Explore every episode of the podcast Conversations About Advance Care Planning
| Title | Pub. Date | Duration | |
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| #101 Ageing Without Children and Advance Care Planning with Penny Shepherd | 16 Sep 2024 | 00:43:59 | |
In this episode it is my pleasure to talk with Penny Shepherd. Penny is the coordinator and co-founder of Ageing Without Children East Kent (AWOC East Kent), a group run by and for people who are ageing without the support of adult children, either because they never had children or for other reasons. We explore the Advance Care Planning challenges and healthcare assumptions faced by people who are ageing without children and the campaigning work of AWOC. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.
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| #100 Planning not panicking: Advance Care Planning with Martin Whiskin | 01 Jul 2024 | 00:49:25 | |
In this very special 100th episode I talk with Martin Whiskin, an award winning voiceover artist and podcast editor. Martin is very importantly the technical expertise behind Conversations About Advance Care Planning. We reflect on episodes 75 to 100 and how they have impacted us both personally and professionally. As ever, I am blown away by Martin’s revelations and how Advance Care Planning has become such a normal and comfortable part of his life planning. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY | |||
| #91 Getting Your House in Order: Legacy & memory making with Clare Fuller & Dani Ayre | 29 Apr 2024 | 00:27:19 | |
In the fifth episode we continue to explore the model of Getting Your House in Order, describing it as a how to guide for Advance Care Planning. This quite emotive episode focuses on legacy and memory making and includes wonderful examples of what this looks like in practice. You will also find a wealth of material in the show notes and resource section for this podcast. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.
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| #90 Getting Your House in Order: Thinking about who would speak for you with Clare Fuller & Dani Ayre | 22 Apr 2024 | 00:23:52 | |
In the fourth episode we continue to explore the model of Getting Your House in Order, describing it as a how to guide for Advance care Planning. We reflect on the foundations, What Matters Most to a person, and build on our discussions to start thinking about who would support you to make decisions or make decisions on your behalf if you ever lost the ability to speak for yourself. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY | |||
| #89 Getting Your House in Order: Thinking about what you don’t want with Clare Fuller & Dani Ayre | 15 Apr 2024 | 00:26:40 | |
In the third episode we continue to explore the model of Getting Your House in Order, describing it as a how to guide for Advance care Planning. We reflect on the foundations, What Matters Most to a person, and move on to explore thinking about the things you don’t want and how this can be documented in an Advance Decision to Refuse Treatment. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY | |||
| #88 Getting Your House in Order: Thinking about the things you do want with Clare Fuller & Dani Ayre | 08 Apr 2024 | 00:18:11 | |
In the second episode we continue to explore the model of Getting Your House in Order, describing it as a how to guide for Advance care Planning. We reflect on the foundations, What Matters Most to a person, and move on to explore thinking about the things you do want and how this can be documented. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY | |||
| #87 Getting Your House in Order: Thinking about what matters most to you with Clare Fuller & Dani Ayre | 01 Apr 2024 | 00:26:01 | |
In this episode we explore the model of Getting Your House in Order, describing it as a how to guide for Advance care Planning. We start at the very foundations and talk about why What Matters Most is at the heart of Advance Care Planning. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY | |||
| #86 Think, Talk, Act with Wendy Hills | 25 Mar 2024 | 00:42:53 | |
In this episode it is my pleasure to talk with Wendy Hills. Wendy has over 30 years’ experience as a Nurse qualifying in 1992, and specialising in Cancer and Chemotherapy. For a decade she developed chemotherapy services, including developing Nurse led chemotherapy and intravenous access in East Kent Hospitals. Wendy is currently the Director of Nursing and Care Services for Pilgrims Hospices. I learn about the Advance Care Planning Project Think, Talk Act and why this is so important to Wendy. We talk about upstreaming Advance Care Planning, the importance of identifying patients who may benefit from Planning earlier and share our excitement at the May Advance Care Planning conference and book tour with Sammy Winemaker & Hsien Seow, pioneers of the Waiting Room Revolution and authors of Hope for the Best Plan for the Rest.
If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.
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| #85 The Safari Concept with Dr. Christian Ntizimira | 18 Mar 2024 | 01:07:24 | |
In this episode it is my pleasure to talk with Dr. Christian Ntizimira, author of “The Safari Concept: An African Framework on End-of-Life Care” and Founder/Executive Director of the African Center for Research on End-of-Life Care. Christian shares the journey which led him to write the Safari Concept and we explore how culture and belief impact communication and care. It is a powerful episode with messages about bias, development of culturally appropriate models and recognition of Ubuntu – I am because we are.
If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.
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| #84 Alison Gardner & Sophy Horner Last Days Matter | 11 Mar 2024 | 00:46:30 | |
In this episode it is my pleasure to talk with Alison Gardner & Sophy Horner from St John's Hospice about their incredible programme Last Days Matter. The programme aims to support people in looking after their loved ones at home and is very much a compassionate community approach to care. I learn how the programme was developed, what it includes and how to access the Last Days Matter resource.
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| #83 Lasting Power of Attorney with Gary Ryecroft | 04 Mar 2024 | 00:37:19 | |
In this episode it is my pleasure to talk with Gary Ryecroft, a solicitor and resident legal expert on Rip Off Britain. Gary has also been a trustee for what was the National Council for Palliative Care and later a chair of the Dying Matters Forum. This is a supper conversation, we talk about the podcast Gary created as part of the We Need to Talk About Death series with Dame Joan Bakewell and we talk about Gloria Hunniford’s live televised Lasting Power of Attorney signing. We also cover capacity, digital assets and Advance Decisions to Refuse Treatment and there is so much to learn from this rich conversation. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. | |||
| #82 What living well with dementia looks like with Peter Berry and Deb Bunt | 26 Feb 2024 | 00:55:53 | |
In this episode it is my pleasure to talk with Peter Berry and Deb Bunt. Peter was diagnosed at 50 with early onset Alzheimer’s. Previously the owner of a thriving timber business, Peter’s life changed upon the diagnosis. He has emerged through depression and two suicide attempts to be a passionate advocate of living well with dementia. A keen cyclist, Peter has used his cycling to raise money for and awareness of Alzheimer’s. He is often seen cycling around rural Suffolk on his penny farthing bike. Deb retired to Suffolk from London and found a new purpose in life when she befriended Peter. One of Deb’s ambitions had been to be a publisher author and meeting Peter has enabled her to achieve this. Her friendship with Peter has also instilled a new-found confidence in Deb which she describes as a wonderful gift from Peter. We talk about what living well means to Peter and the legacy he is creating through his work. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.
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| #99 The Victoria & Stuart Project: helping people with learning disabilities plan for the end of their life | 24 Jun 2024 | 00:56:23 | |
In this episode it is my pleasure to meet the team behind the Victoria and Stuart Project, a tool kit and resource for end of life planning for people with learning disabilities within all care settings. I learn about the triggers for the project, how the work developed and find out about the incredible resource that has been created.
If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.
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| #81 Talking through the intersection between critical care & EoLC with paramedic Jim Walmsley | 19 Feb 2024 | 00:45:09 | |
In this episode it is my pleasure to talk to Jim Walmsley, a specialist paramedic in critical care. Jim talks about how Advance Care Planning impacts the work he does, sharing stories and experience.Jim also explains why he is fundraising for the Intensive Care Society and how you can follow and support his iconic high alpine challenge.
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| #80 Why I started a Death Café with Ewout Van-Manen | 12 Feb 2024 | 00:29:04 | |
I’d heard about Death Cafés but never attended one and have always wanted to learn more about the movement. In this episode I have the pleasure of talking with Ewout, facilitator of the Death Café Suffolk Transitions. We talk about the origins of Death Cafés, how they run in practice and what drew Ewout to become involved.
If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.
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| #79 Helping to see the person behind the patient with OT Justine Robinson | 05 Feb 2024 | 00:39:11 | |
In this episode it is my pleasure to talk with Justine Robinson, Occupational Therapist and Wellbeing Services manager at the Pilgrims Hospice. I learn about the role of an Occupational Therapist and we talk about how therapy work can help find the person in a patient. I learn too about the innovative Blackbird project, the story behind the project and how it is helping to make precious memories. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. | |||
| #78 Advance Care Planning: Listening not box ticking with Professor Alison Leary | 29 Jan 2024 | 00:27:35 | |
In this episode it is my pleasure to talk with Professor Alison Leary. Alison is a Senior Consultant at the World Health Organisation, Human Resources for Health, and the Chair of Healthcare & Workforce Modelling at London South Bank University. It’s an important episode and based on Alison’s family experience. We talk the impact of receiving a form in the post to initiate Advance Care Planning, what it felt like and how valuable messages and nuances were lost. We also acknowledge the importance of having conversations and listening to cues as the basis for person centred Advance Care Planning.
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| #77 What Matters Most in action and the power of Communication and kindness with Caroline England | 22 Jan 2024 | 00:30:38 | |
Peter Camrass of Camrass Wills kindly supplied sponsorship to produce this episode. Peter has had no influence in the creation, development or content of this podcast and full control remains the responsibility of Clare Fuller.This is an important episode of Conversations About Advance Care Planning. It’s a very reflective episode with learning for us all. I met with Caroline England, founder and writer of Featherbed Tales, over a year ago – we recorded an episode called Featherbed Tales and the power of voice which you can access in the show notes. This time, as the saying goes, it’s personal. Caroline shared with me the writing she has produced to try and make sense of her experiences of death and bereavement. It took me a few goes to read and touched so many nerves – I really did smile at some reflections but also found myself in tears at others. We talk about what What matters most looks like in action and the power of communication and kindness. Caroline also shares what happened towards the last days of her Mum’s life when anticipatory medications had not been thought through. I am exceptionally grateful to Caroline for sharing her story and hope that listening to it highlights the importance of care, compassion and preparation towards the end of life.
If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.
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| #76 Companion Voices with Judith Silver | 15 Jan 2024 | 00:48:23 | |
In this episode it is my pleasure to talk with Judith Silver, founder of Companion Voices. I learn about the origins, development and current work of Companion Voices. Judith shares what Companion Voices offers to people who are dying and describes how groups normalise conversations around death and dying. We talk about raising awareness of Companion Voices and how this could fit with a person’s Advance Care Planning.
If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.
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| #75 Having fun with Advance Care Planning | 23 Oct 2023 | 00:37:48 | |
In this episode it is my pleasure to catch up with Martin and look back at episodes 51 to 74 of Conversations About Advance Care Planning. We talk about the episodes that have had the greatest impact on Martin and address barriers to creating Martin’s Lasting Power of Attorney. As ever, I am surprised and blown away by Martin’s creative approach to Advance Care Planning, and even the fun he is having in planning ahead.
If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.
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| #74 Changing plans, anticipatory grief and planning ahead | 16 Oct 2023 | 00:11:52 | |
This is the last in a series of seven podcasts about End of Life Care, specifically towards the last days of life and when someone wishes to die at home. Rachel kindly agreed to make these with me and recreate some of the conversations I have had over so many years about dying at home, what you need to know and how to be prepared. In this episode we talk about changing plans, anticipatory grief and being prepared.
Dying at home, what you need to know and how to be prepared 1. Recognising when someone might be approaching the last stages of life and why this matter 2. What support is available to help look after a person who is dying at home 3. What equipment might be needed to help look after a person who is dying at home 4. Symptom control and medication as someone approaches the end of life at home 5. What changes are there as someone approaches the end of life? 6. What we need to do after a person has died at home 7. Changing plans, anticipatory grief and being prepared
If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY | |||
| #73 What we need to do after a person has died at home | 09 Oct 2023 | 00:21:29 | |
This is the sixth in a series of seven podcasts about End of Life Care, specifically towards the last days of life and when someone wishes to die at home. Rachel kindly agreed to make these with me and recreate some of the conversations I have had over so many years about dying at home, what you need to know and how to be prepared. In this episode we talk about what to do after a person has died at home and the difference between verifying and certifying a death. Dying at home, what you need to know and how to be prepared 1. Recognising when someone might be approaching the last stages of life and why this matters 2. What support is available to help look after a person who is dying at home 3. What equipment might be needed? 4. Symptom Control 5. What changes are there as someone approaches the end of life? 6. What we need to do after a person has died at home 7. Looking after yourself and changing plans
If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY | |||
| #72 What changes are there as someone approaches the end of life? | 02 Oct 2023 | 00:27:08 | |
This is the fifth in a series of seven podcasts about End of Life Care, specifically towards the last days of life and when someone wishes to die at home. Rachel kindly agreed to make these with me and recreate some of the conversations I have had over so many years about dying at home, what you need to know and how to be prepared. In this episode we talk about what changes to be aware of as someone approaches the last days of life. Dying at home, what you need to know and how to be prepared 1. Recognising when someone might be approaching the last stages of life and why this matter
If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY | |||
| #98 Stopping chemotherapy: Treatment, hope and time with Louisa Nicoll, wife of John | 17 Jun 2024 | 01:02:13 | |
In this episode I talk with Louisa Nicoll, wife of John and palliative care nurse. Louisa generously shares their family experience following John's sudden and life changing diagnosis of cancer.
We talk about what it felt like for John to receive chemotherapy and the decision to stop palliative chemotherapy. We also explore what the word treatment means and the changing nature of hope.
If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.
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| #71 Symptom control and medication as someone approaches the end of life at home | 25 Sep 2023 | 00:20:01 | |
This is the fourth in a series of seven podcasts about End of Life Care, specifically towards the last days of life and when someone wishes to die at home. Rachel kindly agreed to make these with me and recreate some of the conversations I have had over so many years about dying at home, what you need to know and how to be prepared. In this episode we talk about how to recognise when someone might be approaching the last stages of life and why this matters.
Dying at home, what you need to know and how to be prepared 1.Recognising when someone might be approaching the last stages of life and why this matter 2. What support is available to help look after a person who is dying at home 3. What equipment might be needed to help look after a person who is dying at home 4. Symptom control and medication as someone approaches the end of life at home 5.What changes are there as someone approaches the end of life? 6. What we need to do after a person has died at home 7. Changing plans, anticipatory grief and being prepared
If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY | |||
| #70 What equipment might be needed to help look after a person who is dying at home | 18 Sep 2023 | 00:12:45 | |
This is the third in a series of seven podcasts about End of Life Care, specifically towards the last days of life and when someone wishes to die at home. Rachel kindly agreed to make these with me and recreate some of the conversations I have had over so many years about dying at home, what you need to know and how to be prepared. In this episode we talk about what equipment might be needed to help look after a person who is dying at home. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY | |||
| #69 What support is available to help look after a person who is dying at home | 11 Sep 2023 | 00:16:29 | |
Dying at home, what you need to know and how to be prepared - What support is available to help look after a person who is dying at home. This is the second in a series of seven podcasts about End of Life Care, specifically towards the last days of life and when someone wishes to die at home. Rachel kindly agreed to make these with me and recreate some of the conversations I have had over so many years about dying at home, what you need to know and how to be prepared. In this episode we talk about what support is available when a person is dying at home. We talk about Fast Track Continuing Health Care as well as agencies and organisations that can help fill the “space around the edges” of formal care. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details. If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY | |||
| #68 Recognising when someone might be in the last stages of life | 04 Sep 2023 | 00:15:41 | |
This is the first of a series of seven podcasts about End of Life Care, specifically towards the last days of life and when someone wishes to die at home. Rachel kindly agreed to make these with me and recreate some of the conversations I have had over so many years about dying at home, what you need to know and how to be prepared. In this episode we talk about how to recognise when someone might be approaching the last stages of life and why this matters. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY | |||
| #67 Why we need to talk more about Ordinary Dying with Lizzi Collinge | 28 Aug 2023 | 00:40:46 | |
In this episode it is my pleasure to talk with Lizzi Collinge. We talk about what happened following her Grandma's stroke focusing on missed opportunities to talk about Ordinary Dying and the difference this would have made. We discuss the emotive subject of Clinically Assisted Hydration and Lizzi explains what she has learned about her Grandma's death and how different conversations at the time could have helped. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.
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| #66 Terminology and language around discontinuing dialysis | 21 Aug 2023 | 00:59:06 | |
In the previous episode I spoke with Dr Barny Hole and Dr Emma Murphy about the trajectory of kidney disease, conversations around stopping dialysis and what Advance Care Planning with kidney disease looks like. We realised there was so much more we had to talk about and met again to explore the complexity of language associated with Palliative and End of Life Care, focusing particularly on language around discontinuing dialysis. You can hear our discussion in this episode; it was so interesting to explore the variance in our thoughts and highlight the importance of effective communication.
If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY
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| #65 Living and Dying with Kidney Disease with Dr Barny Hole & Dr Emma Murphy | 14 Aug 2023 | 00:48:20 | |
In this episode it is my pleasure to talk with Dr Barny Hole and Dr Emma Murphy. Barny is a kidney doctor currently studying for a PhD. Barny’s research looks at how older people with kidney failure decide between dialysis and comprehensive conservative care. Emma is an Associate Clinical Professor in Nephrology Nursing with a combined clinical and academic role. Emma is currently leading the QUALYCARE Kidney study which aims to understand the variations in the quality of end-of-life care for patients with kidney disease on dialysis. We explore the trajectory of kidney disease, conversations around stopping dialysis and what Advance Care Planning with kidney disease looks like. The episode is one of two that we recorded. We touch on language and terminology in this episode and agree to talk again, focusing on the complexity of language associated with Palliative and End of Life Care and discontinuing treatment. You can hear that discussion in the next episode.
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| #64 Mental Capacity: it’s decision specific, not a binary concept with Dr Maggie Keeble | 07 Aug 2023 | 00:33:08 | |
In this episode it is my pleasure to talk with Dr Maggie Keeble, a retired GP with a special interest in End of Life Care. Maggie spent the later part of her career working in care homes and during that time became involved in many Lasting Power of Attorney discussions. We have a great conversation and Maggie really breaks down the Mental Capacity Act in relation to making a Lasting Power of Attorney and explains how we assess capacity to make the different types of Lasting Power of Attorney. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. | |||
| #63 Advance Care Planning through the lens of a surgeon, daughter and patient with Dr Liz O’Riordan | 31 Jul 2023 | 00:44:24 | |
In this episode it is my pleasure to talk with Dr Liz O’Riordan. We talk about Advance Care Planning through three very different lenses, from Liz’s experience as a surgeon, a daughter and as a patient. Liz shares what she has learned through these experiences and why we should all have the conversation and start planning early.
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| #62 David Bowie & Advance Care Planning: a conversation with Prof. Mark Taubert | 24 Jul 2023 | 00:57:30 | |
In this episode it is my pleasure to talk with Professor Mark Taubert, palliative care consultant, founder of Talk TalkCPR.com and chair of a national strategy group for Advance and Future Care Planning. We cover the famous Thank you to David Bowie Letter, Advance Care Planning in Wales and acknowledge both the complexity and simplicity of Advance Care Planning.
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| #97 The End of the Road Show - how the arts can support Advance Care Planning with Su Squire | 10 Jun 2024 | 00:36:26 | |
In this episode it is my pleasure to talk with Su Squire. Su is a storyteller, poet, theatre-maker and Death Cafe facilitator. Her performance company, Off the Twig, creates work that encourages conversation and positive action around themes of death, dying and grief. We explore the catalyst that led to Sue’s creative work and the impact that storytelling has on Advance Care Planning.
If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.
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| #61 Living with the end in mind with Wendy Mitchell | 17 Jul 2023 | 00:36:32 | |
In this episode it is my pleasure to talk with Wendy Mitchell, author of the best-selling books Somebody I Used to Know, What I wish people knew about dementia and the recently published One Last Thing; How to live with the end in mind. We connected back in 2022 to explore Wendy’s Advance Care Planning and spoke about the work we did together in an earlier podcast. Wendy writes about her Advance Care Planning journey in her recent book and in discussion today we reflect on missed opportunities to plan ahead, the importance of language and of normalising these important conversations. We also talk about Assisted Dying and what Wendy learned through writing her book. Wendy is a true inspiration, teaching us all how to live with the end in mind.
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| #60 Advance Care Planning: a relational context with Dr Julian Abel | 10 Jul 2023 | 00:40:38 | |
In this episode it is my absolute pleasure to talk with Dr Julian Abel who became a consultant in palliative care 2001, working initially at a district general hospital and a hospice. For more than a decade he has become increasingly involved in finding ways of building compassionate communities around people at end of life. He has run projects at local, regional and national levels. He was Vice President of Public Health Palliative Care International. He is an international keynote speaker and has published regularly on models of public health palliative care. He is the editor, along with Professor Allan Kellehear, of the Oxford Textbook of Public Health Palliative Care. We explore Advance Care Planning from a relational context, I learn the origins of the What Matters Most work and have an opportunity to share how much this has influenced my practice.
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| #59 Advance Care Planning from Student Nurse to PhD Student | 03 Jul 2023 | 00:27:03 | |
Stephanie Craig is a Registered Nurse and a PhD Student at Queen’s University Belfast. Since qualifying Steph has worked on a number of projects including the implementation of an Advance Care Planning educational tool for undergraduate nursing students. I connected with Steph on Twitter and was keen to learn what was covered in Steph’s education about Advance Care Planning as a student nurse and how this translated into practice. We talk about the fabulous project work that Steph has been involved with since qualifying and the difference this is making for nurses of tomorrow – building their confidence to learn, do and share Advance Care Planning skills.
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| #58 The challenges of Advance Care Planning for people experiencing homelessness with Dr Naheed Dosani | 26 Jun 2023 | 00:41:43 | |
In this episode it is my pleasure and honour to talk with Dr. Naheed Dosani. Naheed is a palliative care physician and health justice activist dedicated to advancing equitable access to healthcare for people experiencing structural vulnerabilities like poverty and homelessness. Naheed’s achievements include founding the Palliative Education and Care for the Homeless (PEACH) Program at the Inner City Health Associates, serving as the Medical Director of Kensington Hospice in downtown Toronto, a Health Equity Expert Advisor at the Canadian Partnership Against Cancer and as a palliative care physician at St. Michael’s Hospital at Unity Health Toronto. We talk about early influences in Naheed’s life and career, the impact of structural vulnerability, and I learn how the PEACH programme is supporting Advance Care Planning for people experiencing homelessness. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.
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| #57 The legal framework that underpins Lasting Power of Attorney and Deprivation of Liberty with Victoria Butler-Cole | 19 Jun 2023 | 00:58:24 | |
In this episode it is my pleasure to talk with Victoria Butler-Cole KC , a barrister at 39 Essex Chambers. TorShe specialises in health and social care law, in particular the Court of Protection. She is a member of the Nuffield Council on Bioethics and an advisor to the Open Justice project. This episode is the third in a series exploring a family’s experience at the Court of Protection and what we can learn from it. In the first episode I talk with Anna about her experience at the Court of Protection, I hear how Anna and her family were unprepared for the experience and we explore the tension between deprivation of liberty and appropriate care and supervision of a person. In the second episode I talk with Mary about how it felt as a daughter to experience the Court of Protection, and what she learned about being an attorney for her Mum. You can access both of these episodes through the website www.speakforme.co.uk If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. | |||
| #56 The Court of Protection: Experience of a daughter | 12 Jun 2023 | 00:25:40 | |
In this episode it is my pleasure to talk with Mary about how it felt as a daughter to experience the Court of Protection, and what she learned about being an attorney for her Mum. I talk with Mary about what it felt like to experience the Court of Protection, the challenges, the positives and what impact the Open Justice Court of Protection Project had. This is the second in a series of three podcasts; previously I spoke with Anna, Mary’s sister about the interplay between Lasting Power of Attorney and Deprivation of Liberty Safeguards. I learned about the circumstances leading to being in the Court of Protection and the interplay between Lasting Power of Attorney and Deprivation of Liberty safeguards. In the third episode I’ll be talking with Victoria Butler Cole KC who explains the terminology and legal framework that underpin the mental capacity act, lasting Power of Attorney and deprivation of liberty safeguards. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. | |||
| #55 Lasting Power of Attorney, Deprivation of Liberty Safeguards and the Court of Protection - a family's experience | 05 Jun 2023 | 00:30:31 | |
In this episode it is my pleasure to talk with Anna about her experience at the Court of Protection. I hear how Anna and her family were unprepared for the experience and we explore the tension between deprivation of liberty and appropriate compassionate care and supervision of a person. This is the first in a series of three podcasts; in the next episode I talk with Anna’s sister Mary about how it felt to experience the Court of Protection and in the third I talk with Victoria Butler Cole KC who explains the terminology and legal framework that underpin deprivation of liberty safeguards.
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| #54 Anticipatory Prescribing: what it is, what research tells us and what we can do better with Dr Ben Bowers | 29 May 2023 | 00:34:08 | |
In this episode it is my pleasure to talk with Dr Ben Bowers. We talk about Ben’s research focusing on Anticipatory prescribing, the practice he found and what we can learn from this to deliver more personalised care.
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| #53 The power of Memorial Jewellery with Ros Wood | 22 May 2023 | 00:46:50 | |
In this episode I talk with Roslyn Wood. Ros is a specialist metalworker and artisan jeweller. For over a decade she has been helping families capture precious moments in life through the art of jewellery-making. I talk with Ros about how her passion for memorial jewellery began, the variety of work she creates for people and how memorial jewellery can help with grief. You can see Ros’s work and some of her beautiful creations at roslynjewellery.co.uk In our discussion Ros shares the joy she experiences in creating unique work which reflects so beautifully what mattered to a person. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. | |||
| #52 The Elephant in the Room Advance Care Planning simulation training with Dr Anna Steel | 15 May 2023 | 00:36:39 | |
In this episode of Conversations About Advance Care Planning it is my pleasure to talk with Dr Anna Steel. Anna is a Consultant Geriatrician at Barnet Hospital and co-founded the “Elephant in the Room” Advance Care Planning simulation course. We talk about what led Anna to create the course, how it is delivered and the impact it has made..
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| #96 Advance Care Planning: making it real with Tara Humphrey | 03 Jun 2024 | 00:35:08 | |
In this episode it is my pleasure to talk with Tara Humphrey, founder and CEO of THC Primary Care. It is a super episode in which we explore why Advance Care Planning is so important to Tara and how to use the model of Getting Your House in Order to guide planning ahead. Our conversation shows how to normalise Advance Care Planning and I am so grateful to Tara for having such an important conversation so publicly. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY | |||
| #51 Marking anniversaries and walking alongside a person who is grieving. | 08 May 2023 | 00:20:43 | |
I first met Jo in 2023 to record how Fast Track Continuing Health care supports Advance Care Planning. We spoke about the importance of adapting to rapidly changing needs, and the care required to support her husband Barry to die at home after he was diagnosed with an aggressive glioblastoma. In this special episode, released during Dying Matters 2023, we talk about the challenges in knowing how to mark anniversaries, what walking alongside a grieving person looks like and the importance of workplace support for bereavement. There’s a link to Jo’s first episode in the show notes or you can find it as number 45 in Conversations about Advance Care Planning. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.
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| #50 Conversations that are making a difference with Martin Whiskin | 13 Mar 2023 | 00:37:46 | |
Well that was fun! Way back in June 2021 I reflected with Martin, the editor of Conversations About Advance Care Planning, on the podcasts produced and how they had impacted him. If you haven’t listed yet – do! It really is a super episode and sums up perfectly how we can normalise these important conversations. During our 2021 discussion, Martin mentioned a number of things he was planning and we pledged to catch up in a few months to see what had been put in place. Talking with Martin today I was blown away by what he has done, including the innovative audio diaries he’s making for his children and the music list created. The episode is proof that the podcast is starting Conversations That Matter, demystifying Advance Care Planning and helping people to take real action.
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| #49 Reflecting on Conversations About Advance Care Planning with Martin Whiskin | 06 Mar 2023 | 00:47:27 | |
It is with great pleasure that I am re -releasing episode 25 this week. This was a hugely popular episode in which Martin sets out the steps he will take for his Advance Care Planning and challenges me to produce episodes on Ordinary Dying, financial planning and alternative funerals. In next week’s episode, you can follow up the pledges Martin makes and hear how subsequent podcasts have met the challenges he set for me. You’ll also hear the very real impact Conversations in Advance Care Planning is having.
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| #48 To dialyse or not to dialyse? How research can support decision making with Dr Lucy Selman | 27 Feb 2023 | 00:34:24 | |
In this episode it is my pleasure to talk with Dr Lucy Selman. Lucy is Associate Professor in Palliative and End of Life Care and a social scientist who has published extensively on experiences of serious illness; decision-making and communication; family care-giving and bereavement; and widening access to services. Lucy is currently conducting the OSCAR study focussed on improving how renal clinicians communicate with older people about their treatment options and we dive into some fascinating early findings in our discussion. Lucy is based at the University of Bristol and works closely with researchers Dr Ryann Sowden and Dr Chloe Shaw on the study.
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