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Explore every episode of the podcast Bowel Moments

Dive into the complete episode list for Bowel Moments. Each episode is cataloged with detailed descriptions, making it easy to find and explore specific topics. Keep track of all episodes from your favorite podcast and never miss a moment of insightful content.

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TitlePub. DateDuration
From Transplants To Tailored IBD Treatment with Janette Villalon, PA05 Nov 202500:51:42

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Want a clear, human guide to modern IBD care without the jargon? We’re joined by Janette Villalon, a physician assistant at UC Irvine’s IBD Center, who brings a front-line view of what truly helps patients: personalized therapy choices, honest safety talk, and practical plans that fit real life. She traces the evolution from a handful of anti-TNFs to a wider toolkit—anti-integrins, IL-12/23 and IL-23 inhibitors, JAK inhibitors, and S1P modulators—and explains how we match treatments to goals like fast relief, fewer side effects, and coverage of extraintestinal issues such as arthritis, uveitis, and psoriasis.

We dig into how APPs power the day-to-day of IBD clinics, from education to monitoring and rapid access, and how the GHAPP Conference and national societies elevated advanced practice training. Janette breaks down when clinical trials make sense, why strict inclusion criteria matter, and how logistics can steer decisions when someone is very sick. She demystifies biosimilars, outlining FDA standards that support confident switches when insurance demands it, and shares how she helps patients balance infusions, injections, or pills against travel, work, and adherence.

For those planning a family, Janette offers timely guidance: aim for clinical and endoscopic remission three to six months before conception, continue pregnancy-safe maintenance therapy, and discuss starting low-dose aspirin at 12 to 16 weeks to lower preeclampsia risk, coordinated with maternal-fetal medicine.

Looking ahead, we explore precision medicine and AI—predictive markers, microbiome insights, and smarter monitoring that could reduce trial-and-error and catch flares early. The throughline is empowerment: ask questions, read, return for follow-ups, and shape your care around your life. We close with community resources from the Crohn’s & Colitis Foundation and a shout-out to Camp Oasis for young patients.

If this conversation helped you, subscribe, share it with a friend, and leave a quick review—what’s the one topic you want us to go deeper on next?

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Jose T- From Boxing Dreams To IBD Advocacy22 Oct 202500:49:17

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A boxer in training. A terrifying spiral of symptoms. A life-saving surgery that changed everything. Jose Torres joins us to share how ulcerative colitis pulled him out of the ring and propelled him into purpose—building community, advancing equity, and living well with a J‑pouch in a city that isn’t designed for urgent needs.

We trace Jose’s path from misdiagnosis in Brooklyn to specialized care in Manhattan and the brutal logistics of public transit without bathrooms. He opens up about the cultural currents in his Mexican and Puerto Rican family—why speaking up took time, why steroids raised tough questions, and how food traditions collided with new IBD realities. The story turns on resilience: a colectomy and J‑pouch, early pouchitis, iron infusions, and then a decade of medication-free stability supported by smart nutrition, consistent exercise, and honest attention to mental health.

Jose also brings us inside the Crohn’s & Colitis Foundation—from literally ringing the office doorbell to roles in advancement, business development, and DEI leadership. We talk about real lived experience, research into disparities, and why culturally fluent care changes outcomes. Along the way, he shares practical tactics for managing frequency, a nudge toward pelvic floor physical therapy, and a grounded philosophy: don’t chase perfection, cultivate accountability and hope.

If stories of grit, culture, and community help you feel less alone with IBD, this one’s for you. Cheers!

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Meet Dr. Christina Jagielski! 18 Jun 202500:51:42

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When you're battling inflammatory bowel disease, the wounds aren't always visible. Beyond the physical symptoms lies a reality many patients face but few discuss openly – the psychological impact of medical trauma.

Dr. Christina Jagielski, clinical health psychologist at Michigan Medicine, brings her expertise to this powerful conversation about trauma-informed care in the IBD community. With surprising candor, she reveals how she discovered that approximately half of gastroenterologists avoid screening for trauma history – not because they don't care, but because they feel unprepared to respond appropriately to what patients might share.

Through Robin's emotional personal story of emergency room panic attacks and medical gaslighting, we witness firsthand how past medical experiences shape current healthcare interactions. The conversation dives deep into practical strategies for both patients and providers: how to communicate triggers without reliving trauma, why certain medical settings feel unsafe, and what small changes can make enormous differences in patient comfort.

Dr. Jagielski challenges the longstanding approach of selective trauma screening based on gender or diagnosis, advocating instead for universal trauma-informed care. "People living with IBD are so much more than their labs and test results," she reminds us, emphasizing that acknowledging patients' lived experiences is just as crucial as treating their physical symptoms.

Whether you're a patient who's experienced medical trauma, a healthcare provider seeking to create safer spaces, or someone supporting a loved one with IBD, this episode offers transformative insights into healing the hidden psychological wounds of chronic illness. Listen now to start breaking down the barriers between physical and psychological care in the IBD journey.

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Meet Will A.! 14 Dec 202200:56:32

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This week we really enjoyed hearing Will Awve's story! We talked about his diagnosis with UC in college and how that affected his college experience. We discussed him trying basically all medication options to try to control his UC, his bouts with C. Diff,  and then his eventual decision to go through J-Pouch surgery. We also had a chance to talk about how your mental health and how you mentally position your disease affects your attitude and resilience. And finally we talk about how UC can create some interesting, uncomfortable, and possibly even dangerous situations when out in the wilderness. 

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Interested in being a guest? Email Robin at robin@bowelmomentspod.com or Alicia at alicia@bowelmomentspod.com or both! Cheers!

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Meet Joshua S.! 07 Dec 202200:50:01

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This week we had such a great conversation with Joshua Samudre! Joshua is a medical student living with UC and so we talked to him about what it's like to study medicine while also a consumer of medicine. We talked to him about moving across the country and reestablishing yourself and your care. We talked to him about advocacy volunteer and volunteering at Camp Oasis and we had some good laughs about bidets, how mean kids can be, getting old and technology, and his unusual "fun fact" that he shared with us. Also- lots of shout outs to Grady Stewart! Be sure to check out his episode too! 

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Research Roundup #2 with Dr. Sunanda Kane and Dr. Lukasz Kwapisz30 Nov 202201:04:50

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Welcome to our second Research Roundup episode! We brought back Dr. Sunanda Kane- Professor of Medicine at Mayo Clinic and Dr. Lukasz Kwapisz- Assistant Professor of Medicine at Baylor College of Medicine to talk to us about the latest in what's happening in IBD research. We talked about new medications, biosimilars, diet research, and more. 

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Meet Dr. Sabina Ali! 23 Nov 202200:44:10

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This week we had a great chat with Dr. Sabina Ali! Dr. Ali is a pediatric gastroenterologist and the  medical director of the Inflammatory Bowel Disease Program at UCSF Benioff Children's Hospital Oakland. She also happens to be living with IBD herself. We talked to her about her special interest in quality of care research and involvement with ImproveCareNow. We also discussed caring for very young children with IBD, the importance of having a great care team, diets and IBD, and her involvement with the South Asian IBD Alliance

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Meet Matt K.! 16 Nov 202200:53:35

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This week we spoke to Matthew Kasabian! Matt told us about being diagnosed with IBD in college and  how isolated it made him feel. He talked about how he saw all his friends out living their young, fun lives on social media and how frustrated he felt but also how he used these feelings of isolation and frustration to motivate him to seek out new treatments and new healthcare providers. We talked to him about the holistic diet he tried, we discussed his J-Pouch surgery and how living with an ostomy during that process helped him heal and gave him his life back, we talked about his healthy lifestyle of eating well and working out (with a few High Noons and other drinks incorporated), and about job hunting while going through the J-Pouch surgery process. Finally we talked to him about how he stays so positive and what an incredible impact an ostomy nurse named Andrew had on his life and his recovery. 

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Meet Registered Dietitian Neha Shah! 09 Nov 202200:48:57

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This week we tried something new! We let our friend Stacey Collins guest host the show! Stacey is a Registered Dietitian who specializes in IBD and our guest this week is Neha Shah who is also a Registered Dietitian who specializes in IBD. In addition to being a RD, Neha is also also a certified nutrition support clinician (CNSC), credentialed by the National Board of Nutrition Support Certification, a certified health education specialist (CHES), credentialed by the National Commission of Health Education Credentialing, and holds a  Master’s in Public Health.  She is in private practice but also is integrated into the IBD Center at UCSF.  Beyond caring for her patients, she continues to provide lectures to healthcare providers, supervise nutrition interns, give community talks, author articles, and plan research studies with the medical teams. Neha is a powerhouse and a light. 

They had such an interesting peer-to-peer conversation on diets and IBD, the cultural aspects of diet and how to navigate that with IBD,  learning "cultural humility" and how to work with people from other cultures, and so much more. Robin and I really enjoyed eavesdropping on their conversation and I know you'll be just as fascinated. 

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Meet Wendy K.!02 Nov 202200:52:24

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This is week we had such a fun conversation with Wendy Kovich! Wendy was diagnosed with Crohn's in her 20's very shortly after she married and it's been quite the roller coaster since. We talked to her about navigating through treatment options and surgeries, working with her healthcare team to get pregnant, dealing with a fistula, and what it's been like to raise her twins while having very active disease. We spent a lot of time talking about her decision to move from a J-Pouch to a permanent ostomy, what it took for her to emotionally make this decision, the team it took to do the surgery and to repair her fistula, how she learned from Instagram Influencers on how to care for her ostomy, and how much she loves her "Barbie Butt." We also laughed so hard about how her "white coat syndrome" manifests itself.  

We loved talking with Wendy and we definitely feel like we have a new best friend. 

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Meet Dr. Tauseef Ali! 26 Oct 202200:49:15

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This week we talked to Dr. Tauseef Ali! Dr. Ali is the medical executive director of Saints Digestive Institute and director of IBD clinical and research program at SSM Health Saint Anthony Hospital. He is also a Clinical Assistant Professor of Medicine at the University of Oklahoma in the Digestive Disease and Nutrition section and adjunct faculty at Oklahoma State University. Additionally he's a board member and lead for professional outreach and education for the South Asian IBD Alliance.  We talk to him about establishing an IBD Center of Excellence, we talk to him about all that he does for SAIA, we talked to him about the upcoming 2nd edition of his book "Crohn's and Colitis for Dummies", and we talk to him about "med twitter" and how active he is on there. 

Dr. Ali was so much fun to talk to and so passionate. I think you'll enjoy this episode just as much as we did! 

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Meet Jason W.! 19 Oct 202200:45:02

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This week we had a great conversation with our friend Jason Wild! We talked to him quite a bit about how he found a community of people living with IBD through Camp Oasis and how he's evolved from a counselor to a "Leader in Training" lead to a Camp Director. You can tell how much he loves camp and loves the community he's formed through it. We also talk to him about his use of medical cannabis to treat his UC and how he worked with his gastroenterologist to move to this option and to monitor his health. It was really interesting to hear a patient perspective on medical cannabis especially after our conversation about this with Dr. Jami A. Kinnucan a few weeks ago. 

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Meet Dr. Claire Hamnett- Pelvic Floor Physical Therapist12 Oct 202200:55:31

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UPDATE: Since this recording, Dr. Hamnett has launched her own practice, Spruce Physical Therapy!  You can find her on IG and TikTok @Spruce.pt. We hope you'll check her out if you are in NYC! 

This week we shared a Rowdy Mermaid and had such an interesting conversation with Dr. Claire Hamnett! Dr. Hamnett is a pelvic floor physical therapist at Solstice Physiotherapy in New York City and she has a special interest in working with people living with IBD. We talk to her about how pelvic floor PT can help with scar tissue issues, pain management, and surgical recovery. We also talk to her about how it can help with bladder, bowel, and sexual dysfunction. We also talk about insurance coverage for PT and how to access it. We also find out the surprising reason why she became and avid runner. Learn with us friends! This was such an informative conversation and Dr. Hamnett is super knowledgeable and passionate about pelvic floor PT!!

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Meet Amanda- founder of BeWell! 04 Jun 202500:48:16

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Amanda Phillips never imagined her lifelong battle with Crohn's disease would transform into a business helping other people living with chronic illnesses. But after decades of unexplained stomach pains, missed diagnoses, and learning to navigate life with IBD, that's exactly what happened.

Amanda takes us through her journey from childhood stomach aches dismissed as "just constipation" to her eventual diagnosis at 17. We explore how she learned to identify her personal flare triggers—stress and GI bugs being the major culprits—and the profound anxiety this created around situations most people take for granted, like commuting to work or being around sick family members.

The pandemic became an unexpected turning point in Amanda's health journey. Working remotely eliminated the bathroom-related stress of her daily commute. When her company pushed employees back to the office, Amanda fought for accommodations, facing frustrating resistance from HR despite documentation showing remote work improved her health and performance.

The birth of Be Well came during a February 2022 hospitalization, when Amanda found herself freezing in a standard hospital gown. Looking around at the medical wear available, she thought, "I can do better than this." 

What makes Amanda's approach unique is her commitment to meaningful design. Every Be Well product—from symptom tracking journals to discreet pill holders to comfort items with inspirational quotes—comes from lived experience and continuous customer feedback with a focus on prioritizing patient comfort, dignity, and practicality. Now she's expanding into new territory with hospital gowns, non-metal MRI hoodies, and more innovations. 

Whether you're living with chronic illness or supporting someone who is, this episode offers inspiration in turning personal challenges into purpose and creating solutions that truly understand patient needs.

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Meet Dr. Jeanne Tung! 05 Oct 202200:50:53

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This week we talked to Dr. Jeanne Tung! Dr. Tung is the Director of the Center for Pediatric IBD at OU Health. We talked to her helping kids transition and transfer to adult IBD care and we talk to her about her involvement in ImproveCareNow which is a collaborative made up of pediatric IBD patients, parents, and healthcare providers that works to (big surprise) improve care for kids living with IBD.  We also talk to her about helping parents with kids with IBD to let go and allow their kids to start to take charge of their own healthcare.

Dr. Tung is such a passionate advocate for kids with IBD and we had so much fun talking to her.

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It's Robin and Stacey's 1 Year J-Pouch-iversary! 28 Sep 202200:55:46

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This week we bring back Stacey Collins, RDN to celebrate(?) jpouch-iversaries. We talked about what Stacey and I have learned and what's been happening in our lives. We shared some tips and some of the not-so-pretty aspects of recovery to give you a better understanding of what to expect if you're discussing j-pouch surgery with your GI. Alicia decided to keep in some of the stuff she usually cuts, so please excuse the entire minute of just us laughing at the beginning. We do actually get down to business.

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Links:
J-pouch facts and infographic - UOAA
J-pouch surgery video - Crohn's & Colitis Foundation
J-Pouch Handbook - Penn State Health

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Meet Ben and Katie! 21 Sep 202200:58:58

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This week we talk to Ben and Katie Portier. We talk to them about navigating Ben's IBD from dating to married life, from flares to hospital stays, to surgery, and life with an ostomy. We talk about anxiety, body image, managing relationships, and being social. We discuss finding support for yourself and offering support to others.   We hope you enjoy - Cheers!

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- Living with a permanent ostomy - UOAA
- Emergency ostomy resources - UOAA
- Anxiety and IBD - Crohn's & Colitis Foundation
- Eating with an ostomy - UOAA
- Spouse / caregiver resources - Well Spouse Association

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Meet Dewey! 14 Sep 202200:49:00

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This week we talked to self-described "IBD Dinosaur" Dewey Thom! Dewey has been living with IBD for more than 40 years and has lived quite a bit of that time with a J-Pouch. We talked to him a lot about the importance of finding a community of people who understand IBD. We talk about his accidental participation in a support group and his subsequent role as a volunteer facilitator for the group. He reminisced about his memorable time as a counselor for a camp with kids with IBD and what an amazing experience camp can be for the kids and also the adults. We also talked to him about obstructions, strictures, pouchitis, and how having IBD may have shaped his career decisions. Dewey is a gem and I know you'll enjoy our conversation.

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Links:
- Information about J-Pouch surgery and possible complications- Crohn's & Colitis Foundation
- Information about J-Pouch surgery and what you need to know- UCSF Health
- Video on Pelvic Pouch and Pouch Complications- Cleveland Clinic (professional education but still quite understandable)
- Support options including support groups- Crohn's & Colitis Foundation
- Information on Camp Oasis- camp for kids with IBD- Crohn's & Colitis Foundation 

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Meet Courtney Robert, LCSW! 07 Sep 202200:52:38

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This week we talk to Courtney Robert, LCSW! Courtney is a licensed clinical social worker and therapist for the IBD Center at GI Alliance in Baton Rouge, LA! We talked to her about the IBD Center that they're building that provides a holistic approach to IBD care. We discuss trauma in IBD and the therapeutic technique called Eye Movement Desensitization and Reprocessing (EMDR). It's a really fascinating and really effective technique to help people with trauma and post traumatic stress. We also talked about gut-directed hypnotherapy and guided imagery. We learned a lot from Courtney and we know you will too!

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Links:
- Info from the EMDR Institute, Inc.
- An article about gut-directed hypnosis and IBD- U of Michigan featuring Dr. Megan Riehl
- Yoga, Breathing, and Meditation examples- GI Research Foundation- UChicago Medicine
- Mindfulness in IBD video- Crohn's and Colitis Canada
- Coping Strategies to Improve Mental Health- Crohn's & Colitis Foundation 

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Meet Tina of Own Your Crohn's Fame! 31 Aug 202201:13:46

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We were so excited to talk to Tina Aswani Omprakash this week! Tina is a powerhouse in our community and we loved hearing her IBD story and all of the awesome things she's been working on- and despite the super-sized episode, we just scratched the surface! We talked to her about her very complicated Crohn's and her other autoimmune conditions. We talked about her family history of IBD and how her culture shaped her disease journey and eventually motivated her to speak out via her popular blog called "Own Your Crohn's."  After she started speaking out more publicly, more and more people of  South Asian descent and even further afield started reaching out and thanking her for helping to demystify and destigmatize IBD. That prompted her to start a social media group (IBDesis) and the success of that motivated her and her team to start the South Asian IBD Alliance. We were so excited to hear about SAIA's mission and their amazing progress in such a short time.

We also talked to her about how she manages her symptoms with a team of folks including a therapist, pelvic floor physical therapist, acupuncturist, and more.  Her team helps her maintain her holistic wellness as well as her disease.

We know you'll be just as riveted as we were by Tina's story and all her accomplishments.

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Bonus Episode! BMs 1st Anniversary! 25 Aug 202200:23:13

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We can hardly believe it but 1 year ago we published the first episode of Bowel Moments! Robin and I took this opportunity to reflect back on the last year, to talk about what we've learned, and to discuss how much we've loved working on this podcast.

We hope that you've enjoyed the last  year and that you'll join us for all our upcoming episodes too. Please find us on Instagram, Facebook, or Twitter to follow along with the fun! 

Thanks to our sponsor- Romanwell!
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Meet Dr. Jami A. Kinnucan24 Aug 202200:56:43

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This week we talk to Dr. Jami A. Kinnucan! Dr. Kinnucan is a Senior Associate Consultant at Mayo Clinic in Florida (or as she calls it- the Sandy Mayo) and she is an IBD specialist. She has a special interest in and researches cannabis and IBD and so we spend a lot of time hearing all about the limited research available and on the importance of talking to your doctor about cannabis use. It was really interesting to hear about the research that's been done but there's still so much to learn.

We also talked to her about her involvement with Scrubs & Heels which is a group for female GI providers that provides support, mentoring, and promotion of women in the field or looking to join the GI field. Their summit sounds so fun and we're totally holding Dr. Kinnucan to her promise to help us get an invite. Look for BM live at Scrubs & Heels in February 2023! ;)

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Links:
- Scrubs & Heels
- Information on Cannabis and IBD- Crohn's & Colitis Foundation
Video on Medical Cannabis and IBD- Crohn's & Colitis Foundation
- Video featuring Dr. Kinnucan- "CBD Oil and Cannabis for ulcerative colitis & Crohn's"

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Meet Shawn L.! 17 Aug 202200:45:23

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This week we talked to Shawn Luna! Shawn was diagnosed with UC as an adult and it was a big surprise since he hadn't had any symptoms of it when he was younger. We talked about how quickly his UC came on, how scary it was to get diagnosed, and his struggles with pain and fatigue and to get into remission which lead to him being steroid dependent. As part of this process, his original gastroenterologist "fired" him and referred him to a IBD specialist and we talked to him about the difference in his care and how his new doctor got him into remission and helped him wean off of the steroids. Shawn was very open and honest about how he struggled with his mental health during the years when he wasn't in remission and how that affected his marriage, his parenting, and his sense of identity as a man and father. We were so impressed with Shawn's grit and positivity despite his difficult journey to remission and we love how he's used his experience to help other people struggling with IBD.

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Links:
- An interesting medical education module about steroids and IBD
- Crohn's & Colitis Foundation Hispanic Community Facebook Group
- A toolkit for talking to your children about your IBD- Crohn's & Colitis UK
- A toolkit for talking to your children about your IBD- IBD Clinic- University of Alberta
- Living with IBD: Pain & Fatigue- Crohn's & Colitis Foundation
- Managing Pain in IBD- Crohn's & Colitis Canada

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Meet Megan S.! 10 Aug 202200:49:36

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This week we talk to Megan Starshak! Megan was diagnosed with UC in high school and, while it compromised her ability to do some of her favorite activities for a while, it didn't prevent her from finding new ways to enjoy her life and even led to her meeting some new people affected by IBD. Megan has devoted much of her life to helping other people with IBD share their story, feel connected, and to feel a sense of community. She is one of the founders of the nonprofit The Great Bowel Movement and it's mission is to "foster conversations surrounding the complexities and realities of IBD, fueled by an empowered, active community of patients and caregivers like you." They started by selling cool, awareness-building shirts but it has grown to so much more.

We talk to Megan about her motivation to start her nonprofit, running and cycling and the communities she's built through those activities, how animals can be really important sources of support and motivation, her role developing and facilitating the Leader In Training program at a camp for kids with IBD, her struggles with insurance even thought she's in remission, and so much more. We enjoyed our conversation and our margaritas so much during this episode. We know you will too!

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Meet Angie V.! 21 May 202500:51:49

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When your gastroenterologist is also your dad, navigating the complexities of Crohn's disease takes on a whole new dimension. Angie's powerful story reveals a journey of discovery, resilience, and unexpected insights into managing IBD through life's major transitions.

Diagnosed in 2017 following a period of intense personal stress, Angie shares her quest to understand why she developed Crohn's without family history. Her analytical approach has led to fascinating observations about potential triggers and management strategies. Most notably, she's discovered her Apple Watch provides possible early warnings of impending flares through heart rate variability changes.

The conversation takes a particularly compelling turn when Angie discusses her pregnancy experience. While initially smooth, a flare during her third trimester created significant concerns about her baby's development. She candidly shares how her medical team balanced medication adjustments with pregnancy safety, ultimately leading to the birth of her healthy son. 

Beyond medical management, Angie reveals how her experience with cold exposure seemed to help her, and how changing her relationship with exercise from aesthetic goals to gratitude for movement transformed her approach to fitness. Her perspective on finding meaning through chronic illness challenges listeners to consider how difficulties might lead to unexpected gifts – deeper connections, greater self-awareness, and opportunities to help others.

Whether you're newly diagnosed, preparing for pregnancy with IBD, or simply seeking fresh insights on managing a chronic condition, Angie's story offers valuable perspectives from someone who's navigating these waters with honesty, humor, and hope. Listen now to discover how technology, family support, and shifting perspectives can create a path forward through the challenges of inflammatory bowel disease.

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Meet Clayton! 03 Aug 202200:55:55

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This week we talk to our friend Clayton Smith! Clayton is a self-described "autoimmune disease magnet" who lives with Crohn's, Celiac, Rheumatoid Arthritis, Lupus, a rare cardiac and soft tissue disease and who has also had 2 bouts with colon cancer. We talked to him about traveling to developing countries with IBD and how to prepare for that, we talk to him about rural vs. urban vs. tribal health systems, we talk about struggling with body image and mental health, we talk a lot about how running and getting involved in charity running events helped him connect with other people living with IBD (including Robin!), we hear some great stories about Robin, and we laughed a whole lot. We hope you enjoy our conversation with our talented friend as much as we enjoyed our 2 hours of recording.

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Meet Sari! 27 Jul 202200:47:59

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This week we shared an Earl Gray tea with Sari Grossman! Sari has a very unique case of Crohn's disease and she has a family history of Crohn's as well.  We talk to her about growing up with Crohn's and also having a mother who is living with Crohn's. We discussed how she started navigating her own healthcare in her teens (with her Mom's coaching) and how and when she transitioned to an adult provider. We talked about her involvement with a club at her college for students living with IBD and how that provided her with both support and leadership opportunities. We talked about her choice of a career in immunology and her hope for future treatments and about medical trauma and how she figured out she was struggling with it and how she got help. This was such a great conversation and Sari is such a grounded and remarkable young woman. I think you'll learn a lot for this episode and enjoy meeting her very much.

Links:
Navigating College with IBD- Crohn's & Colitis Foundation
IBD on the College Campus- Lights Cameras Crohn's Blog
Preparing for Adult Care- Crohn's & Colitis Foundation
A Checklist on Preparing for Adult Care- GIKids.org
Toolkits for Pediatric IBD Patients- Transitioning to adult care, Navigating college, and more! - Improve Care Now

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Meet JPouch Jasmine! 20 Jul 202200:55:04

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This week week we interview Jasmine Bouche- AKA JPouch Jasmine! She's the first guest we've had on that neither Robin or Alicia knew already! It was so fun to get to know her and to hear her story of getting diagnosed in college, navigating the social scene and college experience while also navigating the healthcare system- and during a pandemic! We talked a lot about her decision to do the JPouch surgery, how she found connections and resources to help her cope, and about why she started her social media page focusing on her JPouch.  Jasmine is in law school now and we know that she's definitely a woman to watch!

Links:
Navigating College with IBD- Crohn's & Colitis Foundation
Studying Abroad with IBD- Crohn's & Colitis Foundation
IBD on the College Campus- Lights Cameras Crohn's Blog
Video on JPouch Surgery- Crohn's & Colitis Foundation
Advice from a College Student About Navigating College with an Ostomy- The Mighty

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Meet Stacey C- The Deuce! 13 Jul 202200:53:30

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This week we talk to Stacey Calabro who has decided that makes her "Stacey C- The Deuce." Stacey has been living with IBD since she was in high school. She's been a social worker, probation officer, and finally her IBD prompted her to go to nursing school. She's done travel nursing and had some fun adventures because of it including some brushes with celebrities! We talked to her about what it's like to travel so often with IBD and live somewhere with less accessible healthcare, we discuss how IBD affects her joints and other illnesses, we talk about how she found her IBD family through support groups and volunteering with a camp for kids with IBD, and how she's basically famous. We laughed SO hard during this episode. I know you'll love Stacey C The Deuce as much as we did.


Links:
7 Tips for Traveling with IBD from Someone Who Gets It- Own Your Crohn's
Traveling with IBD- Crohn's & Colitis Foundation
Traveling with IBD- Canadian Society of Intestinal Research
Extraintestinal Complications of IBD- Crohn's & Colitis Foundation
Preparing for a colonoscopy- Crohn's & Colitis Foundation

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Meet Eitan! 06 Jul 202200:44:42

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This week's episode was SO FUN! Robin and I got to record in the same room after not getting to meet up for more that 2.5 years! AND we had the joy of talking with Eitan Kling-Levine! Eitan is a young professional living with NYC and working in healthcare marketing. After growing up in the theater, he attended NYU for acting, and during senior year, got diagnosed with ulcerative colitis. This began a long road of intense sickness and treatment. After a year of complications and trying various therapies, he ultimately decided on having a three-part surgery. Following the year-long recovery, he was able to move back to NYC, and thankfully  has been able to live life to the fullest ever since. Most recently, he got engaged, and is excited to marry his life partner in July 2023. We talked about living and dating in NYC (and how hard it may be to find a bathroom!), we talked about his surgery experience, the French healthcare system, his foray into legislative and personal advocacy, his career moves, talking about sexuality with your GI, and our mutual love of Sauvignon Blanc.

Links:
Restroom finder app- Crohn's & Colitis Foundation
Get involved in IBD Advocacy- Crohn's & Colitis Foundation
Sex, Intimacy, and IBD Factsheet- Crohn's & Colitis Foundation 

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Meet Dr. Tim Ritter! 29 Jun 202200:47:16

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This week we talk to Dr. Tim Ritter- Senior Medical Director and lead for Clinical Trials at the GI Alliance.  Dr. Ritter has been treating patients with IBD for more than 30 years and has a special interest in clinical trials. We talk to him about what's happening in the IBD research space, talking to patients about clinical trials, what patients can expect from participating in a trial, and bourbon. 

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Meet Nicole Williams, LPC!22 Jun 202200:57:44

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This week we talk to Nicole Williams- Licensed Professional Counselor! Nicole has more than 20 years of experience in providing therapy services and specializes in working with people living with chronic illness. We talk to her about the grief and loss wheel she developed to help her patients understand the emotions that can go along with being diagnosed and living with a chronic illness, we talk about self-advocacy and being the captain of your healthcare team, we talk about resources you can use if you're living with a chronic illness, and we talk about living well and fully with IBD.

Links that Nicole mentions:
- Heartmath
- MyGoodDays.org
- Healingwell.com
- WeAreCapeable.org

Folder with resources Nicole Covers.

Books Nicole Mentions:
- 7 Steps to Living with a Chronic Illness- By Matt Cavallo
- Life Disrupted: Getting Real About Chronic Illness in Your Twenties and Thirties- By Laurie Edwards
- Sick and Tired of Feeling Sick and Tired- By Paul Donoghue and Mary Seigel
- Surviving and Thriving with an Invisible Chronic Illness: How to Stay Sane and Live One Step Ahead of Your Symptoms- By Ilana Jaqueline
- How to Live Well with Chronic Pain and Illness: A Mindful Guide- By Toni Bernhard
- You Don't LOOK Sick! Living Well With Invisible Chronic Illness- By Joy H. Selak, PhD

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Meet Dr. Tiffany Taft! 15 Jun 202200:58:16

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This week we talked to Dr. Tiffany Taft! Dr. Taft founded Oak Park Behavioral Medicine in 2012 and serves in an administrative leadership role. She completed her doctoral degree at the Chicago School of Professional Psychology and predoctoral internship at the Jesse Brown VA Medical Center. Dr. Taft helped launch the first integrated behavioral medicine service in gastroenterology in the United States at Northwestern University Feinberg School of Medicine, where she worked from 2009 to 2023. She is an internationally recognized expert in the psychosocial effects of chronic digestive diseases. Now as a “retired” Associate Professor, Dr. Taft has brought together an excellent team of clinicians dedicated to expanding access to specialty GI psychology services for patients in Illinois communities and across the United States.

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Meet Robin's Daughters- Logan & Baylee! 08 Jun 202200:45:26

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This week we had extra special guests- we welcomed Robin's daughters- Logan and Baylee! We discussed what is was like to grown up with a mom with IBD, how that may or may not have shaped their career choices, how Robin's parenting and their close relationship has shaped the way they live their lives, and we also share some fun childhood memories. This was a fun and heartwarming episode to record- we hope you enjoy! 

Links: 

  • An interesting blog on parenting with Crohn's disease- CBC
  • IBDMoms- a safe space to talk about parenting with IBD
  • Mamas Facing Forward- a group for moms living with chronic illnesses
  • A blog on parenting with Crohn's by Natalie Hayden- Lights Camera Crohn's

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Meet Registered Dietitian Brittany! 01 Jun 202200:48:28

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This week we talk to Brittany Rogers (formerly Roman-Green)! Brittany is an IBD-focused registered dietitian nutritionist, certified personal trainer, and behavior change specialist. She's the the co-leader of the diet and nutrition national scientific advisory committee for the Crohn's & Colitis Foundation, the national leader of the Registered Dietitians in IBD practice group for the Academy of Nutrition and Dietetics, and the founder of Romanwell. She also happens to live with ulcerative colitis! Brittany is a non-diet dietitian and believes in a health at every size (HAES) approach. She's passionate about her work and helping her patients live well.  We sincerely enjoyed our conversation about intuitive eating, IBD and food myths, and where research on diets and IBD are taking us. 

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Meet Nick M!07 May 202500:41:59

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What happens when your chronic illness becomes the catalyst for global exploration and environmental advocacy? This week we talk to Nicholas Mertens! Nick was diagnosed with Crohn's disease six years ago and he's turned his health journey into a platform for investigating how climate change impacts healthcare systems worldwide.

While most college students rarely venture beyond their comfort zones, Nick has represented his university at United Nations climate conferences in Dubai and Azerbaijan, researched indigenous biodiversity in Australia, and traveled to eight countries across four continents—all while managing his Crohn's disease. The political science and environmental studies major shares his remarkable journey from diagnosis to long-term remission, revealing how these experiences shaped his understanding of global health challenges.

The conversation takes fascinating turns as Nick details the practicalities of international travel with a chronic condition. From refrigerating Humira during 40-hour journeys to navigating customs with medication documentation, his strategies are invaluable for anyone with IBD considering travel. His culinary adventures prove equally enlightening—discovering his body tolerated exotic kangaroo meat perfectly while rejecting familiar McDonald's hamburgers in foreign countries. These unexpected reactions highlight the unpredictable nature of Crohn's and the importance of flexibility when managing the condition abroad.

Nick's involvement with the Young Patients Autoimmune Research and Empowerment Alliance (YP-AREA) demonstrates his commitment to supporting other young people with chronic conditions. This growing organization creates educational resources specifically for adolescents and young adults navigating autoimmune diseases—demographics often overlooked in medical literature and research.

Listen as Nick shares his powerful perspective on remission, defining it not by lab results but by quality of life and regaining control over your condition. His parting wisdom reminds us that climate change and healthcare are "inextricably linked," and understanding these connections is crucial for anyone living with chronic illness in our rapidly changing world.

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Meet Dr. Smita M.- Pelvic Floor Physical Therapist! - Episode 1825 May 202200:56:28

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This week we talk to Dr. Smita Mehta, PT, DPT, PRPC! Dr. Mehta is a pelvic floor physical therapist and part of a multidisciplinary team for IBD at Brooke Army Medical Center in San Antonio, TX. She clarified what pelvic floor PT is, how it can help people living with IBD, how to find your pelvic floor, and so much more. This conversation was absolutely fascinating and a revelation for both of us. And Dr. Mehta is so passionate about her work! In addition to her impressive resume on pelvic floor rehabilitation, she also has certificates in Post Partum Corrective Exercise and Pelvic Oncology Rehabilitation and completed her Ashtanga Yoga Teacher's training.


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Meet Kim K.! Episode 1718 May 202200:52:10

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Meet Kim K! Alicia had to miss this recording so you'll hear an intimate conversation between long time friends Robin and Kim. Kim was diagnosed with Crohn's disease when she was very, very young and before there were really any treatments for kids. They spend a lot of time talking about raising kids while having IBD and how that may have helped their kids become more empathetic and understanding. They also talk about how IBD has impacted their relationships and how they cope with symptoms like brain fog and fatigue. And Kim and Robin have some great advice to share on living life to the fullest.

Links:
- Moms with IBD
- Ostomy resources
- Relationships and IBD/Marriage and IBD
- Brain Fog
- Fatigue

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Research Roundup #1 with Dr. Anish Patel and Dr. Ashish S. Patel11 May 202201:08:56

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This week we're joined by a couple of our past guests- Dr. Anish Patel and Dr. Ashish S. Patel- to discuss what's new in IBD research and what's coming down the pipeline! We had a great discussion about biosimilars, predicting colectomy risk in kids diagnosed with ulcerative colitis, using ultrasounds to help track disease progression, precision medicine, and new therapeutics. We learned a lot, gained a lot of hope for better patient quality of life, bemoaned the healthcare system, had a lot of laughs, and realized that Anish might be trying to take our jobs as the host of Bowel Moments.

Links to articles of interest:
Biosimilars- https://academic.oup.com/ibdjournal/article/28/4/495/6278840
https://academic.oup.com/ibdjournal/article-abstract/28/4/531/6284046?redirectedFrom=fulltext 

Clinical and Host Biological Factors Predict Colectomy Risk in Children Newly Diagnosed with Ulcerative Colitis

Point-of-care ultrasound in IBD

New Targets in IBD Therapy: 2021
 





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Meet Dr. Sunanda Kane!- Episode 1504 May 202200:42:50

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In this episode you'll meet Dr. Sunanda V. Kane! Dr. Kane is a professor of medicine at the Mayo Clinic in Rochester, Minnesota; physician chair of the Mayo Clinic Quality Academy’s Fellow Subcommittee; and assistant chair of patient experience in the Gastroenterology and Hepatology Division of the Mayo Clinic. She has a special and passionate interest in women and IBD and so we spend a lot of time talking about fertility, hormones, pregnancy, and sexuality. We also talk about her upcoming book for patients on living well with IBD, being one of few female GIs, the PIANO study on pregnant women on IBD biologics, and a brief foray into why cilantro and ginger taste weird to some people. 

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Meet Josie M!- Episode 1427 Apr 202200:51:20

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This week we share a tequila cocktail with Josie McGarva! We talk about her Crohn's disease and her struggle with fistulas and abscesses. We also spend quite a bit of time talking about mental health and IBD and Josie's graduate work in health psychology. She's making great strides researching Post Traumatic Stress and IBD and health disparities and IBD. Very cool stuff and we're really excited. We also talked about how opening up about her disease and how getting an ostomy empowered her, gave her more freedom, and helped her connect with others. You won't want to miss this episode! Follow Josie on Instagram! @it_takesguts

Links:
A journal article by Josie's Graduate Advisory on Post Traumatic Stress and IBD
Intestinal Complications information from the Crohn's & Colitis Foundation
Information on Fistula Removal Surgery- Crohn's & Colitis Foundation
Information on Abscess Draining- Crohn's & Colitis Foundation
Information on Fistulas and Abscesses- Crohn's & Colitis Foundation of Canada
An educational video on Fistulas- Cleveland Clinic
A video on how to change your ostomy bag- Phoenix Children's Hospital
So many great videos on living with an ostomy!- United Ostomy Association
Mental health & IBD- Cleveland Clinic


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Meet Hannah C.! Episode 1320 Apr 202200:54:56

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This week we talk to Hannah Cramer! We talked a lot about surgeries, waking up with an unexpected ostomy, how the world could be more accessible for people living with ostomies, her challenging career and how her IBD influenced her career choice, and trauma and IBD. You won't want to miss this great conversation. We're convinced she's going to change the world.

Links:
SO much Ostomy info from the United Ostomy Association
Info on ostomy parts and how to choose a supplier- United Ostomy Association
Donate ostomy supplies or get donated ostomy supplies- Friends of Ostomates Worldwide
Journal Article on how IBD can cause Post Traumatic Stress
Journal Article on Resilience and IBD






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Meet Caroline P.! - Episode 1213 Apr 202200:47:20

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This week we talk to Caroline Perry on being diagnosed with Crohn's disease very young, growing up with IBD, and what is was like to have a sibling with IBD as well as one without IBD. We also talk about establishing boundaries when we you have IBD and also work in IBD research, how important it is to find people who really "get it", creative outlets for expressing feelings, and the importance of therapy (again- always).  We share some laughs, some stories about bathroom emergencies, some sparkling water, and sadly Alicia drinks wine alone. 

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Meet Dr. Lukasz Kwapisz! Episode 1106 Apr 202200:57:07

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In this episode you meet Dr. Lukasz Kwapisz! Dr. Kwapisz is an Assistant Professor and IBD Specialist at the Inflammatory Bowel Disease Center at Baylor College of Medicine in Houston, TX.  We discuss how he chose to specialize in IBD and his passion for treating our community,  his special interest in pouch disorders, tests that your doctor orders and why, the importance of early interventions,  his clinical trials experience versus real life treatment,  how close we're getting to personalized medicine, and tequila. And how he's a regular medical commentator on Canadian TV! 

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Meet Dr. Bincy Abraham!- Episode 1027 Oct 202100:58:58

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In this episode you meet Dr. Bincy P. Abraham! Dr. Abraham is a Distinguished Professor and Director of the Fondren Inflammatory Bowel Disease Program at the Underwood Digestive Diseases Center at Houston Methodist Hospital. We discuss her career in GI, her research into probiotics and nanotechnology, women's hormones and IBD, how she chooses her healthcare partners and patient treatments, how sometimes being a GI is like playing video games, and her love of California Cabernets. 

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Meet Jodie! Episode 920 Oct 202100:50:57

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This week we talk to Crohn's patient Jodie Delay who also has a brother and son with Crohn's. We discussed accepting and feeling all emotions, how empowering and exciting advocacy can be, and  how you can choose to live joyfully even in the face of adversity (#ginandjoy). Jodie also gives us some parenting hacks and reminds us that just because you may have IBD, doesn't mean that you can't live out your "Impossibly Big Dreams." 

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Global Perspectives on Pediatric IBD with Dr. Ashish S. Patel23 Apr 202500:49:07

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This week we bring back our friend and friend of the show, Dr. Ashish S. Patel! Dr. Patel takes us on a global journey through the evolving landscape of pediatric inflammatory bowel disease treatment, revealing contrasts between approaches across continents and highlighting gaps in how new medications reach children.

While adult IBD patients have benefited from an explosion of treatment options over the last two decades, children remain limited primarily to anti-TNF biologics as their only FDA-approved options. This forces physicians to fight insurance battles for access to newer medications or enroll patients in clinical trials that come years too late. "We have to bring evaluation of these medications to pediatrics concurrently with adult populations," Dr. Patel explains, sharing how advocacy efforts aim to shift this paradigm.

The conversation takes a fascinating turn when comparing treatment philosophies worldwide. At the World Congress in Buenos Aires, nutritional therapy, probiotics, and dietary interventions dominated discussions—a striking contrast to North American conferences featuring pharmaceutical companies. This reveals how resource availability shapes medical approaches, with Latin American physicians developing expertise in nutritional interventions while North American practices focus on biologics.

Dr. Patel's most hopeful insights come from current research aiming to personalize treatment based on a patient's unique profile. Studies collecting genetic information, microbiome data, and environmental exposures may eventually allow doctors to determine the optimal intervention—whether medication, diet modification, or environmental change—for each child at diagnosis. "In the near future, at least for certain types of IBD, we're talking about something that's curative rather than just therapeutic," he shares, offering hope that we're moving beyond symptom management toward addressing root causes.

Join us for this eye-opening conversation that challenges conventional thinking about how we research, develop, and implement treatments for one of medicine's most complex childhood conditions.

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Meet Amy W.! - Episode 813 Oct 202100:42:30

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This week we talk to Amy Btiebet Washington on living well with Crohn's disease, self-care options, finding the right provider and the right tribe, how vulnerability can create connections, and how sometimes you just got to have that craft beer even if you pay for it the next day.

Resources:
- TED Talk- Brene Brown- The Power of Vulnerability- So good.
- Rome GI Psych- referral list of therapists familiar with GI disorders
- Information on mental health and IBD- Crohn's & Colitis Foundation
- An interesting article about self-care and chronic illness from The Philly Voice
- Info on the risk of a child inheriting IBD if you have IBD from The Preconception and Pregnancy research program from the University of Alberta and the University of Toronto. 

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Meet Dr. Anish Patel! Episode 706 Oct 202100:59:18

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In this episode you'll meet Lt. Colonel Dr. Anish Patel! Dr. Patel is the head of GI and an IBD Specialist at Brooke Army Medical Center in San Antonio, TX. We talk to him about why he chose IBD, how an IBD diagnosis works in the military, the importance of mental health, and small batch whiskey.

Links:
-Iron Smoke Distillery
-Brooke Army Medical Center Gastroenterology
-Information on IBD from the VA's website
-Information on how/if you can get your IBD Care at the VA 
-Rome Foundation- search tool for a mental health provider familiar with GI disorders
-Mental Health Info and Resources- Crohn's & Colitis Foundation

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A Tale of 2 Surgeries- Episode 629 Sep 202100:58:39

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As you hopefully heard in our last episodes, both Co-Host Robin and last week's guest Stacey Collins were having J-Pouch surgery. Their surgeries were quite close together and so they became surgery/recovery buddies. Unfortunately they had vastly different post-surgical outcomes. In this episode we talk about their different experiences, we talk about pre- and post-surgery nutrition, working with a dietitian to prepare for surgery, and provide you with lots of tips if you're also facing J-Pouch or ostomy surgery.

Resources: 
Information from the Crohn's & Colitis Foundation on J-Pouch Surgery
Information from the Crohn's & Colitis Foundation on surgery
Information from the Cleveland Clinic on J-Pouch Surgery
Information from the Crohn's & Colitis Foundation on Colon Cancer risk and IBD



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