The Pyjama Interviews – Détails, épisodes et analyse

 Having been diagnosed with Addison’s Disease, a rare Autoimmune Disease, Anessa Powell has dedicated her career to raising awareness and advocating for workplace inclusion through her company, AllAbility Recruiting.

In this episode, we dive deep into discussions around the experience of getting a diagnosis and medical gaslighting that so many patients experience. Plus we have an honest conversation about parenting while living with chronic illness.

Anessa also shares her tips for applying for jobs, disclosure, and knowing what accommodations you need in the workplace. 

Since being diagnosed in 2013 with Addison’s Disease (Primary Adrenal Insufficiency), a rare Autoimmune Disease, Anessa Powell has been dedicated to raising awareness that disabilities come in many forms.

In 2019, she began her work at the state and national levels as a patient advocate, speaking out for voices that have been traditionally overlooked in disability employment. As the pandemic changed lives in so many ways and employers began to recognize jobs can be done from home (and done well!), Anessa along with her husband, Bill, created AllAbility Recruiting where they strive to Leave No Ability Behind through disability employment, training, and consulting.

LinkedIN: Anessa Powell

Instagram: @allabilityrecruiting 

Website: All Ability Recruiting

A pioneer in the Chronic Illness space, Michelle Irving is the founder of Career and Chronic Illness International. Michelle has over 15 years experience in Mentoring and Executive Coaching for people navigating their career while living with chronic illness. Career and Chronic Illness programs include extensive, specialised content for authentic conversations about your experience and needs, developing excellent professional boundaries, managing your emotional, mental and physical capacities as well as progressing in your career of choice. Michelle's mentoring and training programs are suitable for people currently working and those returning to work after extended leave.

You can have a career chat Michelle by booking at  at https://www.careerandchronicillness.com/chat

Connect with Michelle

LinkedIN: Michelle Irving

Website: CareerandChronicIllness.com

Instagram: @michelleirvingofficial

Book a Call: https://www.careerandchronicillness.com/chat

 Music by Avy Summerlind

Hosted on Acast. See acast.com/privacy for more information.

Endometriosis affects roughly 10% of reproductive age women and girls globally, and on this episode of The Pyjama Interviews pod, I’m joined by Antara Mascarenhas discussing how she has navigated this diagnosis that so many women experience in the workplace.

She shares her experience and advice on the:

1. The Diagnostic Odyssey, 
2. How to talk with your boss about productivity and strategically contributing while working from home.
3. Leading from the experience of chronic illness. 

It’s a beautiful conversation to share with you.

Antara Mascarenhas is an Executive in the energy and climate sectors and is currently a General Manager at Australian Energy Market Operator. She specialises in building and leading teams to deliver strategic outcomes and implementing national energy reforms. She has a Masters in Political Science at the University of Cambridge, England and undergraduate degrees from the University of Melbourne and Victoria University of Wellington.

Antara is an ambassador of Endometriosis Australia and a Board Director of Cambridge Australia Scholarships. Antara is also passionate about inclusion in sport and runs a tennis coaching program for children from diverse cultural backgrounds in inner Melbourne. 

LinkedIN: Antaramascarenhas

A pioneer in the Chronic Illness space, Michelle Irving is the founder of Career and Chronic Illness International. Michelle has over 15 years experience in Mentoring and Executive Coaching for people navigating their career while living with chronic illness. Career and Chronic Illness programs include extensive, specialised content for authentic conversations about your experience and needs, developing excellent professional boundaries, managing your emotional, mental and physical capacities as well as progressing in your career of choice. Michelle's mentoring and training programs are suitable for people currently working and those returning to work after extended leave.

You can have a career chat Michelle by booking at  at https://www.careerandchronicillness.com/chat

LinkedIN: Michelle Irving

Website: CareerandChronicIllness.com

Instagram: @michelleirvingofficial

Book a Call: https://www.careerandchronicillness.com/chat

 Music by Avy Summerlind

avysummerlind.com/ 

Hosted on Acast. See acast.com/privacy for more information.

Chronic Illness Discernment is a crucial skill when it comes to the Wellness Industry. In this episode Nitika Chopra and Michelle talk about the way the Wellness Industry has in many ways, been our default home of information and resources.⁠ But how it hasn't served our community very well. Learn:

• How to self-love really means when living with chronic illness.
• How to protect your mental health from toxic positivity
• Spoonie Entrepreneurship - the why, when and how.
• A big, bold and practical definition of beauty. 

About Nitika Chopra

Nitika Chopra is the founder of Chronicon, a media and events company, dedicated to elevating the lives of those living with a chronic illness. Nitika was diagnosed with psoriasis at the age of 10 and psoriatic arthritis at the age of 19. She lived over 17 years of her life being defined by her conditions. Nitika now focusses on creating amazing chronic illness events, media and community.

About Michelle Irving 

A pioneer in the Chronic Illness space, Michelle Irving is the Queen of the Underworld. She mentors women around the world, teaching them how to create a life filled with love, meaningful work and deep personal power. She believes we can all have a positive relationship with ourselves even in the midst of experiencing illness. You can chat Michelle by booking at michelleirving.com.au/chat

Connect with Nitika

Instagram: @nitikachopra

Website: The Chronicon Community

Connect with Michelle

Instagram: @michelleirvingofficial

Website: michelleirving.com.au

Book your Chat with Michelle

Queen of the Underworld Program

Music by Avy Summerlind

avysummerlind.com/ 

Hosted on Acast. See acast.com/privacy for more information.

Why is it so hard is it to get a diagnosis of Endometriosis?  In this episode artist Danica Gim shares

• Her experience with endo throughout her teenage years and how her boyfriend called it first.
• What it's like managing your career while living with endo, including as a flight attendant. 
• How art become a way to transform her childhood experiences with religion. 
• How to be a successful artist while also living with chronic illness

About Danica

Danique (Danica Gim) is a super talented Artist from the Netherlands. When she is not writing or making art, Danica is traveling the globe as a flight attendant and creating awareness of endometriosis on her Instagram to help other women avoid the struggles she faced trying to get a diagnosis.

About Michelle Irving 

A pioneer in the Chronic Illness space, Michelle Irving is the Queen of the Underworld. She mentors women around the world, teaching them how to create a life filled with love, meaningful work and deep personal power. She believes we can all have a positive relationship with ourselves even in the midst of experiencing illness. You can chat Michelle by booking at michelleirving.com.au/chat.

Connect with Danica

Instagram: @danica.gim

Website: Danica Gim

Connect with Michelle

Instagram: @michelleirvingofficial

Website: michelleirving.com.au

Book your Chat with Michelle

Hosted on Acast. See acast.com/privacy for more information.

What do you do when you are a dancer diagnosed EDS (Ehlers-Danlos syndrome)? In this episode Eva Minkoff shares how she is: 

• Preparing for a life filled with uncertainty and finding a way through the fears.
• Making the bridges between us as patients and doctors so the relationships are healthy, honest and productive.
•  The unusual journey of being a patient advocate via medicine school.

About Eva 

Eva Minkoff is the Senior Director of Community and Education for the charitable organization, Good Days. She's the presenter of Ted Talk titled “5 minutes to fix our broken healthcare system” and host of the [Human]Care podcast. As a chronic illness warrior herself, with EDS and Fibromyalgia, Eva has spent much of the past decade building supportive platforms for the chronic illness and disability communities.

About Michelle Irving 

A pioneer in the Chronic Illness space, Michelle Irving is the Queen of the Underworld. She mentors women around the world, teaching them how to create a life filled with love, meaningful work and deep personal power. She believes we can all have a positive relationship with ourselves even in the midst of experiencing illness. You can chat Michelle by booking at michelleirving.com.au/chat.

Connect with Eva

Podcast: [Human]care

Ted Talk:  5 minutes to fix our broken healthcare system

Connect with Michelle

Instagram: @michelleirvingofficial

Website: michelleirving.com.au

Book your Chat with Michelle

Queen of the Underworld Program

Music by Avy Summerlind

avysummerlind.com/ 

Hosted on Acast. See acast.com/privacy for more information.

Why do women remain undiagnosed and treated like it's all in our heads? In this episode the amazing Elinor Cleghorn (author of Unwell Women) shares with us both her personal experience of living with lupus, and also her professional analysis of the long history of medical misogyny.  You'll learn about:

1. Why women's pain and other symptoms are dismissed for years before, if any, diagnosis.
2. How to re-establish boundaries and reassert your autonomy while navigating chronic illness.
3. Why now is an open moment for our individual and collective empowerment while living with chronic illness.

About Elinor Cleghorn

In her new book Unwell Women, Elinor explores the misunderstanding, mystification and misdiagnosis of women's bodies all throughout history. 

She was shortlisted for the Fitzcarraldo Editions Essay Prize (2017), and she has since written creatively about her experience of chronic illness for publications including Ache (UK) and Westerly (AUS).

Elinor is also an ambassador for the wren project, a platform where individuals diagnosed with autoimmune disease, can talk about the emotional and social impact of their diagnosis. 

About Michelle Irving 

A pioneer in the Chronic Illness space, Michelle Irving is the Queen of the Underworld. She mentors women around the world, teaching them how to create a life filled with love, meaningful work and deep personal power. She believes we can all have a positive relationship with ourselves even in the midst of experiencing illness. You can chat Michelle by booking at michelleirving.com.au/chat

Connect with Elinor

Instagram: @elinorcleghorn

Book: Unwell women

Connect with Michelle

Instagram: @michelleirvingofficial

Website: michelleirving.com.au

Book your Chat with Michelle

Queen of the Underworld Program

Music by Avy Summerlind

avysummerlind.com/ 

Hosted on Acast. See acast.com/privacy for more information.

How do you manage your career while also living with chronic illness? In this interview we dive deep with Fatemeh Khatibloo, Director of The Office for Ethical and Human Use at Salesforce. You'll learn how to navigate a high profile career with authenticity. Plus the raw truth about depression, chronic illness and finding your way. And how we move on from diversity, equity and inclusion (DEI) into Belonging.

She's the go-to commentator for the Wall Street Journal on consumer privacy, data protection and the intersection with Diversity, Inclusion and Equity.

About Fatemeh Khatibloo

Fatemeh has navigated a high-profile career including her current position as  the Director of The Office for Ethical and Human Use at Salesforce and her former role as Vice President at Forrester Research. She's the go-to commentator for the Wall Street Journal on consumer privacy, data protection and the intersection with Diversity, Inclusion and Equity.

Fatemeh also lives with Hashimoto's disease and will be sharing publicly for the first time her experience of building a corporate career while living with chronic illness. 

About Michelle Irving 

A pioneer in the Chronic Illness space, Michelle Irving is the Queen of the Underworld. She mentors women around the world, teaching them how to create a life filled with love, meaningful work and deep personal power. She believes we can all have a positive relationship with ourselves even in the midst of experiencing illness. You can chat Michelle by booking at michelleirving.com.au/chat

Connect with Fatemeh

Linkedin: fkhatibloo

Twitter: @fatemehx2

Connect with Michelle

Instagram: @michelleirvingofficial

Website: michelleirving.com.au

Book your Chat with Michelle

Queen of the Underworld Program

Music by Avy Summerlind

avysummerlind.com/ 

Hosted on Acast. See acast.com/privacy for more information.

How do you take care of your mental health when you are living with chronic illness? In this interview with Health Coach Lauren Freedman you'll learn about the toxicity of hustle culture and its impact on those of us living with chronic illness. Plus how to stop internalising the shame placed on living with chronic illness. And a whole lot of real talk about moving from surviving to thriving with chronic illness

About Lauren

Lauren Freedman is an award winning entrepreneur, voice actor, writer and activist who lives in Los Angeles. She has lived with depression and anxiety since she was a teen, and was first diagnosed with Hashimoto’s disease and sleep disorders in 2017. This sparked her interest in the invisible illness community and she now hosts the incredibly popular podcast Uninvisible Pod. 

About Michelle Irving 

A pioneer in the Chronic Illness space, Michelle Irving is the Queen of the Underworld. She mentors women around the world, teaching them how to create a life filled with love, meaningful work and deep personal power. She believes we can all have a positive relationship with ourselves even in the midst of experiencing illness. You can chat Michelle by booking at michelleirving.com.au/chat

Connect with Lauren

Instagram: @uninvisiblepod 

Website: uninvisiblepod.com/

Podcast: uninvisiblepod.com/episodes/ 

Connect with Michelle

Instagram: @michelleirvingofficial

Website: michelleirving.com.au

Book your Chat with Michelle

Queen of the Underworld Program

Music by Avy Summerlind

avysummerlind.com/ 

Hosted on Acast. See acast.com/privacy for more information.

What is sustainable wellness when you are living with chronic illness? In this episode spoonie and wellness expert Flic Manning shares with us her personal strategies for navigating treatment, drugs, side effects and B.S. Hear how she interviews clinicians to see if they are the right fit for her! Plus why she shares her experience of Crohn's disease publicly and without shame.

About Flic

Flic Manning successfully maintained her dancing and choreography career whilst living with invisible illness. She was determined to live well despite doctors telling her it was impossible. Flic's debut memoir Living Human is out now!

About Michelle Irving

A pioneer in the Chronic Illness space, Michelle Irving is the Queen of the Underworld. She mentors women around the world, teaching them how to create a life filled with love, meaningful work and deep personal power. She believes we can all have a positive relationship with ourselves even in the midst of experiencing illness. Book her for your Free Strategy Call with Michelle.

Connect with Flic

Instagram: @flicmanning

Website: www.flicmanning.com/

Read Living Human

Connect with Michelle

Instagram: @michelleirvingofficial

Book your Free Strategy Call

Queen of the Underworld Program

Music by Avy Summerlind

avysummerlind.com/ 

Hosted on Acast. See acast.com/privacy for more information.

What happens in a marriage when a vibrant author experiences chronic fatigue? In this episode author Ashley Kalagian-Blunt shares about the long diagnosis process for her chronic fatigue condition. Hear her wisdom about how to stay connected to your dream life even while living with chronic illness. Plus how Ashely navigates marriage and employment to ensure sustainable well-being while living with invisible illness. 

About Ashley

Ashley Kalagian Blunt is a Sydney-based author. Her books include My Name Is Revenge and How to Be Australian, a memoir. She co-hosts the James and Ashley Stay at Home podcast about writing, creativity and health. A former avid traveller, she was diagnosed with chronic fatigue syndrome in 2017 after a year of insidious onset. 

About Michelle Irving

A pioneer in the Chronic Illness space, Michelle Irving is the Queen of the Underworld. She mentors women around the world, teaching them how to create a life filled with love, meaningful work and deep personal power. She believes we can all have a positive relationship with ourselves even in the midst of experiencing illness.

Connect with Ashley Kalagian-Blunt 

Connect with Ashley on Instagram: @akalagianblunt

Ashley's Website: www.ashleykalagianblunt.com/

Read My Name is Revenge & How to be Australian

Connect with Michelle

Instagram: @michelleirvingofficial

Queen of the Underworld Program

Music by Avy Summerlind

avysummerlind.com/ 

Hosted on Acast. See acast.com/privacy for more information.