Explore every episode of the podcast 2 Parkies in a Pod: a Parkinson's Podcast
| Title | Pub. Date | Duration | |
|---|---|---|---|
| Dyskinesia or Dystonia? | 07 nov. 2026 | 01:11:31 | |
In this episode of 2 Parkies in a Pod, we go transatlantic as Dr Rachel Dolhun from The Michael J. Fox Foundation joins us. Rachel is a movement disorder neurologist and the foundation’s principal medical adviser. She explains what dystonia and dyskinesia are, how to tell the difference between the two and strategies to treat.. including the use of sensory tricks. Plus - Kuhan tells why he’s been a bit under the weather and Dave explores his family tree… https://www.michaeljfox.org/ https://www.michaeljfox.org/news/dyskinesia https://www.michaeljfox.org/news/dystonia https://www.parkinsons.org.uk/information/drugs/side-effects/movement-changes#dyskinesia https://www.parkinsons.org.uk/information/symptoms/motor/muscle-cramps-dystonia If you enjoyed this episode please subscribe, rate and review www.2parkiesinapod.com | |||
| Understanding ON/OFF | 19 sept. 2026 | 01:24:36 | |
In this episode of 2 Parkies in a Pod, we’re talking about one of the most frustrating and sometimes confusing parts of living with Parkinson’s - ON and OFF periods. What does it actually mean to be “ON”? What does being “OFF” feel like? And why can Parkinson’s symptoms sometimes seem to change throughout the day? We’re joined by Professor Camille Carroll, Professor of Clinical Neuroscience at Newcastle University, whose work focuses on Parkinson’s, personalised care, digital monitoring and motor fluctuations, including “wearing-off.” Please remember that the podcast is not a substitute for individual medical advice. If you’re experiencing changes in your Parkinson’s symptoms or medication response, speak to your Parkinson’s team or healthcare professional. https://www.parkinsons.org.uk/research/get-involved https://www.ejsactpd.com/ https://www.researchplusme.co.uk/join-parkinsons-research/ Please subscribe, rate & review hello@2parkiesinapod.com | |||
| Family Ties | 29 août 2026 | 00:38:29 | |
Having witnessed her younger brother being diagnosed with Parkinson’s at the age of just 20, Anne had seen Parkinson’s first hand - but in a cruel twist of fate she was herself diagnosed more than 30 years later. How they have both dealt with their diagnosis is a truly inspiring story. Listen in for a powerful conversation about family, resilience, exercise, friendship and finding a positive way forward with Parkinson’s. Plus Dave gets an unexpected visitor... Richard Brocklesby Sailing Fundraiser https://gofund.me/704a90bee Walkies for Parkinson's https://events.parkinsons.org.uk/event/walkies-for-parkinsons/home Par-Con 2026 https://www.parkinsons.org.uk/community/par-con Submit your video questions for Par-Con 2026 at hello@2parkiesinapod.com | |||
| I don’t have Parkinson’s after all | 15 août 2026 | 00:39:37 | |
What happens when you’re told you have Parkinson’s — and years later, you’re told you don’t? Mike Bells talks about the first signs, how the diagnosis affected both him and those around him, and the impact the Parkinson’s medication had. Then came the shock.. Mike was de-diagnosed almost a decade later. Mike opens up about what it felt like to discover the news and what life looks like now. Plus, Dave hits 60… and Kuhan gets back behind the wheel! Mike Bell Maps Par-Con 2026 https://www.parkinsons.org.uk/community/par-con Parkinson’s UK Nurse Appeal https://www.parkinsons.org.uk/donate/parkinsons-uk-nurse-appeal/our-bbc-radio-4-appeal Parkinson’s UK Walk Battersea Park 5th Sept 2026 https://events.parkinsons.org.uk/event/walk-parkinsons Cure Parkinson’s Walk Battersea Park https://cureparkinsons.org.uk/events/walk-to-cure-parkinsons-the-london-walk/ Please subscribe, rate & review | |||
| When is the Right Tme for DBS? | 01 août 2026 | 00:56:06 | |
Guest: Dr Ashwini Oswal For many people living with Parkinson’s, Deep Brain Stimulation (DBS) is one of the biggest treatment decisions they’ll ever face. But when is the right time to start thinking about it? Should DBS be viewed as a last resort, or could earlier intervention offer greater benefits? In this episode of 2 Parkies in a Pod, we’re joined by Dr Ashwini Oswal, Honorary Consultant Neurologist at the John Radcliffe Hospital in Oxford. His clinical work and research focus on Parkinson’s disease, Deep Brain Stimulation and the next generation of adaptive DBS technology. Together, we unpack the evidence behind DBS, explain how it works, discuss who is most likely to benefit, and explore whether the 5-2-1 rule is a useful guide for referral. We also talk about the role of medications such as Entacapone, Opicapone & Amandatine, ask whether DBS could one day prove to be neuroprotective, and look ahead to the exciting future of adaptive DBS. https://www.parkinsons.org.uk/information/treatments/deep-brain-stimulation How to get involved in table Tennis https://tabletennisengland.co.uk/news/2025/table-tennis-england-and-parkinsons-uk-announce-partnership/ The advert that made Dave Cry https://www.youtube.com/watch?v=-GEpT3e7Dfg Please rate, review and subscribe 2parkiesinapod.com | |||
| How close are we to a cure? | 18 juil. 2026 | 00:58:15 | |
Guest: David Dexter, Director of Research, Parkinson’s UK There’s a real sense of optimism in Parkinson’s research right now! In this episode we’re asking whether we’re closer than ever to treatments that can slow, stop, or even reverse the disease. David Dexter joins us to discuss exciting developments including breakthrough stem cell research, the promising results from a drug called Syntara, why reducing brain inflammation could be a game changer, and how Parkinson’s UK decides which research to back. We also chat to Yorkshireman Andy Cassy who’s had millions of Stem Cells “planted” in his brain. Two years on from his 12 hour operation, is it working? We also explore whether stress affects Parkinson’s, if an apple a day really can help keep the neurologist away, the science behind fatigue and NAD+ a cheap energy boosting supplement We finish with a fun quick-fire round to discover the person behind the scientist. Plus- how Dave managed to skip into Wimbledon for semifinals day. Parkinson’s UK Research https://www.parkinsons.org.uk/research Par-Con 2026 https://www.parkinsons.org.uk/community/par-con Symprove https://shop.parkinsons.org.uk/pages/partner-symprove NAD+ Why am I so tired? https://www.2parkiesinapod.com/podcast/episode/223d81c7/why-am-i-so-tired Ask the professor https://www.2parkiesinapod.com/podcast/episode/2da15954/ask-the-professor Please subscribe, rate & review | |||
| 12 Amazing People | 13 juin 2026 | 00:57:39 | |
This episode celebrates some of the incredible people making a difference in the Parkinson’s community through creativity, courage, sport, music and innovation. Meet wildlife photographer, filmmaker and now gardener David Plummer, one of the talented people who helped Arit Anderson create the stunning Parkinson’s UK Garden at the Chelsea Flower Show: https://www.instagram.com/davidplummerimages Kuhan reflects on his DBS 1 year on with DBS specialist nurse John: https://youtu.be/gCkyRdcNgbg Ciaran and Lucy share their remarkable story of cycling around the world to raise money and awareness for Parkinson’s: https://www.instagram.com/ciarandoesthings_ FA Cup Final Ian Moorehouse: https://www.youtube.com/watch?v=zwus8-XDxMY Rock Choir - over 400+ local choirs across the UK and Ireland: https://rockchoir.com/ BURT - The Movie: https://www.joeburke.net/burt Ever fancied appearing in a film? A former Coronation Street actor explains how you could become a star of the silver screen: https://www.instagram.com/108a_films Sam reveals how he’s using artificial intelligence to help compose, create and produce new music: https://www.instagram.com/samuelsmithmusic And two Emmas tell us all about a festival designed especially for Parkies: https://bigskyhideaway.com/parky-in-the-park Twelve amazing people with inspiring stories. One uplifting episode celebrating the people who are making a real difference in the Parkinson’s community. Plus Dave tries out a expiratory muscle strength trainer: https://www.cuh.nhs.uk/patient-information/expiratory-muscle-strength-training-emst/ https://www.amazon.co.uk/EMST150-Expiratory-Muscle-Strength-Trainer/dp/B0094ME5BA Please rate, review and subscribe! | |||
| Flower Power | 19 mai 2026 | 00:27:54 | |
In this special episode, Dave and Kuhan head to the world-famous RHS Chelsea Flower Show to explore one of the most moving and meaningful gardens of the year: Parkinson’s UK’s Garden for Every Parkinson’s Journey. We’re joined by acclaimed garden designer and broadcaster Arit Anderson, who shares the deeply personal story behind the garden she created. Arit opens up about her family’s connection to Parkinson’s, how that experience- and the experiences of the Parkinson’s community - shaped the design, and why gardens can become spaces for reflection, resilience and hope. Plus we meet Raymond the Chelsea Pensioner with Parkinson's | |||
| Tech Trouble & Triumph | 09 mai 2026 | 00:53:17 | |
This week 2 Parkies in a Pod chat to former BBC technology correspondent Rory Cellan-Jones - a man who’s interviewed the likes of Steve Jobs and Elon Musk. He’s a Mover and Shaker launching an award-winning podcast, and is now one of the most important voices on tech and Parkinson’s. Links https://rorycellanjones.substack.com/ https://www.moversandshakerspodcast.com/ https://www.ejsactpd.com/ Wispr Flow voice to text special offer | |||
| What Type of Parkinson's Do I Have? | 22 avr. 2026 | 01:05:24 | |
What type of Parkinson’s do I have? Featuring Prof Alastair Noyce You’ve heard it a hundred times: “everyone’s Parkinson’s is different.” But what does that actually mean?In this episode, we unpack the main subtypes of Parkinson’s and what sets them apart clinically. Are you tremor-dominant or more rigid and stiff? Have you lost your sense of smell? How does young-onset progress? And in this clip we discuss if having a genetic type means your children will inherit Parkinson’s ? To help make sense of it all, we’re joined by one of the leading minds in the field: Professor Alistair Noyce, clinician, researcher, and a driving force at the cutting edge of Parkinson’s science. Elsewhere, Kuhan boards a plane to Spain for the first time since his brain surgery, while Dave heads to the Yorkshire coast in search of puffins. And we spotlight a powerful awareness campaign - the “rose without a smell”- highlighting one of Parkinson’s lesser-known symptoms.Listen and follow at 2parkiesinapod.com or on Spotify / Apple Podcasts Parkinson's Resilience Rose https://www.roses.co.uk/product/780299/rose-parkinsons-resilience-4l-pot-ngw PD Frontline (Genetic Testing) https://mantal.pdfrontline.com/en EJS ACT-PD Trial https://www.ejsactpd.com/ Parkinson's UK Get Involved in Research https://www.parkinsons.org.uk/research/get-involved/take-part-hub | |||
| Pump It Up | 04 avr. 2026 | 01:07:04 | |
We take a look at the use of pump technology (Produodopa) in battling the symptoms of Parkinson’s.. A small pump delivers a continuous dose of medication under the skin through a small needle. How will it improve 'off' periods ? How difficult is it to manage the pump and change the infusion site? Can you lead a normal life with it? Parkinson’s patients Anna Jewell and Helga McFarlane together with 'Professor AI' tell us the pros and cons of pumping it up! Plus- Find out what happened when Kuhan turned off his DBS to play tennis… Dave starts his brain surgery journey… And Billy Connolly gets a new job as a museum tour guide… More information https://www.parkinsons.org.uk/information/drugs/produodopa | |||
| Political Football | 21 mars 2026 | 00:35:33 | |
We’re hitting a milestone-Episode 60- and marking it in style. In this special instalment of 2 Parkies in a Pod, Dave and Kuhan swap the studio for the pitch as they attend a truly unique football match. On one side: the England Men’s Parkinson’s Walking Football team. On the other: a team of MPs from the All-Party Parliamentary Group. But this isn’t just about goals and glory. This match shines a spotlight on something bigger- the powerful role exercise can play in living well with Parkinson’s. It’s about movement, resilience, and proving that diagnosis doesn’t mean standing still. And where better to make that statement than right at the heart of power? Adding to the occasion, the team also received a letter from Prime Minister Keir Starmer, praising the day and recognising the importance of raising awareness and championing the Parkinson’s community. With boots on the ground and voices raised, this episode captures a moment where the Parkinson’s community takes its message straight to the highest table in the land-loud, proud, and impossible to ignore. Plus we take a trip down memory lane, talk about gut health and Dave's unexpected visitor for breakfast ! ⚽ Movement is medicine. Please do subscribe, rate and review the podcast. Symprove Gut Health https://shop.parkinsons.org.uk/pages/partner-symprove Padel for Parkinson's https://www.instagram.com/Padel4Parkinsons Billy Connolly Art https://www.castlefineart.com/products/a-chat-at-the-gym Alex Echo Art | |||
| Sex, Shopping & Gambling - Out of Control | 07 mars 2026 | 00:49:16 | |
Sex, Shopping & Gambling - Out of Control This week on 2 Parkies in a Pod, we uncover the darker side of dopamine agonists — a group of Parkinson’s drugs that, for some people, have triggered devastating impulsive behaviours. Sudden, overwhelming sexual urges, out-of-control gambling and compulsive shopping that’s cost families tens of thousands of pounds. We speak to BBC Investigative Reporter Noel Titheradge, who spent a year investigating the link between these medications and impulse control disorders. His documentary 'Impulsive’ for the BBC’s Radio 4 Shadow World series exposed stories that are hard to ignore. You’l also hear from:
How common are these side effects? Are patients warned clearly enough? And should drug companies be doing more? If you or someone you love has been affected, help is available. 📞 Parkinson’s UK free confidential helpline: 0808 800 0303 Parkinson’s UK Impulsive Control Disorders https://www.parkinsons.org.uk/about-us/our-views/impulsive-compulsive-behaviour BBC Impulsive Series https://www.bbc.co.uk/programmes/m001zlz0 Contact Noel: noel.titheradge@bbc.co.uk Yellow Card Reporting Side Effects https://yellowcard.mhra.gov.uk/ Ellie’s Blog https://pdmamablog.wordpress.com/ | |||
| Why Am I So Tired? | 21 févr. 2026 | 01:14:14 | |
‘Why am I so tired?’ features occupational therapist Emma Bracher Research shows, fatigue is the most burdensome symptoms for people with Parkinson’s, yet it’s still one of the least talked about and least understood. So what is Parkinson’s fatigue? What causes it? And is there anything we can do to live with it — or even prevent it? This week on 2 Parkies, we’re joined by Emma Bracher, Specialist Occupational Therapist and founder of Bigger & Better, a fitness and wellbeing programme designed specifically for people with Parkinson’s. Emma shares her expert insight into:
We also get to know Emma’s personal journey — having a dad who has Parkinson’s, to how a six-year adventure in Australia inspired her to become a healthcare professional. And because it wouldn’t be 2 Parkies without a bit of fun, we also discover how Emma’s husband has turned their garage into an unexpected shrine to darts 🎯 Links: How can Occupational Therapy help me Bigger and better https://www.biggerandbetterforparkinsons.co.uk/ 2 Parkies Bobble hats - use the code WarmFeb (up to 28/2) at checkout to receive 10% off any clothing https://shop.parkinsons.org.uk/collections/parkinsons-uk-merchandise-1/2-parkies-in-a-pod The Tremor-Loes Choir https://m.youtube.com/playlist?list=OLAK5uy_n6FHxcvIQZTpv7mA4AObHQlpXg2Si5Exc Larry 100 Marathons https://secure2.convio.net/dpf/site/Donation2?mfc_pref=T&2720.donation=form1&df_id=2720 Skateboarding Parkie Phillip Brown https://www.youtube.com/channel/UCulUIOyLhCDo8YnwRqSL77Q The Shaking It Up Parkinson’s Podcast https://shakingitupwithparkinsonspodcast.com/launch-trailer/ | |||
| What Do My Meds Do? | 07 févr. 2026 | 01:14:35 | |
Parkinson’s Medication Explained with Professor Jane Alty from the University of Tasmania. Parkinson’s meds can feel overwhelming. If you don’t know your Entacapone from your elbow, this is the Podcast for you. The professor cuts through the confusion — busting myths and jargon explaining what each medication actually does, and why treatment should always be personal. From first prescription to advanced therapies, this is a must-listen for anyone navigating Parkinson’s. Key Topics:
Parkinson’s UK Medication https://www.parkinsons.org.uk/information/drugs Parkinson’s MOOC (massive open online course) https://mooc.utas.edu.au/course/20392 Parkinson’s Weekly Prof Bas Bloem (talking about Amandatine) https://oruen.com/category/podcasts/parkinson-weekly Megan’s Yogathon for Parkinson’s UK https://www.justgiving.com/page/megan-jones-1764255759495?utm_medium=FR&utm_source=CL Anders M. Leines ‘This is Parkinson’s’ https://www.detteerparkinson.no/en/media Emma Lawton ‘The Bendy Pencil’ https://www.crowdfunder.co.uk/p/thebendypencil Miracle grandfather battling Parkinson's, 74, survives 60m mountain fall https://www.express.co.uk/news/uk/2161180/grandfather-battling-parkinsons-survives-60/amp | |||
| Seasons Greetings | 23 déc. 2025 | 00:28:14 | |
Season's Greetings from 2 Parkies in a Pod ! Plus 2 Parkies in a Pod receives its own community award ! Please rate, review and subscribe! 2parkiesinapod.com hello@2parkiesinapod.com | |||
| Coming Out | 13 déc. 2025 | 00:55:11 | |
Many people living with Parkinson’s struggle to talk about their diagnosis. Fear, stigma, and uncertainty can keep people silent for years. Even Michael J. Fox kept his Parkinson’s diagnosis private for almost a decade. This week on 2 Parkies in a Pod, we meet Scott and Paul, who share powerful, deeply personal coming out stories — not just about Parkinson’s, but about identity, isolation, and finding the courage to be seen. Paul reflects on how closely his Parkinson’s journey mirrored his experience of coming out as gay: “I guess I dealt with Parkinson’s in the same way I dealt with realising I was gay… by not talking to anyone about it for many years" Scott speaks honestly about living with Parkinson’s while single, gay, and without family support: “Being single, gay, with no family support, I did feel very isolated — and there weren’t many people I could see in the community that I had anything in common with.” In one of the episode’s most raw moments, Scott also opens up about experiencing suicidal thoughts and explains how the helplessness he felt during tests for deep brain stimulation treatment resurfaced memories of past sexual abuse. His honesty shines a light on the complex mental health challenges faced by many people with Parkinson’s — challenges that often remain unspoken. This is a story about vulnerability, survival, and connection. A story of adversity, community and ultimately ...gratitude. Parkinson’s and The Invisible Man (Scott’s YouTube channel) https://www.youtube.com/@Parkinsonsandtheinvisibleman Parkinson’s UK Mental Health https://www.parkinsons.org.uk/information/symptoms/behavioural/mental-health Podcast Club https://localsupport.parkinsons.org.uk/activity/young-onset-parkinsons-online-group LGBTQIA+ Network https://localsupport.parkinsons.org.uk/activity/lgbtqia-network-meeting-online DBS Network https://forms.gle/ApDHqGaDF38n6wYa7 Join our yoga group https://dawnwilliamsyoga.co.uk 1 in 3 living alone research insights Par-Con 2025 mental health video Hear Me charity https://www.parkinsons.me/hearme Nutrition PD Please rate, review and subscribe to the podcast Contact us at: hello@2parkiesinapod.com | |||
| Lucy’s Genetic Journey: My Amazing Parkinson’s Story | 15 nov. 2025 | 01:40:39 | |
In this episode, we meet Lucy (not her real name), who shares her extraordinary Parkinson’s journey. Lucy discovered she has a genetic form of Parkinson’s known as LRRK2. What started as a simple Ancestry DNA test to explore her family roots soon led to life-changing revelations — uncovering far more than she ever expected. Before releasing this episode, we sought advice from Lucy’s counsellor, and we’ve taken every step to protect the privacy of everyone involved in this remarkable story. If you’ve been affected by the topics discussed, or want to learn more about genetic Parkinson’s, you can contact the Parkinson’s UK Helpline for confidential advice and support: 📞 0808 800 0303 📧 hello@parkinsons.org.uk Donor Conceived Support https://donorconceiveduk.org.uk (peer led support) https://www.uhliverpool.nhs.uk/services/service-finder/donor-conceived-register (national register) EJS ACT PD Get Involved Watch 2 Parkies at Par-Con Neuro Heroes https://www.neuroheroes.co.uk/ Parkinson’s Europe Work Survey Parkinson’s UK Nurse appeal https://www.parkinsons.org.uk/donate/donate-great-care Neuralink | |||
| Live from Par-Con: Rise & Shine | 01 nov. 2025 | 01:00:09 | |
10 Tips for a Better Day You can watch this episode at: In this special live episode from Parkinson’s UK’s Par-Con event in Birmingham, Kuhan and Dave are joined by a buzzing audience of more than 1000 people in person and online and the incredible Laura Douglas, neuro physiotherapist and founder of Neuro Heroes.Laura shares her expert advice from getting out of bed, stretches for dystonia and tips for getting dressed.Packed with practical tips, uplifting moments, and plenty of fun, this episode will help you start and end each day feeling stronger, steadier, and more confident — no matter what. Neuro Heroes Tips Plus a couple of special announcements. Subscribe to 2 Parkies in a Pod | |||
| Special Episode: Is Parkinson's on the Rise? | 23 oct. 2025 | 00:55:27 | |
A new study published today reveals a worrying trend: there are now 166,000 people in the UK living with Parkinson’s but a further 21,000 are estimated to be undiagnosed.. and unsupported. The Parkinson's UK study, the largest of it's kind, also reveals more than a third (36%) were of working age when diagnosed. Separately the number of people with a more complex form of Parkinsonism (e.g. Lewy Body Dementia, MSA, PSP) has increased to 28,000. The study also finds stark differences in rates based on ethnicity. Even more concerning, in some parts of the country people are waiting up to five years to see a neurologist. The charity has called it a “Parkinson’s diagnosis crisis.” With someone in the UK diagnosed every 20 minutes, we ask: why are the numbers rising, what’s driving the crisis, and what needs to change? Join us as we dig into the data, with 3 experts from Parkinson’s UK and explore what this means for the Parkinson’s community — now and for the future. For more information: Parkinson's UK News Article: https://www.parkinsons.org.uk/news/thousands-are-living-parkinsons-undiagnosed-and-unsupported-our-new-research-finds Read the Parkinson's UK Research Blog: https://www.parkinsons.org.uk/research/research-blog/our-research/parkinsons-uk-what-do-we-know Parkinson's UK Statistics: https://www.parkinsons.org.uk/about-us/parkinsons-statistics Research Paper: https://movementdisorders.onlinelibrary.wiley.com/doi/10.1002/mdc3.70368 www.parkinsons.org.uk UK Helpline 0808 800 0303 Join the Research Support Network: https://www.parkinsons.org.uk/research/research-blog/our-research/parkinsons-uk-research-support-network https://www.parkinsons.org.uk/research/race-equality-research Join the Black, Asian, Arab and Mixed Heritage Support Group: https://localsupport.parkinsons.org.uk/activity/black-asian-arab-and-mixed-heritage-support-group-meeting Listen to Will I Die from Parkinson's: https://www.2parkiesinapod.com/podcast/episode/1e8a6b26/will-i-die-from-parkinsons https://ourfuturehealth.org.uk/ | |||
| Call the Parkinson's Nurse | 11 oct. 2025 | 01:02:08 | |
In this episode, we’re joined by specialist Parkinson’s nurse Becky Heslop, who recently starred in a film highlighting the vital role nurses play in supporting people living with Parkinson’s. Becky talks us through what a Parkinson’s nurse actually does, from being a key part of your care package, to offering advice, reassurance, and hands-on treatments. We hear about some of the more practical – and sometimes challenging – aspects of her work, including giving Botox injections and helping people manage the Produodopa pump. Please consider donating to the Nurse appeal at: https://www.parkinsons.org.uk/donate/donate-great-care | |||
| Episode 50 - The Best Bits! | 20 sept. 2025 | 00:46:15 | |
We’ve hit a huge milestone – 50 episodes, and 2 Parkies in a Pod is celebrating in style! In this special edition, we take you back through some of our most memorable moments: ✨ The inspiring Matt Eagles, who’s been living with Parkinson’s for more than 50 years, shares how he stays positive. ✨ Professor Tom Foltynie answers your questions at Queen Square and explains how to prepare for your consultation. ✨ From Episode 20, Canadian broadcaster Harry Forestell tells us what it was like to meet Michael J Fox. ✨ Dementia expert Rimona Weil on why she fell in love with neuroscience. ✨ The Top 10 symptoms ✨ Plus - The moments when things didn’t go quite to plan – including that fit of the giggles! | |||
| You Can't Hide Your Parkinson's Forever | 01 sept. 2025 | 00:57:48 | |
This week on 2 Parkies in a Pod, we’re joined by television producer and editor Rob Burley. Rob has worked with some of the biggest names in political journalism – from Jeremy Paxman to Andrew Marr, Laura Kuenssberg to Emily Maitlis. Diagnosed with Parkinson’s in 2021, Rob talks openly about his journey and the challenges of balancing a demanding career with the condition. We also discuss his fascinating book, Why Is This Lying Bastard Lying to Me?, which explores the history of political interviewing and shines a light on how the toughest questions shape public life. Send us your voice notes at hello@2parkiesinapod.com Rob's Blog: https://unherd.com/2025/07/you-cant-hide-parkinsons-forever/ Rob's Book: https://open.spotify.com/show/7KLaSpzKqS5x9fKKgLFMQj?si=ef8c8e47cf804fa7&nd=1&dlsi=80ebdbbb704d4d14 https://www.amazon.co.uk/Why-This-Lying-Bastard-Searching/dp/0008542481 Balls to Parkinson's Bike Ride: https://ballstoparkinsons.co.uk/ Parkinson's UK Brain Bank: https://www.parkinsons.org.uk/research/parkinsons-uk-brain-bank Parkinson's UK Walk for Parkinson's 7th Sept : https://events.parkinsons.org.uk/event/walk-parkinsons-battersea-park/home Walk to Cure Parkinson's 28th Sept: https://cureparkinsons.org.uk/get-involved/walk-to-cure/ Par-Con 2025 Parkinson's UK Community Convention 24/25 Oct: https://www.parkinsons.org.uk/get-involved/par-con Please rate, review & subscribe if you enjoy the show. | |||
| 2 Parkies at the Brain Bank | 09 août 2025 | 01:02:40 | |
Dave and Kuhan take you behind the scenes of the Parkinson’s UK Brain Bank at Imperial College London. They witness an incredible brain dissection led by a world-class neuropathologist — an unforgettable experience. Have you ever wondered how you can make a real difference to Parkinson’s research? Find out how you can donate your brain to science and help unlock the mysteries of this condition. https://www.parkinsons.org.uk/research/parkinsons-uk-brain-bank http://imperial.ac.uk/brain-bank Find out if Kuhan’s DBS surgery has improved his tennis as the boys play their first post-surgery match…. Par-Con 2025 the Parkinson’s UK community convention, is our free, 2-day event for the Parkinson's community. Join us in-person or online for talks, activities and to connect with others. https://www.parkinsons.org.uk/get-involved/par-con AMAZING THINGS Adam Roberts the author of The Amateur Gourmet has gone public about his Parkinson’s … Every Silver Lining Has a Cloud - by Adam Roberts https://amateurgourmet.substack.com/p/every-silver-lining-has-a-cloud Jimmy Choi American Ninja https://www.facebook.com/share/v/1ALSbWFLiW/?mibextid=wwXIfr And we take a moment to pay tribute to fellow Parkie and rock legend Ozzy Osbourne, whose honesty and grit continue to inspire. hello@2parkiesinapod.com | |||
| DBS Diaries | 20 juil. 2025 | 01:16:56 | |
In this powerful episode, Kuhan takes us on an intimate journey through his life-changing deep brain stimulation (DBS) operation. From the moment he arrived at the hospital, through the intense experience of surgery, to the emotional moment the device was switched on. He opens up about the challenges, the breakthroughs, and how life has transformed since the procedure. It’s an honest, moving story of resilience, hope, and the impact of modern medicine. Watch Kuhan's moment of DBS switch on Parkinson's UK DBS information | |||
| Meet the Brain Surgeon | 06 juil. 2025 | 01:45:10 | |
This episode is a big one for us. Kuhan is preparing to undergo Deep Brain Stimulation, or DBS — a life-changing surgery that could help manage his Parkinson’s symptoms. Joining us is a very special guest: a member of the surgical team who’ll be operating on his brain. Harith Akram is a Consultant Neurosurgeon at the National Hospital for Neurology and Neurosurgery at Queen Square, London. He tells us how he escaped from Saddam Hussein's regime in Iraq, started medical school at 16 and invented the equipment that’s going to drill a hole in Kuhan‘s head!! He also tells us what to expect when you’re having deep brain stimulation. It’s personal, it’s powerful… it’s 2 Parkies In A Pod Links: | |||
| Getting the Balance Right | 08 juin 2025 | 01:09:45 | |
Balance in Parkinson’s is a complicated thing but the good news is, help is on hand. We talk to expert neuro physiotherapist Laura Douglas, co-founder of Neuro Heroes and an expert in gait and balance. An informative chat, packed full of great advice to make your Parkie life a little easier. hello@neuroheroes.co.uk www.neuroheroes.co.uk Neuro Heroes live classes over Zoom are for people based in the UK. People outside of the UK can follow along to these pre-recorded videos made with Parkinson's UK: Low intensity workout with Neuro Heroes Moderate intensity workout with Neuro Heroes High intensity workout with Neuro Heroes 2 Parkies in a Pod Spotify playlist: https://spotify.link/J7GX0gC40Tb https://thewellsparkinsons.bandcamp.com/track/walk-with-me An Interesting Detail by Kimberly Campanello: https://guardianbookshop.com/an-interesting-detail-9781526680594/ Mime Over Mind by Barbara Salsberg Mathews: https://mimeovermind.com/videos/ | |||
| Catch Up | 18 mai 2025 | 00:49:52 | |
The boys are back after a short break. Kuhan shares his sleep secrets, Dave takes a tumble, Ryan Reynolds speaks out about his dad‘s Parkinson’s and Steph has a positive take on sleeping in separate bedrooms, plus the pain of a PIP review. AbbVie sleep video PD nurses attend St James palace event https://www.bbc.com/news/articles/c2lzzjgvvw1o Cure Parkinson’s ‘Question of Time’ Parkinson’s UK PIP Information Parkinson’s UK PIP Campaign https://www.parkinsons.org.uk/news/what-latest-disability-support-reforms-mean-people-parkinsons Pavilion Dance South West Lee Silverman Voice Treatment https://www.parkinsons.org.uk/information-and-support/speech-and-language-therapy Tom Finch Fundraising https://www.justgiving.com/page/tom-hulme-1734256927282?utm_medium=FR&utm_source=CL&utm_campaign=015 Sports Parkinson's https://www.sportparkinsons.com/ Ryan Reynolds Hallucinations video https://www.moretoparkinsons.com/ Parkinson’s UK Helpline 0808 800 0303 | |||
| Goodnight, G’day | 07 avr. 2025 | 01:12:39 | |
Sleep problems can be a major issue when you have Parkinson’s. This week we talk to Jane Alty a professor of neurology at The University of Tasmania, Australia. She’s an expert in Parkinson’s sleep disorders. Her goal is to transform the brain health of adults globally - through research to detect the critical earliest stages of degenerative brain disorders. She also reveals whether she thinks AI will solve the Parkinson’s conundrum. Also this week.. The boys are full of the joys of spring, Kuhan nearly gets run over, Dave does a rap And Hamming it up…. How a piece of Donald Trump ended up in a sandwich! | |||
| STEM-ing Parkinson's | 23 mars 2025 | 01:04:05 | |
In this episode we head to Scotland and the Centre for Regenerative Medicine, University of Edinburgh. We chat with Professor Tilo Kunath one of the world’s leading experts in stem cell research. The hope is that one day, implanted cells can reverse Parkinson’s. Just how close are we to that elusive cure? What’s happened to the people who’ve been given stem cells? How freezing cockroaches in his mum’s fridge kicked off his scientific career… Getting Involved in Research https://www.parkinsons.org.uk/research/get-involved-research Deep Brain Stimulation https://www.parkinsons.org.uk/information-and-support/deep-brain-stimulation Dave’s new shoes https://www.nike.com/gb/easyon Amazing Things Ozzie Osbourne / Black Sabbath mega gig Ukulele playing Peter Aloha to Island living Lisa on Insta | |||
| The X & Y Factor | 09 mars 2025 | 00:47:36 | |
In this episode, Dave and Kuhan explore the differences between men and women when it comes to Parkinson’s. We hear from Clare Bale (associate director of research at Parkinson’s UK), Dr Clare Lehman (a General Practitioner who was diagnosed aged 37) and Jo Tosh (a retired nurse and star of the award winning DBS and Me series). Together we discuss the unique challenges that women face with Parkinson's including getting diagnosed, the impact of hormonal changes and medication-related dyskinesia. We also have a special announcement about our new partnership with Parkinson's UK. People do amazing things: The Parkinson’s raver https://www.bbc.co.uk/news/articles/cp3j988jkwno Judo for Parkinson's https://www.bbc.co.uk/news/articles/czepkeexw4xo Walk for Parkinson's 2025 is now open for sign ups! https://events.parkinsons.org.uk/event/walk-parkinsons/home A letter to my newly diagnosed Parkinson’s self www.2parkiesinapod.com | |||
| Thank You | 09 févr. 2025 | 00:58:18 | |
We’ve reached a milestone on the podcast, our 40th episode, so we thought we’d celebrate with you the listeners. We dip into the mail bag and share some of your Parkinson’s stories. Plus Dave walks into a tree, Kuhan reveals who inspired him to stay out until one in the morning dancing and drinking tequila and hear about a real life STAR of the community - a young woman who travelled half way around the world to share her experiences of the condition. Brisk walking tunes 120 Beats Per minute Dave Clark Independent article AMAZING THINGS Springsteen raises $ for Parkinson’s Why 2 parkies in a pod loves Leah Forster | |||
| Inside Parkinson's UK | 18 janv. 2025 | 01:03:18 | |
We take a trip to Parkinson’s UK’s new office, learn about their recent brand refresh and talk to the boss Caroline Rassell. She gives us the low down on all things Parkinson’s UK, shares her plans for the year ahead and reveals how Parkinson’s has got more personal for her recently. Parkinson UK helpline on 0808 800 0303 https://www.parkinsons.org.uk/ https://www.parkinsons.org.uk/get-involved https://techguide.parkinsons.org.uk/ People With Do Amazing Things Michael J Fox award https://www.bbc.co.uk/news/videos/c2dx6gd0k66o Kayaking scientist Guillaume Brachet … https://parkinsonseurope.org/2024/12/13/person-with-parkinsons-is-developing-new-drug- The Parky Blinders - Boxercise classes | |||
| What Parkinson’s Feels Like | 29 déc. 2024 | 00:59:22 | |
In this festive episode we talk to illustrator, mime artist and educator Barbara Salsberg Mathews @SalsbergMathews She’s the perfect person to put you in a great mood for 2025. Barbara has created and illustrated an amazing book about What Parkinson’s Feels Like' with contributions from the Parkinson’s community around the globe. What Parkinson's Feels Like (free ebook) What Parkinson's Feels Like (Amazon) Doing Amazing things .. The story of one man and his dog Michael J. Fox CNN Heroes Legacy Award Larry Gifford honored with King Charles III Coronation Medal — PD Avengers | |||
| The Woman Who Can Smell Parkinson’s | 02 déc. 2024 | 00:43:40 | |
Meet the amazing Joy Milne who has the nose to diagnose Parkinson’s. She first noticed the smell of Parkinson's on her husband Les. Years later a chance encounter made her realise that she could smell Parkinson’s on other people too. Find out how her superpowers have changed the face of diagnosis, how scientists are using this amazing discovery and what Parkinson’s smells like. Plus joy tells us the famous t shirt story about how the nose really did diagnose… The Woman who can smell Parkinson’s BBC Documentary Audrey’s 2025 Calendar: Dawn Diaries from Orford Quay John Stapleton Good Morning Britain www,2parkiesinapod.com | |||
| Living Well with Parkinson's: Live with Bas Bloem | 20 oct. 2024 | 01:16:50 | |
In this special live video episode Dave and Kuhan chat to one of the world’s leading Parkinson’s experts, Bas Bloem, about living well with the condition. We talk about everything from exercise to cannabis, dystonia to diet and how some people get “chemical creative” when using Parkinson’s medication. Plus the audience tell us what activities make them feel like they don’t have Parkinson’s.
This podcast was recorded live in front of a large audience at Parkinson UK’s Parcon conference at the Royal Armouries Museum in Leeds. We hope you enjoy! | |||
| A Walk in the Park | 04 oct. 2024 | 00:41:48 | |
For the second year running Dave and Kuhan join a Walk for Parkinson's at London's Battersea Park, hosted by Parkinson's UK. Along the way they hear from Geoff, Ruth, Matt and his lovely family about diagnosis, the importance of exercise and tips for living well with Parkinson's. They also bump into volunteer steward Tara who tells them about her promising work in gene therapy. Dave has his annual neurologist appointment, tells us about his new Parkinson's pants (!) and rummaging around TK Maxx. Kuhan shares his secret for managing dystonia pain, explains his chemical rollercoaster and comes up with a new jingle for the podcast! Show links www.2parkiesinapod.com hello@2parkiesinapod.com @DaveClarkTV @morethanatremor (Kuhan) | |||
| Can singing help my Parkinson’s ? | 16 sept. 2024 | 00:56:40 | |
The boys are back after a summer break. Find out what happened when Kuhan went “Med free” for the first time in 11 years as he contemplates major brain surgery. Dave talks about the challenges of a long haul flight to Vietnam, getting caught in a typhoon and whether you should celebrate your birthday! This week the 2 Parkie’s are joined by Nicola Wydenbach, a classically trained and experienced vocal coach. In 2014, she started working with people living with Parkinson's using singing as tool to help address some of the symptoms. Clinical studies have shown that regular singing can improve vocal volume/quality and breathing issues. Singing Links http://www.nicolawydenbach.com Online Sessions (Friday 12.30 twice a month) Kings College London session (Tuesday 11.30 twice a month) Trinity Laban session (Friday 10.30 twice a month) People With Parkinson’s Do Amazing Things Charlie’s at the Cairns Cup (golf) Peckham to Penzance for Parkinson’s Register for Parcon 2024 Organised by Parkinson's UK, Par-Con is the free 2-day in-person and online event for the Parkinson's community to hear from expert speakers, connect with others and learn more about living well with Parkinson's https://www.parkinsons.org.uk/research/par-con-2024 | |||
| Nordic Walking | 01 août 2024 | 00:39:10 | |
This week we speak to retired PE teacher, Christine Stanley. Christine has always loved being active and despite being diagnosed with cancer and then Parkinson's she hasn't lost her passion for life. She's recently become a Nordic walking instructor and credits it with giving her a sense of hope. Christine shares her tips on positivity and battling against the odds. Hosts @DaveClarkTV @morethanatremor (Kuhan) Guests @Stanner96187706 (Christine) Links Man uses sculpting as therapy for Parkinson’s | |||
| Strictly Parkinson's | 23 juin 2024 | 00:46:50 | |
This week the boys enter the world of dance! Not the opulent, spray tanned, sequin clad Strictly, but the life changing benefits of the dance for Parkie’s. We chat to Helen Gould who’s just been awarded an MBE for "charitable services to people with Parkinson’s"! Helen is the co-founder of LPM Dance, which has developed the transformational Neuro-Moves programme to help people with Parkinson’s. We also chat about how lessons from Bruce Springsteen can improve your Parkinson’s. Kuhan says goodbye to his Parkinson’s nurse and we talk about the mental impact of getting a blue badge.. Show Links Neuro-Moves Rossendale- Mondays 2pm-3.15pm Neuro-Moves Preston- Wednesday 2pm-3.15pm Neuro-Moves online- Thursday 12.15-13.15pm Booking link: https://lpmdance.com/classes Colin Wells - Walking for Parkinson’s Alex Echo - One Wave At A Time Eirwen - Sparky Samba | |||
| Finding My Voice | 21 mai 2024 | 00:59:37 | |
Are you struggling to get yourself heard because your voice is quiet, mumbled or you just cant get the words out? Are your meds getting stuck in your throat? Do you dribble or have a dry mouth? We may be able to help! This week the boys catch up with Tim Grover, consultant speech therapist in the movement disorders department at University College London. He tells us why people with Parkinson’s suffer speech problems, offer some tips on swallowing and explains the right time to seek specialist help. More information can be found on the Parkinson's UK website: Speech & Communication problems in Parkinson's Eating, Swallowing & Saliva control in Parkinson's We also reflect on the impact of our last episode about life expectancy with Parkinson’s. And doing AMAZING things this week .. A Parkie swimming the channel, the Premier League referee going public about his diagnosis, and a Parkie taking part in the 2024 Olympics. We hope you enjoy it… | |||
| Will I die from Parkinson's? | 28 avr. 2024 | 00:50:56 | |
This week we talk about the “The Elephant in the room“ - mortality rates amongst people with Parkinson’s. Our special guest is Professor Bas Bloem, one of the world’s leading Parkinson’s experts. Bas has written a paper on the subject of life expectancy with the condition. In recognition of his outstanding work in the field of Parkinson’s, the professor has recently been knighted in his native Netherlands. He’s one of the most engaging and eloquent speakers in the Parkie world. https://www.parkinsonnet.com/about-parkinsonnet/our-team/ Please don’t be scared to listen to this episode, we also talk about how to stay strong for long with the condition using exercise, diet and a positive mindset. Also in 'People with Parkinson's Do Amazing Things' we feature Sean Stillman's BBC radio documentary 'Parkinson's and Me' where he reflects on his condition and his life since his diagnosis. And Dave reflects on his day out at the Cure Parkinson's Cup https://www.instagram.com/babbelbloem/ | |||
| Parkinson's Fact or Fiction | 10 avr. 2024 | 00:50:05 | |
Joining Dave & Kuhan for a game of Fact or Fiction are Claire & Simon from Parkinson’s UK who help dispel some of the common myths about Parkinson’s. Show links Go to 2parkiesinapod.com or reach out to us on social media email us at hello@2parkiesinapod.com Parkinson’s UK Helpline 0808 800 0303 Parkinson’s UK Research Network Parkinson’s UK Become a Member Parkinson’s UK Information Resources Catalogue Parkinson’s UK World Parkinson’s Day Association of British Neurologists Workforce Survey Dept of Work & Pensions Benefits Data Portal Free Gym Membership: https://www.everyoneactive.com/promotion/parkinsons/ Where to send your Parky smells: https://www.medicaldetectiondogs.org.uk/neurological-diseases/ | |||
| They Made Songs from our Tremors | 15 mars 2024 | 00:43:05 | |
In this episode Kuhan gets his tremor wired for sound, taking part in a ground breaking research study at University College London. The team created 5 unique songs from the tremors of 5 unique people with Parkinson’s. The album ‘Tremors vs Tremors’ is available to listen to on Spotify, Apple Music & Amazon… there’s even a limited edition vinyl record. All royalities are being donated to Parkinson’s UK. We’re joined by the man behind the project Dr Christian Lambert and two of the other study participants, Clare and Stephanie. Tremors vs Tremors Listen on Spotify https://open.spotify.com/album/5Q514xQ7lfQPT2s6GpT5jm?si=z-OMxr9IRYaSzWoIVrdQHA Listen on Apple https://music.apple.com/us/album/tremors-vs-tremors-ep/1733686264 Listen on Amazon https://music.amazon.de/albums/B0CWS4RWBV?marketplaceId=A1PA6795UKMFR9&musicTerritory=DE&ref=dm_sh_RoHkhmu4xjztd3igINdcA2XcY UCL movement disorder https://www.ucl.ac.uk/ion/research/research-centres/movement-disorders-centre/research Parkinsons UK Research https://www.parkinsons.org.uk/research/get-involved-research Del Amitri Parkinson’s documentary https://www.bbc.co.uk/programmes/m001x49y Kuhan’ Blog they made a song from my tremor https://medium.com/@kuhan4/they-made-a-song-from-my-tremor-fefe7011d863 | |||
| Keeping up Appearances | 29 févr. 2024 | 00:44:20 | |
In this episode, we explore grooming and self-care. There’s an old saying.. No matter how you feel Get up Dress up Show up Never give up Shafaq @Dr_SF_Hussain a dentist with Parkinson’s shares her tips on mouth and tooth care Anne Marie Booth @annieconmonkey talks ditching killer heels, Dr Martyn’s, hair and nail care. Joe Gregory @JoeGregory100 tells us about slip on brogues and picking up a fashion bargain. Plus doing amazing this week… Richard Dunning, The shakey photographer @Richardpud1977 The cardigan wearing guitar playing Andrew Wright from Nottingham… @apwright @Peacefultaino 56 year old Puerto Rican man with Parkinson’s pulling off some killer dance moves.. Stylish reading glasses at reasonable prices … https://www.izipizi.com/ww_en Comfortable, stylish gym, leisure clothing (pricey, but lovely) https://vuoriclothing.co.uk | |||
| Raising Awareness | 12 févr. 2024 | 00:52:08 | |
This week the boys talk to Parkinson’s activist and fellow Podcaster Larry Gifford. His podcast ‘When Iife gives you Parkinson’s’ is an open and honest insight into the condition - no subject is out of bounds. Larry is also the founder of PD Avengers, a global alliance of people effected by the condition. In a wide ranging discussion we also talk about our D-Day (diagnosis) experiences, Larry's DBS journey and the impact Parkinson's has on relationships. People with Parkinson’s doing amazing things this week includes @Markxhogben - a man living off grid in the Canadian wilderness. | |||
| Tech Tips | 22 déc. 2023 | 00:42:50 | |
In this episode the boys discuss how tech can make life a little easier for people with Parkinson’s. From voice assistants, to messaging tips and how Siri can help you listen to your favourite podcast. We also discuss Parkinson’s ON, a new app which aims to track symptoms, help with medication timing and generally improve your Parky life.. Plus more people with Parkinson’s doing amazing things. The man who’s rediscovered his love for playing Led Zep in the spare bedroom and a woman who’s fixed her 10 year old dishwasher… Thanks to Charlie Appleyard @CA_Annapurna Helga MacFarlane @HMellMac Kate The Parkinson Magazine (Kuhan's article) Download the Parkinson's ON app for free on your iPhone or Android If you're enjoying the podcast please rate, review and subscribe | |||
| Discussing Dementia | 03 déc. 2023 | 00:50:30 | |
In this episode we speak to Professor Rimona Weil from University College London. Rimona is one of the world’s leading experts in Parkinson’s dementia. It’s not as depressing as you might think! She talks about ground breaking research which has discovered a link between vision and dementia, tells us who’s most at risk and whether it’s possible to prevent it! Plus how using pictures of cats and dogs can help to understand how cognition is affected in Parkinson’s. We also talk about people’s reluctance to talk about Parkinson’s dementia… If you want to get involved with the professor’s latest research project, which will involve at least 5 visits to London, brain scans and blood tests, you can email her: r.weil@ucl.ac.uk https://www.parkinsons.org.uk/information-and-support/thinking-and-memory-changes https://www.parkinsons.org.uk/research/research-blog/ask-expert/its-time-talk-about-parkinsons-dementia | |||
| The Top 10 Parkinson’s Symptoms | 19 nov. 2023 | 00:42:11 | |
Parkinsons .. Top 10 worst symptoms In this episode @DaveClarkTV and @morethanatremor (Kuhan) discuss the most troublesome Parkinson’s symptoms. Parkinson's Europe surveyed nearly a thousand Parkie’s with fascinating results. So what’s the number one worst symptom ? Shaking? Speech problems? Low mood? Have a listen and find out what tops the chart…. A huge THANKYOU to @kimrobsonuk for the chart. voice over and contributors Michèle and Katy.. | |||
| Walking for Parkinson's | 09 oct. 2023 | 00:14:18 | |
In this special bonus edition Kuhan and Dave join 300 people Walking For Parkinson’s at London's Battersea Park. Parkinson’s UK host a series of fundraising walks around the UK. Everyone walking has their own Parkie story to tell, the boys find out about a few of them… https://www.facebook.com/2parkiesinapod https://www.instagram.com/2parkiesinpod | |||