If youāre living with endometriosis, chronic pain, or an invisible illness, this episode is for you. āā Join FLARE on: SUBSTACK:Ā https://substack.com/@flareendo
FACEBOOK: https://www.facebook.com/flareendoĀ PINTEREST: https://www.pinterest.com/flareendo/ YOUTUBE: https://www.youtube.com/@flareendoĀ X:
https://forms.gle/QaydSRQUexUVDeL4A
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| The BLAZE Art Project: Reclaiming the Word āFlareā and Empowering People Living with Endometriosis and Chronic Illness | 22 Mar 2026 | 00:09:00 | |
In this episode, I share the story behind BLAZE ā a project that grew out of my own experience living with endometriosis and the emotional reality of chronic illness. I talk about what BLAZE is, what inspired it, and why Iām so passionate about its mission. At the heart of this project is a simple but powerful idea: changing the way we think about the word flare. Instead of something associated only with pain and fear, BLAZE is about redefining that word as something strong, expressive, and empowering. This episode offers a deeper look into the vision behind the project and why I believe creative expression can help change the way people understand chronic illness. If youāve ever felt misunderstood, overwhelmed, or like your body has rewritten your life without your permission ā youāre not alone, and youāre exactly where youāre supposed to be. Join us on: ā¢ FLARE Community on Substack ā¢ Instagram ā¢ YouTube ā¢ Pinterest ā¢ Facebook Keep creating, Keep Healingš | |||
| This Is FLARE: The Moment It Started | 18 Mar 2026 | 00:10:10 | |
Welcome to the very first episode of Inside FLARE ā In this episode, Iām taking you behind the scenes of not just FLARE, but me ā the messy, honest, emotional, sometimes chaotic reality of living with endometriosis and building something meaningful in the middle of it. I talk briefly about my surgery, the moments that broke me, the ones that rebuilt me, and how FLARE was born out of all of it ā not as a brand, but as a lifeline. A space where art meets pain, where creativity becomes more than just coping, and where no one has to feel alone in what theyāre going through. Also ā full transparency ā Iām currently recovering from a major surgery while recording this, so if my energy feels a little softer than usualā¦ thatās why. Weāre honoring the āin progressā version of me here, not the polished one. This episode is real, a little unfiltered, a little emotional, and honestlyā¦ kind of the foundation for everything thatās about to come. If youāve ever felt misunderstood, overwhelmed, or like your body has rewritten your life without your permission ā youāre not alone. And youāre exactly where youāre supposed to be.
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| Diagnosed at 16, Creating Through Chronic Illness: Indian Artist Prajaktaās Endometriosis Story | 27 May 2026 | 00:40:43 | |
In this weekās episode of Inside FLARE, I sit down with Prajakta of @gottaloveendo, a multidisciplinary artist, creative storyteller, trained Bharatnatyam dancer, and advocate whose work is deeply shaped by her experience living with endometriosis and chronic illness after being diagnosed at just sixteen years old. What makes this conversation so special is the way Prajakta speaks about creativity not simply as art, but as something that helped her emotionally survive and understand her experience. Together, we talk about growing up as a young Indian woman with chronic illness, the emotional impact of being diagnosed so early, and how art, movement, and storytelling became ways to process pain, identity, and healing. Prajaktaās work is thoughtful, emotionally rich, and deeply connected to culture and self-expression, which is why Iām also so excited sheāll be exhibiting her work in FLAREās upcoming exhibition this fall. This episode is reflective, inspiring, and deeply human. Itās about much more than diagnosis. Itās about creativity, resilience, and learning how to continue becoming yourself alongside chronic illness. Keep creating, Keep healingš Prajakta's Instagram: https://www.instagram.com/gottaloveendo/ Prajakta's website: https://prajakta.co.uk/ Prajakta's Substack: https://substack.com/@prajaktaart | |||
| Rebuilding Trust With Your Body: Sophie on Thoracic Endometriosis, Movement, and Chronic Illness | 20 May 2026 | 00:33:51 | |
In this deeply personal episode of Inside FLARE, I sit down with Sophie, founder of Endo Moves Club and an adaptive fitness instructor living with stage IV and thoracic endometriosis, for an honest conversation about what it really means to navigate chronic illness, grief, resilience, and learning to adapt alongside a changing body. Sophie shares her long road to diagnosis after years of being dismissed despite clear symptoms and a family history of endometriosis. From being told she was ātoo young and healthyā to have the disease, to becoming bedridden before excision surgery, she opens up about the emotional and physical toll of not being believed. What makes this episode especially meaningful is how personal the conversation becomes. As Sophie talks about living with thoracic endometriosis, I also share my own recent fears and complications following surgery, including my experience with a collapsed lung and ongoing concerns surrounding thoracic endo.. Together, we talk about medical gaslighting, fear, grief, identity, movement, and the complicated relationship many people with endometriosis have with their bodies. We also explore how movement can become healing instead of harmful, why meeting yourself where you are matters more than pushing through pain, and how creativity, self-expression, and adaptive movement can help rebuild trust with your body after illness and surgery. Sophieās approach through Endo Moves Club is incredibly refreshing and compassionate. She is creating space for people with endometriosis to reconnect with movement in a way that feels supportive, accessible, and realistic. This episode is vulnerable, validating, and hopeful. Itās for anyone who has ever questioned their pain, struggled to feel at home in their body, or wondered if healing and joy are still possible while living with chronic illness. Keep creating, Keep healingš | |||
| Art, Advocacy, and Medical Gaslighting | Chelsea's Endometriosis Story | 13 May 2026 | 00:53:58 | |
In this episode of Inside FLARE, I sit down with Chelsea Hardesty, patient advocate, artist, mother, founder of Getting the Better of Endo, and one of the first people who truly understood the vision behind FLARE when I shared it with the world. Chelsea shares the reality of living with symptoms for sixteen years before finally being diagnosed with endometriosis after one doctor completely missed disease that another specialist found just weeks later covering her bowel, bladder, and colon. We talk about what happens when years of dismissal slowly make you question your own body, your instincts, and your reality. This conversation goes far beyond diagnosis. We dive into the emotional and physical complexity of living with chronic illness, from multiple surgeries and high-risk pregnancies to pelvic floor dysfunction, chronic pain, and the long-term impact medical gaslighting can have on mental health. What makes Chelseaās story especially powerful is the way she transformed her experience into action. Through advocacy work on Capitol Hill, poetry, community storytelling, and traveling art installations at state capitols, she is helping reshape how people understand endometriosis and why awareness through art matters so deeply. This is one of the most layered, honest, and important conversations Iāve shared on Inside FLARE so far. Not only because of Chelseaās story, but because it reflects the reality so many people quietly live through every day. If you have ever questioned your pain, felt dismissed, or wondered how to turn something painful into something meaningful, this episode is for you. Keep creating, Keep healingš -Priscilla Show Notes:
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| Mental Health and Endometriosis | A Therapistās Perspective on Chronic Illness, Trauma, and Healing | 06 May 2026 | 00:37:04 | |
For the first time, weāre welcoming a mental health professional onto the podcast, someone who doesnāt just understand chronic illness clinically, but works closely with patients living with endometriosis and other long-term conditions every day. I sit down with Danielle Sampson, trauma therapist and founder of Aligned Connections, to talk about the emotional and psychological reality of living with chronic illness, and why this part of the experience is so often overlooked. We get into the gap that exists in both healthcare and mental health spaces when it comes to truly understanding chronic illness, and how little formal training many professionals actually receive in this area. We talk about the connection between chronic pain and anxiety, the emotional toll of navigating a body that feels unpredictable, and the importance of validating experiences that are so often minimized or dismissed. One of the most powerful parts of this conversation is the reminder that while chronic illness may be ongoing, the mental health impact does not have to be something you carry alone or without support. We discuss the impacts and importance of taking care of your mental health, and how itās not separate from your physical health, it is essential to it.
Iām so excited to share this conversation with you, and I hope it gives you language, validation, and a sense of connection if youāve ever felt like this part of your experience wasnāt being acknowledged. Youāre not alone in this. NOTES:
FIND US ON:
ā¢ ā¢ X: ā ā ā https://x.com/flareendoā | |||
| When You Stop Trusting Doctors and Start Trusting Yourself | Sophieās Endo Story | 06 May 2026 | 00:52:16 | |
This episode feels really special to me. Iām joined by Sophie, a member of the FLARE team, our unofficial āSubstack Queen,ā and an incredibly talented writer and creative. Sophie shares her experience being diagnosed with endometriosis at young age, and what it was like trying to understand something so complex at the time. We talk about what it means to grow up with a condition that most people around you donāt fully understand. How, at that age, you often donāt question what youāre told, even when something doesnāt feel right. How those early experiences can shape the way you see your body, your pain, and your voice over time. One of the most powerful parts of this conversation is when Sophie opens up about trust. Not just trust in doctors, but how repeated dismissal or lack of clarity can slowly turn into questioning yourself. Your symptoms. Your instincts. Your reality. Sophie also brings in her creative perspective in such a meaningful way. As a writer and zine creator, she has found ways to express her experience through storytelling and art, including a zine that reflects her personal journey with endometriosis. Itās a reminder that creativity can become a powerful outlet for processing something that is often so difficult to put into words. We also talk about the mental health side of endometriosis in a way that feels very real and very honest. The anxiety, the overthinking, and the emotional weight of not knowing whatās happening in your own body, especially at such a formative age. Iām so excited for what Sophie is building within FLARE as well. She will be leading one of our very first online workshops, creating space for others to explore storytelling and creative expression in a way that feels approachable and personal. Sophie is from Belgium and is currently based in New Zealand. I appreciate her sharing her experience and perspective on the varying ways healthcare systems across countries address endometriosis She recently had a surgery herself and I feel lucky to have connected with her around the same time I had started my recovery process in March. Sophie brings such a thoughtful, grounded, and creative voice to this space, and Iām so grateful she shared it here. If you were diagnosed young, or if youāve ever felt unsure about your own body because of what youāve been told, I think this episode will resonate with you in a really personal way. This is youāre reminder that you are allowed to trust yourself. *Sophie's Substack: https://thisissophietoday.substack.com/?utm_campaign=profile_chips Find FLARE on:
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| Mental Health and Endometriosis | A Therapistās Perspective on Chronic Illness, Trauma, and Healing | 03 May 2026 | 00:05:06 | |
For the first time, weāre welcoming a mental health professional onto the podcast, someone who doesnāt just understand chronic illness clinically, but works closely with patients living with endometriosis and other long-term conditions every day. I sit down with Danielle Sampson, trauma therapist and founder of Aligned Connections, to talk about the emotional and psychological reality of living with chronic illness, and why this part of the experience is so often overlooked. We get into the gap that exists in both healthcare and mental health spaces when it comes to truly understanding chronic illness, and how little formal training many professionals actually receive in this area. We talk about the connection between chronic pain and anxiety, the emotional toll of navigating a body that feels unpredictable, and the importance of validating experiences that are so often minimized or dismissed. One of the most powerful parts of this conversation is the reminder that while chronic illness may be ongoing, the mental health impact does not have to be something you carry alone or without support. We discuss the impacts and importance of taking care of your mental health, and how itās not separate from your physical health, it is essential to it. This episode is exactly why FLARE exists. To open up conversations that are not happening enough, and to bring in perspectives that help people feel seen, understood, and supported in a deeper way. Iām so excited to share this conversation with you, and I hope it gives you language, validation, and a sense of connection if youāve ever felt like this part of your experience wasnāt being acknowledged. Youāre not alone in this. NOTES:
FIND US ON:
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| Mental Health and Endometriosis | A Therapistās Perspective on Chronic Illness, Trauma, and Healing | 30 Apr 2026 | 00:37:04 | |
For the first time, weāre welcoming a mental health professional onto the podcast, someone who doesnāt just understand chronic illness clinically, but works closely with patients living with endometriosis and other long-term conditions every day. I sit down with Danielle Sampson, trauma therapist and founder of Aligned Connections, to talk about the emotional and psychological reality of living with chronic illness, and why this part of the experience is so often overlooked. We get into the gap that exists in both healthcare and mental health spaces when it comes to truly understanding chronic illness, and how little formal training many professionals actually receive in this area. We talk about the connection between chronic pain and anxiety, the emotional toll of navigating a body that feels unpredictable, and the importance of validating experiences that are so often minimized or dismissed. One of the most powerful parts of this conversation is the reminder that while chronic illness may be ongoing, the mental health impact does not have to be something you carry alone or without support. We discuss the impacts and importance of taking care of your mental health, and how itās not separate from your physical health, it is essential to it. This episode is exactly why FLARE exists. To open up conversations that are not happening enough, and to bring in perspectives that help people feel seen, understood, and supported in a deeper way. Iām so excited to share this conversation with you, and I hope it gives you language, validation, and a sense of connection if youāve ever felt like this part of your experience wasnāt being acknowledged. Youāre not alone in this. NOTES:
FIND US ON:
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| They Said āItās Normalā with Sam of 'Echoes': Living With Undiagnosed Endometriosis and Her Journey to Starting Her Own Support Group | 22 Apr 2026 | 00:31:25 | |
In this episode, I sit down with Sam of 'Echoes' from the UK to talk about her journey with endometriosis, from her first symptoms as a teenager to finally receiving a diagnosis years later. Sam shares what it was like experiencing severe pain from a young age and being repeatedly dismissed, told that what she was going through was ānormal,ā and left without the support or answers she needed. We talk about the isolation that can come with living with symptoms that donāt match what others experience, and how the lack of education around womenās health can leave so many people feeling confused, unheard, and alone. This conversation also goes deeper into the emotional side of chronic illness, the impact on mental health, and how important it is to have spaces where these experiences can actually be talked about openly. Sam also shares the inspiration behind āEchoes,ā the support group sheās starting to create connection and community for others going through similar experiences. From online spaces to her vision of building in-person support groups, this is about making sure no one has to navigate this alone. This episode is a reminder that just because something is common doesnāt mean itās normal, and that your experience deserves to be taken seriously. If youāve ever felt dismissed, misunderstood, or alone in what youāre going through, this conversation is for you. Youāre not alone in this. - Priscilla Find Sam on: YOUTUBE: https://www.youtube.com/@MyEndoStory SUBSTACK: https://substack.com/@samanthaedgington INSTAGRAM: https://www.instagram.com/samanthaedgington Find FLARE On:
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