162 A Return to Hospice: Embracing the Spiritual Side of End-of-Life Care

In episode 162 of 'Hospice Explained,' host Marie Betcher RN, a former hospice nurse, returns from a brief hiatus to continue her mission of educating and alleviating fears around end-of-life care. Marie introduces her second podcast, 'Hospice Encounters, Piercing the Veil,' and discusses her intention to explore the spiritual aspects of hospice care alongside the physical and mental aspects. She shares personal stories, including an experience where she felt protected by an unseen presence and an emotional account of her son's dog Ranger's final moments, speculating about the presence of angels. Marie encourages listeners to remain open to different spiritual beliefs and teases upcoming spiritually focused episodes.

00:00 Introduction and Purpose of the Podcast

00:47 Host's Personal Update and Podcast Direction

01:53 Spirituality in Hospice Care

03:10 Angel Story: A Protective Presence

03:51 Ranger's Story: A Dog's Final Moments

06:55 Haley's Perspective on Ranger's Final Moments

07:35 Conclusion and Call to Action

 Hospice Explained Affiliates & Contact Information

Buying from these Affilite links will help support this Podcast. 

Maire introduces a partnership with Suzanne Mayer RN inventor of the  cloud9caresystem.com, 
When patients remain in the same position for extended periods, they are at high risk of developing pressure injuries, commonly known as bedsores. One of the biggest challenges caregivers face is the tendency for pillows and repositioning inserts to easily dislodge during care.(Suzanne is a former guest on Episode #119)

When you order with Cloud 9 care system, please tell them you heard about them from Hospice Explained.(Thank You)

 If you would, you can donate to help support Hospice Explained at the Buy me a Coffee link

 https://www.buymeacoffee.com/Hospice

Marie's Contact
Marie@HospiceExplained.com
www.HospiceExplained.com

Finding a Hospice Agency

1. You can use Medicare.gov to help find a hospice agency,

2. choose Find provider

3. Choose Hospice

4. then add your zip code

This should be a list of Hospice Agencies local to you or your loved one.

161 Taking a Pause: Reflecting on Five Years of Hospice Education

In this episode of 'Hospice Explained,' host Marie Betcher, a registered nurse with a background in hospice care, discusses the purpose of the podcast and its aim to educate and alleviate fears about hospice and end-of-life care. Marie shares a heartfelt message from a listener named Dorian, expressing gratitude for the podcast's impactful guidance. Marie announces a temporary break from weekly recordings and updates on guest submissions. She encourages listeners to leave reviews and share the podcast, ending with a blessing for her audience.

00:00 Introduction and Purpose of the Podcast

00:31 Host Background and Podcast Journey

01:07 Listener Testimonial and Impact

02:07 Call to Action and Future Plans

02:46 Closing Remarks and Blessings

 Hospice Explained Affiliates & Contact Information

Buying from these Affilite links will help support this Podcast. 

Maire introduces a partnership with Suzanne Mayer RN inventor of the  cloud9caresystem.com, 
When patients remain in the same position for extended periods, they are at high risk of developing pressure injuries, commonly known as bedsores. One of the biggest challenges caregivers face is the tendency for pillows and repositioning inserts to easily dislodge during care.(Suzanne is a former guest on Episode #119)

When you order with Cloud 9 care system, please tell them you heard about them from Hospice Explained.(Thank You)

 If you would, you can donate to help support Hospice Explained at the Buy me a Coffee link

 https://www.buymeacoffee.com/Hospice

Marie's Contact
Marie@HospiceExplained.com
www.HospiceExplained.com

Finding a Hospice Agency

1. You can use Medicare.gov to help find a hospice agency,

2. choose Find provider

3. Choose Hospice

4. then add your zip code

This should be a list of Hospice Agencies local to you or your loved one.

152 The Importance of Rest and Laughter in Hospice Care

In this episode of Hospice Explained, host Marie Betcher, a registered nurse and former hospice nurse, emphasizes the importance of rest and laughter for caregivers and families navigating the end-of-life season. Marie discusses the need for periodic breaks and introduces listeners to the Cloud Nine care system for preventing pressure injuries. She shares practical tips for incorporating rest, prayer, and humor into daily routines. Marie also hints at an upcoming episode featuring Nicole, a founder of Hero Generation. Listeners are encouraged to subscribe and share the podcast.

00:00 Introduction and Purpose of the Podcast

00:29 Host Introduction and Podcast Creation

00:47 Partnership with Cloud Nine Care System

01:13 Short Episode Announcement

01:29 Importance of Rest and Self-Care

02:34 Encouragement and Inspiration

03:35 Conclusion and Upcoming Episode Teaser

Hospice Explained Affiliates & Contact Information

Buying from these Affilite links will help support this Podcast. 

Maire introduces a partnership with Suzanne Mayer RN inventor of the  cloud9caresystem.com, 
When patients remain in the same position for extended periods, they are at high risk of developing pressure injuries, commonly known as bedsores. One of the biggest challenges caregivers face is the tendency for pillows and repositioning inserts to easily dislodge during care.(Suzanne is a former guest on Episode #119)

When you order with Cloud 9 care system, please tell them you heard about them from Hospice Explained.(Thank You)

 If you would, you can donate to help support Hospice Explained at the Buy me a Coffee link

 https://www.buymeacoffee.com/Hospice

Marie's Contact
Marie@HospiceExplained.com
www.HospiceExplained.com

Finding a Hospice Agency

1. You can use Medicare.gov to help find a hospice agency,

2. choose Find provider

3. Choose Hospice

4. then add your zip code

This should be a list of Hospice Agencies local to you or your loved one.

The weight of grief may seem almost unbearable, especially with a devastating double loss of a father and mother. However, amidst these darkest moments, hospice care can provide a ray of light and comfort. The compassionate and dedicated care offered by the hospice team makes the otherwise torturing process more manageable and lessens the burden of pain. With their support and understanding, the journey through loss becomes more seamless and allows you to navigate the overwhelming emotions more easily.  Tune in to this conversation where Annie McDonnell joins us to talk more about her experience of losing her parents within a short time span and her most loved pets. It can be really painful!

Annie McDonnell is a New York State licensed acupuncturist specializing in stress-related ailments. With a background in children's book editing, she understands the impact of stress on health. Annie's mission is to help you transform pain into healing using acupuncture, sound healing, breathwork, and other holistic practices. Her practice, Joy Alchemy Acupuncture, aims to reconnect you with inner joy, allowing you to tap into your body's natural healing power for true wellness. 

Tune in!

Key Highlights from the Episode;

[00:30] Episode intro and a quick bio of the guest; Annie McDonnell

[01:46] A bit about Annie as an acupuncturist and sound healing practices

[02:46] A hospice care at home for her cat that became Annie's game-changer

[06:06] What Annie did to her cat to comfort them at the end of her life

[11:36] Growing options for your pets in their end of life

[15:56] Annie's experiences with her parents in hospice

[26:36] A comforting and peaceful death of her dad

[30:56] Her mom's hospice care in the same facility

[36:22] Why the benefits of hospice care are unmatchable

[39:40] Part of the reasons why Annie became a grief educator

[42:19] Why grieving can last for years

[45:46] Best ways to connect with Annie & learn more about her services

[47:43] Ending show and calls to action

• Though there are quite significant hospice resources for humans, they are even less for pets. [06:11] 

• Treats, good foods, and good nutritional supplements make those last days better for your pets. [11:25] 

• Death is scary, but hospice care helps you overcome those scary unknowns. [37:56]

• Grief is easier to carry when you stop putting a lot of expectations on yourself and understand that it is just a natural process. [40:40]

1. Episode 12: When It's Time: https://yourvetwantsyoutoknow.com/when-its-time/

Annie McDonnell

Website: https://www.joyalchemyhealing.com/

Instagram: https://www.instagram.com/acupunctureannie/

Linktr.ee: https://linktr.ee/acupunctureannie

Marie's Contact:

feedback@hospiceexplained.com

www.hospiceexplained.com

http://buymeacoffee.com/hospice

Marie@hospiceencounters.com

Leave a Voicemail: 206-705-3080

We live in a culture that encourages us to numb discomfort and find quick solutions to our problems. However, grief defies these norms. It is a complex and ever-evolving experience that cannot simply be "gotten over." When faced with an unexpected loss, we find ourselves unprepared for the tumultuous journey of grief and uncertain about its duration. In such times, seeking assistance and support from hospice becomes invaluable, as they can guide us in navigating and coping with grief in a healthy way. It is natural for us to feel like we're more capable of managing our grief early on, but we must not undermine our grief by denying ourselves the support and solace that hospice bereavement services can offer. In this episode, Aly Bird talks more about grief and the tools you need to navigate through grief positively to transform your perspective and empower yourself with greater agency and comfort.

Aly Bird is a coach, author, hospice volunteer, registered psychotherapist with qualifying status through the College of Registered Psychotherapists of Ontario.

Since her husband's untimely death, Aly has poured her heart into helping those who feel hopeless during unexpected crises. Her extensive studies of grief psychology and culture, combined with her devastating first-hand knowledge, led her to create a road map for the courageous and dedicated individuals willing to show up for themselves and the people they love with unconditional love, empowerment and reverence. As a speaker, coach and registered psychotherapist, Aly is committed to changing the way our culture recognizes and handles grief. To aid in her mission, Aly has authored Grief Ally: helping people you love cope with death, loss, and grief and is pursuing a graduate degree in counseling psychology. She is also a member of the Canadian Counselling and Psychotherapy Association and an active member of the Bereavement Ontario Network.

Tune in!

Key Highlights from the Episode;

[00:30] Episode intro and a quick bio of the guest; Aly Bird

[01:57] Aly's background and what she does in the psychotherapy space 

[02:32] Aly's grief story, her life-changing loss and traumatic bereavement 

[05:14] How to navigate grief from a sudden and unexpected loss 

[07:28] How Aly's husband's death propelled her to be a therapist 

[09:22] Aly's emotional shock after her husband's death and how people supported her

[13:15] How Aly is helping people get the tools before they need them

[16:17] About the tools that are in Aly's book: Grief Ally 

[19:04] What inspired Aly to become a hospice volunteer, and her work 

[24:32] What peer bereavement means 

[25:55] How much time Aly spends with people she is paired up with as a hospice volunteer

[27:59] What made Aly seek out bereavement services as a window with a traumatic loss

[30:56] Services that Aly offers to help people through their grieving process

[33:04] Aly's advice on using hospice services to support you in your grief 

[35:40] Wrap-up and end of the show 

• The closer you are to the bereaved person, the more mistakes you're going to make, but the more mistakes you make, the more you strengthen your relationship. [12:06] 

• No one can prepare for an unexpected death, and no one is prepared for what grief would look like and how long it will take to be okay. [13:32] 

• Grief is something that is innate to every human being, and our bodies know what to do if we give it the time it deserves. [19:45]

• Don't compare; it is in our nature to compare, but don't do yourself the disservice of devaluing your grief by denying yourself any sort of bereavement support if you think it will be of benefit to you; healthy coping with grief can change your perspective and the way you live your life. [33:26]

• Often, in the beginning, we think we're more capable than we might be at managing our grief, so early on, when we're offered bereavement service, we might shrug it off as something we don't need but a few months down the road we might not be fine, and it is okay to go back and explore it; there is nothing wrong with doing it later in the road if it's available to you. [35:03]

Grief Ally by Aly Bird: https://www.amazon.com/Grief-Ally-Helping-People-Death/dp/1738652823

Aly Bird 

Website: https://alybird.com/

Instagram: http://www.instagram.com/thealybird

Facebook: http://www.facebook.com/thealybird

Marie's Contact:

feedback@hospiceexplained.com

www.hospiceexplained.com

http://buymeacoffee.com/hospice

Marie@hospiceencounters.com

Leave a Voicemail: 206-705-3080 

Wound care in hospice is crucial to providing compassionate and comprehensive end-of-life care. Hospice aims to alleviate suffering and promote comfort for patients with advanced illnesses and wounds that can significantly impact their quality of life. Skilled healthcare professionals in hospice settings are trained to assess, treat, and manage various types of wounds, including pressure ulcers, surgical wounds, and lesions. The primary goal of wound care in hospice is to prevent infection, minimize pain, and promote wound healing while prioritizing the patient's comfort and dignity. In this episode, Vanessa Maxwell, also known as Nurse V, shares her wealth of knowledge and expertise on wound care management for patients both at home and in a Hospice setting.

Vanessa is the owner and principal Consultant of Wound Care Solutions By Vanessa LLC. Vanessa is certified in wound ostomy nursing and has been doing this for 12 years. She is passionate about her role and possesses over 20 years of experience as a registered nurse, with a background in Medical-Surgical, Oncology, Surgical Oncology, Cardiac Telemetry, Emergency Department Observation, Float Pool, and Wound, Ostomy, and Continence Nursing. While Vanessa is actively building her consulting business, she works full-time as a certified wound and ostomy nurse in acute care settings. In addition to her professional endeavors, Vanessa is working on educating the public on treating and preventing wounds.

Tune in!

Key Highlights from the Episode;

[00:30] Episode intro and a quick bio of the guest; Vanessa Maxwell

[01:42] Vanessa's backstory and what she does in the wound care space

[02:37] About Vanessa's business and why she stretched to do consulting on wound care

[05:45] Wounds that are in the hospice world

[10:20] What to do to manage a wound to the bone for hospice patients

[11:57] Ways hospice patients can manage old wounds at home

[12:53] The products Hospice companies give to help the patients

[16:06] A wound care recipe to help manage wound drainage, pain, and smell

[16:14] Where to get more information or help with wounds care

[17:36] Vanessa's final thoughts on wound care and Hospice

[20:40] Vanessa's recommendation on how often to turn your patient

[23:22] Key takeaways from the Vanessa

[24:20] Wrap-up and end of the show

●      Nutrition is one of the key indicators of healing wounds, having enough vitamins, minerals, and proteins to heal the wounds; If you cannot get the patient to eat, you cannot heal the wound. [08:02]

●      When you're thinking about wounds, you have to have the right dressing for the right wound. [14:31]

●      All patients won't need the same wound care plan; it is very individualized. [15:03]

●      Skin is an organ, and we need to pay attention to it; you need to be turning your loved ones, don't leave them in one spot. [20:28]

1. Wound prevention clinicians: National Pressure Injury Advisory Panel (NPIAP)
2. Family members or patient caregivers: Local Wound Care or WOCN Society

Vanessa Maxwell

Website: https://wcsbyvanessa.com/

LinkedIn: https://www.linkedin.com/in/vanessa-maxwell-msn-rn-cwon-woundcare-solutions-by-vanessa

Facebook: https://www.facebook.com/woundcaresolutionsbynurseV/

Marie's Contact:

feedback@hospiceexplained.com

www.hospiceexplained.com

http://buymeacoffee.com/hospice

Marie@hospiceencounters.com

Leave a Voicemail: 206-705-3080

Have you considered preparing for your journey's end? How would you envision the transition? Would you prefer the presence of your loved ones? And have you thought about whether you would prefer a serene setting such as a hospice or a more clinical environment like a hospital? While the concept of death may evoke fear and hesitation for many, it is an inevitable part of our human existence.

However, we have the power to approach it with a proactive mindset, embracing the opportunity to shape a graceful and meaningful conclusion to our time on Earth. Today, we are joined by Kacie Gikonyo, a compassionate Death Doula and Death Educator, who will share invaluable insights, guidance, and practical steps you can take to create a beautiful and fulfilling end-of-life experience.

Kacie Gikonyo is also the CEO and Founder of End of Life Consulting, a Registered Nurse, Death Doula, and Death Educator. With over 12 years of experience working closely with patients at the end of life, Kacie offers invaluable physical, spiritual, and emotional support to clients and their loved ones. Passionate about reducing fear and anxiety surrounding death, she excels in her role as a Death Educator, providing education to healthcare professionals, aspiring death doulas, and the general population. Kacie's unwavering commitment lies in helping clients plan and experience a beautiful death, making her a beacon of compassion and guidance in this essential aspect of life.

Tune in!

Key Highlights from the Episode;

[00:30] Episode intro and a quick bio of the guest; Kacie Gikonyo

[02:03] Kacie's backstory and how she became a Death Doula and Death Educator

[05:47] Why preparing for your death is golden

[07:03] Why most people prefer to die at their homes

[07:48] Other jobs Kacie has, other than being a Death Doula

[12:46] Limits of Kacie's Death Doula license as she handles clients

[14:03] Best ways clients reach out to Kacie and the average time she spends with them

[16:06] Number of visits with the clients in her care

[20:28] An in-depth case study of a patient Kacie has had

[28:15] The end goal of Kacie's involvement with clients

[30:47] What Kacie does after the patient dies

[31:55] Specific ways Kacie gives comfort to her patients

[35:20] What inspired Kacie to become a Death Doula and her evolution in the career

[42:20] Ending show and calls to action

●      Sometimes if we do not plan for our death, it happens as a painful experience rather than a beautiful one. [03:13]

●      Death is the type of occurrence you need to prepare and plan for before it happens. Do not be caught up in the last minutes. [04:36]

●      Death is an expected outcome, and not planning for it does not make it go away. [05:58]

●      The end of your life sometimes lasts longer than those last days of dying. [08:18]

●      Whether a death doula is a medical professional or not, their service at the end of life is invaluable. [41:47]

1. The Expected Outcome: https://expectedoutcome.ca/
2. INELDA: https://inelda.org/

Kacie Gikonyo

Website: https://www.coachingwithkacie.com/

LinkedIn: https://www.linkedin.com/in/kacie-gikonyo-3207b963/

Instagram: https://www.instagram.com/endoflifewithkacie/

YouTube: https://www.youtube.com/@Deathdoulakacie(713)8143886

Tik Tok: https://www.tiktok.com/@deathdoulakacie/

Kacie's Services: https://www.coachingwithkacie.com/services-1

Importance of Social Emotional Intelligence in Hospice with Elizabeth Dario Bockheim MS-EdL, RN-CNE, SEI-C

In this Episode we Discuss what is Social Emotional Intelligence and how Hospice Staff imporove their approach to patients and families. 

Social Emotional Intelligence (SEI) refers to the ability to understand and manage one's emotions effectively, as well as to recognize and empathize with the emotions of others. It involves being aware of one's feelings, having the capacity to regulate emotions in various situations, and demonstrating empathy towards others by understanding and responding to their emotional states. In hospice, being a truly effective caregiver goes beyond just medical skills. It demands having Social Emotional Intelligence. 

When hospice professionals develop their SEI, they become better at connecting with patients on a deeper level, providing both physical and emotional care. SEI helps them become better companions in the final stages of life, offering comfort and understanding when needed. Join this conversation with Elizabeth and learn insights on becoming a better hospice professional using social emotional intelligence. Elizabeth is a wife, mother, certified nurse educator, and an Influential Awareness Leader. 

Tune in!

Key Highlights from the Episode;

[00:30] Episode intro and a quick bio of the guest; Elizabeth Dario Bockheim

[01:50] Elizabeth's backstory and how she became a Social Emotional Intelligence expert

[03:20] Social Emotional Intelligence from the aspect of the hospice professional

[05:11] Why becoming aware of your emotions is golden for hospice professionals

[07:39] What is empathy, and why is it important

[10:39] Cultivating empathy to become the right hospice support to your patients

[12:07] Correlation between hospice and emotional intelligence

[14:18] How to use the skills of SEI as a personal caregiver

[19:40] Elizabeth's insights and experience of taking care of her mother

[31:26] What Elizabeth wishes the hospice team to have done better for her mother

[41:18] Golden takeaway nuggets from the guest

[46:33] Ending show and calls to action

• As caregivers grow in their profession, they are always given opportunities to learn about Social Emotional Intelligence and what it can do for their patients. [03:33] 

• Hospice professionals must put more energy into becoming emotionally aware of themselves so that they can be able to manage their patients better. [06:02] 

• The most generous thing you can do to anyone else is to take care of yourself. [09:07]

• Compassion is the essence of hospice. It involves recognizing and being sensitive and having an emotional and empathetic concern for their pain and suffering. [10:41]

Elizabeth Dario Bockheim

Website: http://shineawareness.com/

Instagram: https://www.instagram.com/shineawareness/

Email: Elizabeth.shineawareness@gmail.com

Mobile: 616 826 5828 

Marie's Contact:
feedback@hospiceexplained.com
www.hospiceexplained.com
http://buymeacoffee.com/hospice
Marie@hospiceencounters.com
Leave a Voicemail: 206-705-3080

Books can empower and offer insights, guidance, and solace during the challenging journey of end-of-life care. They provide knowledge, comfort, and a sense of connection, helping individuals navigate the complex emotions and experiences accompanying the hospice experience. Join this conversation with Derek Flores, a returning guest to Hospice Explained, as we discuss his multiple books to help patients, families, and staff with the Hospice Experience.

Derek J. Flores is a registered nurse (RN), Certified Hospice and Palliative Nurse (CHPN), and a best-selling author. In May 2020, he appeared as a guest on the internationally broadcast TV show 'The Doctors,' where he provided expert advice on hospice care. His first book, 'Seven Keys to a Peaceful Passing,' is a step-by-step guide for patients and families facing hospice decisions.

His latest work, 'Letters to a Hospice Nurse,' is a compilation of stories from families of hospice patients. It includes a companion journal, 'My Letter,' for recording personal thoughts and emotions. Nurse Derek also publishes helpful resources like notebooks and journals for nurses, patients, and families.

Tune in!

Key Highlights from the Episode;

[00:30] Episode intro and a quick bio of the guest; Derek J. Flores

[02:21] A bit about Derek's newest book; Letters to a Hospice Nurse

[07:21] Some of the great stories in the book

[13:03] How the twelve stories in the book came about

[14:54] Other books Derek has put out lately

[15:49] The importance of honest communication in hospice

[18:43] The power of homemade journal

[20:47] Insights into Derek's publishing journey

[25:15] Why starting your hospice journey earlier is golden

[30:44] Other directions within hospice that Derek would wish to explore

[34:53] Ending show and calls to action

●      When honest and open communication is established, it will always be a win-win between a hospice caregiver and the patients. [17:06]

●      The best outcomes in hospice result from families that are open and work well with the hospice caregiver. [17:27]

●      We can never meet our expectations if we do not know what will meet them. [17:42]

●      Hospice care aims to empower patients and help them get through that experience. Anybody with that knowledge will always be better positioned to determine their needs. [24:37]

1. Seven Keys to a Peaceful Passing: A Hospice Nurse's Step-by-Step Guide to Hospice: https://amzn.to/44yiGM3

1. Letters to a Hospice Nurse: Transforming Grief to Joy: https://amzn.to/3XIBQMY

1. Siete Claves para una Partida Pacífica: Guía Paso a Paso de un Enfermero de Hospicio (Spanish Edition): https://amzn.to/3NKjTZP

1. Patient Visit Notes: A Notebook for Hospice Nurses: https://amzn.to/3JKIufZ

Derek J. Flores

LinkedIn: https://www.linkedin.com/in/derek-flores-rn-bs-1b82b98/

When planning care for a loved one in their end-of-life disease progression, talking about death and dying can be scary. Hospice care plays a vital role in end-of-life care, focusing on maximizing comfort and peace for both the individual nearing the end of life and their loved ones. With a deep understanding of the physical, emotional, and spiritual needs that arise during this delicate time, hospice care providers offer specialized care to make death and dying less scary and keep your loved one at the most symptom relief they can be to enjoy their days with as much quality as possible. Choosing hospice is not giving up or hastening death. It's acknowledging the reality of the situation and fostering an atmosphere of comfort, acceptance, and peace. In this episode, Lisa Pahl shares more about hospice care and support and provides valuable strategies to help you facilitate open and safe death and dying conversations to orchestrate the departure your loved one desires in a compassionate way.

Lisa Pahl is a social worker and co-creator of The Death Deck and The E•O•L Deck, games that inspire meaningful conversations on what matters most in our lives and in our deaths. Lisa is also an expert contributor for Help Texts which provides expert grief and mental health support via text messages. As a Licensed Clinical Social Worker with over fifteen years of experience in hospice and emergency medicine, Lisa helps people cope with illness, dying, and grief. With a passionate belief that peace at the end begins with meaningful conversations over time, Lisa engages people in talking about and preparing for this important stage of life.

Tune in!

Key Highlights from the Episode;

[00:30] Episode intro and a quick bio of the guest; Lisa Pahl

[01:43] Lisa's backstory and what she does as a clinical social worker

[02:35] Lisa's experience in the emergency department for seven years

[04:42] The services Lisa offers in hospice care as a clinical social worker

[07:54] How Lisa helps families make decisions regarding the burial of their loved one

[11:36] About Lisa's products; Death Deck and The E•O•L Deck games

[20:52] How to open up and create a safe space to talk about death and dying

[23:14] The difference between Death Deck and The E•O•L Deck games

[26:36] Lisa's top questions she wants to be asked as a social worker visiting a home of a hospice patient

[30:14] Lisa's advice on choosing hospice care to get a little more comfort at end-of-life

[33:24] Help Texts and the support they provide to the caregivers and bereaved

[37:57] The art of practicing talking about death and dying now

[38:36] Wrap-up and end of the show

●      There are different options for burial that may sound unusual, but we should amp up our comfort level with death and the willingness that we have to approach death head-on instead of keeping it in the shadows or like something that should not be discussed. [10:56]

●      Even though people think they don't want to talk about death and dying, most do; once they are given the prompt, permission, and a place to discuss, most people have a lot of thoughts, opinions, beliefs, and stories. [20:10]

●      Most of the time, when people start talking about death and dying, they become eager to talk more about it because usually, we don't give many opportunities to have this conversation. [21:47]

●      When patients and their families are able and willing to acknowledge the reality of the situation, there is so much beauty and a lack of regrets in terms of things being out in the open. [29:18]

●      Choosing hospice is not giving up. It's not hastening death or doing anything to make death come sooner; it's keeping a person at home with the most symptom relief they can have to enjoy their days with as much quality as they can have. [31:03]

●      Talking about death and dying takes practice, and it's much easier to practice now before a diagnostics or a medical crisis of you or your family member so that when that time comes, you have a place to start from, and it doesn't seem so scary. [38:01]

Lisa Pahl

Website: www.thedeathdeck.com

https://helptexts.com/

Email: Lisa@thedeathdeck.com

:

Linde Carter MA, RN, NC-BC, CEOLD, CGD

Death is an inevitable part of life, and with it comes grief, a natural response and part of life. However, we often view grief as an enemy, pressuring us to overcome it swiftly. Yet, the truth is that the grieving process is vital for our well-being. It serves as a mechanism to help us heal and safeguard our emotional and mental health. When ignored or suppressed, it does not go away. Rather, it manifests in other areas of our lives, affecting our relationships, personal growth, and parenting abilities. Grief can also not be rushed or pushed aside. You must allow it to unfold naturally and permit yourself to fully experience the emotions and thoughts that arise to process it and embark on a healing journey.  In this episode, Linde Carter delves into the intricacies of grief, exploring its diverse manifestations and providing valuable tools to help you find healing and renewal amidst grief.

Linde Carter is a death doula and grief coach. Linde has been a registered nurse for almost 25 years and has spent more than half of that time as a hospice nurse and palliative care nurse at the bedside in patients' homes and long-term care facilities, in quality management and nursing management. She is also a board-certified nurse coach specializing in loss, grief, transition, and end-of-life coaching. As a certified end-of-life and grief doula, Linde has her own private coaching and doula practice, Simplicity Transition. Like so many others, Linde has encountered and struggled with loss in her life from early on, and she learned that grief is not just about loss through death; it's simply about loss of any kind.

Linde is passionate about supporting anyone experiencing any kind of loss or grief, anyone facing chronic, life-threatening illness and end of life, and anyone who may feel ready to move forward and carry their grief in a new way that is comfortable and healthy for them. Through grief and end-of-life coaching, Linde creates a space for others to know it's okay to be vulnerable, scared, and even hopeless and to not always have the extra strength to keep moving forward and to hold that space for openness, honesty, support, and hope. She also currently has an active Facebook Group, Growing Through Grief, and is happy to allow anyone to join.

Tune in!

Key Highlights from the Episode;

[00:30] Episode intro and a quick bio of the guest; Linde Carter

[03:41] Linde's backstory and what she does in the grief space

[10:23] Why Linde changed her coaching business name to Simplicity Transition

[11:23] How Linde coaches people through different transitions in life

[14:14] The death-positive talk and how Linde does it

[15:38] How Linde is helping individuals and groups with grief and the things she focuses on

[24:26] How to know when you need help with your grief and signs to look out for

[27:36] Anticipatory grief in hospice and other different types of grief

[40:41] Some of the tools that you can use to start processing your grief

[46:16] The difference between a grief coach and a counselor

[49:11] How to reach out to Linde and get grief help and support

[52:18] A signal that shows that you need help to process grief

[55:03] Wrap-up and end of the show

●      Death is natural, and grief is natural; people often look at grief as an enemy, but the grief process is what helps and protects you. [04:52]

●      You can't ignore grief; grief is not something you get through or push yourself through and move on to the next thing; let it unfold and let yourself experience it because if you don't, it will come back. It will show up in other parts of your life, hold you back, and cause issues in relationships and parenting. [21:22]

●      You can have different types of grief all happening at the same time, and if they are not recognized and resolved, that is when you get into complicated or complex unresolved grief, which can hang around for a long time. [37:52]

●      There are different manifestations of grief; it can manifest in your life in different ways, including cognitive or physical, where you forget things, become emotional, have physical pain, lack focus, or have insomnia. [52:18]

It's OK That You're Not OK by Megan Devine: https://www.amazon.com/Its-That-Youre-Not-Understand/dp/1622039076.

How to Carry What Can't Be Fixed by Megan Devine: https://www.amazon.com/How-Carry-What-Cant-Fixed/dp/1683643704

Steven Henry Steppinstar music: https://www.youtube.com/c/Steppinstars

Linde Carter

Website: www.simplicitytransitions.com

Email: support@simplicitytranstions.com

Growing Through Grief Facebook group:

http://www.facebook.com/groups/sncgrowingthroughgrief/

:

The Hospice Explained podcast has had several guests who are authors on different subjects of hospice care. One of the remarkable guests on episode 28 was Pepper Cappuccio in his book, "Warm Water; The Last Act of Compassion." In this book, her compassion for patients after they die places greater dignity on them. In episode 37, Derek Flores joined Marie to talk more about his inspiring book, Seven Keys to a Peaceful Passing: A Hospice Nurse's Step-by-Step Guide to Hospice. Marie had a chat about what is a Pain crisis and service failure. They also discussed the minimum number of caregivers and how taking care of Hospice patients can be a Marathon vs. a sprint. Physician aid in dying, and that by allowing natural death, we don't bypass the grieving process.

Join this short episode with Marie as she reviews these authors and others and the values, they bring to the hospice space through their literature writings. All the books discussed can be found on the Resources page on the website:

https://www.hospiceexplained.com/resources

Tune in!

Key Highlights from the Episode;

[00:30] Know your host; Marie

[00:55] Where to start if you are new to this podcast

[01:50] What is in for you in today's episode

[02:00] Pepper Cappuccio's book, "Warm Water The Last Act of Compassion."

[02:40] Derek Flores' Book: Seven Keys to a Peaceful Passing

[03:31] Hadley's book-The In-Between: Unforgettable Encounters During Life's Final Moments

[03:48] Andrew's Audiobook Cheers Dad: Blessings From His Last Week In Hospice

[04:31] Heidi Telpner's book: One Foot in Heaven, Journey of a Hospice Nurse

[06:25] Gregory Phelps' book: Education of a Hospice Doctor

[07:521] Ending show and calls to action

●      Being with someone in hospice is like being on a marathon rather than a sprint. [03:06]

1. Episode with Pepper Cappucio:  https://hospiceexplained.libsyn.com/interview-with-pepper-cappuccio

1. The episode with Derek J. Flores: https://hospiceexplained.libsyn.com/interview-with-derek-flores-rn

1. Episode with Hadley: https://hospiceexplained.libsyn.com/interview-with-nurse-hadley

1. The episode with Andrew: https://hospiceexplained.libsyn.com/interview-with-coach-andrew-t-shaw

Marie

Website: https://www.hospiceexplained.com/

Join Marie in this short episode for a quick guide on listening to this podcast and important updates. Start with the first three episodes to grasp the basics of hospice care. Episodes 4 and 29 cover eligibility, costs, and Medicare coverage with Chris Graham, a Hospice Owner. For admission process details, listen to episode 44. In episode 52, Marie interviews Shandria, an on-call Hospice RN, discussing when to contact a nurse and end-of-life challenges. Check out Marie's podcast "Hospice Encounters" for spiritual experiences.

In an update, Marie has decided not to create a Spanish podcast called "Hospicio Explicado." Instead, she plans to offer the translation of her podcast and general hospice education in Spanish to Hospice Companies or Agencies. She is also working on educating Hospice Agencies to help increase referrals to Hospice. Hospice agency owners who are interested in learning more can reach out to Marie via email or leave her a voicemail.

Marie wants to keep all episodes of "Hospice Explained" free for everyone. However, she appreciates any support from her listeners. If the podcast has benefited you and you'd like to show your gratitude, you can contribute or use affiliate links that will be available soon.

Tune in!

Key Highlights from the Episode;

[00:30] What this episode is about

[00:40] Great conversations and value you expect from this podcast

[01:05] To learn about the basics of hospice

[01:20] Eligibility and costs associated with hospice

[01:37] To learn more about the hospice admission process

[01:44] Know when to call the nurse and problems associated with the end of life

[01:56] Are you interested in spiritual experiences around the end of life?

[02:04] Updates from Marie that you should know

[03:36] Why this podcast will be a free resource tool for everyone

[04:28] Your rating and review matters!

Marie

Website: https://www.hospiceexplained.com/

Email Marie: Marie@hospiceexplained.com 

Leave a Voicemail: 206-705-3080 

Support the Podcast: https://www.buymeacoffee.com/Hospice

151 Interdisciplinary Insights on Aging and Advocacy with Dr. Jacob Kendall

In this episode of Hospice Explained, host Marie Betcher RN interviews Dr. Jacob Kendall, a meta gerontologist with a rich interdisciplinary background in biology, social work, public health, and theology. Dr. Kendall shares his personal journey through two open-heart surgeries and how his experiences shaped his career in health advocacy. They discuss the importance of self-advocacy in healthcare, the challenges of navigating the medical system, and the cultural issues surrounding aging and end-of-life care. Dr. Kendall also provides insights into his work on patient and caregiver support, and the need for broader discussions on mortality. Learn about practical strategies for self-advocacy, the significance of inter-disciplinary approaches in gerontology, and more.

00:00 Introduction and Disclaimer

00:29 Meet Your Host: Marie Betcher RN

00:45 Cloud 9 Care System Partnership

01:36 Interview with Dr. Jacob Kendall

02:57 Dr. Jacob Kendall's Background and Expertise

03:54 Personal Health Challenges and Advocacy

07:25 Navigating the Healthcare System

10:48 The Importance of Self-Advocacy

17:58 End-of-Life Planning and Family Conversations

25:39 Cultural Perspectives on Aging and Death

31:41 Conclusion and Contact Information

Jacob@JacobEvansKendall.com

https://www.jacobevanskendall.com/

Hospice Explained Affiliates & Contact Information

Buying from these Affilite links will help support this Podcast. 

Maire introduces a partnership with Suzanne Mayer RN inventor of the  cloud9caresystem.com, 
When patients remain in the same position for extended periods, they are at high risk of developing pressure injuries, commonly known as bedsores. One of the biggest challenges caregivers face is the tendency for pillows and repositioning inserts to easily dislodge during care.(Suzanne is a former guest on Episode #119)

When you order with Cloud 9 care system, please tell them you heard about them from Hospice Explained.(Thank You)

 If you would, you can donate to help support Hospice Explained at the Buy me a Coffee link

 https://www.buymeacoffee.com/Hospice

Marie's Contact
Marie@HospiceExplained.com
www.HospiceExplained.com

Finding a Hospice Agency

1. You can use Medicare.gov to help find a hospice agency,

2. choose Find provider

3. Choose Hospice

4. then add your zip code

This should be a list of Hospice Agencies local to you or your loved one.

In this Epsiode, I Interview Shandria RN who is an After Hours Hospice RN. Shandria takes calls from patients and families evenings, nights & weekends. We discuss many different reasons a patient or family may call the after hours team. 

When it comes to deciding on hospice care, timing is crucial. Hospice care is typically considered when a patient has a terminal illness or life-limiting condition, and curative treatments are no longer effective or beneficial. The primary focus of hospice is to provide comfort, support, and dignity in the end-of-life journey. This critical juncture is reached when the patient's healthcare team determines that their end of life is approaching. The decision to transition to hospice care is never easy, but it allows patients to receive specialized medical attention, pain management, emotional support, and assistance with daily activities in the comfort of their own homes or a hospice facility. It also provides peace of mind to family members, who can be assured that their loved one will be cared for compassionately during this challenging time. Hospice enhances the quality of life for both the patient and their family as they navigate the final chapter of life together.

Join the conversation with your host Marie Betcher as she delves deeper into this sensitive topic of when it is time for hospice care and gain insights into the medical indicators that signify the need for hospice and the range of services and supports you can reach out to help your loved one get appropriate care. Marie also shares the stories of her mom's end-of-life health decline, pivotal points and home nursing care to provide a heartfelt perspective on the compassionate care needed during this difficult journey.

Tune in!

Key Highlights from the Episode;

[00:00] Introduction to the show

[01:13] When is it time for hospice

[02:40] Options available when it's not hospice

[03:52] Marie's mom end of life health decline and home nursing care

[11:55] How pivoting and being proactive can make all the difference

[13:28] The importance of having a primary care doctor for your loved one

[14:01] Reaching out and communicating accurately to describe your loved one's needs

[16:01] Wrap-up and end of the show

●      Every person is unique, and their process at the end of life is at their own pace. [01:21]

●      It's really important not to be alone in decision-making; it's helpful to have a doctor who understands your particular individual needs; this relationship has so much value. [03:30]

●      Hospice or the end of life takes two physicians to certify that the end of life is approaching for someone to be declared hospice. [13:45]

●      If you have this gut feeling that your loved one is approaching the end of life or if your loved one is saying the end of life is coming, and there is an illness or a process going on, try and make an appointment with a doctor to discuss your goals of care and how the end of life might go. [14:01]

Marie's other podcast, Hospice Encounters: https://podcasts.apple.com/us/podcast/hospice-encounters/id1622451693

If you would like to share an encounter with hospice, please email me at marie@hospiceencounters.com

Marie's Contact:
feedback@hospiceexplained.com
www.hospiceexplained.com
http://buymeacoffee.com/hospice
Marie@hospiceencounters.com
Leave a Voicemail: 206-705-3080

End-of-life, death, bereavement, and grief are undeniably sensitive topics, but they are an inherent part of the human experience. When someone loses a loved one, grief becomes an inevitable companion, and receiving the right support becomes essential for fostering a healthy outcome. Grief is an intrinsic aspect of love, representing a lifelong response that brings about profound changes in an individual. During such trying times, providing authentic support to those who are grieving becomes paramount, devoid of dismissive phrases like "I know how you feel" or superficial reassurances. Being present, choosing our words with care, and sharing cherished memories of the deceased while acknowledging them by name can offer solace and validation. This way, we provide an opportunity to honor the departed by speaking their name aloud once again. In a candid discussion, Alison Potter delves into the intricacies of grief and comfort, recounting her personal journey after losing her husband. She also sheds light on the valuable work of Give A Mile in the end-of-life space, and her business, Expected Outcome.

Alison is a palliative RN and a volunteer with Give A Mile, a registered charity in both Canada and the US. Their mission is to provide flights for people at end-of-life to connect with their loved ones for a final goodbye. Since they started, they have given away nine hundred and sixty-four (964) free flights, and their goal is to make it a thousand (1000) this year, their tenth anniversary year. Alison has been a Registered Nurse for almost 40 years, worked for over 25 years as a Palliative Care Nurse in Palliative Home Care, Palliative Consult Team in Acute Care, and was the Director of Clinical Care at Rosedale Hospice in Calgary from 2009 to 2018. Allison launched her business, Expected Outcome, in May 2022 to support and educate people on death, grief, and bereavement.

Tune in!

Key Highlights from the Episode;

[00:30] Episode intro and a quick bio of the guest; Alison potter

[00:56] Give A Mile, the Why behind it, and what they offer in the end-of-life space 

[06:16] Alison's role as an outreach coordinator and flight recipient at Give A Mile 

[07:34] How to donate money or miles to Give A Mile and how they work

[09:39] Inspiring stories of recent flight applicants' unforgeable reunion experiences   

[16:09] The maximum amount Give A Mile provides and why they don't disclose it

[17:26] Grief and how Allison supports people through her business "Expected Outcome."

[20:57] Why sharing stories and using the name of the deceased is priceless

[25:44] Alison's word of encouragement to those grieving for pets

[29:09] Wrap-up and end of the show

●      End-of-life care can be anywhere; residential hospice, home, hospital, and long-term care center, or in an ICU where the outcome is uncertain and someone is not expected to survive. [04:04]

●      Telling someone grieving that you know how they feel, they can have another baby, or time heals our wounds hurts because it doesn't; grief is a price for love, and it's lifelong. [19:04]

●      Be there, say the right things, and talk about the disease by name, grief is already sad, and by doing this, you are not making them sadder; you are giving them an opportunity to get their loved one name out loud again. [21:48]

Alison Potter

Website: https://giveamile.org/

Website: https://expectedoutcome.ca/

LinkedIn: https://www.linkedin.com/in/alison-potter-rn-bscn-chpcn-b449064b/?

Facebook: http://www.facebook.com/thealybird

 Marie's Contact:
feedback@hospiceexplained.com
www.hospiceexplained.com
http://buymeacoffee.com/hospice
Marie@hospiceencounters.com
Leave a Voicemail: 206-705-3080

The impact of losing a loved one differs for each person. Death, with its brutal certainty, carries a mysterious beauty for some people. It may be a blessing in disguise sometimes. Though the blessings may be hard to see at first, embracing them allows us to cherish life and the memory of those we have lost. Acknowledging the pain, hurt, and loneliness that follows grief is essential because you are not alone in your journey.

Join this conversation with your host Marie Betcher as coach Andrew T. Shaw joins her. In 2019, just after Christmas, Andrew suffered the heartbreaking loss of his father. Amidst his grief, he continues to find solace in counting the blessings bestowed upon him during the final week in Hospice. Each person's end-of-life journey is unique, yet many powerful parallels exist. Andrew documented those experiences in a book, "Cheers, Dad," that can be found as an audiobook in Audible and also on Amazon. By sharing the blessings experienced in those last days and embracing their significance in this episode, Andrew will motivate you to discover strength and comfort to navigate this difficult period.

Tune in!

Key Highlights from the Episode;

[00:00] Introduction to the show and quick bio of the quest; Andrew T. Shaw

[03:13] Andrew's backstory and what he does in his space to make the world better

[05:21] Name of Andrew's book and how you can get your copy

[07:54] The six months of Andrew's dad in hospice care

[08:46] The unmatched benefits of starting hospice care sooner

[10:11] How hospice helps one get rid of the fear of death

[12:52] Andrew's double tragedy of an injured mum while dad was in hospice

[16:23] The availability of nurses in the six months of his dad's hospice care 

[17:25] Things Andrew had to fix and adjust while going through hospice

[18:55] Experiences of his dad's last week before passing on

[24:29] One of the greatest moments of communication he had with his dad

[27:33] The hard question to ask your loved one

[27:55] Wrap-up and end of the show

●      It's always a blessing when hospice is started earlier. [08:46]

●      Most people are never into the reality of death. Hospice aims to remove that fear and get you mentally ready. [10:11]

●      As hard as it can be, you must gain the courage to ask your loved one how they would want a celebration of their life well lived to look like. [27:35]

1. Marie's other podcast, Hospice Encounters: https://podcasts.apple.com/us/podcast/hospice-encounters/id1622451693

1. Andrew's Audiobook: https://www.audible.com/pd/Cheers-Dad-Audiobook/B0BKR4JBPD

1. CHEERS, DAD: Blessings from his last week in Hospice by Andrew T. Shaw: https://amzn.to/3CBiTmd

If you would like to share an encounter with hospice, please email me at marie@hospiceencounters.com

Do you want to Support this podcast with a coffee? You can do so here: https://www.buymeacoffee.com/hospice.

Marie's Contact:
feedback@hospiceexplained.com
www.hospiceexplained.com
http://buymeacoffee.com/hospice
Marie@hospiceencounters.com
Leave a Voicemail: 206-705-3080
 

It is wonderful to lend a hand to our friends and coworkers when they are in need because even small gestures can mean a lot over time. Imagine if your friend is going through a tough situation where a loved one is in hospice care. With all the patient's important care, it is kind to be there for your friend. This might involve helping with things like laundry, taking care of their kids, tidying up, or just showing empathy in any small way you can think of. 

When you do this, it is important to ensure your actions have a positive and lasting impact. Especially when someone is grieving, your support matters a great deal. Join this conversation with Marie as she shares more about how we can make a difference in someone's life by helping them, even in grief. 

Tune in!

Key Highlights from the Episode;

[00:30] Episode intro and what is in for you in today's episode

[01:50] Key milestones in the podcast, courtesy of your help

[02:43] Two of the most kind reviews about the podcast

[03:30] How you can email Marie for some great hospice reads

[03:52] Ways you can support the podcast through "buy me a coffee"

[04:11] The golden benefits of helping your friends going through hospice

[05:37] How to be of help to others

[05:47] Helping a grieving friend

[06:28] Previous episodes on helping someone during grief that you can listen

[07:15] Golden takeaways from the episode

[08:29] Ending show and calls to action

• As we all want to help our friends undergoing hospice care with their loved ones, it is good to do that in a way that leaves a lasting, happy impression on someone's life. [05:37]

Forgrief.com

https://www.lovealwaysproject.org/

Marie's Contact:

Marie@HospiceExplained.com

www.hospiceexplained.com

http://buymeacoffee.com/hospice

Marie@HospiceEncounters.com

Leave a Voicemail: 206-705-3080

Hospice care is a compassionate and essential service that aims to improve the quality of life for patients with terminal illnesses. Contrary to misconceptions, hospice does not hasten death; rather, it focuses on providing comfort and support during the natural progression of the illness. This form of specialized care not only helps individuals live longer but also enhances their overall well-being. Hospice care offers a range of services tailored to each patient's unique needs, including pain management, emotional support, and spiritual guidance. It differs from home health care in that it concentrates on alleviating symptoms and enhancing the patient's end-of-life experience rather than curative treatments.

Those who give hospice a try, often find solace and comfort in this new routine. The hospice team is available 24/7, making it reliable and different from home health care. This accessibility means that patients can avoid unnecessary visits to the emergency room by contacting hospice for immediate assistance, which is truly a game changer. Choosing hospice care allows patients and their families to make the most of their precious time together, finding comfort and support during a challenging phase of life.

Join the conversation with Nurse Hadley as she shares her stories and life lessons from the perspective of being a Hospice nurse, momma, wife, and author of a New York Times best-selling book -The In-Between: Unforgettable Encounters During Life's Final Moments. Nurse Hadley is a Passionate advocate for end-of-life care and a TikTok star who shares moving stories of joy, wisdom, and redemption from her patients' final moments.

Tune in!

Key Highlights from the Episode;

[00:30] Episode intro and a quick bio of the guest; Nurse Hadley

[01:43] Nurse Hadley's backstory and how she started out in hospice education

[03:14] What Nurse Hadley does on Instagram and TikTok

[04:35] Nurse Hadley's book project, The In Between, and her goals

[05:41] A story in Nurse Hadley's book that describes the most difficult patient death for her

[06:56] Something important that you should know about Hospice

[08:22] What Nurse Hadley recommends patients focus on when on hospice service

[11:30] A question Nurse Hadley often gets from patients on Instagram and TikTok

[12:53] The time Nurse Hadley spends touching base with people to give them comfort

[14:08] Why hospice and whatever it does, does not kill patients; it's the illness

[16:41] Hospice comfort care and how it helps people live longer

[18:27] The difference between home health care and hospice care

[19:23] What inspired Nurse Hadley to get into hospice care space

[22:07] How to get Nurse Hadley's book and about her Nonprofit hospice house goals

[24:33] How to reach out and connect with Nurse Hadley

[24:54] Wrap-up and end of the show

●      Give hospice a try; 90% of people do that, and they get comfortable in their new routine with hospice, and they wouldn't have had that comfort if they hadn't given it a trial. [07:31]

●      You should always read the directions on the label of the medicine bottles and the written directions given in an after-visit summary; there are multiple medicines in comfort care; read and follow directions, and if you have any questions, call the hospice care team, that what they are there for.". [16:11]

●      The aids that hospice provides and the 24-7 availability makes it different from home health care; whenever you don't have to go to the ER because you can call hospice, that is a game changer. [18:40]

Nurse Hudley Book: https://www.amazon.com/Between-Unforgettable-Encounters-During-Moments/dp/059349993X

Get more information about Nurse Hudley Non-Profit Hospice House: https://www.instagram.com/p/CKKKYKLjWIW/?utm_source=ig_web_copy_link&hl=en

Let's Connect

Nurse Hudley

Website: https://nursehadley.com/

Instagram: https://www.instagram.com/nurse.hadley/?hl=en

Facebook: https://web.facebook.com/NurseHadley/?_rdc=1&_rdr

YouTube: https://www.youtube.com/@NurseHadley

TikTok: https://www.tiktok.com/@nursehadley?source=h5_m

The end of life is marked by various symptoms that might not always be immediately recognizable, and there often comes a phase where a person's health begins to decline from its usual state. Being able to discern the signs of impending natural death can be crucial for both the individual and their loved ones. It provides an opportunity to prepare and make necessary arrangements. From handling paperwork and bills to completing an end-of-life advanced directive form and other essential documents, there are several practical tasks that need attention. Additionally, decisions regarding burial versus cremation, choosing suitable burial ideas and memorial options, and discussions on caregiving play a significant role during this delicate season. Engaging in open and compassionate conversations with your loved ones about these matters can help you navigate the end-of-life journey with greater understanding and acceptance.

Join the conversation with your host, Marie Betcher, as she discusses a study by JAMA Network Open on Death and End-of-Life Care in Emergency Departments in the US to help increase awareness of the signs and symptoms of the end of life to avoid emergencies. By understanding these indicators, we can take proactive steps to prevent emergency situations and ensure more compassionate and appropriate end-of-life care.

Tune in!

Key Highlights from the Episode;

[00:30] Intro and what in for you in today's show

[01:47] JAMA Network study and results and Marie's goal for the discussion   

[03:14] Multiple chronic conditions and what they are

[04:44] Signs and symptoms of decline in the end-of-life season

[06:54] Having conversations and making preparations for the end-of-life care 

[08:37] Recognizing when your loved one needs end-of-life care and focusing on comfort

[10:07] When CPR is appropriate and most difficult for patients

[13:33] Making the best choices early and getting the right care team in place

[14:23] How end-of-life care help in processing grief more positively

[15:56] Wrap-up and end of the show

●      The end-of-life has many symptoms that we don't always recognize, but like pregnancy and birth, there is often a season where there is a decline in a person's normal state of health. [01:35]

●      When multiple disease processes are in place for yourself or a loved one, and there are signs of decline, it may be the end-of-life season. [04:31]

●      The dying process may begin a year or several years before someone's death. [05:52]

●      The hardest truth is that every single one of us will die, so it's very helpful to have made preparations ahead of that time. [07:28]

●      Each of us needs to be responsible for our own follow-up care, so you might be the one to bring up the hard questions. [15:26]

Reference article: https://jamanetwork.com/journals/jamanetworkopen/fullarticle/2798153

Let's Connect

Marie's Contact:
feedback@hospiceexplained.com
www.hospiceexplained.com
http://buymeacoffee.com/hospice
Marie@hospiceencounters.com
Leave a Voicemail: 206-705-3080

Linde Carter, MA, RN, NC-BC, CEOLD, CGD

Becoming a death doula is a profound, compassionate, and heart-centered journey that involves providing support and comfort to individuals and their families during the end-of-life process. To embark on this path, you don't need a medical background. You need genuine passion and training on the different services that death doulas offer. Equipped with these essential tools, a death doula can bring immeasurable value to those facing mortality, easing their fears and uncertainties with compassionate care. For families seeking an ideal death doula who aligns with their goals, asking the right questions will enable you to identify one with a good track record of professionalism, ethical conduct, and respect for diverse cultural and religious beliefs. In this episode with Linde Carter, we discuss what a death doula is, what they do and the pathway to becoming one. We also explore how families can find a death doula who aligns with their goals, values, and beliefs to ensure a harmonious and supportive experience during life's most challenging moments.

Linde Carter is a death doula and grief coach. Linde has been a registered nurse for almost 25 years and has spent more than half of that time as a hospice nurse and palliative care nurse at the bedside in patients' homes and long-term care facilities, in quality management and nursing management. She is also a board-certified nurse coach specializing in loss, grief, transition, and end-of-life coaching. As a certified end-of-life and grief doula, Linde has her own private coaching and doula practice, Simplicity Transition. Like so many others, Linde has encountered and struggled with loss in her life from early on, and she learned that grief is not just about loss through death; it's simply about loss of any kind.

Linde is passionate about supporting anyone experiencing any kind of loss or grief, anyone facing chronic, life-threatening illness and end of life, and anyone who may feel ready to move forward and carry their grief in a new way that is comfortable and healthy for them. Through grief and end-of-life coaching, Linde creates a space for others to know it's okay to be vulnerable, scared, and even hopeless and to not always have the extra strength to keep moving forward and to hold that space for openness, honesty, support, and hope. She also currently has an active Facebook Group, Growing Through Grief, and is happy to allow anyone to join.

Tune in!

Key Highlights from the Episode;

[00:30] Episode intro and a quick bio of the guest; Linde Carter

[04:24] Linde's personal and nursing background and how it weaved her way into death doula

[07:59] What a Death Cafe is and why Linde Death Positive Talks are different

[12:44] What inspired Linde to go above and beyond working as a hospice nurse

[15:01] The benefit that the hospice Linde works with provides that makes them stand out

[18:46] The nitty gritty of what a death doula does for people and the cost involved led 

[23:01] How much time Linde spend working as a death doula, and her goals

[23:45] How Linde works with families in grief and the time she spends with them

[25:38] Requirements and qualifications and how long it took Linde to become a death doula

[27:42] Things to consider when looking for a good death doula training company

[30:36] The best ways for families to find the best death doulas or end-of-life doulas

[31:41] Book and courses that Linde recommends for end-of-life doula or care

[33:24] The kind of questions to ask death doulas to find out if they align with your goals

[38:34] Linde's final words about death doula or end-of-life doula

[39:21] Why grief is so undermanaged and Linde's experience after losing her father

[42:46] Diversifying your career and how Linde balances the different wheels

[45:23] How to reach out to Linde and get help, support, or learn more about their offers

[46:58] Wrap-up and end of the show

●      We prepare for everything else in our life, but we don't plan for our death and don't want to think and talk about it. [07:04]

●      When you are looking for a hospice organization, you may be pushed to it because it is last minute, but don't just take the words of whoever is referring you to hospice, do your own research to find out the best; if you sign on with a hospice organization and you are not happy with it, ditch them and go somewhere else, there are good one out there, and you deserve the care and benefits    [14:27]

●      You don't have to have a medical background to be a death doula; you just need to have a heart for the work; there are different courses available, and you need to get training on the different services you can offer. [26:06]

●      Our culture doesn't do very well in grief, we teach everybody about gaining things in life, which is great, but we don't teach people how to lose, respond to loss and support others. [39:55]

Re-Imagining The End of Life by Janet Booth: https://www.amazon.com/Re-Imagining-End-Life-Self-Development-Reflective/dp/1798285398

On Grief and Grieving by Elisabeth Kübler-Ross: https://www.amazon.com/Grief-Grieving-Finding-Meaning-Through/dp/1476775559/ref=sr_1_4?crid=1NXL6SHCDRT1S

It's OK That You're Not OK by Megan Devine: https://www.amazon.com/Its-That-Youre-Not-Understand/dp/1622039076.

 How To Carry What Cannot Be Fixed by Megan Devine: https://www.amazon.com/How-Carry-What-Cant-Fixed/dp/1683643704

International Doula Life Movement: https://www.internationaldoulalifemovement.com/

Integrative Nurse Coach Academy: https://inursecoach.com/

The Nurse Coach Collective: https://thenursecoaches.com/

The National End Of Life Doula Alliance: https://www.nedalliance.org/

The Conscious Dying Institute: https://www.consciousdyinginstitute.com/

Marie's Contact:

feedback@hospiceexplained.com

www.hospiceexplained.com

http://buymeacoffee.com/hospice

Marie@hospiceencounters.com

Leave a Voicemail: 206-705-3080

Hospice care offers individuals nearing the end of their life a seamless passage into the afterlife. However, many individuals opt for hospice care for their loved ones when it might already be overdue. Hence, the question arises: When is the appropriate time to consider hospice care? What are the noticeable symptoms in a loved one that serve as unmistakable indicators of their impending end of life? Additionally, what essential information should you gather in advance for the hospice nurse's understanding of the patient's needs?

Join today's episode, where Marie does an in-depth discussion on the information regarding the admission to hospice, the questions, and why they get asked. This is very important information because it gives insights if you have been contemplating whether your family member should be admitted to hospice care. This episode will serve as your ultimate guide.

Tune in!

Key Highlights from the Episode;

[00:30] Episode intro and what is in for you in today's episode

[01:05] The key to hospice admissions

[01:33] What the hospice's admitting nurse looks for in a patient

[01:34] Patient's personal information

[02:32] The diagnosis of things that made the patient seek hospice care

[06:11] Other general questions hospice nurses may ask concerning a patient

[08:43]  If the patient is falling and the number of occurrences

[09:06] The patient's appetite

[15:48] Patient's history of having wounds

[20:10] When should you take your patient for hospice care?

[22:07] Ending show and calls to action

• The admitter RN is the eyes and ears of the hospice provider. They are usually the first people to see the hospice patient. [05:16] 

• Increased falls indicate that things are not well with a hospice patient, which might suggest that things are starting to decline. For an average normal adult, it is not typically easy to fall. [08:52] 

• Difficulties in swallowing are common end-of-life symptoms for hospice patients. [09:35]

• For hospice, the reality is that if the body stops focusing on healing wounds. If you see a lot of non-healing injuries, it is an area of decline for your loved one. [15:34]

Episode #2 Who is on the Hospice Team

https://podcasts.apple.com/us/podcast/hospice-explained-podcast/id1558665301?i=1000515235697

Episode #3 Equipment

https://podcasts.apple.com/us/podcast/hospice-explained-podcast/id1558665301?i=1000515664437

Episode #4 Eligibility

https://podcasts.apple.com/us/podcast/hospice-explained-podcast/id1558665301?i=1000516067276

Episode #32 The Fast & PPS scale

https://podcasts.apple.com/us/podcast/hospice-explained-podcast/id1558665301?i=1000546284680

Episode #41 Interview w/Justin Chapin PA-C

https://podcasts.apple.com/us/podcast/hospice-explained-podcast/id1558665301?i=1000559261156

Marie's Contact:

Marie@HospiceExplained.com

www.hospiceexplained.com

http://buymeacoffee.com/hospice

Marie@HospiceEncounters.com

Leave a Voicemail: 206-705-3080

I share what I saw while visiting a dying Hospice patient.

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Email Me Your Stories: feedback@hospiceexplained.com

Website: http://hospiceexplained.com

150 Understanding Hospice Care: Scams, Patient Rights, and Quality Services

In this episode of Hospice Explained, host Marie Betcher RN, a former hospice RN, introduces the podcast's educational mission and introduces returning guest Peter Abraham BSN, RN, an accomplished author on hospice topics. They discuss the importance of identifying legitimate hospice agencies, recognizing patient rights, and ensuring quality hospice care. Marie and Peter also explore the emotional challenges of hospice scams, the role of rural hospices, and key insights on palliative care. Peter shares his resources, including his website Compassion Crossing and multiple hospice care books on Amazon, to further educate families and patients.

00:00 Introduction to Hospice Explained

00:42 Cloud Nine Care System Partnership

01:31 Guest Introduction: Peter Abraham, BSN, RN

03:05 Identifying Legitimate Hospice Agencies

08:47 Understanding Your Rights in Hospice Care

20:52 Challenges in Rural Hospice Care

27:39 Options for Poor Hospice Care

30:55 Conclusion and Contact Information

https://compassioncrossing.info/author/

On Amazon.com: Peter M. Abraham BSN, RN

Finding a Hospice Agency

1. You can use Medicare.gov to help find a hospice agency,

2. choose Find provider

3. Choose Hospice

4. then add your zip code

This should be a list of Hospice Agencies local to you or your loved one.

Hospice Explained Affiliates & Contact Information

Buying from these Affilite links will help support this Podcast. 

Maire introduces a partnership with Suzanne Mayer RN inventor of the  cloud9caresystem.com, 
When patients remain in the same position for extended periods, they are at high risk of developing pressure injuries, commonly known as bedsores. One of the biggest challenges caregivers face is the tendency for pillows and repositioning inserts to easily dislodge during care.(Suzanne is a former guest on Episode #119)

When you order with Cloud 9 care system, please tell them you heard about them from Hospice Explained.(Thank You)

 If you would, you can donate to help support Hospice Explained at the Buy me a Coffee link

 https://www.buymeacoffee.com/Hospice

Marie's Contact
Marie@HospiceExplained.com
www.HospiceExplained.com

Finding a Hospice Agency

1. You can use Medicare.gov to help find a hospice agency,

2. choose Find provider

3. Choose Hospice

4. then add your zip code

This should be a list of Hospice Agencies local to you or your loved one.

Interview with Kathleen Hampton and she talks about the Hospice experience she had in her home with her Mother in Law.

Kathy also shares on Hospice Encounters Episode #6

https://sites.libsyn.com/405716/encounters-with-kathleen-hampton

https://www.amazon.com/Biblical-Secrets-Heal-Your-Body/dp/B096Z8CYNS/ref=sr_1_1?crid=FB04VO3KL5GA&keywords=kathleen+hampton&qid=1658021053&sprefix=kathleen+hampton%2Caps%2C143&sr=8-1

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Website: http://hospiceexplained.com

This interview is focused On Gastrointestinal problems: Nausea, Vomiting, Constipation and Diarrhea in the End of life Season.

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Leave A Voicemail: 206-705-3080

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Website: http://hospiceexplained.com

This is the 40th Episode of Hospice Explained and the 1rst Episode of Hospice Encounters.

Hospice Encounter will feature stories from Hospice and the End of Life Season. This Podcast is meant to be Encouraging and a safe Platform to share these Encounters-my Dad who saw "The Great Beyond" which he described as "BEAUTIFUL"

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Leave A Voicemail: 206-705-3080

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Website: http://hospiceexplained.com

Interview with Jon Lefrandt from lovealwaysproject.org/ and https://www.forgrief.com/

The Love Always Project is on a mission to encourage people to think more positively and proactively about End-of-Life issues and funeral pre-arrangement.

Jon's Forgrief.com gives expert grief support, honest conversation and heartfelt community. Forgrief.com is meant to help to provide the best resources and information available to make your life easier when it's often the hardest.

https://www.lovealwaysproject.org/

Instagram: the_love_always_project

Facebook: The love always project

Twitter @thelovealways

Hospice Explained Episode #14 Memorial Service and post Death planner with Bard Shelton.

https://podcasts.apple.com/us/podcast/hospice-explained-podcast/id1558665301?i=1000526222567

Hospice Explained Episode #17 with Barb Shelton explaining the Family Heirloom Record Page & The Memorial and "Post-Death" planner page

https://podcasts.apple.com/us/podcast/hospice-explained-podcast/id1558665301?i=1000529007234

Buymeacoffee.com/Hospice

Leave A Voicemail: 206-705-3080

Email Me Your Stories: feedback@hospiceexplained.com

Website: http://hospiceexplained.com

Interview with Kim Medici Shelquist from LoveAlwaysproject.org The Love Always Project is on a mission to encourage people to think more positively and proactively about End-of-Life issues and funeral pre-arrangement.

https://www.lovealwaysproject.org/

Instagram: the_love_always_project

Facebook: The love always project

Twitter @thelovealways

Buymeacoffee.com/Hospice

Leave A Voicemail: 206-705-3080

Email Me Your Stories: feedback@hospiceexplained.com

Website: http://hospiceexplained.com

Interview with Dean Lambert from LoveAlwaysproject.org The Love Always Project is on a mission to encourage people to think more positively and proactively about End-of-Life issues and funeral pre-arrangement.

https://www.lovealwaysproject.org/

Instagram: the_love_always_project

Facebook: The love always project

Twitter @thelovealways

Buymeacoffee.com/Hospice

Leave A Voicemail: 206-705-3080

Email Me Your Stories: feedback@hospiceexplained.com

Website: http://hospiceexplained.com

This is an Interview with Author and Hospice Nurse Derek J. Flores RN. We talk about his Book: Seven Keys to a Peaceful Passing: A Hospice Nurse's Step-by-Step Guide to Hospice we chat about what is a Pain crisis and service failure. We also discuss the minimum amout of caregivers, how taking care of Hospice patients can be a Marathon vs. a sprint. Giving patients honesty about their diagnosis. Physician aid in dying and that by allowing natural death we don't bypass the grieving process. His latest book: LETTERS TO A HOSPICE NURSE: Transforming Grief to Joy .  We also discuss the Bereavement team.

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Website: http://hospiceexplained.com

On today's episode I interview Monica who has experience in Emergency Medicine and as a Hospice RN who helped orient me when I started working in Hospice. We discuss how Hospice can benefit patients in the end of life.

https://linktr.ee/HospiceExplained

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Website: http://hospiceexplained.com

This is a short discussion regarding Pediatric Hospice.

https://getpalliativecare.org/whatis/pediatric/

https://palliativecare.org.au/wp-content/uploads/dlm_uploads/2016/12/20151109_myths_updated.pdf

https://www.cancer.net/coping-with-cancer/physical-emotional-and-social-effects-cancer/types-palliative-care

https://pubmed.ncbi.nlm.nih.gov/26333754/

https://www.merckmanuals.com/home/disorders-of-nutrition/nutritional-support/nutritional-support-for-people-who-are-dying-or-severely-demented

https://linktr.ee/HospiceExplained

Buymeacoffee.com/Hospice

Leave A Voicemail: 206-705-3080

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Website: http://hospiceexplained.com

This Episode discusses caregiving and expectations for patients and their loved ones.

https://www.crossroadshospice.com/hospice-resources/education-for-families/scores-and-scales-understanding-the-balance-of-hospice-eligibility/

https://www.compassus.com/sparkle-assets/documents/palliative-performance-scale.pdf

https://linktr.ee/HospiceExplained

Buymeacoffee.com/Hospice

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Email Me Your Stories: feedback@hospiceexplained.com

Website: http://hospiceexplained.com

149 Understanding the Role of Professional Fiduciaries with Sara Ecklein

In episode 149 of Hospice Explained, host Marie Betcher RN, interviews Sara Ecklein, a private fiduciary and host of the Legacy of Love podcast. Sara shares her journey from witnessing a loved one's final days to becoming a professional fiduciary who helps families navigate elder care, conservatorships, special needs trusts, and long-term care planning. She discusses the importance of estate planning, the roles of trustees and power of attorney, and the value of ongoing conversations about end-of-life wishes. The episode emphasizes the importance of clear communication and proactive planning to avoid family conflicts and ensure a smooth transition during difficult times.

00:00 Introduction and Disclaimer

00:29 About the Host and Podcast

00:39 Cloud 9 Care System Partnership

01:39 Interview with Sara Ecklein Begins

03:12 Sara's Journey to Becoming a Fiduciary

04:41 Understanding the Role of a Professional Fiduciary

11:09 Importance of Estate Planning

12:46 Challenges and Misconceptions in Estate Planning

16:52 The Emotional and Practical Aspects of Estate Planning

27:37 Final Thoughts and Contact Information

29:59 Conclusion and Call to Action

Sara's Free Workbook offer:  https://www.trustandhonor.co/workbook

https://podcasts.apple.com/us/podcast/the-legacy-of-love/id1756395177?i=1000661709611

Contact Sara: 

LinkedIn: www.linkedin.com/in/sara-ecklein

Facebook: @Sara Ecklein, CLPF

Instagram: @themindfulfiduciary

Website: https://www.trustandhonor.co/

National Guardianship Associates: https://www.guardianship.org/

Hospice Explained Affiliates & Contact Information

Buying from these Affilite links will help support this Podcast. 

Maire introduces a partnership with Suzanne Mayer RN inventor of the  cloud9caresystem.com, 
When patients remain in the same position for extended periods, they are at high risk of developing pressure injuries, commonly known as bedsores. One of the biggest challenges caregivers face is the tendency for pillows and repositioning inserts to easily dislodge during care.(Suzanne is a former guest on Episode #119)

When you order with Cloud 9 care system, please tell them you heard about them from Hospice Explained.(Thank You)

 If you would, you can donate to help support Hospice Explained at the Buy me a Coffee link

 https://www.buymeacoffee.com/Hospice

Marie's Contact
Marie@HospiceExplained.com
www.HospiceExplained.com

Finding a Hospice Agency

1. You can use Medicare.gov to help find a hospice agency,

2. choose Find provider

3. Choose Hospice

4. then add your zip code

This should be a list of Hospice Agencies local to you or your loved one.

This episode describes the Fast Scale which is used in Azlheimer's and Dementia patients to assist in determining Hospice Eligibility, and the FAST scale which is a percentage scale scored in 5 areas: Ambulation(walking), Activity & Evidence of Disease, Self-Care, Intake(food/fluids), Level of Conscious(alertness).

https://www.crossroadshospice.com/hospice-care/hospice-eligibility-criteria/

https://www.medicare.gov/coverage/hospice-care

https://www.elderguru.com/fast-scale-for-dementia/

https://www.crossroadshospice.com/hospice-resources/education-for-families/scores-and-scales-understanding-the-balance-of-hospice-eligibility/

https://www.compassus.com/sparkle-assets/documents/palliative-performance-scale.pdf

https://stillwaterhospice.com/

https://linktr.ee/HospiceExplained

Buymeacoffee.com/Hospice

Leave A Voicemail: 206-705-3080

Email Me Your Stories: feedback@hospiceexplained.com

Website: http://hospiceexplained.com

This episode discusses the term Call Dr. Kevorkian, Death with Dignity, Physician assisted suicide and Physician aid in Dying. 

This is a discussion and education from Dr. Mulder a Pioneer in Palliative Care and Hospice Medicine. 

https://deathwithdignity.org

https://en.wikipedia.org/wiki/Jack_Kevorkian

https://en.wikipedia.org/wiki/Assisted_suicide

https://depts.washington.edu/bhdept/ethics-medicine/bioethics-topics/detail/73

https://linktr.ee/HospiceExplained

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  Dr. John Mulder is a pioneering member of the palliative care specialty. This episode is part 1 of 2. On Today's episode Dr. Mulder explains differences in palliative and hospice, how technology can impact healthcare and the stigma of other Doctors referring to hospice or palliative care for their patients.

https://linktr.ee/HospiceExplained

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In this episode of Hospice Explained, host Marie Betcher RN interviews Chris Graham, PA, the co-founder of Stillwater Hospice, discussing Medicare coverage for hospice patients and the importance of education in rural end-of-life care. They emphasize the significance of choice, comfort, and empowerment for both patients and caregivers in the hospice journey.

00:00 Introduction

00:40 Guest Introduction

05:38 Medicare Coverage for Hospice Patients

00:54 Rural Hospice Care

15:10 Insurance Coverage and Charity Care

21:27 Choice and Empowerment in End-of-Life Care

21:41 Caregiver Support and Grieving Process

 https://stillwaterhospice.com/

https://www.medicare.gov/coverage/hospice-care

https://linktr.ee/HospiceExplained

Buymeacoffee.com/Hospice

Leave A Voicemail: 206-705-3080

Email Me Your Stories: feedback@hospiceexplained.com

Website: http://hospiceexplained.com

28 Understanding End-of-Life Care: Insights from Pepper Cappuccio, RN

Hospice Explained, host Marie Betcher RN focuses on demystifying end-of-life care. Special guest Pepper Cappuccio RN, author of 'Warm Water, The Last Act of Compassion," shares his experiences as a hospice nurse, emphasizing the importance of compassion, cultural diversity in grieving, and pain management. The episode also covers the significant role music plays in soothing patients and starting the grieving process. Additionally, the importance of medication and various supportive measures are discussed to help families manage their loved one's end-of-life journey.

00:00 Introduction to Hospice Explained

00:29 Episode 104: Meet Your Host, Marie Betcher

00:41 Community and Affiliate Links

01:37 Introducing Pepper Cappuccio, RN

01:53 Pepper's Journey and Family Tradition

03:00 Warm Water: The Last Act of Compassion

05:14 Cultural Diversity in End-of-Life Care

07:33 The Role of Music in Hospice Care

10:35 Pain Management and End-of-Life Expectations

14:43 Final Thoughts and Recommendations

https://www.google.com/url?sa=t&rct=j&q=&esrc=s&source=web&cd=&ved=2ahUKEwirsYDGzfT1AhUQHTQIHZ2TCJkQFnoECA0QAQ&url=https%3A%2F%2Fwww.amazon.com%2FWarm-Water-Last-Act-Compassion%2Fdp%2F1098070429&usg=AOvVaw05zbRREUc6uCoM55K_Spgs

https://linktr.ee/HospiceExplained

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Website: http://hospiceexplained.com

This is a short episode describing some of the bodies changes in the last few days of life and what is happening next with Hospice Explained podcast.

https://www.hospiceotp.org/how-we-help-you/when-the-time-comes-booklet/

https://docsend.com/view/uev27je6u4yidmqa

https://www.crossroadshospice.com/hospice-resources/end-of-life-signs/breathing-patterns/

https://www.healthline.com/health/kussmaul-breathing#vs-cheyne-stokes-breathing

https://linktr.ee/HospiceExplained

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This episode describes the FLACC pain scale and how to use it.

F=Face
L=Legs
A=Activity
C=Cry
C=Consolability

https://www.crossroadshospice.com/hospice-palliative-care-blog/2017/september/07/all-you-need-to-know-about-pain-management-in-hospice/

https://linktr.ee/HospiceExplained

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This episode explains how to ask a patient to describe their pain using the 0-10 pain scale.

https://creakyjoints.org/doctor-patient/pain-scale-not-best-way-communicate-pain/

Questions to ask the person in Pain:

1. Are you in pain---if yes--

2. ask what part of the body

3. ask for a number on the 0-10 scale

4. Is it constant or intermittent

5. Describe pain using words like:

Aching, sharp, shooting, burning, tingling, numbness, searing, jabbing, stabbing, etc

6. Ask what relieves pain, sleep, elevate extremity, heat, ice, bath, massage, or medication

7. what number they take nothing, what number they need over the counter meaning Acetaminophen or Ibuprofen, then what number for Prescription pain medicine.

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This episode discusses the difference between: comfort, palliative and curative care. The role of comfort care and how to conserve the energy of the patient to do the activities they most prefer.

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https://www.uptodate.com/contents/palliative-care-for-adults-with-nonmalignant-chronic-lung-disease?source=related_link#H632048628

https://www.crossroadshospice.com/hospice-resources/hospice-caregiver-support/what-is-comfort-care/

https://www.uptodate.com/contents/overview-of-fatigue-weakness-and-asthenia-in-palliative-care

https://www.google.com/search?client=firefox-b-1-d&q=fatigue+defini

https://www.mariecurie.org.uk/professionals/palliative-care-knowledge-zone/symptom-control/weakness-fatigue#causes

https://linktr.ee/HospiceExplained

This episode discusses helping your loved one be comfortable in their own or a hospital bed, also discussed is controlling symptoms of Shortness of breath.

https://crhcf.org/insights/understanding-wound-care-in-the-hospice-and-palliative-setting/

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Email Me Your Stories: feedback@hospiceexplained.com

Website: http://hospiceexplained.com

Contact Erin: Interested in our Grief Improv Theatre? Check out Compassionate Coaching
 Connect with me on LinkedIn
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 Hospice Explained Affiliates & Contact Information

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Maire introduces a partnership with Suzanne Mayer RN inventor of the  cloud9caresystem.com, 
When patients remain in the same position for extended periods, they are at high risk of developing pressure injuries, commonly known as bedsores. One of the biggest challenges caregivers face is the tendency for pillows and repositioning inserts to easily dislodge during care.(Suzanne is a former guest on Episode #119)

When you order with Cloud 9 care system, please tell them you heard about them from Hospice Explained.(Thank You)

 If you would, you can donate to help support Hospice Explained at the Buy me a Coffee link

 https://www.buymeacoffee.com/Hospice

Marie's Contact
Marie@HospiceExplained.com
www.HospiceExplained.com

Finding a Hospice Agency

1. You can use Medicare.gov to help find a hospice agency,

2. choose Find provider

3. Choose Hospice

4. then add your zip code

This should be a list of Hospice Agencies local to you or your loved one.

This is just a very short acknowledgement that not all deaths are expected and to reach out to those we love and care about when they may be struggling.

https://linktr.ee/HospiceExplained

Buymeacoffee.com/Hospice

Leave A Voicemail: 206-705-3080

Email Me Your Stories: feedback@hospiceexplained.com

Website: http://hospiceexplained.com

This is General information regarding the death of a loved one and how Hospice can help.

https://linktr.ee/HospiceExplained

Buymeacoffee.com/Hospice

Leave A Voicemail: 206-705-3080

Email Me Your Stories: feedback@hospiceexplained.com

Website: http://hospiceexplained.com

This Episode explains some of the times when it may be needed to Call the Nurse or the Hospice Team

https://linktr.ee/HospiceExplained

Buymeacoffee.com/Hospice

Leave A Voicemail: 206-705-3080

Email Me Your Stories: feedback@hospiceexplained.com

Website: http://hospiceexplained.com