The Threads of Life – Détails, épisodes et analyse

#1 These days we are all largely aware of neurodiversity and roughly what it entails but, how would you describe or define it to someone? What exactly is it in average person speak and what's important about it? Who does it include? Going on to talk about abelism and inclusion and what an inclusive classroom should look like starting with presuming competence in all students.

#2 Guest N/A

#3 Time Stamps

0:00 Intro

2:05 Advocacy; Identity First Language and Disability.

5:20 The Neurodiversity model of Disability.

6:42 What neurodiversity is not.

8:18 Abelism, what is it?

10:53 We are ALL as human beings co-dependent.

13:49 Myths about non speaking autistic individuals.

17:35 Inclusion.

#4

• Intro and where I have learned about neurodiversity, abelism and inclusion from.
• Advocacy, Identity first language; Disability models.
• What is neurodiversity, abelism and inclusion + what they are not.
• Analogies to help us understand and relate to.
• Myths about non speaking autistic individuals
• Spelling 2 Communicate
• Quotes and references

#5 Calls to Action

pre-roll: webpage

mid-roll: thank you re podcast listens and please share

end-roll: newsletter sign-up

#6 References.

Quotes:

Neurodiversity - Judi Singer; Steve Silberman (author of Neurotribes book); Thomas Armstrong.

Inclusion - Miller & Katz 2002; Newton 2017; Cheryl Jorgensen.

#7 Social media

N/A

#8 Next Episode

What does Progress Look Like?

#1 Part A of my journey with my non speaking son Henry age 13 and S2C - Spelling to Communicate. Where it began and how I find out about it; understanding presuming competence and that it his body he cannot control well (including the eyes) in purposeful motor movement. Our first sessions and being introduced to a practitioner and the stencil alphabet boards.

#2 N/A

#3 Time Stamps:

0:00 Intro

1:50 Where it all began/how I found out about

2:56 Tit bit - put yourself out there, take the plunge, it's a journey

4:14 Meeting Emma Bond (and her son George)

5:00 Act for Autism - Tessa and Jane, Warwickshire (+ their book)

6:17 S2C - A personal story in a book called "Underestimated". So, what is it?

10:26 Elizabeth Vossellor (EV), Founder of S2C and evidence based methodology

12:13 Meeting EV and Anna Lechleiter of Palz Ireland, in London

13:30 Session 1 - not good

15:45 Hope and skepticism + Session 2

19:30 Disappointment

21:53 Re-start: Take 2

23:08 Parent Cohort

#4

• How I found out about S2C
• The Book called "Underestimated"
• The website and founder Elizabeth Vossellor
• Going into London for 5 sessions over 3 days
• Stepping away and returning

#5 See links below

#6 Calls to Action:

End-roll: website, social media, newsletter, podcasts

#7 N/A

#8 Next episode - tbc

#4

#1 My guests today are autistic, nonspeaking and adhd Henry's older siblings. An informal chat about their own experiences with their brother, understanding what autism is and coming to terms with how it impacts their brother and the whole family. As usual with the siblings they become mentors for the parents, just the most unconditionally accepting and loving humans who have none of the deep concerns of the parents and do not see the autism at all.

#2 Ben (20) and Abi (18) - Henry's siblings. Henry is 12.

#3

0:00 Intro

1:41 Introducing guests...Ben and Abi, the siblings!

2:17 Discovering autism in their sibling and how they felt

3:30 The play date with Jess and her younger children

4:45 How do they feel about autism now and would they change it?

8:25 has your sibling ever embarrassed you?

13:17 The wonderful, divergent, aware, understanding younger generations

15:10 Worry for their sibling

19:30 The uniqueness of their sibling and what they love about him

23:56 Noticing the parent strain

28:05 Hopes for their siblings future

#4

• Finding out your sibling is autistic
• Wishing your sibling wasn't autistic, or not wishing it
• Is life unfair and does your sibling embarrass you?
• Worry for your sibling
• Whats great about their personality and/or autism
• The strain on the parents
• The future for your autistic sibling

#5 N/A

#6 Calls to Action

Pre=roll: changes afoot and new name coming soon.

#7 N/A

#8 Next Episode: School options for your autistic child

#1 Me, parent of autistic nonspeaking adhd Henry age 12 about the enormous amount of admin, energy and frustration it takes to ensure your childs' education, health and care are in order, their needs being met and all the form filling, waiting, appointments, research, therapy this takes, that all goes son in the background. It feels though no-one is there for ht parent to acknowledge, believe and support just how it is to get through each day, beginning to end, and the next and the next, especially when a child is dysregulated and/or unhappy. Empathy for the autistic children and what they have to deal with and parting with some tips to cope that have been learned over the years, simply by being a parent.

#2 N/A

#3 0:00 Intro.

1:20 What goes in the background as a parent of an autistic child.

4:35 What parents/caregivers want to help us get through the day to us, for us and our child.

8:16 Empathy for how incredible autistic people actually are.

9:18 Paying attention to their environment and the sensory.

10:15 Tiny tips purely from parenting: transitions, language, information processing, voice control, sleeping, eating etc.

#4

• The admin required of parents of autistic children
• who is there for us to help observe, believe & support what we go through just getting our children through their day, every single day.
• the impacts of the sensory and the environment on our autistic children and how they struggle to control their bodies.
• empathy for autistic people and how utterly incredible and resilient and caring they are.
• Tips on getting through each day from transitions, to mealtimes, to sleep, to environments, to language, to processing information.

#5 N/A

#6 Calls to Action

Pre-roll: website price drop plus accessories offer

Mid-roll: where to find the podcast; changes coming soon, new business name

End roll: blogs

#7 N/A

#8 Next Episode: Do you sometimes feel manipulated and/or controlled by your child(ren)?

#1 A relaxed and fairly brief chat to my first guests Kay and her son Isaac who is autistic. We talk about Home Education, what led to Kay's decision to home educate her son, how Isaac feels about it, busting the many myths and how to go about it, finding help and support.

#2 Guest names: Kay and her 12 year old autistic son Isaac.

#3 0:00 Intro

1:05 How I met my guests and what we are going to discuss

03:40 Apology for the volume issues!

4:11 Kay experience vs Isaac's experience

6:40 Home education not homeschooling

7:22 How to start: de-registration & letter templates; help and support.

11:26 Busting those myths

17:54 Chatting to Isaac who is autistic and 12yrs old

21:40 Quality of Life

#4

• Why Home Educate
• Before and After
• How to start and where to fond help and support
• Myth busting
• Autistic Isaac tells us about his experience of home education

#5

The general SEN Facebook group is: Supporting SEN Parents/Carers Kent

https://www.facebook.com/groups/623533877705416

The home ed Facebook group is: Hearts and Minds 

https://www.facebook.com/groups/121747604569314

#6 Calls to Action:

Where and when to find podcast epodes + website and email reference.

#7 N/A

#8 Next Episode: transitions and helping get through the day to day

#1 Parenthood, for all of us, from the moment you fall pregnant and finish classes on how to actually have a baby, has no manual, you have to just figure it out, from teething all the way through school, puberty young adults the works. Having a neurodiverse/autistic/sen/disabled child adds a whole other layer of intensity and concern. As a SEN parent it is isolating, confidence sapping and so draining just simply trying to sift through, process and follow advice and systems you are forced into versus staying focused on the child, plus then having to prove their needs in order to get the help they deserve. Parents should not underestimate what they are going through nor assume they should indeed be coping and/or their child does not warrant the support they seek simply because it is not forthcoming or they are being told no.

#2 N/A

#3 Intro 0:00

#4

#5 Peter Vermeulen as guest on 'Uniquely Human' Podcast.

6 Calls to Action:

7# N/A

#8 Next Episode: My first guests! Kay & Isaac talk on Home Education.

#1 A roughly 30 minute episode discussing being nonverbal or nonspeaking and what Apraxia is. What it means to be nonverbal, why a child still might be ale to use actual words and say speech whilst still being termed nonverbal. What being nonverbal does not mean, motor control and the literal mind. Frustrations and how we help at home day to day on our journey with our fully competent, fascinating and wonderful autistic son.

#2 N/A

#3 0:00 Intro

The nonverbal caption T-shirt. Why?

Language is changing.

Nonverbal autism does not mean 1-4.

Motor control and Apraxia.

Talk as in has use of words, vocabulary and no speech impediment although still very literal.

Frustrations and how we have learned together, what helps.

The autistic mind is a wonderful, fascinating and superior thing to be embraced and respected.

#4

• why caption T-shirts?
• nonverbal vs nonspeaking vs Apraxia
• nonverbal does not mean 1-4
• motor control and literal minds
• how we help at home
• embrace and respect

#5 N/A

#6 Calls to Action

pre-roll: price drop on website (T-shirts)

mid-roll: blogs

end roll: available to give talks

#7 N/A

#8 Next Episode is no.12 and titled "The Plight of The Parent"

#1 A lighthearted episode to lift parents in particular's spirits after a long and no doubt tiring school summer holiday. Choosing humour over distress or anxiety or embarrassment and laughing not at our child but celebrating the joy of who he is and how genuinely unique, hilarious, sometimes downright weird some of the things he does and says are. They make us love him even more so here are some personal funnies. A reminder that there absolutely is so much joy in raising an autistic child, in the purest most astonishing form and to hold onto it in times of exhaustion and concern.

#2 N/A

#3 0:00 Intro

00:55 pre-roll: reminder what this podcast is about.

01:32 be a voice, not a whisper.

03:33 celebrating autism not laughing at a child.

05:19 parents do not want pity, second to not wanting their child or them judged.

06:33 mid roll: price drop and changes coming soon.

11:00 the funnies: echolalia; how was school today?; "stop your mouth"; the cactus and scissors; food & clothes tactics; welcome and now "say goodbye"; passport control echolalia; stealing chips.

27:15 our joys: looking into my soul; touching others; blanket; intuition; cuddles; giggles; riding his bike.

#4 summary:

• who I am and what podcast is for after August break
• seeing the funny side
• celebrating the autistic mind
• parents don't want pity
• personal funny stories around communication & the literal mind
• our joys and privilege in raising an autistic son
• rest

#5 N/A

#6 Calls to action:

pre roll - who I am and why podcast

mid roll - website and changes afoot

mid roll - price drop on tees

#7 N/A

# 8 not mentioned

#1 An honest and real episode talking as a parent about the broad areas in which autistic individuals struggle in varying and often very stressing ways ie anxiety, medication, self injurious behaviours. Looking at the advice on cognition, behaviour parents have been given/told to do from the top down to the more current learning from the bottom up, that is from autistic people themselves and the knowledge the their struggles are often moor based and not having full control of their bodies.

#2 N/A

#3

0:00 Intro

1:00 looking for and understanding the why to unwanted behaviours

1:17 classroom example

9:03 parent persecution

11:14 cognition, behaviour & motor control

14:02 anxiety

18:25 medications

25:00 SIB - self injurious behaviour

35:00 comfort and support

#4

• you are not a bad parent and nor is your child a bad one either.
• looking for and understanding the why to unwanted behaviours.
• parents being squeezed between advice/instruction from the top down and the newer learning from the actually autistic voices ie the bottom up.
• anxiety and witnessing, coping, surviving, supporting & medicating.
• medicating your autistic child
• SIB - self injurious behaviour and interpreting it, reacting to it, helping your child.
• reassurance, comfort and support for parents.

#5 Calls to Action

pre-roll: none

mid-roll: email me anytime, blog, newsletter and website reference

end-roll: tag line

#6 N/A

#7 N/A

#8 Communication Funnies - the joy of the autistic mind

#1 An episode at times emotional, at times funny, on what it takes to plan and go on holiday with autistic children. Feeling the strain as parents of the too long school summer holidays especially for autistic children. Why it is so hard, routines and regulation, not feeling guilty & remembering our own childhood memories of the family unit on holiday no matter where or what type. What exactly goes into preparing for, planning and actually going on holiday example re flying. Why queues can be a problem and learning to adjust an do what works for you, the main caregiver and your autistic child(ren). How others can help ease the strain.

#2 N/A

#3

0:00 Intro

3:55 childhood memories

8:35 and children deserve to be on holiday with their family

11:48 wider family holidays and getting help/respite

17:04 The family Unit

18:49 A feeling off to all parents

19:17 Do what works for you

21:52 routines and regulation

24:45 Queues and the literal mind

25:30 what actually got sinot planning and going on holiday with autistic children

32:18 How you/public can help

#4

• school summer holidays are too long, parents last a couple of weeks
• childhood memories no matter what type of holiday are always good
• autistic children deserve to be going on holiday too
• wider family holidays and getting help/respite
• doing what works for your family unit
• routines and regulation
• queues and the literal mind
• how others can help ease things

#5 Calls to Action

pre-roll: please share this podcast far and wide

mid-roll: none (hint of podcast guests and siblings topic); blog reference & website

end-roll: what to expect re Aug

#6 N/A

#7 N/A

#8 Are you a bad parent if your autistic child is anxious, harms, doesn't sleep...?