Beyond Brain Tumours – Details, episodes & analysis

In this episode, we explore hope as more than just optimism- as a mindset that can be built, practiced, and sometimes rediscovered when everything feels like it’s falling apart. 

Join us for a heartfelt conversation with Ann, who shares strategies and insights from her journey as a relentless advocate for her daughter. From building partnerships to moving through advocacy, growth, and resilience, this conversation honours not just the successes but the doubts too- and invites listeners to find strength in both. 

For additional information, you may visit:  

Going for Hope: Strategies That Make it Possible to Persevere: Hovey, Ann

Learn more about Brain Tumour Foundation of Canada at BrainTumour.ca. Follow us on Facebook, Instagram, X, YouTube and Linkedin.

In this episode, we explore hope as more than just optimism- as a mindset that can be built, practiced, and sometimes rediscovered when everything feels like it’s falling apart. 

Join us for a heartfelt conversation with Ann, who shares strategies and insights from her journey as a relentless advocate for her daughter. From building partnerships to moving through advocacy, growth, and resilience, this conversation honours not just the successes but the doubts too- and invites listeners to find strength in both. 

For additional information, you may visit:  

Going for Hope: Strategies That Make it Possible to Persevere: Hovey, Ann

Learn more about Brain Tumour Foundation of Canada at BrainTumour.ca. Follow us on Facebook, Instagram, X, YouTube and Linkedin.

Karen-Lisa is a brain tumour survivor whose experience began in 2015 with the diagnosis of a pituitary adenoma. As a young mother, she shares her experience with the challenges of navigating symptoms, overcoming assumptions, seeking second opinions and the importance of listening to your body.


For additional information, you may visit: 

Talking with your Child / Teen about a Brain Tumour Diagnosis  

Questions to Ask your Health Care Team (braintumour.ca)  

Common Drive - Questions to Ask your Healthcare Team.pdf - All Documents (sharepoint.com)  

Caregiver-Resources-Questions-to-Ask-the-Health-Care-Team-EN.pdf (braintumour.ca)  


Disclaimer: 

External links and resources on this website are provided for informational purposes only and are not intended as a substitute for professional medical advice. Brain Tumour Foundation of Canada does not endorse or guarantee the accuracy or completeness of the information provided on external websites. Please note that when you click on external links, you will be subject to the privacy policies and terms of service of the respective website. We cannot guarantee the privacy or security of information you provide to the linked sites.

Learn more about Brain Tumour Foundation of Canada at BrainTumour.ca. Follow us on Facebook, Instagram, X, YouTube and Linkedin.

Denis was a world traveller turned passionate advocate for brain tumour awareness after his diagnosis in 2013. In this episode, we sit with his father and caregiver, Ken, as he reflects on his son’s life, courage, and the challenges they faced together. Join us as we explore Denis’ experience with brain surgery, clinical trials and the realities of living with a brain tumour. Ken shares his heartfelt perspective on caregiving, advocacy, and the legacy Denis left behind.  

Denis was a young brain tumour advocate, who worked as a support services specialist at Brain Tumour Foundation of Canada before he passed away on July 30th, 2022.  

Content warning: This episode contains discussions about Medical Assistance in Dying (MAiD) and clinical trials. These conversations are for awareness purposes only, and do not constitute advice, endorsement or a recommendation with respect to any product, service or business, and/or the claims and properties thereof, by Brain Tumour Foundation of Canada. Always consult your health-care team for personalized medical care and treatment options.  

Trigger warning: This episode contains discussion about MAiD, which may be distressing to some listeners. Please listen with care and consider your emotional well-being before proceeding. 


For additional information, you may visit: 

Clinical Trials - Brain Tumour Foundation of Canada  

Learn About Clinical Trials - Clinical Trials Ontario (ctontario.ca) * 

Medical assistance in dying: Overview - Canada.ca  

Bridge C-14 l Support Through the MAiD Journey | Canada (bridgec14.org) *  

Personal Story of Hope - Denis Raymond (2021 Brain Tumour Webinar Series) (youtube.com)  


Disclaimer: 

External links and resources on this website are provided for informational purposes only and are not intended as a substitute for professional medical advice. Brain Tumour Foundation of Canada does not endorse or guarantee the accuracy or completeness of the information provided on external websites. Please note that when you click on external links, you will be subject to the privacy policies and terms of service of the respective website. We cannot guarantee the privacy or security of information you provide to the linked sites.

Learn more about Brain Tumour Foundation of Canada at BrainTumour.ca. Follow us on Facebook, Instagram, X, YouTube and Linkedin.

Welcome to our new podcast! Today we sit down with Paul, a young adult brain tumour survivor and volunteer with Brain Tumour Foundation of Canada. Join us as our guest discusses the emotions that come with a brain tumour diagnosis and shares how he tackled them, one step at a time. He also discusses the value of building a strong support system, learning to advocate for his own needs, and the practical challenges of returning to work and establishing new routines. This conversation offers encouragement and advice for anyone facing similar experiences, showing that progress is possible, even through small steps.  

Please visit our website to learn more about our programs and resources and ways in which you can offer your support!


For additional information, you may visit: 

Cancer and Work | Cancer and Work * 

Transportation | Canadian Cancer Society  

 Support groups: Care & Support - Brain Tumour Foundation of Canada  

 Get involved with BTFC! Get Involved - Brain Tumour Foundation of Canada  


Disclaimer: 

External links and resources on this website are provided for informational purposes only and are not intended as a substitute for professional medical advice. Brain Tumour Foundation of Canada does not endorse or guarantee the accuracy or completeness of the information provided on external websites. Please note that when you click on external links, you will be subject to the privacy policies and terms of service of the respective website. We cannot guarantee the privacy or security of information you provide to the linked sites.

Learn more about Brain Tumour Foundation of Canada at BrainTumour.ca. Follow us on Facebook, Instagram, X, YouTube and Linkedin.

Welcome back, everyone!  

In this episode, our host Ben Seewald chats with Patrick, a Registered Nurse and a brain tumour survivor. Having just started nursing school, Patrick shared his experiences facing a brain tumour as a young adult and balancing care, recovery and coursework. Together, they discuss Patrick’s journey of strength and resilience and the importance of kindness and patient advocacy.  

In part 2, Patrick dives into the heart of his support network- his family and friends, and the important role they played in supporting him through treatment, recovery and school. Patrick also discusses patient advocacy and what it means to him. Tune in for an open conversation about compassion, community and advocacy. 

For additional information, you may visit:  

Medical alert bracelets: MedicAlert Foundation Canada | We Speak When You Can't 

Support groups: Support Groups - Brain Tumour Foundation of Canada 

Advocating for yourself: Advocating for Yourself - Brain Tumour Foundation of Canada  

Learn more about Brain Tumour Foundation of Canada at BrainTumour.ca. Follow us on Facebook, Instagram, X, YouTube and Linkedin.

Welcome back, everyone!  

In this episode, our host Ben Seewald chats with Patrick, a Registered Nurse and a brain tumour survivor. Having just started nursing school, Patrick shared his experiences facing a brain tumour as a young adult and balancing care, recovery and coursework. Together, they discuss Patrick’s journey of strength and resilience and the importance of kindness and patient advocacy.  

In part 2, Patrick dives into the heart of his support network- his family and friends, and the important role they played in supporting him through treatment, recovery and school. Patrick also discusses patient advocacy and what it means to him. Tune in for an open conversation about compassion, community and advocacy. 

For additional information, you may visit:  

Medical alert bracelets: MedicAlert Foundation Canada | We Speak When You Can't 

Support groups: Support Groups - Brain Tumour Foundation of Canada 

Advocating for yourself: Advocating for Yourself - Brain Tumour Foundation of Canada  

Learn more about Brain Tumour Foundation of Canada at BrainTumour.ca. Follow us on Facebook, Instagram, X, YouTube and Linkedin.

Maria a été la proche aidante de son mari, décédé il y a plus de 6 ans d'un glioblastome.

Suivez-nous sur Facebook et sur Instagram.

Learn more about Brain Tumour Foundation of Canada at BrainTumour.ca. Follow us on Facebook, Instagram, X, YouTube and Linkedin.

In this episode, we speak with Peter, a 49-year-old brain tumour survivor whose experience began in January 2019 with the diagnosis of a grade 2 astrocytoma following a seizure. Peter shares his fascination with awake brain surgery and the challenges that followed with his recovery, radiotherapy and chemotherapy. Through it all, he emphasizes the importance of maintain a positive attitude and remaining optimistic in the face of adversity. 


For additional information, you may visit: 

Awake brain surgery - Mayo Clinic  

Awake Brain Surgery: Your questions answered (ottawahospital.on.ca) * 

Clinical Trials - Brain Tumour Foundation of Canada 


Disclaimer: 

External links and resources on this website are provided for informational purposes only and are not intended as a substitute for professional medical advice. Brain Tumour Foundation of Canada does not endorse or guarantee the accuracy or completeness of the information provided on external websites. Please note that when you click on external links, you will be subject to the privacy policies and terms of service of the respective website. We cannot guarantee the privacy or security of information you provide to the linked sites.

Learn more about Brain Tumour Foundation of Canada at BrainTumour.ca. Follow us on Facebook, Instagram, X, YouTube and Linkedin.

Kathy est une survivante de tumeur cérébrale résidant à Québec et bénévole à la Fondation canadienne des tumeurs cérébrales pour le programme pédiatrique GOcervo. En 2011, elle a reçu un diagnostic de tumeur cérébrale.

Suivez-nous sur Facebook et sur Instagram.

Learn more about Brain Tumour Foundation of Canada at BrainTumour.ca. Follow us on Facebook, Instagram, X, YouTube and Linkedin.