EAHAD – Details, episodes & analysis

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EAHAD

EAHAD - European Association for Haemophilia and Allied Disorders

Health & Fitness

Frequency: 1 episode/33d. Total Eps: 18

Welcome to the official podcast of the European Association for Haemophilia and Allied Disorders (EAHAD). EAHAD is a multidisciplinary organization committed to improving the lives of people living with bleeding disorders in Europe. Our podcast is dedicated to providing valuable insights, discussions and updates on the latest developments in the field of haemophilia and allied disorders. Join us as we explore a wide range of topics including treatment, research, and patient care.

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Data updated on 04/07/2026

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Apple Podcasts

🇫🇷 France - Medicine
19/11/2024
#88
🇫🇷 France - Medicine
18/11/2024
#60

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https://academy.eahad.org/eahad/2023/meet-the-author-flora-van-leeuwen/402756
4 shares
https://academy.eahad.org/eahad/2024/module-9-peripartum-management-of-women-with-von/408873
4 shares
https://academy.eahad.org/eahad/2023/module-7-menstrual-problems-and-inherited-bleedin/405219
3 shares

https://onlinelibrary.wiley.com/doi/full/10.1111/hae.14791
4 shares
https://onlinelibrary.wiley.com/doi/full/10.1111/hae.14705
2 shares
https://onlinelibrary.wiley.com/doi/abs/10.1111/hae.14747
2 shares

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Score global : 53%

Publication history

Monthly episode publishing history over the past years.

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Latest published episodes

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E-Learning Ep. 13: Surgery in patients with haemophilia with inhibitors

Season 1 · Episode 13

Thursday, October 17, 2024 • Duration 25:08

Welcome to our podcast series, today we interview Maria Elisa Mancuso, Senior Hematology Consultant Center for Thrombosis and Hemorrhagic Diseases, IRCCS Humanitas Research Hospital Milan, and Yesim Dargaud, head of the Clinical Haemostasis Unit at Lyon University Hospitals and the coordinator of the French reference centre for haemophilia to discuss the critical topic of managing surgery in haemophilia patients with inhibitors. Major surgeries for this unique patient population demand specialized expertise, a coordinated multidisciplinary team, and cutting-edge therapeutic strategies. 🎥 The full module is available on the EAHAD Academy: https://academy.eahad.org/eahad/2024/module-132-surgery-in-patients-with-haemophilia/4147547

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E-Learning Ep. 12: Surgery in patients with haemophilia

Season 1 · Episode 12

Monday, September 2, 2024 • Duration 16:06

Welcome to our podcast series, today we interview Maria Elisa Mancuso, Senior Hematology Consultant Center for Thrombosis and Hemorrhagic Diseases, IRCCS Humanitas Research Hospital Milan, and Yesim Dargaud, head of the Clinical Haemostasis Unit at Lyon University Hospitals and the coordinator of the French reference centre for haemophilia to discuss the best practices for managing surgery in patients with haemophilia. 🎥 The full module is available on the EAHAD Academy: https://academy.eahad.org/eahad/2024/module-131-surgery-in-patients-with-haemophilia/4145760

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Meet the Author Ep. 4: ACTIVLIM-Hemo: A new self-reported, unidimensional and linear measure of activity limitations in persons with haemophilia

Season 1 · Episode 4

Saturday, August 3, 2024 • Duration 22:44

This episode features Sébastien Lobet who is currently a Physiotherapist and Researcher at the Haemostasis and Thrombosis Unit at the Cliniques Universitaires Saint-Luc at Université Catholique de Louvain in Brussels, Belgium. He was also chair of the EAHAD Physiotherapists Committee.
Paul Mclaughlin will interview him about his recent paper titled "ACTIVLIM-Hemo: A new self-reported, unidimensional and linear measure of activity limitations in persons with haemophilia".
📰 Read the full article on the Haemophilia Journal: https://onlinelibrary.wiley.com/doi/full/10.1111/hae.14705

🎥 Watch the episode on the EAHAD Academy: https://academy.eahad.org/eahad/2024/meet-the-author-sbastien-lobet/4142499

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E-Learning Ep. 11: How can we improve the efficacy and safety of gene therapy?

Season 2 · Episode 11

Tuesday, July 23, 2024 • Duration 20:47

Welcome to our podcast series, today we interview Prof. Thierry VandenDriessche to discuss how to enhance the efficacy and safety of gene therapy for haemophilia A and B. Despite achieving multiyear therapeutic levels of factor VIII and factor IX in patients, challenges remain. Variability in expression, gradual decline of factor VIII levels, and frequent incidence of transaminitis present ongoing hurdles.

In this episode, we delve into these challenges and discuss strategies to overcome them, with a focus on the use of adeno-associated viral vectors (AAV). We also examine the advancements and limitations of integrating vector systems, such as lentiviral vectors and CRISPR-based gene editing, in preclinical studies. These strategies aim to maintain sustained clotting factor expression, even amidst target cell division.

🎥 Watch the full module on the EAHAD Academy: https://academy.eahad.org/eahad/2024/module-12-how-can-we-improve-the-efficacy-and-saf/419034

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E-Learning Ep. 10: Clinical Experience in Haemophilia Gene Therapy

Season 2 · Episode 10

Tuesday, July 9, 2024 • Duration 20:47

Dive deep into understanding the Clinical Experience in Haemophilia Gene Therapy with Johnny Mahlangu.

🎥 Watch the full module on the EAHAD Academy: ⁠https://academy.eahad.org/eahad/2024/module-11-clinical-experience-in-haemophilia-gene/417335⁠

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E-Learning Ep. 9: Basic Science of Haemophilia Gene Therapy

Season 2 · Episode 9

Monday, July 1, 2024 • Duration 21:02

This new episode on the Basic Science of Haemophilia Gene Therapy with Paul Batty introduces the science underlying this new therapy. Itprovides an overview of different gene therapy approaches, focussing on adeno-associated viral (AAV) vectors that are used for the treatment of haemophilia.

🎥 Watch the full module on the EAHAD Academy: https://academy.eahad.org/eahad/2024/module-10-basic-science-of-haemophilia-gene-thera/411461

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E-Learning Ep. 8: Peripartum management of women with von Willebrand Disease

Season 2 · Episode 8

Thursday, June 13, 2024 • Duration 23:31

In this episode, we explore the complexities of managing Von Willebrand Disease in women during childbirth. This in-depth discussion goes beyond the basics, addressing the unique challenges faced by women and highlighting the essential considerations for providing optimal care. This presentation refers to all people with the ability to menstruate.

🎥 Watch the full module on the EAHAD Academy: https://academy.eahad.org/eahad/2024/module-9-peripartum-management-of-women-with-von/408873

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Meet the Author Ep. 3: Physical activity, physical fitness and cardiometabolic risk amongst adults with moderate and severe haemophilia

Season 1 · Episode 3

Monday, June 3, 2024 • Duration 09:22

This episode features Megan Kennedy talking with Paula Loughnane, a member of the EAHAD Physiotherapists Committee, about her recent research on the physical well-being of adults with moderate and severe haemophilia. The study delves into the realms of physical activity, fitness, and cardiometabolic risks among this population.

📰 Read the full article on the Haemophilia Journal: https://onlinelibrary.wiley.com/doi/full/10.1111/hae.14653

🎥 Watch the episode on the EAHAD Academy: https://academy.eahad.org/eahad/2024/meet-the-author-megan-kennedy/409870

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Meet the Author Ep. 2: Pain interferes with daily activities, emotions and sleep in adults with severe, moderate and mild haemophilia: A national cross-sectional survey

Season 1 · Episode 2

Monday, June 3, 2024 • Duration 03:56

This time, we're thrilled to host Valérie-Anne Chantrain, delving into her groundbreaking article "Pain interferes with daily activities, emotions and sleep in adults with severe, moderate and mild haemophilia: a national cross-sectional survey".

Pain poses a significant challenge for individuals with haemophilia, impacting daily life, emotions, and even sleep. Valérie-Anne's study is an exploration within a biopsychosocial framework, shedding light on the prevalence and interference of pain in severe, moderate, and mild haemophilia. Surveying 185 respondents, the findings are eye-opening. A staggering 67% reported pain, with varying degrees across severity levels. Beyond statistics, the study unravels the intricate relationships between pain severity, interference, and health-related quality of life (HR-QoL).

📰 Read the full article on the Haemophilia Journal: ⁠ https://onlinelibrary.wiley.com/doi/abs/10.1111/hae.14747⁠ 🎥 Watch the episode on the EAHAD Academy: https://academy.eahad.org/eahad/2023/meet-the-author-valrie-anne-chantrain/404929

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Meet the Author Ep. 1: Monitoring recovery of joints after bleeding. Physical examination and ultrasound are complementary

Season 1 · Episode 1

Monday, June 3, 2024 • Duration 07:55

Welcome to the EAHAD Podcast for the "Meet the Author" series. Today, we are joined by Flora van Leeuwen, author of the article "Monitoring recovery of joints after bleeding: physical examination and ultrasound are complementary". In this episode, Magnus Aspdahl, a member of the EAHAD Physiotherapists Committee, interviews Flora about her insights and findings.

📰 Read the full article on the Haemophilia Journal: https://onlinelibrary.wiley.com/doi/full/10.1111/hae.14791 🎥 Watch the episode on the EAHAD Academy: https://academy.eahad.org/eahad/2023/meet-the-author-flora-van-leeuwen/402756

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EAHAD – Details, episodes & analysis

Podcast details

Recent rankings

Apple Podcasts

Spotify

Shared links between episodes and podcasts

RSS feed quality and score

Publication history

Latest published episodes

Related Shows Based on Content Similarities

Apple Podcasts

Spotify

Related Shows Based on Content Similarities

EAHAD – Details, episodes & analysis

Podcast details

Recent rankings

Apple Podcasts

Spotify

Shared links between episodes and podcasts

Other18

Wiley4

RSS feed quality and score

Publication history

Latest published episodes

Similar podcasts and content

Related Shows Based on Content Similarities

Apple Podcasts

Spotify

Related Shows Based on Content Similarities

Other18

Wiley4