Explore every episode of the podcast Caregiver's Compass
| Title | Pub. Date | Duration | |
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| All about the Association of Frontal Temporal Degeneration (AFTD) including what they do, who they help, and where they hope to go next, with Esther Kane and Debbie Elkins (Episode 128) | 15 Aug 2025 | 00:44:37 | |
In today’s episode, caregiver @debbieelkins , shares her story caring for her husband Chuck with frontotemporal degeneration (FTD), and discusses how @theaftd supported her during both her caregiving journey, and provided her a sense of purpose through volunteer and advocacy. AFTD’s director of support and education, Esther Kane, also joins us on today’s insightful episode to discuss all that AFTD provides currently, how they support caregivers and those with an FTD diagnosis, and what may be on the horizon for the organization and the FTD landscape. About Debbie Elkins: Debbie Elkins is a care partner for her husband, Chuck, who is living with Frontotemporal Degeneration (FTD), a proud mother of three daughters and a grandmother of six. She is deeply committed to advocacy and education, volunteering with The Association for Frontotemporal Degeneration (AFTD) as an Ambassador and support group leader, and serving as a voting member of the West Virginia State Dementia Task Force. Through her efforts, she strives to raise awareness, support affected families, and contribute to the development of a stronger, more informed future for those impacted by dementia. You can theaftdconnect with Debbie on Instagram @debbieelkins About Esther Kane: Esther Kane, MSN, RN-CDP, has been serving as the Director of Support and Education at AFTD since November 2020. With a rich background in dementia care, Esther previously held the position of Director of Nursing at several long-term care facilities specializing in the care of individuals with dementia. Her expertise in clinical dementia care, combined with her deep commitment to delivering compassionate, high-quality care for those living with neurological conditions, drives her work at AFTD. Esther is dedicated to ensuring that every person affected by Frontotemporal Degeneration (FTD) has access to the support and care they need. She is also passionate about educating healthcare professionals to enhance diagnosis and care, underscoring the critical role of education and training throughout the entire process from diagnosis on. Find the AFTD website here: https://www.theaftd.org/ Visit us on our website to see all that we offer for caregiver support: | |||
| Do I even need a power of attorney document and/or advanced directives? (Episode 127) | 08 Aug 2025 | 00:12:04 | |
This is not commonly provided education so do not worry if this is all new or confusing! Most people are confused about powers of attorney, advanced directives and wills and why they can be extremely important/ what they can help with. In today’s episode, Stephanie discusses her perspectives on having a power of attorney document and what she has seen in her personal life and in hospital and private practice when it comes to powers of attorney and advanced directives. *please note, Stephanie is not a lawyer and this episode does not represent legal advice. Please speak to a lawyer or other legal representative for your own power of attorneys and other legal matters* Visit us on our website to see all that we offer for caregiver support: | |||
| People no longer visit the person I care for (Episode 126) | 01 Aug 2025 | 00:10:08 | |
This is a common scenario- perhaps when there was an initial diagnosis, people showed up and offered support and over time they stopped coming as often or at all. Or maybe even at the time of diagnosis people did not visit. Whatever the case may be, if you are finding that no one visits, this episode is for you. Stephanie breaks down the most common reasons why people don’t visit, how you can communicate your wish for visitors with others and pave the way to continue visits ongoing. Visit us on our website to see all that we offer for caregiver support: | |||
| The gaps in dementia and aging care in Canada, a defined dementia pathway and the path forward, with Dr. Saskia Sivananthan (Episode 125) | 25 Jul 2025 | 00:51:54 | |
If you have ever faced navigating the healthcare system through a dementia diagnosis, you know the difficulties that can be faced. A confusing path to navigate, difficulties receiving diagnoses, often not knowing what comes next and staying up-to-date and confident in the way forward. In today’s episode, we are pleased to welcome Dr. Saskia Sivananthan who shares her knowledge about how we approach dementia in our healthcare system, her organization The Brainwell Institute, and how we work on a more positive path forward for our aging population.
Find Dr. Saskia and Brainwell on instagram: http://www.instagram.com/brainwell_institute Visit us on our website to see all that we offer for caregiver support: | |||
| Strain and conflict we can experience in a romantic relationship while also caregiving for a parent, child, sibling or other family member, with Barry Jacobs and Julie Mayer (Episode 124) | 18 Jul 2025 | 00:42:08 | |
Caring for someone can add complexity and conflict in a romantic relationship. Whether your partner disagrees with your decisions and beliefs regarding caregiving or whether they feel you are not present for them the way you once were, this is for any caregiver experiencing changes in a romantic relationship. Barry Jacobs and his wife Julie Mayer are clinical psychologists who specialize in family therapy and caregiving and provide their perspectives on different case examples in this enlightening episode.
Find Barry on X: @drbarryjjacobs Find Barry and Julie’s new book, The AARP Caregiver Answer Book: https://www.amazon.com/AARP-Caregiver-Answer-Book/dp/1462557872 About Julie: Julie L. Mayer is a clinical psychologist in private practice in Media, Pennsylvania, who has specialized for three decades in helping women in caregiver roles, as well as those with troubled marriages and histories of sexual trauma. She is the author of the novel A Fleeting State of Mind (2014) and coauthor of AARP Meditations for Caregivers and AARP Love and Meaning After 50. She is a former president of the board of PSCP—The Psychology Network. Since 2016 she has cohosted the podcast Shrinks on Third on psychology and social justice. Find Julie on X: @JuliaLMayer23
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| Talking all about ANGER and resentment in caregiving (Episode 123) | 11 Jul 2025 | 00:10:39 | |
What leads to anger and resentment in caregiving and is there anything you can do to help prevent or mitigate these very intense, and sometimes overpowering, emotions? Today Stephanie talks about what can commonly trigger feelings of anger and resentment in caregiving and provides some realistic strategies to help you through these emotions while caring for someone else. If you are sick and tired of yelling and snapping at others and feeling out of control- this episode is for you. Visit us on our website to see all that we offer for caregiver support: | |||
| Guilt for not being able to do ‘it all’ while caring for multiple people and balancing other responsibilities (Episode 122) | 04 Jul 2025 | 00:07:46 | |
Do you care for multiple family members or friends? Do you feel like you are not doing all you ultimately ‘should be’ doing given the limitations of caring for multiple people (plus potentially working and other responsibilities)? In today’s episode, Stephanie discusses this element of guilt and what happens & what you can do about being pulled in 3,4,5 or 90 different directions. Visit us on our website to see all that we offer for caregiver support: | |||
| From caring for her mom with frontotemporal dementia, to creating a film and advocating to normalize the caregiving experience, with Katie Prentiss (Episode 121) | 27 Jun 2025 | 00:42:28 | |
After being thrust into the world of caregiving and caring for her mom with frontotemporal dementia (FTD), Katie Prentiss saw the need to share the caregiver experience with others, both those who could relate or those who did not understand and could learn. With her upcoming feature film, Wake up Maggie, Katie has made it her mission to bring caregiving to the forefront, inspiring other caregivers and raising awareness about the realities of caring for someone with FTD. About Katie Prentiss: Find Katie and learn more about Wake Up Maggie: https://www.katieprentiss.com/wake-up-maggie Visit us on our website to see all that we offer for caregiver support: | |||
| Guilt about moving someone to a facility when you promised them you would always keep them at ‘home’, with Susanne White (Episode 120) | 20 Jun 2025 | 00:32:56 | |
In today’s episode, Stephanie speaks to Susanne White (Caregiver Warrior) about the one thing that brought her tremendous guilt for many years after the passing of her parents: transferring them to a facility after promising she would keep them at home. Susanne discusses the situation that led to this change in her caregiving path, and how she now views this decision and the lessons associated. This is a scenario so many caregivers face, and we are so grateful for Suzanne’s vulnerability and openness when discussing such a deep topic. About Susanne White: When faced with the opportunity to care for her parents,Susanne ventured out on a caregiving journey that would change her life. She blogs about this journey on her website, caregiverwarrior.com, and shares her experience, strength, and hope with others so that they too may navigate caregiving with grace and empowerment. Known for her unique, authentic style and wisdom from the inside of many caregiving journeys, she is an outstanding motivational keynote speaker, bestselling author, gifted writer, exceptional ERG webinar host, and thought leader in the caregiver advocacy community. White’s latest book, Self-Care for Caregivers: A Practical Guide to Caring for You While You Care for Your Loved One, is now available at your favorite bookstores. Visit caregiverwarrior.com for more information. Visit us on our website to see all that we offer for caregiver support: | |||
| Being questioned about your involvement as a caregiver (Episode 119) | 13 Jun 2025 | 00:11:34 | |
Have you ever had your caregiving or involvement as a caregiver questioned? This can STING. You have spent so much time and energy providing care and suddenly someone is questioning what you have done or how you have done it. Or maybe you have finally implemented boundaries in your caregiving and people are pushing back and commenting on you and your involvement or intentions. In today’s episode, Stephanie talks about the implications of being questioned about your caregiving involvement and how you can start to process and manage this interaction. Visit us on our website to see all that we offer for caregiver support: | |||
| WE ARE BACK FOR SEASON 5! | 06 Jun 2025 | 00:07:10 | |
Welcome back to Caregiver’s Compass! We cannot believe we are already on season 5 and we have some incredible guests coming your way. In this episode Stephanie introduces this season and briefly discusses her mom’s recent passing after many years of caregiving.
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| TOP episodes of season 4! | 01 Nov 2024 | 00:06:18 | |
We are back and covering the most listened-to episode of season 4! Here is a recap:
Visit us on our website to see all that we offer for caregiver support: For more visit our Instagram! | |||
| Debunking the common misconceptions behind ‘palliative care’ and advocating for awareness about palliative care and MAID, with Dr. Samantha Winemaker (Episode 117) | 25 Oct 2024 | 00:56:46 | |
Palliative care: a term we often hear in our communities and in the healthcare system. But do we actually know what the term palliative care means for us and the people we care for? In today’s enlightening episode, palliative care physician, Dr. Samantha Winemaker, talks to Stephanie about this very important topic in addition to concepts surrounding advocacy for palliative care and MAID. About Dr. Samantha Winemaker: Dr. Winemaker is an Associate Clinical Professor, Department of Family Medicine, in the Division of Palliative Care at McMaster University. She teaches palliative care to health care professionals. She has won numerous awards for her work. Find Dr. Winemaker: On Instagram: @sammy.winemaker At the Waiting Room Revolution: https://www.waitingroomrevolution.com/ We want your feedback. Let us know how you liked today’s episode! Rate, review and subscribe to let us know you are enjoying this podcast and want to hear more! Visit us on our website to see all that we offer for caregiver support: www.compassionincaregiving.com For more visit our Instagram! | |||
| Dementia prevention, women’s brain health and the power to improve your health NOW and for the future, with Lynn Posluns (Episode 116) | 18 Oct 2024 | 00:44:19 | |
Lynn Posluns dedicates her life to women’s brain health, education and research for prevention and improvement that you can make in your life right now. In today’s episode, Lynn provides insightful and valuable information on brain health and talks about her ‘why’ for founding the WBHI. She additionally goes into detail about the many ways WBHI is working each and every day to help others learn how to take small and attainable steps to shift their brain health for the present and help to prevent cognitive decline for the future. This is one episode you don’t want to miss! About Lynn: Lynn Posluns is the Founder, President, and CEO of Women’s Brain Health Initiative, the only organization dedicated to protecting the brain health of women, caregivers, and families. Since the charity launched in Canada and the U.S. in 2012, Women's Brain Health Initiative has made tremendous strides in raising awareness about the inequity in brain aging research for women, in funding that research, and in creating compelling preventative health evidence-informed education programs so there is a greater understanding by the public of the best ways to prolong their cognitive vitality. Lynn has held several executive positions within the Retail and Fashion industries and, throughout her career, has raised millions of dollars for many philanthropic causes, focused primarily on the healthcare industry. Lynn has received numerous awards for her work in philanthropy and giving back to the community, including the University of Toronto’s Rotman School of Management’s Top Ten High Achieving Women Award, Rotary International’s Paul Harris Fellowship Award, an Honorary Doctorate by York University and most recently Canada’s Top 25 Women of Influence award. In December 2021, Lynn was appointed as a member to the Order of Canada for her contribution to research on cognitive health and aging through the founding of Women's Brain Health Initiative. We want your feedback. Let us know how you liked today’s episode! Rate, review and subscribe to let us know you are enjoying this podcast and want to hear more! Visit us on our website to see all that we offer for caregiver support: www.compassionincaregiving.com For more visit our Instagram! | |||
| Caregiving while balancing a career at the same time (Episode 115) | 11 Oct 2024 | 00:10:09 | |
Are you caregiving and working at the same time? This very real and very common situation is also very hidden and not talked about enough… But when you take the stress of home and everything you have to balance with the person you care for ON TOP of a career and working, the stress and overwhelm can be above and beyond what you may feel is manageable. In today’s episode, Stephanie talks about caregiving and balancing a career and offers some practical tips you can use if you are in this situation and trying to keep your head above water. We want your feedback. Let us know how you liked today’s episode! Rate, review and subscribe to let us know you are enjoying this podcast and want to hear more! Visit us on our website to see all that we offer for caregiver support: www.compassionincaregiving.com For more visit our Instagram! | |||
| Let’s talk about the nursing home transition… (Episode 114) | 04 Oct 2024 | 00:12:13 | |
The nursing home transition can be very very hard, not only for the person who is moving to the residence, but for the caregiver too (in a big way). In today’s episode, Stephanie talks about this transition, the emotions behind nursing home transitions for caregivers and some helpful strategies that can help along the way. We want your feedback. Let us know how you liked today’s episode! Rate, review and subscribe to let us know you are enjoying this podcast and want to hear more! Visit us on our website to see all that we offer for caregiver support: www.compassionincaregiving.com For more visit our Instagram! | |||
| Who is the CEO behind the Ontario Caregiver Organization and how is the OCO working with caregivers to provide the diverse support they need when they need it? With Amy Coupal (Episode 113) | 27 Sep 2024 | 00:39:05 | |
There are over 4 million caregivers in Ontario, yet the Ontario Caregiver Organization (OCO), a government funded organization aimed to support this wide variety of caregivers, is still relatively new. In today’s episode, OCO CEO, Amy Coupal joins Stephanie on the podcast to talk about who she is behind her vocation, her caregiving experiences and how she and her team work to shape an organization that caregivers truly need. We want your feedback. Let us know how you liked today’s episode! About Amy : Amy Coupal is the CEO of the Ontario Caregiver Organization (OCO), a charitable organization that exists to support Ontario’s 4 million caregivers who provide physical and/or emotional support to family members, partners, friends and neighbours. A visionary leader with over 20 years experience in the not-for-profit sector, Amy is passionate about mobilizing change through knowledge exchange and building collaborative initiatives that positively impact the lives of individuals and communities. The impact of this work is demonstrated through the breadth of direct to caregiver programs and services available through OCO, as well as the early successes of embedding caregiving in the culture of healthcare and the amplification of the voices of caregivers to influence decision making at a system level. Amy has a Master of Education from the University of Calgary and is an Adler-trained coach. Her insights have been shared through speaking and media engagements, both internationally and here in Canada. Amy has a deep understanding of the benefits and challenges associated with caregiving. As acaregiver for most of her life, Amy helped to support her brother who had Cerebral Palsy. She was also a caregiver to her mother throughout her cancer journey and now supports her father through older adulthood. Find Amy and the OCO at: http://www.ontariocaregiver.ca Rate, review and subscribe to let us know you are enjoying this podcast and want to hear more! Visit us on our website to see all that we offer for caregiver support: www.compassionincaregiving.com For more visit our Instagram! | |||
| Caregiving and navigating the healthcare system with both a neurotypical child and a child with autism and a rare genetic disease AND recognizing the true need for self-care along the way after extreme burnout, with Nicole Dauz (Episode 112) | 20 Sep 2024 | 00:43:36 | |
Nicole Dauz imagined an idyllic future for her family of 4 after giving birth to her baby daughter. She soon realized that her vision of what would be looked very different in reality. In today’s episode, Nicole takes us through her journey caregiving for her kids, learning about navigating the system and care for a child with autism and a rare genetic disease and learning the true meaning of self-care to survive. Nicole has used her learnings and experience and has become a self-care coach for other parents and leads the way when it comes to changing the narrative of caregiving. About Nicole: Nicole Dauz is a self-care coach, speaker, author and advocate who chooses happiness despite her circumstances. Experience is her teacher as the mother of a 17-yr-old neurotypical son and a 15-yr-old autistic daughter with a rare genetic disease. Her mission in life is to change the story around caregiving and celebrate the journey. She honours the role of the caregiver by helping them recognize their worth and their true gifts. As a self-care coach, she works with parents who feel overwhelmed and at the end of their rope. She helps them regain control of their lives and provides them the tools and strategies needed to shift parents from feeling stressed and overwhelmed to regaining control of their lives and feeling gratitude and joy in their lives.
We want your feedback. Let us know how you liked today’s episode! Rate, review and subscribe to let us know you are enjoying this podcast and want to hear more! Visit us on our website to see all that we offer for caregiver support: www.compassionincaregiving.com For more visit our Instagram! | |||
| Holidays and events are so hard since the loss of/ changes have transpired in my loved one (Episode 111) | 13 Sep 2024 | 00:10:00 | |
The first, second, third…. times we experience a holiday or an event since changes or the loss of someone we love can be so hard. These moments and the anticipation of them can be so full of loss and grief and memories of what once was. In today’s episode, Stephanie talks about these moments, what they can feel like and what we can start to do to process and acknowledge them rather than push the pain away. We want your feedback. Let us know how you liked today’s episode! Rate, review and subscribe to let us know you are enjoying this podcast and want to hear more! Visit us on our website to see all that we offer for caregiver support: www.compassionincaregiving.com For more visit our Instagram! | |||
| I really wish I had a sibling to help me in my caregiving (Episode 110) | 06 Sep 2024 | 00:08:08 | |
As an only child, for many years Stephanie thought that having a sibling by her side would really help in the caregiving process. But after working with caregivers for many years, she soon realized that this is not always the case. In today’s episode, Stephanie walks listeners through some scenarios when sibling conflict was more prevalent than support in caregiving. We want your feedback. Let us know how you liked today’s episode! Rate, review and subscribe to let us know you are enjoying this podcast and want to hear more! Visit us on our website to see all that we offer for caregiver support: For more visit our Instagram! | |||
| Pushing forward, breaking boundaries and achieving an outstanding career in modeling while caring for her mother with early onset FTD, with Nicole Petrie (Episode 109) | 30 Aug 2024 | 00:46:02 | |
Nicole Petrie is not a person who is easily describable with words. Using her passion for FTD advocacy and surpassing numerous obstacles and limits in her way, she achieved an outstanding career in modeling, featured in some of the largest publications and on the largest platforms worldwide. In today’s episode, Nicole talks about her journey caring for her mother with early onset FTD as she continues to pursue her career, boundlessly advocating for dementia and FTD and all that surrounds these diagnoses. We want your feedback. Let us know how you liked today’s episode! Rate, review and subscribe to let us know you are enjoying this podcast and want to hear more! Visit us on our website to see all that we offer for caregiver support: For more visit our Instagram! About Nicole: Nicole Petrie is a model, activist, entrepreneur, and caregiver from Wisconsin. Since her mom's FTD diagnosis she has dedicated her career & social media presence to raising awareness for dementia related diseases and the hard work of caregivers everywhere. She has grown an online community of over 1.1 million followers between tiktok & Instagram, sharing a variety of videos including, her day-to-day life as a young adult caregiver & educational information about dementia. Some of her notable professional accomplishments include being featured in Sports Illustrated’s Swimsuit Edition, becoming an official ambassador for The Association of FrontoTemporal Degeneration, & modeling for brands such as Ulta, Bulgari, and Balmain. Additionally, Nicole has recently created a clothing & accessory merchandise line with designs that aim to recognize caregivers, spread awareness for FTD, and honor her mother. Find Nicole on Instagram: @nicolepetrie Thank you to today’s sponsor, Memorable Minds. To learn more about Memorable Minds and all that they do for caregivers, visit https://www.memorablemindsconsulting.com/. | |||
| Moving countries and caregiving for her grandmother with cancer and her mom with dementia as an only child, and the lessons learned along the way, with Katrina Prescott (Episode 108) | 23 Aug 2024 | 00:40:57 | |
When Katrina Prescott left her commercial production role in New York City and returned to British Columbia as she was faced with the realities of her aging grandmother. Little did she know, almost immediately following her grandmother’s passing, she would become a full on solo caregiver for her mother with FTD. In today’s episode, Katrina takes you through her caregiving journey and talks about what she learned along the way and the incredible advocacy she now engages in daily for caregivers everywhere. About Katrina: Katrina Prescott is an accomplished media producer.Her personal experience caring for her mother who was living with dementia compelled her to embark on a new career in caregiving advocacy and education. Now a sought-after Caregiving Coach, Katrina has harnessed what she learned first-hand as a full-time caregiver with her innate ability to teach and guide others without judgment as they navigate through this often overwhelming, exhausting, and yet also potentially rewarding journey. From navigating the healthcare system, guiding people through the fluctuating stages of hope and grief, finding helpful programs and resources, and encouraging caregivers in a straightforward yet highly engaging approach, Katrina is a beacon for both caregivers and care recipients. By combining her role as a producer with insights from lived caregiving experiences, Katrina produced the widely viewed web series “Therapeutic Fibbing”. Already seen by over one million people to date, this innovative educational series uses real-life examples and re-enactments of common scenarios often encountered by people who find themselves as caregivers to loved ones with dementia. The series offers tools and learning - and even some gentle humour - and has garnered significant caregiver engagement. In 2023, Katrina received an award for Caregiving Advocacy by the Canadian Centre for Caregiving Excellence. Looking ahead, she aspires to drive transformation in health care for individuals with chronic illness and their caregivers and collaborates with a wide range of stakeholders including non-profit groups, researchers, politicians, universities and medical professionals. We want your feedback. Let us know how you liked today’s episode! Rate, review and subscribe to let us know you are enjoying this podcast and want to hear more! Visit us on our website to see all that we offer for caregiver support: For more visit our Instagram! | |||
| Becoming more aware of our thoughts as caregivers, with Jessica Smith (Episode 107) | 16 Aug 2024 | 00:37:33 | |
As people, we have thousands and thousands of thoughts each and every day. But do you truly recognize your thoughts and are you aware of the thoughts you are having? How are your thoughts impacting you and your daily life as a caregiver? In this episode, Jessica and Stephanie talk about the importance of noticing our thoughts and how this practice can change our lives, emotions and overall outlook. About Jessica: Jessica is a writer, meditation teacher, death doula, and dementia consultant. Her studies with Ram Dass, Joseph Goldstein, Alua Arthur, and Pema Chodron have shaped her mindfulness and doula work with the dementia community, which focuses on bringing awareness to our thoughts and leading with compassion. You can find her on Instagram (@alzheimers_awakening) and Substack (@alzheimersawakening). We want your feedback. Let us know how you liked today’s episode! Rate, review and subscribe to let us know you are enjoying this podcast and want to hear more! Visit us on our website to see all that we offer for caregiver support: For more visit our Instagram! | |||
| Let’s talk about the driver’s license (Episode 106) | 09 Aug 2024 | 00:15:38 | |
The driver’s license and cognitive or physical impairment. Something that, unless you’ve experienced it, you can never fully understand. The battle and the ethics and the nuances to exploring safety vs. autonomy and taking the path of least resistance. What in the world do we do when we are faced with the reality that it may be time to confront the reality that to the person you care for may no longer be safe to drive (or maybe they have already been told by a member of their medical team they cannot and you are now dealing with the aftermath). In this episode, Stephanie takes you through the emotions and internal/ external battle of this very complex situation and takes you through her own personal experiences with the driver’s license and her own mother. We want your feedback. Let us know how you liked today’s episode! Rate, review and subscribe to let us know you are enjoying this podcast and want to hear more! Visit us on our website to see all that we offer for caregiver support: For more visit our Instagram! | |||
| What exactly is Caregiver Burnout? (Episode 105) | 02 Aug 2024 | 00:11:22 | |
We hear about this term, caregiver burnout, so often. But what exactly is ‘burnout’ and how do we get there? What can we do to try and prevent or mitigate burnout? In today’s episode, Stephanie takes it back to basics to talk about this commonly used term and what it means. We want your feedback. Let us know how you liked today’s episode! Rate, review and subscribe to let us know you are enjoying this podcast and want to hear more! Visit us on our website to see all that we offer for caregiver support: For more visit our Instagram! | |||
| Parenting after the devastating loss of an infant- continuing to care while growing a successful business and determining her own needs in processing substantial grief- with Caitlin Melvin (Episode 104) | 26 Jul 2024 | 00:38:16 | |
Caitlin Melvin’s life changed forever in 2021 when her 3 week old baby Scottie passed away. Having to continue caring for her young son in the face of grief, Caitlin learned how to navigate a situation she never thought she would face. In today’s episode, Caitlin talks about feeling substantial pain and having to continue on while growing her family and running a successful business. About Caitlin: Caitlin Melvin lives in Vancouver, British Columbia with her husband and two children, Huxley and Goldie (and kitty - Lucca!). Caitlin owns Melvin Marketing Group, a boutique marketing agency that focuses on social media marketing and branding. She balances life with her passions for motherhood, cooking and baking, snowboarding, and enjoying Vancouver and the surrounding area via hiking boots, her bicycle and long drives with her family. Find Caitlin on Instagram: @caitlinalison Visit us on our website to see all that we offer for caregiver support: For more visit our Instagram! | |||
| Finding herself again after substantial loss: continuing on and locating meaning after a long chapter as a care partner to both parents- with Patti LaFleur (Episode 103) | 19 Jul 2024 | 00:53:27 | |
Patti LaFleur (known as misspatticake on social media) has become a well-known figure in the caregiving space. After leaving her teaching job of many years, she dedicated her life to caring for her father and her mother Linda, diagnosed with dementia. Documenting her journey daily, Patti and Linda were an inspiration and a real view on the happiness and positivity that was possible in a carepartner bond between mother and daughter. When Linda passed away more suddenly than ever anticipated, Patti found herself lost and confused, looking to find herself and her identity once again. In today’s episode Patti bravely talks about her experiences in loss and grief, finding meaning after loss and learning who she is once again. About Patti: Patti LaFleur is the former care partner to her mom, Linda, who had younger-onset mixed dementia. Patti brings a wealth of knowledge after caring for both parents, teaching for ten years, volunteering with people living with neurocognitive disorders in art classes, and serving as a community educator for the Alzheimer’s Association. Patti also has a Masters in Instructional Leadership and is a Certified Dementia Practitioner. She is a member of the Lorenzo's House team, leading their vision as their Youth and Lighthouse Outreach Lead, where she connects with families, designs and implements youth programming, and leads their ambassador initiative (valued volunteer leaders). Find Patti on Instagram: @misspatticake Thank you to the sponsor of thoday’s episode, Innerhive. To learn more about Innerhive, visit http://www.innerhive.com ! Visit us on our website to see all that we offer for caregiver support: For more visit our Instagram! | |||
| Using music and art as a method of coping and growth while caregiving for her spouse with Lewy body dementia - with Mary Lou Falcone (Episode 102) | 12 Jul 2024 | 00:50:52 | |
Mary Lou Falcone lived a life of sophistication and excitement as a prominent figure in the classical music space, her husband a well-known artist. Using music throughout her life helped as a means of expressing herself and proved to be paramount when her husband was diagnosed with Lewy body dementia- at a time in her life that was shocking and unexpected. In this episode, Mary Lou describes her journey through caregiving and the rollercoaster of moments that will be sure to leave you with tears. About Mary Lou Falcone: Mary Lou Falcone is internationally known as a classical music publicist/strategist who for fifty years has helped guide the careers of celebrated artists – Van Cliburn, Gustavo Dudamel, Renée Fleming, Sir Georg Solti, James Taylor – and advised many institutions including Carnegie Hall, Chicago Symphony, Los Angeles Philharmonic, Philadelphia Orchestra, New York Philharmonic, Vienna Philharmonic. Combining communication skills with her background as a performer and educator, she now adds another layer: advocate for Lewy body dementia (LBD) awareness. Her late husband, the illustrator Nicky Zann who died from LBD in 2020, was the catalyst for her first book, I DIDN’T SEE IT COMING: Scenes of Love, Loss, and Lewy Body Dementia. Find Mary Lou: https://maryloufalcone.com/ Visit us on our website to see all that we offer for caregiver support: For more visit our Instagram! | |||
| I no longer want to engage in sex or intimacy with my partner who I care for (Episode 101) | 05 Jul 2024 | 00:13:01 | |
Do you ever feel completely removed, turned off or differently in general about your partner who you care for? Do you notice that you no longer want to engage in intimacy with your partner because of the changes in your relationship and the dynamic as a result of your caregiving? In today’s episode, Stephanie touches upon the topic of sex as a caregiver and normalizes and validates the emotions you may have surrounding sex and intimacy. Today’s episode was the number 1 requested episode this season by our audience on social media! If you feel this way you are NOT alone. We want your feedback. Let us know how you liked today’s episode! Rate, review and subscribe to let us know you are enjoying this podcast and want to hear more! Visit us on our website to see all that we offer for caregiver support: For more visit our Instagram! | |||
| An informative look at our ‘crumbling’ healthcare system, its shortcomings , achievements and what we need to focus on shifting to benefit the future of our caregivers and those they care for- with André Picard (Episode 100) | 28 Jun 2024 | 00:46:21 | |
For 43 years André Picard has been at the forefront of health journalism and health reporting for The Globe and Mail. In today’s episode, André takes a deep dive into the reality of our healthcare system and its impact on caregivers and the people they care for. André compares and contrasts the Canadian system in relation to systems in other nations, the gains that have been made in the Canadian system over time and what improvements are needed to best impact caregivers, both now and in the future. About André Picard: André Picard is the health columnist at The Globe and Mail. He was named Canada’s first Public Health Hero by the Canadian Public Health Association, and a Champion of Mental Health by the Canadian Alliance on Mental Illness and Mental Health. He received the Queen Elizabeth II Diamond Jubilee Medal for his dedication to improving healthcare. He is also the author of six bestselling books, most recently “Neglected No More: The Urgent Need To Improve The Lives of Canada’s Elders.” Find André: Visit us on our website to see all that we offer for caregiver support: For more visit our Instagram! | |||
| How caregiving for 3 family members concurrently drove her to create innovative tools for other caregivers, with Debbie Compton (Episode 99) | 21 Jun 2024 | 00:36:04 | |
Debbie Compton and her husband cared for 3 family members at the same time. It was during this balance that she recognized exceptionally innovative ways to navigate presenting difficulties and stressors. She has since adapted these innovations and techniques for other caregivers to help them through their journeys. Debbie is a positive and truly inspirational leader who shares her incredible story in today’s episode. About Debbie Compton: Debbie Compton is a three-time caregiver for parents with different forms of Dementia, Alzheimer’s, Parkinson’s and Vascular Dementia. She is a Certified Caregiving Consultant, Certified Caregiver Advocate, Educator for the Alzheimer’s Assoc. speaker, and author of 9 books. Debbie’s first book, Caregiving: How to hold on while letting go, offers actionable steps for caregivers as well as questions to ask doctors, in-home caregivers, facilities, and more. It is full of humor and inspiration. Visit us on our website to see all that we offer for caregiver support: For more visit our Instagram! | |||
| Exploring potentially unknown networks of support and community, mitigating feelings of isolation and loneliness and fostering connection by using the Atlas CareMap- with Rajiv Mehta (Episode 98) | 14 Jun 2024 | 00:40:47 | |
In today’s episode, Rajiv Mehta talks about his non profit organization, Atlas of Caregiving, and his revolutionary mapping tool the Atlas CareMap which has been taught to and used by groups around the world. Rajiv explores how the Atlas CareMap tool can truly impact the lives of caregivers by helping them gain a fuller awareness of their own selves and the community around them which can shift their thought processes and overall worldview. Join our program waitlist (for clinicians): https://compassionincaregiving.com/waitlist About Rajiv Mehta: Rajiv Mehta is a leading expert on care and community. He has led groundbreaking research and the development of innovative tools and experiences that empower people to nurture cultures of connection and belonging and better care for each other. This has resulted in numerous engagements around the world, including consulting, collaborations, keynotes, and workshops (participants have ranged widely: business execs, Navy SEALs, doctors, students, waiters, house cleaners, etc. and many different patient and family caregiver communities). Key developments include the Atlas CareMap tool and the broader Mapping Ourselves methodology. Rajiv has served on the boards and advisory panels of several nonprofit and government organizations, including Family Caregiver Alliance, U.S. Dept of Health and Human Services, Robert Wood Johnson Foundation, and AARP, and caregiving research programs at Stanford, USC, and Cincinnati Children’s Hospital. His current efforts are focused on the question “Why are many efforts to cultivate connection and belonging in organizations so ineffectual?”, and how we can do significantly better. Rajiv is CEO & Founder of Atlas of Care. He studied business at Columbia (MBA), and aerospace engineering at Stanford (MS) and Princeton (BS), conducted research at NASA, and lead innovation efforts at Apple, Adobe, and other tech companies. Since 2006 he has applied this experience to nurturing thriving families and communities. Visit us on our website to see all that we offer for caregiver support: For more visit our Instagram! | |||
| Examining our expectations of respite care: setting ourselves up for success when it comes to maximizing our respite experiences and outcomes (Episode 97) | 07 Jun 2024 | 00:08:20 | |
You work so hard to organize and plan respite care so that you can get that long awaited and very needed break, but your expectations and hopes fall short of what you were hoping for, and suddenly you find yourself frustrated, angry and even more depleted. In episode 97 of Caregiver’s Compass, Stephanie talks about expectations and realities of respite care and how we can maximize this truly valuable time so we can come back home refreshed and content. Visit us on our website to see all that we offer for caregiver support: www.compassionincaregiving.com
For more visit our Instagram! | |||
| Learning from significant burnout- how incorporating care for self (even in the smallest ways) is a necessity when it comes to caregiving and grief, with Nikki Nurse (Episode 96) | 31 May 2024 | 00:43:34 | |
Nikki Nurse learned what burnout in caregiving can look like when she broke 2 of her limbs while caring for her mother. It was at that time that she realized the true importance of incorporating self-care and working to minimize and prevent burnout as an essential part of caregiving. In today’s episode, Nikki shares her story of caregiving and continuing to maintain balance and care for self after her mother’s passing. She also talks about life after loss and maintaining her sense of self after many years of caregiving. About Nikki: Nikki J Nurse is a writer, wellness advocate, and content creator based in Brooklyn. As someone who has personally navigated life after caregiving, Nikki believes it is important to discuss finding oneself and purpose after loss. Through her own experience, she has learned that it is possible to rediscover passions and find new purposes in life. Through her empathetic writing and calm presence, she makes it easy for us to acknowledge our pain and struggles - embracing them not as enemies, but as part of our ongoing journey towards joy and empowerment. Find Nikki on Instagram and Tik Tok: @alogcabininbrooklyn Visit us on our website to see all that we offer for caregiver support: www.compassionincaregiving.com | |||
| Yes, eating disorders can very much be related to caregiving- with Kyla Fox (Episode 95) | 24 May 2024 | 00:43:48 | |
Did you know that eating disorders, at their core, have very little to do with how you look? In this insightful episode, social worker and therapist, Kyla Fox , identifies what an eating disorder is, how it can present in one’s life and how it can be related to and triggered by caregiving. If you or someone you know is experiencing an eating disorder, please seek support. About Kyla Fox: Kyla Fox has established herself as a visionary and innovator, when it comes to re-framing the way Canadians think about and treat eating disorders. As someone who struggled herself with an eating disorder, Fox identified care gaps and fundamental flaws in the treatment and recovery approach. Kyla is a Master’s level clinician with degrees from both the University of Toronto in the Master’s of Social Work program as well as an Honours Bachelor of Arts Degree in Women’s Studies. Kyla is a member of the Ontario Association of Social Workers and is registered with the Ontario College of Social Workers and Social Service Workers. She is also a member of the Academy of Eating Disorders and the National Eating Disorders Association. With such deep and varied experience in the field, Kyla is regularly called on by Canada’s top media outlets as a special commentator on a broad list of topics, including eating disorders, self-esteem, women’s health, body image, pregnancy and body confidence and more. For more information please visit www.kylafoxcentre.com. Visit us on our website to see all that we offer for caregiver support: www.compassionincaregiving.com For more visit our Instagram! | |||
| Supporting Family Caregivers in Healthcare Through Research, Education and in Practice with Dr. Jasneet Parmar (Episode 94) | 17 May 2024 | 00:40:42 | |
Caregivers are aware there are significant gaps in our healthcare system, yet some of the answers to these gaps are found in supporting and providing education to the healthcare workers on the front lines. It was not until recently that Dr. Jasneet Parmar and her team sought to change the landscape of caregivers in healthcare and began to create and distribute peer reviewed, validated trainings for care providers to change the engagement between the healthcare team and caregivers on the frontlines. These trainings and further education, research and her own work as a physician are truly shifting how the system works with caregivers at the forefront. About Dr. Jasneet Parmar: Dr. Jasneet Parmar is a Care of the Elderly physician and has worked for the Specialized Geriatrics Program, in Edmonton, since 1992. She is a Professor at the Department of Family Medicine at the University of Alberta. She currently works in the Homeliving Care of the Elderly Services and provides assessments to homebound seniors. Jasneet has been very active in developing and implementing clinical programs for the care of the elderly. Her research is focused on supporting family caregivers by the healthcare system. Find Dr. Parmar and Caregiver Centered Care: https://www.caregivercare.ca/ Visit us on our website to see all that we offer for caregiver support: http://www.compassionincaregiving.com For more visit our Instagram! | |||
| ‘My parent has poor health habits but refuses any of my support or suggestions for change’ (Episode 93) | 10 May 2024 | 00:14:02 | |
So you have identified what needs to change when it comes to your parent’s care or habits, or you have recognized the risks in their current lifestyle choices and want to ensure they stay safe and healthy. But whenever you approach them to talk about this, they are either entirely resistant, or refuse to talk about this. Or maybe they are open to engaging with you but then it is as if they didn’t hear a word you said because nothing ever changes leading you worried about what is to come if they do not make real change now. In this episode, Stephanie talks about what you can and can’t do when it comes to asserting change in your parent’s life and how to navigate what can at times feel out of control, powerless and very anxiety-provoking. Visit us on our website to see all that we offer for caregiver support: www.compassionincaregiving.com For more visit our Instagram! | |||
| How to Care for the Caregiver (Episode 92) | 03 May 2024 | 00:16:52 | |
We all know about the caregiver and the intense care they can provide around the clock. But when it comes to caring for the caregiver themselves, what might they need? How do we support and care for the caregiver who is doing it all? Should you pull back and leave them alone in all this and give them space to come to you or should you show up at their door offering to support them when they don’t reply to your texts? In this episode, Stephanie gives her perspective on how to support and care for the caregiver which she bases both off her own caregiving experiences and her professional work with hundreds of caregivers. Whether you are listening for ideas to communicate to those in your life or whether you wish to share this episode with someone who may be looking for insights into your care as a caregiver, this is the episode you need when it comes to YOUR own care. Visit us on our website to see all that we offer for caregiver support: www.compassionincaregiving.com For more visit our Instagram! | |||
| Top 5 episodes of season 3! | 05 Jan 2024 | 00:09:52 | |
There were so many incredible episodes this season and today Stephanie recaps the most listened to episodes of season 3. This entire season we have also highlighted quotes from our guests and these will be available on one beautiful free PDF the week of January 8th! To download all of these that you can print or keep with you, visit our website (www.compassionincaregiving.com), enter your information into the pop-up on the website for the PDF download and that's it! If you have any suggestions for what you want to hear next season, email us at stephanie@compassionincaregiving.com ! We would love to hear from you. Visit us on our website: www.compassionincaregiving.com
Join our FREE Facebook community! https://www.facebook.com/groups/compassioncaregiverconnection For more visit our Instagram! @compassionincaregiving | |||
| The Canadian Centre for Caregiving Excellence, advocating for change in the caregiving landscape, and balancing life as a mom and caregiver to others, with Liv Mendelsohn (episode 91) | 29 Dec 2023 | 00:33:11 | |
1 in 4 in Canada are presently caregivers and this number is expected to increase to 1 in 2 in the coming years. Yet our healthcare system is not equipped to support the family caregiver or the private caregiver in a way that prevents collapse. A national healthcare strategy is needed. Enter the CCCE, spearheaded by director Liv Mendelsohn, this organization works to educate, advocate and change policy to improve all areas of care across Canada. In today’s episode, Liv details the history of the CCCE and how they are working to change the caregiver narrative as we move forward. About Liv: Liv Mendelsohn, MA, MEd, is the executive director of the Canadian Centre for Caregiving Excellence where she leads innovation, research, policy and program initiatives to support Canada’s caregivers and care providers.
Liv has a been a lifelong caregiver and has lived experience of disability. Her experiences as a member of the ‘sandwich generation’ fuel her passion to build a caregiver movement in Canada to change the way that caregiving is seen, valued, and supported.
Over the course of her career, Liv has founded and helmed several organizations in the disability and caregiving space, including the Wagner Green Centre for Accessibility and Inclusion and the ReelAbilities Toronto Film Festival.
Liv serves as the chair of the City of Toronto Accessibility Advisory Committee. She has received the City of Toronto Equity Award, and has been recognized by University College, University of Toronto and the Jewish Community Centres of North America for her leadership. Liv is a senior fellow at Massey College and a graduate of the Mandel Institute for Non-Profit Leadership and the Civic Action Leadership Foundation Diversity Fellowship program.
Liv lives in Toronto with her husband and two boys. Find Liv Mendelsohn and the CCCE (Canadian Centre for Caregiving Excellence: https://canadiancaregiving.org/ Visit us on our website: www.compassionincaregiving.com
Join our FREE Facebook community! https://www.facebook.com/groups/compassioncaregiverconnection For more visit our Instagram! @compassionincaregiving | |||
| Creating change in dementia through Montessori based strategies, with Rev Katie Norris (episode 90) | 22 Dec 2023 | 00:39:32 | |
In today’s episode, the incredible Rev Katie Norris talks about her experiences caring for her mom with dementia with her son Jeffrey, and how this shaped her passion for entering a career in caregiving support. Katie discusses the very unique Montessori approach to dementia care and her successful membership and coaching program for caregivers. About Katie: Rev. Katie is an AMI Montessori for Aging and Dementia Practitioner and primary author of "Creative Connections in Dementia Care®." She started in dementia care 14 years ago and has taught families, churches, nursing care facilities, and other AMI students Montessori based care. Post-pandemic, she took her work online, and now she, with her son Jeffrey (who was a child care partner for his grandmother), coach families and hired care partners in trauma-informed Montessori based dementia care through their online dementia care membership, the Care Partners House™. She was a live-in care partner for her mother who had Lewy Body Dementia and is now a long-distance care partner for her dad who has Alzheimer's Disease. Find Rev Katie Norris and her son Jeffrey on Instagram: @creativeconnectionsdementia Visit us on our website: www.compassionincaregiving.com
Join our FREE Facebook community! https://www.facebook.com/groups/compassioncaregiverconnection | |||
| Navigating sibling relationships while providing 12 years of intensive care to a parent -learning how to process this and make amends with the siblings over time- with Rosanne Corcoran (episode 89) | 15 Dec 2023 | 00:34:57 | |
In this episode, Rosanne Corcoran, podcast host, speaker and previous caregiver of her mom with dementia, details her journey in the sandwich caregiver role, caring for her mom and children for 12 years. She specifically talks about her siblings who did not actively step forward to care for her mom during a time when she was an intensive and primary caregiver. About Rosanne: Rosanne Corcoran’s journey into caregiving began with a dementia diagnosis of her fiercely independent mother, opening the door to a 12-year journey in sandwich caregiving. After experiencing first-hand the stress and isolation caregiving brings along with the lack of meaningful resources for caregivers, Rosanne created Daughterhood the Podcast. As host of the podcast, touching the lives of thousands of caregivers, Rosanne brings her authentic voice to each conversation and discusses challenges caregivers face with experts in all fields. Rosanne is a sought-after speaker and author who has been featured in publications including CNN Health, Barron’s and Next Avenue. She has also received Caregiving.com’s Visionary Award in 2021. In addition to leading a monthly Daughterhood Connection Circle, as the Director of Content and Strategy for Daughterhood, Rosanne oversees ensuring that Daughterhood’s content is well organized, easily understood, and practical. Find Rosanne: http://www.daughterhoodthepodcast.com Visit us on our website: www.compassionincaregiving.com
Join our FREE Facebook community! https://www.facebook.com/groups/compassioncaregiverconnection
For more visit our Instagram! @compassionincaregiving | |||
| What does a mom of 3, a business owner and a therapist do for self-care and balance (Stephanie’s ‘self-care’ routine)? (episode 88) | 08 Dec 2023 | 00:12:59 | |
Although I truly do not think that anything I am doing is ‘more busy’ than the next person (especially if you are a caregiver!), I am sometimes asked what my personal care routine is and how I balance and wear so many hats. So here you go for something a little different! And you will see very quickly that I am anything but perfect in this. Enjoy! Visit us on our website: www.compassionincaregiving.com
Join our FREE Facebook community! https://www.facebook.com/groups/compassioncaregiverconnection
For more visit our Instagram! @compassionincaregiving | |||
| Family and friends who used to show up, stopped coming to visit when my loved one was diagnosed (episode 87) | 01 Dec 2023 | 00:13:44 | |
This topic hits hard. Being a caregiver can already be so isolating and difficult and as caregivers, we rely on others to come forward, show up, and support us when we need it the most. In this episode, Stephanie talks about what we can do when people we have been connected to stop showing up for us and our loved ones and explores possible options for navigating this very difficult aspect of caregiving. Visit us on our website: www.compassionincaregiving.com
Join our FREE Facebook community! https://www.facebook.com/groups/compassioncaregiverconnection For more visit our Instagram! @compassionincaregiving | |||
| The shock of becoming a caregiver while already working as a psychologist in the healthcare system and finding true joy in the smallest moments as a caregiver of a daughter with a life limiting illness- with Dr. Naomi Saperia (episode 86) | 24 Nov 2023 | 00:33:38 | |
In this episode, Dr. Naomi Saperia opens up about her experience caring for her daughter with a life limiting illness from birth to age 5, at a time when she was also working as a psychologist in the healthcare system herself. Naomi is vulnerable and personable in this very special episode. About Naomi: Dr. Naomi Gryfe Saperia is a Clinical and Health Psychologist in Ontario. With experience working in hospitals and private practice, her clinical practice focuses on supporting the mental health and well-being of those caring for a loved one with an illness or disability. Dr. Gryfe Saperia is published in numerous medical and psychological journals, has been featured on provincial and national platforms, teaches medical professionals how to effectively communicate with families, and is an advisor on multiple hospital committees. Incorporating her professional expertise with her lived experience as a caregiver herself, Dr. Gryfe Saperia is a passionate advocate for caregiver support. To learn more about Dr. Gryfe Saperia, you can visit her website at www.gryfesaperiapsych.com Visit us on our website: www.compassionincaregiving.com
Join our FREE Facebook community! https://www.facebook.com/groups/compassioncaregiverconnection
For more visit our Instagram! @compassionincaregiving | |||
| Getting raw and personal about all forms of parental guilt and how to cope with this very strong and real emotion- with Kelly Polci (episode 85) | 17 Nov 2023 | 00:30:05 | |
In today’s episode, Kelly Polci, registered social worker and psychotherapist, shares her personal experiences with mom guilt parenting her 3 children, balancing a hospital job and a private therapy practice. The different techniques and resources she employs with her clients facing deep parenting and caregiving guilt are also explored. Find Kelly on Psychology today at: Kelly Polci psychotherapy Website resource mentioned in this episode: https://expectful.com Visit us on our website: www.compassionincaregiving.com
Join our FREE Facebook community! https://www.facebook.com/groups/compassioncaregiverconnection
For more visit our Instagram! @compassionincaregiving | |||
| Our healthcare system is broken: case examples of how our healthcare system fails to support the patient and family caregiver, increasing caregiver stress, anxiety and burnout (episode 84) | 10 Nov 2023 | 00:23:35 | |
In today’s episode, Stephanie explores 3 common cases she has seen as an inpatient social worker in the hospital system and looks at how these scenarios end up directly impacting the mental health and capacity of family caregivers and those they care for. Suggestions for systems change and advocacy are noted throughout the episode. If you have ever been a caregiver of a loved one in the hospital system and have felt more overwhelmed as a result, this episode is for you. Visit us on our website: www.compassionincaregiving.com
Join our FREE Facebook community! https://www.facebook.com/groups/compassioncaregiverconnection
For more visit our Instagram! @compassionincaregiving | |||
| I do not have control, predictability or answers when it comes to my loved one with dementia (episode 83) | 03 Nov 2023 | 00:11:13 | |
While caring for a loved one with dementia, do you ever feel as though you wish you had more answers for the future? That you wish you knew what to expect over time? That you had more control over your situation? In this episode, Stephanie talks about common feelings when it comes to dementia caregivers, the difficulty in knowing what the future may hold and alternative ways you can think about this process while validating the very real frustration, anger and anxiety in this moment. Visit us on our website: www.compassionincaregiving.com
Join our FREE Facebook community! https://www.facebook.com/groups/compassioncaregiverconnection
For more visit our Instagram! @compassionincaregiving | |||
| Gaps in the healthcare system, its impact on caregivers and the road to positive change, with Dr. Nathan Stall (Episode 82) | 27 Oct 2023 | 00:38:42 | |
In this episode, Dr. Nathan Stall talks about ongoing gaps in the healthcare system in terms of caregiver support and caregiver mental health from his perspective as a geriatrician. He talks about generalizations and misconceptions by healthcare team members and recommendations for future change. He also comments on upcoming positive change and how the system is working on making shifts for the future. About Dr. Stall: Dr. Stall is a geriatrician and clinician scientist with the Women’s Age Lab and Women’s College Research Institute, as well as an Assistant Professor in the Department of Medicine at the University of Toronto. He received his medical degree from Western University and completed his residency in Internal Medicine and fellowship training in Geriatric Medicine at the University of Toronto. He also received a PhD in Clinical Epidemiology & Health Care Research at the Institute of Health Policy, Management and Evaluation (IHPME) at the University of Toronto. His research interests include family caregiving, long-term care, drug safety for older adults, sex- and gender-based determinants of ageing, and health care utilization among persons with dementia. During the COVID-19 pandemic he served as the Assistant Scientific Director of Ontario’s COVID-19 Science Advisory Table and a Network Science Advisor for CanCOVID. Visit us on our website: www.compassionincaregiving.com
Join our FREE Facebook community! https://www.facebook.com/groups/compassioncaregiverconnection
For more visit our Instagram! @compassionincaregiving | |||
| The many forms of GRIEF in caregiving, with Wendy Williams (Episode 81) | 20 Oct 2023 | 00:31:00 | |
In this episode, Wendy Williams joins the podcast once again to talk about how she has experienced grief in caregiving and how grief is so much more than the feeling after one’s passing-including grief over expectations of what life could look like without caregiving and grief over the loss of who your loved one once was. About Wendy: Wendy is a wife, mother, daughter, sister, friend and caregiver. In 2010 she founded Crazy Whisperer, a supportive community that focuses on effective management of mental health issues.She has a bipolar husband, an autistic daughter, a disabled son with a rare genetic defect, and an ageing mother with complex medical needs. She is a caregiver to all four and resides in Houston, Texas. Visit us on our website: www.compassionincaregiving.com
Join our FREE Facebook community! https://www.facebook.com/groups/compassioncaregiverconnection
For more visit our Instagram! @compassionincaregiving | |||