Harriet and Jenny are back with a new season of the New Maudsley Carer Skills (NMCS) podcast series. In this episode, they discuss what they've been up to and what they plan to talk about in the upcoming season.

Find out more:

Jenny's website: https://newmaudsleycarers-kent.co.uk

Bodywhys website: www.bodywhys.ie

In this episode, Barry Murphy, Research and Policy Officer at Bodywhys speaks with Emily Colton, Monash University, about neurocognitive factors and binge eating.

Notes:

• Dysfunctional decision-making in binge-eating disorder: A meta-analysis and systematic review - ScienceDirect
• New Research: Revealing the True Duration of Binge-Eating Disorder (psychiatrictimes.com)

In this episode, Barry, our Research and Policy Officer speaks with Akansha Naraindas (UCD) about interoceptive sensibility and body image.

• Body image disturbance, interoceptive sensibility and the body schema across female adulthood: a pre-registered study

In this episode, Harriet speaks with Michelle Kickham about living with a severe and enduring, or long standing eating disorder (SEED/L-ED).

In this episode we speak with Michelle Mc Carthy, Bodywhys Media Panel member and volunteer, about her experience with an eating disorder during Christmas and New Years.

Notes:

Find our 'Coping with Christmas' resources here: https://www.bodywhys.ie/free-coping-at-christmas-resources/

In this podcast we share a our 2023 'Coping with Christmas' webinar with Harriet Parsons, Psychotherapist and Training & Development Manager with Bodywhys.

Notes: Find our 'Coping with Christmas' resources here: https://www.bodywhys.ie/free-coping-at-christmas-resources/

Bodywhys website: www.bodywhys.ie

In this episode, Barry Murphy, our Research and Policy Officer, speaks with Dr Lisa Anderson and Dr Erich Kummerfeld, of University of Minnesota, about causal discovery analysis & precision medicine.

Notes

• Causal discovery analysis: A promising tool in advancing precision medicine for eating disorders - Anderson - 2023 - International Journal of Eating Disorders
• Applying Causal Discovery to Intensive Longitudinal Data - PMC (nih.gov)

In this episode, Barry Murphy, our Research and Policy Officer, speaks with Dr Karina Allen, South London and Maudsley NHS Foundation Trust, about conceptualising early intervention for eating disorders.

Notes

• A framework for conceptualising early intervention for eating disorders - European Eating Disorders Review
• First Episode Rapid Early Intervention for Eating Disorders | FREED (freedfromed.co.uk)

In this episode, Barry Murphy, our Research and Policy Officer, speaks with Catherine Armour of Dalhousie University (Nova Scotia, Canada) about improving the adult inpatient experience.

Notes

• Improving Adult Inpatient Eating Disorder Treatment: Perspectives of Canadians with Lived Experience (dal.ca)
• Wicked Bodies
• Adult hospital admissions for eating disorders at highest level in a decade – The Irish Times

In this episode, Barry Murphy, our Research and Policy Officer, speaks with Therese Kenny of the University of Guelph about an ecological framework for recovery.

We share this episode as part of World Mental Health Day 2023 #WMHD23

Notes

• More than an outcome: a person-centered, ecological framework for eating disorder recovery | Journal of Eating Disorders

In this episode, Barry Murphy, our Research and Policy Officer, speaks with Laura Kiely of Western Sydney University about the conceptualisation of longstanding anorexia nervosa.

Notes

Laura's Website: https://www.seeinganorexia.com/ 

• Conceptualisation of severe and enduring anorexia nervosa: a qualitative meta-synthesis | BMC Psychiatry

• Listening in the dark: why we need stories of people living with severe and enduring anorexia nervosa | Journal of Eating Disorders

• Lived experience perspectives on labeling and defining long-standing anorexia nervosa | Journal of Eating Disorders

Gillian Todd worked with Prof Janet Treasure on the Adult eating disorder ward at the Maudsley Hospital in London for 17 years. During this time, the New Maudsley Carer Skills was developed.

In this episode Jenny and Harriet discuss the development of the Maudsley Carer Skills with Gill, as well as thinking through how to support adults with EDs, and what recovery, or ‘discovery’ can look like for people with a severe and enduring eating disorder. With stories of recovery, this episode is enlightening and interesting for all carers of people with eating disorders.

You can find Jenny's website here: https://newmaudsleycarers-kent.co.uk

Bodywhys website: www.bodywhys.ie

In this episode, Barry Murphy, Research and Policy Officer at Bodywhys speaks with Dr Gemma Sharp, Monash University, about artificial intelligence and ethics in relation to eating disorders.

Notes

• Journal of Medical Internet Research - Ethical Challenges in AI Approaches to Eating Disorders (jmir.org)
• CoRe-ED

In this episode, Barry Murphy, our Research and Policy Officer, speaks with Dr Andrea LaMarre & Dr Kathryn McGuigan of Massey University about families experiences with avoidant restrictive food intake disorder (ARFID).

Notes

• Listening, learning, caring: exploring assemblages of, ethics of and pathways to care for avoidant restrictive food intake disorder (ARFID) | Medical Humanities (bmj.com)

This time of year is dominated for many by 'Back to school'. It can be a challenging time for anyone and especially for a person with an eating disorder and their family. In this episode, Jenny and Harriet discuss many scenarios of going back to school and which New Maudsley skills are helpful to use over the next couple of weeks.

Notes:

Click here to download Jenny's Back to School capsule

In this episode, Barry Murphy, our Research and Policy Officer, speaks with Dr Ella Guest of the Centre for Appearance Research (CAR) about body image interventions.

Notes

• The effectiveness of interventions aiming to promote positive body image in adults: A systematic review
• A systematic review of interventions aiming to promote positive body image in children and adolescents
• Centre for Appearance Research (CAR) - Research centres and groups | UWE Bristol

In this episode, Harriet and Jenny think about preparing for college/university. Whether the person living with an eating disorder will be staying at home or moving away, this huge change in a person’s life can bring up unique challenges and new responsibilities. This episode explores these challenges, from different perspectives, and thinks through ways to support someone during this transition.

You can find Jenny's website here.

Bodywhys support:

• Bodywhys website

• Bodywhys: Online student support group (19+)
• Bodywhys: Body image at third level

Resources mentioned: 

• FREED resources
• Jenny's capsules

In this episode, Barry Murphy, our Research and Policy Officer, speaks with Phaedra Longhurst of Anglia Ruskin University about autism and body image.

Show notes:

• Body image and autism: A scoping review - ScienceDirect

• “We Have to Try to Find a Way, a Clinical Bridge” - autistic adults' experience of accessing and receiving support for mental health difficulties: A systematic review and thematic meta-synthesis

• “For Me, the Anorexia is Just a Symptom, and the Cause is the Autism”: Investigating Restrictive Eating Disorders in Autistic Women

• Self & Body Lab

Please note - a small section of this episode contains minor audio inconsistencies. We apologise for any inconvenience.

In this episode, Harriet and Jenny think about preparing for summer holidays. Summer can often be a difficult time for someone living with an eating disorder. The change from a set routine to ‘free time’ stretching out ahead can bring lots of panic and anxiety. This episode thinks through how the New Maudsley carer Skills, and ideas around planning can make this time less difficult.

You can find Jenny's website here: https://newmaudsleycarers-kent.co.uk

Bodywhys website: www.bodywhys.ie

Resources mentioned: Preparing for the holidays when your loved one has an eating disorder: New Maudsley Capsule

In this episode, Barry Murphy, our Research and Policy Officer speaks with Dr Jessica Alleva of Maastricht University about body functionality, positive body image and well-being.

Notes

Body functionality: A review of the literature - ScienceDirect

PaRx: A Prescription for Nature (parkprescriptions.ca)

Autism and Eating Disorders – thinking about how the New Maudsley Carer Skills can help.

More and more we are hearing from families who have a loved one with an eating disorder and a diagnosis of autism. When supporting an autistic person with an eating disorder we have to take account of this added layer of difficulty often due to the three areas where both cross over – high levels of anxiety, rigidity and emotional dysregulation.

In this episode, Jenny and Harriet talk through how carers can use the New Maudsley Carer Skills to improve the support they provide.

You can find Jenny's website here: https://newmaudsleycarers-kent.co.uk

Bodywhys website: www.bodywhys.ie

Resources mentioned:

• ARFID Avoidant Restrictive Food Intake Disorder: A Guide for Parents and Carers by Rachel Bryant-Waugh
• Applying family-based treatment (FBT) to three clinical presentations of avoidant/restrictive food intake disorder: Similarities and differences from FBT for anorexia nervosa: https://www.anzaed.org.au/wp-content/uploads/2021/04/FBT-for-ARFID.pdf
• Supporting Autistic People with Eating Disorders: A Guide to Adapting Treatment and Supporting Recovery by Kate Tchanturia
• PEACE Pathway: https://www.peacepathway.org/
• Irish Society for Autism: https://autism.ie/

Please note: Harriet mistakenly refers to this episode as episode 23. This will be corrected going forward.

In this episode, Barry Murphy, our Research and Policy Officer, speaks with Akansha Mahesh Naraindas (University College Dublin) & Dr Rachel Rodgers (Northeastern University) about body image from a global perspective.

Notes:

• Body image as a global mental health concern | Cambridge Prisms: Global Mental Health | Cambridge Core
• Perfectionism Is Increasing Over Time (apa.org)

In this episode, our Research and Policy Officer, Barry speaks with Dr Vanessa Yim, Clinical Psychologist, Oxford NHS Trust about adult patients' experiences of clinical team meetings (ward rounds).

Patients’ experiences of clinical team meetings (ward rounds) at an adult in-patient eating disorders ward: mixed-method service improvement project | BJPsych Bulletin | Cambridge Core

Supplementary material:

https://static.cambridge.org/content/id/urn:cambridge.org:id:article:S2056469423000141/resource/name/S2056469423000141sup001.docx

In support of Pride Month 2024, Barry Murphy, Research and Policy Officer at Bodywhys speaks with Dr Philip Joy, Mount Saint Vincent University, about compassion, recovery and LGBTQ experiences.

Notes

• Wicked Bodies
•  “It’s beautiful and it’s messy and it’s tragic”: exploring the role of compassion in the eating disorder recovery processes of 2S/LGBTQ + Canadians | Journal of Eating Disorders
•  New research report highlights stark deterioration in mental health of LGBTQI+ people since 2016  - Belong To - LGBTQ+ Youth Ireland

In this episode, Barry Murphy, our Research and Policy 0fficer, speaks with Dr Kai Kummer of Medical University of Innsbruck about male eating disorders in midlife.

Notes:

Male eating disorders in midlife—possible links between excessive sports and hormones (tandfonline.com)

In this episode, Barry Murphy, our Research and Policy 0fficer, speaks with Anna Rose of Eating Disorders Neurodiversity Australia about the connection between eating disorders & neurodivergence. Notes:

Eating Disorders Neurodiversity Australia (edneuroaus.com)

Eating Disorders and Neurodivergence (nedc.com.au)

In this episode, Barry Murphy, our Research and Policy 0fficer, speaks with Marissa R. Carney, Rebekah Mack ( Johns Hopkins Hospital) & Caroline E. Stanton (Prisma Health Kidnetics) about occupational therapy & eating disorders.

Notes:

• The importance of including occupational therapists as part of the multidisciplinary team in the management of eating disorders: a narrative review incorporating lived experience https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9996838/

In this episode, Barry Murphy, our Research and Policy 0fficer, speaks with Dr Una Foye (King's College London) & Hannah Lewis (Queen Mary University of London) about how lived experience of eating disorders can inform research & practice.

Notes

• From prevention to peer support: a systematic review exploring the involvement of lived-experience in eating disorder interventions: https://www.emerald.com/insight/content/doi/10.1108/MHRJ-04-2021-0033/full/html

• CHIME https://www.therecoveryplace.co.uk/chime-framework/

In this episode Jenny and Harriet discuss two common and difficult situations. Firstly, when a person is physically well and eating regularly but not yet recovered, and when a person has reached a safe level of nutrition and health but is unwilling to keep going.

You can find Jenny's website here: https://newmaudsleycarers-kent.co.uk

Bodywhys website: www.bodywhys.ie

In this episode, Barry, our research and policy officer speaks with Dr. Rachel Langbein about psychological recovery from relative energy deficiency in sport (RED-S).

Notes:

Rachel’s website

https://theramblesofrachel.wordpress.com/

“It's hard to find balance when you're broken”: Exploring female endurance athletes’ psychological experience of recovery from relative energy deficiency in sport (RED-S)

https://www.sciencedirect.com/science/article/abs/pii/S2211266921000402

“I’d got self-destruction down to a fine art”: a qualitative exploration of relative energy deficiency in sport (RED-S) in endurance athletes https://www.tandfonline.com/doi/full/10.1080/02640414.2021.1883312

The IOC consensus statement: beyond the Female Athlete Triad—Relative Energy Deficiency in Sport (RED-S)

https://bjsm.bmj.com/content/48/7/491?hootPostID=0116e43013bf35a19d2c4f30c76050b1

Mental health in elite athletes: International Olympic Committee consensus statement (2019) https://bjsm.bmj.com/content/53/11/667

In this episode, Harriet and Jenny continue to talk about module 10, feeding and eating. The episode focuses on thinking about communicating and coaching for rigid rules and compensatory behaviours including overeating and purging. As Jenny writes, ‘The brain’s natural appetite system can be overridden by a combination of emotional problems, unusual eating habits and fluctuating blood sugar levels. Roadblocks to recovery from an ED can present themselves in many forms. Two of the most difficult are: Rigid rules around eating and Compensatory behaviours.'

You can find Jenny's website here: https://newmaudsleycarers-kent.co.uk

Bodywhys website: www.bodywhys.ie

In this episode, Barry speaks to Dr Anisa Jafar, University of Manchester, and Dr Aileen McCabe, Tallaght University Hospital about eating disorders in the emergency department.

Notes:

Recognising and managing eating disorders in the emergency department

Assessment of Patients with Eating Disorders in the Emergency Department – Irish Medical Journal

In this episode, Jenny and Harriet talk about an important part of recovery from an eating disorder - food and eating. They look at the non-negotiable eating boundary, and at how carers can think about how to manage and support their loved one to start eating more normally. This episode and the following couple of episodes will look at this difficult topic. 

You can find Jenny's website here: https://newmaudsleycarers-kent.co.uk

Bodywhys website: www.bodywhys.ie

In this episode, Barry Murphy, our Research and Policy Officer, speaks to Dr Megan Reay, Clinical Psychologist at Oxford Health NHS Foundation Trust, about the current research related to patients with longstanding eating disorders.

Study mentioned:

Creating a care pathway for patients with longstanding, complex eating disorders

https://jeatdisord.biomedcentral.com/articles/10.1186/s40337-022-00648-0

In this episode, Barry Murphy, Research and Policy Officer at Bodywhys speaks with Dr Amanda Raffoul, University of Toronto, about auditing social media algorithms.

Notes:

• Social Media Algorithm Auditing | STRIPED | Harvard T.H. Chan School of Public Health

In this episode, Jenny and Harriet talk about an important part of recovery from an eating disorder - food and eating. They look at the non-negotiable eating boundary, and at how carers can think about how to manage and support their loved one to start eating more normally. This episode and the following couple of episodes will look at this difficult topic. 

You can find Jenny's website here: https://newmaudsleycarers-kent.co.uk

Bodywhys website: www.bodywhys.ie

In this episode, Barry, our Research and Policy Officer, speaks to Dr Dawn Branley-Bell, Northumbria University, about challenging mainstream framing of eating disorders.

Research mentioned:

It’s not all about control: challenging mainstream framing of eating disorders: https://jeatdisord.biomedcentral.com/articles/10.1186/s40337-023-00752-9

Remote Healthcare for Eating Disorders throughout COVID-19: https://research.northumbria.ac.uk/rhedc/

In this episode Jenny and Harriet talk about ways that families can think about reclaiming core family values. This involves identifying what your family values are, how to have conversations about them and then how to implement changes in your household to reclaim family life from the eating disorder.

You can find Jenny's website here: https://newmaudsleycarers-kent.co.uk

Bodywhys website: www.bodywhys.ie

In this episode, Barry, our Research and Policy Officer, speaks to Dr Connor Strobel, Harper-Schmidt Fellow, University of Chicago, about their research into gender salience in eating disorder recovery.

Research mentioned:

The Shadow that Hovered Over: Gender Salience in Eating Disorder Recovery. https://doi.org/10.1007/s12147-022-09294-x

In this episode, Barry, our Research and Policy Officer, speaks to Dr Ekaterina Malova, Department of Communication Studies, University of Miami about their research into men’s eating disorders experiences as shared on YouTube.

Research mentioned:

Men have eating disorders too: an analysis of online narratives posted by men with eating disorders on YouTube

https://www.tandfonline.com/doi/full/10.1080/10640266.2021.1930338

In this episode, Jenny and Harriet talk to Chris, a dad who has experience using the New Maudsley Skills when caring for his adult daughter with an eating disorder. We learn how Chris found the New Maudsley carer groups, and how the skills he learned and support he received have helped him, and his daughter through her anorexia and to a better place.

You can find Jenny's website here: https://newmaudsleycarers-kent.co.uk

Bodywhys animation: Kate's Dad - A father's perspective: https://youtu.be/XyXtSFRUzR0

In this episode, Jenny and Harriet talk through how to make the most of a GP visit, how to plan what to say, what will be important information to give, and how to manage both the appointment and what happens afterwards. They also discuss making the most of the appointment if you are an adult with an eating disorder.

Resources mentioned:

• MEED guidelines: https://www.rcpsych.ac.uk/docs/default-source/improving-care/better-mh-policy/college-reports/college-report-cr233---annexe-1.pdf?sfvrsn=1ba7e785_10
• FREED resources: https://freedfromed.co.uk/resources-for-patients-carers

You can find Jenny's website here: https://newmaudsleycarers-kent.co.uk

Bodywhys website: www.bodywhys.ie

In this episode, Barry, our Research and Policy Officer, speaks to Dr Laura Renshaw-Vuillier, Bournemouth University about emotion difficulties and eating disorders.

Resources and studies mentioned:

Vuillier, L., Joseph, J., Greville-Harris, M. et al. (2022) What about males? Exploring sex differences in the relationship between emotion difficulties and eating disorders. Journal of Eat Disorders, 10, 193. https://doi.org/10.1186/s40337-022-00715-6

PEACE - Pathway for Eating disorders and Autism developed from Clinical Experience: https://www.peacepathway.org/

In this episode, Harriet and Jenny think through the difficult situation when a carer needs to take a person with an eating disorder to A&E in an emergency. Listen to Jenny and Harriet talk through ways of managing this situation, and ways that the New Maudsley Carer Skills can make this situation easier to manage.

You can find Jenny's website here: https://newmaudsleycarers-kent.co.uk

In this episode, Harriet and Jenny focus on communicating and collaborating with care teams. For the most part, people with eating disorders are treated by a team. Regardless of the circumstances, communication, and collaboration between team members, which includes family / carers, is vital for progress to be made. Frequently difficulties and differences arise and in this episode, we think through ways of getting through these difficulties, to make the process better for everyone.

You can find Jenny's website here: https://newmaudsleycarers-kent.co.uk

In this episode, Barry Murphy, Research and Policy Officer at Bodywhys speaks with Dr. Jennifer Hamer about sports coaches & relative energy deficiency in sport (REDS).

Notes:

• A review exploring coach knowledge, attitudes/beliefs and behaviours towards low energy availability in athletes - Jennifer Hamer, Ben Desbrow, Chris Irwin, 2023 (sagepub.com)
• Are Coaches of Female Athletes Informed of Relative Energy Deficiency in Sport? A Scoping Review in: Women in Sport and Physical Activity Journal Volume 29 Issue 1 (2021) (humankinetics.com)
• 2023 International Olympic Committee’s (IOC) consensus statement on Relative Energy Deficiency in Sport (REDs) | British Journal of Sports Medicine (bmj.com)

In this episode, we hear from members of our Media Panel about their experience of living with an eating disorder over the Christmas season and New Year. We would like to thank Mirin, Mary, Lauren, Emmy and Michelle for taking the time to share their stories and contribute to this podcast.

For more about our support services, see here: https://www.bodywhys.ie/recovery-support-treatment/support-services-2/

To find out more about our Media Panel, see here: https://www.bodywhys.ie/media-research/media-panel/

In this episode Jenny and Harriet talk about ways of managing Christmas when a person in the house has an eating disorder. They discuss how to use the New Maudsley Skills to make the occasion and the days afterwards easier for everyone.

You can find Jenny's website here: https://newmaudsleycarers-kent.co.uk

In this episode, Harriet and Jenny focus on the nutritional risk ruler and the concept of reasonable risk. The nutritional risk ruler is similar to the readiness ruler, and is a useful tool carers can use to open up conversations about change / moving forward in terms of the Edi taking more responsibility for their own nutritional health.

You can find Jenny's website here: https://newmaudsleycarers-kent.co.uk

TW: This episode discusses specific numbers and weights. 

In this episode, Barry, our Research and Policy Officer, speaks to Jenny Langley, Keith Russell and Dr Jason Nagata about men’s experiences of eating disorders.

Jenny's website: https://newmaudsleycarers-kent.co.uk/

Keith's podcast 'The Endless Spiral': https://theendlessspiral.com/

Dr. Jason Nagata (Assistant Professor of Pediatrics & Adolescent Medicine, UC San Francisco): https://profiles.ucsf.edu/jason.nagata

Resources and studies mentioned:

Medical Management of Restrictive Eating Disorders in Adolescents and Young Adults

https://www.jahonline.org/article/S1054-139X(22)00577-8/fulltext

Sex differences and associations between zinc deficiency and anemia among hospitalized adolescents and young adults with eating disorders https://link.springer.com/article/10.1007/s40519-022-01396-5

Relative energy deficiency in sport (RED-S)

https://www.sportireland.ie/institute/performance-service/nutrition/red-s