This is PNH – Détails, épisodes et analyse

Your podcast for understanding Paroxysmal Nocturnal Hemoglobinuria. This is PNH explores life with Paroxysmal Nocturnal Hemoglobinuria, a rare and often underrecognized blood disorder. Through conversations with patients, caregivers, and clinicians, each episode reveals what it takes to navigate this condition, often difficult to diagnose and unrecognized for years. The podcast pairs personal stories with expert perspectives on diagnosis and disease management to clarify the challenges and decisions shaping life with PNH, aiming to inform, connect, and empower those living with it, caring for someone who does, or seeking to understand it. This podcast is intended for informational and educational purposes only and is not intended as medical advice. Always talk to your healthcare provider about questions you may have about the disease, its symptoms, and treatment.