Amplifying the Patient Journey

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https://www.hattrbridge.com/roadtrip
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https://www.kelstrongfoundation.com/
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Emma’s Journey: A Mother’s Hope in the Face of Dravet Syndrome

Thursday, November 13, 2025 • Duration 18:34

In this episode, Nicole Watson shares her daughter Emma’s powerful journey living with Dravet syndrome, a rare and severe form of epilepsy. From the early days of uncertainty and searching for answers to finding the right care and treatment, Nicole opens up about resilience, hope, and the lessons learned along the way. Her story offers heartfelt insight for families, caregivers, and healthcare professionals alike.

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Learning, Laughing, and Living with Multiple Sclerosis

Tuesday, October 21, 2025 • Duration 28:08

Ardra Shephard, a musician, author, fashion-show TV host, podcaster, and MS advocate, discusses her experiences living with MS, including how she uses her story to educate and encourage others living with MS. She is joined by Jiwon Oh, MD, Medical Director of the Barlo Multiple Sclerosis Program at St. Michael’s Hospital, Toronto, ON, who describes how advancements in the diagnosis and treatment of MS have improved outcomes for individuals living with this condition.

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PD GENEration and Barriers to Parkinson Diagnosis - Part 2

Friday, August 23, 2024 • Duration 18:06

Richard Huckabee is a patient living with Parkinson disease and a Parkinson’s Foundation "Aware in Care" ambassador and research advocate. Mr. Huckabee is enrolled in the PD GENEration study, a national initiative offering no-cost genetic testing and counseling for people with Parkinson disease, and he discusses some of the barriers he faced in receiving a diagnosis of Parkinson disease.

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PD GENEration and Barriers to Parkinson Diagnosis - Part 1

Tuesday, August 13, 2024 • Duration 18:35

Chantale Branson, MD, Associate Professor of Neurology at Morehouse School of Medicine, Atlanta, GA, is a researcher working on the pivotal PD GENEration study, which aims to improve treatment options through the identification of clinically relevant genes linked to Parkinson disease. In this episode, Dr. Branson provides context for the social barriers faced by people of color who have Parkinson disease.

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The Influence of Family Health History on the Diagnosis of hATTR Amyloidosis

Thursday, June 27, 2024 • Duration 20:21

Bernice Bennett, genealogist, health education specialist, and co-founder and faculty member of the Midwest African American Genealogy Institute, discusses the Family Health History Road Trip, which emphasizes the important role family health history can play in driving earlier diagnosis of hATTR amyloidosis. Bernice is joined by Giselle, a program participant living with hATTR amyloidosis who shares her experiences with amyloidosis and how she approached conversations with her family about this disease, as well as hATTR amyloidosis expert, Dr. Saurabh Malhotra, Director of Advanced Cardiac Imaging at Cook County Health, Chicago, IL. For more information on the Family Health History Road Trip visit https://www.hattrbridge.com/roadtrip

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Beyond Brain Injury

Thursday, May 2, 2024 • Duration 26:38

Elisabeth Beraquit, a Philadelphian, CPA, and former bakery owner, recounts her painstaking journey of recovery from a traumatic brain injury due to a 30 foot fall.

Surviving Stroke: 2 Surgeons Experience with Recovery

Thursday, February 8, 2024 • Duration 30:48

Siva Murugappan, MD, General Surgeon, Chatham-Kent Health Alliance, Ontario, Canada, shares his own experiences as a patient recovering from an ischemic stroke. He is joined by his wife and caregiver, Dr. Prema Samy, Otolaryngologist, Chatham-Kent Health Alliance, Ontario, Canada, as they both discuss their transition from physician, to their respective roles as patient and caregiver in the recovery journey.

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Ping Pong and Parkinson Disease

Thursday, December 28, 2023 • Duration 30:47

PingPongParkinson founder, Nenad Bach, discusses why he started PingPong Parkinson. He is joined by Gabe Elkinson and Ryan Dong, two high school students who started a PingPongParkinson chapter in Georgia, and Pierre Russell, a PingPongParkinson participant.

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Epilepsy Caregiving

Tuesday, December 5, 2023 • Duration 28:50

Caregivers play an important part in the patient journey, especially with conditions such as epilepsy. Actor and podcast host of "Talk About It!" Greg Grunberg discusses how caregivers can educate themselves and their loved ones about how best to thrive.

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SMA Experience: Episode 2

Tuesday, November 21, 2023 • Duration 50:25

Neuromusclar disease expert Diana Bharucha-Goebel, MD, PhD chats with Traci High, mother of two patients with SMA about how the SMA treatment landscape, and her childens' lives, have changed over the past 15 years.

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Amplifying the Patient Journey – Details, episodes & analysis

Podcast details

Recent rankings

Apple Podcasts

Spotify

Shared links between episodes and podcasts

RSS feed quality and score

Publication history

Latest published episodes

Related Shows Based on Content Similarities

Apple Podcasts

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Related Shows Based on Content Similarities

Amplifying the Patient Journey – Details, episodes & analysis

Podcast details

Recent rankings

Apple Podcasts

Spotify

Shared links between episodes and podcasts

Other2

RSS feed quality and score

Publication history

Latest published episodes

Similar podcasts and content

Related Shows Based on Content Similarities

Apple Podcasts

Spotify

Related Shows Based on Content Similarities

Other2