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In this debut episode of This is PNH, hosts Amy and Keith are joined by patient Jessi Hackney and Dr. Daniel Winokur to break down Paroxysmal Nocturnal Hemoglobinuria (PNH), a rare blood disease where the immune system mistakenly attacks its own red blood cells. Using a hotel analogy, they explore the science behind hemolysis, the frustrating road to diagnosis, and why rare diseases are so often missed. Jessi shares her personal journey from unexplained symptoms to a life-changing diagnosis, while Dr. Winokur explains the science behind the diagnosis and the outlook for patients diagnosed today.

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Transparency Statement: The This is PNH Podcast is produced by Believe Limited and made possible by Apellis Pharmaceuticals. 

The following Apellis Pharmaceuticals-supported program is intended for informational and educational purposes only and is not intended as medical advice. Please speak with your healthcare professional before making any medical decisions.