Autism Confidential – Details, episodes & analysis

Podcast details

Technical and general information from the podcast's RSS feed.

Autism Confidential

Autism Confidential Podcast

Business

Frequency: 1 episode/26d. Total Eps: 60

Autism Confidential shines a light on the hottest issues in the world of autism, including topics often shunned by conventional media. Who cares for autistic adults after their parents die? How can we fix our broken care system? What interventions help, or hurt? Join hosts Jill Escher, Amy Lutz and others from the National Council on Severe Autism as they take on the hardest questions of autism with leading thinkers and doers.

Read moreCollapse

Site

RSS

Apple

Recent rankings

Latest chart positions across Apple Podcasts and Spotify rankings.

Apple Podcasts

🇬🇧 Great Britain - nonProfit
08/08/2026
#93
🇬🇧 Great Britain - nonProfit
07/08/2026
#84
🇬🇧 Great Britain - nonProfit
06/08/2026
#62
🇬🇧 Great Britain - nonProfit
05/08/2026
#44
🇬🇧 Great Britain - nonProfit
04/08/2026
#26
🇬🇧 Great Britain - nonProfit
03/08/2026
#13
🇬🇧 Great Britain - nonProfit
15/06/2026
#98
🇺🇸 USA - nonProfit
07/06/2026
#98
🇩🇪 Germany - nonProfit
17/03/2026
#91
🇺🇸 USA - nonProfit
10/03/2026
#99

Spotify

No recent rankings available

Shared links between episodes and podcasts

Links found in episode descriptions and other podcasts that share them.

See all

https://www.youtube.com/watch?v=1x_FR3IX_uY
6 shares
https://youtu.be/lPgNbFni0oI?si=JWwD6swVhTyMn7jx
2 shares
https://www.youtube.com/watch?v=284K2by1FO4
2 shares

RSS feed quality and score

Technical evaluation of the podcast's RSS feed quality and structure.

See all

RSS feed quality

To improve

Score global : 53%

Publication history

Monthly episode publishing history over the past years.

Year

Latest published episodes

Recent episodes with titles, durations, and descriptions.

See all

Episode #058 - Crisis Care for Severe and Profound Autism

Monday, June 3, 2024 • Duration 01:18:33

Arzu Forough, President and CEO of Washington Autism Alliance, is our guest discussing crisis care for severe/profound autism. She discusses medical necessity, governing policies such as Medicaid, mental health parity, navigating insurance, types of placements, and the systemwide deficiencies in serving the population with severe and challenging behaviors. Washington Autism Alliance works to expand access to healthcare, education and services for people with Intellectual Developmental Disabilities including Autism. WAA provides legal services, individual case management and multi system navigation for individuals and families. www.WashingtonAutismAlliance.org

Read moreCollapse

Episode #057 - Standing Up for Severe Autism on Social Media: Eileen Lamb

Monday, June 3, 2024 • Duration 01:13:01

National Council on Severe Autism Webinar, May 15, 2024 We feature Eileen Lamb, one of the most visible and prolific social media personalities in the autism world. Eileen is an author, blogger, photographer, podcaster, the director of social media for Autism Speaks, and the mother of three children, one of whom, 11 year-old Charlie, has an extreme form of autism and another, Jude, who is higher functioning. She also serves on the board of NCSA.

In this webinar and conversation Eileen shares the realities of Jude's profound autism, including persistent pica (ingestion of inedible objects), spitting, property destruction and aggression, her experiences being bullied online by neurodiversity adherents, her own autism diagnosis, and how she finds the time to share her story with the world while dealing with her son's life-threatening behaviors. Moderated by Jill Escher, NCSA. Links: The Autism Cafe: https://theautismcafe.com Adulting on the Spectrum podcast: https://www.autismspeaks.org/podcast/adulting-spectrum-meet-our-hosts Find us at NCSAutism.org

Read moreCollapse

Episode #048 - Richard Edley, The Need for Reality-Based Programs for Adults with Severe Autism

Monday, October 30, 2023 • Duration 46:34

Richard Edley, PhD is President/CEO of Rehabilitation and Community Providers Association (RCPA) of Pennsylvania, and a nationally recognized leader pushing for care options for adults with autism and I/DD. He is also the father of an adult son with profound autism. In this episode he and Jill discuss:— The scope of the I/DD system in PA and the lengthy waitlists— The pressure of increasing autism cases— Program closures and selectivity against those with acute needs; the erosion of services for high needs— The workforce (DSP) crisis— Pennsylvania's restrictive interpretation of the HCBS Settings Rule— Advocates' mania for closure without offering realistic solutions— Arbitrary rules that create barriers to functional services— The difference between ideology and reality about I/DD the need to base systems on facts and data, not "theology"— The problematic use of the "Supports Intensity Scale"— Worries about how "Selective Contracting" will reduce choice— How to think about fixing our broken system that seems designed to collapse

Link:
RCPA: https://www.paproviders.org

Read moreCollapse

Episode #047 - Open the Floodgates! Mary Ogle of A New Leaf in Oklahoma

Monday, October 23, 2023 • Duration 49:09

This interview will blow your mind. You will have just one thought: "We need a thousand more Mary Ogles!" Mary is a force of nature and CEO of A New Leaf near Tulsa, Oklahoma, which serves 500 clients with I/DD in vocational, transition and residential programs. When Mary sees a need she goes for it and has vastly expanded their operations, including development of a residential village serving adults of all functional levels. She and Jill Escher discuss:—How she entered this field—How the campus-based housing did not get subjected to HCBS "heightened scrutiny"—The vision and mission to serve adults with severe and profound autism—The need for a huge amount of private fundraising to cover actual costs—How they raised millions to build their village—The 2-year Transition Academy serving students with mid-functioning autism and I/DD—The horticulture work the clients do, and their retail operations—Staff development and retentionWe must "open the floodgates" to vastly more services and housing to serve the need. Amen!Link:
https://www.anewleaf.org

Read moreCollapse

Episode #046 - The Benefits of Residential Communities and the Need for Choice: Molly Nocon, CEO of Noah Homes

Sunday, October 15, 2023 • Duration 42:07

The next few episodes feature esteemed speakers from the recent Together for Choice conference held in Las Vegas Nevada. First up is Molly Nocon, CEO of Noah Homes in San Diego County, California. Noah Homes is a beautiful residential community for adults with I/DD, although their client profile generally does not include challenging behaviors. Recently Noah Homes has expanded to include senior care for adults with I/DD and dementia (common with older people with Down syndrome), and now Molly is investigating possibilities for a program serving adults with autism and behaviors. Jill and Molly discuss the difference between arbitrary policy edicts and on-the-ground realities, and the need for truly person-centered planning.Links:Noah Homes: https://noahhomes.org
Opportunity Village: http://opportunityvillage.org
Together for Choice: http://togetherforchoice.org

Read moreCollapse

Episode #045 - How to Be an Autism Advocate in Your State

Monday, September 18, 2023 • Duration 01:39:40

State policy is hugely consequential for autism families — from state Medicaid programs, to support worker wages, to health care, to guardianship, to recreation and respite. This week we bring you the audio of an NCSA webinar held on September 13, 2023 focusing on advocacy at the state level. If you'd like to see the video or slides, please see our website NCSAutism.org.
We start with an intro to federal policy, with Gayle Gerdes, Health Policy Source, who is helping NCSA on voicing our positions on federal policy matters. Then our main speaker is Susan Goldstein, a dynamo mother of a young woman with severe autism who parlayed her passion for autism programs into creating Florida legislation that expanded autism services in the state, and was later elected a state representative. Today she serves as a lobbyist for the Legis Group in Florida. Susan was featured in a prior Autism Confidential podcast, and this episode greatly expands on the concepts she discussed there — with a huge abundance of advice and inspiration. Hosted by Jill Escher and Leanne Morphet, NCSA Policy Chair.

Read moreCollapse

Episode #044 - Title: Autism Research Roundup, with Dr. Alycia Halladay

Monday, September 11, 2023 • Duration 01:09:40

We are delighted to bring back Dr. Alycia Halladay, Chief Science Officer of the Autism Science Foundation, who we first featured way back in Episode 4. Alycia and host Jill Escher debate some of the more recent developments in autism research, including studies on genetics, prevalence, early intervention, and ... TikTok! It's a long episode and a bit "in the weeds" on some pretty technical topics but we hope you find it thought-provoking. First they discuss a new paper that probes the role of "common genetic variants" in autism risk, and Jill expresses her dissatisfaction with the assumptions underlying the study. Prevalence is rising, and Alycia says it's not just one thing driving the increase. Early interventions show some promise in improving functioning in young autistic children, but not in overcoming autism. And, surprise (not), Tik Tok is full of autism misinformation....Links:

The contributions of rare inherited and polygenic risk to ASD in multiplex families https://www.pnas.org/doi/abs/10.1073/pnas.2215632120
The earlier the better: An RCT of treatment timing effects for toddlers on the autism spectrum https://journals.sagepub.com/doi/full/10.1177/13623613231159153
Building Community and Identity Online: A Content Analysis of Highly Viewed #Autism TikTok Videos https://www.liebertpub.com/doi/abs/10.1089/aut.2023.0019
ASF Podcast - Podcast: Tik-Tok for autism information? Nope https://autismsciencefoundation.org/resources/podcast-tik-tok-for-autism-information-nope/
Meet Alycia: https://autismsciencefoundation.org/teams/dr-alycia-halladay/

Read moreCollapse

Episode #043 - Battling the Vaccine-Autism Myth, with Paul Offit, MD

Monday, August 7, 2023 • Duration 35:33

The vaccine-autism myth is rearing its head again, particularly via statements by Democratic presidential candidate Robert F Kennedy, Jr., so it's never been more important to set the record straight about something that by now should be abundantly clear: vaccines do not cause autism. We are delighted to feature Dr. Paul Offit, an internationally recognized expert in the fields of virology and immunology. He serves as director of the Vaccine Education Center and physician in the division of infectious diseases at Children's Hospital of Philadelphia. Among other things, we discuss:—The extremely rare (actual) risks of childhood vaccinations—Mercury and aluminum in vaccines do not cause autism—The immune response to vaccines does not cause autism—The fraud that gave rise to the vaccine-autism myth in the first place—The lack of biologically plausible mechanisms linking vaccines to autism—There's no evidence in epidemiology for a link between vaccinations and autism—How we've become complacent about the risks of devastating infectious diseasesThis podcast is sponsored by:National Council on Severe Autism NCSAutism.orgAutism Confidential podcast AutismConfidential.org

Read moreCollapse

Episode #042: Jackie Ceonzo: A Hero Serving Severe Autism in NYC

Monday, July 31, 2023 • Duration 44:36

If Jill were to create a pantheon of Autism Gods, Jackie Ceonzo would be right there in the center. She is the rare autism mom who struck out to create recreational and enrichment classes and activities for children and adults with severe forms of autisms. Including "the biters," as Jackie puts it. The kids who routinely get rejected from other special needs programs because of their behaviors. The kids who cost the most money. Jackie is a force of nature who founded SNACK*, a program located in midtown Manhattan, where clients can access a wide variety of options and "Snacktivities," including swim, art, music, yoga, soccer and cooking lessons. The ratio is typically 1:1 depending on client needs. It's a rare gem that should be available, well, everywhere, but she faces many obstacles, including discriminatory policies that penalize programs for those with severe autism, and the need to raise a lot of money to cover the considerable costs.This is a can't-miss episode!Links:SNACK* NYC: https://www.snacknyc.com
Shop Cup of Joe Coffee and other items: https://shop.snacknyc.com

Read moreCollapse

Episode # 041 - Jill Gets Deluged by Questions

Monday, July 24, 2023 • Duration 32:44

Last week, a long-form essay about autism by Jill Escher was published in The Free Press (TheFP.com). The article was about how we have grown increasingly complacent about the autism crisis at a time when autism rates continue to increase and the dire need for long-term care services is exploding. The piece received a lot of attention and Jill found herself deluged by comments and questions. In this episode Jill responds to some of the messages, emails and comments she received, including about vaccines, neurodiversity, Feda, autism genetics, and the fact parents can't die.

Read The Free Press article here: https://www.thefp.com/p/the-autism-surge-lies-conspiracies

Read moreCollapse

Autism Confidential – Details, episodes & analysis

Podcast details

Recent rankings

Apple Podcasts

Spotify

Shared links between episodes and podcasts

RSS feed quality and score

Publication history

Latest published episodes

Related Shows Based on Content Similarities

Related Shows Based on Content Similarities

Apple Podcasts

Spotify

Autism Confidential – Details, episodes & analysis

Podcast details

Recent rankings

Apple Podcasts

Spotify

Shared links between episodes and podcasts

Other96

Youtube7

Amazon5

RSS feed quality and score

Publication history

Latest published episodes

Similar podcasts and content

Related Shows Based on Content Similarities

Related Shows Based on Content Similarities

Other96

Youtube7

Amazon5

Apple Podcasts

Spotify