I'm Aware That I'm Rare: the phaware® podcast – Details, episodes & analysis

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I'm Aware That I'm Rare: the phaware® podcast

phaware global association

Health & Fitness

Frequency: 1 episode/6d. Total Eps: 559

I'm Aware That I'm Rare: the phaware® podcast is devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. Through this series of impactful, insightful and, most importantly, hopeful stories from members of the global pulmonary hypertension community, we hope to further the global #phaware conversation as well as to capture, engage and enable misdiagnosed and undiagnosed PH patients because early diagnosis and treatment can mean the difference between life and death. Topics range from the importance of early diagnosis and global PH awareness, to the impact of clinical trials to how patient support and advocacy are paramount to battling this disease. Learn more about PH at www.phaware.global

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Apple Podcasts

🇨🇦 Canada - medicine
31/12/2025
#76
🇨🇦 Canada - medicine
19/07/2025
#87
🇨🇦 Canada - medicine
07/07/2025
#98
🇨🇦 Canada - medicine
09/06/2025
#87

Spotify

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Shared links between episodes and podcasts

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http://www.phaware.global/phaware-podcast-app
762 shares
http://www.phaware.global/clinicaltrials
624 shares
http://www.phaware.global/donate
556 shares

http://www.twitter.com/phaware
254 shares
https://twitter.com/antidote_me
186 shares
https://twitter.com/PHACanada
68 shares

http://www.facebook.com/phaware
250 shares
https://www.facebook.com/PHenomenalmotorsports/
4 shares
https://www.facebook.com/groups/304235876377617/
2 shares

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RSS feed quality

Good

Score global : 78%

Publication history

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Episode 523 - Rodolfo Estrada, MD

Season 9 · Episode 33

mardi 3 juin 2025 • Duration 08:33

Dr. Rodolfo Estrada, is a seasoned pulmonologists currently at UT Health San Antonio with significant experience in the management of patients with different forms of pulmonary hypertension. In this episode, Dr. Estrada will discuss the technology and clinical development behind YUTREPIA™ (treprostinil) inhalation powder and why it might be a good option for some PAH and PH-ILD patients.

This Special Edition episode is sponsored by Liquidia.

Please see the Important Safety Information following this podcast. The Prescribing Information and Instructions for Use for YUTREPIA (treprostinil) inhalation powder are available at YUTREPIA.com.

YUTREPIA is approved for the treatment of pulmonary arterial hypertension (PAH; WHO Group 1) and pulmonary hypertension associated with interstitial lung disease (PH-ILD; WHO Group 3) to improve the ability to exercise.

Please see the Important Safety Information in the show notes. The Prescribing Information and Instructions for Use for YUTREPIA are available at YUTREPIA.com. Learn more about the INSPIRE study.

Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Engage for a cure: www.phaware.global/donate #phaware Share your story: info@phaware.com Like, Subscribe and Follow us: www.phawarepodcast.com. #phawareMD #PHILD @Liquidia_Corp @REstradaMD @UTHealthSA

IMPORTANT SAFETY INFORMATION
Before you take YUTREPIA, tell your healthcare provider about all of your medical conditions, including if you:

Have low blood pressure
Have or have had bleeding problems
Have asthma or chronic obstructive pulmonary disease (COPD)
Are pregnant or plan to become pregnant. It is not known if this product will harm your unborn baby
Are breastfeeding or plan to breastfeed. It is not known if this product passes into your breast milk. Talk to your healthcare provider about the best way to feed your baby during treatment

Tell your healthcare provider about all of the medicines you take, including prescription and over-the-counter medicines, vitamins, and herbal supplements. YUTREPIA and other medicines may affect each other.

Especially tell your healthcare provider if you take:

Medicines used to treat high blood pressure or heart disease
Medicines that decrease blood clotting (anticoagulants)
Water pills (diuretics)
Gemfibrozil (Lopid®) or rifampin (Rimactane®, Rifadin®, Rifamate®, Rifater®)

What are the possible side effects of YUTREPIA?

This product can cause serious side effects, including:

Low blood pressure (symptomatic hypotension). If you have low blood pressure, this product may lower your blood pressure more.
Bleeding problems. This product may increase the risk of bleeding, especially in people who take blood thinners (anticoagulants).

The most common side effects of YUTREPIA are cough, headache, throat irritation and pain, nausea, reddening of the face and neck (flushing), fainting or loss of consciousness, dizziness, diarrhea, and shortness of breath. Like other inhaled prostaglandins, you may have trouble breathing after taking YUTREPIA because it may cause the muscles around your airway to tighten (bronchospasm). These are not all the possible side effects. Call your doctor for medical advice about side effects or if you have trouble breathing.

You may report side effects to the FDA at www.fda.gov/MedWatch or call 1–800-FDA-1088.

The risk information provided here is not comprehensive. To learn more about YUTREPIA, talk with your healthcare provider. Please see Full Prescribing Information for YUTREPIA and Instructions for Use. For additional information, call 1–888–393–5732.

Episode 522 - Marc Simon, MD

Season 9 · Episode 32

lundi 26 mai 2025 • Duration 32:15

Decoding Pulmonary Hypertension: Echo and Cath Insights for Pulmonologists. Dr. Marc Simon shares his expertise on diagnosing pulmonary hypertension, emphasizing echocardiographic markers, right heart catheterization pitfalls, and risk stratification with the H2FPEF score. His insights help clinicians refine their diagnostic approach for better patient outcomes.

This Special Edition episode is sponsored by Liquidia. View PDF Slides here.

Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Engage for a cure: www.phaware.global/donate #phaware Share your story: info@phaware.com Like, Subscribe and Follow us: www.phawarepodcast.com. #phawareMD #PHILD @Liquidia_Corp @UCSFCardiology @MarcSimonMD @CalThoracic

Episode 513 - Kristin Highland, MD

Season 9 · Episode 23

lundi 24 mars 2025 • Duration 17:12

Kristin Highland, MD, from the Cleveland Clinic discusses the importance of shared decision-making and patient preferences when treating patients with pulmonary hypertension. Dr. Highland, emphasizes that the patient is the true expert on their own body and that it is crucial to understand their perspective when making treatment decisions. She highlights the need to consider factors beyond just clinical outcomes, such as side effects, costs, and the patient's ability to manage the therapy. She underscores the evolving role of patient-reported outcomes in medical decision-making and the need for open communication between providers and patients to ensure individualized and preference-aligned care.

This Special Edition episode Sponsored by: Johnson & Johnson

Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Follow us on social @phaware Engage for a cure: www.phaware.global/donate #phaware
Share your story: info@phaware.com #phawareMD @ClevelandClinic @CleClinicMD @JNJInnovMed

Episode 422 - Kristine Ritchie

Season 7 · Episode 36

lundi 10 juillet 2023 • Duration 11:16

Canadian Pediatric PH Care Partner, Kristine Ritchie, discusses her son Brendan's 10 plus year journey with pulmonary hypertension, the importance of self-care and the impact PH has on her entire family.

Episode 421 - Eric Austin, MD

Season 7 · Episode 35

lundi 26 juin 2023 • Duration 16:10

Eric Austin is the Director of the Vanderbilt Pediatric Pulmonary Hypertension Program at Vanderbilt University Medical Center’s Monroe Carell Jr. Children's Hospital. He is also a member of the adult program’s Vanderbilt Pulmonary Hypertension Clinical and Research Program, with whom he leads and/or participates in various translational research studies.

In this episode, Dr. Austin discusses pulmonary hypertension associated with developmental lung disorder.

Episode 420 - Lew Romer, MD

Season 7 · Episode 34

lundi 19 juin 2023 • Duration 15:52

Lew Romer, MD is a Professor of Anesthesiology and Critical Care Medicine, Johns Hopkins Medicine in Baltimore, Maryland.

Dr. Romer discusses the importance of clinical trials in the pediatric pulmonary hypertension population and his work on the PPHNet's Kids MoD PAH Trial: Mono- vs. Duo-Therapy for Pediatric PAH patients.

Learn more about the Kids MoD PAH Trial: https://clinicaltrials.gov/ct2/show/NCT04039464

Episode 419 - Brin Marks

Season 7 · Episode 33

lundi 12 juin 2023 • Duration 10:02

PHA Canada Ambassador and pulmonary arterial hypertension patient, Brin Marks, discusses her road to diagnosis, her strategies for staying positive and why she wants to be a voice for change for pediatric PH patients everywhere.

Episode 418 - Sanjay Mehta, MD

Season 7 · Episode 32

lundi 5 juin 2023 • Duration 15:49

PHA Canada Board Director, Sanjay Mehta, MD, on 15 years of inspiring achievements in advocacy, research, and community support for the 2023 National PH Community Conference taking place June 9-10 in Ottawa, ON and what lies ahead for the future.

PHA Canada invites you to celebrate 15 years of inspiration at this year’s National Community Conference June 9-10! Can’t join in person? Register as a virtual participant!

Episode 417 - Nicole Dempsey

Season 7 · Episode 31

lundi 29 mai 2023 • Duration 06:42

Pulmonary Hypertension patient and PHA Canada Board Chair, Nicole Dempsey, celebrates 15 years of inspiring achievements in advocacy, research, and community support for the 2023 National PH Community Conference taking place June 9-10 in Ottawa, ON.

PHA Canada invites you to celebrate 15 years of inspiration at this year’s National Community Conference June 9-10! Can’t join in person? Register as a virtual participant!

Episode 416 - Katharine Clapham, MD

Season 7 · Episode 30

lundi 22 mai 2023 • Duration 08:51

Katharine Clapham, MD is an Assistant Professor in the Division of Cardiovascular Medicine at University of Utah Health. @UofUHealth

In this episode, Dr. Clapham discusses methamphetamine-associated pulmonary arterial hypertension.