Explore every episode of the podcast Conversations About Advance Care Planning

What are fears associated with dying and how can we support patients, carers and staff? In this episode I am joined by Dr Andrew Thorns, a consultant in palliative care at Pilgrims hospices in East Kent and East Kent Hospitals. Andrew is involved nationally with research and ethics as part of the Association for Palliative Medicine and is a facilitator for advanced communication skills. Andrew introduces me to the concept of terror management theory and focuses on the work of Sheldon Soloman to answer these profound questions. 

This episode has been kindly supported by the Living Well Dying Well Trust. The creation, development and content of the episode remains the responsibility of Clare Fuller.

For information about Advance Care Planning, see the  Advance Care Planning Explained resource on my website

Find out more about how I can work with you

If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.

If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY

What challenges are faced by people who are LGBTQ+  when accessing funeral care? This is a question I put to Poppy Mardall, founder of Poppy's funerals. Poppy champions better after death care, and describes what this look like for people who are LGBTQ+, as well as sharing brilliant information and resources that you can access.

This episode has been kindly supported by the Living Well Dying Well Trust. The creation, development and content of the episode remains the responsibility of Clare Fuller.

For information about Advance Care Planning, see the  Advance Care Planning Explained resource on my website

Find out more about how I can work with you

If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.

If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY

How do you make sense of the choices, costs and practicalities whilst navigating bereavement too? Jason Ghous is the founder of Funeral Experts; he set out to provide free, independent, and practical support to people at the end-of-life care or who are bereaved, helping families understand their choices and make sense of bereavement admin. In our conversation, you'll learn about the service and find out how to access the brilliant support offered.

This episode has been kindly supported by the Living Well Dying Well Trust. The creation, development and content of the episode remains the responsibility of Clare Fuller.

 

For information about Advance Care Planning, see the  Advance Care Planning Explained resource on my website

Find out more about how I can work with you

If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.

If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY

 

Lucy Carpenter leads the Compassionate Employers Programme at Hospice UK, supporting organisations to better care for employees experiencing grief, caring responsibilities, or life-changing diagnoses. Lived experience shapes Lucy's passion. In our discussion, Lucy describes being a carer for her Dad in her early 20s, her Dad's experience of working while living with a terminal illness and the simple steps all organisations could take to support employees. 

This episode has been kindly supported by the Living Well Dying Well Trust. The creation, development and content of the episode remains the responsibility of Clare Fuller.

For information about Advance Care Planning, see the  Advance Care Planning Explained resource on my website

Find out more about how I can work with you

If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.

If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY

Imogen Benson is a product and tech leader who is deeply passionate about holistic end-of-life planning and care. Imogen brings a great mix of knowledge gained through personal experience, working as  a leader in tech start ups and voluntary work in a hospice. Imogen is  Head of Product at Aura Life and has particular interest in how  technology can support rather than replace compassion.

Our conversation explores societal norms around death and dying, reveals the story behind Aura Life, and reflects on technology. 

This episode has been kindly supported by the Living Well Dying Well Trust. The creation, development and content of the episode remains the responsibility of Clare Fuller.

For information about Advance Care Planning, see the  Advance Care Planning Explained resource on my website

Find out more about how I can work with you:

If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.

If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY

 

Dr Colette Hawkins is an Academic Consultant in Palliative Medicine at University Hospital Tees,  and an Honorary Clinical Senior Lecturer at Newcastle University.

Motivated to understand more deeply what it means to live with a serious illness,and how to deliver the care people really want, Colette began a series of research studies. Our conversation explores the catalyst to this, identifies what the research found and Colette shares the next steps of her innovative work.

This episode has been kindly supported by the Living Well Dying Well Trust. The creation, development and content of the episode remains the responsibility of Clare Fuller.

For information about Advance Care Planning, see the  Advance Care Planning Explained resource on my website

Find out more about how I can work with you

If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.

If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY

 

Rosalie Kuyvenhoven  is an award-winning celebrant,speaker, celebrant tutor and Death Cafe host. I had the pleasure of meeting Rosalie at the launch of Evie King's book, Get Ahead of Being Dead and was fascinated to talk with her. Listen as we explore the experiences that have shaped Rosalie's work and find out how she brings ritual and  meaning to funerals.

This episode has been kindly supported by the Living Well Dying Well Trust. The creation, development and content of the episode remains the responsibility of Clare Fuller.

 

For information about Advance Care Planning, see the  Advance Care Planning Explained resource on my website

Find out more about how I can work with you

If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.

If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY

In this episode it is my pleasure to talk with Caro Syson, founder of Your Final Matters. If you are listening and are thinking that you need to get your ducks in a row, this episode is for you. Caro shares how she works with groups and individuals to support later life planning and the story behind her sunflower journey.

This episode has been kindly supported by the Living Well Dying Well Trust. The creation, development and content of the episode remains the responsibility of Clare Fuller.

For information about Advance Care Planning, see the  Advance Care Planning Explained resource on my website

Find out more about how I can work with you
If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.

If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY

In this episode it is my pleasure to talk with Professor Julian Abel. Julian became a consultant in palliative care in 2001 and was Vice President of Public Health Palliative Care International. He is an international keynote speaker and has published regularly on models of public health palliative care.  We talk about his new work in the National End of Life Care Coalition and explore a community based approach to care and why this is so important.

This episode has been kindly supported by the Living Well Dying Well Trust. The creation, development and content of the episode remains the responsibility of Clare Fuller.

For information about Advance Care Planning, see the  Advance Care Planning Explained resource on my website

Find out more about how I can work with you:
If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.

If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY

 

Get Ahead of Being Dead is Evie King's new book. In this discussion Evie shares why the book has been written and takes us on a journey through the chapters in classic Evie King style. Listen, learn…and laugh too.

For information about Advance Care Planning, see the  Advance Care Planning Explained resource on my website

Find out more about how I can work with you

If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.

If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY

The ReSPECT process has been widely implemented. It stands for the Recommended Summary Plan for Emergency Care and Treatment and, when used well, it provides a guide for clinicians to ensure people's wishes and values are respected in an emergency situation.  Communication is at the heart of ReSPECT.  In my conversation with Sharan Harris-Christensen we explore what good communication means and how this is delivered.

Resource mentioned in this episode

 

RealTalk: Engaging people in end of life talk - Real Talk - Real Talk

Education with Treetops Hospice: Education and development - Treetops Hospice

Treetops Hospice Education and Development | LinkedIn

 ReSPECT for healthcare professionals  

LinkedIn:

Sharan Harris-Christensen: Sharan Harris-Christensen - United Kingdom | Professional Profile | LinkedIn

 

Contact Sharan at: education@treetopshospice.org.uk

 

This episode was released to celebrate Dying Matters Awareness 2026 

For information about Advance Care Planning, see the  Advance Care Planning Explained resource on my website

 

Find out more about how I can work with you

If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.

If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY

 

 

In this episode I talk with Dr Barny Hole, a  kidney doctor and researcher, about patient preferences for kidney failure treatments. We discuss a review paper and focus specifically on the biomedical versus person-centred paradigms of nephrology practice. Our discussion has relevance to all long-term condition decision making.

For information about Advance Care Planning, see the  Advance Care Planning Explained resource on my website

 

Find out more about how I can work with you

If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.

If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY

 

Talking with Jorden helped me to understand how not to compartmentalise EDI. Advance Care Planning is about what matters most to a person,  with identity and inclusivity at the very heart of care.

Find out more about EDI and planning ahead through the lens of patients, staff and systems in this fascinating conversation.

 

Resource mentioned in this episode

National Inclusion Week® | Inclusive Employers

Equality, Diversity and Human Rights Week 2025 | NHS Employers 

Hiding who I am" The reality of end of life care for LGBT people 

Advance Care Planning with people from South Asian Communities 

It's more than rainbows in reception 

 

Podcasts mentioned in this episode:

The Safari Concept with Dr. Christian Ntizimira

Organ Donation with Dr Radha Sundaram

No Barriers Here

 

Could we start planning ahead earlier? This question is asked by Dr Sonya Bushell as part of a research study and the results have implications for us all. Listen in to find out about Sonya's research, what inspired the work and how we can shift planning ahead from a medical to a societal model.

 

Resource mentioned in this episode

Read Sonya's research: Attitudes to earlier advance care planning: a qualitative interview study in general practice 

Find out more about the Waiting Room Revolution

Access resource from Compassion in Dying  

 

For information about Advance Care Planning, see the  Advance Care Planning Explained resource on my website

 

Find out more about how I can work with you

If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.

 

If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY

 

Communication underpins Advance Care Planning. But what is effective communication and how can it be taught? In my conversation with Sharan Harris-Christensen you will hear challenges, opportunities and the power of being vulnerable as we explore RealTalk.

Resource mentioned in this episode

• RealTalk: Engaging people in end of life talk - Real Talk - Real Talk
• Education with Treetops Hospice: Education and development - Treetops Hospice
• Treetops Hospice Education and Development | LinkedIn
• No Barriers Here
• LinkedIn: Sharan Harris-Christensen: Sharan Harris-Christensen - United Kingdom | Professional Profile | LinkedIn
• Contact Sharan at: education@treetopshospice.org.uk

This episode was released to celebrate Dying Matters Awareness 2026 

For information about Advance Care Planning, see the  Advance Care Planning Explained resource on my website

Find out more about how I can work with you 
If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.

If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY

Dr Emma Clare is a Chartered Psychologist, End of Life Doula, and founder of Death Wired Differently, a platform providing resources, information, and training on neuro-affirming approaches to death, dying, caregiving, and grief support. In our conversation, Emma shares why so many Advance Care Planning conversations just don't work for neurodivergent people. Want to know what does work? Listen in to hear things we need to learn and how to access great new resource.

 

Resource mentioned in this episode

Access the Death Wired Differently website

Previous podcast with Emma: Understanding death competency with Dr Emma Clare 

Find out more and hear Emma talk at the 2026 ACP Day

Death Wired Differently 

Understanding death competency with Dr Emma Clare 

ACP Day Conference 

The Lancet: A new vision for death and dying | The Lancet Commission on the Value of Death 

Soul Paint enables people to express themselves when words are not enough Soul Paint

For information about Advance Care Planning, see the  Advance Care Planning Explained resource on my website

If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.

If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY

In this episode it is my pleasure to learn about the first ever national Power of Attorney Day from Alison Harvie, Power of Attorney Day campaign lead. It is a super discussion - listen in to hear about the brilliant resource available and how you can be involved.

Key messages

• Alison shares her personal story of supporting her father with advanced Alzheimer's and the impact of Power of Attorney for them.

• We explore different types and names of powers of attorney across England and Wales, Scotland and Northern Ireland and why "Power of Attorney Day" is a UK–wide umbrella term covering all these legal frameworks.

• The resources for organisations include posters, slide deck with speaker notes, a toolkit, social media assets and prompts to review customer journeys.

• The resources for individuals include FAQs, myth–busting (especially around "next of kin"), a conversation starter guide, and lived–experience stories.

• We discuss the importance of normalising proactive Advance Care Planning rather than waiting for crisis or loss of capacity.

• Alison closes with a great call to arms: take small, practical first steps – any action that starts you on the path to putting a Power of Attorney in place.

Resource mentioned in episode

Access Power of ATtorney Day for resource and information

Read the report Power of Attorney, why public engagement is so low and why that matters for background information

 

For information about Advance Care Planning, see the  Advance Care Planning Explained resource on my website

 

Find out more about how I can work with you

If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.

If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY

 

What is realistic choice and how  is this supported by shared decision making?

I was privileged to ask  Dr Jude Partridge, a consultant geriatrician with the POPS Team at Guys and St Thomas' hospital these questions.

Listen in to hear what the evidence tells us, how this can be operationalised and what a tremendous difference it makes.

 

Resource mentioned in this episode

• Making shared decision-making a reality No decision about me without me
• BRAN: helping patients ask the right questions 
• Shared decision making in the Comprehensive model of personalised care  
• Do Interventions Designed to Support Shared Decision-Making Reduce Health Inequalities? A Systematic Review and Meta-Analysis
• Cost–benefit analysis of implementing comprehensive geriatric assessment enhanced shared decision making into aortic aneurysm pathways   
• Preoperative clinical characteristics and 12-month outcomes following operative or non-operative management of asymptomatic aortic aneurysms 
• Working together to provide the care that's right for you. Demonstrating professionalism through approach, behaviours and attitudes of Realistic Medicine
• Implementing shared decision making according to the choosing wisely programme: Perioperative medicine for older people undergoing surgery  
• Effectiveness of emergency surgery for five common acute conditions: an instrumental variable analysis of a national routine database

 

Key messages

• Realistic choice means offering evidence‑based, tailored options that are genuinely appropriate, not an "illusion of free choice".

• Shared decision making ensures patients understand realistic options, benefits and harms, then choose based on their own values. Shared decision making is now a legal standard in the NHS personalised care model.

• Clinical encounters are power‑imbalanced, we need honest, open communication to level this.

• Decisions should follow a holistic assessment (frailty, comorbidities, cognition, function, values).

• "Just because we can, doesn't mean we have to" – non‑intervention can be the most appropriate care for a person.

• Shared decision making also means positively recommending treatment when it supports what matters most.

• Shared decision making relies on strong communication skills and data‑driven discussion of risk and outcomes.

• Evidence shows benefits for patients and systems.

• People in more deprived areas may benefit especially from shared decision making.

• There is a need for better public health messaging on realistic choice and shared decision making.

 

For information about Advance Care Planning, see the  Advance Care Planning Explained resource on my website

Find out more about how I can work with you
If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.

If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY

 

I am delighted to open the new season with Professor Jugdeep Dhesi, geriatrician and President of the British Geriatrics Society. Listen in as we explore the changing demographics of dying and the vital role geriatricians play in joining the dots in Advance Care Planning.

This episode is a personal one. I  have recently experienced how easily care can become fragmented - and focus on isolated problems rather than seeing the whole person.

I am dedicating this episode to the geriatrician who chose to see the whole person - and in doing so, made all the difference. In her own words: "I am just one of many Geriatricians across the country doing this work every day. I am sure Jugdeep will agree this is 'bread and butter' geriatric medicine that the whole profession should get credit for."

 

Resource mentioned in this episode

Cost–benefit analysis of implementing comprehensive geriatric assessment enhanced shared decision making into aortic aneurysm pathways 

Understanding variation in the management of AAA in the UK: composition and function of multidisciplinary team meetings and information resources provided to patients 

Preoperative clinical characteristics and 12-month outcomes following operative or non-operative management of asymptomatic aortic aneurysms  

For information about Advance Care Planning, see the  Advance Care Planning Explained resource on my website

 

Find out more about how I can work with you

If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.

 

If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY

 

Exploring words and busting myths associated with palliative and end of life care. Over the course of 10 podcasts I am delighted to talk with Dani Ayre, we focus on a word a week and challenge commonly held beliefs. Why? Because words matter - you will hear the impact of myths around words and we'll share valuable resources.

In our final episode of this season we talk about words used when someone may be approaching the last days of life.

This episode closes the current season. I'll be back on 4th April with more fabulous guests and Conversations About Advance Care Planning. 

Resource mentioned in this episode

• David Oliver: What to say when patients are "sick enough to die" 
• David Oliver: Public misunderstanding, myths, and misinformation can hamper good end-of-life care 
• Better End of Life Report 2024 
• Hope for the Best Plan for the Rest 
• Death of an Ordinary Man by Sarah Perry
• The Safari Concept  

For information about Advance Care Planning, see the  Advance Care Planning Explained resource on my website

 

Find out more about how I can work with you

If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.

If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY

Exploring words and busting myths associated with palliative and end of life care. Over the course of 10 podcasts I am delighted to talk with Dani Ayre, we focus on a word a week and challenge commonly held beliefs. Why? Because words matter - you will hear the impact of myths around words and we'll share valuable resources.

In our penultimate episode, episode nine we talk about the word "pathway". Listen in and share the conversations.

Resource mentioned in this episode

• Review of Liverpool Care Pathway for dying patients  
• Priorities for care part of new approach to care for dying people 
• Debunking Myths About Dying with Dani & Clare 

For information about Advance Care Planning, see the  Advance Care Planning Explained resource on my website

 

Find out more about how I can work with you

If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.

 

If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY

In episode eight we talk about what CPR is, and when it might be considered an inappropriate treatment.

Listen in and share the conversations.

For information about Advance Care Planning, see the  Advance Care Planning Explained resource on my website

 

Find out more about how I can work with you

If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.

If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY

 

In episode seven we talk about medication and syringe pumps in the last days of life.

Listen in and share the conversations.

Resource mentioned in this episode

Listen to  Anticipatory Prescribing: what it is, what research tells us and what we can do better with Dr Ben Bowers

Read: The Gosport Report 

Watch: 'Dying is not as bad as you think' | BBC Ideas  By Dr Kathryn Mannix

 

For information about Advance Care Planning, see the  Advance Care Planning Explained resource on my website

 

Find out more about how I can work with you

If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.

If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY

Exploring words and busting myths associated with palliative and end of life care. Over the course of 10 podcasts I am delighted to talk with Dani Aye season, we will focus on a word a week and challenge commonly held beliefs. Why? Because words matter - you will hear the impact of myths around words and we'll share valuable resources..

In episode six we talk about nutrition and hydration in the last days of life, listen in and share the conversations.

Resource mentioned in this episode

NICE Guidance available at: Care of Dying Adults in the Last Days of Life QS 144

Dr Kathryn Mannix videos can be found at:

Dying is not as bad as you think 

What happens as we die? Kathryn Mannix. TEDxNewcastle

Dying for beginners, Dr Kathryn Mannix

 

For information about Advance Care Planning, see the  Advance Care Planning Explained resource on my website

 

Find out more about how I can work with you

If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.

If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY

In episode five we talk about choice and autonomy. Listen in and share the conversation..

Resource mentioned in this episode

Blog: Assisted Dying – an open letter to Esther Rantzen 

Read Hope for the Best Plan for the Rest

Access the Waiting Room Revolution  podcast 

For information about Advance Care Planning, see the  Advance Care Planning Explained resource on my website

 

Find out more about how I can work with you

If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.

If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY

In episode four we talk about  what we mean by treatment, withdrawal and care. 

Listen in and share the conversations.

Resource mentioned in this episode

GMC Guide:Treatment and care towards the end of life: good practice in decision making

Podcast: When doing nothing is doing everything with Dr Erica Borgstrom 

Podcast: Stopping chemotherapy: Treatment, hope and time with Louisa Nicoll, wife of John 

Video: Not intervening as a form of care  

 

For information about Advance Care Planning, see the  Advance Care Planning Explained resource on my website

 

Find out more about how I can work with you

If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.

If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY

In episode three we talk about Care in the last days of life, we explore terminology, recognise the challenges of identifying this phase of life and share resource and information about Ordinary Dying.

Listen in and share the conversations.

Resource mentioned in this episode

NICE Care of dying adults in the last days of life  Quality standard Reference number: QS144 Published: 02 March 2017

One Chance to Get it Right

CHELsea II: Cluster randomised trial of clinically assisted hydration in patients in the last days of life. 

Dr Kathryn Mannix Dying is not as bad as you think' | BBC Ideas  

For information about Advance Care Planning, see the  Advance Care Planning Explained resource on my website

For information about Advance Care Planning, see the  Advance Care Planning Explained resource on my website

Find out more about how I can work with you

If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.

If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY

Exploring words and busting myths associated with palliative and end of life care. Over the course of 10 podcasts I am delighted to talk with Dani Aye season, we will focus on a word a week and challenge commonly held beliefs. Why? Because words matter - you will hear the impact of myths around words and we'll share valuable resource.

In episode two we talk about Palliative Care, what it is, societal and professional taboos and the positive impact of early access to palliative care. Listen in and share the conversations.

 

Resource mentioned in this episode

• Access the Clair Fisher legacy work hosted on Speak For Me

• Listen to the first podcast featuring Clair Fisher in which Clair explains the benefits of early intervention palliative care and Advance Care Planning: How to ensure your plans are heard with Clair Fisher 

• Read Hope For The Best Plan For the Rest 

• Listen to the Waiting Room Revolution podcast 

• Podcast: Terminology and language around discontinuing dialysis with Dr Barny Hole & Dr Emma Murphy.  Listen and see show notes and resource.

• Podcast: Living and Dying with Kidney Disease with Dr Barny Hole & Dr Emma Murphy.Listen and see show notes and resource.

 

For information about Advance Care Planning, see the  Advance Care Planning Explained resource on my website.

 

Find out more about how I can work with you

If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.

If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY

Welcome to a new season of podcasts. I am delighted to welcome back Dani Ayre, explore words and bust myths associated with palliative and end of life care. Over the course of this season, we will focus on a word a week and challenge commonly held beliefs. Why? Because words matter - you will hear the impact of myths around words.

In episode one we talk about End-of-Life Care, what it is, societal and professional taboos and offer useful tools for identification. Listen in and share the conversations.

Resource mentioned in this episode

• NICE Guidance:  End of life care for adults QS13
• NHS resource: End of life care at home 
• NHS information: What to expect from end-of-life-care  
• The General Medical Council: Treatment and care towards the end of life: good practice in decision making 
• Dr Jared Rubenstein video: Palliative Care PSA - We're the fire department, not the fire. 

Identification Tools

• Proactive Identification Guidance (PIG)​ 
• The Supportive and Palliative Care Indicators Tool 
• Comparing the ECOG Performance Status and the Karnofsky Performance Status Scales 

 

For information about Advance Care Planning, see the  Advance Care Planning Explained resource on my website.

 

Find out more about how I can work with you
If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. 

If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY

Hi, Clare here on the other side of the mic for once! I was honoured recently to be asked to talk with Ruth Germain for her brilliant podcast - so who cares anyway. Listen in to hear our discussion….

If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.

If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY

In this episode, released during National Grief Awareness Week, I catch up with James Norris about Communication Technology & Bereavement. Listen in to learn about valuable new resource and the different ways this can support people who are bereaved.

If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.

If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY

Have you ever wondered about the complexity of Advance Care Planning in a critical situation? This episode expands the theme of "decision to treat at home", with paramedic Tom Pullen. It's a case study in which Tom shares the nuance of decision making.

If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.

If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY

"Decision to treat at home", five small words but a huge impact. Listen in to hear how a shift in language can shape person centred care with paramedic Tom Pullen.

 

If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.

If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY

In this episode it is my pleasure to talk with Dr Mary Miller, consultant in palliative medicine and Clinical Lead for the National Audit of Care at the End of Life. It's a super discussion and we hone in on key findings and recommendations. Listen to hear what we must do better.

If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.

If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY

In this episode, it is my pleasure to talk with Dr Suzy Lishman, a consultant histopathologist and medical examiner. Listen in to hear about the new medical examiner role, why it was introduced and how it is improving care.

If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.

If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY

 

In this episode it is my pleasure to talk with Professor Katherine Sleeman about the new Impact Centre for Palliative and End of Life Care. Listen in to  learn about the centre's aims and hear how you can be involved.

If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.

If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY

 

In this episode it is my real pleasure talking to my ex colleague and very dear friend Nicky Bonthron. 

Our careers have crossed paths over the years and we have worked together in different palliative care teams in hospices and acute hospitals. 

Nicky generously shares her experiences of caring for four people at the end of life and there are so many powerful messages in the stories.

Nicky talks about the importance of planning, the difference that the ReSPECT process made and why we need to talk more about Ordinary Dying.

If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.

If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY

In this episode it is my pleasure to talk to Deborah Meller, founder of the NOTA:BENE System.

The  NOTA:BENE System is manual filing and worksheet solutions to help individuals and families organise essential life information before it's needed. Recognising that estate planning often overlooks the admin element, Deborah created a structured system to make life easier for those planning and those left behind.

Through her 'Today's Story' series on social media, she highlights real-life examples of why sorting the admin is an act of love, not just an administrative task. In this episode, Deborah discusses the importance of a person's day to day admin in Advance Care planning and simple ways to get started.

If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.

If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY

In this episode it is my pleasure to talk with Dr Jared Rubenstein, a paediatric palliative care doctor and creator of  videos to help talk about difficult things. Listen in to hear the stories behind the videos and how Jared challenges many misconceptions about palliative care.

If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.

If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY

In this episode it is my pleasure to catch up with Dr David Oliver. We explore public misunderstanding of terminology, specifically relating to death and dying, and the impact this has on care.

If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.

If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY

In this episode it is my pleasure to talk with Specialist Nurse for Organ Donation, Rory Collier. We explore communication skills, and you will hear Rory's expert talk through a framework to improve practice. You  will also hear the difference between brain and circulatory death - and how these different pathways are managed with skill and compassion.

If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.

If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY

In this episode it is my pleasure to catch up with the fabulous Dani & James, my co-partners in the Advance Day Conference and awareness campaigning. 

We share the highlights from ACP Day 2025, and explain how you can access, for free, all presentations from the day. We also announce the date for ACP Day 2026. listen in to hear us reveal the day and how you can be involved in shaping content. 

If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.

If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY

In this episode it is my pleasure to talk with Dr Samantha Strumeier,. We explore Advance Care Planning through the lens of  mens sexual health. Listen in to hear common misconceptions and what Advance Care Planning Conversations can look like when living with prostate or testicular cancer.

If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.

If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY

In this season starter episode I catch up with Martin, editor of the podcast and Voice Over Artist. Listen in to hear about the changes, making the podcast better than ever before, and hear about some of the incredible guests planned.

If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.

If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY

In this episode it is my pleasure to talk with Dr Craig Sinclair, Senior Research Fellow in the School of Psychology at the University of New South Wales, and Conjoint Senior Research Scientist at Neuroscience Research Australia.

I learn about Advance Care Planning International and we discuss plans for the 9th ACP-i Conference, which will take place from 24th to the 26th September 2025.

It's a super conversation, and we share many common themes in Advance Care Planning despite the thousands of miles distance between our two countries.

 

If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.

If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY

In the last of our behind the scenes series of  2025 Advance Care Planning Conference podcasts,  Dani, James and I give final updates  and talk about the Four  national panel discussion. 

Next time we meet it will be in person and at the conference, hope to see you there too!

If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.

If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY

In the third of our behind-the-scenes series of podcasts, Dani, James and I continue sharing plans for the 2025 ACP Conference.

In this episode, we continue sharing guest speakers and reflecting how each session aligns to the framework of Getting Your House in Order. Exploring the window of legacy, we are honoured to have Vicky Caldwell sharing her experience as Mother of organ donor Fi. We reflect on organ donation as a legacy and highlight the difference made by Max and Kiera's Law.

The conference, and national ACP Day is on the 7th May. Listen to find out how you and your team can be part of the growing movement.

If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.

If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY

In the second of our behind-the-scenes series of podcasts, Dani, James and I continue sharing plans for the 2025 ACP Conference.

In this episode, we focus on the Advance Decision to Refuse Treatment session with Professor Celia Kitzinger, and the professional lens through which I will be presenting the session on Lasting Power of Attorney. I'll be including things that every health care professional needs to know about LPAS.

The conference, and national ACP Day is on the 7th May. Listen to find out how you and your team can be part of the growing movement.

 

If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.

If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY

In the first of our behind the scenes series of podcasts,  Dani, James and I begin sharing news for the  Advance Care Planning Conference 2025. In this episode we talk about how you can obtain tickets or live stream the event and give teasers for the first two incredible guests.

If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.

If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY