Every Voice Speaks – Details, episodes & analysis

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Every Voice Speaks

The SPEAK Foundation

Business

Health & Fitness

Frequency: 1 episode/27d. Total Eps: 7

Every Voice Speaks unites and empowers the muscular dystrophy community by elevating patient voices and fostering collaboration across conditions like LGMD, FSHD, myotonic, Becker and Duchenne. Through personal stories, expert interviews, and accessible discussions, the show helps listeners understand drug development and learn how their input can influence trials, policies, and care. By centering lived experience, it strengthens advocacy, advances research, and supports better futures for kids and adults living with muscular dystrophy.

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Data updated on 14/07/2026

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Score global : 63%

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Commentary on Episode 6 - "Industry Deep Dive with Sarepta Therapeutics"

Season 1 · Episode 7

Saturday, July 11, 2026 • Duration 17:44

Join hosts Pat and Kat as they provide commentary on their discussion with Sarepta Therapeutics.

Industry Deep Dive With Sarepta Therapeutics

Season 1 · Episode 6

Friday, July 10, 2026 • Duration 44:10

Join hosts Kat and Pat as they sit down with Dr. Louise Rodino-Klapac (Head of R&D) and Dr. James Richardson (CMO) from Sarepta. This episode shines a light on the clinical hold that the FDA has put on the company’s research into LGMD 2e. We discuss the past and the path forward as industry works to balance communication of difficult news along with trying to help families understand why the clinical trial landscape is not a straight and easy path.

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Episode #005 - The Muscular Dystrophy Landscape: 40 Years of Progress

Season 1 · Episode 5

Thursday, June 4, 2026 • Duration 01:00:21

Parent Project Muscular Dystrophy got its start in 1994, when Pat Furlong and a group of parents and grandparents decided they couldn’t wait any longer for progress in Duchenne research. After her sons, Christopher and Patrick, were diagnosed in 1984, Pat refused to accept that there was “no hope and little help.” In this episode, we talk about how far the field has come, the real challenges behind life-changing work, and where the community is headed next.

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Episode #004 - Stuck Waiting: Who Gets Left Behind in Muscular Dystrophy Drug Development?

Season 1 · Episode 4

Friday, May 15, 2026 • Duration 44:38

Today, we’re asking a question that’s becoming harder to ignore: Who is the current drug development system actually built for—and who is it leaving behind?

Science is advancing at an unprecedented pace, access to that science is not keeping up—and it’s not reaching everyone equally. Kat and Pat welcome bioethisist Rafael Escondon to break this all down and talk about where and how the voice of the patient fits in.

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Episode #003 - Being Disabled is Expensive

Season 1 · Episode 3

Monday, April 6, 2026 • Duration 57:01

This episode highlights the real financial burden of adults living with a rare chronic illness. Hosts Kat and Pat center lived experience, and connect personal stories to larger systemic issues. Episode 3 features Abby Lehner, a young woman living in Boston who helps us understand that being disabled is expensive in more ways than simply financial.

To connect with our guests for questions and further discussion:

Kathryn Bryant: kathryn@thespeakfoundation.com

Patrick Moeschen: pmoes@comcast.net

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Episode #002 - Designed With Us: Adult MD Clinics Through Patient Eyes

Season 1 · Episode 2

Monday, March 2, 2026 • Duration 43:21

Adult multidisciplinary clinics for muscular dystrophy are essential because the disease affects many body systems and causes complex cardiac, respiratory, orthopedic, and psychosocial issues that require coordinated care. These clinics bring together specialists such as neurologists, cardiologists, pulmonologists, rehabilitation experts, and social workers to improve quality of life.

Patient-centered design means organizing the clinic’s space, processes, and communication around patient priorities rather than system convenience. It emphasizes partnership, autonomy, and reducing physical, emotional, and logistical challenges so that care supports each person’s life goals.

To connect with our guests for questions and further discussion:

Kathryn Bryant: kathryn@thespeakfoundation.com

Patrick Moeschen: pmoes@comcast.net

Carol Abraham: carol@lgmd-info.org

Nevin Steiner: nevinsteiner@gmail.com

Dr. Nicholas Johnson: nicholas.johnson@vcuhealth.org

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Episode #001 - Uniting the Muscular Dystrophy Community

Season 1 · Episode 1

Wednesday, January 28, 2026 • Duration 34:48

The conversation centers around the experiences of individuals living with Muscular Dystrophy, focusing on personal diagnosis stories, the challenges faced during childhood, and the importance of advocacy within the community. The hosts discuss their journeys, the evolution of understanding Muscular Dystrophy, and the founding of the Speak Foundation, which aims to amplify patient voices and support those affected by the condition.

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Every Voice Speaks – Details, episodes & analysis

Podcast details

Recent rankings

Apple Podcasts

Spotify

Shared links between episodes and podcasts

RSS feed quality and score

Publication history

Latest published episodes

Related Shows Based on Content Similarities

Related Shows Based on Content Similarities

Apple Podcasts

Spotify

Every Voice Speaks – Details, episodes & analysis

Podcast details

Recent rankings

Apple Podcasts

Spotify

Shared links between episodes and podcasts

RSS feed quality and score

Publication history

Latest published episodes

Similar podcasts and content

Related Shows Based on Content Similarities

Related Shows Based on Content Similarities

Apple Podcasts

Spotify