The Spoonies Community – Détails, épisodes et analyse

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The Spoonies Community

Eline Duk

Forme & Santé

Fréquence : 1 épisode/12j. Total Éps: 13

Chronic pain & illness is a noisy & lonely journey. One full of unanswered questions. The Spoonies Community with Eline Duk is a podcast for people who want practical tools, honest stories and a gentle but effective way to reclaim their life. Rooted in Eline’s own lived experience with chronic illness, and co-hosted by her husband Marcus Pask, the show is on the lookout for people who are living great, meaningful lives despite health challenges. Some episodes are honest, personal conversations where Eline and Marcus share how they manage living with chronic illness and the somatic, trauma-informed and other healing methods/practices that help. Other episodes are interviews with clinicians, researchers or other Spoonies who have navigated big transformations themselves to find purpose and joy.

Whether you live with CRPS, FND, EDS, POTS, migraine, any other (in)visible condition or even without a diagnosis, you’ll find candid conversations about identity, grief and practical steps that actually move the needle.

Show notes include episode transcripts, resources and links to free tools from The Spoonies Community. Subscribe to the podcast and join other Spoonies reclaiming energy, safety and agency over their own lives.

Website: www.thespooniescommunity.com
IG: www.instagram.com/thespooniescommunity

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🇬🇧 Grande Bretagne - alternativeHealth
15/07/2026
#57
🇬🇧 Grande Bretagne - alternativeHealth
14/01/2026
#81

Spotify

Aucun classement récent disponible

Liens partagés entre épisodes et podcasts

Liens présents dans les descriptions d'épisodes et autres podcasts les utilisant également.

https://notyouraveragepsychic.com
2 partages
http://www.coolcrutches.com
1 partage
http://www.thespooniescommunity.com
1 partage

https://www.instagram.com/thespooniescommunity
2 partages
https://www.instagram.com/manoukdebijl
2 partages

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Score global : 63%

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2 ~ Eline's full story with chronic pain & illness (CRPS & FND). Part 2

Épisode 2

mardi 13 janvier 2026 • Durée 50:50

The podcast episode continues on where Eline & Marcus left off: right at the second accident. Eline & Marcus delve into the experiences of living with chronic illness, reflecting on past challenges, navigating through hospitalization, new diagnosis and treatment, the impact on daily life, challenges with recovery, taking control of the situation, and finally the way into a new direction towards acceptance.

The conversation provides insights into the complexities and resilience required to navigate life with chronic illness. Eline & Marcus cover the challenges of balancing work and caregiving, the journey of recovery and rehabilitation, the theme of acceptance and a new direction, and the pursuit of personal growth in the face of hardship.

Takeaways

Living with chronic illness
Navigating life with chronic illness
Supportive work environment for the caregiver
Challenges of caregiving
New directions in the face of hardship

Chapters

00:00 Introduction to Chronic Illness
06:13 Second Accident and Hospitalization
13:02 Impact on Daily Life
21:27 Taking Control of the Situation
28:32 Recovery and Rehabilitation
42:22 Seeking Personal Growth

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1 ~ Eline's full story with chronic pain & illness (CRPS & FND). Part 1

Saison 1 · Épisode 1

mercredi 7 janvier 2026 • Durée 45:46

The podcast episode delves into the personal journey of Eline, living with chronic pain and illness, covering the challenges, setbacks, and moments of progress. It explores the impact of the accident, hospitalization, surgery, recovery, and the pursuit of a diagnosis. The narrative also touches on the emotional and physical toll of the journey, as well as the resilience and hope for a better future.

Takeaways

Living with chronic pain and illness
Navigating the challenges of chronic pain and recovery

Chapters

00:00 Introduction to Chronic Illness Journey
06:12 Hospitalization and Surgery
13:17 Rehabilitation and Progress
19:08 Engagement and New Beginnings
39:26 Return to Rehabilitation and Massive Setback

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13 ~ How to talk about your chronic illness without letting the story define you

Saison 1 · Épisode 13

vendredi 29 mai 2026 • Durée 40:55

This week on The Spoonies Community podcast, Marcus is back and we recorded the day after our 9-year anniversary, which felt like the right energy for a conversation this honest.

We get into something that doesn't get talked about nearly enough in the chronic illness space: how do you actually tell your story to people? Not the watered-down version you give a taxi driver. Not the full version that leaves your nervous system wrecked for days. But the version that's true to your chronic pain experience, that doesn't drag you back into the worst of it every time, and that doesn't accidentally become the thing keeping you stuck.

Because there's a really thin line between sharing your story as part of processing, and becoming the story. And once you cross it without realising, it starts working against your healing.

We talk about why words like "always" and "never" are ones I genuinely never use with my clients. We talk about what happens in your brain when you downplay your chronic illness to make it easier for everyone else. And we get into something I feel strongly about - chronic illness identity. Who are you beyond your diagnosis, your symptoms, your roles? This is something we work on actively inside the Spoonies Community, and it's one of the most quietly powerful shifts a spoonie can make.

This episode also touches on the community doors opening 1–5 June, including the free webinar series "The Missing Piece of Your Healing Journey That Nobody Talks About."

If you've ever felt exhausted by having to explain your chronic pain or illness to people or feel like your condition has quietly taken over how you see yourself — this one is for you.

Takeaways

Communication Challenges
Choosing the Right Words
Cultural differences in communication

12 ~ Why me? Chronic illness & the fear of "this is forever". Rachelle & Saskia (NYAP) explain

lundi 18 mai 2026 • Durée 56:42

In this episode, I’m joined by Rachelle and Saskia from Not Your Average Psychic to talk about chronic illness, chronic pain, and the question so many of us have asked in the middle of a flare, a diagnosis, or yet another hospital visit: why me?

We talk about the spiritual meaning of pain, and what changes when you stop seeing symptoms as proof that something is “wrong with you” and start seeing them as information. Not in a bypass-y way. Not in a “just think positive” way. But in a grounded way that still makes space for how exhausting it is when you’ve tried everything, you’re scared of change, and part of you is convinced this is just your life now.

We also talk about the fear and resistance that can come up when healing asks you to live differently, and why the goal is not to flip your whole life upside down overnight. Sometimes the most important thing is to lower the threshold and make one new choice your body can actually handle.

We talk about:

why “why me?” is such a common chronic illness thought loop
the spiritual meaning of pain & pain as a catalyst for change
how the labels you use (like “chronic”) can make you feel more trapped
how to work with fear and resistance when you’re already exhausted
lowering the threshold: making change doable in real life
intuition, soul connection & listening to your body’s messages
medication, hospitals & the fine line between support and giving away your power
why healing needs a tailor-made approach, not “one-size-fits-all”

This episode is for people living with chronic illness or chronic pain who feel stuck in “this is forever,” and who want a perspective that includes the body, emotions, nervous system, and intuition, without pretending it’s easy.

Chapters
00:00 Introduction
02:00 Why pain exists (duality, growth & clarity)
06:20 Pain as a catalyst, not a dead end
09:40 The “hospital loop” & what to do when you feel stuck
14:40 Change, alignment & why healing asks for new choices
17:10 Fear of change when you’re barely holding life together21:00 Lower the threshold: making change manageable23:10 Do different symptoms have different meanings?29:10 Eline’s gut pain story & emotions in the body35:00 Sensitivity, insecurity & being “different from the herd”40:20 Pain as soul communication & zooming out of hyperfixation45:10 Medication, hospitals & keeping your power in the process53:30 What makes illness “chronic” & softening the label60:00 Where to find Not Your Average Psychic

3 ~ Eline's full story with chronic pain & illness (CRPS & FND). Part 3 (Final)

Épisode 3

mercredi 14 janvier 2026 • Durée 41:34

Eline & Marcus delve into the journey of chronic illness, exploring emotional healing, somatic work, grief, joy, independence, alternative healing, identity, community support, professional growth, and spiritual awakening. It highlights the transformative power of somatic work and the journey to independence, offering hope and inspiration to those facing similar challenges (speaking from Eline's own experience after 2 accidents)

Takeaways

Somatic work transformation
Journey to independence

Chapters

00:00 Introduction to Chronic Illness Journey
05:46 Emotional Healing and Acceptance
12:02 Seeking Independence and Space
17:52 Pilates and Identity Journey
23:58 Transition to Spain and Professional Growth

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11 ~ Miscarriage grief: when your body is still pregnant but the baby is gone

Saison 1 · Épisode 11

lundi 4 mai 2026 • Durée 48:46

In this episode, Marcus and I share our miscarriage story. Trigger warning: miscarriage / pregnancy loss.

We also talk about the years before that. The journey into whether we even wanted children, and how chronic pain, disability, trauma, and caregiving changes the whole conversation around parenthood.

Then we share what about our pregnancy loss and what the miscarriage actually looked like for us. The scan, the limbo. Still feeling nauseous and exhausted while knowing the pregnancy isn’t viable. Then the waiting & the bleeding. The hospital. The D&C. And the grief that hit weeks later, when the world had already moved on.

We talk about:

deciding whether to have children when you live with chronic illness / chronic pain
miscarriage and early pregnancy loss
the limbo after miscarriage (still having pregnancy symptoms)
the physical reality: bleeding, clots, hospital care and D&C
anxiety, panic and using nervous system tools in medical settings
delayed grief, loneliness, and unhelpful comments
how partners can process pregnancy loss differently
fear, closure, and trying again after miscarriage

This episode is for anyone who’s been through miscarriage or pregnancy loss, anyone trying to conceive after loss, and anyone navigating the question of having children while living with chronic illness.

Chapters
00:00 Introduction and Trigger Warning
05:15 Moving to Ibiza and Changing Perspectives
11:40 Concerns and Fears During Pregnancy
19:33 The Limbo Period and Emotional Struggle
26:12 The Physical Experience
36:45 Recovery and Reflection
42:25 Processing Grief and Coping Mechanisms
47:40 Impact on Mental and Emotional Health

If this resonates, I’d love for you to leave a review, share it with someone who needs it, or send me a DM on Instagram.

10 ~ Manouk de Bijl’s ulcerative colitis healing story: from symptoms to remission

Épisode 10

lundi 20 avril 2026 • Durée 57:53

In this episode, I’m joined by Manouk de Bijl to talk about her ulcerative colitis healing story, from her first symptoms as a teenager to years of hospital visits, medication, pain, and being told it would be chronic.

We talk about what it’s like to live with an invisible gut disease as a young woman, including the shame and fear that comes with symptoms you do not exactly bring up at a dinner table.

Manouk shares how stress, survival mode, and trying to keep up with a demanding student life made everything worse, and why she reached a point where she knew she had to look beyond the path she was on.

This is not a neat, polished “just do this and you’ll be fine” episode. It’s an honest conversation about what healing actually asked of her. Mindset, belief, nervous system regulation, food, emotional processing, and learning to trust her gut again, literally and emotionally.

We also talk about remission, intuition, and the grief of realising the medical system never asked her how she did it, even when her test results showed no evidence of disease.

If you’re living with ulcerative colitis, Crohn’s, chronic illness, gut issues, inflammation, or you’re stuck in the cycle of pushing through and crashing, I think this episode will land.

Please find more of Manouk on:
www.manoukdebijl.com

or https://www.instagram.com/manoukdebijl/

If this episode resonates, please leave a comment and I will get back to you asap!

9 ~ Sex, intimacy & chronic illness: the conversation no one is having

Saison 1 · Épisode 9

lundi 6 avril 2026 • Durée 41:44

In this episode, Marcus and I are talking about sex, intimacy, chronic pain and chronic illness. We’re having an honest conversation about how disability, pain, fatigue and body changes can affect intimacy, relationships and self-confidence.

When you live with chronic illness or disability, intimacy can feel complicated. It can bring up insecurity, awkwardness, grief, fear, body image struggles and a lot of questions that people often don’t talk about out loud.

In this episode, we share our own experience of navigating intimacy after my accidents, while living with CRPS, FND, chronic pain, spasms and fatigue. We talk about what changed for us, what felt hard, what helped, and why communication became such a big part of finding each other again, not just as patient and carer, but as partners.

We talk about:

sex and intimacy with chronic illness
how chronic pain and disability can affect relationships
the impact of body changes on confidence and self-image
how to talk to your partner about intimacy
why intimacy is about more than sex
rebuilding trust, safety and connection in a relationship

This episode is for people living with chronic illness, chronic pain or disability, and for partners who want to better understand how to navigate intimacy together.

Chapters

00:00 Introduction to the Topic
05:30 Impact on Romanticism and Spontaneity
11:18 Balancing Caregiver and Partner Roles
17:00 Laughter and Lightheartedness
22:24 Diverse Forms of Intimacy
35:48 Exploring Different Forms of Intimacy

If this episode resonates, I’d love for you to leave a review, share it with someone who needs it, or send me a message on Instagram with your thoughts or questions. And if you’d like us to record a part 2 on this topic, let me know!

8 ~ How your body stores emotions & creates chronic pain (somatic work explained with Marcus)

Saison 1 · Épisode 8

lundi 23 mars 2026 • Durée 49:24

Eline & Marcus sit down for an honest (and sometimes hilarious) conversation about somatic work for chronic pain and illness — and why it's not as "woo-woo" as Marcus originally thought.

If you've ever wondered why chronic pain won't go away even when doctors say there's nothing wrong, or how your body stores emotions and trauma... this episode is for you.

We talk about:

How your brain interprets pain signals (and why two people with the same injury can feel completely different levels of pain)
Why emotions are your body's biggest "danger signal" — and what happens when you ignore them for too long
The difference between somatic work and therapy (and why bodywork matters just as much as talk therapy)
What actually happens during a personalized somatic retreat in Ibiza (spoiler: it's not all breathwork and meditation — there's also really good food)
How Marcus went from thinking psychologists were "voodoo" to understanding energy work, nervous system regulation, and why Eline sometimes shakes her hands like she's flicking water off them
Why your lower back pain might not be about your posture at all
How to support a partner doing deep healing work (even if you're not doing it yourself)

This conversation gets real about burnout, chronic illness, the bucket of emotions we all carry, and why your body is way smarter than you think.

If you've been stuck in chronic pain, fatigue, or illness for years and nothing's worked... this might be the missing piece.

Want to learn more about somatic work or book a free 30-minute call about the retreat? DM me on Instagram @thespooniescommunity — I'd love to chat.

Chapters:

00:00 Introduction: Marcus learns what somatic work actually is

08:04 The brain's response to pain and emotions
12:02 Emotions as energy in motion
13:42 Emotional release and chronic conditions19:03 Tapping into the wisdom of the body24:59 Integration and long-term impact of somatic work33:02 What happens during a personalized somatic retreat38:33 Connection with the universe (and why Marcus was skeptical)

7 ~ Losing autonomy and independence over your own body & life

Saison 1 · Épisode 7

lundi 9 mars 2026 • Durée 41:36

Marcus & Eline delve into the challenges of navigating the loss of autonomy over your own body & life and the dynamics of care and independence within a relationship. It explores the impact on both Marcus and Eline and the adjustments made to manage these challenges effectively.

The conversation delves into the dynamics of prioritizing a partner's needs and balancing responsibilities in a relationship. It also explores the challenges and emotional aspects of caring for a partner's physical needs, as well as the impact of financial and emotional support on the relationship.

Takeaways

Autonomy and authority over one's body and finances can be challenging to navigate in a relationship - especially when there's physical needs involved
The impact of caregiving on the carer's autonomy and well-being is significant. Prioritizing partner's needs
Balancing responsibilities

Chapters

00:00 Navigating Autonomy and Authority
08:42 Recognizing the Need for Change
19:38 Supporting the Caregiver
25:23 Prioritizing Partner's Needs
33:10 Challenges of Caregiving
44:28 Financial and Emotional Struggles

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The Spoonies Community – Détails, épisodes et analyse

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