Beyond Brain Tumours – Details, episodes & analysis
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Beyond Brain Tumours
Brain Tumour Foundation of Canada
Frequency: 1 episode/51d. Total Eps: 19
Beyond Brain Tumours is a podcast by, for, and about the brain tumour community. Listen in as we talk to brain tumour survivors, patients, and caregivers as they share their stories and perspectives on brain tumour treatments, research, and survivorship. Learn more about Brain Tumour Foundation of Canada’s resources, programs, and services for people affected by a brain tumour. Visit www.BrainTumour.ca.
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See allScore global : 58%
Publication history
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Redefining life after: A way forward through change, adversity and suffering | Part 2
Episode 14
mercredi 26 novembre 2025 • Duration 17:03
In this heartfelt conversation, Matthew shares his journey as a brain tumour survivor and the profound ways in which it challenged his identify, routines, and mental health as a young adult. He talks about paving a way forward, sharing the question that helped anchor him through his most difficult moments: “What can I do today, right now, in this moment?”
While adversity might look different for everyone, the path through it is built one step at a time, through resilience and courage. Matthew’s story reminds us that there is hope, even in the toughest of times.
For additional information, you may visit:
- Read more about Matthew here: Matthew McKinnon | Build Resilience, Embrace Hope, Overcome Adversity
- Watch Matthew’s TEDx talk here:Suffering is Important, Here's Why | Matthew McKinnon | TEDxYouth@GrandviewHeights
If you’d like to share your story and take part in our Beyond Brain Tumours podcast, we invite you to fill out this short form.
Learn more about Brain Tumour Foundation of Canada at BrainTumour.ca. Follow us on Facebook, Instagram, X, YouTube and Linkedin.
Redefining life after: A way forward through change, adversity and suffering | Part 1
Episode 14
mercredi 26 novembre 2025 • Duration 19:01
In this heartfelt conversation, Matthew shares his journey as a brain tumour survivor and the profound ways in which it challenged his identify, routines, and mental health as a young adult. He talks about paving a way forward, sharing the question that helped anchor him through his most difficult moments: “What can I do today, right now, in this moment?”
While adversity might look different for everyone, the path through it is built one step at a time, through resilience and courage. Matthew’s story reminds us that there is hope, even in the toughest of times.
For additional information, you may visit:
- Read more about Matthew here: Matthew McKinnon | Build Resilience, Embrace Hope, Overcome Adversity
- Watch Matthew’s TEDx talk here:Suffering is Important, Here's Why | Matthew McKinnon | TEDxYouth@GrandviewHeights
If you’d like to share your story and take part in our Beyond Brain Tumours podcast, we invite you to fill out this short form.
Learn more about Brain Tumour Foundation of Canada at BrainTumour.ca. Follow us on Facebook, Instagram, X, YouTube and Linkedin.
Entrevue avec Maria, proche aidante (en français)
Episode 9
mercredi 8 mai 2024 • Duration 47:44
Maria a été la proche aidante de son mari, décédé il y a plus de 6 ans d'un glioblastome.
Suivez-nous sur Facebook et sur Instagram.
If you’d like to share your story and take part in our Beyond Brain Tumours podcast, we invite you to fill out this short form.
Learn more about Brain Tumour Foundation of Canada at BrainTumour.ca. Follow us on Facebook, Instagram, X, YouTube and Linkedin.
From diagnosis to recovery: Embracing positivity through a brain tumour experience
Episode 8
jeudi 21 mars 2024 • Duration 01:02:44
In this episode, we speak with Peter, a 49-year-old brain tumour survivor whose experience began in January 2019 with the diagnosis of a grade 2 astrocytoma following a seizure. Peter shares his fascination with awake brain surgery and the challenges that followed with his recovery, radiotherapy and chemotherapy. Through it all, he emphasizes the importance of maintain a positive attitude and remaining optimistic in the face of adversity.
For additional information, you may visit:
Awake brain surgery - Mayo Clinic
Awake Brain Surgery: Your questions answered (ottawahospital.on.ca) *
Clinical Trials - Brain Tumour Foundation of Canada
Disclaimer:
External links and resources on this website are provided for informational purposes only and are not intended as a substitute for professional medical advice. Brain Tumour Foundation of Canada does not endorse or guarantee the accuracy or completeness of the information provided on external websites. Please note that when you click on external links, you will be subject to the privacy policies and terms of service of the respective website. We cannot guarantee the privacy or security of information you provide to the linked sites.
If you’d like to share your story and take part in our Beyond Brain Tumours podcast, we invite you to fill out this short form.
Learn more about Brain Tumour Foundation of Canada at BrainTumour.ca. Follow us on Facebook, Instagram, X, YouTube and Linkedin.
Entrevue avec Kathy, survivante de tumeur cérébrale (en français)
Episode 7
mercredi 20 mars 2024 • Duration 59:41
Kathy est une survivante de tumeur cérébrale résidant à Québec et bénévole à la Fondation canadienne des tumeurs cérébrales pour le programme pédiatrique GOcervo. En 2011, elle a reçu un diagnostic de tumeur cérébrale.
Suivez-nous sur Facebook et sur Instagram.
If you’d like to share your story and take part in our Beyond Brain Tumours podcast, we invite you to fill out this short form.
Learn more about Brain Tumour Foundation of Canada at BrainTumour.ca. Follow us on Facebook, Instagram, X, YouTube and Linkedin.
Finding hope, building resilience and setting goals: Defining a new normal
Episode 6
mercredi 6 mars 2024 • Duration 53:59
In this episode, Alex shares how he navigated life after a brain tumour diagnosis, surgery and a challenging recovery. Join us as we explore the process of defining a “new normal,” including fertility preservation, building resilience, the role of positive psychology and goal setting. Alex’s story offers insights on self-advocacy, emotional well-being, and the power of setting new goals after life-altering experiences.
For additional information, you may visit:
Male Fertility Issues and Cancer — Side Effects - NCI
Female Fertility Issues and Cancer — Side Effects - NCI
Fertility problems | Canadian Cancer Society
Martin Seligman: The new era of positive psychology | TED Talk
Stories - Brain Tumour Foundation of Canada
Disclaimer:
External links and resources on this website are provided for informational purposes only and are not intended as a substitute for professional medical advice. Brain Tumour Foundation of Canada does not endorse or guarantee the accuracy or completeness of the information provided on external websites. Please note that when you click on external links, you will be subject to the privacy policies and terms of service of the respective website. We cannot guarantee the privacy or security of information you provide to the linked sites.
If you’d like to share your story and take part in our Beyond Brain Tumours podcast, we invite you to fill out this short form.
Learn more about Brain Tumour Foundation of Canada at BrainTumour.ca. Follow us on Facebook, Instagram, X, YouTube and Linkedin.
Family, friends and honest conversations: How to build your cancer squad
Episode 5
mardi 5 décembre 2023 • Duration 39:14
In this episode, we speak with Sarah, a registered nurse at The Hospital for Sick Children and a brain tumour survivor who was diagnosed 13 years ago. Having faced four reoccurrences, Sarah reflects on the vital role her “cancer squad” of family and friends played in her life. We explore therapy, honest communication, and navigating difficult emotions and conversations. Listen in as Sarah shares her beautiful poem, What it’s Like, offering a glimpse into her experience as a young adult living with a brain tumour.
For additional information, you may visit:
Relationships and Communication with Others - NCI (cancer.gov)
2017-AdvanceCarePlanning.pdf (braintumour.ca)
2018-Scanxiety.pdf (braintumour.ca)
For more information on ‘How to manage claustrophobia during your MRI’, please visit Sunnybrook Hospital*
Relationships - Brain Tumour Foundation of Canada
Livingoutloud.life - Relationships *
Disclaimer:
External links and resources on this website are provided for informational purposes only and are not intended as a substitute for professional medical advice. Brain Tumour Foundation of Canada does not endorse or guarantee the accuracy or completeness of the information provided on external websites. Please note that when you click on external links, you will be subject to the privacy policies and terms of service of the respective website. We cannot guarantee the privacy or security of information you provide to the linked sites.
If you’d like to share your story and take part in our Beyond Brain Tumours podcast, we invite you to fill out this short form.
Learn more about Brain Tumour Foundation of Canada at BrainTumour.ca. Follow us on Facebook, Instagram, X, YouTube and Linkedin.
An Indigenous perspective on caregiving and loss: Navigating a brain tumour diagnosis during the pandemic
Episode 4
mardi 14 novembre 2023 • Duration 01:06:13
Carolyn, who grew up in a First Nations community in southeastern New Brunswick, shares the story of her mother, Phyllis— a polio survivor and community advocate— who passed away from a brain tumour during the pandemic. In this episode, Carolyn reflects on her mother’s incredible life, her advocacy for their community, and the unique challenges they faced together during diagnosis and treatment.
If you’d like to share your story and take part in our Beyond Brain Tumours podcast, we invite you to fill out this short form.
Learn more about Brain Tumour Foundation of Canada at BrainTumour.ca. Follow us on Facebook, Instagram, X, YouTube and Linkedin.
From subtle signs to diagnosis: The importance of listening to your body
Episode 3
mardi 8 août 2023 • Duration 43:55
Karen-Lisa is a brain tumour survivor whose experience began in 2015 with the diagnosis of a pituitary adenoma. As a young mother, she shares her experience with the challenges of navigating symptoms, overcoming assumptions, seeking second opinions and the importance of listening to your body.
For additional information, you may visit:
Talking with your Child / Teen about a Brain Tumour Diagnosis
Questions to Ask your Health Care Team (braintumour.ca)
Common Drive - Questions to Ask your Healthcare Team.pdf - All Documents (sharepoint.com)
Caregiver-Resources-Questions-to-Ask-the-Health-Care-Team-EN.pdf (braintumour.ca)
Disclaimer:
External links and resources on this website are provided for informational purposes only and are not intended as a substitute for professional medical advice. Brain Tumour Foundation of Canada does not endorse or guarantee the accuracy or completeness of the information provided on external websites. Please note that when you click on external links, you will be subject to the privacy policies and terms of service of the respective website. We cannot guarantee the privacy or security of information you provide to the linked sites.
If you’d like to share your story and take part in our Beyond Brain Tumours podcast, we invite you to fill out this short form.
Learn more about Brain Tumour Foundation of Canada at BrainTumour.ca. Follow us on Facebook, Instagram, X, YouTube and Linkedin.
“I want to live like I’m living, not like I’m dying”: A father’s reflection on his son’s brain tumour experience
Episode 2
mardi 13 juin 2023 • Duration 54:46
Denis was a world traveller turned passionate advocate for brain tumour awareness after his diagnosis in 2013. In this episode, we sit with his father and caregiver, Ken, as he reflects on his son’s life, courage, and the challenges they faced together. Join us as we explore Denis’ experience with brain surgery, clinical trials and the realities of living with a brain tumour. Ken shares his heartfelt perspective on caregiving, advocacy, and the legacy Denis left behind.
Denis was a young brain tumour advocate, who worked as a support services specialist at Brain Tumour Foundation of Canada before he passed away on July 30th, 2022.
Content warning: This episode contains discussions about Medical Assistance in Dying (MAiD) and clinical trials. These conversations are for awareness purposes only, and do not constitute advice, endorsement or a recommendation with respect to any product, service or business, and/or the claims and properties thereof, by Brain Tumour Foundation of Canada. Always consult your health-care team for personalized medical care and treatment options.
Trigger warning: This episode contains discussion about MAiD, which may be distressing to some listeners. Please listen with care and consider your emotional well-being before proceeding.
For additional information, you may visit:
Clinical Trials - Brain Tumour Foundation of Canada
Learn About Clinical Trials - Clinical Trials Ontario (ctontario.ca) *
Medical assistance in dying: Overview - Canada.ca
Bridge C-14 l Support Through the MAiD Journey | Canada (bridgec14.org) *
Personal Story of Hope - Denis Raymond (2021 Brain Tumour Webinar Series) (youtube.com)
Disclaimer:
External links and resources on this website are provided for informational purposes only and are not intended as a substitute for professional medical advice. Brain Tumour Foundation of Canada does not endorse or guarantee the accuracy or completeness of the information provided on external websites. Please note that when you click on external links, you will be subject to the privacy policies and terms of service of the respective website. We cannot guarantee the privacy or security of information you provide to the linked sites.
If you’d like to share your story and take part in our Beyond Brain Tumours podcast, we invite you to fill out this short form.
Learn more about Brain Tumour Foundation of Canada at BrainTumour.ca. Follow us on Facebook, Instagram, X, YouTube and Linkedin.
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